Jamison, thanks so much for this, and all of your videos. When I start to worry about my illnesses, I try to focus on things I enjoy. Genealogy, reading, writing (I’ve written some articles for The Mighty), and watching TV or UA-cam videos. You’re right about not reading too many negative stories. I find that consuming too much social media makes me irritable and depressed. Of course, it’s all about the moderation and the content you choose.
@@sharilynn5 Hi! I’m so glad you are writing. It is so important to get our stories out in the world! And as you said, it does help to focus on what brings us joy, even if they are little things.
Watching you here in Lviv, Ukraine! 17 years of mecfs, definitely thinking about surviving this single day is paramount. I'm learning languages by watching lots of videos in that language, this brings me much joy and passes time.
It's great to see you so much improved (even though I know there's still more to go!). I've had to take a step back from advocacy and focus on how to make my life sustainable. Focusing on this moment is the most helpful, except when I'm feeling terrible, I tell myself there will be better days ahead. Planning for the future is still very far out of reach but all we really have is today anyway right? One step at a time slow and steady. Xx
Hey Jenny! Thanks so much! I’m with you on that. I haven’t been as involved in the cause as much as I used to be or would like to be. Kinda bums me out but hopefully I will get more involved again in the future. It’s hard to advocate and take care of yourself. And planning for the future is so difficult but like you said it’s a good reminder to live in the moment. Big hugs to you 🤗
Jamison, thanks so much for this, and all of your videos. When I start to worry about my illnesses, I try to focus on things I enjoy. Genealogy, reading, writing (I’ve written some articles for The Mighty), and watching TV or UA-cam videos. You’re right about not reading too many negative stories. I find that consuming too much social media makes me irritable and depressed. Of course, it’s all about the moderation and the content you choose.
@@sharilynn5 Hi! I’m so glad you are writing. It is so important to get our stories out in the world! And as you said, it does help to focus on what brings us joy, even if they are little things.
👍
Watching you here in Lviv, Ukraine! 17 years of mecfs, definitely thinking about surviving this single day is paramount. I'm learning languages by watching lots of videos in that language, this brings me much joy and passes time.
Hi! Thanks so much for watching! So glad you are hanging in there with MECFS. It is such a frustrating illness. Hope you are staying safe!
@@JamisonWrites yeah, glad you're better. Keep your energy levels in check though!
It's great to see you so much improved (even though I know there's still more to go!). I've had to take a step back from advocacy and focus on how to make my life sustainable. Focusing on this moment is the most helpful, except when I'm feeling terrible, I tell myself there will be better days ahead. Planning for the future is still very far out of reach but all we really have is today anyway right? One step at a time slow and steady. Xx
Hey Jenny! Thanks so much! I’m with you on that. I haven’t been as involved in the cause as much as I used to be or would like to be. Kinda bums me out but hopefully I will get more involved again in the future. It’s hard to advocate and take care of yourself. And planning for the future is so difficult but like you said it’s a good reminder to live in the moment. Big hugs to you 🤗