The pre-made chicken soup is pure histamine. Anything that has been heated up and then gets cold produces histamine, reheating it and keeping it for days is going to produce even more histamine. Histamine is what causes reactions with MCAS because you already have too much histamine from the degranulating cells. Whatever else you consume, anything which has once been hot and has gotten cold or been reheated is going to reach over the limit and cause a reaction. I don’t mean to offend or anything, this is just so we can all help each other :)
50+ years old here, know the EDS, POTS, MCAS thing too well, and the GI stuff, ugh... I have to say I am just SO totally distracted by the BRA just hanging there... LOL hard to focus... hahaha... Sorry to laugh but we have to incorporate humor sometimes! btw I use low histamine and FODMAP foods, 2-3 H1 antihistamines, H2 antihistamines, leukotriene inhibitor, local steroid creams... helps manage all that. Had anaphylaxis several times last year, and severe malabsorption this year that led to ER, Hospital, then Nursing Home... they ALL fed me horrific food that just shot thru me as I wasted away even more! Did not start to get better until I finally got home and could actually practice HEALTH!
I came back to watch this video after discovering that the rash I have could be MCAS and thought “wow, something looks different about you in this vlog?” And realised that it’s the tube! Haha
Hi I’m the sis to this Chanel, I’m a 14 year old f amd I have a vary bad made cell disorder+neropithy’ really need to talk with some one,,, I get a shot in earch arm every mouth and I get burning and so so so much pain!
I recently took a genetic test and my baby came back positive for mcad I’m scared and I don’t know what to do will my baby be ok? I’m so worried rn I’m 19 weeks
is it deadly ? i read someting on google that says most patients with mcad live less than a year ? is it true i had it after covid in december 2020 since then i never was like i used to and can't sleep have rashes skin issues on my face hands eczemas anxiety , confusion and insomnia since last 2 years
The pre-made chicken soup is pure histamine. Anything that has been heated up and then gets cold produces histamine, reheating it and keeping it for days is going to produce even more histamine. Histamine is what causes reactions with MCAS because you already have too much histamine from the degranulating cells. Whatever else you consume, anything which has once been hot and has gotten cold or been reheated is going to reach over the limit and cause a reaction.
I don’t mean to offend or anything, this is just so we can all help each other :)
50+ years old here, know the EDS, POTS, MCAS thing too well, and the GI stuff, ugh... I have to say I am just SO totally distracted by the BRA just hanging there... LOL hard to focus... hahaha... Sorry to laugh but we have to incorporate humor sometimes! btw I use low histamine and FODMAP foods, 2-3 H1 antihistamines, H2 antihistamines, leukotriene inhibitor, local steroid creams... helps manage all that. Had anaphylaxis several times last year, and severe malabsorption this year that led to ER, Hospital, then Nursing Home... they ALL fed me horrific food that just shot thru me as I wasted away even more! Did not start to get better until I finally got home and could actually practice HEALTH!
hi just read your comment and was hoping your doing okxx
Ohh... I know this vid is old and you are on tube feeds now... but that corn in that soup is a big mast cell trigger for lots of us.
Two months ago I started struggling with mast cell activation. It’s very scary.
Omg I use orange strepsils so much to help with that minging taste!! They work the best!✨
Evie Stanway yes throat sweets are the best!! Plus helps with sore throat from retching💖👌🏽
i have mast cell disorder as well... I never thought I would see someone else with it. Earlier today I broke out in hives for no reason:/
i love nurse jackie!! hope you're feeling a bit better since the reaction 💕🥄
agirlisariot yes nurse Jackie is so good! And I'm feeling better but still struggling with MCAD reactions I'm flaring bad atm 😫 I hope your okay 💖
I came back to watch this video after discovering that the rash I have could be MCAS and thought “wow, something looks different about you in this vlog?” And realised that it’s the tube! Haha
Hi I’m the sis to this Chanel, I’m a 14 year old f amd I have a vary bad made cell disorder+neropithy’ really need to talk with some one,,, I get a shot in earch arm every mouth and I get burning and so so so much pain!
It is hard. Take it one day at a time. I take tons of Zyrtec.
Mine happen on chest, face and back usually. Horrible when it happens in a store and I don't have a hat or something to cover up a little.
I recently took a genetic test and my baby came back positive for mcad I’m scared and I don’t know what to do will my baby be ok? I’m so worried rn I’m 19 weeks
Lenna Elaine_- my one week old son was just diagnosed with Mcadd, we see a genetic specialist tomorrow. Will update
when I lost all my weight the same thing happened it was all my upper body!! I hate my masto rashes, I have cutaneous as well so they never go away
What type of doctor do you see to manage MCAD?
J Mac I personally see a allergy specialist and my primary care doctor
is it deadly ? i read someting on google that says most patients with mcad live less than a year ? is it true i had it after covid in december 2020 since then i never was like i used to and can't sleep have rashes skin issues on my face hands eczemas anxiety , confusion and insomnia since last 2 years
my son has MCAD. he is 3.
I feel like the only one in the USA with mass cell disorder
Stella SW Chalue your not alone I have it to
You’re not alone!
I live in the USA and have it is horrible. Some days I want to quit life. So exhausted like life has been sucked out of me
Little Star Small Wolf Im one. I have had it since I was 9. Im now 70! You are not alone.
Me too!
Hi amy