my mum has stage 4 lung cancer. she had radiotherapy on her lung which shrunk the tumour a hell of a lot which is great and it’s now back to a dormant stage. with that news is when we also found out it’d spread to her liver. she’s just begun immunotherapy to treat that. she’s so strong. just before christmas, she had life-saving surgery for a ruptured bowel and survived peritonitis and severe sepsis, along with covid whilst in hospital. she’s still recovering from that and now has the cancer to deal with. i believe she will make it though. i need her to 🙏🏻❤️
She's so strong and i think her hold to God is very tight ,your mom is continously recieving miracles from God ,i wish she'll survive and finish all the treatments.
For me it looks like my fight will be coming to a close.Last week my team said that immunotherapyies will literly kill me painfully. so Last week myself and my family made the decision to bring me home for hospice care. my biggest problem at this point is that between the love I have for my family and the return of love, I am reluctant to move to my lord
Chemotherapy didn’t work for the lung cancer, but immunotherapy has held the cancer back for two and a half years now but I still have cancer, I’m monitored by CT scans.
It’s one hell of a drug. It’s kept me alive. Phase 4 cancer patient 55 tumours 4 in the head. They are not bull shitting about the side effects. Pretty much had them all. Treatments go on for two years. Only got 2 treatment left and still getting side effects. Best of luck too any one on or going on it. And to call cancer victims
I’ve been on this for 18 months, luckily I’ve felt fantastic throughout!! I’m so grateful this is available to me, I had tumours in my brain, lungs and liver - now I’m tumour free!! 🙏
I have had 7 full dose Keytruda treatments over 9.5 months or so. My biggest recommendation is to take turkey tail mushrooms. My side effects mostly went away when I started taking them. I was having mild side effects such as fatigue.
I'm getting immunotherapy now going on six months. I'm almost in total remission. I have a rash on my back. I feel good about it. I'm hoping for 6 to 8 more years. I'm 65.
My dad is 80 years old and diagnosed with liver cancer today. He has compromised kidney functions as well. No biopsy done , doctors diagnosed it via ct scan. It’s not spread to any other parts of his body. Doctors only suggested two options Do nothing and let him live his life as best as he can and he has only 6 months OR Tace procedure that will only increase his life for a few more months. We haven’t told our father about the diagnosis and trying to keep the news hidden so he could live his remaining months a bit peacefully. So many things to think about. It’s such a huge challenge of life to decide for our beloved dad. Can someone advice me on this regards.
My grandfather 86 yrs. had colon cancer. It was too late for any treatments. My mom being the oldest of 4. Made the decision with Grandpas doctor not to tell him. It was mid December and his doctor told Mom to take him home and enjoy your last Christmas with him. Mom told Grandpa he had to wait for surgery as he had to gain some weight to remove the cancer. (He had lost quite a bit of weight.. )She never told him. Grandpa ate all his meals happpily. He eventually became bedbound due to weakness. Yet continued to eat. He never complained. And never asked.. My mom took care of him 24/7. I would go and relieve her for a few hours on my days off. My sister and I would take our kids to visit. The kids would fill his little pitcher of water and take a snack tray to him. He loved it and so did they. My Mom had doubts at times about not telling him.. I was in my early 20s and I told her I believe she made the right decision for him. Grandpa would have been depressed, maybe even fearful. Instead he got to enjoy his daughters loving care and his grandkids fussing over him. Grandpa lasted 4 months he passed peacefully during Easter break. I know it was difficult for my Mom because she lied to her Dad. But I know she did the right thing. His doctors direction to take him home and enjoy his last Christmas. Mom told me and my sister not the younger ones. I feel it was a blessing looking back. I had the best memories getting to fuss, hug and kiss my Grandpa just like I did when I was little. He enjoyed it too. We took lots if pictures. It was one of the best Christmases with Grandpa. Yes, maybe a little bittersweet. But lovely nonetheless.
Hello, my Grandpa 86 yrs had colon cancer. It was mid December -his doctor told my Mom take him home and enjoy him for his last Christmas. He passed away Easter week. Mom would ask me more than once. Am I doing the right thing. I agreed with his doctor. I believe my Grandpa may have got depressed maybe fearful had he known . Instead he had his loving daughter taking care if him 24/7 and his great, great grandkids fussing over him -filling his little pitcher of water. Taking him his snack tray. Those few months were bittersweet. Yet filled with laughter, lots if hugs , kisses and lots of picture taking. I say to you now -do the same for your Dad. You don't want him having to go to appts, sitting in waiting areas with a mask on, lab needles. endless questions like have you been out of the country etc. Take him home with you love him, look at old picture albums together, share memories. Tell him the things you've always wanted to say bad or good. Encourage him to do the same. Take lots of selfies. I hope this helps a bit. May you find comfort and peace.🙏
Pray to God with all your heart, and don’t loose any of your faith. God is watching over your Dad. And love you all as well. I will pray for your dad🙏🏻
I have 2 stage 4 cancers-breast with metastasis to bone and urothelial with metastasis to lung. Am on Ibrance for breast and Keytruda for urothelial. Have been on Keytruda every 3 weeks for a year and lesion in lung has reduced dramatically. Keytruda switches back on the immune system and is effective against many cancers. It does have side effects. My life is different now but I still get enjoyment out of being alive.
My 16yr old sons brain tumour has come back with a bang after being cancer free 6yrs. He had medullablastoma. Thats back & also 2other tumours that have clustered in his brain & spine. They don't hold out much hope for him. I am absolutely devastated. It is such a hard decision. What to do regarding treatment,drug trials, which ones,its like looking into a minefield. Iv started my son on CBD & pray it helps slow down growths at least. It is such a cruel & unfair disease.
@@Tammy-mj2rw 3weeks after I wrote that comment my son died. A bad reaction to the very first low dose radiotherapy on tumour on his spine. He was perfectly fine with no symptoms until he got home that night. Tumour swelled & pressed on spine. He was gone the next night. I am still in shock. But I'm sad that Drs are still offering standard treatments & disregarding or not sharing information about other treatments. You really have to do your own research.
I am sincerely sorry for your loss..will pray for you, your strength for each day, for your broken heart and for you to bear the loss of your son.. Cancer is a vicious foe..you have to make soo many decisions when not even understanding it all. I went thro breast cancer surgery and treatment last year, I have a small understanding of it. My youngest brother was just diagnosed with stage 4 melanoma. Cancer spares no families..🙏💗
@Tammy-mj2rw hi Tammy, just wondering how it is going with your brother who has melanoma. My wife has it as well. She is supposed to begin immunotherapy tomorrow but we are not sure if it's the best option. We're quite nervous about it.
@Tammy-mj2rw hi Tammy, just wondering how it is going with your brother who has melanoma. My wife has it as well. She is supposed to begin immunotherapy tomorrow but we are not sure if it's the best option. We're quite nervous about it.
One side affect which isnt widely recognised in UK/EU is Cognitive functions , there is a French paper on this by a PHD MD Dr Joley, and she says this needs to be looked into more closely..i only came here as my partner is now finding these affects to be common as of his second treatment, his stringing words together as hes reading from captions off of the Television is nearly zero..its quite alarming for him to be asking me what the words are when before treatment he was as normal as normal is in this society..thanks x
Yes, very true, There are times I can not find the words that I am looking for. I find it happens when I get tired or overwhelmed. ..I found in the past once treatment is stopped the pieces of the puzzle slowly start fitting back together. God Bless the caregivers.
They want me to start immunotherapy and be on it for a year. I am cancer free, they cut out my melonoma that was in the lymph nodes. I am so frightened it will hurt me beyond repair.
After 3 years of chemo and radiation treatments and faring fdirly well through them, i certainly did not have really serious side effects, chemo or radiation are no longer options. Keytruda was recommended, but i have decided against it. The side effects truly scare me. I can't imagine going through another summer being stuck at home going through weekly blood tests, urine tests, and afraid of heart problems, having a at home blood pressure monitor. I have stage 4 cancer and im planning now to enjoy what is left of my life. Even after chemo, keytruda scares the crap out of me.
just getting started with keytruda first treatment 4 days ago have been tired and dizzy,still beat up from radical open nephrectomy on right kidney hope and prayers to all
I wish you well. I have been on Keytruda treatments for almost a year now for the same radical open nephrectomy. I experienced the same fatigue at first but the fatigue has actually gotten worse over the duration of the treatments. I have not had many other side effects except my sugar levels bounce all over the place and my eyes have been experiencing large oily floaters and a general haziness even though my vision still appears to be sharp. This started only after the treatments began. Still trying to figure out if there is any connection. I had my cataracts replaced about a year before the Keytruda treatments started. Best of luck to you.
I hope this works for me. I've gotten serious side effects 2 wks after 1st treatment. Had to get put on Prednisone and antibiotic. Then weened off Prednisone and had 2nd treatment last week. Breathing is not good, low blood pressure and low oxygen. I wasn't expecting to be this incapacitated. Sever fatigue. I don't want chemo - stage 4 uterine cancer.
I have recurrent uterine cancer and since completing the standard Taxol/Carbo chemo 15 months ago, my oncology doctors and I have been debating whether to go for the Keytruda/Lenvima option which has only recently been approved for second line treatment here in the UK. Reading comments such as your and those below, I am even more apprehensive as it took me over six months to recover from chemo but am now back to my more or less normal self and am stable on anti hormones.
So if immunotherapy is so specific, why are there so many side effects? I feel like it’s specificity was what made it so exciting so it makes no sense why it’s affecting other parts of your body. It’s tempting to think this treatment isn’t an improvement over chemotherapy as there are just as many side effects and therefore isn’t infinitely repeatable. I’ve seen it be effective, but I’ve also seen it do absolutely nothing. I just wish I knew more about it. The basic explanations don’t address any of this.
I was diagnosed with Stage 4 Metabolic Small Cell Lung Cancer in June. Did rafiation Therapy while in the hospital. Now i am on Immunotherapy. Have a really bad rash . Might have to go on Chemotherapy.
Taking Keytruda, does anyone have a way to help with the fatigue? So tired.. UPDATE; 9/21..I am not too sure what has been going on lately but I am tolerating my treatments better. I have been taking it even MORE easily than usual, so we are looking forward with a more positive attitude.
I use Isagenix protein shakes as well as there new liquid collagen for the joint pain. and Advocare Spark also help with the shake for energy. I drink about a gallon of water a day to keep the side effects to a minimum.
@@altheaboothe3558 Thank you..There are times when I feel completely fine and others when the life is just drained out of me.. I have to start being more proactive, , it's gonna be a bumpy ride!!
My mom had her first treatment of Keytruda three days ago and she shivered and chilled and pooped for few hours everyday after the treatment. On the 3rd day, she also pooped in the pants. Is that normal?
@@Ella79537 Tell her to hang in there. Keep her hydrated, try protein drinks like Ensure. Her personality may change, she may become a bit more cynical and nasty, if those trades pop up understand that just her getting the crap kick out of her. Keyrtuda will make you very tired, let her rest/ sleep. Diet is important!!! Protein, protein, protein...As a meat-eater, I would have my wife get nice red roast beef sliced thin at the deli. trim it and put a bit of salt on it, roll it up and I would feel better after one slice...I am NOT a doctor, so please check with her oncologist...I have a treatment tomorrow, but feel free to ask anytime. God bless you all, Dennis
I haven’t heard any mention of this being used for prostate cancer. I have currently been diagnosed with prostate cancer and I am looking for a solution. Surgery is not even in my list of options. The idea of not being able to get an erection, or having urinary problems just doesn’t sit well with me at all. I’m 74 years old but I’m still very active in the bedroom. And the last thing I want to do is kill off one of the few things that I enjoy doing at this point in time in my life. Scary stuff. Brachytherapy so far seems to be the only thing I am even considering. But I have been reading from lots of people who are taking a active surveillance stance, and these people have been doing it for 10 years without any treatment. So maybe prostate cancer even though it is a cancer, isn’t really a death sentence.
I hear you brother, I had my bladder and prostate removed 4 years ago and miss my erections more than I thought I would. I went from fairly virile to nothing overnight and it has left me with depression, I am 70 now but still interested in sex but my wife has lost interest in me now I can't get it up.
My dad had prostate cancer and his doctor said he will most likely die from something else. My Uncle has lived with prostate cancer for 20 years but he had surgery, etc.
Immunotherapy brought on encephalitis & significant dementia for my wife. Also a bad rash. Both treated with Steroids that made managing her T2 diabetes very difficult
I have stage 4 lung cancer diagnosed in Dec 2023. I started chemo in Feb 2024. I had 8 doses. Now starting in November I'm on immunotheraphy. The cancer is progressing in both lungs as if nothing is done. I need prayers please. I'm lost now I dont know what to do
I’m three sessions in immunotherapy- after the third dose my body went into agonising muscle seizure which completely debilitated me for 5 days it relaxed but comes back every 6 days and lasts for about a day - l already had chemo and radiation therapy 6 years ago - the doctors have delayed the 4 the dose but lm terrified of this obvious side effect - it’s been determined that the immunotherapy isn’t just fighting the cancer but also fighting my body
I have brain cancer and have been taking Keytruda for about a year now. I can say I'm a believer and the fact the worst side effect is removing the plastic tape holding from my wrist to the pump, it's infinitely better than the Temodar which caused me to feel tired and getting puckey every morning.
One other thing: I did Keytruda for one year without missing a treatment, 2015-16...My oncologist at the time said, "this ain't mother's milk"...That doctor was awesome and has since moved to CT...The oncologist I had reluctantly gone to was insisting that this is NOT chemotherapy even though I had one year under my belt...Well I will tell you this, although Keytruda is not chemo and it is immunotherapy Please any oncologist, patcent or caregiver understand this is stuff is no joke and will mess with you...And anyone telling you differently is sugarcoating the truth...Be prepared to fight...God Bless you all.
@Dennis Adorno While the side effects of chemo can be bad, it doesn’t sound like immunotherapy is necessarily “better”. My cancer was tested and it doesn’t respond to immunotherapy, only chemotherapy. After watching this video, I’m almost glad I don’t qualify for immunotherapy. Unfortunately, it seems like all cancer treatments have side effects that could make us feel even worse and there’s a chance that we’ll develop a condition that’s not reversable. Are you still experiencing side effects? Was it worth it for you?
@@dessertfirstandlastandalways Good morning Kristina, In one of my posts, I wanted to convey that if your doctor gives you a speel that immunotherapy is so much easier than chemotherapy,,,,, don't believe it! I speak from experience, immunotherapy can knock your socks off...AND LISTEN..every BODY is different, which means everybody will have a different reaction. Like my first oncologist said....None of this is mothers milk..So YES, you will have side effects. Kristine, if this is your first go-around with treatment, I would ABSOLUTELY say "YES, bring it on!" ...Now as long as you go into treatment saying I WILL give this my best shot and make YOU the number one priority. If you are questioning your treatment, then it tells me one thing. It tells me you are thinking about others, and how much you don't want to disappoint them. So don't! Lasting side effects: Your correct again. I have been at this for 12 years, I am 59 now. Part of my "rapid aging" is due to the dozen or so surgeries I have had, part of it was treatments and yes part of it is I am (we are) getting older. Now my family and I choose to laugh it off what we can. When I go to the beach or a pool (not too often) I tell people that I was attacked by a shark. When they look at my scars...(war wounds) And seeing that I now have tinnitus I tell my family that I am going to walk across the street and give my neighbor Louie a piece of my mind for not turning off his house alarm....(BTW) Louie and his family are great people and don't have an alarm. You have to laugh!!!!!!!!!...I took a long way to answer some of your questions and I hope it helps. But to answer your last two questions: YES! And YES! God Bless you and check-in anytime. Dennis
@@dessertfirstandlastandalways Hi Kristina, sorry for the bother, Is your cancer operatable? For me, I always had good success with surgery. Good luck.
@@dennisadorno6721 Hi Dennis Yes, I’ve actually had three surgeries (an esophagectomy and two to remove tumors in my pelvic area). I was supposed to have another to remove the tumor on my right abdominal muscle, but the surgical oncologist saw many tiny tumors in the peritoneal cavity, so they stopped the surgery and recommended chemo instead. This is my third round of chemo. (Is that the right term? I don’t know if I have the correct terminology. It’s my third time undergoing chemo.) I had radiation, chemo and two surgeries in 2019 and chemo and surgery again in 2020. My tumors were tested for immunotherapy, but I was told the numbers weren’t right. I actually don’t mind that I don’t qualify. The side effects seem like they are brutal. Of course, chemo could have similar side effects, but I think I’m more afraid of what the body’s immune system will do in response, since there’s no way to know who will get bad side effects. I’m doing pretty good on my current chemo. My white cells were low after my first two, so I needed the booster shots. Other than that, I’m not having too much nausea. I have some numbness in my fingers, but it comes and goes. My weight is low, but steady and my appetite is good. Any treatment where the side effects could be abdominal issues would be a no go for me. I have a pretty high pain tolerance, but stomach pain can be debilitating.
@@dessertfirstandlastandalways WOW!!!! And here I am speaking to you like you are a novice. (Shame on me)...You are a warrior!!!! Seeing as this is not your first "go around" I believe that you are doing very well. Your reply was clear and precise. You have done your homework and you are being realistic regarding the effects of chemo and how to combat the ill effects. My only "words of wisdom" are to keep your weight up. My first oncologist told me that, he likes to see his patients with a little weight on". So I apologize if I am sounding condescending, eat high-protein snacks often and drink plenty of water, but I know you know that..Thank you for sharing. Dennis
@@cindyjudd6703 I hope that you are still with us Cindy in a better frame of mind...If not then at the risk of sounding like an ass...You are in a better place. God bless you.
I have Stage III Melanoma .. I am now on Opdivo which supposedly cost more per does than a new car .. I am wondering .. Should I just let the cancer take it's course and check out .. Or live a live of pain ,and half the symptoms described .. I crap on myself all the time , sick . sleep 18 hours a day and sometimes hope I never wake .. I have had to sell everything I have . amputation and I am a few months away from laying on a curb holding up a sign .. Help Me ! because I am being fast tracked to homelessness since I am weak and can't work .. I always remember the words of encouragement my father gave me when I was a young boy ... " I hope the world eats you alive " ... Well Dad .. Your wish seemingly have come true .. I forgive you .. With my cancer .. I am now at a point of letting it run it's course and throw my body in the back of a dumpster
Hey what state do you live in? You didn't have insurance or your insurance wouldn't cover your treatment costs? I'm incredibly sorry to hear about that, cancer treatment should be free for all people. Have you considered starting a donation page? Hope all gets better.
My husband was on opdivo for a year. Three months after he finished, he started losing weight. 65 lbs. after seeing numerous specialists we finally found out that immunotherapy killed his pituitary gland. Now he is on progesterone for life. Be aware!
Same thing happened to me and we’re trying to figure out what is going on and I cannot gain weight and I knew it was the immunotherapy drugs. That’s what I told my oncologist. He’s trying to back out and deny it and do all these stupid test that do nothing.
Can I ask you about progesterone isn’t that a woman’s hormone ?I don’t understand if you could possibly explain it to me I’d love to hear because I think the same thing is happened to me.
IM ON KEYTRUDA immuno therapy for stage four lung cancer Adenocarcinoma ,, it attacked my pituitary gland now I can’t be on Keytruda , so I have to wait for three weeks for more bloodwork so I don’t know what kind of cancer treatment I’m going to get. Please tell me what kind of treatment that he got. Did you get chemotherapy after that did he get radiation? Did he get pills? What did he get? Thank you.
had 5 doses of imunitheropy side affects fatigue all the time burning itchy skin stomach cramps constipation back pain and strangest 1 of all constant hicups for 3 days
Pembrolizumab worked oppositely in my motherscase its been about 4 weeks and two pembro. The wound in the face got bigger and more are appearing . It is infact making things worse for HNSCC cancer.
Hi my mom had her second Immunatherapy treatment and in the morning her face skin peeled off in a huge circle. Waiting to hear from dr... I can't find any info on why? Just to "call your dr" what causes this? I am aware she is terminal but what caused the peeling?
My father is having 4th stage cancer and chemotherapy did good on his body but since when immunotherapy is started his health is deteriorating. He is not eating anything. Weakness and joint pains are on it's peak. His speech has gone. Stomach pain is felt even after pain killer. Should we stop using keytruda??
Hi kamini..how is your father now?Please leave some hope ...even a i am a mbbs graduate but my inspiration and my love ,grandpa(muttya) diagnosed with satge 4 pancreatic ca...have u gone through any patient diagnosed with same condition?? Or did u hear about any modern therapies like immunotherapy?? Or really arent there any chance of surviving over a year?? Your reply is very important please
I’ve had All of these side effects but on my last chemo the rash was so bad to where it was like a rug sunburn and I even got inpetego c question to people who were on this diese this cause weight gain like servers like 25lbs every other month
I recommend this Therapy for Bladder Cancer, a little longer than a single treatment and the side affects are very mild to say the least, don't look for the side affects, they arnt serious . .
I can longer continue with my treatments. It was a few weeks ago I came to that conclusion. I did my last Keytrda on Jan, 25 and my last Cacometryx pill Feb. 3rd.. I can't take the body pains, headaches, and flushing any longer. I can pray that the last eight months were not in vain.
I been on this since May n it's January now. They told me yesterday it's causing me to have thyroid issues now so let's add more meds to ur list. Cancer Sucks 😡
My uncle is going through throat cancer, melanoma in spine and cancer is spread through out the body. We are wondering whether to under go with targeted therapy, immunotherapy, or radio palliative care. What could be the best treatment for him.
Don’t rely on UA-cam for answers. Your uncle’s cancer care team should be able to provide the pros and cons for each. Don’t be afraid to ask them questions. If your uncle is not comfortable with the recommended plan, don’t be afraid to speak up. He needs to tell them what he is comfortable doing.
my mum has stage 4 lung cancer. she had radiotherapy on her lung which shrunk the tumour a hell of a lot which is great and it’s now back to a dormant stage. with that news is when we also found out it’d spread to her liver. she’s just begun immunotherapy to treat that.
she’s so strong. just before christmas, she had life-saving surgery for a ruptured bowel and survived peritonitis and severe sepsis, along with covid whilst in hospital. she’s still recovering from that and now has the cancer to deal with. i believe she will make it though. i need her to 🙏🏻❤️
How did she go?
I hope she made it.
Strong woman
She's so strong and i think her hold to God is very tight ,your mom is continously recieving miracles from God ,i wish she'll survive and finish all the treatments.
For me it looks like my fight will be coming to a close.Last week my team said that immunotherapyies will literly kill me painfully. so Last week myself and my family made the decision to bring me home for hospice care.
my biggest problem at this point is that between the love I have for my family and the return of love, I am reluctant to move to my lord
I have colon cancer, chemo not working, ill be starting immunotherapy soon. God willing it'll work for me
Good luck, keep me updated !
Look into sloan Kettering
Add millets in your diet 🙏🎉🎂
Good luck from another fighter!
You are healed in Jesus name amen🙏😇 avocados And olives are very good.
My aunt is currently undergoing immunotherapy for metastatic breast cancer......I love you so much, Aunt Paula! Stay strong!
How’s she doing now ? 🙏🏼
Please update how is your experience my mom is suffering same🙏😭
@@abhishekgautam1576 did Sasha ever respond
Sasha please respond how is he doing
@@ercysuazo726 not at all she didn't respond
Chemotherapy didn’t work for the lung cancer, but immunotherapy has held the cancer back for two and a half years now but I still have cancer, I’m monitored by CT scans.
I took mekinist and taflinar five year s kept my lung cancer away it’s back now just started immune therapy
It’s one hell of a drug. It’s kept me alive. Phase 4 cancer patient 55 tumours 4 in the head. They are not bull shitting about the side effects. Pretty much had them all. Treatments go on for two years. Only got 2 treatment left and still getting side effects. Best of luck too any one on or going on it. And to call cancer victims
God bless you and your brave soul
I’ve been on this for 18 months, luckily I’ve felt fantastic throughout!!
I’m so grateful this is available to me, I had tumours in my brain, lungs and liver - now I’m tumour free!! 🙏
@@Bekind10000 This is amazing god bless U!
Hope all will be well with you.
Do you regret it because of the side effects?
I have had 7 full dose Keytruda treatments over 9.5 months or so. My biggest recommendation is to take turkey tail mushrooms. My side effects mostly went away when I started taking them. I was having mild side effects such as fatigue.
I will start Keytruda in a few weeks. Thanks for this tip.
Where do you purchase the turkey tail mushrooms . Can you share the product name
What if you're on blood thinners??
I'm getting immunotherapy now going on six months. I'm almost in total remission. I have a rash on my back. I feel good about it. I'm hoping for 6 to 8 more years. I'm 65.
My dad is 80 years old and diagnosed with liver cancer today. He has compromised kidney functions as well. No biopsy done , doctors diagnosed it via ct scan. It’s not spread to any other parts of his body. Doctors only suggested two options
Do nothing and let him live his life as best as he can and he has only 6 months OR Tace procedure that will only increase his life for a few more months. We haven’t told our father about the diagnosis and trying to keep the news hidden so he could live his remaining months a bit peacefully.
So many things to think about. It’s such a huge challenge of life to decide for our beloved dad. Can someone advice me on this regards.
My grandfather 86 yrs. had colon cancer. It was too late for any treatments. My mom being the oldest of 4. Made the decision with Grandpas doctor not to tell him. It was mid December and his doctor told Mom to take him home and enjoy your last Christmas with him. Mom told Grandpa he had to wait for surgery as he had to gain some weight to remove the cancer. (He had lost quite a bit of weight.. )She never told him. Grandpa ate all his meals happpily. He eventually became bedbound due to weakness. Yet continued to eat. He never complained. And never asked.. My mom took care of him 24/7. I would go and relieve her for a few hours on my days off. My sister and I would take our kids to visit. The kids would fill his little pitcher of water and take a snack tray to him. He loved it and so did they. My Mom had doubts at times about not telling him.. I was in my early 20s and I told her I believe she made the right decision for him. Grandpa would have been depressed, maybe even fearful. Instead he got to enjoy his daughters loving care and his grandkids fussing over him. Grandpa lasted 4 months he passed peacefully during Easter break. I know it was difficult for my Mom because she lied to her Dad. But I know she did the right thing. His doctors direction to take him home and enjoy his last Christmas. Mom told me and my sister not the younger ones. I feel it was a blessing looking back. I had the best memories getting to fuss, hug and kiss my Grandpa just like I did when I was little. He enjoyed it too. We took lots if pictures. It was one of the best Christmases with Grandpa. Yes, maybe a little bittersweet. But lovely nonetheless.
Hello, my Grandpa 86 yrs had colon cancer. It was mid December -his doctor told my Mom take him home and enjoy him for his last Christmas.
He passed away Easter week. Mom would ask me more than once. Am I doing the right thing. I agreed with his doctor. I believe my Grandpa may have got depressed maybe fearful had he known . Instead he had his loving daughter taking care if him 24/7 and his great, great grandkids fussing over him -filling his little pitcher of water. Taking him his snack tray. Those few months were bittersweet. Yet filled with laughter, lots if hugs , kisses and lots of picture taking. I say to you now -do the same for your Dad. You don't want him having to go to appts, sitting in waiting areas with a mask on, lab needles. endless questions like have you been out of the country etc. Take him home with you love him, look at old picture albums together, share memories. Tell him the things you've always wanted to say bad or good. Encourage him to do the same. Take lots of selfies. I hope this helps a bit. May you find comfort and peace.🙏
@@mrsdewdrop9678 Everyone should hold their head up high...That was a beautiful story. Thank you for sharing.
Pray to God with all your heart, and don’t loose any of your faith. God is watching over your Dad. And love you all as well. I will pray for your dad🙏🏻
I have 2 stage 4 cancers-breast with metastasis to bone and urothelial with metastasis to lung. Am on Ibrance for breast and Keytruda for urothelial. Have been on Keytruda every 3 weeks for a year and lesion in lung has reduced dramatically. Keytruda switches back on the immune system and is effective against many cancers. It does have side effects. My life is different now but I still get enjoyment out of being alive.
I wish you wellness!! ❤
After so many decades, the doctors still not sure it will work or not. Basically cancer treatment is hit and trial. Treatment require massive rethink.
You are so right
My 16yr old sons brain tumour has come back with a bang after being cancer free 6yrs. He had medullablastoma. Thats back & also 2other tumours that have clustered in his brain & spine. They don't hold out much hope for him. I am absolutely devastated. It is such a hard decision. What to do regarding treatment,drug trials, which ones,its like looking into a minefield. Iv started my son on CBD & pray it helps slow down growths at least. It is such a cruel & unfair disease.
I am so sorry. Will pray for you all.
@@Tammy-mj2rw 3weeks after I wrote that comment my son died. A bad reaction to the very first low dose radiotherapy on tumour on his spine. He was perfectly fine with no symptoms until he got home that night. Tumour swelled & pressed on spine. He was gone the next night. I am still in shock. But I'm sad that Drs are still offering standard treatments & disregarding or not sharing information about other treatments. You really have to do your own research.
I am sincerely sorry for your loss..will pray for you, your strength for each day, for your broken heart and for you to bear the loss of your son.. Cancer is a vicious foe..you have to make soo many decisions when not even understanding it all. I went thro breast cancer surgery and treatment last year, I have a small understanding of it. My youngest brother was just diagnosed with stage 4 melanoma. Cancer spares no families..🙏💗
@Tammy-mj2rw hi Tammy, just wondering how it is going with your brother who has melanoma. My wife has it as well. She is supposed to begin immunotherapy tomorrow but we are not sure if it's the best option. We're quite nervous about it.
@Tammy-mj2rw hi Tammy, just wondering how it is going with your brother who has melanoma. My wife has it as well. She is supposed to begin immunotherapy tomorrow but we are not sure if it's the best option. We're quite nervous about it.
This video is most informative I have seen.
Drs. Dont care they told me to see my oncologist.
One side affect which isnt widely recognised in UK/EU is Cognitive functions , there is a French paper on this by a PHD MD Dr Joley, and she says this needs to be looked into more closely..i only came here as my partner is now finding these affects to be common as of his second treatment, his stringing words together as hes reading from captions off of the Television is nearly zero..its quite alarming for him to be asking me what the words are when before treatment he was as normal as normal is in this society..thanks x
Yes, very true, There are times I can not find the words that I am looking for. I find it happens when I get tired or overwhelmed. ..I found in the past once treatment is stopped the pieces of the puzzle slowly start fitting back together. God Bless the caregivers.
They want me to start immunotherapy and be on it for a year. I am cancer free, they cut out my melonoma that was in the lymph nodes. I am so frightened it will hurt me beyond repair.
After 3 years of chemo and radiation treatments and faring fdirly well through them, i certainly did not have really serious side effects, chemo or radiation are no longer options. Keytruda was recommended, but i have decided against it. The side effects truly scare me. I can't imagine going through another summer being stuck at home going through weekly blood tests, urine tests, and afraid of heart problems, having a at home blood pressure monitor. I have stage 4 cancer and im planning now to enjoy what is left of my life. Even after chemo, keytruda scares the crap out of me.
just getting started with keytruda first treatment 4 days ago have been tired and dizzy,still beat up from radical open nephrectomy on right kidney hope and prayers to all
Hello, wish you the best. Can you give me an update on your experience because my father is about to take it.
I wish you well. I have been on Keytruda treatments for almost a year now for the same radical open nephrectomy. I experienced the same fatigue at first but the fatigue has actually gotten worse over the duration of the treatments. I have not had many other side effects except my sugar levels bounce all over the place and my eyes have been experiencing large oily floaters and a general haziness even though my vision still appears to be sharp. This started only after the treatments began. Still trying to figure out if there is any connection. I had my cataracts replaced about a year before the Keytruda treatments started. Best of luck to you.
Just started keytruda and inlyta. Praying for good results. But side effect is high bleed pressure.
I hope this works for me. I've gotten serious side effects 2 wks after 1st treatment. Had to get put on Prednisone and antibiotic. Then weened off Prednisone and had 2nd treatment last week. Breathing is not good, low blood pressure and low oxygen. I wasn't expecting to be this incapacitated. Sever fatigue. I don't want chemo - stage 4 uterine cancer.
I have recurrent uterine cancer and since completing the standard Taxol/Carbo chemo 15 months ago, my oncology doctors and I have been debating whether to go for the Keytruda/Lenvima option which has only recently been approved for second line treatment here in the UK. Reading comments such as your and those below, I am even more apprehensive as it took me over six months to recover from chemo but am now back to my more or less normal self and am stable on anti hormones.
So if immunotherapy is so specific, why are there so many side effects? I feel like it’s specificity was what made it so exciting so it makes no sense why it’s affecting other parts of your body. It’s tempting to think this treatment isn’t an improvement over chemotherapy as there are just as many side effects and therefore isn’t infinitely repeatable. I’ve seen it be effective, but I’ve also seen it do absolutely nothing. I just wish I knew more about it. The basic explanations don’t address any of this.
Scott, go on FB & join many groups that help people keep cancer at bay.
I was diagnosed with Stage 4 Metabolic Small Cell Lung Cancer in June. Did rafiation Therapy while in the hospital. Now i am on Immunotherapy. Have a really bad rash . Might have to go on Chemotherapy.
how are you doing?
Taking Keytruda, does anyone have a way to help with the fatigue? So tired..
UPDATE; 9/21..I am not too sure what has been going on lately but I am tolerating my treatments better. I have been taking it even MORE easily than usual, so we are looking forward with a more positive attitude.
I use Isagenix protein shakes as well as there new liquid collagen for the joint pain. and Advocare Spark also help with the shake for energy. I drink about a gallon of water a day to keep the side effects to a minimum.
@@altheaboothe3558 Thank you..There are times when I feel completely fine and others when the life is just drained out of me.. I have to start being more proactive, , it's gonna be a bumpy ride!!
My mom had her first treatment of Keytruda three days ago and she shivered and chilled and pooped for few hours everyday after the treatment. On the 3rd day, she also pooped in the pants. Is that normal?
@@Ella79537 Tell her to hang in there. Keep her hydrated, try protein drinks like Ensure. Her personality may change, she may become a bit more cynical and nasty, if those trades pop up understand that just her getting the crap kick out of her. Keyrtuda will make you very tired, let her rest/ sleep. Diet is important!!! Protein, protein, protein...As a meat-eater, I would have my wife get nice red roast beef sliced thin at the deli. trim it and put a bit of salt on it, roll it up and I would feel better after one slice...I am NOT a doctor, so please check with her oncologist...I have a treatment tomorrow, but feel free to ask anytime. God bless you all, Dennis
@@Ella79537 Sorry, to answer your question, YES,,,,, It's all normal, there is nothing that it is NOT going to affect.
I haven’t heard any mention of this being used for prostate cancer. I have currently been diagnosed with prostate cancer and I am looking for a solution. Surgery is not even in my list of options. The idea of not being able to get an erection, or having urinary problems just doesn’t sit well with me at all. I’m 74 years old but I’m still very active in the bedroom. And the last thing I want to do is kill off one of the few things that I enjoy doing at this point in time in my life. Scary stuff. Brachytherapy so far seems to be the only thing I am even considering. But I have been reading from lots of people who are taking a active surveillance stance, and these people have been doing it for 10 years without any treatment. So maybe prostate cancer even though it is a cancer, isn’t really a death sentence.
I hear you brother, I had my bladder and prostate removed 4 years ago and miss my erections more than I thought I would. I went from fairly virile to nothing overnight and it has left me with depression, I am 70 now but still interested in sex but my wife has lost interest in me now I can't get it up.
My dad had prostate cancer and his doctor said he will most likely die from something else. My Uncle has lived with prostate cancer for 20 years but he had surgery, etc.
@@pinballrobbie surely you could use viagra
It would be nice to know what drugs in particular. Name some names?
Immunotherapy brought on encephalitis & significant dementia for my wife. Also a bad rash. Both treated with Steroids that made managing her T2 diabetes very difficult
Keytruda is horrible and never leaves your body.
Great Video thanks
I have stage 4 lung cancer diagnosed in Dec 2023. I started chemo in Feb 2024. I had 8 doses. Now starting in November I'm on immunotheraphy. The cancer is progressing in both lungs as if nothing is done.
I need prayers please. I'm lost now I dont know what to do
I’m three sessions in immunotherapy- after the third dose my body went into agonising muscle seizure which completely debilitated me for 5 days it relaxed but comes back every 6 days and lasts for about a day - l already had chemo and radiation therapy 6 years ago - the doctors have delayed the 4 the dose but lm terrified of this obvious side effect - it’s been determined that the immunotherapy isn’t just fighting the cancer but also fighting my body
How to choose the right immunotherapy drug for a patient having muscle invasive bladder cancer
You have to do a biomarker test and see what immunotherapy is suitable for your cancer .....hope you get well soon my friend.
Very very very good. 👍
I have brain cancer and have been taking Keytruda for about a year now. I can say I'm a believer and the fact the worst side effect is removing the plastic tape holding from my wrist to the pump, it's infinitely better than the Temodar which caused me to feel tired and getting puckey every morning.
My niece just diagnosed with spinal from brain cell linings
@@KoolT have you tried CBD for brain tumours. There have been great results but you need to start taking it ASAP.
One other thing: I did Keytruda for one year without missing a treatment, 2015-16...My oncologist at the time said, "this ain't mother's milk"...That doctor was awesome and has since moved to CT...The oncologist I had reluctantly gone to was insisting that this is NOT chemotherapy even though I had one year under my belt...Well I will tell you this, although Keytruda is not chemo and it is immunotherapy Please any oncologist, patcent or caregiver understand this is stuff is no joke and will mess with you...And anyone telling you differently is sugarcoating the truth...Be prepared to fight...God Bless you all.
@Dennis Adorno While the side effects of chemo can be bad, it doesn’t sound like immunotherapy is necessarily “better”. My cancer was tested and it doesn’t respond to immunotherapy, only chemotherapy. After watching this video, I’m almost glad I don’t qualify for immunotherapy. Unfortunately, it seems like all cancer treatments have side effects that could make us feel even worse and there’s a chance that we’ll develop a condition that’s not reversable. Are you still experiencing side effects? Was it worth it for you?
@@dessertfirstandlastandalways Good morning Kristina,
In one of my posts, I wanted to convey that if your doctor gives you a speel that immunotherapy is so much easier than chemotherapy,,,,, don't believe it! I speak from experience, immunotherapy can knock your socks off...AND LISTEN..every BODY is different, which means everybody will have a different reaction. Like my first oncologist said....None of this is mothers milk..So YES, you will have side effects.
Kristine, if this is your first go-around with treatment, I would ABSOLUTELY say "YES, bring it on!" ...Now as long as you go into treatment saying I WILL give this my best shot and make YOU the number one priority. If you are questioning your treatment, then it tells me one thing. It tells me you are thinking about others, and how much you don't want to disappoint them. So don't!
Lasting side effects: Your correct again. I have been at this for 12 years, I am 59 now. Part of my "rapid aging" is due to the dozen or so surgeries I have had, part of it was treatments and yes part of it is I am (we are) getting older. Now my family and I choose to laugh it off what we can. When I go to the beach or a pool (not too often) I tell people that I was attacked by a shark. When they look at my scars...(war wounds) And seeing that I now have tinnitus I tell my family that I am going to walk across the street and give my neighbor Louie a piece of my mind for not turning off his house alarm....(BTW) Louie and his family are great people and don't have an alarm. You have to laugh!!!!!!!!!...I took a long way to answer some of your questions and I hope it helps. But to answer your last two questions: YES! And YES! God Bless you and check-in anytime. Dennis
@@dessertfirstandlastandalways Hi Kristina, sorry for the bother, Is your cancer operatable? For me, I always had good success with surgery. Good luck.
@@dennisadorno6721 Hi Dennis Yes, I’ve actually had three surgeries (an esophagectomy and two to remove tumors in my pelvic area). I was supposed to have another to remove the tumor on my right abdominal muscle, but the surgical oncologist saw many tiny tumors in the peritoneal cavity, so they stopped the surgery and recommended chemo instead. This is my third round of chemo. (Is that the right term? I don’t know if I have the correct terminology. It’s my third time undergoing chemo.) I had radiation, chemo and two surgeries in 2019 and chemo and surgery again in 2020. My tumors were tested for immunotherapy, but I was told the numbers weren’t right. I actually don’t mind that I don’t qualify. The side effects seem like they are brutal. Of course, chemo could have similar side effects, but I think I’m more afraid of what the body’s immune system will do in response, since there’s no way to know who will get bad side effects. I’m doing pretty good on my current chemo. My white cells were low after my first two, so I needed the booster shots. Other than that, I’m not having too much nausea. I have some numbness in my fingers, but it comes and goes. My weight is low, but steady and my appetite is good. Any treatment where the side effects could be abdominal issues would be a no go for me. I have a pretty high pain tolerance, but stomach pain can be debilitating.
@@dessertfirstandlastandalways WOW!!!! And here I am speaking to you like you are a novice. (Shame on me)...You are a warrior!!!!
Seeing as this is not your first "go around" I believe that you are doing very well. Your reply was clear and precise. You have done your homework and you are being realistic regarding the effects of chemo and how to combat the ill effects. My only "words of wisdom" are to keep your weight up. My first oncologist told me that, he likes to see his patients with a little weight on". So I apologize if I am sounding condescending, eat high-protein snacks often and drink plenty of water, but I know you know that..Thank you for sharing.
Dennis
Sounds like hell on earth, to me.
It is. I wish I could die instead of living like this
@@cindyjudd6703 i hope ur doing better :/
@@cindyjudd6703 I hope that you are still with us Cindy in a better frame of mind...If not then at the risk of sounding like an ass...You are in a better place. God bless you.
I have Stage III Melanoma .. I am now on Opdivo which supposedly cost more per does than a new car .. I am wondering .. Should I just let the cancer take it's course and check out .. Or live a live of pain ,and half the symptoms described .. I crap on myself all the time , sick . sleep 18 hours a day and sometimes hope I never wake .. I have had to sell everything I have . amputation and I am a few months away from laying on a curb holding up a sign .. Help Me ! because I am being fast tracked to homelessness since I am weak and can't work .. I always remember the words of encouragement my father gave me when I was a young boy ... " I hope the world eats you alive " ... Well Dad .. Your wish seemingly have come true .. I forgive you .. With my cancer .. I am now at a point of letting it run it's course and throw my body in the back of a dumpster
Praying. I love you don't give up.. you are a creation of God..not your father.
I'm praying for you, be strong,maybe stop treatment and find another treatment... Praise God help them!
Hey what state do you live in? You didn't have insurance or your insurance wouldn't cover your treatment costs? I'm incredibly sorry to hear about that, cancer treatment should be free for all people. Have you considered starting a donation page? Hope all gets better.
Check out rick simpsons cannabis oil. Its a real cure, without any damage to body
@@fatlumferizi1193 where can I get that?
God bless everyone
With all the side effects you scare a person to try it 😢
Unfortunately there are not a lot of other options. I do combine with homeopathic.
Is this helpful in treating easopheagal cancer?
have you got it bro
My husband was on opdivo for a year. Three months after he finished, he started losing weight. 65 lbs. after seeing numerous specialists we finally found out that immunotherapy killed his pituitary gland. Now he is on progesterone for life. Be aware!
Hello There! Thank you for sharing. My friend jus started for lung cancer. I’m nervous because I’m reading that it’s more negative than positive
Same thing happened to me and we’re trying to figure out what is going on and I cannot gain weight and I knew it was the immunotherapy drugs. That’s what I told my oncologist. He’s trying to back out and deny it and do all these stupid test that do nothing.
Can I ask you about progesterone isn’t that a woman’s hormone ?I don’t understand if you could possibly explain it to me I’d love to hear because I think the same thing is happened to me.
IM ON KEYTRUDA immuno therapy for stage four lung cancer Adenocarcinoma ,, it attacked my pituitary gland now I can’t be on Keytruda , so I have to wait for three weeks for more bloodwork so I don’t know what kind of cancer treatment I’m going to get. Please tell me what kind of treatment that he got. Did you get chemotherapy after that did he get radiation? Did he get pills? What did he get? Thank you.
Every 2 weeks infusion for 7 years straight and still getting it
had 5 doses of imunitheropy side affects fatigue all the time burning itchy skin stomach cramps constipation back pain and strangest 1 of all constant hicups for 3 days
Pembrolizumab worked oppositely in my motherscase its been about 4 weeks and two pembro. The wound in the face got bigger and more are appearing . It is infact making things worse for HNSCC cancer.
Hi my mom had her second Immunatherapy treatment and in the morning her face skin peeled off in a huge circle. Waiting to hear from dr... I can't find any info on why? Just to "call your dr" what causes this? I am aware she is terminal but what caused the peeling?
What name of the drug?
thank you
I’m having hair loss after my 3rd 😔
My father is having 4th stage cancer and chemotherapy did good on his body but since when immunotherapy is started his health is deteriorating. He is not eating anything. Weakness and joint pains are on it's peak. His speech has gone. Stomach pain is felt even after pain killer. Should we stop using keytruda??
Hi kamini..how is your father now?Please leave some hope ...even a i am a mbbs graduate but my inspiration and my love ,grandpa(muttya) diagnosed with satge 4 pancreatic ca...have u gone through any patient diagnosed with same condition?? Or did u hear about any modern therapies like immunotherapy?? Or really arent there any chance of surviving over a year?? Your reply is very important please
@@guruprasad7184 hi...my father is no more. Immunotherapy was started before six months..with Keytruda. But it had adverse effect on him.
@@kaminikumari7141 sorry for the loss..which cancer he was suffering from? Doesn't immunotherapy work for pancreas and liver?
@@guruprasad7184 unknown primary origin. I don't know whether it works on pancreatitis or not...but it didn't work on my father.
Same thing happened with my father pls guide me
We r looking into this cuz my last chemo I’ve been on has been so tough on my skin
are you having skin rashes?
The Lord God Almighty allow more insurance companies to allow immunotherapy at an affordable price to all!
I’ve had All of these side effects but on my last chemo the rash was so bad to where it was like a rug sunburn and I even got inpetego c question to people who were on this diese this cause weight gain like servers like 25lbs every other month
I recommend this Therapy for Bladder Cancer, a little longer than a single treatment and the side affects are very mild to say the least, don't look for the side affects, they arnt serious . .
I can longer continue with my treatments. It was a few weeks ago I came to that conclusion. I did my last Keytrda on Jan, 25 and my last Cacometryx pill Feb. 3rd.. I can't take the body pains, headaches, and flushing any longer. I can pray that the last eight months were not in vain.
I’m praying for you my friend - try your best to keep positive 🙏
Almighty God bless everyone in the Global World 🌎
I been on this since May n it's January now. They told me yesterday it's causing me to have thyroid issues now so let's add more meds to ur list. Cancer Sucks 😡
Why would anyone have this its not a treatment it sounds horrible. You be better off using keto diet and febdazamol
It's a last resort combined with chemotherapy or without.
No one chooses this like no one chooses cancer.
What a ridiculous comment.
@@chrislim7976 I am fully aware of this Thank you I have two family members with cancer
Seriously nasty. How can changes in hair be permanent .
Im using fenben 444 and ivermectin and sweet worm wood for my malamona
Is it helpful in tnbc ?
monu yadav I have TNBC. They recently approved an immunotherapy medicine for TNBC. I’ll be starting it soon.
@@TheAnjj I hope you will be fine very soon. My mom has it too I hope you both will be fine 🙏
My uncle is going through throat cancer, melanoma in spine and cancer is spread through out the body. We are wondering whether to under go with targeted therapy, immunotherapy, or radio palliative care. What could be the best treatment for him.
Don’t rely on UA-cam for answers. Your uncle’s cancer care team should be able to provide the pros and cons for each. Don’t be afraid to ask them questions. If your uncle is not comfortable with the recommended plan, don’t be afraid to speak up. He needs to tell them what he is comfortable doing.
Wow 😮😮😮😮😮
Now they saying you high risk for recurrence if you don’t do immunotherapy for two years