I never had PMDD but in my early 20's was hospitalised in a psychiatric unit three times with depression. Im 38 now and still fear it getting like that again. Its refreshing hearing someone like yourself that has had numerous physical illnesses and challenges over the years talk about how hard mental health issues can be, whether thet are organic or linked to hormones. Thanks Maggie and Im glad you are doing well with this now thankfully
I experienced this. I felt alone and crazy. I had 2 good weeks a month! I am now older and happier. It was a horrible time for me. Good for you getting answers!!!!
I went on birth control for severe hormonal acne in my adulthood after never suffering from acne in my life. I only needed to be on it for a few months, thankfully as I didn’t like the side effects. It seemed like the birth control “re-set” my hormones and then was no longer needed. So if anyone is concerned they might be on birth control indefinitely for a hormonal related condition, talk to health care provider and see if it’s possibly only temporarily needed.
It’s shocking that you have had to deal with this too! I fully believe that this is part of our Inflammatory Response in chronic Autoimmune Disorder ~ which you’ve obviously endured the worst of it. Yet your response is to analytically address it & help others!! Beautiful Nurse Work!! 🙏🏻♥️😘
You are a rock solid super star for coming on here and sharing your story and what sounds like horrific symptoms you've experienced. You are fortunate that you are so in tune with your body and know it so well. I have these symptoms too where I'm hypersensitive to nothing. Even something happy can trigger me. Thank you so much for this invaluable information and how candid you are. I was put on about six different antidepressants, none of which worked. I will sure be talking to my GP about this. More people should know about it. And just think how many of us are falling under the radar or given the wrong diagnosis like I was. Thank you from the bottom of my heart.. I'd be in tears by now if I was watching this two weeks later! 😂 Sending you much love from me here in the UK 🇬🇧 ❤
Preach it! It is so hard to find a doctor to listen to you with a chronic illness! I finally found one. Only took 25 years! Thank you for being so open. Much love ❤️
I always think one of the things hormone storms do is put you right in touch with feelings you’ve been avoiding. So the emotions need to be yes managed, but also respected and expressed.
Healthcare providers don’t have any knowledge about it because it’s a female issue. The lack of good information concerning women’s health is astounding. Post partum depression treatment is archaic and doctors act like it’s not real…it’s very real. Wait until you deal with menopause in the far future! Treatment is nonexistent 😢
I had vein procedures this week that require local anesthetic. The doctor literally administered the lidocaine and immediately started cutting me open and never waited for the lidocaine to take affect. I cried throughout the entire procedure. I have 2 more scheduled too.😭
I told my pcp about it when We went through my medlist. He was literally looking it up while we talked. He even admitted he had no idea what it was. But I will say this my women’s health NP knew it right away and was so caring.
My own experience felt like a cloud would come over me each month. My situations didn't change, but my perspective on them did. I also felt like the hairs on my arms were bristling if anyone came too close to me. Needless to say, this lead to relationship failures. Thankfully, Zac had the patience needed to help you through these times.
I want to add that today I watched 'Breakdown' with Mayim Bialik, who was interviewing Dr. Daniel Amen. He pointed out that depression can often be related to physical issues in your gut. So what you're saying about feeling better after your surgery makes sense!.
Hi! I’m so glad I found your channel and greatful that you spoke about PMDD. I know exactly what you’re talking about. I’ve believe I have it, but haven’t been diagnosed. I heard about it from my therapist. Today I went to see the Gyno, which is the 2nd one about this topic and about pelvic pain. I might also have adenomyosis. I also saw your video on this. Thank you so much for your being real, authentic and supportive.
I have PMDD diagnosis but it worsens on my period , from day 14 ish until im on it all the way until day 9-10 , lucky if 2-3 decent days a month , somewhat a week ish. All ssri/ssnri/bc hate me along w almost 40 other meds:/ Sorry you suffer from pmdd 😔
I was recently diagnosed with a condition called vulvadynia. It is AWFUL and caused me extreme anxiety. Thankfully, I am now under the care of a psychiatrist who put me on the right meds, one of which also helps with the horrible muscle spasms I was having from this condition. Unfortunately, I still have other kind of discomfort. My gynecologist has me on an estrogen cream now but what really sucks is that there is no cure for it and so many people aren’t even aware of it!
I have terrible PMDD. I am in my mid 40's so that is part of it. I cannot do any type of hormones. So I asked my Dr for Bupropion and it has been life changing. I can handle my cycle. It is not perfect but I feel 1000% better.
I have this. Years of chronic depression on top of it. My only real sign was when I was young and just starting cycles, I always said ' you hate your cycle? I'm always happier when it starts!' Thats a huge sign
It is crazy how hard it can be for some to get diagnosed with PMDD. It took 1 conversation between my mom, doctor and I to get diagnosed. I would turn into an absolute beast the week prior to my cycle. I was there to get onto birth control so they put me on a birth control that works. I still take the pill today and just recently started an antidepressant a bit less than a month ago.
45 and have been struggling with PMDD for about 15 years. I started BC pills at age 40 and am currently on one that is estrogen free that has saved my life. My pmdd started as rage but the. Warped into complete isolation and depression. And then the period would come and I was back to fine. The struggle is so hard with it. I have tried to go off my pill but it always is the same result - I am ok for a few months and then it gets out of control. Will not go off my pill now until menopause. I think they are so many women out there who struggle in silence.
As someone who struggles with PCOS, I’ve done a lot of research regarding where the root cause of it is. Autoimmune diseases and major hormonal imbalances are often caused my trauma, this can relate to your Crohn’s disease too and many other diagnoses. By listening to your experience, I can’t help but wonder if there is a link between your PMDD and Crohn’s, since you got your colon removed and you didn’t have PMDD psychological symptoms after the surgery. I really believe healing our mental traumas can alleviate these symptoms we experience post trauma that give us physical health problems. Since I have dug deep into the root cause of my PCOS and balancing that with the right lifestyle changes, I have radically improved my physical health. This isn’t always permanent as our health ebbs and flows depending on our current life circumstances, however understanding that your body may be in fight or flight mode (increasing your cortisol levels), and learning how to curb that can significantly improve our health. It’s much easier said than done, but this is also coming from someone who has lived her whole life (since the beginning of puberty) in a state of fight or flight and my body was giving me warning signs and unfortunately my family and I wasn’t aware of. Now that I’ve done a lot of mental work and taken physical changes naturally, my health has improved. I can’t help but wonder if more people knew the link between trauma and autoimmune issues, how many more people would have greater health outcomes. Of course this doesn’t mean everyone will be exempt from western medicine, I would just hope to see that at least debilitating symptoms could be alleviated by this awareness.
Yep! For me it was furious. Anger beyond reason. Snap at everyone. My kids knew when it was and what it was. Menopause was delightful even with sleeplessness and hot flashes. My migraines went away too.
reminds me of when i was taking a medication that as a side effect made me suicidal every month like clockwork for a little over a week before my period, and it stopped as soon as i got it, and it stopped happening the moment my doctor changed my medication. it was so bizarre
Medical knowledge that doctors are aware of might be decided by statistics. It’s why there are “orphan diseases.” It’s math and science combining in a doctors world to what the odds are that the doctor is going to see in their practice. We all need to ask questions and push for answers that work. Each patient is unique. Perhaps it is needed to gently change doctors education and make specialities more common. Last year my husband had surgery and came home with a catheter for 10 days. I had the pleasure of emptying the urine bag. Why? He has one arm and the clips on the bag require two to empty it. One company Makes single hand use catheter clips.The hospital we use did not have them. Were they wrong to not have them available for him to use? For the record, the day he got the catheter removed at the md office, that evening he was in the ER with sepsis. When he came home after a few days I then had the pleasure of injecting some drug into some sort of port in his arm for about two weeks. He could not do that himself either. Medical science cannot cover all possibilities. Somewhere they’re working on PMDD and regenerating human appendages. Not yet quite there. What percent of the population only has a left hand? (10% of people are left handed writers) Sigh.
I have had EXTREME episodes that have caused me horrible embarrassment in front of family and has caused them to lose respect for me it seems. I was a new mom packing the car to leave family vacation. My sister who is a ray of sunshine and silly happiness and treats me so well was down on the beach all the way down at the water at low tide taking last minute pics and enjoying her cousins. It was scorching hot and I wanted to put things in the car and she locked it also we were supposed to leave 15 mins ago . She wasn’t answering her phone, I started screaming her name and screaming that “we need to go home unlock the car, vacation is over, and just screaming her name” but screaming like the biggest ass hole you could ever picture, as loud as humanly possible. Everyone on the beach was staring at me and I continued to get more enraged. Screaming like a psychopath, in tears and feeling as though they are laughing at me and did this to me on purpose. Everyone of my cousins in the cottage could hear me. They all looked so disturbed by my behavior and then I realized what I had done to myself and my poor little sister. Later that day when we arrived home I got my period and it clicked that there is a pattern. Since then I feel shame about this moment almost daily I beat myself up for it… I wish I could tell them all that that is not really me but they would probably just think I am trying to place blame on a made up disorder even though it is 100% real and horrible. I am so different without it. It is a curse and I feel I am unlovable because of what it turns me into. The fact that my mom and dad just think I am that awful of a person and didn’t take me to a dr for it is really disappointing because people believe it’s who I really am. I have no friends because of it. I had so many episodes on this vacation every year. It always happened on vacation and I would always have my period on vacation. Every year I would have this horrible emotional breakdown in front of everyone. 😢 I want everyone to know I have pmdd and have struggled terribly because of it. I have done incredibly self sabotaging things because of this rage and anger. This inability to focus and shaking in my brain. Someone should have helped me, I feel so angry right now. It’s so insulting that they think I am this way… it’s so unfair that we have had endure this without anyone raising an eyebrow to question. This monthly behavior….
I had pmdd and it was never even mentioned. They put me on birth control and anti depressants tho. And when my back laid me out for 3 months the birth control pills gave me clots in my lungs. I'm lucky to have survived!
I actually got diagnosed with PMDD myself in 2021, but my doctor told me that for me to understand it, that I have to research it for myself because she doesn’t know much about herself and she has it; but doesn’t know much about it.
I'm 48 and I've had PMDD for years. I hadn't had treatment till recently. My husband has gotten a vasectomy years ago so the birth control option is out. I recently have been put on HRT which the doctor told me it won't prevent pregnancy which was already taken care of thanks to the big snip-snip. I have felt a big difference. I have been on Lexapro for a few years as well and I feel great. Yeah, Zoloft didn't do a dang thing except for make me feel like a zombie. I'd suggest asking about HRT, They have patches, creams, and a pill form.
Got diagnosed with this and my doctor is having me try chemical menopause to see if surgical menopause would be the right direction. Of course, insurance denied the medication because it's not "medically necessary: even though those with PMDD are like 4x more likely to commit suicide.
Is considered a hormone imbalance change. They can be normal, then not be normal hormones. Went up and down like on a roller coaster. I had a period I went through the same thing. honey when you go through menopause it will get worse.. We tracked it. After i had kids my hormones,changed every 6years.. We don't why? Before went through menopause. Hope this helps. Wanted to do a thesis on this how it effects women and there mental health..
I’ve heard the same thing from other women but what I remember is that one week before I started, I turned into a raging, heinous bitch. I had no idea why the level of upsetness but everyone just came to know to stay out of my way!😊
I never had PMDD but in my early 20's was hospitalised in a psychiatric unit three times with depression. Im 38 now and still fear it getting like that again.
Its refreshing hearing someone like yourself that has had numerous physical illnesses and challenges over the years talk about how hard mental health issues can be, whether thet are organic or linked to hormones.
Thanks Maggie and Im glad you are doing well with this now thankfully
I experienced this. I felt alone and crazy. I had 2 good weeks a month! I am now older and happier. It was a horrible time for me. Good for you getting answers!!!!
I went on birth control for severe hormonal acne in my adulthood after never suffering from acne in my life. I only needed to be on it for a few months, thankfully as I didn’t like the side effects. It seemed like the birth control “re-set” my hormones and then was no longer needed. So if anyone is concerned they might be on birth control indefinitely for a hormonal related condition, talk to health care provider and see if it’s possibly only temporarily needed.
It’s shocking that you have had to deal with this too!
I fully believe that this is part of our Inflammatory Response in chronic Autoimmune Disorder ~ which you’ve obviously endured the worst of it.
Yet your response is to analytically address it & help others!! Beautiful Nurse Work!! 🙏🏻♥️😘
You are a rock solid super star for coming on here and sharing your story and what sounds like horrific symptoms you've experienced. You are fortunate that you are so in tune with your body and know it so well. I have these symptoms too where I'm hypersensitive to nothing. Even something happy can trigger me. Thank you so much for this invaluable information and how candid you are. I was put on about six different antidepressants, none of which worked. I will sure be talking to my GP about this. More people should know about it. And just think how many of us are falling under the radar or given the wrong diagnosis like I was. Thank you from the bottom of my heart.. I'd be in tears by now if I was watching this two weeks later! 😂
Sending you much love from me here in the UK 🇬🇧 ❤
Preach it! It is so hard to find a doctor to listen to you with a chronic illness! I finally found one. Only took 25 years! Thank you for being so open. Much love ❤️
I don’t get how people feel better when they bleed…. When the bleeding starts it gets worse for me
I always think one of the things hormone storms do is put you right in touch with feelings you’ve been avoiding. So the emotions need to be yes managed, but also respected and expressed.
Healthcare providers don’t have any knowledge about it because it’s a female issue. The lack of good information concerning women’s health is astounding. Post partum depression treatment is archaic and doctors act like it’s not real…it’s very real. Wait until you deal with menopause in the far future! Treatment is nonexistent 😢
It's so sad - even with issues not exclusive to women there is so much difficulty in just being believed!
I had vein procedures this week that require local anesthetic. The doctor literally administered the lidocaine and immediately started cutting me open and never waited for the lidocaine to take affect. I cried throughout the entire procedure. I have 2 more scheduled too.😭
💯
I told my pcp about it when We went through my medlist. He was literally looking it up while we talked. He even admitted he had no idea what it was.
But I will say this my women’s health NP knew it right away and was so caring.
Not even hrt? :/ Going to a naturalpath would prob be better or I used to have an open minded doc but not going through that yet
So glad you are talking about these things and sharing your experience. ❤
My own experience felt like a cloud would come over me each month. My situations didn't change, but my perspective on them did. I also felt like the hairs on my arms were bristling if anyone came too close to me. Needless to say, this lead to relationship failures. Thankfully, Zac had the patience needed to help you through these times.
I want to add that today I watched 'Breakdown' with Mayim Bialik, who was interviewing Dr. Daniel Amen. He pointed out that depression can often be related to physical issues in your gut. So what you're saying about feeling better after your surgery makes sense!.
Hi! I’m so glad I found your channel and greatful that you spoke about PMDD. I know exactly what you’re talking about. I’ve believe I have it, but haven’t been diagnosed. I heard about it from my therapist. Today I went to see the Gyno, which is the 2nd one about this topic and about pelvic pain. I might also have adenomyosis. I also saw your video on this. Thank you so much for your being real, authentic and supportive.
I have PMDD diagnosis but it worsens on my period , from day 14 ish until im on it all the way until day 9-10 , lucky if 2-3 decent days a month , somewhat a week ish. All ssri/ssnri/bc hate me along w almost 40 other meds:/ Sorry you suffer from pmdd 😔
I was recently diagnosed with a condition called vulvadynia. It is AWFUL and caused me extreme anxiety. Thankfully, I am now under the care of a psychiatrist who put me on the right meds, one of which also helps with the horrible muscle spasms I was having from this condition. Unfortunately, I still have other kind of discomfort. My gynecologist has me on an estrogen cream now but what really sucks is that there is no cure for it and so many people aren’t even aware of it!
For someone who has so many health issues you look as though you feel great.
What amazing timing for this video! I was just googling more about PMDD and am currently dealing with it as I'm typing this!
I have terrible PMDD. I am in my mid 40's so that is part of it. I cannot do any type of hormones. So I asked my Dr for Bupropion and it has been life changing. I can handle my cycle. It is not perfect but I feel 1000% better.
I have this. Years of chronic depression on top of it. My only real sign was when I was young and just starting cycles, I always said ' you hate your cycle? I'm always happier when it starts!' Thats a huge sign
I smell a @MamaDoctorJones collaboration in the near future... 🤞🏼 😊
It is crazy how hard it can be for some to get diagnosed with PMDD. It took 1 conversation between my mom, doctor and I to get diagnosed. I would turn into an absolute beast the week prior to my cycle. I was there to get onto birth control so they put me on a birth control that works. I still take the pill today and just recently started an antidepressant a bit less than a month ago.
Thanks for sharing! Sounds a lot like perimenopause.
Girl, it’s the worst. I had panic attacks right before my period, every month for 30 years. Zoloft worked wonders for me.
45 and have been struggling with PMDD for about 15 years. I started BC pills at age 40 and am currently on one that is estrogen free that has saved my life. My pmdd started as rage but the. Warped into complete isolation and depression. And then the period would come and I was back to fine. The struggle is so hard with it. I have tried to go off my pill but it always is the same result - I am ok for a few months and then it gets out of control. Will not go off my pill now until menopause. I think they are so many women out there who struggle in silence.
Thanks for another great video! Very interesting topic! ❤
As someone who struggles with PCOS, I’ve done a lot of research regarding where the root cause of it is. Autoimmune diseases and major hormonal imbalances are often caused my trauma, this can relate to your Crohn’s disease too and many other diagnoses. By listening to your experience, I can’t help but wonder if there is a link between your PMDD and Crohn’s, since you got your colon removed and you didn’t have PMDD psychological symptoms after the surgery. I really believe healing our mental traumas can alleviate these symptoms we experience post trauma that give us physical health problems. Since I have dug deep into the root cause of my PCOS and balancing that with the right lifestyle changes, I have radically improved my physical health. This isn’t always permanent as our health ebbs and flows depending on our current life circumstances, however understanding that your body may be in fight or flight mode (increasing your cortisol levels), and learning how to curb that can significantly improve our health. It’s much easier said than done, but this is also coming from someone who has lived her whole life (since the beginning of puberty) in a state of fight or flight and my body was giving me warning signs and unfortunately my family and I wasn’t aware of. Now that I’ve done a lot of mental work and taken physical changes naturally, my health has improved. I can’t help but wonder if more people knew the link between trauma and autoimmune issues, how many more people would have greater health outcomes. Of course this doesn’t mean everyone will be exempt from western medicine, I would just hope to see that at least debilitating symptoms could be alleviated by this awareness.
Yep! For me it was furious. Anger beyond reason. Snap at everyone. My kids knew when it was and what it was. Menopause was delightful even with sleeplessness and hot flashes. My migraines went away too.
Same! I had a hysterectomy and had my ovaries removed!
End of menopause or even at the beginning of
reminds me of when i was taking a medication that as a side effect made me suicidal every month like clockwork for a little over a week before my period, and it stopped as soon as i got it, and it stopped happening the moment my doctor changed my medication. it was so bizarre
Medical knowledge that doctors are aware of might be decided by statistics. It’s why there are “orphan diseases.” It’s math and science combining in a doctors world to what the odds are that the doctor is going to see in their practice. We all need to ask questions and push for answers that work. Each patient is unique. Perhaps it is needed to gently change doctors education and make specialities more common.
Last year my husband had surgery and came home with a catheter for 10 days. I had the pleasure of emptying the urine bag. Why? He has one arm and the clips on the bag require two to empty it. One company
Makes single hand use catheter clips.The hospital we use did not have them. Were they wrong to not have them available for him to use? For the record, the day he got the catheter removed at the md office, that evening he was in the ER with sepsis. When he came home after a few days I then had the pleasure of injecting some drug into some sort of port in his arm for about two weeks. He could not do that himself either. Medical science cannot cover all possibilities. Somewhere they’re working on PMDD and regenerating human appendages. Not yet quite there. What percent of the population only has a left hand? (10% of people are left handed writers) Sigh.
I have had EXTREME episodes that have caused me horrible embarrassment in front of family and has caused them to lose respect for me it seems. I was a new mom packing the car to leave family vacation. My sister who is a ray of sunshine and silly happiness and treats me so well was down on the beach all the way down at the water at low tide taking last minute pics and enjoying her cousins. It was scorching hot and I wanted to put things in the car and she locked it also we were supposed to leave 15 mins ago . She wasn’t answering her phone, I started screaming her name and screaming that “we need to go home unlock the car, vacation is over, and just screaming her name” but screaming like the biggest ass hole you could ever picture, as loud as humanly possible. Everyone on the beach was staring at me and I continued to get more enraged. Screaming like a psychopath, in tears and feeling as though they are laughing at me and did this to me on purpose. Everyone of my cousins in the cottage could hear me. They all looked so disturbed by my behavior and then I realized what I had done to myself and my poor little sister. Later that day when we arrived home I got my period and it clicked that there is a pattern. Since then I feel shame about this moment almost daily I beat myself up for it… I wish I could tell them all that that is not really me but they would probably just think I am trying to place blame on a made up disorder even though it is 100% real and horrible. I am so different without it. It is a curse and I feel I am unlovable because of what it turns me into. The fact that my mom and dad just think I am that awful of a person and didn’t take me to a dr for it is really disappointing because people believe it’s who I really am. I have no friends because of it. I had so many episodes on this vacation every year. It always happened on vacation and I would always have my period on vacation. Every year I would have this horrible emotional breakdown in front of everyone. 😢 I want everyone to know I have pmdd and have struggled terribly because of it. I have done incredibly self sabotaging things because of this rage and anger. This inability to focus and shaking in my brain. Someone should have helped me, I feel so angry right now. It’s so insulting that they think I am this way… it’s so unfair that we have had endure this without anyone raising an eyebrow to question. This monthly behavior….
I had pmdd and it was never even mentioned. They put me on birth control and anti depressants tho. And when my back laid me out for 3 months the birth control pills gave me clots in my lungs. I'm lucky to have survived!
I actually got diagnosed with PMDD myself in 2021, but my doctor told me that for me to understand it, that I have to research it for myself because she doesn’t know much about herself and she has it; but doesn’t know much about it.
I never had this fir a diagnosis, but im pretty sure that I did. My female hormonal problems went away with my hysterectomy.
Thank you for talking about this.
I don’t have PMDD but I’ve been to 4 doctors about something that’s been going on for 8 months and no one will help me. I don’t know what to do.
I'm 48 and I've had PMDD for years. I hadn't had treatment till recently. My husband has gotten a vasectomy years ago so the birth control option is out. I recently have been put on HRT which the doctor told me it won't prevent pregnancy which was already taken care of thanks to the big snip-snip. I have felt a big difference. I have been on Lexapro for a few years as well and I feel great. Yeah, Zoloft didn't do a dang thing except for make me feel like a zombie.
I'd suggest asking about HRT, They have patches, creams, and a pill form.
Got diagnosed with this and my doctor is having me try chemical menopause to see if surgical menopause would be the right direction. Of course, insurance denied the medication because it's not "medically necessary: even though those with PMDD are like 4x more likely to commit suicide.
Like that u keep ur plaque on ur desk
Is considered a hormone imbalance change. They can be normal, then not be normal hormones. Went up and down like on a roller coaster. I had a period I went through the same thing. honey when you go through menopause it will get worse.. We tracked it. After i had kids my hormones,changed every 6years.. We don't why? Before went through menopause. Hope this helps. Wanted to do a thesis on this how it effects women and there mental health..
I had this as well 2 weeks of pure hell, suicidal Also had endometriosis so ended up with full hysterectomy
I’ve heard the same thing from other women but what I remember is that one week before I started, I turned into a raging, heinous bitch. I had no idea why the level of upsetness but everyone just came to know to stay out of my way!😊
They always say diet n lifestyle as if
🌼☀️
🙂.
Wild yarrow and lemon balm is the cure.