This story is beautiful. I had a baby boy at 30years old born with Downs Syndrome. Unfortunately I was not able to raise him beyond his 20 month little life. On May 7, 2002. I received the worst call any parent could receive. My son had been killed by suffocation while at daycare. It was so hard. Little Reggie meant the world to our family. My oldest son met the same faint on December 21, 2019 he was shot multiple times in broad daylight. 2 boys both killed by homicide and no witnesses no one charged. I pray that your baby grows to live a happy healthy life. Everytime I see a child or person with Downs I just love on them so much. God bless you all and your family.
My daughter is 33, lives on her own in a supported environment, does NOT work in fast food but has had the same job for 13 years, and has a bigger life than we ever imagined. She travels independently and is getting more confident in asking for help and advocating for herself. She, and we, are so fortunate that she did not have any serious health issues at birth and later for that matter. I think these guys are limited only by our inability to let them go. It’s tough, we want to protect them. I have learned to enjoy clearing the path for her, get the obvious obstacles taken care of and let her decide, sometimes she will choose a different direction. I’m rambling but I think my role now in her adult life is more like administrative oversight. There is a great team of people that I count on and we make all look so seamless. When she visits now I can just enjoy her without pelleting her with did you’s and you need to’s. It’s a wonderful time and she continues to amaze me. Enjoy the ride 😉
my son jonathan has DS he is my oldest and has a sister and brother. I would not trade him for the world. was 21 when i had him; he had a lot of medical issues when he was born. docters did not think he would live to be 5 my son is now 32 and he is wonderful.
May God bless both of u. My son also has up syndrome I call it up because they are very sweet and humble do it’s God quality and not a curse as most people think. They are very sensitive to everything they are connected to God essence while we mist people are fighting our ego to connect
My eldest daughter has DS she is turning 24 she has two siblings she is so loving if i am ever upset about something or I need a hug she is the first one there she is the only one out of my three children who has never fought with me or yelled at me for something So loving and so caring and at times very very stubborn I wouldnt know my life without her
Such a beautiful family put together on purpose because whatever God you believe in knew you were meant to be her parents. Gorgeous Girl and so resilient she's going to surprise herself ! What a beautiful family. Blessings fron UK. Janice x
Hi there. I am going to be giving birth soon to a daughter with DS...just praying she is as healthy as possible. I often see videos of these kiddos as they are toung BUT we dont get to see when they age. How is your daughter doing now innher 20's and what about her future?ty!
À very encouraging story ! My dad was born with a neural tube defect "spina bifida" with club feet bilateral. Back in 1935 when there was no way to know ahead of time and no option even if there were early detection. Doctors told my grandmother that IF he lived, hewould never walk, never be able to handle a decent job , never father children, never be able to live in mainstream society and should be institutionalized which was about the only option available to families at the time. But my grandmother said he's my child and he will not be placed outside his home away from his family. She alone, taught him to walk by sitting on the floor a few steps away and told him if he walked to her he could have the treat she held in her hands.(ketchup of all things ! My dad loved it! ) and he began to walk a few steps at a time. They were dirt poor living in the dust bowl days of Oklahoma. His father died while all of the kids were still at home. But my grandma continued working with him and taught him he would have to try harder than others but that he could do and be what he wanted ! He had to endure a series of surgeries as he grew and given that physical therapy of any type was rudimentary at best in those days, again he thrived because of my grandmother. He met my mother, after high school they married, they had 2 children, he owned his own businesses at 1 point running 3 businesses at the same time. He had several more surgeries as I grew up but he did, and accomplished most anything he wanted to do . New homes, nice vehicles, going to the lake with speed boats for family fun, He built high performance racing engines for cars and inboard jet boats. And rebuilt huge carburetors used in racing. A talent not just anyone could pick up.He had massive upper body strength and I saw him lift things that no other human could. But because I saw him struggle so and saw him in the hospital so often, it inspired me to become a nurse. He retired early and did have more health problems. But even he would have told you, many of those later problems were self made by pushing his body too far too long. And allowing bone surgeries by a Dr who essentially was doing experimental procedures on him that many of them just made his problems worse if anything. He loved playing with his grandchildren and having family time and when he died he died of cancer that had nothing to do with his birth defects what so ever. Dr's and researchers don't know everything, nor do they I hold all of the answers......who are we to say that a life has no value at the end of the day ?
That was inspirational, thank you for sharing that. I have children, toddlers of my own and they are healthy and strong, and I struggle sometimes with them; but even reading the story of your father and your grandmother inspires in me patience and understanding for them.
Thank you for sharing your story. My own Daughter Sara is almost 6 now and has just started kindergarten with her peers. Your Sara is beautiful and reminds me of mine.
I remember watching this around Sept 2020 when we found out that our daughter was going to have T21. I remember crying then. She is now 19months old, watching this again, I am crying again, but for different beautiful reasons this time. She is a miracle we never knew we needed.
If the parents read this, make sure that you give Peyton the support she needs too. It might seem obvious but it’s easier said than done. I’m adopted too and my non-adopted brother is ten months younger. He had a serious medical condition and also struggled at school. I was left to go through subtler challenges on my own and still feel quite scarred about it and am not close to my parents.
I wasn't close to my parents for a long time. I'm not an adopted child but my dad had anger issues. I had to tell them how it made me feel. That's the only way healing could happen. I do really feel for you and I wish you all the best. Stay strong!
Beautiful story. I have never met a DS child/adult who aren't the most loving and caring people. They are hard workers and so proud of the jobs they do no matter what it is. Just because your child might have a disability of some kind, doesn't mean that they aren't great preople. I hope this little girl is now a thriving young lady. The best thing that you can do for a disabled child is raise them lovingly and not just make excuses. I have an autistic son and I still cringe when I see a mother out with a child that is misbehaving and as she apparently thinks she has to say something will explain to those of us nearby that, "they can't help it, they are autistic.". While my child was 'high functioning" you couldn't prove that in the first 10-12 years of his life, but I never once said he can't help what he is doing. Nope, children, whether DS, autistic, CP or whatever, needs to know the rules and to encourage them to follow the rules of civilized behavior and at the same time to follow their dreams.
My genetics professor always said that the extra chromosome in Down syndrome is a happiness chromosome. Somehow they are they friendliest, kindest, most generous, and loving people. Congratulations on your baby girls! You should be so proud of everything you have accomplished. What wonderful parents.
Not true. My daughter is 11 and has downs. What is true is that she doesn't have an off button. If she's happy, she let's you know. If she's mad, you know about it. Whatever she's feeling she let's you know about it. I am fed up to my back teeth of people saying that downs syndrome is a/the happy gene!
What Megan means is that having a disabled child is great to her. As someone who is disabled, I think it’s great to see other parents support their children like this. Do you support your daughter?
These children are profoundly special! Just give them patience! Give them so much love, and let them know how special they are, and ONE DAY, you will know just what a blessing it is to raise a child with Special Needs!
as a dog trainer and educator i am training dogs for special needs ( Therapy dogs ) this wonderful people can give you all their heart. i wish them all my best.
What a sweety! We have a little 7 year old with DS and we love her so much. I hadn't realized how many health issues some children have with DS.....what a little fighter. Our daughter has not had any thus far but we do have 5 other children so we are thankful for her good health.
What a beautiful girl! She has gotten so much better and, and thanks to her parents that had put so much love and work into her. If they continue doing the right thing, which I know they will because I can see how much they love her, she will get better and better and she'll have a really happy life. Beautiful story.
@@shototodoroki3292 I have a sister with DS too, and sometimes I feel sad, especially because my sister is an adult and she has moderate mental retardation so she is not as accomplished as the kids we usually see in videos or stories about DS.
When I was 7 through 10 I regularly hung out with my grandparents friends adopted son who had Down syndrome. He was about 10 years older, but I always had the best time with him. Through the years I’ve interacted with a few others. Based on my experiences I’ve never meet kinder, sweeter, happier people. I feel like there is something angelic about them. They are not as tainted by the sin of this world. They seem to keep a beautiful innocents about them. Our world is a much happier place with your daughter here.God bless you both, and your family.
The one thing in life with people that have disabilities is that they teach us to love one another and that's what makes this video so great God bless this wounerful family for sharing this video 👍🏻👍🏻
Sarah is not only a special miracle, she is a STRONG FIGHTER! To go through so many surgeries immediately after birth! She is a warrior! She is blessed to have a family that loves her so much and is doing all that they can for her! I do appreciate their honest demeanor because while downs children are absolutely amazing, perpetually happy beings, the medical side often doesn’t get talked about as much. I think no matter what, whether our children are (on book) “normal, healthy” or not and on book “disabled” the one thing for all of us is parenting is HARD and raising them into happy, healthy adults is a LOT OF WORK! But the one thing we can all agree on is it worth all the hard work, we learn so much more than we ever thought we would in life, and we are given back so much love as we are reminded of what it is to be a child again! 💓💓💓
She's a beauty and she will go to college and she will do great things. Love this family much. Thank you for sharing such inspiring story. Would never trade having my son for anything in the world. Has changed everyone around for the good especially my husband and I.
Pearl Vaafusuaga She will not go to college. She will not do great things. Geez! DS children are great challenges to their families their entire lives.
My sister has DS so I can completely relate to this. Thankfully though, she's never had any major health problem. Bless this family, and many others with DS
Sendin you lots of love from Uruguay. Our little Victoria (11 monts) is having her heart surgery this Friday and scary as it may be for us as parents, we are SOOO happy we brought her to this world! She is worthy, this kids are life changing ... for the best! :)
I feel for this family but there are many other families that have a child with an extra chromosome. This girls has had tremendous health issues. That doesn´t necessary happen to the general population with DS. This video doesn´t tell the truth, it tells their story. For any new parent or parent to be this story can be devastating. It can even make parents to be reconsider giving birth to their baby with DS.
What an inspirational video. To see what these people are doing to make her live a full life, when in other parts of the world totally healthy people are killing each other for stupid reasons...what kind of a world are we living in...
I think your video was wonderdul. I have a 4 year old daughter that has down syndrome. We have been through everything you have, and your thoughts about your daughter, it was like you were reading my mind and everything about our daughter Skyler. She is the most wonderful, happy, smart little girl and she has been through so much too. Thank you for sharing your story and if you would like to see a video I made, type in Skyler Gabrielle in youtube search engine and her video is the one where you see a baby with all the wires and mask, was right after heart surgery. Thanks again for your story, I don't feel so alone anymore.
You don't need to speak or have an apartment or anything like that to be happy. Those things don't determine your worth or how much you can enjoy your life. Also how someone with down syndrome develops is hugely affected by the support and education they get. A few generations ago there were barely any 'high functioning' people with Down's. Now there are a great many.
That would be so heart breaking to have no support, and everyone basically expecting you to abort. Its not what anyone wants but it makes me happy that some parents are willing to go for it and love that child. 😭💗 Many are not...and I get it a bit..you always want your kid to be healthy and succeed in life
that is certainly how they feel in reality. I have a relative with DS and yes at first the news is not easy to hear. we cried as a family and were worried. But now that time has passed, yes everyone is fulfilled from the experience she has brought upon us, similar to these parents. There will of course be hardships, many stressful moments out of your control but those are things you deal with because love is so much greater.
I have a son of 31 with Down syndrome and I was upset to start with but wouldn't change him for the world, and I imagine this is how they genuinely feel , why wouldn't they, she is adorable and achieving well.
I only have one person I know closely who has DS. But she is exactly who she’s meant to be. Imagining her being any different is just like imagining any other child being different. She’s 13 now and like most 13 year olds she has challenges, they are probably a little different from another child’s, but every child is so different it’s totally ordinary. She’s just a person with her own (very strong!) personality. She’s not Downs Syndrome, she’s her
I live & work in CO. We have some people who come into my work w/ down syndrome & coworkers often don't know how to communicate effectively w/ those who have down syndrome. Just like you would any other! Talk to them, be sarcastic, playful, serious... it makes them laugh and my coworkers because they realize it's all the same. Only those with down syndrome can take humor much better. It's hard for parents, no doubt, and for many reasons. But you can learn from them. So much. I have!
No it's not as a parent myself of downs syndrome she gets the same as all the other kids. It's because they are more vonrble it makes other people think should I shouldn't I. Well people are nervous to in case they get it wrong. I don't get offended when they try I help them along .It's not that scary really.
My wife and I were recently told at the 12 weeks scan that our baby has a 6.5 nuchal fold and there is a 20% chance of our baby having Downs (we know there is an abnormality of some kind)....after watching this video we hope he/she does...what a lovely family and child :)
***** it gets hard very hard at time my sister has ds and shes had 3 surgery and she almost died in a heart surgery she turned out being allergic to anesthesia but now shes 14 and ok
TomatoSoupxD I'm so confused why anyone would be excited that their kid has DS?? Learning to accept it is the hard part but loving your child is easy. When you start thinking about your own kids having a disability is upsetting.
Often they have significant behavior problems and if low intellectual functioning they may be in diapers for life. That is not their fault but it is not anything to “ celebrate” as a parent gets older
It is draining you want to get to the best they can. It's emotional. Hard work but 100 percent worth it and extra wrinkles on my face. When a baby smiles at mum we all smile back. I have 6 kids 1 boy 5 girls .My youngest child has downs syndrome she smiles and laughs constantly. So happy and my other kids are as well. They know all about downs syndrome mainly the two eldest know the most. I had the children around downs syndrome I'm so bloody glad I did. It's normal to them.
After 6 years I was having Down syndrome once a week nic and Kris’s surgery my goal is all those days we never change way I look I was being born in Ripon after this Halloween my brothers are robots I was jedi am independently it’s so nice to honor alll my family we can join us she being married to her husband sons thank you for my blessing it nice to meet you guys thank you I love you
God bless you guys I’m going through the same situation right now my baby also had a ab canal surgery, it’s very tough but I’m staying strong it’s been 4 months and my baby is still in the Niccu, the only thing keeping me from loosing my mind is dreaming everyday of when I get to walk her out those hospital doors . Ive never been so scared in my life but then again I’ve never been this happy either. Much love guys
gorgeous little girl supported by fab parents but especially i thought that Dr they chose for her was particularly nice his whole manner was just really nice he definitely has good vibes
I have a boy with ASD3 he goes to school at a special needs school and a little girl with DS is on the same bus as Issac and she is a very sweet little girl! These children are adorable all kids are but something very special about these kids!
My son is 7yrsold he has downs he had heart surgery surgery.I wish I had a community to reach out to for support.you guys are truely blessed to have support.its just me and my skyler pooh and let me tell u he is the apple of my eye the light to my sky hes such an amazing child who loves everyone.
Your little girl is gorgeous. What a boring world if we were all the same! With such a loving family behind her the world is her oyster. Look forward to seeing more videos as she makes her way in the world. P xx
I have met several people with Down Syndrome in my life. I guess that is unusual? When I was having my two kids, I did not get checked for Down's or neural tube defects. I figured if there was a major problem, it would show up on ultrasound and we could deal with it then. I knew I would not have an abortion because of Down's or spina bifeda. Down Syndrome, as far as I could tell, is not painful and people with it can still live full lives. I can imagine ending a pregnancy that would only result in a brief life of constant suffering at best, but I think people who abort Down's babies are clearly having a baby for the wrong reasons. What if your baby is preemie and gets cerebral palsy? What if it turns out that they have autism? What if they have a bunch of serious food allergies? You have a baby to have someone to love, not to show off your perfection to your Facebook friends, or at least, that's how it should be. 💗
You are completely right. A child is not meant to to be a perfect human, but rather someone to love and cherish, all their imperfections and differences. That’s why parents love is stronger than any kind of love you could ever find.
That looks like a lot of medical care. How much would all that cost? I mean, it looks like it would cost a fortune to cover the medical expenses for a family with a Down’s syndrome child. I wonder if an average middle class family could comfortable cover the finances of raising someone with Down’s syndrome. Disappointed that they didn’t go into that because it’s pretty important.
Her parents need to be more open-minded. My daughter was born with downs and several heart defects and had to undergo her first surgery five days after she was born. She spent two months the hospital the first time and three weeks for her second major heart surgery. My wife and I don't doubt for a moment that our daughter will go to college or get married. Just because your child has downs does not mean it is the end of the world or they will be limited. Just slowed down to a different pace. We don't believe in underestimating our child's abilities and neither should any parent (with or without DS). It made me angry when I heard them say maybe she will go to college or get married. You're limiting your child by thinking like that.
i dont care about the dislikes and hate comments - is it fair to the child that she will be depended on others for all her life?- is it fair to the child that she has health problems? and difficult problems? - who is going to take care of her after the parents will be old? - is it fair for the other girls?
I agree with everything you just said. Going ahead with a pregnancy knowing full well the baby will be born with health problems, need surgeries and have a reduced quality of life is a disgusting act of selfishness. That decision shouldn't be celebrated.
unfortunatly- alot of people will have kids with very serious problems. because they couldnt care less about what will happen to the child after they will be dead and worse- they say that its selfish to abort them... despite their suffering. i am angry on the ignoring of the childs future. and those people blame me! for being pesimistic... go figure.
szorohov85 my sister is now 60 years of age has Down's syndrome and is in the last stage of dementia. We were told that 50 percent of downs people will get Alzheimer's, my sister is dying a slow miserable death. My mother is 83 and she is reaching last stage of Alzheimer's. They both live with me and my husband. So I am watching my beloved only sibling waste away. Unfortunately a shorter life span for Downs Syndrome is a reality that families need to face. I tell myself that Susy chose this life to experience disability to further her soul experience. I guess we tell ourselves anything to deal with the emotional pain. Love and prayers to all those who might one day be caring for their aged Downs family member.
szorohov85 I definitely agree. Not to mention that this is a cruel world and as adults they WILL BE OUTCASTS. Nobody wants to say it but how many DS friends do " typical" people have? Do they go out shopping with a bunch of friends, experience intimacy, find true love, have kids? All things that people DESERVE!
Lynn Middleton Your point is a little unclear. Do you mean that you wish she’d never been born and that you’d had no sibling at all? That her life hasn’t been worth it? Because it’s the life she’s had or none at all.
I’m here trying to figure out what makes ppl with DS any different. Like honestly. Other than some physical characteristics and maybe a speech impediment. I don’t really understand what DS is.
understand you completely. I have a 24 yr son with Down syndrome thank GOD he is healthy. Now he has gained a little weight with the pandemic but i have him on a diet and exercising. He is my world. i cannot imagine my life without him. I worry everyday what will be of him if i die. GOD help me
This is misleading as the complications caused by DS increase exponentially with age. The wee little one is already having challenges. DS is a serious and unfair syndrome.
Hello, You can learn about the signs and symptoms of down syndrome at: www.childrenscolorado.org/conditions-and-advice/conditions-and-symptoms/conditions/down-syndrome/
This story is beautiful. I had a baby boy at 30years old born with Downs Syndrome. Unfortunately I was not able to raise him beyond his 20 month little life. On May 7, 2002. I received the worst call any parent could receive. My son had been killed by suffocation while at daycare. It was so hard. Little Reggie meant the world to our family. My oldest son met the same faint on December 21, 2019 he was shot multiple times in broad daylight. 2 boys both killed by homicide and no witnesses no one charged. I pray that your baby grows to live a happy healthy life. Everytime I see a child or person with Downs I just love on them so much. God bless you all and your family.
Oh my lord, I can’t even imagine the pain you went through. I sincerely wish you the best. Stay strong. ❤️🙏
Praying for you
My goodness a life riddled with violence. What a shameful world we exist in.
Oh my gosh!!!! Was it an accident? That is too awful to even think about. I am so, so sorry
So sorry that you had to go through this.
This Family Is "Special". As a father of a daughter born with Down Syndrome I relate to them 100%. God Bless You All.
My daughter is 33, lives on her own in a supported environment, does NOT work in fast food but has had the same job for 13 years, and has a bigger life than we ever imagined. She travels independently and is getting more confident in asking for help and advocating for herself. She, and we, are so fortunate that she did not have any serious health issues at birth and later for that matter. I think these guys are limited only by our inability to let them go. It’s tough, we want to protect them. I have learned to enjoy clearing the path for her, get the obvious obstacles taken care of and let her decide, sometimes she will choose a different direction. I’m rambling but I think my role now in her adult life is more like administrative oversight. There is a great team of people that I count on and we make all look so seamless. When she visits now I can just enjoy her without pelleting her with did you’s and you need to’s. It’s a wonderful time and she continues to amaze me. Enjoy the ride 😉
Jennie Pagel thought u were making a jojo reference
Thank you for this. Does your daughter have any hobbies or things she likes to do?
That’s wonderful to hear!
That's so in daring bro!! True feelings!!! Just wow
my son jonathan has DS he is my oldest and has a sister and brother. I would not trade him for the world. was 21 when i had him; he had a lot of medical issues when he was born. docters did not think he would live to be 5 my son is now 32 and he is wonderful.
May God bless both of u. My son also has up syndrome I call it up because they are very sweet and humble do it’s God quality and not a curse as most people think. They are very sensitive to everything they are connected to God essence while we mist people are fighting our ego to connect
I thought you meant a Nintendo DS.
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STAY STRONG!
He has ds?!?!? Ask him if he wanna play Pokémon black and white
Does he live independently at 32?
The way the husband looks at his wife during this whole interview is so darling and adorable 😍🙏🏻
Agreed!
My eldest daughter has DS she is turning 24 she has two siblings she is so loving if i am ever upset about something or I need a hug she is the first one there she is the only one out of my three children who has never fought with me or yelled at me for something So loving and so caring and at times very very stubborn I wouldnt know my life without her
Such a beautiful family put together on purpose because whatever God you believe in knew you were meant to be her parents.
Gorgeous Girl and so resilient she's going to surprise herself !
What a beautiful family. Blessings fron UK. Janice x
@@somersetflower sus
Hi there. I am going to be giving birth soon to a daughter with DS...just praying she is as healthy as possible. I often see videos of these kiddos as they are toung BUT we dont get to see when they age. How is your daughter doing now innher 20's and what about her future?ty!
Such a blessing. My son is my entire world and he has DS. I wouldn't trade him for anything. Great job parents
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Stay strong 💪 they are the most loving people you’d meet
À very encouraging story ! My dad was born with a neural tube defect "spina bifida" with club feet bilateral. Back in 1935 when there was no way to know ahead of time and no option even if there were early detection.
Doctors told my grandmother that IF he lived, hewould never walk, never be able to handle a decent job , never father children, never be able to live in mainstream society and should be institutionalized which was about the only option available to families at the time.
But my grandmother said he's my child and he will not be placed outside his home away from his family. She alone, taught him to walk by sitting on the floor a few steps away and told him if he walked to her he could have the treat she held in her hands.(ketchup of all things ! My dad loved it! ) and he began to walk a few steps at a time.
They were dirt poor living in the dust bowl days of Oklahoma. His father died while all of the kids were still at home. But my grandma continued working with him and taught him he would have to try harder than others but that he could do and be what he wanted ! He had to endure a series of surgeries as he grew and given that physical therapy of any type was rudimentary at best in those days, again he thrived because of my grandmother.
He met my mother, after high school they married, they had 2 children, he owned his own businesses at 1 point running 3 businesses at the same time. He had several more surgeries as I grew up but he did, and accomplished most anything he wanted to do . New homes, nice vehicles, going to the lake with speed boats for family fun, He built high performance racing engines for cars and inboard jet boats. And rebuilt huge carburetors used in racing. A talent not just anyone could pick up.He had massive upper body strength and I saw him lift things that no other human could. But because I saw him struggle so and saw him in the hospital so often, it inspired me to become a nurse.
He retired early and did have more health problems. But even he would have told you, many of those later problems were self made by pushing his body too far too long. And allowing bone surgeries by a Dr who essentially was doing experimental procedures on him that many of them just made his problems worse if anything.
He loved playing with his grandchildren and having family time and when he died he died of cancer that had nothing to do with his birth defects what so ever. Dr's and researchers don't know everything, nor do they I hold all of the answers......who are we to say that a life has no value at the end of the day ?
What a nice story to tell.
Thank you for sharing
That was inspirational, thank you for sharing that. I have children, toddlers of my own and they are healthy and strong, and I struggle sometimes with them; but even reading the story of your father and your grandmother inspires in me patience and understanding for them.
So so inspiring..
Thank you for sharing your story. My own Daughter Sara is almost 6 now and has just started kindergarten with her peers. Your Sara is beautiful and reminds me of mine.
I remember watching this around Sept 2020 when we found out that our daughter was going to have T21. I remember crying then.
She is now 19months old, watching this again, I am crying again, but for different beautiful reasons this time. She is a miracle we never knew we needed.
If the parents read this, make sure that you give Peyton the support she needs too. It might seem obvious but it’s easier said than done. I’m adopted too and my non-adopted brother is ten months younger. He had a serious medical condition and also struggled at school. I was left to go through subtler challenges on my own and still feel quite scarred about it and am not close to my parents.
I wasn't close to my parents for a long time. I'm not an adopted child but my dad had anger issues. I had to tell them how it made me feel. That's the only way healing could happen. I do really feel for you and I wish you all the best. Stay strong!
Beautiful story. I have never met a DS child/adult who aren't the most loving and caring people. They are hard workers and so proud of the jobs they do no matter what it is. Just because your child might have a disability of some kind, doesn't mean that they aren't great preople. I hope this little girl is now a thriving young lady. The best thing that you can do for a disabled child is raise them lovingly and not just make excuses. I have an autistic son and I still cringe when I see a mother out with a child that is misbehaving and as she apparently thinks she has to say something will explain to those of us nearby that, "they can't help it, they are autistic.". While my child was 'high functioning" you couldn't prove that in the first 10-12 years of his life, but I never once said he can't help what he is doing. Nope, children, whether DS, autistic, CP or whatever, needs to know the rules and to encourage them to follow the rules of civilized behavior and at the same time to follow their dreams.
My genetics professor always said that the extra chromosome in Down syndrome is a happiness chromosome. Somehow they are they friendliest, kindest, most generous, and loving people. Congratulations on your baby girls! You should be so proud of everything you have accomplished. What wonderful parents.
Not true. My daughter is 11 and has downs. What is true is that she doesn't have an off button. If she's happy, she let's you know. If she's mad, you know about it. Whatever she's feeling she let's you know about it.
I am fed up to my back teeth of people saying that downs syndrome is a/the happy gene!
What Megan means is that having a disabled child is great to her. As someone who is disabled, I think it’s great to see other parents support their children like this. Do you support your daughter?
It is not weird to say 'she is smart'..because she is. She has come to you with a mission..you are learning ..me too. You are doing great!
These children are profoundly special! Just give them patience! Give them so much love, and let them know how special they are, and ONE DAY, you will know just what a blessing it is to raise a child with Special Needs!
as a dog trainer and educator i am training dogs for special needs ( Therapy dogs ) this wonderful people can give you all their heart. i wish them all my best.
What a sweety! We have a little 7 year old with DS and we love her so much. I hadn't realized how many health issues some children have with DS.....what a little fighter. Our daughter has not had any thus far but we do have 5 other children so we are thankful for her good health.
God bless your daughter.
What a beautiful girl! She has gotten so much better and, and thanks to her parents that had put so much love and work into her. If they continue doing the right thing, which I know they will because I can see how much they love her, she will get better and better and she'll have a really happy life. Beautiful story.
Every time I see a DS beautiful child I feel so blessed. I pray for these vulnerable children and their parents:). God is good 😌
Do you feel as blessed when you look at an adult with DS?
Sarah is a beautiful human being! She is so funny and lively, and she loves to learn! This video is a testimony of love, faith, and hope!
I have a brother with down syndrome and he is the sweetest funniest person ever he always says hi to any and everyone 😇😍i love him so much
I have a brother with Down Syndrome too, and I feel bad. I always get sad for him, and I can’t seem to get over it. How did you move on?
@@shototodoroki3292 Really? I thought people with down syndrome are generally the sweetest and purest hearts because of their childlike minds
@@shototodoroki3292 I have a sister with DS too, and sometimes I feel sad, especially because my sister is an adult and she has moderate mental retardation so she is not as accomplished as the kids we usually see in videos or stories about DS.
When I was 7 through 10 I regularly hung out with my grandparents friends adopted son who had Down syndrome. He was about 10 years older, but I always had the best time with him. Through the years I’ve interacted with a few others. Based on my experiences I’ve never meet kinder, sweeter, happier people. I feel like there is something angelic about them. They are not as tainted by the sin of this world. They seem to keep a beautiful innocents about them. Our world is a much happier place with your daughter here.God bless you both, and your family.
The one thing in life with people that have disabilities is that they teach us to love one another and that's what makes this video so great God bless this wounerful family for sharing this video 👍🏻👍🏻
Sarah is not only a special miracle, she is a STRONG FIGHTER! To go through so many surgeries immediately after birth! She is a warrior! She is blessed to have a family that loves her so much and is doing all that they can for her! I do appreciate their honest demeanor because while downs children are absolutely amazing, perpetually happy beings, the medical side often doesn’t get talked about as much. I think no matter what, whether our children are (on book) “normal, healthy” or not and on book “disabled” the one thing for all of us is parenting is HARD and raising them into happy, healthy adults is a LOT OF WORK! But the one thing we can all agree on is it worth all the hard work, we learn so much more than we ever thought we would in life, and we are given back so much love as we are reminded of what it is to be a child again! 💓💓💓
She's a beauty and she will go to college and she will do great things. Love this family much. Thank you for sharing such inspiring story. Would never trade having my son for anything in the world. Has changed everyone around for the good especially my husband and I.
Pearl Vaafusuaga She will not go to college. She will not do great things. Geez! DS children are great challenges to their families their entire lives.
sherry blackwood - some don't and some do. You don't have a crystal ball so how do you know?
I have a daughter with DS. And we have the exact same feelings as the mom and dad have , she is now 14 months old .really she is so cute then any one
My sister has DS so I can completely relate to this. Thankfully though, she's never had any major health problem. Bless this family, and many others with DS
+Donna S so does my sister ds kids are so happy,cute helpful and cheerful love them all
Shumaila Khan bless you xxx
Juls Forever love them too !! They are children bless them xxxxx
Sendin you lots of love from Uruguay. Our little Victoria (11 monts) is having her heart surgery this Friday and scary as it may be for us as parents, we are SOOO happy we brought her to this world! She is worthy, this kids are life changing ... for the best! :)
My son is my 🌎 and he has down syndrome. Thank you for sharing your story 🎉
That was beautiful. Thank you for sharing. It touched some fears that we have as well.
Truly amazing. God bless these people.
Looking at the pure joy and happiness on that little girls face. ❤️❤️❤️
Hats off to the parents! She deserved to have you!..Omg I'm in tears😭
I feel for this family but there are many other families that have a child with an extra chromosome. This girls has had tremendous health issues. That doesn´t necessary happen to the general population with DS. This video doesn´t tell the truth, it tells their story. For any new parent or parent to be this story can be devastating. It can even make parents to be reconsider giving birth to their baby with DS.
.
She's just beautiful and so are you two. I am, sending you my love.
Thank you for keeping your child !! Bless you all xxxx
😢😢😢😢 I’m not alone with this thank you
She’s beautiful and just so happy! You guys are doing such a great job ❤️ and thank you so much for sharing!!
What an inspirational video. To see what these people are doing to make her live a full life, when in other parts of the world totally healthy people are killing each other for stupid reasons...what kind of a world are we living in...
I think your video was wonderdul. I have a 4 year old daughter that has down syndrome. We have been through everything you have, and your thoughts about your daughter, it was like you were reading my mind and everything about our daughter Skyler. She is the most wonderful, happy, smart little girl and she has been through so much too. Thank you for sharing your story and if you would like to see a video I made, type in Skyler Gabrielle in youtube search engine and her video is the one where you see a baby with all the wires and mask, was right after heart surgery. Thanks again for your story, I don't feel so alone anymore.
Nobody talks about the severe form though. These kids are all high functioning. Show some that have real problems.
You don't need to speak or have an apartment or anything like that to be happy. Those things don't determine your worth or how much you can enjoy your life. Also how someone with down syndrome develops is hugely affected by the support and education they get. A few generations ago there were barely any 'high functioning' people with Down's. Now there are a great many.
God bless this mother and move hand in hand with the father and her sisters👐👐
That would be so heart breaking to have no support, and everyone basically expecting you to abort. Its not what anyone wants but it makes me happy that some parents are willing to go for it and love that child. 😭💗 Many are not...and I get it a bit..you always want your kid to be healthy and succeed in life
meant to say as well what an inspirational doctor and therapist. Seems like such a great medical team there.
what a gorgeous little girl and a beautiful family. I believe she will have a full life and probably will indeed go to college. Great video.
hats off. can not immage what do they feel in reality.
that is certainly how they feel in reality. I have a relative with DS and yes at first the news is not easy to hear. we cried as a family and were worried. But now that time has passed, yes everyone is fulfilled from the experience she has brought upon us, similar to these parents. There will of course be hardships, many stressful moments out of your control but those are things you deal with because love is so much greater.
A D you’re vile
I have a son of 31 with Down syndrome and I was upset to start with but wouldn't change him for the world, and I imagine this is how they genuinely feel , why wouldn't they, she is adorable and achieving well.
@@michaelcaza-schonberger9282 what do you mean vile?
I only have one person I know closely who has DS. But she is exactly who she’s meant to be. Imagining her being any different is just like imagining any other child being different. She’s 13 now and like most 13 year olds she has challenges, they are probably a little different from another child’s, but every child is so different it’s totally ordinary.
She’s just a person with her own (very strong!) personality. She’s not Downs Syndrome, she’s her
I live & work in CO. We have some people who come into my work w/ down syndrome & coworkers often don't know how to communicate effectively w/ those who have down syndrome. Just like you would any other! Talk to them, be sarcastic, playful, serious... it makes them laugh and my coworkers because they realize it's all the same. Only those with down syndrome can take humor much better. It's hard for parents, no doubt, and for many reasons. But you can learn from them. So much. I have!
+SuchADumbUsername You are wonderful!!!!
No it's not as a parent myself of downs syndrome she gets the same as all the other kids. It's because they are more vonrble it makes other people think should I shouldn't I. Well people are nervous to in case they get it wrong. I don't get offended when they try I help them along .It's not that scary really.
My wife and I were recently told at the 12 weeks scan that our baby has a 6.5 nuchal fold and there is a 20% chance of our baby having Downs (we know there is an abnormality of some kind)....after watching this video we hope he/she does...what a lovely family and child :)
I'm not trying to be a jerk but they seem really unhappy, especially dad :(
***** it gets hard very hard at time my sister has ds and shes had 3 surgery and she almost died in a heart surgery she turned out being allergic to anesthesia but now shes 14 and ok
TomatoSoupxD I'm so confused why anyone would be excited that their kid has DS?? Learning to accept it is the hard part but loving your child is easy. When you start thinking about your own kids having a disability is upsetting.
Often they have significant behavior problems and if low intellectual functioning they may be in diapers for life. That is not their fault but it is not anything to “ celebrate” as a parent gets older
Thanks for your honesty.
Its really hard. Believe me
I saw people saying DS and I thought they were talking about the Nintendo console
Lmao.
Honestly I thought all these kids just really loved playing Mario or something
yo sh 😂😂
8bit the one who made the initial Nintendo comment is Tweedle-Dee, you’re Tweedle-Dumb
Haha me too!
It is draining you want to get to the best they can. It's emotional. Hard work but 100 percent worth it and extra wrinkles on my face. When a baby smiles at mum we all smile back. I have 6 kids 1 boy 5 girls .My youngest child has downs syndrome she smiles and laughs constantly. So happy and my other kids are as well. They know all about downs syndrome mainly the two eldest know the most. I had the children around downs syndrome I'm so bloody glad I did. It's normal to them.
After 6 years I was having Down syndrome once a week nic and Kris’s surgery my goal is all those days we never change way I look I was being born in Ripon after this Halloween my brothers are robots I was jedi am independently it’s so nice to honor alll my family we can join us she being married to her husband sons thank you for my blessing it nice to meet you guys thank you I love you
God bless you guys I’m going through the same situation right now my baby also had a ab canal surgery, it’s very tough but I’m staying strong it’s been 4 months and my baby is still in the Niccu, the only thing keeping me from loosing my mind is dreaming everyday of when I get to walk her out those hospital doors . Ive never been so scared in my life but then again I’ve never been this happy either. Much love guys
Hi there. How are you and your child doing? It sounded like it was a hard road for you
gorgeous little girl supported by fab parents but especially i thought that Dr they chose for her was particularly nice his whole manner was just really nice he definitely has good vibes
I have a boy with ASD3 he goes to school at a special needs school and a little girl with DS is on the same bus as Issac and she is a very sweet little girl! These children are adorable all kids are but something very special about these kids!
God bless these two angels in human bodies, your daughter is beautiful.
I was born in that hospital i think o.o Shes soo cute!!! i hope she lives a happy life :,)
So worth it all. I'm sure. Thank you for sharing. Lovely.
My son is 7yrsold he has downs he had heart surgery surgery.I wish I had a community to reach out to for support.you guys are truely blessed to have support.its just me and my skyler pooh and let me tell u he is the apple of my eye the light to my sky hes such an amazing child who loves everyone.
A great child for great future!!! Hope the best for all of your family! So important is love to go forward!!!
Your little girl is gorgeous. What a boring world if we were all the same! With such a loving family behind her the world is her oyster. Look forward to seeing more videos as she makes her way in the world. P xx
she is beautiful...you are blessed. I, too, am blessed.
I have met several people with Down Syndrome in my life. I guess that is unusual? When I was having my two kids, I did not get checked for Down's or neural tube defects. I figured if there was a major problem, it would show up on ultrasound and we could deal with it then. I knew I would not have an abortion because of Down's or spina bifeda. Down Syndrome, as far as I could tell, is not painful and people with it can still live full lives. I can imagine ending a pregnancy that would only result in a brief life of constant suffering at best, but I think people who abort Down's babies are clearly having a baby for the wrong reasons. What if your baby is preemie and gets cerebral palsy? What if it turns out that they have autism? What if they have a bunch of serious food allergies? You have a baby to have someone to love, not to show off your perfection to your Facebook friends, or at least, that's how it should be. 💗
You are completely right. A child is not meant to to be a perfect human, but rather someone to love and cherish, all their imperfections and differences. That’s why parents love is stronger than any kind of love you could ever find.
no offense but I would be happy with any child, genetic disorder or not.
Dani Star how is that offensive
How is there a reason to say no offense
@@k3nz1e73 they’re saying no offense because they don’t mean that the parents look unhappy or doesn’t love their daughter or something.
3 miscarriages is a lot it sounds like a genetic thing
That looks like a lot of medical care. How much would all that cost? I mean, it looks like it would cost a fortune to cover the medical expenses for a family with a Down’s syndrome child. I wonder if an average middle class family could comfortable cover the finances of raising someone with Down’s syndrome. Disappointed that they didn’t go into that because it’s pretty important.
I held it together, until I got to our car. I cried. Harder than ever. Then he was born.... we rejoiced! He lived!
Such a beautiful and touching story.
A great child for great future!! ♥
! Hope the best for all of your family! So important is love to go forward!!!
God Bless her and her siblings and her parents✨💫💖
This family touched my heart
2:46
Look at that man's face.
I am confident I have never felt anything remotely similar to what he feels every day
One sense of story,, Thank you for video,, good to know this amazing people :-)
I lost my daughter a few hours after birth that's when the doctor told me she had downsyndrom and a heart problems
Aww im so sorry for your lost
I am so sorry. My brother, who has DS, nearly died too. I hope you get better. Stay strong. ❤️
In the beginning the parents’ normal ness was killing me
cookies
What an angel of hope:-)
Her parents need to be more open-minded. My daughter was born with downs and several heart defects and had to undergo her first surgery five days after she was born. She spent two months the hospital the first time and three weeks for her second major heart surgery. My wife and I don't doubt for a moment that our daughter will go to college or get married. Just because your child has downs does not mean it is the end of the world or they will be limited. Just slowed down to a different pace. We don't believe in underestimating our child's abilities and neither should any parent (with or without DS). It made me angry when I heard them say maybe she will go to college or get married. You're limiting your child by thinking like that.
my mom takes care of a little baby with DS and she is really adorable and sweet shes an angel💙❤ her name is anna kate btw❤❤
God bless this child!!
She receives the best parents
Wow. Kudos to them! I couldn't do it. ( I'm not a kid person irregardless tho. . )
Honestly this made me cry
9:52 Looked like someone was an about to get in trouble
😂😂❤
i dont care about the dislikes and hate comments
- is it fair to the child that she will be depended on others for all her life?- is it fair to the child that she has health problems? and difficult problems? - who is going to take care of her after the parents will be old? - is it fair for the other girls?
I agree with everything you just said. Going ahead with a pregnancy knowing full well the baby will be born with health problems, need surgeries and have a reduced quality of life is a disgusting act of selfishness. That decision shouldn't be celebrated.
unfortunatly- alot of people will have kids with very serious problems. because they couldnt care less about what will happen to the child after they will be dead
and worse- they say that its selfish to abort them... despite their suffering. i am angry on the ignoring of the childs future. and those people blame me! for being pesimistic... go figure.
szorohov85 my sister is now 60 years of age has Down's syndrome and is in the last stage of dementia. We were told that 50 percent of downs people will get Alzheimer's, my sister is dying a slow miserable death. My mother is 83 and she is reaching last stage of Alzheimer's. They both live with me and my husband. So I am watching my beloved only sibling waste away. Unfortunately a shorter life span for Downs Syndrome is a reality that families need to face. I tell myself that Susy chose this life to experience disability to further her soul experience. I guess we tell ourselves anything to deal with the emotional pain. Love and prayers to all those who might one day be caring for their aged Downs family member.
szorohov85 I definitely agree. Not to mention that this is a cruel world and as adults they WILL BE OUTCASTS. Nobody wants to say it but how many DS friends do " typical" people have? Do they go out shopping with a bunch of friends, experience intimacy, find true love, have kids? All things that people DESERVE!
Lynn Middleton Your point is a little unclear. Do you mean that you wish she’d never been born and that you’d had no sibling at all? That her life hasn’t been worth it? Because it’s the life she’s had or none at all.
She is so cute! I can also relate because my baby sister has Down syndrome
Love this family.
I’m here trying to figure out what makes ppl with DS any different. Like honestly. Other than some physical characteristics and maybe a speech impediment. I don’t really understand what DS is.
She's beautiful
Very touching video
understand you completely. I have a 24 yr son with Down syndrome thank GOD he is healthy. Now he has gained a little weight with the pandemic but i have him on a diet and exercising. He is my world. i cannot imagine my life without him. I worry everyday what will be of him if i die. GOD help me
This is misleading as the complications caused by DS increase exponentially with age. The wee little one is already having challenges. DS is a serious and unfair syndrome.
Al Truism It’s more complicated than that they just worsen.
What does it do?
Thank you
;-; How do we know if we have down syndrome?
Hello,
You can learn about the signs and symptoms of down syndrome at: www.childrenscolorado.org/conditions-and-advice/conditions-and-symptoms/conditions/down-syndrome/
God Bless you both.
Melissa to mike
May Allah bless your family and ur baby. I pray to Allah that she will have wonderful and peaceful life ahead. Ameen
Eww
Special needs life’s matter
What a blessing!
God bless your family. Lord Jesus Christ bringed the biggest confort to my life.