Devin has type 1 diabetes (recently diagnosed)
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- Опубліковано 19 жов 2024
- Devin was diagnosed with type 1 diabetes a few weeks ago and she's been struggling but Handling it so well!
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CAN I JUST SAY THANK YOU. Thank you for representing our community here and not being ashamed of it. Not a lot of people talk about it and we feel left out. Thank you for sharing this experience. T1D strong United!
Amen!!💯
Yes ❤
Hey Devin! I’m a nurse and I have non-diabetic hypoglycemia, meaning I just have low blood sugar in general without being diabetic… the thing we were taught in school and what I have found that works best for me when I notice my blood sugar is getting low is following the 15x15x15 rule. That’s 15g of carb, wait 15 min… if it’s still low 15g more of carb and so on until it comes back up. Grapes and peanut butter are great, but the quickest and easiest “carb” or sugar to bring it back up quicker for most is a fruit juice like orange juice or apple juice. Because it’s a liquid it doesn’t take as long to digest and will bring the sugar up quicker. Follow that with another carb like your grapes or I like to use crackers. Then follow it with a protein and/or fat like cheese, the peanut butter, and like olives or avocado (a healthy fat) to sustain the sugar once it comes back up so you don’t just spike and crash again.
Finally, I don’t know if your Dr. Or endocrinologist has made you aware, but type 1 diabetics require more insulin or just need to “carbo load” before exercising because it lowers you blood sugar faster since you don’t have a reserve of glucose to use when exercising like those who don’t have diabetes! Again, PLEASE talk to your Dr. Before trying anything drastic, but those are principles I have learned and use! Hope this helps!!
I came here to give the same advice about exercise!
This was super informative and helpful!!! Appreciate you so much!!!🥹🙌🏼
Pediatric nurse here. Just wanted to add to this, that when you start pump therapy, you will only use fast acting insulin. The pump will then deliver "basal" insulin the whole day (insted of the long acting), and when you work out, you can let the pump know, so that it will give less "basal" insulin to prevent low blood sugar when you work out. It's very smart :)
A little comment about the medtronic pump vs the omnipod / dexcom solution: It is really easy to disconnect the medtronic pump, so that you only have the little plaster on your skin when you for example take a shower, go swimming and so on. This is not possible with the omnipod, as it has to be stuck on you until you put a new one on (some people think it is quite bulky, and some don't mind it). In my hospital we use the medtronic from the age of 7 and up, and the omnipod for children under the age of 7, as it is more "compact" and the children don't have to think about any cord. Wishing you the best on your diabetic journey
RN here and I second this! 8oz, wait 15 min etc. Fruit juice (orange and apple are the best) to bring you back up to speed. THEN grapes and peanut butter to sustain your blood sugar. But for immediate relief please please please drink fruit juice. You do not want to pass out and hit your head! I too have non-diabetic hypoglycemia and I have passed out a few times and it's really scary waking up. I was lucky enough to have friends to catch me. If your ears ever go "deaf" sit down immediately! That's the last warning sign your body will give you before lights out. Reach out if you need any more advice. I actually made a pamphlet in nursing school if you would like me to send it to you. I taught high-schoolers as a project during my community health class.
great advice you have a caring soul
When you are seeing people with diabetes and having a positive outlook, it gives you really inspiration to fight this desease, i have type 2, im scared recently, feeling not my life not normal anymore, felt dizzy last two weeks and i had my no-carbs diet and couldn't sleep for 2 days
Hey Devin, I’m a nurse as well. Anytime my patients blood sugar gets low I give them like 4oz of apple juice a put a few like two sugar packets in it. That always helps a lot. You could try that. Hope this helpful. They always teach us in school cold and clammy eat some candy. Also love you guys, your wonderful people!
I have been a type 1 diabetic for 56 years and was diagnosed in 1967. Back then there no glucose monitors to check my blood sugar. I have been on an insulin pump for 21 years. One of our clients was on an insulin pump and recommended that I get one because of my crazy hours during tax season. My pup has been a life saver for me. I always kept glucose tablets in my desk. I now use a Freestyle Libre 2 as my CGM. Hang in there, Devin! With all of the medical advances, life with diabetes is so much easier.
I loved this ❤seeing the way you handle a potentially depressing diagnosis with so much grace is so inspiring and makes me feel that things that suck in life you still can smile through them. Also your sense of humor is amazing by the way.
My younger brother just found out he has diabetes, his is 56. He has to take a shot once a month, you are so strong Devin. Praying for you, you and my brother got this & everything will go great. Love you guys.
Hey Devin! I’ve been a type-one diabetic since 2012. It’s hard at first, and definitely some days in between, but you are handling it like a champ! I currently have the Omnipod and Dexcom G6, and I love it! For a cardio exercise, I would definitely eat a 15g carb snack before hand to help keep your blood sugar stable, and have some glucose tabs on hand! Keep kicking butt! 💙
Devin, you are such an inspiration. 🥰You’re strength shines so bright and you seem so down to earth. 🥺I pray that God will guide y’all through this different and sometimes difficult journey. Sending love from Greenwood SC. ♥️
I just want you to know, Devin, you are not in this alone. You have people here for you, people praying for you, and people here to support you in all of the hard times. We love y'all and will be praying!
I got diabetes when I was 15 & I’m now 23. I tried the pump with the cords and hated it so much so I went back to shots for 3 years. This year I finally agreed to get on the omnipod and it has truly changed my life! Highly recommend!! The features are amazing and I haven’t gone low in so long. It’s the closest thing to a pancreas that is out there right now! Praying for you!!
Hey Devin! my boyfriend is type 1 as well and he uses the omni pod. its a slow release insulin and it sticks on like the libre sensor but theres a small needle that distributes the insulin as needed. Each pod lasts a couple days. He loves it and it makes it easy to keep up with his active lifestyle. I greatly recommend asking your doctor about it, especially with a little one to chase around the house. best of luck figuring it all out, i know how stressful it can be but you got this!!!
My 5 year old daughter was diagnosed with t1d at 2 years old!! Its alot of work to get her on track but shes a trooper! Anyone who has t1d is strong! 🤘
i’ve been diabetic since i was 2 too!! i’m 27 now living a happy and healthy life! you and your daughter are so strong!! 🤍✨
Devin, I love seeing the way you trust in the Lord!! I'm sure there are so many emotions you've been experiencing with this diagnosis, but it is incredibly encouraging to see your grateful heart for a treatment plan. God is always good, always teaching us how to depend on Him! Thank you for being bold about your faith and showing the world how to rejoice in the Lord even amidst trials! 🙌❤️
Hi Devin! I just discovered your channel (first time viewer - first video and LOVE it!!). I've had Type 1 for just over ten years and actually just started my own UA-cam channel to help people with the experiences I've had! It is so encouraging to see you working through this too! I've struggled with lots of lows as well, and the biggest mistake I made was eating a "quick" food (think grapes) mixed with a fat or "slow" food (think peanut butter) when I'm low. I've found the quickest way to get rid of the horrible low feeling (and shaky hands) is to drink a juice. (Orange, pineapple, grape, or apple - whatever you like :) Otherwise, the fat slows down the sugar and keeps your body from being able to process it as quickly as it needs to. The juice is more immediate sugar and as soon as it enters your mouth it will start soaking into your cheeks, gums, lips, tongue, etc. and get the sugar into your blood MUCH quicker (I'm talking 5 minutes to bounce back rather than 15-20). I hope this helps and am so excited to be able to follow you!! Keep up the great work - management is hard, but you'll get the hang of it!
Thank you for representing the T1D community ♥️ I was diagnosed March 16, 2020 and was actually in DKA (diabetic keto acidosis) and was in the hospital for a week. My sugar was at 15. It was rough at first, but I use the Dexcom and the tandem and I LOVE IT!!! I used the Dexcom at first, and was very against the pump.. but it is so worth it once i gave it a chance. The tubing takes some time to get used to, and keeping it attached to you 24/7, but it has helped me stay in range so much better. Diabetes is trial and error; your endo will constantly change your ratios up. Lows are the WORST!! It’s hard to not over eat, otherwise it’s like a rollercoaster. The 15 min wait time seems like foreverrrr. And certain foods will make your sugars react to crazy! I’ve learned so much from my diagnosis
Always carry orange juice in your house!!! It brings your sugar up fast, trust me. And before you workout, you should eat something. Or if you know your going to workout, don’t take as much insulin before hand. The one thing I like about the pump is it tells you how much insulin is on board; so you don’t take as much insulin.
You got this!!!!!
I’ve been type 1 since I was 10. It’s a life long journey, I wish you all the love and luck!! 🫶🏻 my tip is eating a hard carb after your sweet snack while very low. For example like pretzels, crackers, toast with peanut butter will help stabilize after going so low. 😊
My sister has been a T1D for 39 years. Her go to when her blood sugar drops is definitely juice. I also have to add, Juvenile Diabetes Research Foundation is a wonderful organization that does diabetes research and aids young families in the transition after being diagnosed. I remember her going to a JDRF camp in Kerville, TX way back then. This allowed her to be around other children just like her. I realize you're older at your diagnosis, but wanted to make you aware of this amazing organization and highly recommend getting involved. I'm not sure what resources they could provide you, but the yearly walk they do gathers 100's of people in an area close to you (locations throughout the US) to come together and raise money for JDRF. It's also an opportunity to meet other people with T1D. Anyways, my prayers are with you and your new journey.
Hi Devin! Just like many others have suggested,
*glucose tablets *fruit juices. Grapes are fine but things that don’t have to be broken down and digested will do the trick must faster. If your blood sugar is less than 100 before exercise, eat a snack with about 15-30 grams of carbs. Don’t forget to wait about 15-20 minutes after your snack before you start exercising. You got this and God bless!
Hi Devin! I was diagnosed with Type One Diabetes when was 17! I’m now 23 and using the mini med system! Thank you for sharing your story❤️ T1D is a battle every single day, but it looks like you already have a lot of diabesties to help support you!
Hi Hunter and Devin. I've only watched a handful of your videos and shorts, but this video hits close to home. My wife is T1D for almost 22 years, and currently is a Certified Diabetic Educator/RN at a children's hospital in TX. She's taught adult education too during her nursing career. We actually know others that were either adult onset diagnosed or gestational turned T1D.
My advice to you is keep your head up and keep living your life. Don't let it limit you in what you want to do. It's hard at first, and those days where the lows (or highs) just don't want to go away are brutal. But having the best support system in your family around you will make you forget about it.
Also not sure what pump you are considering on getting, but I would suggest looking into all the options. Some just have a better fit to your personal feel than other. My wife wears omnipod (has for about 10 years now) and she loves it. Tandem is a really good option too.
Also feel free to look into "looping" or nightscout. They are closed loop therapy made by the public. Basically it's acting as an artificial pancreas and it's able to adjust your basal rates and also your bolus will be adjusted for ingested carbs and consideration for the onboard and previously absorbed insulin
Hi Devin! I am a type 1 Diabetic in New Zealand and its crazy to hear how much it costs for some insulin!
For your lows, I recommend a fruit juice box for a low and follow up with a complex carb such as a museli bar. I also find a spoonful of honey is a great instant boost. Before working out, i like to have a banana or museli bar which helps hold me through the exercise. You'll find your groove eventually and learn to read your body well. Theres so much to learn at the start, but your coping so well. xx
Yes, it's absolutely absurd. My wife works healthcare doing diabetic education, and the struggles she sees with kids and their families due to DME and insulin costs is brutally sad.
The American politicians, big pharma and insurance industries can kick rocks.
Sending prayers that you get it under control, it takes time and patience and figuring it all out. You got this. Love and prayers ❤❤❤🙏
Hi Devin! My daughter was diagnosed with type 1 when she was a sophomore in high school. She’s now 21. Her “honey moon phase” lasted a good year and then her numbers were all over the place, but we went in head strong and kept up with the daily challenges of diabetes. The amount of work it takes to manage diabetes is so tough and no one will ever truly understand. Numbers just play in your head constantly. I give much respect to type 1s who have it together❤️ But remember to give yourself grace, you’re not going to be in perfect range all the time and that’s ok. Surround yourself with positivity and I know that that’s probably the worst thing to say when you start feeling defeated, but keep pushing. It’s nice to see and hear type 1s helping each other because that’s what’s needed. If there’s one thing I could change from when my daughter was first diagnosed would be to seek therapy soon after because it doesn’t matter how strong of a person you are, this will change you completely. I hope that one day they will find a cure in our lifetime, until then keep this community support going, you’re amazing!
Some pointers and I know you’re in your 20s but, this is good to know especially when you have your child with you 😊:
when flying she has always preboarded with a plus 1
Six flags and amusement parks give you a flash pass. Bring a letter of diagnosis and you’re good to go. I believe you can have up to 2 guests with you. This is free of charge, not the admission but you won’t have to wait in those long lines anymore.
Love how authentic your videos are. Myself being a type 1 since I was in first grade, make sure you keep juice on hand. You have a new subscriber as well!!!
Hi Devin, I am diabetic as well. I have 2 tips: if you notice your sugar goes high after eating even when you do insulin, try giving your insulin 10-15 minutes before a meal. Another tip I have is to intentionally make your sugar a little bit high before exercising. This usually makes it so you dont drop as low. It will just help bring you back to normal range when you work out. Id also recommend the tandem t slim x2. This communicates with the dexcom G6. It has a closed loop system. Which means if it notices you blood sugar rising, it will try to micro adjust you by giving you a bolus automatically. Also if it notices you are going low, it will stop all insulin so that you do not drop further. You do still need to carb count but it is simple because you dont have to stick yourself. You just type your carbs into the pump and it boluses you. Your doctor will get it on the right settings for your carb ratio, so the pump does the math for you. Hope this helps some😊 also for me, I notice when my sugar is low, if it eat more of a simple carb (something more sugary) such as skittles or juice, this typically raises your sugar quicker. Just try to make sure you stay in the 15-20 carb range so you dont end up going high.
My boyfriends A1C is the best it’s ever been because of the dexcom and the t slim. It’s changed his health for the better. ❤ we especially love the programming feature that controls his BG while he sleeps. No more waking up with high sugars!
I had heard that drinking orange juice helps most to quickly to boost your sugars when they drop really low. Is this still correct?
@@larak5468all fruit juices will do that. I only use juice to treat my lows
I love y’all so much! Y’all are the sweetest! It makes my day when y’all post! I’ll be praying for you Devin, your so strong and i’m so sorry your having to go through this. 💗
“fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.”. Isaiah 41:10 💕
Hi y’all! I’m type 2 and I was diagnosed after my second baby. My sugar will drop and stay low for too long. I know the feelings you described - the sweating, the fatigue, the dizziness, the shaking. The lowest mine ever got was 42…it was scary. I also feel like I’ve been hit by a truck for a while after my sugar comes back up.
I’m praying for you and love your willingness to share your family! ❤
Melissa exact same thing with me and sometimes I feel so alone because neither my kids nor my boyfriend has diabetes I am the only one and I find myself crying about it and getting really depressed having to go through this alone
Hi Devin! 🤍
I have also learned that your insulin peaks at one hour after you take it. So if you’re working out at peak insulin time, your blood sugar has a higher possibility of going low. It starts working 15 minutes after you take it (you know this though!), peaks at an hour, and trends downward until 4 hours after you’ve given the dose. I hope that this helps! Much love from a fellow type one 🥹
Hey Devin I’m currently 17 and a senior I’ve had diabetes since I was 10 and I won’t lie it’s hard at first but it gets easier over time and I just wanted to let you know you got this and I’m praying for you that as time goes on it gets better for you 🤍
Hope you are safe and healthy love y’all ❤❤❤
Love you!!! Thanks so much!!!
You welcome 🙏 ❤
Love you too❤❤❤
I recently started watching your Channel, and I love your personality. My heart melted when I saw your daughter helping you cook, my little one is 5 now and she loves helping me in the kitchen it's great bonding time.
My mom was born with type 1 diabetes and my older sister was diagnosed at 14 and I was diagnosed at 7 years old and my baby sister was diagnosed at 19 years old so I understand and have felt every emotion and pain of living with type 1 diabetes you are a strong queen you got this 💙🦋I’m also on an insulin pump the tslim x2 and Dexcom g6 taking humalog insulin
Y’all have the cutest couple dynamic 😂❤️ I love how goofy you guys are but I can tell it’s just you guys being yourselves 💁🏼♀️
Hey girlie! I have type 1, diagnosed in college. There is such a huge learning curve when you are first diagnosed. There is so much to learn. If you ever want to chat I’m happy to answer any and all questions, I just hit my 15 year type 1 anniversary. Here’s a couple of bigger facts to know:
1. Type 1 is an autoimmune disease, you didn’t do anything to cause it and you couldn’t have prevented it. It’s not your fault.
2. Type 1 and type 2 are super duper different, as is the management.
3. When you go low glucose tabs, juice, candy, soda all helps get it back in range the fastest and the best. Super fast carbs are your friend in that case. Grapes and peanut butter are great to eat along with your juice, to help stabilize, but they’re much slower.
4. There is an app/book called “calories are king” that was super helpful for me when I was first diagnosed, now I have so many carbs memorized.
5. If you know you are going to work out after you eat, especially cardio, give yourself about half the amount of fast acting insulin. Cardio almost always makes me crash super low. It’s ok to be a little high before a work out, and before bed, especially if you struggle with lows.
6. If you’re ratio is 1/15 and you gave yourself 6 units of insulin that means you thought there was about 90 carbs in your dinner. I think there’s only about 45 carbs in one serving of pasta. Just helping with the new math, I know it’s super duper tricky. Always doing strange calculus in our heads.
7. Don’t feel bad for eating carbs or being high, your job is to be your pancreas and cover what you eat. Hunter’s pancreas doesn’t judge what he puts in his body, it just gives him enough insulin to cover what he ate. That’s what we do. So nothing is off limits, you just need to do your best guesstimation about how many carbs it has and give yourself a shot.
8. Oh and the tubeless pump you’re talking about is the Omni pod, that’s the one I had, it’s great. I used to do the Medtronic and I didn’t like it. The latest omnipod will talk to the dexcom sensor and stop giving you insulin if you’re going low, or correct if you’re going high. It’s pretty great.
9. My endo made me wait 6 months to a year before I started the pump bc he wanted me to learn all of the carbs and ratios so I’d be able to take care of myself and do the calculations in my head because the machines aren’t always correct and sometimes they stop working and you still have to know how to give yourself the shots and check your blood glucose levels. Boo. ;)
10. You’re awesome! Keep going. The rest of us type 1s have your back!
i love watching yalls videos so much i hate when my blood sugar is under 130 because then it starts to drop really fast the lowest i have ever been was 25 and it was really scary and started to go into a seizure and had paramedics surrounding me my sugar also staying over 200 a lot i always feel tired and drained and exhausted , watching you has made me feel so much better and your a inspiration to me i love u so much
Personally, I set a low level alarm for 70. 54 is putting you in the scary range. Mott's no sugar added applesauce packs are great for quickly bringing up your levels without shooting them too high. Cut out all potatoes and use cauliflower mashed potatoes. Also, cauliflower rice instead of actual rice. Glucerna shakes do not cause spikes and help stabilize blood sugar. Adkins cookies and snacks have lots of fiber and protein with low net carbs, which help you to feel full while keeping a steady level of blood sugar. Protein helps balance carbs so make sure you have a good source of protein with each meal/snack. Walmart has a 0 net carb taco shell, La Banderita carb counter street taco flower tortilla, which is great not only for tacos but pizzas too. Let individual shells set in water for a minute or two then place of cookie sheet. Add a couple teaspoons of Ragu pizza sauce, best low sugar we found, reduced fat pepperoni, low fat mozzarella or Italian mixed blend cheese and bake at 400 for 10-15 minutes. Low carb, high in fiber, with good protein. Quest protein chips are great too. Only 5 carbs but nearly 20 grams of protein. Carry these with you and get a protein bowl of grilled chicken or rotisserie chicken with American cheese from Subway or grilled chicken nuggets from Chick-fil-A. Always keep glucose tablets handy too. A boiled egg is a low carb high protein snack to keep you stable too. Doing the above, I went from an A1C of 9.6 with spikes of 325 to using insulin for a short time to metformin for a couple of months to no medication and an A1C of 5.9. Keto diet has worked for me with eating around 15 carbs with good protein every 2-3 hours a day. I also make a point of walking at a steady pace immediately after eating for 10 minutes. This greatly helps to prevent spikes or dropping too fast like you do with a heavy workout. Anywho, I had to learn all of this on my own, so I hope it helps.
I too am T1D and my A1C was 11.2 when first diagnosed during the start of the pandemic. That were no diabetic nutrition counselors seeing patients/clients and it was months to get into doctors for appts. The advice from Phoenixsalestn is some of the best advice in the thread. I set my alarms to go off at 70 for lows and 180 for highs. 54 is way too low for the first alarm. If that arrow isn’t straight to the right…it’s still falling. After three years I can stay 92% compliant because I’ve learned how ever possible food affects me. Grapes would not be my go to at all…if I have a super low I have a half of a peanut butter sandwich with jelly. The jelly gets it up quick and the low carb/ho fiber bread with peanut butter help stabilize it after the jelly. Before exercise I make sure I have plenty of healthy carbs and a protein to get me through the workout without any crashes. My doctor has chosen to not put me on the pump because I’m so compliant and the insulin by shots works great for me since I’ve learned my body. One thing I had to learn the hard way is cold weather makes my blood sugar plummet scary fast so I literally sleep with snacks by the bed on cold nights. If mine is super low when it’s cold, I don’t hear the alarm so after scaring my husband several times he bought me a warming blanket we keep on low for me. It’s been a lifesaver as we’ve had -3 degrees since my diagnosis. Eating out is always a toss up: for example I can have a chicken sandwich at one place because my blood sugar is low enough to handle the buns and I’m fine…other places it can shoot to the 400’s from hidden sugars …so basically I just don’t eat out unless it’s a steak and a Salad (oil and vinegar dressing), or a hamburger all the toppings / no bun. If it’s not the whole ingredient I don’t eat it out…it’s more than likely it has hidden sugars. Once I learned this I felt I could at least go out and at fast food places have something to order and at a nice restaurant have something to order. 15 carbs every 15 minute rule works great but make sure when you get it up you have protein, egg, tuna, homemade sausage balls you keep made up, any of your not butters and I add a small avocado and I’m golden again. You will find stress will raise yours or lower it…we are each unique. When mine is spiking I immediately start sneezing and her head congestion. My endo says I’m fortunate to have figured out without even looking at my monitor which way my BS is going. If it’s crashing I get extremely nauseas and I don’t even hesitate I start treating that low. For 13 months I’ve been able to avoid all those rollercoasters and now my A1C is 6.2 and lowering every month. It’s been a journey and it wasn’t fun learning by myself…but now I can take great pride in knowing I did it. My doctor says she’s only had 2 patients be so compliant without having to scare them into it…one other and myself. Also, take your shot in a fattier area you can pinch up instead of in your side…I do my stomach just because it’s the easiest to get to. I highly recommend the Dexcom 6 or the new one if your insurance will let you. I like it 1000xs better than the Libre and the software and all the graphs will show you trends, you can mark when your sick (sickness affects our BS), you can mark when you exercise and see on the graphs how each are affecting you, when your under stress, the times you took insulin etc. It gives your doctor an accurate accounting on truthfully how your doing. So much more than the Libre. I also have in my phone my medication situation and what insulin I take and any other medications. I also wear a T1D bracelet for east identification if I’m not conscious. When my numbers were in the 400’s I would find myself on the floor unable to talk, see or move. So yep, lots of hard knocks of learning here but so worth it when you feel so much better and it’s controlled, and your doctor sees how committed and compliant you are. I never let my guard down, EVER. I want to live to see my grand babies grow up one day, not just survive these last 3 years.
Hi Devin! I was diagnosed at 2.5 years old and just turned 30. I was on Medtronic pump from age 12-29 and FreeStyle Libre from 24-29. I just switched over to Omnipod (tubeless pump) and Dexcom G6 this past July. If your insurance will cover those two at a decent prices, I HIGHLY suggest doing those two! My a1C dropped by 2 points after only being on those two devices for 3 months. Especially as a mama with kids it's so much easier having tubeless. Also the two work together to help with blood sugars and makes a WORLD of a difference!
Also yes to preaching for insulin prices (and diabetes supplies in general). I would have months where as a teacher more than half of my paycheck would go to all my diabetes supplies. Super frustrating.
Orange juice girly! My grandpa has been diabetic forever and when he gets low a bit of orange juice brings him right back up fast. Grapes don’t have as much sugar as you think. They are mostly water. Oj is your best bet ❤
Bless your heart ! I hope you get better soon !!
I’ve been type 1 since 9 years old. I’ve done both a tandem pump and Medtronic. I liked the tandem better and the dexcom is such a loved system. Good luck girl!!💕
Well Dr. Bernstein has been type 1 for even longer hes 86 and has managed it mostly through diet alone. He does not recommend Dexcom and he knows a lot more than anyone.
I was diagnosed in July of 2021. Thank you so much for sharing your story. There really isn’t a lot of conversation about the disease and it’s wild that such a dangerous condition doesn’t get much attention. It’s hard, and by now I’m sure you realize it isn’t easy even after a long while, but we’re such a strong community and getting through it builds strength. Everyone who fights this condition is a badass 🤟
Think like a pancreas by Gary Scheiner is a perfect read for Diabetics. He is a Diabetes educator and is a type one diabetic himself. He explains everything so well and it's quite funny too. ❤️
Hi Devin. I am a type 1 diabetic too diagnosed just weeks after my 20th birthday years ago, so as an adult as well. My A1C was 10 at diagnosis too! I had a very similar journey. It does get easier. Thank you for showing this.
I use the omnipod which is the tubeless pump with the deacon sensor. It is amazing and has made diabetes so much easier. Please reach out if you have any questions!
My grandpa and my dad both have diabetes. When their levels get low they drink orange juice! They say it always gets it up pretty quickly for them!
Big hugs and prayers! It’s a learning process for sure!! You got this!!! Rooting for you!!! 💕
Yes my mom has it too and she drinks orange juice when it goes to low. Try to always keep some on hand.
Yep I was going to say the same.
I'm standing with you, friend! I was diagnosed 7 years ago at 18 years old- late onset. My daughter was diagnosed last April with type 1. So we totally understand where you're at. I'm praying for you to have wisdom! I do, however, suggest using Dexcom and Tandem. I did use the Medtronic pump and CGM and have talked to others who have used it, and it isn't very user-friendly. I'd love to talk with you more about this if you're interested! Praying for you and your family!
this is scary you can just get type 1 as an adult because I thought it was only a childhood disease!
Yep! A lot of people don't know that you can develop it as an adult. There are doctors who don't even know it.
@@mygirldarby New fear unlocked. fml
You can get it at any age. My son was diagnosed at 9 and he’s 16 now. I’ve learned so much since then but it’s one of those diseases you don’t know until you know. It sucks.
@@baduca11 Did he have any signs before hand? so crazy!
I got mine at 16 I just turned 32 on the 29th usually it's frequent urinating and thirst sometimes constant hunger as well. Also a tale tail sign definitely would also be irritability someone who turns real moody and mean for no reason whatsoever I had that as well.
Devin, I’m so thankful for you and sharing your story and days with us. I’m recently diagnosed with LADA (late onset type 1) and watching you is so inspirational. Thank you!
I am a type 1 diabetic and have been since I was 4 (I am now 22). I know that isn’t easy but girl I am here for you! It takes time to get the hang of all this but you got it girl!! I’m here if you have any questions!
Hi! Love following you and your family’s journey. Our daughter is 22 and was diagnosed at age 7! She’s been through many pumps. She’s currently on the dexcom sensor and the omnipod. LIFE CHANGING!!!! Also women have a huge hormone surge between the hours of 2-6 am so your sugar can be high in those hours. It’s always an up and down but you have all the support you need to get through this. ❤
Hi devin. My son is type 1. He was very hesitant about the pump but he finally got it and he has adjusted. It’s the best thing he has considering the illness.
I am a type 1 diabetic! I just recently went from doing insulin shots throughout the day to the Omnipod 5 and the Dexcom G6 system! It is great! I love it and has made life so much easier!
My son was dx with Type 1 at 15 months old. He is now 11 yrs old. He has been on the Omnipod & Dexcom for 8 years. Omnipod is awesome! He was on a tubed pump before Omnipod and it was a pain to keep the tubing out of the way.
We have always been told, when guessing carb count it’s better to under Bolus than over Bolus. I hope this helps some💙
CRYING! Loving see you’re story.
In 2012 I was diagnosed and lost one of our babies at 22 weeks pregnant.
I did pens, did pump, did scanner like you and now I’m back to pens and finger pricking. I’m happy this way bc my goodness I also was always in a fight with just getting supplies 😡😭
This seems to be easier but my levels are not consistent.
Hey! If you ever start using glucose tablets, I recommend keeping them in your mouth for a bit before chewing (kind like they are a hard candy or lolly)! All your glands in your mouth absorb the sugar faster that way leading it to be even more fast acting! We learned this from one of my sisters doctors since she also has type 1!
Hey Devin! I have had T1D for 20 years now (Diagnosed at 11), and have used Medtronic, Tandem, and Omnipod pumps. I am currently using the Omnipod 5 with Dexcom G6 and love it! Dexcom is by far the best CGM and I love having no tubes to contend with.
My sister got diagnosed at 7 years old. She’s on her 5th year now and uses the Dexcom and Omnipod. She loves her devices. She also carries small juice boxes with her everywhere for emergencies when she drops quickly. You’ve got this! It’s take a while to figure out what works for her.
Hey there! I’m a type one for 18 years now ❤ you got this! Thanks for sharing and spreading awareness ✨
I will pray that you always be healthy and get the best care! Love watching you guys!! ❤❤
Thank you so so much!!!
Hey there! I’m a T1D too, for over 20 years now. Definitely would advise not doing cardio within an hour to 1.5 hours after a shot. Even going for just a walk is enough for my sugar to drop. Insulin is usually working in the body for about 2 hours. Good luck!
Hi Dev! My 12 year old daughter was diagnosed with type 1 a year ago. She is currently on the cordless Omnipod 5 insulin pump and loves that she doesn’t have any cords! It’s been great so far! Good luck to you and god bless you 🙏🏼💙💙
Our son was diagnosed with type 1 at the age of 6 two months ago with BG at 746 and in DKA when we arrived at the ER. I am glad you got answers.
Hi Devin! I’m a Canadian gal who has been diabetic for 22 years! I was 7 when I was diagnosed. I was on syringes for about 11 years before switching to the 670G Medtronic pump + the freestyle Libre sensor. One of the biggest lessons I’ve learned is there is no one size fits all plan for diabetes. You could be doing everything “right” and still have days of highs/lows. One thing I’ve had to work on is self compassion and giving myself grace during these times. Here are a few tips and tricks I’ve learned along the way…
- For the pen/syringes and insulin pump, rotate your sites to prevent insulin buildup and resistance
- Have juice boxes on hand for lows (purse, car, nightstand, fridge).. I find it faster acting than solids sometimes. Glucose tabs can be great too
- Your A1C is your average blood sugar over 3 months - while important, don’t let this one number make or break you
- Remember that diabetes is a full time job in itself. Diabetes burn out is real and it’s important to have a community of fellow diabetics to chat with/vent to
- Subtract the fibre in an item from the carbs (example: slice of bread is 15g carbs and has 3g fibre. This makes the slice of bread 12g to dose for)
- Keep a note in your phone or a journal of patterns (example: I have higher resting blood sugars the week leading up to my cycle)
- Stress, hormones, environment can all play a role in your sugars
- If you plan on working our after a meal (or whenever), consider giving yourself a little less insulin or starting a workout a little higher than you’d like. Exercise will help to naturally bring your levels down
- See if there are any government programs to help with the cost of supplies, samples, etc.
Feel free to reach out if you ever want to chat!
I have been type 1 since I was 10 years old, I'm now 21. I have the dexcom g6 cgm sensor and just recently got the tandem tslim x2 insulin pump. It will take a while to get a hang on type 1 but you will get there. It will get easier, I hope you feel better soon. Dexcom is amazing I love it. I'm new to the pump so I cant really give a review on it yet, I've only had it 1 day so far.
My daughter is Type 1 and she was diagnosed at 9 yrs old. She's now 17 and loves the Tslim and it works with the dexcom. It's a day to today thing so treat the number day to today and don't stress. Even emotions and stress can bring it up or down. Athletics and even the heat can effect your glucose numbers.
Devin, I've been T1D for 50 years. I've been on my Medtronic pump for over 30 years & love it, I do use a Dexcom sensor. I had my 1st son 38 yrs ago w/out a pump & my 2nd son 25 yes ago w/a pump. The difference was night & day. You're doing great as a new T1D. Keep up the good work.
Hi Devin! I care a lot for my little brother who is a type one diabetic! Most of the time the carbs on the box of pasta is for uncooked pasta. Starches leave the pasta as it is boiling, lowering the number of carbs in cooked pasta. To get a more accurate carb count, google the type of pasta you are eating and specify cooked! Also, we have found that weighing out your food to count carbs is much more accurate than going by cups or teaspoons. You got this girl!!
Hi Devin,
I was diagnosed as a type 1 diabetic 9 months ago, I am 62 years old. My sister saved my life because she has been a type one for over 50 years. I went to serious keto with only 25 carbs a day to start. I lost 45 lbs in 3 months and now have stopped losing weight. I love what the keto lifestyle has done for me. I still am trying to figure out insulin. I have an awesome diabetic educator that I talk to one a week. I wish it was easy but it is not. Stress seems to me to be the most difficult thing. You See your numbers spike and not understanding why is upsetting to say the least. I only had one low of 40 and that was scary. I don’t want that to happen again, but I know it will. I run a 120 permaculture ranch in Colorado and I am super busy all the time. I find I get a bit winded sometimes and I have to take more brakes. I have never felt better in my life doing keto, just getting older isn’t fun. My sister said when you think you have it figured out get ready because you don’t. Just one day at a time.
I was diagnosed at 15. To say this disease is hard, is an understatement that most will never understand. Although it's hard, IT DOES GET EASIER. The technology has come along way and once you get the hang of it and IF you decide to get a pump, I find it much easier.
Hello!! I have just discovered your channel and gotta say y'all are adorable! It is wonderful to see a God Fearing family do so well on UA-cam. I'm praying for your continued success and that your diabetes is just a bump in the road rather than a real hinderance!!
I hope you can find anything and everything that helps you!! 🙏 prayers for you my friend 🥰
Hey! I’m 19 and I’ve been a diabetic since I was 5 I will say it’s not easy even after almost 13 years but it’s always nice knowing your not the only one. And that one thing that still helps me🧡
Hey! I have been a T1D for 9 1/2 years now. I use Dexcom G6 w/ manual insulin pens (Novolog and Levemir). After being shown your videos by my wife, I am super happy for your engagement with your health and desire to perfect your insulin to carb ratios.
After watching this video, I noticed that even when you were in great range, you chose to give bolus (fast acting) before eating (even with meals that have carbs that take longer to bring your glucose up). While this method is preferred for faster acting food sugars or when you have a 130-180, I have found it helpful to give my bolus immediately after eating (5-30 minutes) if I have a glucose that is in range and I am eating complex carbs. This prevents my sugar from dropping too low. Hopefully this helps! Keep up the good work!
Hi!!! I’m type 1 and I was diagnosed in 2021. I love the dexcom and am currently in the process of getting the Omnipod that works with the dexcom!!! Do what’s best for you and your lifestyle. You got this ❤️❤️❤️
Also, when your that low rather then grapes get tiny juice boxes or life saver gummies to help it go up ⬆️!
The omnipod 5 is awesome. My son switched from the omnipod dash a couple months ago. You're going to love it! I just wish omnipod would make more phones compatible with the omnipod 5, the list of compatible phones is very short right now.
So my step dad is diabetic and he used the Medtronic one with the cord and LOVES IT. His kids have type 1 and tried the dexcom and had so many issues. The screen went out on them and they wouldn’t cover it. It never lasted. I would definitely go with the cord he has been doing that one for YEARS and no issues and put it in and getting it going is super easy.
Hey there! Been type 1 for over 40 years. Had a Medtronic insulin pump, it was ok, switched to tandem, it’s amazing!!
Hi Devin, you and I have the exact same diagnosis story. My journey started with my pregnancy too then I was treated as type 2 and then diagnosed with 1. It’s been about 1 year and a half for me and I’ve learned so much about my body and how to better handle my sugar levels. Sending you lots of positive energy as you go through your journey.
Btw, I use the dexcom as my cgm and am testing out a pump, game changer!
Hi, I just saw your video. I have been Type 1 for 22 years. I am currently using the Tandem Tslim. I love the Tslim. You can also get a sensor that connect to the pump and helps monitor and correct your blood sugars almost automatically which is less worrying on you. Tandem based in San Diego California, but I feel it is one of the better pumps out there.
I just want to stop and say I'm proud of you Devin I know how hard it is for you to go to these appointments and go out in public without your person I know you suffer with anxiety I suffer terribly with anxiety I know what it's like to do anything without my person let alone something just high anxiety as going to the doctors so I just wanted to congratulate you you did a great
Hi Devin! My mother is a Type 1 Diabetic and has been for 36 years. I’ve had to take care of her when her episodes got really bad, since she was a single mom. When your blood sugar gets pretty low, like yours did, eating grapes and peanut butter is great, but liquids are better! Since your trying to drink a little healthier, maybe drink a little bit of apple juice, or grape juice? Liquid gets to your body before food does and will react faster than food will! As for the medical supplies, my mom has used the Medatronic kit ever since she was diagnosed and she’s honestly hated it because of the cords, and having complications with her insulin pump blocking the insulin, and she ended up having to spend a lot of money on a different kit. It may not be the same for everyone, but that was her experience!
I been diabetic since I was in high school it’s definitely a big change at any age I found different ways to cope by finding other people like me with the same daily struggles I’m glad to see you’re sharing your story and meeting some new friends along the way
Hey Devin, my bf is type 1 since he was 4 years old he is 35 and we have been together for 5 years. I notice even tho he is good at his intake when he gets excited, when it's hot out, stress all kinds of things affect it. I hope the best for you. Sending positive vibes from Cape Breton, NS.
Girl. I’m crying! It’s a lot but you got this!
Hi Devin! I’m Abby. I have a very similar diagnosis story. Had gestational diabetes that turned into a type 1 diagnosis. Totally understand the relief of a diagnosis when you know something is wrong. I had a Medtronic pump originally and switched to tandem and Dexcom combo. LOVE it! I also hear good things about the new Omnipod. IMHO a pump that works with Dexcom is the way to go. Prayers for you as you learn the ropes. You’ll do great!
I have T1D too!
While doctors obviously went to school and have a degree, I feel the most important resource you could ever have is fellow T1D's. There are so many groups on Facebook that you can join, and you will learn more about this disease in 1 hour of scrolling than any doctor can teach you! I've been T1D for almost 18 years (since I was 10), and I am still learning new stuff every day! You will gain new friends and family in these groups, and they will be able to offer you a shoulder to cry on because only we understand what it's like! I love watching your family and I hope you get all the help you need to keep your T1D under control! 💜
I have PCOS which causes issues with insulin resistance. I’ve started using chickpea pasta from whatever brand, I like Banza. Cauliflower crust is good too for pizza. Or brown rice and wheat pasta could work. All options are way less carbs and banza pasta have lots of protein too. Please always drink tons of water and always have snacks in your car and purse. I’ve know too many people with their blood sugar dropping while driving and they look drunk and don’t have snacks to help or they get pulled over or they get in an accident etc. you guys got this and everything is going to become easier soon 🫶🏽
I was diagnosed with T1D a year and a half ago (I'm 26 now) and it's been a learning curve for sure. Thank you for sharing your story... it's nice knowing there are other people out there in the same boat.
I’ve been on a pump for over 25 years... Medtronic pump and continuous glucose monitor (cgm) literally saved my life! I’m on the Medtronic 770 and I love it! Just do your research and pick what’s comfortable for you. LOWS are the worst but for me orange juice is the way for me. Congrats with keeping in range 👍🏿
I just adore you. Can you remind me of my best friends, it literally feels like I’m watching a best friend talk about a subject and you make me laugh so much!
My daughter was diagnosed at 9 with type 1 diabetes. She started on shots but we transitioned to Omnipod tubeless pump along with the Dexcom CGM and the two now work together and work as an automated system and it's been a complete gamechanger. I highly recommend if you are looking for a tubeless pump system it's the way to go!! The dexcom works great with it and makes my daughters life much easier. Not to say there isn't still days she struggles with it but it has gotten better. Best of luck to you and you got this 💪💪
Hi Devyn! I'm Danielle and i've been type 1 for almost 21 years. I was diagnosed at 9 and have been on an insulin pump for quite a long time. I loveeeee my Dexcom and T-Slim pump combination 💙 Hope you find the right fit for you!
Hi Devyn I’ve been diabetic for 16 years and I use the Omnipod 5 and it connects to the dexcom and it auto adjusts based on my levels and i love it
I am a type 1diabetic. I have been diabetic since I was five. A small glass of orange juice will make it go up or a regular soda like coke or sprite and you should get some glucose tablets. This is what I have learned over the years. I am 42. Have you considered getting an insulin pump. That would help you stabilize with the blood sugars.
I am 29 years old and am a Type 1 Diabetic. I was diagnosed about 9 years ago. I started the same way you did with Metformin. Then I switched to fast acting and long acting insulin pens. A few years ago, I switched to the insulin pump. I HIGHLY recommend the Omnipod insulin pump because there are no wires at all...just a pod that sticks on your body. If you get the Omnipod 5, the latest model, it will connect to a CGM, the Dexcom (similar to your freestyle one.) The 2 machines connect and it's been life changing. If my sugar is going low, it automatically stops administering insulin. If it is high, it will give me more insulin. Everything is done through my phone. I can't recommend it more!
I’ve been a diabetic for around 20 years, I was always told before a work out have 15 grams of carbs. It will help so you don’t get so many lows. It’s is difficult I’m just happy to see your doing great and keep up the good work 😊.
Type 1 diabetic for 10 years and I’m a mom of a toddler now🥰
Diabetic supplies:
Dexcom G6 to test my sugar and Tandem TSlim as my insulin pump. They are integrated so my pump automatically knows what my sugar is and will give more or less depending on what the sugar is.
Low tips: PB is great! I keep gushers or fruit snacks in my purse because it last long and doesn’t get crushed like crackers do.
Working out: Eat something small, but with enough carbs before a workout.
My hubby and I love your videos and can relate to y’all so much!
My daughter is 15 and was diagnosed about a year and a half ago. When you’re low, especially that low, juice is the way to go. It hits the blood stream much faster than food. She’s on the omnipod pump which is tubeless and loves it. No wearing pesky tubes or monitor on your body. Best of luck on this new journey. It’s definitely life changing.
Hi Devine my name is Nikki and I am also Type 1 Diabetic. I was diagnosed at age 5 and I am now 45. So 40 years now and I inject insulin daily, the pump therapy isn't covered by my insurance company so I do what I can with what I have for now. I wish and hope for the best for you. Also good luck.
Hey! I am a diabetic myself and I have the cordless pump and love it! Also it gets better I promise and you will get to eat anything you want once you understand how to manage!
Hi I’m a type 1 diabetic and my nurses always say that when u feel low have orange juice or normal drinks instead of something to eat free because it works faster but if u are going to have something to eat u need something quite sugary not grapes and peanut butter