1 MONTH KAFTRIO - DO I EVEN HAVE CF ANYMORE

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  • Опубліковано 28 лис 2024

КОМЕНТАРІ • 17

  • @SSDavyS
    @SSDavyS 3 роки тому +21

    hello :) i went from 27% to 85%. and to know il have a whole life living with this... it is beyond belief amazing

    • @paulmetdebbie447
      @paulmetdebbie447 3 роки тому

      This is great, congrats! Are you double delta 508 or single?

    • @SSDavyS
      @SSDavyS 3 роки тому

      @@paulmetdebbie447 double delta 508 and ty

  • @giannisaivatzidis7845
    @giannisaivatzidis7845 11 місяців тому

    First time discovering this channel. Came straight from Instagram, already amazed and intruiged curious to what your treatment might be.What a trip! Haven't even seen the whole video yet. Thank you for sharing the journey. I deeply appreciate letting us view it from such a personal and direct perspective

  • @bennieklopper3068
    @bennieklopper3068 2 роки тому

    Sophie this gives me so much hope. My son,13 has CF. We are battling really hard here in South Africa to get access to Trikafta but ever time come to an dead end. Really glad I came across your video. All the best.

  • @cynthiakatz
    @cynthiakatz 2 роки тому

    It's very nice to see other people with CF taking Kaftrio. I take it about a year now and my FEV1 is now 106%.Thats just amazing. I hope others get to take Kaftrio too!

  • @goodmann4503
    @goodmann4503 2 роки тому

    you are fantastic and ispirational, keep pushing. Sky is the limit

  • @patrickkellar6775
    @patrickkellar6775 4 роки тому +1

    This is awesome and gives me much hope! I'm in Canada where (due to very dumb government decisions) we are STILL waiting to gain access to this miracle. I'm hopeful I'll be in this position soon enough! Take care!

  • @estebandaversa6785
    @estebandaversa6785 4 роки тому

    Amazing!!! Greetings from Argentina!! Thank you for sharing your great energy!!!! You are an inspiration!!!!

  • @lee634
    @lee634 4 роки тому

    So pleased for you Sophie. Great results in just a short time. 💪🏻💛

  • @MrJ6000
    @MrJ6000 3 роки тому

    Legend 💪🏼

  • @johnpcusick
    @johnpcusick 4 роки тому

    Amazing

  • @paulmetdebbie447
    @paulmetdebbie447 3 роки тому

    Great to hear, congrats! Are you double delta f508 or single?

  • @sarraahmed1629
    @sarraahmed1629 2 роки тому

    Hi. I have CF and diabetes. This medicine will be to not get creon more also , and recovering from diabetes???

  • @matijarmk
    @matijarmk 4 роки тому

    7 days till we get it :P!