Pancreatic Enzymes for Pancreatitis Mission: Cure Webinar
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- Опубліковано 3 лип 2024
- Should you take pancreatic enzymes? Do you have pancreatic insufficiency? How many should you take and when should you take them? Dr. Steven Freedman of Harvard Medical School answers these questions on Mission: Cure's webinar for pancreatitis patients and families. Find out more at mission-cure.org.
- Наука та технологія
After 2+years of having pain in the stomach, I'm happy to say I am pain-free after only 5 days on Creon. So many doctors 6 exactly found nothing. A friend had this med I borrowed one at lunch and on the very first dose I felt better. Thankful for finding out about this horrible disorder!
How are you doing now if I may ask are you still getting back pain or any pain? Do u eat normally and have normal stools, gaining weight?
Dr. Freedman is one of the few doctors that understands. He has an in depth article on EPI written with Dr. Struyvenberg that anyone with EPI should read. Another really helpful resource on EPI is the book Primal Pancreas.
I wish he saw children. 😢
It is great to hear an expert discuss these topics! Every GI dr should watch this and refer new patients to it. Beats being told, you have EPI, probably had it for a while, take 2 creon with meal, 1 with snack. See ya in 6 months!" Daughter is in hospital every other week, pain every day, so we need a little more help than that! Thank you Mission Cure and Dr Freedman!
This is exactly what my doctor told me and am ann adult how about a child .He got up to leave as I was starting to ask him questions .He never discussed anything ...why he thinks I had gotten this low number on my enzymes .All my labs are horrible but he choose not to talk about them !!!! Am changing him .
@@byamukamaoliver966 Good luck with that. I have seen two pancreatitis specialists. Got the same stuff you experienced with your GI specialist. I am 85 and I think they all just want me to go somewhere else to die. Mine did say there was no cure for my problem. Never used the term Chronic pancreatitis but I had already read all that on the internet. Told me to Take one of these Creon capsules with meals and do a telephone med appointment in six months. Given up on them and watch videos like this to treat myself. Still can't regain the 30 lbs I lost but at least stable at 155/160.
What type and location of pain does she experience?
This has added so much to me being able to deal with this fun. So helpful. Thank you for posting.
That was a very interesting and useful presentation. Thanks very much.
Awesome webinar and very informative, please do more webinars with Dr Freedman
This is excellent
I suffered for 22 years. So grateful for enzymes❤ This video sheds a lot of light on how this happened.
57:24 crucial info
I just started Creon Dr 2400 units
I have Chronic Pancreatitis and take Creon.
I developed pancreatitis from checkpoint inhibitors. Adding digestive enzymes really has helped reduce prednisone. I will hopefully get off prednisone all together!
I have been off prednisone for a month and pancreas appears to be doing well! Enzymes made a big difference!
Do plant bass enzyme work . Thanks
According to Dr. Freedman, the over-the-counter enzymes do not have reliable dosages so they can not be relied on to work.
What about absorbing medications like paracetamol, fexofenadine, antidepressants, gabapentin etc. Do these absorbs like normal or do these not work as effectively without the enzymes?
Chronic pancreatitis and EPI can affect how well other medications are absorbed by your body. We recommend talking to your doctor about the specific medications you take and whether they should be taken with enzymes during meal time.
Any information on the clinical trials for non-pork enzymes?
I was going to ask the same thing.
Great question! The Cystic Fibrosis Foundation has been exploring the development of non-pork enzymes. www.cff.org/node/721
I have severe epi and just this week showing mild atrophy in tail and tiny bit on the body of it. I'm taking 6-7 24k creon and still having decently formed but bad steatorhea. Bit better than when I was on 4 pills per meal. I cant be that I need 11-12 per meal, that can't be right? No pains, no sibo, bother gut issues noticed.
11 months and not 1 normal BM so it's very disheartening.
Personally I would see a specialist not just a doctor, that is a huge dose I take 2 before every meal, im not too bad but have severe pain with gas problems. Maybe there is something else going on besides epi, Ive heard you can also have colitis , irritable bowel syndrome and crohns with epi. I really hope things get better for you.
@@traceystone8932 Thank you. I've been tested for everything. No issues found besides mild CP and EPI. I know of people who take 200-250k per meal who are also severe epi. A healthy pacreas makes between 500k-700k pancreatic juices so taking 150k lipase isn't crazy.
I know people who have severe and take 3 or 4 and they are doing well. I have no pains, no diarrhea or funny colours showing. I can eat any foods with no adverse reactions like a lot of people i speak with in a large forum. .
My GI has run every test I've asked for and my nutritionist can't suggest anything as no symptoms matched to food issues. I eat a varied diet but no change. She thought low fodmap but as its only greasy then it's definately an issue with enzymes.
Will experiment with ox bile or other digestive aids soon but I feel like they have run out of things to do or try. On the epi scale of issues I'm probably 2/10 and some poor folks struggle to leave the house so I shouldn't complain. I just can't seem to break down the fat 😩
Hello, I have light pancreas insufficient (121) by Stuhltet. I have Sibo also ,und too much lower abdomen pain also stomach pain but not too much. I can’t good digest fat and protein. Should I take Enzymes and what type of dose? Thanks 🙏
Hi there 👋 We're sorry to hear you're struggling with EPI and SIBO. The treatment for EPI is pancreatic enzyme replacement therapy, and we recommend speaking to your doctor about getting a prescription. Dosage can vary based on your body weight. Learn more about it here: mission-cure.org/exocrine-pancreatic-insufficiency/
My doctor said there was no reason for me to have EPI, but fecal matter asking with blood test is how he made the diagnoses! I've never had surgery why do I have this?
Pancreatitis is a common cause of EPI, so you may consider getting tested for it. We have a webinar that may be able to help: mission-cure.org/pancreatitis-diagnosis/
Anything on atrophy?
We haven't had a webinar topic on this yet, but will consider it for the future. Thank you for your suggestion!
Whats the Max time you can take PERTs before a meal? 5mins or 20mins or must be first bite meal?
Check out our dosing video here: mission-cure.org/exocrine-pancreatic-insufficiency/dosing-pancreatic-enzymes/
The prescribed pancreas enzymes im taking are creating pancreatitis.
Traumatic pancreatic insult. Pleases address blunt injuries to retro peritoneal area.
What if I have tried so many pancreatic porcine enzymes and I have side effects from them and the only options are now OTC pancreatic vegan enzymes ? Also is this normal ( I have severe EPI lab 86 and chronic pancreatitis ) that before diagnosis I did not have runny stools but just constipation won’t enzymes constipate me even more ?
We encourage you to visit our PERT webpage (mission-cure.org/managing-pancreatitis/pancreatic-enzyme-replacement-therapy/ ) to learn more about enzyme therapy options. Currently, there are no FDA-approved vegan enzymes available for treating EPI. It's important to always consult with your healthcare provider or gastroenterologist to explore the most suitable and effective treatment options for your specific condition.
Mine is not lack of lipase or amelyse.. Its way up high like it reach to 18000 lipase and amelyse is 3500 up. So what is that?
I do have the same problem without any symptoms. I don't know why all Dr. talk about insulin when it comes to the pancreas or some times when those enzymes are low. I was told this issue 25 years ago and the last one around 13 years ago. I live normal and very health conscious.
I read many books about health. Unfortunately, no one talks that much about it. Even those they talk about pancreatitis, not in detail as they talk about insulin. Years ago, I read somewhere that it can be genetics. My mom a very high number too, but a perfectly healthy person even in her 90s. After I read that my mind doesn't wander that much.
I hope this will help.
Good luck,
I hope you get an answer to your health concern. There isn't much information available. My amylase and lipase are not that high but labs say numbers of 153 and 127 are too high (I don't understand)
High enzyme levels can indicate pancreatitis. The pancreas cells release their enzymes when they are damaged and you get those high numbers.
Any answers on your labs or what you have? Are your numbers still high?
@@butubuta what were you told 25 years ago? To take the dig enzymes, that your stool test showed definitive EPI? I had been having chronic diarrhea and nausea every day. They tested my stool which showed my own dig enzymes weren't working. Yet, I didn't lose weight, I gained weight dur8ng the past 2-3 months. All other persons seemed to have list weight due to malabsorption. Thank you for sharing you've lived with this for a while and that your mother did I to her 90's. My mom is 87 and 3 of my siblings deal with same type of digestive issues I do. Hereditary, I think.
Hello my fecal elastase numbers came back below 50 and low ph level is that considered severe because the doc only prescribed two with a meal and one with a snack for 36000 creon should I be taking more because symptoms of gas, bloating and diarrhea really had not improved much
We recommend talking to your doctor about adjusting your dosage if symptoms continue. For more information on dosing PERT, please visit: mission-cure.org/managing-pancreatitis/pancreatic-enzyme-replacement-therapy/
---Your numbers are like mine. Same prescribed dosage. Simply not enough. Finally had to take four of the 36000 with a regular meal. Does anyone else take a comparable dosage?
Is morning bloating of stomach normal for this disease? I always wake up with a swollen sore abdomen in the morning and so much inflammation in the upper part of the stomach.
Bloating can be a symptom of pancreatitis and EPI. However, something else may be going on. We recommend speaking with your doctor about any symptoms to better understand the underlying cause.
Has anyone here ever been told they have epi, and yet, never lost weight in the year prior...but instead had gained weight?
Yes!!!me
Yes unfortunately I have a fecal elastase of 140 but am severely obese. I wish I could loose weight as it would help me with my other chronic conditions but no such luck for me.