@Pallavi after I learn from my doctor that my condition was neurological connected, I stay focus more on my mental health, I should say, I focused more on the possitive sides of my life, instead of worrying too much about my condition. I noticed that everytime I am happy and more relax, my voice sounds good, but when I think too much and worry about everything especially when it comes to my problem, my voice sounds so bad.. It maybe sounds weird, but it is true, I noticed that I have voice when I am happy, I can even sing, but can't talk properly. Voice rest can be a big help also, so minimize talking. This is just based on my personal experience..
Thanks everyone for their input. I wish more people understood what we experience I have mixed SD complicated by surgery. I appreciate that in times of stress my voice is affected as my job which involves hours of speaking a day. What I would like to see is a move away from saying "relax and you will be better", "it's all in your head". Each person has their own story.
I can relate to this... people hardly understand our situation... the first suggestion they give is seek a doctor for help... where I have almost tried every single specialist... that's all they could advise....not bothered about people now....just worried about the future and stressed about the challenges we face in day to day life...hope somehow our life gets on track again.❤️❤️
im 19 and i suffer from this, i got it when i was 15, and ive struggled with talking so much that ive become extremely silent, i used to talk a lot to people, but now i almost never speak out loud. My voice suddenly breaks and is fades when i say words that include the letters "a,e,i,o,u,m,h" so its hard for me to say "hello" because the h,e and o will dissapear and people just hear wierd creaky noises while the two "ll" are perfectly sounding... i am so embarressed, i cant read out loud in school, cant speak normally in everyday conversations with my friends or family sometimes, cant talk normally on the phone, and this has given me SO much anxiety, i feel like im mute sometimes. i dont know what to do with my voice, i used to love singing but i cannot sing anymore or talk, i hate it so much
@carl0telli -I know it's hard. I struggle too with "h", "m" and sometimes just saying my name which starts with "m". I learned to practice with a close family member who understands my struggles with everyday conversations. When I'm alone, I think of questions folks might ask me, i.e. "What's your name?" or "How can I help you?" I also call stores just to ask their store hours or if they carry a certain product for phone practice. This helps me a lot! I exhale for like 2 seconds before I speak and exhale softly after speaking 4 or 5 words for good breath support during conversation. Don't give up! You're so young. The worst thing you can do is to stop talking. That's when you will feel hopeless! Keep talking and feel happy when you speak! Whenever you feel nervous or anxious, take a deep breath, raise your pitch a little whereby your voice feels comfortable and you can hear your words as you speak. Lastly, Pray and ask Jesus Christ to help you. He certainly helps me everyday. I hope these tips help you. Your speech will get better just don't quit! God bless you!
Dear. I posted my reply separately but I will do it again just to make sure you get it. I was diagnosed with Vocal Cord Dystonia 7 years ago. Want to share my story in the hope it could potentially help you (I realize each case is unique). I am not sure about the cause but I did overwork myself for 20 years. Way overdid it with the amount of stress. One day I woke up with a very sharp pain in my throat. Like a small blade or needle was stuck in my throat. That's how it started. The sharp pain. It didn't go away. Then I started getting pain alongside my throat running up all the way along my left neck to my ear and underneath my teeth. That bad was bad. I had to stretch my left arm constantly even while driving to manage. I still have that sometime. At the same time I lost my voice. Could not talk a word. Only whisper with great effort and great pain. I thought it was a cold but it lasted for weeks. Then months. I went to Kaiser Neurology. First neurologist couldn't find anything wrong. Second neurologist was more specialized in vocal cords. I had to go to the hospital and they inspected my vocal cords. I couldn't talk so it was very difficult to explain to them what was going on so my parents joined and they were able to talk for me. The second neurologist said that I had the vocal cords of an 80 year old man although I was only 43 years old. She couldn't understand why so she sent me to another even more specialized neurologist. He found out I had vocal cord dystonia. He started doing botox injections every 3 months. It is very expensive but I have my Kaiser insurance. So I went every 3 months. Results were minimal at first. But I kept going for two years. Maybe longer. They also gave me a muscle relaxer called Tizanidine. Slowly my pain started to subside. Slowly I was able to talk again. 7 years later and I can speak but not like I used to. Sometimes it still hurts to talk. Sometimes my voice tonality goes off sometimes (voice pitch goes too high). But it is much better than when it started. I have found that with stress the symptoms return. So I had to change my life. I cannot work as much as before. My wife of 22 years left me. She said I was making it up and couldn't accept I couldn't do my job as before. It affects not just your voice but also how you see things. I became more spiritual. I slowed down. I am still dealing with it but I can manage now. My wish is for you to be healed. Make sure to relax a lot. Meditate. Go to hot springs. Get massages. Do breathing exercises. Start working out or go for daily walks/hikes in nature. Swim. Try to relax your muscles by stretching them. Especially neck and shoulders. Stretching is so important. If you have any questions please feel free to ask. Praying you may recover. EDIT: I also had serious problems swallowing food during this time and always had to drink water while eating. I almost choked and couldn't breathe twice... I thought that was it but thankfully I had done meditation practices and was able to come out of it.
I wish there were more advancement in medicine to help treat Spasmodic dysphonia other than temporary botox injections. It really is a limiting condition that affects all parts of life.
@@LL-yl8zw was that spasmodic dysphonia...how could u recover... everywhere it says u don't have permanent solution for it... please share how u were able to overcome such a rare disorder
I totally identify with this. Sometimes people think I’m nervous or crying. I have had it for 10 years and I am so tired of it. I cannot work with the public anymore. Some people were kind and suggested remedies, others were not so kind. It’s tough.
That’s me! People think I’m either sick or feeling emotional because they think I’m about to cry, especially over the phone. I’m so grateful I can text people now instead of talk over the phone, but certain bank services still need me to verify details and I feel so stressed having to say my card details and numbers since they can’t get what I say.
Wow, I've been trying to figure this out for a few years now! finally onto something. It's really bothering sometimes... when you have to put major effort just for the voice to come out. people can misunderstand you a lot. it also takes the joy out of some activities. after all, communication is so important. right now my voice is ok but i don't want it to degrade further. On the bright side, while looking for answers I learned a lot about correcting & improving the talking/breathing technique
My voice went a year after spinal cord surgery at c3 to relieve pressure on my spinal cord. It started by sounding like I had laryngitis. And got progressively worse over time. It's been close to 10 years now with this voice condition which is frustrating at best. People don't realize how much air it takes to talk. I can't just jump into conversations anymore because I don't know what kind of sounds are going to come out. I can't sing anymore not even just for fun. It's a strange disability that almost caused me my job as a call center rep. I got moved into a position that I'm not constantly talking. Bottom line it sucks...
@@adityakardile9029 that is what the ENT called it. Caused by trauma, which was the surgery to repair all my nerves but some of the nerves that are around one vocal cord were paralyzed. BUT I can walk! So if spasmodic dysphonia is the worst of it, I'm doing fine🙂
@@adityakardile9029 I'm now 63 I've been dealing with this for 10 years now. I've gone thru various therapies and to be honest nothing helped with the spasms until I tried cannibis. It has relaxed my neck muscles and my vocals cords to the point of being able to eat without worry of a spasm choking me out. But to be able to spontaneously speak I can't. I have to breath and "find" my voice. But then again I never know what sounds will come out! I surprise my self with my goose honk I call it.
@@s.peters2866 10 years is a huge span of time..... I'm just 22 now and yes it's getting worse day by day.... I also have tried many therapies, medicines but no effect other tham side effects..... I'm counting on botox right now...hope it will help me getting my voice back... I'm at a stage even if I'm able to speak normally for a day I would be the most happiest person on this planet 😅
My name is Sita, from Hyderabad, India. I have been suffering from SD for the last one year. Initially went for speech therapy. For some time it was good. Again problem came. Presently taking Botox on Vocal cord. Till now took four times. After two weeks voice will come. 80% approx. One week back I took the injection. Still voice has not come.
are you emotionally stressed?, if you are, thats the cause why your voice keeps on its problem.. try to relax..too much thinking can cause your voice hoarse.. its just from my own experience.. try to look for neurologist, thats what my doctor suggested to me.
me, I took a vacation where no one could stress me out, and thats the big help for me.. my voice came back fast.. after 1year of hoarseness, its finally back.. again its from my own experience..but just try to do what I did.
@Pallavi my doctor also suggested to go see a neurological doctor, and also go and see a speech theraphist, or go to rehab especialist for counselling, but beacuse of the pandemic, I did'nt make it.. tnx to the spasmodic dysphonia related videos, I got to know some tips on how to exercise my voice to reduce my muscle spasm.. try to check them out also, it could be a big help..
I've had two surgeries on my vocal chords to remove a cyst like bump on them that was causing my voice to be rough. That solved that problem..Now fast forward 20 years later and I've noticed that when I'm working on a home project for more than a half hour by myself my voice is strained like and less strong once I start to to talk to someone after being silent for a while...This doesn't happen to me in the morning after sleeping all night.
Unlock Method This only applies to EZ-IN difficulties. AT difficulty is unlocked by getting S grade or above on IN difficulty. 1. Clear 尊師 ～The Guru～ on the difficulty you are trying to unlock. 2. On the same difficulty, either •Full Combo NYA!!!, JunXion Between Life And Death(VIP Mix) or cryout •Clear Reimei or 尊師 ～The Guru～, getting 6 or fewer Bad/Miss judgements When doing either of the above methods, you can retry and switch songs as many times as you like. Doing this will trigger a cutscene that starts Spasmodic at the end. Getting a C grade or higher will unlock it on that difficulty (Phigros game)
I was diagnosed with Vocal Cord Dystonia 7 years ago. Want to share my story in the hope it could potentially help you (I realize each case is unique). I am not sure about the cause but I did overwork myself for 20 years. Way overdid it with the amount of stress. One day I woke up with a very sharp pain in my throat. Like a small blade or needle was stuck in my throat. That's how it started. The sharp pain. It didn't go away. Then I started getting pain alongside my throat running up all the way along my left neck to my ear and underneath my teeth. That bad was bad. I had to stretch my left arm constantly even while driving to manage. I still have that sometime. At the same time I lost my voice. Could not talk a word. Only whisper with great effort and great pain. I thought it was a cold but it lasted for weeks. Then months. I went to Kaiser Neurology. First neurologist couldn't find anything wrong. Second neurologist was more specialized in vocal cords. I had to go to the hospital and they inspected my vocal cords. I couldn't talk so it was very difficult to explain to them what was going on so my parents joined and they were able to talk for me. The second neurologist said that I had the vocal cords of an 80 year old man although I was only 43 years old. She couldn't understand why so she sent me to another even more specialized neurologist. He found out I had vocal cord dystonia. He started doing botox injections every 3 months. It is very expensive but I have my Kaiser insurance. So I went every 3 months. Results were minimal at first. But I kept going for two years. Maybe longer. They also gave me a muscle relaxer called Tizanidine. Slowly my pain started to subside. Slowly I was able to talk again. 7 years later and I can speak but not like I used to. Sometimes it still hurts to talk. Sometimes my voice tonality goes off sometimes (voice pitch goes too high). But it is much better than when it started. I have found that with stress the symptoms return. So I had to change my life. I cannot work as much as before. My wife of 22 years left me. She said I was making it up and couldn't accept I couldn't do my job as before. It affects not just your voice but also how you see things. I became more spiritual. I slowed down. I am still dealing with it but I can manage now. My wish is for you to be healed. Make sure to relax a lot. Meditate. Go to hot springs. Get massages. Do breathing exercises. Start working out or go for daily walks/hikes in nature. Swim. Try to relax your muscles by stretching them. Especially neck and shoulders. Stretching is so important. If you have any questions please feel free to ask. Praying you may recover. EDIT: I also had serious problems swallowing food during this time and always had to drink water while eating. I almost choked and couldn't breathe twice... I thought that was it but thankfully I had done meditation practices and was able to come out of it.
Thank you for sharing your story. Your resilience and journey through Vocal Cord Dystonia are truly inspiring, and your advice on managing stress and incorporating relaxation techniques is invaluable. Wishing you continued healing and strength ❤️.
This is almost exactly my story, I work taking calls all day from home, suddenly in jan 2024 I had a sharp pain in my neck, my right side mainly. Lost my voice and since then its been 6 months and I can only recover partially because as soon as I am back to work I last 2 days then done the pain the dryness in the throat no matter how much water I drink, literally non stop water, and it travels to my ear as well where it begins episodes of loud ringing. Both ENTs cant see anything like nodules on my vocal cords which makes it harder to convince them. It's changing my life at 40. I am a stressed individual by nature, so I have to try to control that. But how can I when I can't work and how many medical leaves can I take before being let go.
@@agnosticmanquestionsall2409 Thank you for sharing and I understand what you are going through because I recognize all the symptoms you describe. You will have lots of people who will not understand what you are dealing with. I am sure you must have been working very hard for a long time under a lot of stress. Probably to provide for your family? Eventually your body says no. Where to go from here: 1) Stress is a trigger and it will always remain a trigger 2) Limit stress; easier said than done 3) Do Yoga or Stretching; Stretching is INCREDIBLY IMPORTANT which is why I mention Yoga 4) You have to make some important life style changes; less financial pressure and hope your partner is understanding (mine filed for divorce). 5) Go to another ENT and ask them if you have vocal cord paralysis (a condition that causes the loss of control of the muscles that control the voice.) 6) Go to a neurologist who specialized in Dystonia (not all of them are knowledgeable). They may need to give you muscle relaxers or apply botox injections in your neck (this is very tricky so it can only be done by a specialized neurologist). I am in the Bay Area so if you need a reference for a neurologist let me know. Good luck brother. You will make it through. Life always changes. But you will make it through. I promise.
@@Ekam-Sat Thank you so much, I saved your comment as a text file on my computer and will do my best to try those things. I am sorry your partner left you in the worst of times, and not believing you mustve hurt. But you are a good person and its their loss, they will get screwed by someone else and learn your value.
![Multiple Sclerosis Diagnostic Criteria [Neurologist Explains]](http://i.ytimg.com/vi/Ixns85V95-Y/mqdefault.jpg)
@Pallavi after I learn from my doctor that my condition was neurological connected, I stay focus more on my mental health, I should say, I focused more on the possitive sides of my life, instead of worrying too much about my condition.
I noticed that everytime I am happy and more relax, my voice sounds good, but when I think too much and worry about everything especially when it comes to my problem, my voice sounds so bad..
It maybe sounds weird, but it is true, I noticed that I have voice when I am happy, I can even sing, but can't talk properly.
Voice rest can be a big help also, so minimize talking.
This is just based on my personal experience..
Please contact Steve Zarren from new earth I got my voice back in 6 months
Thanks everyone for their input. I wish more people understood what we experience I have mixed SD complicated by surgery. I appreciate that in times of stress my voice is affected as my job which involves hours of speaking a day. What I would like to see is a move away from saying "relax and you will be better", "it's all in your head". Each person has their own story.
I can relate to this... people hardly understand our situation... the first suggestion they give is seek a doctor for help... where I have almost tried every single specialist... that's all they could advise....not bothered about people now....just worried about the future and stressed about the challenges we face in day to day life...hope somehow our life gets on track again.❤️❤️
You are right. People don't understand and in some cases are insensitive. Since I have this disease my life has been horrible.
@@sheilareinoso1432 I am sorry you are feeling that.
Yes most doctor says this even though the vees is abnormal very slight
im 19 and i suffer from this, i got it when i was 15, and ive struggled with talking so much that ive become extremely silent, i used to talk a lot to people, but now i almost never speak out loud. My voice suddenly breaks and is fades when i say words that include the letters "a,e,i,o,u,m,h" so its hard for me to say "hello" because the h,e and o will dissapear and people just hear wierd creaky noises while the two "ll" are perfectly sounding... i am so embarressed, i cant read out loud in school, cant speak normally in everyday conversations with my friends or family sometimes, cant talk normally on the phone, and this has given me SO much anxiety, i feel like im mute sometimes. i dont know what to do with my voice, i used to love singing but i cannot sing anymore or talk, i hate it so much
Sorry about the condition, please stay strong.
@carl0telli -I know it's hard. I struggle too with "h", "m" and sometimes just saying my name which starts with "m". I learned to practice with a close family member who understands my struggles with everyday conversations. When I'm alone, I think of questions folks might ask me, i.e. "What's your name?" or "How can I help you?" I also call stores just to ask their store hours or if they carry a certain product for phone practice. This helps me a lot! I exhale for like 2 seconds before I speak and exhale softly after speaking 4 or 5 words for good breath support during conversation. Don't give up! You're so young. The worst thing you can do is to stop talking. That's when you will feel hopeless! Keep talking and feel happy when you speak! Whenever you feel nervous or anxious, take a deep breath, raise your pitch a little whereby your voice feels comfortable and you can hear your words as you speak. Lastly, Pray and ask Jesus Christ to help you. He certainly helps me everyday. I hope these tips help you. Your speech will get better just don't quit! God bless you!
Hey I m suffering from this..did u consulted any doctor? Is voice therapy can help?
Dear. I posted my reply separately but I will do it again just to make sure you get it. I was diagnosed with Vocal Cord Dystonia 7 years ago. Want to share my story in the hope it could potentially help you (I realize each case is unique). I am not sure about the cause but I did overwork myself for 20 years. Way overdid it with the amount of stress. One day I woke up with a very sharp pain in my throat. Like a small blade or needle was stuck in my throat. That's how it started. The sharp pain. It didn't go away. Then I started getting pain alongside my throat running up all the way along my left neck to my ear and underneath my teeth. That bad was bad. I had to stretch my left arm constantly even while driving to manage. I still have that sometime. At the same time I lost my voice. Could not talk a word. Only whisper with great effort and great pain. I thought it was a cold but it lasted for weeks. Then months. I went to Kaiser Neurology. First neurologist couldn't find anything wrong. Second neurologist was more specialized in vocal cords. I had to go to the hospital and they inspected my vocal cords. I couldn't talk so it was very difficult to explain to them what was going on so my parents joined and they were able to talk for me. The second neurologist said that I had the vocal cords of an 80 year old man although I was only 43 years old. She couldn't understand why so she sent me to another even more specialized neurologist. He found out I had vocal cord dystonia. He started doing botox injections every 3 months. It is very expensive but I have my Kaiser insurance. So I went every 3 months. Results were minimal at first. But I kept going for two years. Maybe longer. They also gave me a muscle relaxer called Tizanidine. Slowly my pain started to subside. Slowly I was able to talk again. 7 years later and I can speak but not like I used to. Sometimes it still hurts to talk. Sometimes my voice tonality goes off sometimes (voice pitch goes too high). But it is much better than when it started. I have found that with stress the symptoms return. So I had to change my life. I cannot work as much as before. My wife of 22 years left me. She said I was making it up and couldn't accept I couldn't do my job as before. It affects not just your voice but also how you see things. I became more spiritual. I slowed down. I am still dealing with it but I can manage now. My wish is for you to be healed. Make sure to relax a lot. Meditate. Go to hot springs. Get massages. Do breathing exercises. Start working out or go for daily walks/hikes in nature. Swim. Try to relax your muscles by stretching them. Especially neck and shoulders. Stretching is so important. If you have any questions please feel free to ask. Praying you may recover.
EDIT: I also had serious problems swallowing food during this time and always had to drink water while eating. I almost choked and couldn't breathe twice... I thought that was it but thankfully I had done meditation practices and was able to come out of it.
I wish there were more advancement in medicine to help treat Spasmodic dysphonia other than temporary botox injections. It really is a limiting condition that affects all parts of life.
@Jane Min 100% agree, I experienced this voice disorder lastyear, I'm glad I recovered fast.. 😀
@@LL-yl8zw How did you do that? o.o Please tell.
@@LL-yl8zw was that spasmodic dysphonia...how could u recover... everywhere it says u don't have permanent solution for it... please share how u were able to overcome such a rare disorder
@@LL-yl8zw hi can you help me out. I have been struggling for the last one year.
@@sitalakshmi9015 me too..it's been a year almost...and it sucks....I can't attend calls...and now it's getting worse day by day
Thank u for sharing this video! I have SD and am so tired of people constantly asking “are u sick”… I just shared this to my feed!!
I totally identify with this. Sometimes people think I’m nervous or crying. I have had it for 10 years and I am so tired of it. I cannot work with the public anymore. Some people were kind and suggested remedies, others were not so kind. It’s tough.
That’s me! People think I’m either sick or feeling emotional because they think I’m about to cry, especially over the phone. I’m so grateful I can text people now instead of talk over the phone, but certain bank services still need me to verify details and I feel so stressed having to say my card details and numbers since they can’t get what I say.
Any treatment for this?
Wow, I've been trying to figure this out for a few years now! finally onto something.
It's really bothering sometimes... when you have to put major effort just for the voice to come out. people can misunderstand you a lot. it also takes the joy out of some activities. after all, communication is so important. right now my voice is ok but i don't want it to degrade further.
On the bright side, while looking for answers I learned a lot about correcting & improving the talking/breathing technique
Magnesium can help relax muscle tension...Has anyone tried it ? Powdered Magnesium for UIFY singer Stephen Sanchez please
My voice went a year after spinal cord surgery at c3 to relieve pressure on my spinal cord. It started by sounding like I had laryngitis. And got progressively worse over time. It's been close to 10 years now with this voice condition which is frustrating at best. People don't realize how much air it takes to talk. I can't just jump into conversations anymore because I don't know what kind of sounds are going to come out. I can't sing anymore not even just for fun. It's a strange disability that almost caused me my job as a call center rep. I got moved into a position that I'm not constantly talking. Bottom line it sucks...
do u have spasmodic dysphonia?
@@adityakardile9029 that is what the ENT called it. Caused by trauma, which was the surgery to repair all my nerves but some of the nerves that are around one vocal cord were paralyzed. BUT I can walk! So if spasmodic dysphonia is the worst of it, I'm doing fine🙂
@@s.peters2866 what's ur age?
@@adityakardile9029 I'm now 63 I've been dealing with this for 10 years now. I've gone thru various therapies and to be honest nothing helped with the spasms until I tried cannibis. It has relaxed my neck muscles and my vocals cords to the point of being able to eat without worry of a spasm choking me out. But to be able to spontaneously speak I can't. I have to breath and "find" my voice. But then again I never know what sounds will come out! I surprise my self with my goose honk I call it.
@@s.peters2866 10 years is a huge span of time..... I'm just 22 now and yes it's getting worse day by day.... I also have tried many therapies, medicines but no effect other tham side effects..... I'm counting on botox right now...hope it will help me getting my voice back... I'm at a stage even if I'm able to speak normally for a day I would be the most happiest person on this planet 😅
My name is Sita, from Hyderabad, India. I have been suffering from SD for the last one year. Initially went for speech therapy. For some time it was good. Again problem came. Presently taking Botox on Vocal cord. Till now took four times. After two weeks voice will come. 80% approx.
One week back I took the injection. Still voice has not come.
are you emotionally stressed?, if you are, thats the cause why your voice keeps on its problem.. try to relax..too much thinking can cause your voice hoarse.. its just from my own experience.. try to look for neurologist, thats what my doctor suggested to me.
me, I took a vacation where no one could stress me out, and thats the big help for me.. my voice came back fast.. after 1year of hoarseness, its finally back..
again its from my own experience..but just try to do what I did.
@ Sita Lakshmi hows your voice now?
Please contact Steve Zarren from new earth I got my voice back in 6 months
Me too. I have been suffering since November 2020
@Pallavi my doctor also suggested to go see a neurological doctor, and also go and see a speech theraphist, or go to rehab especialist for counselling, but beacuse of the pandemic, I did'nt make it..
tnx to the spasmodic dysphonia related videos, I got to know some tips on how to exercise my voice to reduce my muscle spasm..
try to check them out also, it could be a big help..
how's your voice now
@Aditya Kardile
my voice is fine now
@@LL-yl8zw didn't they told u that u need to take botox injection??
@@LL-yl8zw and please could u tell me which exercises u were doing
@Aditya Kardile
my doctor suggested that, but he said its no guarantee that my voice will be back, so I did not take that suggestion..
I've had two surgeries on my vocal chords to remove a cyst like bump on them that was causing my voice to be rough. That solved that problem..Now fast forward 20 years later and I've noticed that when I'm working on a home project for more than a half hour by myself my voice is strained like and less strong once I start to to talk to someone after being silent for a while...This doesn't happen to me in the morning after sleeping all night.
Unlock Method
This only applies to EZ-IN difficulties. AT difficulty is unlocked by getting S grade or above on IN difficulty.
1. Clear 尊師 ～The Guru～ on the difficulty you are trying to unlock.
2. On the same difficulty, either
•Full Combo NYA!!!, JunXion Between Life And Death(VIP Mix) or cryout
•Clear Reimei or 尊師 ～The Guru～, getting
6 or fewer Bad/Miss judgements
When doing either of the above methods, you can retry and switch songs as many times as you like.
Doing this will trigger a cutscene that starts Spasmodic at the end. Getting a C grade or higher will unlock it on that difficulty
(Phigros game)
I was diagnosed with Vocal Cord Dystonia 7 years ago. Want to share my story in the hope it could potentially help you (I realize each case is unique). I am not sure about the cause but I did overwork myself for 20 years. Way overdid it with the amount of stress. One day I woke up with a very sharp pain in my throat. Like a small blade or needle was stuck in my throat. That's how it started. The sharp pain. It didn't go away. Then I started getting pain alongside my throat running up all the way along my left neck to my ear and underneath my teeth. That bad was bad. I had to stretch my left arm constantly even while driving to manage. I still have that sometime. At the same time I lost my voice. Could not talk a word. Only whisper with great effort and great pain. I thought it was a cold but it lasted for weeks. Then months. I went to Kaiser Neurology. First neurologist couldn't find anything wrong. Second neurologist was more specialized in vocal cords. I had to go to the hospital and they inspected my vocal cords. I couldn't talk so it was very difficult to explain to them what was going on so my parents joined and they were able to talk for me. The second neurologist said that I had the vocal cords of an 80 year old man although I was only 43 years old. She couldn't understand why so she sent me to another even more specialized neurologist. He found out I had vocal cord dystonia. He started doing botox injections every 3 months. It is very expensive but I have my Kaiser insurance. So I went every 3 months. Results were minimal at first. But I kept going for two years. Maybe longer. They also gave me a muscle relaxer called Tizanidine. Slowly my pain started to subside. Slowly I was able to talk again. 7 years later and I can speak but not like I used to. Sometimes it still hurts to talk. Sometimes my voice tonality goes off sometimes (voice pitch goes too high). But it is much better than when it started. I have found that with stress the symptoms return. So I had to change my life. I cannot work as much as before. My wife of 22 years left me. She said I was making it up and couldn't accept I couldn't do my job as before. It affects not just your voice but also how you see things. I became more spiritual. I slowed down. I am still dealing with it but I can manage now. My wish is for you to be healed. Make sure to relax a lot. Meditate. Go to hot springs. Get massages. Do breathing exercises. Start working out or go for daily walks/hikes in nature. Swim. Try to relax your muscles by stretching them. Especially neck and shoulders. Stretching is so important. If you have any questions please feel free to ask. Praying you may recover.
EDIT: I also had serious problems swallowing food during this time and always had to drink water while eating. I almost choked and couldn't breathe twice... I thought that was it but thankfully I had done meditation practices and was able to come out of it.
Thank you for sharing your story. Your resilience and journey through Vocal Cord Dystonia are truly inspiring, and your advice on managing stress and incorporating relaxation techniques is invaluable. Wishing you continued healing and strength ❤️.
@@MedicalCentric Thank you and many blessings for a happy, healthy and good life.
This is almost exactly my story, I work taking calls all day from home, suddenly in jan 2024 I had a sharp pain in my neck, my right side mainly. Lost my voice and since then its been 6 months and I can only recover partially because as soon as I am back to work I last 2 days then done the pain the dryness in the throat no matter how much water I drink, literally non stop water, and it travels to my ear as well where it begins episodes of loud ringing. Both ENTs cant see anything like nodules on my vocal cords which makes it harder to convince them. It's changing my life at 40. I am a stressed individual by nature, so I have to try to control that. But how can I when I can't work and how many medical leaves can I take before being let go.
@@agnosticmanquestionsall2409 Thank you for sharing and I understand what you are going through because I recognize all the symptoms you describe. You will have lots of people who will not understand what you are dealing with. I am sure you must have been working very hard for a long time under a lot of stress. Probably to provide for your family? Eventually your body says no. Where to go from here: 1) Stress is a trigger and it will always remain a trigger 2) Limit stress; easier said than done 3) Do Yoga or Stretching; Stretching is INCREDIBLY IMPORTANT which is why I mention Yoga 4) You have to make some important life style changes; less financial pressure and hope your partner is understanding (mine filed for divorce). 5) Go to another ENT and ask them if you have vocal cord paralysis (a condition that causes the loss of control of the muscles that control the voice.) 6) Go to a neurologist who specialized in Dystonia (not all of them are knowledgeable). They may need to give you muscle relaxers or apply botox injections in your neck (this is very tricky so it can only be done by a specialized neurologist). I am in the Bay Area so if you need a reference for a neurologist let me know. Good luck brother. You will make it through. Life always changes. But you will make it through. I promise.
@@Ekam-Sat Thank you so much, I saved your comment as a text file on my computer and will do my best to try those things. I am sorry your partner left you in the worst of times, and not believing you mustve hurt. But you are a good person and its their loss, they will get screwed by someone else and learn your value.
I had really bad tonsillitis when i was younger and was violently ill with it. I also started to notice change in my voice when i was pregnant
Mine happened during pregnancy as well!! What’s up with that!?!
Do you know if there exist a Facebook page dedicated to spasmodic disphonia where we could exchange on our experiments or something like that.
Recurrent nerve can cause dysphonie
I have abductor spasmodic dysphonia :(
Same
❤