Progeria: A Growing Hope

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  • Опубліковано 12 січ 2025

КОМЕНТАРІ • 677

  • @baharam98
    @baharam98 Рік тому +10

    "Don't let one thing, ruin your life." So much wisdom in that saying. Much love and respect to you and family.

    • @blankahrgovic3435
      @blankahrgovic3435 8 годин тому

      Bolje su,drago mi je ,hvala Bogu ,pozdrav iz 🇭🇷🇭🇷🇭🇷💕💕🌺✋🌟🌟🍀🍀

  • @donkeylvr.1925
    @donkeylvr.1925 8 років тому +61

    If we all just had an ounce of her attitude and energy this world would be such a better place

  • @savannahmathis9381
    @savannahmathis9381 9 років тому +35

    I've watched this video a million times and cry each time. Haters are so heartless its unreal, they need to be put in their place. These girls are so amazing and their positive outlook on life inspires me.

    • @scarbarber2129
      @scarbarber2129 7 років тому

      Savannah Mathis I like how she looks like an alien. Aliens are cool!!!

  • @viccy8609
    @viccy8609 9 років тому +56

    Y'all need to stop being mean. This made me cry tears of joy because of what she wishes. You an amazing, young and beautiful girl😘.

    • @devoncheng5563
      @devoncheng5563 5 років тому +5

      Literally no one was mean

    • @softy4803
      @softy4803 8 місяців тому

      area 51 creature

    • @joeyduberules
      @joeyduberules 3 місяці тому

      @@devoncheng5563 lmao, i think there's a word for that or a term...

    • @joeyduberules
      @joeyduberules 3 місяці тому

      @@softy4803 we'll assume youre 12.

  • @lashawnablanton4649
    @lashawnablanton4649 6 років тому +31

    God bless all children with progeria! God bless all children! #CureProgeria

  • @jorgealvidrez589
    @jorgealvidrez589 4 роки тому +60

    Who’s here in 2020
    Tell me if you want her tik tok

  • @a1sauce374
    @a1sauce374 10 років тому +16

    So cute and brave....so proud of this little angel that came from heaven...god bless you all who love this child of hope and confidence ;)

  • @troyswife71
    @troyswife71 10 років тому +111

    Thumbs up if u think she is cute,awesome,and most of all brave!!!!👍💪☀

  • @alilamberson8275
    @alilamberson8275 8 років тому +170

    She is 9 now?
    I follow her on musically she is so sweet

  • @allishaolsen1644
    @allishaolsen1644 9 років тому +75

    She is sooo cute she is a diva

  • @phillipmedeiros3962
    @phillipmedeiros3962 10 років тому +87

    Soooo Cute! Jesus please try and do something with this disease. I am soooo lucky to not have this disease but she got struck with such a horrible..... Horrible..... Horrible disease ;(

  • @jackycook64
    @jackycook64 9 років тому +16

    I am so glad they are finally offering the drug trials to all of the kids with Progeria. These kids deserve every opportunity available!

    • @carolyoung9269
      @carolyoung9269 9 років тому +1

      YAY Jackie!How are you? It's been a while my friend!
      🌈🐨

    • @carolyoung9269
      @carolyoung9269 9 років тому +1

      To all of you wishing harm on these precious Souls. SHAME ON YOU! God gave them life with his ETERNAL Love just like everyone. They are more worthy of a place in his Kingdom of Heaven than the likes of you spewing hatred! You have obviously deluded yourself with your claims of not being a sinner but YOU CAN'T LIE TO HIM! By claiming you don't sin you are saying you are equal to him & we all know what happened to Satan & his lot.So keep going with your grandiose claims & lies but leave these little ones & everyone with a firm understanding of & grip on- reality, alone.You are CLOWNS!Don't take your anti-psychotics so you fast-track your final judgement.
      The sooner you are gone the better. Who did Jesus declare more worthy at the place where John was baptizing? The rich man who gave a bag of coins - a pitance for him;or the lady who gave a single coin-her wages for a full week & all she possessed?Now-GO AWAY! 🌈🐨
      

    • @jackycook64
      @jackycook64 9 років тому +1

      Carol YOUNG​ Hi Carol! It has been awhile. Haven't been on much. Not doing well. Have to have another surgery. Dr said at least a 8-12hr surgery and possibility of losing more of both my large and small intestine. I know it will be fine. Have an outstanding surgeon that has done over 30 of my other surgeries. How have you been?

    • @carolyoung9269
      @carolyoung9269 9 років тому +2

      jackycook64​​ There you are~ FINALLY!Missed you! YAY!! You really should donate your body to science~ YOU ARE PHENOMENAL!! I"m getting there,thankyou for asking.My hip is great~Just a bit wobbly still.Getting a brand knew shoulder within a few months.
      Pain is a bloody nuisance but you know that better than me.
      Do you have a colostomy/ileostomy? I'm surprised you have much left to play with. Wish I could make you all better forever! Hang in there honey~I value my friends! Mwwaaaahhh

    • @jackycook64
      @jackycook64 9 років тому +2

      Carol YOUNG​ Thank you so much for your kind words! so glad your hip is doing so well. Praying that your shoulder does just as well. The pain is really a nuisance!!! I am surprised I have as much left to play with as I do. No colostomy yet. Just a j-tube. The tract for the tube, like the rest of my GI tract keeps breaking down. I will definitely donate my body. It is one crazy contraption!!! Wish I could make you better as well. But even with all these issues, I would have to say I have a very good life. Was so good to hear from you! Take care and keep in touch! I value my friends so much!

  • @crybaby9800
    @crybaby9800 8 років тому +21

    Those kids are so happy,and we have everything and not happy even tho we are healthy!
    I AM SO SHAME OF MYSELF,I HAVE EVERYTHING I EEVER WANTED,AND NEVER HAPPY!

  • @edwardramsey527
    @edwardramsey527 7 років тому +1

    She's so bubbly happy. Just beautiful, funny the whole family is awesome. Kaylee your a shining star.

  • @carolyoung9269
    @carolyoung9269 9 років тому +1

    Dear God I love Barbara! Who better for this interview?!😀 I certainly pray for these little angels & their families. PLEASE LORD HELP MANKIND TO FIND WAYS TO HELP ALL WHO SUFFER. 🌈 🐨

  • @tosh7989
    @tosh7989 8 років тому +5

    5:04 is the mother of Sam Berns. Sam Berns Had Progeria as well but he died at the age of 17. To be honest he is very lucky to live the age of 17.

  • @elizabethmacy1643
    @elizabethmacy1643 11 років тому +11

    "Dont let one thing ruin your life." So true keep fighting for progeria.

  • @chainsawkitten3766
    @chainsawkitten3766 7 років тому +19

    Why should they have to pay when they are in a drug research/trial?? One would think it would be free for them.

  • @mrsub4subb
    @mrsub4subb 9 років тому +11

    They are such cuties. I wish they could grow their own hair too, something we all take for granted. ♥

  • @rainstorm.
    @rainstorm. 8 років тому +33

    I love her they were right she is now a musical.ly star

  • @ruchikakarmakar3545
    @ruchikakarmakar3545 9 років тому +6

    She has that awesome thing "Confidence"...Stay Blessed sweetie...

  • @mariareneecurry1073
    @mariareneecurry1073 8 років тому +20

    To be honest SHE'S GORGEOUS!!!😍😍❤️❤️💠🌀

  • @bdahmartlangte5551
    @bdahmartlangte5551 4 роки тому +1

    Why they all are so special.. active.. funny .. kind ..etc.. everything nice.. omg.. they are really a Gift.. 🥰🥰🥰

  • @Zumbagirl517
    @Zumbagirl517 6 років тому +4

    She’s so brave! She more mature than a lot of kids her age!

  • @homerminor8024
    @homerminor8024 4 роки тому

    Really inspires me with the angels and their bravery, as they face this disease daily and have the best outlook!! Watch these videos and it changes my perspective on how to face adversity. These sweet babies are brave heroes...In Jesus name,heal them!!

  • @Jaadaaxoxo
    @Jaadaaxoxo 4 роки тому +8

    I remember when I use to see her on musically all the time💞😩 she’s about to be 17 !💕 on July 21st

    • @mariahsrobloxyt
      @mariahsrobloxyt 5 місяців тому +2

      Her golden birthday is today! (She turned 21!)

    • @Jaadaaxoxo
      @Jaadaaxoxo 5 місяців тому +1

      @@mariahsrobloxyt that is so crazy to meee and no way i commented this 4 years ago lmao

  • @troyswife71
    @troyswife71 10 років тому +59

    God bless her thumbs up if u agree!👍

  • @jovanisis7050
    @jovanisis7050 9 років тому +25

    I love like they dont even care about their looks, they are really brave :) I mean really.

    • @EmPurple
      @EmPurple 3 роки тому

      Yup. The happiest people don't have vanity. I know I don't, I never bother with make up. I will brush my hair and wear casual clothes. I just want to live life and have adventures like these people with projeria.

  • @anniemac7625
    @anniemac7625 9 років тому +15

    I love how sassy and cute she is

    • @scarbarber2129
      @scarbarber2129 7 років тому +1

      Ånnëka Cat queen I really like how she looks like an alien. Aliens are cool!!!

  • @estherharrison3786
    @estherharrison3786 2 місяці тому +1

    Bless all these children 🙏

  • @theresarivera5369
    @theresarivera5369 10 років тому +13

    Awwww... I love her 😊

  • @QueenPenelope19
    @QueenPenelope19 4 роки тому +2

    Omg she was so young and now she’s a grown up🥺🥺🥺🥺❤️❤️❤️❤️

  • @EnviousWingDings
    @EnviousWingDings 7 років тому +2

    I think this lovely child is just so beautiful. She is just the sweetest girl I have ever seen. I really hope we can find a way to let these people live long and comfortable lives.

  • @chubbsthebunny9437
    @chubbsthebunny9437 11 років тому +11

    she's so cute!!!!!!!!! Thumbs up if u agree!

  • @patriciajgreen2995
    @patriciajgreen2995 8 років тому +3

    It is more than a growing hope it is a so much more. I Love these children with all my heart

  • @sgtpepper915
    @sgtpepper915 11 років тому +1

    What a beautiful child! The world is better because she is in it.

  • @rockylosco5596
    @rockylosco5596 5 років тому

    Folks,”don’t let one thing ruin your life”,wisest statement I ever heard,from the mouths of babes God has perfected praise!

  • @DunkeePlzSubscribe
    @DunkeePlzSubscribe 8 років тому +2

    0:50

  • @sanmiguel3827
    @sanmiguel3827 11 років тому +15

    thumbs up if u think shes the bravest 6yr old ever! so cute :)

  • @iturgirltaetae3773
    @iturgirltaetae3773 8 років тому

    yeah I almost burst out in tears watching this video she is so cute and I love her voice

  • @rockylosco5596
    @rockylosco5596 5 років тому

    What a sweet girl,what a personality,Lord Jesus let this precious precious girl live a long life,let her shock this world Lord,amen

  • @xavierjoell5814
    @xavierjoell5814 8 років тому +6

    her voice makes me smile

  • @kylir6399
    @kylir6399 9 років тому +3

    you guys stop being mean to her she's too beautiful just the way she is

  • @nofomama9205
    @nofomama9205 7 років тому +1

    How can people even Dislike such a Beautiful And Inspiring video?!?

  • @_sashitheedreamangel24_
    @_sashitheedreamangel24_ 9 років тому

    She is so adorable, I will keep her in my prayers!!!

  • @christonrodriguez3374
    @christonrodriguez3374 9 років тому +1

    I give props .. GOD SHOULD BLESS her ..she is an amazing girl.

  • @kay6521
    @kay6521 7 років тому +1

    awww they're voices are adorable

  • @myfz6
    @myfz6 12 років тому

    They r such precious little ones. These families need our love and support not just words buy they need us to act and donate what u can even if its just $1

  • @San47di
    @San47di 10 років тому +1

    This beautiful child simply touches your heart!! :-)

  • @BlessUPkinFOLK
    @BlessUPkinFOLK 4 роки тому +1

    I watch this video so many times and still can't stop crying 😭

    • @Thevoices1
      @Thevoices1 8 місяців тому

      Do you still watch it?!

  • @simonepowell906
    @simonepowell906 8 років тому

    she is so beautiful and confident and doesn't let things stop her

  • @giadamagala3995
    @giadamagala3995 2 місяці тому

    E un piacere vedere che i genitori riescono interagire con loro riuscendo a tirare fuori la loro intelligenza!!! Bravissimi ❤❤❤❤

  • @sevenfuntasticdolls5154
    @sevenfuntasticdolls5154 8 років тому

    my fave is when she said she's a star but really when she said yeah, mhm😍😍😘😍😍😍😍😘😘😘😘😘😂😍💓😘😘💓😘😂😍😘💓😘💓😘💓💓😘💓😘💓😘😘💓😂😍😂😍😂😍😂😍😂😍😍😂😂😍😍😂😍💓😍💓😍😍😂😍😂😍😂😍💓😍💓😍💓😘😂😍😂😍😍😂😍😂😍😂😘😘😘😂😍😂😍😂😘😂😘😂😘😂😍😂😘😂😂😂😍💓😍💓😍💓😍💓😍💓😍💓💓💓💓💓💓💓😍😍😍😍😍😂😘😘😘😘 and more

  • @bhavitasingh3764
    @bhavitasingh3764 8 років тому

    Kaylee ,we all have deep regards to u ,it's so nice for a girl living with progeria act live as if she is a normal human being .enjoy your life kaylee.many people in ,India know you ,even I'm 13 years old

  • @emmakateguy9200
    @emmakateguy9200 3 роки тому

    I commented just so there wouldn’t be 666 comments... I love how great her personality is!

  • @charitinii2244
    @charitinii2244 8 років тому +14

    i follow her on musical.ly and she's just the cutest 😍

  • @morito2321
    @morito2321 8 років тому +8

    she's so cute and funny ☺❤

  • @bonnie4961
    @bonnie4961 9 років тому +4

    These little girls are precious

  • @Roger9Wilco
    @Roger9Wilco 11 років тому

    She talks and acts like a young adult. She is indeed amazing.

  • @calynndabarbie9118
    @calynndabarbie9118 9 років тому

    Bruh this made me cry because she's so beautiful .... like I'll donate my hair for her she's awesome

  • @larman58
    @larman58 11 років тому

    I love this little lady....stay bless Kaylee!!!!!

  • @twosongs7396
    @twosongs7396 2 роки тому

    You are a Star, my Love. I carry you in my heart and always will. I’m so sorry I wasn’t able to pursue my studies. I’d hoped to participate in an effort for a cure… but I couldn’t afford continuing my studies.

  • @juanwani1851
    @juanwani1851 6 років тому

    May the good lord guide and protect all the children with progeria all over the world

  • @miyaandgrace246
    @miyaandgrace246 12 років тому

    Pray for these girls. they both are beautiful and hope that doctors find a cure!

  • @clasherfn
    @clasherfn 8 років тому +6

    Hi actually she is a star on musical.ly who follows kaylee halko on musical.ly

  • @shenitabeck2893
    @shenitabeck2893 10 років тому

    I can move it she is awesome little girl I love her even though I don't know her she is brave and know how to survive good job boo keep it going

  • @brooklinwebb9546
    @brooklinwebb9546 7 років тому +3

    love her personality

  • @kellybowen2493
    @kellybowen2493 11 років тому

    who could not like this.... it made my heart melt god bless you guys also in my prayers...

  • @driptoffen3604
    @driptoffen3604 7 років тому +1

    What a Smile.....I wish you gonna celebrate your 100 birthday

  • @witchplease9695
    @witchplease9695 12 років тому

    Such beautiful and bright little girls. God bless the both of them.

  • @amyhammond1005
    @amyhammond1005 10 років тому

    She is soooooo cute and its sooooooo sad that some kids have this disease and I'm glad they are trying to find cures she is staying really strong and she is saying that one day she will have hair well I bet you she will and that is a positive attitude just stay strong kaylee

  • @kmcghee143
    @kmcghee143 8 місяців тому

    Absolutely Adorable!!!❤❤❤❤

  • @drippypipes1932
    @drippypipes1932 8 років тому +2

    Aww she is the sweetest thing ever❤️❤️❤️

  • @makennastoddard2536
    @makennastoddard2536 8 років тому +3

    Her brother are so kind to her

  • @laurena5769
    @laurena5769 8 років тому

    such nice girls with good families stay fabulous and dont let one thing ruin ur life follow her motto

  • @beckybojoy
    @beckybojoy 11 років тому

    Love these strong beautiful souls they inspire and are real gifts

  • @trevorharbolt6293
    @trevorharbolt6293 6 років тому +1

    I love her voice

  • @renwong6327
    @renwong6327 12 років тому

    I hope kaylee continues to live a long and healthy life

  • @akritikhanal3243
    @akritikhanal3243 8 років тому

    she is such a big inspiration for me......

  • @ruvstof
    @ruvstof 9 років тому

    This touches me, we forget about time.

  • @crystalprados3601
    @crystalprados3601 7 років тому

    all love this girl in her story she is so beautiful

  • @alexnky2257
    @alexnky2257 8 років тому

    I love her little squeaky voice it is adorable

  • @wioi
    @wioi Місяць тому

    Oh Ooh Ooh my little dear, If I only had thousands of dollars to spare for you, your family and children like you I swear I would! If I win the big lottery I would spare millions for your medicine. If I only had even millions to spare for you little angels I would. I hope that you can live a long fulfilling life. ❤

  • @marciacarr2054
    @marciacarr2054 8 років тому +1

    she is so sweet and i wish her all the best💜

  • @Memo-bs6kf
    @Memo-bs6kf 8 років тому

    she is so sweet and beauitfful and i love her so so so so much and if you dont have a heart your and i love you are an star in my heart ❤❤❤❤❤❤

  • @kelmi412
    @kelmi412 10 років тому

    "Be fabulous. Don't let one thing ruin your life."

  • @thegaminggirl9960
    @thegaminggirl9960 8 років тому

    Who other hated this has no heart 😫 Get Well Kaylee And Linsy💖🎗

  • @barbarashanon1473
    @barbarashanon1473 6 років тому

    Omg her voice IS SO CUTE AND ADORIBLE

  • @Zumbagirl517
    @Zumbagirl517 6 років тому +1

    Beautiful brave girls!

  • @kyleejo7569
    @kyleejo7569 10 років тому +3

    The most adorable thing g I have ever seen

  • @sutoeben
    @sutoeben 7 років тому

    If the US had universal healthcare that would take away the financial stress.

  • @jasminecontreras6998
    @jasminecontreras6998 10 років тому +4

    Kaly is so cute she looks like adalia:-) !

    • @scarbarber2129
      @scarbarber2129 7 років тому

      Jasmine Contreras She also look like an alien, aliens are cool!!!

    • @shortstack1101
      @shortstack1101 7 років тому

      Rwal Son
      ya but don't be rude like dat

  • @kaitlynkaitlyn3076
    @kaitlynkaitlyn3076 8 років тому

    Their both ADORABLE!

  • @audikeepsdancing5487
    @audikeepsdancing5487 8 років тому

    I like that she loves the way she is.

  • @daisyj4682
    @daisyj4682 7 років тому

    oh lovely .. ikeylee...if i would be there ...i must have hugged her.. lovely girl ..may god bless you ...see at 1:38 how cutest she iis .... love you keyleee
    i literally cried at the moment during...2:27 and then 3:03 her words....oh !!

  • @sandraevans8354
    @sandraevans8354 10 років тому +1

    This made me cry ♥

  • @Morethanlife-tw3bh
    @Morethanlife-tw3bh 11 років тому

    She is loved and will live a happy life

  • @nicolen7094
    @nicolen7094 8 років тому

    I love her she's so energetic and happy

  • @TheR005ter
    @TheR005ter 8 років тому

    Does anybody know how we can follow them to know how there doing these little girls are real brave and strong too.

  • @Ceecee123
    @Ceecee123 11 років тому

    she is definitely verrrrrrrrrrrrry fabulous!! so cute! god bless her!=)