What is the Wilson Disease Registry and why we need it.

Ayse Coskun, MD
Wilson Disease Patient Registry Study Project Coordinator, Yale WD Center of Excellence
The Patient Registry Study, funded by the WDA, is our greatest accomplishment to date. The first five years are completed and data being gathered from patient volunteers is yielding insights to the disease and will continue to provide information that will help the lives of all those living with WD. Dr. Coskun explains what’s been learned so far and plans for the extension phase of the study.