A SEIZURE ON DATE THREE | HOW WE BECAME A BLENDED AUTISM FAMILY *Part 2...Her Story*
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- Опубліковано 7 лют 2025
- Here is Martiza explaining the time line of us meeting, Jaiden's seizure and autism diagnosis and me proposing! Thanks everyone! If you have any question feel free to email us MOLISFAM@GMAIL.COM #AutismParents #BlendedFamilies #AutismStepDad
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I'm back showing love & support like I been doing😁thanks for sharing because I really do appreciate it and Blessings to you & your family🙏
I also have a seizure disorder here is my story
When I was a baby I had a febrile seizure I stopped breathing and turned blue my mom gave me mouth to mouth and by the time the EMTS arrived I stopped seizing. As i grew from baby to toddler my parents began to see that i was delayed. So i started early intervention at 3 years old I had occupational therapy and PT . In pre k I would get angry and punch any thing that was in front of me after my parents had been observing me in a pre k class and talking to the pre k teachers it was suggested that my parents should take me to a therapist to rule out any behavior issues. he took one look at me and said that I was having seizures he then referred me to a neurologist.
At the at the age of 5, I was diagnosed with childhood absence epilepsy but I have been seizure free since the age of thirteen. And so was taken of meds which caused massive weight gain a hand tremor and memory loss. The point is meds are good up until a point and then it becomes a pill, no pun intended. My triggers are flashing lights, the transition from the out doors to inside a classroom getting too hot and recently sleep deprivation. When i had an absent my pupils will go from normal to pin point that is the only physical sign the eye can lasts My seizures last one second and happened every minute to every minute and a half. So there are 60 seconds in a minute and 24 hours in a day then I was having seizures every 1440 minutes or 86400 seconds so in total I would have 86400 seizures per day with meds. my parents were told to treat me as a normal child and to see how fare I would develop and look at me now I have graduated high school with honors . I am in collage as you can infer I was not expected to do much of what I just mentioned
The effects of my seizures is that I have Aspie like tendencies due to my epilepsy which I know is difficult to understand to put it in simple terms as a result of my seizures my brain compensated and rewired itself i also have severe in Processing disorder Perceptual Reasoning, and Working Memory, Coordination,Dexterity, Fine and gross Motor Skills, Hand Strength, Visual Perceptual Skills.
When was 19, my father died, and it seems I have had a relapse if that is possible.I still have my absence seizure but it is not enough to put me on meds. When I was thirteen I had my last EEG and my seizures showed up as misfired neurons not seizure activity per say and the Dr. called them “flurries", so here is what my flurries are typically like: I will become very spacey, I can not interact with my surroundings, I also felt locked in to place. I am completely aware, my vision becomes like a tunnel, and thing start to move or vibrate on their own.
We aren’t a blended family, but we have some similarities to y’all. My husband told me he loved me the first week we dated. He proposed a month and four days into dating. We married 9 months later. However, we struggled with not being able to have kids. Long story short: God knew what He was doing. We are now almost 30 years married and though having a profoundly delayed, nonverbal severely autistic son has definitely tested us, God also blessed us with another equally amazing neurotypical son, and we are so very blessed with both our sons. Love your story. You both are amazing. And your family is beautiful.
Prosed in 4 months and married in 9 months! I think you beat us! ha We were engaged within four months but married at 11 months. When you know you know right?? lol Very nice to hear your back story Jill, love getting to know new people in this world! Thanks for us sharing! And yes, boy oh boy does it test you? More than people who don't have a child with special needs can every truly understand!
@@AutismDadda absolutely. I am so thankful your sons got you for their dad, and am thankful you and your gorgeous wife got them for your kids. God is so good at what He does!😁
Aww ... that is really a special and sweet story. You guys are so lucky to have found each other ! ❤️
Thanks Mandi! We appreciate the love and support. As always you rock! I'll let Maritza know what you said.
How is Jaiden doing? I know in a previous video you mentioned that he may have to go to a different classroom
Hey Nora! So awesome by you to ask! I made a video just because of your very thoughtful question. Might even be coming out today! Thanks again! 😉