HOW RYLEE FOUND OUT SHE HAS TYPE 1 DIABETES!!
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- Опубліковано 1 чер 2021
- HOW RYLEE FOUND OUT SHE HAD TYPE 1 DIABETES!! Rylee and our mom sit down and talk about the symptoms leading up to the diagnosis, and the hospital stay!
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So in other words, don't dismiss your kids when they tell you that something is wrong. We as individuals know our bodies best. So glad that Rylee is okay as this could have been deadly (I know this as a medical professional myself). You go Rylee for standing up for yourself and how you feel.
Amazing how Rylee intuitively knew she had diabetes and was telling her parents even before she got diagnosed. It's awesome what your body knows!
Thanks for sharing your story with us, Rylee! Could you guys maybe do a “day in the life of a type 1”? I am curious to see how you go about with your day to day with dance, competitions, etc
Me too I was going to ask about that.
Well I know how's I day of a t1d bc I have t1d. When I see people caring so much I have mixed feelings. It's just touching
Before I was diagnosed with my autoimmune disease I was losing so much weight and was really fatigue and I felt like the people around me just thought I was dramatic and didn’t start to believe me until I got really bad. Feeling unheard and having people tell me I was dramatic when I needed help was really hard. I hope this story helps remind people to never be afraid to see somebody if you feel like something is wrong. Listen to your body❤️
I can totally relate all through highschool I was super fatigued, I was also a dancer and doing all extra curriculars. My parents just thought I was doing too much. I also had a job. It wasn’t until I was 19 that they found I had hashimotos. I was relieved to find that I wasn’t crazy, and my parents felt awful they didn’t realize there was something wrong
Yes!! Been there. Got diagnosed with lupus and RA when I was 19 and got accused of being crazy by multiple doctors. Its now been 11 years for me but I’m so thankful to be on treatments that work and living as close to normal a life as I’ll ever live! ❤️ you’re not alone!!
So happy that Rylee is doing so much better
Let’s talk about the cover of this video though omg 🤩🤩🤩 Rylee you’re literally the most stunning person ever holy cow. Not to mention you look so grown up (Ik, I sound like a mother). Gorg girl!!
The part about the parents who are medical professionals was soooo relatable for me!! I have to be practically D Y I N G for them to notice!
I’m so happy to see other people talking about type one diabetes . I was diagnosed at 7 years old with type one diabetes and I’m now 26 years old so thank you for being open and not afraid to talk about it:)
You’ve got this girl!
so glad Rylee is ok! I was always worried for her as i could tell she wasn’t really focused on what her sisters were saying in the video or talking much! however, since she’s been diagnosed i’ve noticed she’s more focused and happy!
I'm glad that you're doing okay Rylee... Stay strong sweetheart....😁☺
I’m so happy that Rylee and her mom shared their story because it opens eyes not only for the person going through the process of symptoms and diagnosis, but for parents or anyone to help notice the symptoms to help others that may go through the same thing.
Yes ! I love that ! Know the symptoms. So glad rylee is finally feeling better.
thank you both for doing this video. its appreciated. 💛 the past 2 years i’ve really educated myself on type 1, because i know SO much people with it. and i still like learning more about it. sending much love to you and your family, rylee. 💛 its so awesome how you have a great support system! and we’re all here for ya!
As a parent I’m so grateful that you are sharing honestly. It can be so hard with the pressure to “ be perfect” in this social media world! Having teens I can see how the symptoms along the way seemed like teen issues! I’m so glad y’all found out and she’s taking it like a champ!
I was diagnosed with Type 1 almost 12 years ago when I was 11. Even so many years later, it's inspiring to see someone else go through the same things I did. Thank you for talking about it and keep up the good work!
Sharing about your journey is so important for awareness and support to other diabetics--especially teens. Rylee you are pretty amazing. I'm impressed with how you are handling it all. Parents you are amazing too. In the end, Rylee got the help she needed. Great job family.
I love Rylee’s recent insta pics she is STUNNING! So glad she’s getting her treatment she needs!
So glad that Rylee is doing well, and I'm glad you shared what you went through.
Thank you Rylee for opening about type 1 diabetes and your experience. Much love ❤️❤️
I’m so happy you are sharing your story with everyone, four people in my family also have type one diabetes. Once again thank you so much for spreading awareness of this disease! 🙌💗💗
Rylee your such a mature young lady.Your going to be a trooper through all this.God Bless you,I will pray for you and your family,as you work through this.Your a beautiful young lady,and an excellent dancer.Stay healthy and take care of yourself.It is so great to hear from your perspective for other young women,who may not have the family support you have.
Was very worried about rylee. Glad she was doing great. Praying for all of you. Love how you guys are so humble
Were so proud of u rylee! Your sisters love you and are so supportive!
So glad she is feeling better now! My dad was diagnosed with T1D at age 48, my sister was diagnosed at age 18, and my brother was diagnosed at age 19, so you are not alone. Thank you for sharing your story. I’m sure this will help so many people going through the same thing!
the feelings of trying ur best when ur ill and ur teacher being mad at you is the worst. i have juvenile arthritis and i cried everyday after dance because this one teacher would tell me all the time that if i was in so much pain maybe i was doing it to myself. it was so frustrating to be in so much pain and not know what it was from and when i finally got my diagnosis it was a huge relief to finally have a solid reason for why this was happening to me. thank you for sharing your story
Thank you for sharing and being so positive! My son has type 1 (diagnosed at age 5) and it was rough, and still is sometimes. I love that you are putting your symptoms out there for the world to see. You are saving lives!
My daughter was diagnosed with type 1 diabetes 8 days before she turned 11. She had to go to the pediatric ICU because she was in diabetic ketoneacidosis. I had the same mom guilt because I didn't connect all the dots at first.
One of the best peices of advice I can give you is to celebrate the day you got diagnosed with type 1 diabetes. My daughter aways gets a present on her diaversary. Its a way to make that day positive. Do what is best for you and your family. This is a family thing as well. Make sure and test every time before you drive and always keep sugar on you for low sugars. Its also a great idea to have medical ID card/jewerly on you. If you can educate people on diabetes then do because alot of people don't understand about what diabetes really is. One last thing, you can do anything you want to do in life!! You control type 1 diabetes but type one diabetes doesn't control you! My daughter is my hero! Much love to you!
So Happy and glad she is doing good and she is so strong she got this!
Thinking about you Rylee. You got this!! Stay strong.
You got this Rylee!!! Prayers for you!❤️ I don't have type 1 diabetes but I do have a lung condition. Having chronic illnesses can be tough but find your people who understand you and get the support you need!!🥰
Thank you for sharing your story, so brave to be open and let us know symptoms to look out for. Love you ladies
Thank you for sharing your story! I had been wondering what your symptoms were and how you ended up in the ER so I enjoyed watching this video. Sending positive thoughts your way.
this is so informative and so glad u feel better rylee i can’t even imagine how hard that was for you
This is a great thing to do as you are educating many people. I had the mom guilt also as we were on vacation in the USA from Canada. I thought my son was dehydrated from the long flight. I gave him powerade (so more sugar). He was going into a diabetic coma. In his case, doctors figure that puberty triggered his onset of diabetes. 12 yrs later, he is doing very well. He is getting married next month, has a great job and has his own vehicle and house. It is a lifelong change but it is part of his daily routine these days.
Praying for Rylee and family as this can be such a big lifestyle change, but with all your love and support, I’m certain your going to do great!!
I’m so happy I came across Rylee and this channel❤️ I was diagnosed with type 1 @ 21 a few years ago with a similar experience. Type 1 can sometimes be hard but keep your head up!!! I’ve accomplished more as a type 1 diabetic than I had before. So stay positive and you’ll be amazing! Amazing things are happening!!!! ❤️
Omg hiiiiiiiiiiii
You got diagnosed at 21 wow
I was diagnosed at 28, I'm 48 and I'm on The Dexcom and Medronic s Inpen, for now, I'm on shots 24 7, I didn't know I had it either I t was mistaken for the stomach flu, and kept sending me home, Dr refused to do labs or simple urine test, I was also vomiting, anx and I have Ulcerative Colitis too, before I had been diagnosed, I had early signs of DKa , the 2nd time I was 15.5 after doing labs before my colonoscopy, or supposed to have done, Instead ghey kept me a couple hours on an iv drip, but nobody still didn't admit or send me to a hospital to admit and train me on shot s
So glad Rylee is doing better!!
Love how momma is now in the videos! such a cool family, you guys are a joy to watch!
I'm so glad you made a video about how it all started. I was kinda lost and wasn't sure what was going on in your last video at the hospital. So glad you're ok now and the meds are helping you out. 🙏😊❤
Thank God you found out what was causing all those things and now you are getting treated. I will continue to pray for you and your entire family. I think it's great how positive you are and how you are using this as a way to help others.
I was diagnosed at 7 and my mom is a medical professional so she had so much mom guilt for not knowing sooner!
As someone with several chronic illnesses, it is so important to look past the point that someone "looks fine." On some of my worst days, you'd never look at me and think that I'm sick. It is so important to take symptoms seriously. Thank you so much for sharing your story. This will inspire alot of people with unexplained symptoms to go and get checked out. ❤ All the best to you and can't wait to continue to follow your journey.
So glad Rylee is doing better. Even though this has been traumatic for Rylee and the whole family, seeing yalls mom talk about this was special. Sending all of you love.
I'm so glad that you found out what was wrong with you and that you are getting the help you need.. I'll be praying for you! 💕💕💕
Rylee, you’re doing amazing! I love your positive attitude and awesome outlook. I’m a BSN RN (with tele, ED, and inpatient psych experience.) I wish all our patients had your willingness to learn and the amazing outlook you have! I also used to be a dancer so I get the insane dance and school schedule! Good to see your parents showing up more in videos. They are so fun!! I have a 2.5 year old daughter and already experiencing the mom guilt! Haha glad to know I’m not the only one!
Praying for you , And so grateful for you and for the fact you share these experiences. Blessings always
She’s getting there ,her resilence is amazing and adapting to the diagnose so cool .Best wishes for all .😘🇵🇷💪🏼💜
Rylee you are so strong, you got this girl.
Sending much love your way, Rylee! You're such a mature young lady.
You and your mother did a great job explaining symptoms of Type 1 diabetes. I am a former RN and am so impressed with how you are sharing your experience to help other young people. 👍👏👊
So happy that you got this sorted out. For a while when I would see u in the videos you just always looked like something was wrong or u did not want to be there. Glad to see ur back to ur self.
You will learn more and it can be an individual thing. See what helps and maybe keep a journal until you learn more about yourself and how the sugars affect your body. It can be controlled. Happy you are feeling better. Sending hugs to you. You are not alone.
SO proud of you Ry ! Keep pushing through diabetes , and listen to your parents and doctor because they know it best to help.
I have type 2 diabetes and I also had a rough time with tight control sugar in order to prevent the symptoms.
@luz delcarmen I have type 2 diabetes as well. If you have instagram. I have a diabetic page for diabetics @thediabetic.life
Im so proud of you rylee ! I was diagnosed when i was 18 months old in and out the hospital no body known what it was but i was a T1 diabetic and im now 18 its very hard to deal with but you will get through it stay strong!!
I JUST found you on here. I am 50 years old and was diagnosed with type 1 diabetes in January. We found it while I had Covid. My blood sugar was 890 (A1C 16.1) in ER. I’d never been pre-diabetic either. I also have MS, which is an autoimmune disease. Not sure if I was more at risk…. with already having an autoimmune disease. I’m so sorry that you are going through this. I’m a nurse and didn’t catch it. The signs were there while I had Covid but I was so sick, that I wasn’t putting the puzzle pieces together. I was literally out of my mind. At 50, I’d never dreamed of becoming a type 1 diabetic. I’m so glad to have found your channel. I believe God puts certain people and situations in your life for a reason. Thanks for sharing your story. God bless you!
i was diagnosed at 10 and share a similar experience. thank u rylee!! ❤
I am so happy that you got everything figured out! I had the same symptoms when I was first diagnosed.
So hard to get diagnosed with a chronic illness as a young person but you will help so many other young people with T1D and other chronic illness by being so brave and sharing your story!
Yep I’m a type one diabetic as well! I got diagnosed at 10
@@yourgirlfriendlllll I was diagnosed at 16 in 2019 . 🩸💪🏻
I understand not knowing. When I found out I was super busy with three kids and I babysat. I thought I was just tired. Sounds like you are doing great! I'm glad you caught it.
I was diagnosed 6 years ago when I was 10. I am now on the omni pod and the dexcom. I highly recommend them both. The omni pod is water proof and great for sports because there’s no tubing and the dex in is great because I never have to worry about sleeping through a low because there is alarms!
So glad you are feeling better. My daughters doctor and other publications suggest that viral infections sometimes trigger an overreaction of the immune system that attacks the pancreas. There was no history of T1D in our family either. However, my daughter had a virus just a few months before being diagnosed. Best wishes to you as you navigate all the little details of your care.
So true on having parents in the medical profession. On the plus side my mom taught me how to advocate for my health and how to manage my meds with my auto immune issues.
i am so glad you shared! when i first found out i was a diabetic i used to sleep a ton and urinated a lot too. again feel free to ask any questions i have had diabetes for 9 years now and am around the same age as you!
I love omnipod, its wireless so no tubes like other pumps and I’m a level 6 gymnast and it’s GREAT with sports. I highly recommend.
I'm so glad you are doing better Rylee. I can't imagine how scary that was. I have never heard of anyone who had a blood sugar number that high 😳. I can somewhat relate. I had gestational diabetes when I was pregnant with both my girls. My second pregnancy I had to take insulin for. I ended up with hypoglycemic episodes where my blood sugar was in the 40s. I'd end up really sweaty, feeling weak, dizzy and feeling like I was going to pass out. I'd have to have juice nearby to take for a quick sugar boost. Even though it is the opposite for you...I can relate to the struggles of keeping blood sugar levels within the normal range. There is a history of diabetes on both sides of my family so I really need to be careful. I'm so glad you are getting it figured out and are doing better.
I’m 10 years old and I was diagnosed on Christmas and a week after the hospital I dropped down to 39 . Your going to be good .it’s going to be a rough time but you can do it ❤️❤️❤️
Oh wow hi im 12 and I probably cant even imagine getting diagnosed with T1 diabetes. God bless your amazing young soul. Stay strong! Jesus loves you, and he can heal you! Luv ya girl/boy
@@softprincess552 🥰😍🥰
so proud of rylee! ily guys
Rylee!!! Your taking this like a champ!!! So so glad your doing much better!! Keep doing what you love!!💗
Listen to your body everyone!!!!! It’s sooo crucial.
I am so proud of you Ry! Love you! Love when Lindsay walks in!
You are a beautiful family with supportive bonded love. That is the greatest!! gift, the greatest medicine. God bless you🙏
I’m so thankful that you were able to get a diagnosis. Prayers for you Rylee.
Thank you so much for doing this, it’s good for other people to know that, they too can have it, if the symptoms are the same, or close, go get checked. Rylee, a perfectly healthy, thin, energetic and all, she can get it, so can others. It’s so important to get diagnosed early, so you can take care of it.
Thank you for speaking on your story and spreading awareness! I was diagnosed in a similar way but as a Type 2 diabetic. My symptoms started a few months prior to my diagnosis with fatigue and just feeling really unwell everyday. It slowly developed into increased thirst to where I was drinking 10+ large glasses of water a day and it still didn’t feel like enough. Then I started to urinate frequently and it led to being woken up multiple times a night too. I had felt a similar way when I had food poisoning which happens often when I eat meat which I had recently done so I figured it was that and ignored it even longer. But one afternoon I was dealing with severe fatigue and took a 6 hour nap only to wake up and not feel any different. I searched my symptoms on Google and repeatedly got diabetes but it didn’t seem like it could be that as I’ve never dealt with anything serious to my health before. The next morning I went grocery shopping and noticed that I struggled to not only walk around the store but I couldn’t read any of the signs to each aisle because my eyes were so blurry. I decided to check my BG at home (I have lots of diabetics in my family so they had the device and supplies to do so) but I didn’t follow the steps correctly and got a BG reading of 514. I for sure thought it was because I didn’t prep my fingers, change the needle in the lancing device, and put enough blood into the test strip so I checked it again and got a reading of “HIGH.” I was told that a high reading meant my BG was 600+ as the meter cannot read past that. I was in denial and tried again, which I got another “HIGH.” I went into the ER that night and was diagnosed with Type 2 diabetes as my BG was at 704 and I was in DKA (diabetic ketoacidosis). I also had a low white blood cell count and was in sepsis. 704 was enough to make me feel like I was literally dying so I cannot imagine being over 1,000. I was also told that if I waited any longer, I could have very well died as DKA is no joke. I was 17 at the time so I was rushed to and admitted into a children’s hospital where I spent 2 days getting the proper education around the clock and lowering my BG. They do a good job with bringing in a nutritionist and teaching you about your new diet, how insulin works and how to take your own shots, how to check your BG, and so on. It’s been 7 months since my diagnosis, I’m completely insulin dependent and it’s been very tough. It’s hard to balance out your numbers and stabilize them as this disease seems to have a mind of it’s own. Some days I’m dealing with hyperglycemia and other days hypoglycemia and it really hits your body in ways that you wouldn’t expect. More awareness needs to be spread to this disease and the misconceptions/myths need to be sorted out too. And if you’re reading this and experiencing similar symptoms, I cannot stress this enough - get checked !!!
I hope you’re feeling better and getting the hang of things ❤️ this disease is a lot, especially on a young person but you’re strong and will get through it. Here’s to hoping we find a cure soon 🥂
To me this sounds more like type 1 diabetes, but again I don’t know all the details. But I hope that you are managing it well and are in a better state now!
I also think this is type 1
So happy you are doing much better Rylee. Thank you for sharing your journey with Type1 Diabetes.
So glad you are feeling back to yourself! Make sure you go yearly to your eye doctor! I work in optometry and have seen people lose vision from diabetic retinopathy. My little sister Riley has health issues too, it’s no fun watching your little sister go through something so hard. Feel better!!
I'm so happy that you put this out here for others to see so people know what the symptoms of diebites I know it's not easy but your strong
Thank-you Rylee for sharing your story you are so amazing glad your doing better
My daughter went through the same pattern of onset at a young age as a figure skater. Your description as a young adult of how it felt going through it is helpful to me as a a mom to hear. I saw it happening but didn’t realize what all the random symptoms meant. So much Mom guilt. ❤ Thank you for sharing. I’m going to have my daughter follow you so she can watch a competitive dancer thrive with TD1.
So happy you are feeling better and that you will dance and actually have energy! And be able to have a better quality of life!
I am so happy to hear you are feeling like yourself again! Stay strong Rylee! You will be able to do everything you have always been able to athletic wise. Look up Mark Andrews... He is a professional football player with T1 and he is out there on the sideline every game checking his levels and all. He is a great example of being able to keep following your dreams with Diabetes!
My sisters situation was so similar. All the symptoms we saw, we managed to give reasoning to. Like she always had a bit of “weight” on her as she’s growing up so when she lost it we thought maybe she’s growing out of it as some teenagers do. As a dancer she was always active giving reasoning to her constant drinking and eating. We only started to question it when we went on a holiday and being by her 24/7 we noticed how much she was drinking, eating and using the bathroom. Hard not to notice as we were constantly being stopped and finding a bathroom while travelling in a city we didn’t know.
I will say for a while we did wonder if she was bulimic as she was binge eating and lost so much weight. She went down about 2 sizes so her clothes were obviously not fitting. We kept an eye on her and saw she wasn’t doing anything concerning so stopped worrying so much.
Just like your parents our mum is a nurse so unless it’s obviously urgent and bad we don’t bother about it. Mum felt so bad about not noticing it as when we got her to hospital she was very close to going unconscious. Her symptoms were not alarming as we gave it reasons and she looked perfectly fine, so no one is to blame.
It’s been 2 years and she’s back to normal minus having to dose/ check blood. It’s actually good for you to keep active!! She goes to dance 5 times a week and the only time we have had a problem is concerts as it’s hard to find a time to eat in a 2/3 hr hectic dance rush aha.
At first it’s scary but you’ll get used to it. You’ll probably find your parents and siblings constantly checking on you at first (annoyed her a bit) but it’s just love. Also probs get a lot of questions like “can you eat that” aha you can eat anything but some people don’t quite understand it so be patient and educate them :) Think after 6 months she had it built into her routine. I remember having to always weigh and portion the food at first to understand dosing easier but after a bit you begin to know your portions and how much to dose off by heart.
Sending you heaps of love ❤️ ❤️
What an open discussion and eye-opening. Amazing family. Thanks for sharing.
so happy you’re feeling so much better! sending love❤️
Praise God you all figured it out !! So glad you are ok honey, you sweet thing. (I’m a Mom too and I get how your Mom feels - it’s so hard sometimes)
You are looking so good Rylee! I hope your medications are helping you now! A lot of your symptoms are so similar to me and I have PCOS.
This video will help so many people!! Thanks for doing it!
Rylee you are so sweet and handling this so well. People don't realize how difficult diabetes can be until they have had it or have a family member that has it like I do. You are a teenager who loves to have fun, but you are also very mature for your age. Hope you show some of your dancing - would love to see it. Keep up the good work - you are such an inspiration to so many people.
It’s not even if you have a family member cause even they don’t realize how it is. Diabetes takes a toll on a person physical and mental health and some people don’t even really see it
Ive been T1D for 18 yrs had all the same symtoms. My daughters name is Rylee spelled the same way! I hope she doesnt ever have to deal with this disease! Anyway glad your feeling better now keep moving foward!
Hi Rylee! I was diagnosed with an autoimmune disease (lupus) at 20 years old. I can totally relate with how you felt after getting diagnosed. It’s so random and shocking. I also wasn’t acting myself in the weeks leading up to the diagnosis, all I wanted to do was sleep and people thought I was being lazy. You will only get stronger from this trust me! 💗
I'm so proud you posted gurls you are gorgeous and you are amazing vibe
It’s so true, about families with medical professionals. My Dad is a family Doctor. I thought it was just him!
My friend who is currently 9 years old got diagnosed with diabetes when she was 8 years old on her 8th birthday. Her blood sugar was in the 500s which was very dangerous. She almost went into a diabetic coma. I was crying for hours when I found out that she was rushed to the hospital. She is doing great now and she has been doing gymnastics for years and is still doing it now. I love how you learned so easily and are doing great. I love how I can learn about diabetes symptoms to make sure I don't have it. Great job explaining your experience.
Thank you so much for sharing your story! You are so strong!
Wow your sugar was super high. I was super sad for you when I saw your ig post but I’m glad you’re doing better. You got this!! ❤️ thank you for sharing your story.
so happy to see that your doing great!! if you are ever struggling, remember it gets easier the longer you have it. once you get a pump it is a life changer!! i have had type one for 11 months now!! stay strong!
Which pump do you have?
i have omnipod dash but am switching to t slim!!
Rylee is amazing!!! So glad she’s doing so much better! Keep it up Rylee!!!! 💗💗🎉🎉
I’m glad you found the course Sending prayers 🥰♥️🙏
If you ever feel down and alone just let us know! The type one community is here for you! There is nothing wrong with needing some support! I’m sure tons of people will fill you with encouraging messages! You will get though this and realize you are so much stronger than you realized💜
So happy that you are ok and that you figured out what you had my brother has type 1 diabetes also I pray for you each and every day
So proud of u!!!! Stay strong girl!