I have found a very good person/friend with a CI few weeks back. I didn’t get a chance to meet that person in-person yet. I’m taking insights from your channel to understand that friend better. I’m wishing to make our meeting comfortable and memorable for both of us. Thank you.
I have had my CI for over. 18 months now and it has been the best decision I have ever made. I am hearing sounds that I haven't heard since I was a teenager .I am now 61 years old
I'm so happy to hear that you're getting on well with your CI! I'm really happy with mine, but I'm always scared that someone will get one because of my videos and hate it.
Exactly what I needed. I have e considered all the points already that you have talked about and am very comfortable with my decision. Again, appreciate all of the time you put into sharing your thoughts and experiences. You help more than you will ever know!
Hi Nelle this has to be the best video yet! I have two choices either stick with my new hearing aids & keep struggling to hear or take the audiologist advice & get assessed! But the only negative point is if your 17 & over they only offer you one implant! But under 17 & you get both ears done on the NHS! I watched a you tube video of a young lady who I think around 10 yrs or so ago had one ear implanted on the NHS but a few years later she asked for the other ear to be implanted but got turned down even though the doctors knew it would help! She wrote and appealed the implant teams decision! On the third attempt the hospital gave in & she hears very well now! But Nelle we don't see the hard work you put in trying to make the implant work! All the visits to the implant centre! But it does not help that your hearing aid is of little use! But you have made it work & I do think if it will help you should be allowed to have the other ear implanted! Since you first lost most of your hearing all you wanted to do was to hear again! But you will always get the people that were born deaf being totally against Cl's, and even hate hearing aids! I will ma ke my choice on what's available to me in the coming months! But it's handy having a well balanced video to watch! So it will help decide so thank you Nelle for being open and honest over implants! 💖💖💖
Thank you for your comment. I hope you're happy with whatever you decide. I hope I can get the other ear implanted at some point, but for the moment, I'm just trying to make the best of what I've got. I'm glad you found the video helpful.
@@nellefindlay thank you for your honest reply as always,being a hearing aid wearer for over 30 yrs I can & have given good advice to people! It's not like just getting a hearing test & bang here are your hearing aids! Your brain will struggle for ages! Brain fog & hearing Fatigue & as you found in may 2021 non stop hearing aid feedback! But if they not gonna implant the other ear then you should be offered the best hearing aid the NHS can give for your loss to work with your implant! I cannot give advice on cochlear implants as I not got one,but Nelle you have made sure everyone know what to expect from a CI your video's from the assessment to what you hear now has been so very helpful! I love the way you pull no punches! You don't just get refered to an implant centre & a few weeks later hey you can hear! I can only imagine what you went through at the assessment! And the operation & switch on! I am a lot older than you & if I had lost my hearing at 21 I would have pushed for the implant to hear again! I now know what it's like to suddenly lose the last bit of decent hearing! I will give these new hearing aids until easter but I want to thank you Nelle for all the videos there are none online as detailed as yours! And as you say a lot of the videos are people crying when their implant gets switched on! You just said this is a start of a long hard journey! I hope you will do more video's to help lots of other people! The views on some videos have been in their thousands! Thank you 💖💖💖
@@barrytaylorprofoundlydeafi2479 Yes, most definitely. Those emotional activation videos are fakes in my opinion. I'm glad that Nellie puts out realistic and honest experiences so that people know what to expect when making their decisions.
Wonderfully informative as always. I think Southampton and other audiology departments would find your video very useful to show to prospective cochlear patients. One question, have you found your friends' approach or attitude to you have changed since getting the implant? By which I mean whether some now assume you can hear perfectly, or the opposite, that it makes your deafness more visible, and people are more considerate.
Thank you for your comment. I'm glad you enjoyed the video. In answer to your question, it really depends massively on the person. A lot of people have asked me 'so can you hear again now?' and I find that quite a difficult question because it's not really a yes or no answer. I think a lot of people didn't realise how deaf I was until I got the implant. I think people kind of assumed when they were told that I had lost my hearing that it was a less severe hearing loss that I actually have. It's kind of a mix really. In public, I haven't really noticed a difference in people's reactions to me. I don't make any effort to hide my hearing aid or implant but I haven't noticed anyone staring at me (except one child once but I'm not even sure that was because of my hearing aids). I still have a lot of incidents (most of which I'm not aware of and only find out about via my mum) where strangers don't realise I'm deaf even if my cochlear implant and hearing aid are visible. I hope this answers your question. Nelle xx
@@nellefindlay Thanks for a most comprehensive reply. As for the child, it was likely a look of wonder as to one of your many patterned jumpers. A bit like seeing snow for the first time. :) Take good care.
Great video, You mentioned on your other video you had bilateral (both ears) profound severe/hearing loss, how comes you were only offered one ear cochlear implant? Secondly - do you notice the internal implant is fitted inside your head? I.e. can you feel there is a device inside your skin next to the brain? Does it affect you in any way? Thanks
Hi, thank you for your comment. I'm glad you enjoyed the video. In the UK adults can only receive one cochlear implant on our national health service unless they are deafblind. If I wanted to get a second one (which I would definitely want to) I would have to pay for it privately which is very expensive and not really an option for me and my family at the moment. I would especially like to get a second implant as my hearing in my ear without an implant is definitely getting worse and pretty much the only thing I (and everyone in a 5 metre radius) can hear with my hearing aid now is the low battery alarm. I can feel the internal implant if I touch the skin where it is. It just feels like a bump about 0.5cm thick. It doesn't hurt or anything to touch it and it's fine sleeping on that side. The main part of the implant is just under the skin (outside my skull) so it doesn't affect my brain or anything. Sometimes I get headaches but I don't know if that is due to the magnet pressing on my head or the sound of the implant or just because I'm concentrating so much. I get headaches from my hearing aid as well so I think it might just be a side effect of hearing devices in general for me. I hope this answers your questions. Nelle xx
Hi, thank you for your comment. It is definitely important to consider the risk that the implant may not work and you are likely to lose any natural residual hearing you may have left. In my case I was pretty much completely deaf before my implant so there wasn't a lot left I could lose. It's definitely a big decision, and I'm glad your faith helped you come to the right decision for you. Nelle xx
![Nightwish Elan Through a Cochlear Implant [CC]](http://i.ytimg.com/vi/VYaK3QWfdKw/mqdefault.jpg)
I have found a very good person/friend with a CI few weeks back. I didn’t get a chance to meet that person in-person yet. I’m taking insights from your channel to understand that friend better. I’m wishing to make our meeting comfortable and memorable for both of us.
Thank you.
I have had my CI for over. 18 months now and it has been the best decision I have ever made. I am hearing sounds that I haven't heard since I was a teenager .I am now 61 years old
I'm so happy to hear that you're getting on well with your CI!
I'm really happy with mine, but I'm always scared that someone will get one because of my videos and hate it.
This is the most sensible video I have ever seen on UA-cam regarding a cochlear implant. You really knocked this one out of the ballpark, Nellie!
Thanks, I'm glad you enjoyed it :)
Thanks for this good information pertaining a cochlear implant, I'm looking forward to getting one.
Exactly what I needed. I have e considered all the points already that you have talked about and am very comfortable with my decision. Again, appreciate all of the time you put into sharing your thoughts and experiences. You help more than you will ever know!
Hi, thank you for your comment. I'm so glad you're finding my videos helpful.
Nelle xx
Great video.
Thank you :)
Hi Nelle this has to be the best video yet! I have two choices either stick with my new hearing aids & keep struggling to hear or take the audiologist advice & get assessed! But the only negative point is if your 17 & over they only offer you one implant! But under 17 & you get both ears done on the NHS! I watched a you tube video of a young lady who I think around 10 yrs or so ago had one ear implanted on the NHS but a few years later she asked for the other ear to be implanted but got turned down even though the doctors knew it would help! She wrote and appealed the implant teams decision! On the third attempt the hospital gave in & she hears very well now!
But Nelle we don't see the hard work you put in trying to make the implant work! All the visits to the implant centre! But it does not help that your hearing aid is of little use! But you have made it work & I do think if it will help you should be allowed to have the other ear implanted! Since you first lost most of your hearing all you wanted to do was to hear again!
But you will always get the people that were born deaf being totally against Cl's, and even hate hearing aids! I will ma ke my choice on what's available to me in the coming months! But it's handy having a well balanced video to watch! So it will help decide so thank you Nelle for being open and honest over implants! 💖💖💖
Thank you for your comment. I hope you're happy with whatever you decide. I hope I can get the other ear implanted at some point, but for the moment, I'm just trying to make the best of what I've got. I'm glad you found the video helpful.
@@nellefindlay thank you for your honest reply as always,being a hearing aid wearer for over 30 yrs I can & have given good advice to people! It's not like just getting a hearing test & bang here are your hearing aids! Your brain will struggle for ages! Brain fog & hearing Fatigue & as you found in may 2021 non stop hearing aid feedback! But if they not gonna implant the other ear then you should be offered the best hearing aid the NHS can give for your loss to work with your implant!
I cannot give advice on cochlear implants as I not got one,but Nelle you have made sure everyone know what to expect from a CI your video's from the assessment to what you hear now has been so very helpful! I love the way you pull no punches! You don't just get refered to an implant centre & a few weeks later hey you can hear! I can only imagine what you went through at the assessment! And the operation & switch on! I am a lot older than you & if I had lost my hearing at 21 I would have pushed for the implant to hear again! I now know what it's like to suddenly lose the last bit of decent hearing! I will give these new hearing aids until easter but I want to thank you Nelle for all the videos there are none online as detailed as yours! And as you say a lot of the videos are people crying when their implant gets switched on! You just said this is a start of a long hard journey! I hope you will do more video's to help lots of other people! The views on some videos have been in their thousands! Thank you 💖💖💖
@@barrytaylorprofoundlydeafi2479 Yes, most definitely. Those emotional activation videos are fakes in my opinion. I'm glad that Nellie puts out realistic and honest experiences so that people know what to expect when making their decisions.
What is PRP therapy
Wonderfully informative as always. I think Southampton and other audiology departments would find your video very useful to show to prospective cochlear patients. One question, have you found your friends' approach or attitude to you have changed since getting the implant? By which I mean whether some now assume you can hear perfectly, or the opposite, that it makes your deafness more visible, and people are more considerate.
Thank you for your comment. I'm glad you enjoyed the video. In answer to your question, it really depends massively on the person. A lot of people have asked me 'so can you hear again now?' and I find that quite a difficult question because it's not really a yes or no answer. I think a lot of people didn't realise how deaf I was until I got the implant. I think people kind of assumed when they were told that I had lost my hearing that it was a less severe hearing loss that I actually have. It's kind of a mix really.
In public, I haven't really noticed a difference in people's reactions to me. I don't make any effort to hide my hearing aid or implant but I haven't noticed anyone staring at me (except one child once but I'm not even sure that was because of my hearing aids). I still have a lot of incidents (most of which I'm not aware of and only find out about via my mum) where strangers don't realise I'm deaf even if my cochlear implant and hearing aid are visible.
I hope this answers your question.
Nelle xx
@@nellefindlay Thanks for a most comprehensive reply. As for the child, it was likely a look of wonder as to one of your many patterned jumpers. A bit like seeing snow for the first time. :) Take good care.
Great video,
You mentioned on your other video you had bilateral (both ears) profound severe/hearing loss, how comes you were only offered one ear cochlear implant?
Secondly - do you notice the internal implant is fitted inside your head? I.e. can you feel there is a device inside your skin next to the brain? Does it affect you in any way?
Thanks
Hi, thank you for your comment. I'm glad you enjoyed the video. In the UK adults can only receive one cochlear implant on our national health service unless they are deafblind. If I wanted to get a second one (which I would definitely want to) I would have to pay for it privately which is very expensive and not really an option for me and my family at the moment. I would especially like to get a second implant as my hearing in my ear without an implant is definitely getting worse and pretty much the only thing I (and everyone in a 5 metre radius) can hear with my hearing aid now is the low battery alarm.
I can feel the internal implant if I touch the skin where it is. It just feels like a bump about 0.5cm thick. It doesn't hurt or anything to touch it and it's fine sleeping on that side. The main part of the implant is just under the skin (outside my skull) so it doesn't affect my brain or anything. Sometimes I get headaches but I don't know if that is due to the magnet pressing on my head or the sound of the implant or just because I'm concentrating so much. I get headaches from my hearing aid as well so I think it might just be a side effect of hearing devices in general for me.
I hope this answers your questions.
Nelle xx
I want to die due to profound hearing loss in my right year
I’m sorry you feel like that. Please see if you can get some psychological support.
There r chances u can hear or lose ur hearing slowly and get completely deaf. Trust ALLAH swt . Choose wisely. I rejected mine
Hi, thank you for your comment. It is definitely important to consider the risk that the implant may not work and you are likely to lose any natural residual hearing you may have left. In my case I was pretty much completely deaf before my implant so there wasn't a lot left I could lose.
It's definitely a big decision, and I'm glad your faith helped you come to the right decision for you.
Nelle xx