People have a right to take risk if they are informed and willing. Governments should only be involved in fraud , malpractice and manipulation of patients. We need a global database for patients with rare conditions to increase the patient pool so it is not limited to one country demographics . Governments can help with cost of gene therapy by giving incentives such as allowing companies extended patents for existing drugs they already have and disallow secondary patents which they currently use to keep drugs under patent.
People have a right to take risk if they are informed and willing. Governments should only be involved in fraud , malpractice and manipulation of patients. We need a global database for patients with rare conditions to increase the patient pool so it is not limited to one country demographics . Governments can help with cost of gene therapy by giving incentives such as allowing companies extended patents for existing drugs they already have and disallow secondary patents which they currently use to keep drugs under patent.
when marfan syndrome will be curable?