I don’t have a lot to say but I’m glad that you’re feeling good and that you’re doing better I love that you are so proud and happy to have me and your mom and I have been together since you got here
Hey, just throwing this out there even thou I know you know your body and you push these meds every day. I know it’s critical that you have an anti nausea medication because of your condition(s) however please note Zofran either ODT, PO, or IV causes chronic constipation in most people even when taken acutely and not everyday. 👍🏻
She had gastroperisis and a few other chronic illnesses. This is to get her nutrition needed for the day and her fluids. Gastroperisis means the stomach doesn’t move well (can take over 4 hours to move food to small intestine) so this helps her keep her weight and hydrated. The Zofran helps with nausea.
I'm curious if you can smell the zofran? I was on it in the hospital, and as soon as the nurse walked in, I knew that they had it. surprisingly, smelling it made me nauseous lolol
If she takes all her nutrients and meds via a central line as she has stated before, she should not be drinking alcohol. But in the videos I've seen she's pretty vague about what exactly is going on (she mentions gastroparesis but many people have this and do not need a central line or feeding tube.) Of course everyone is different but it's suspicious that she's sick enough to be completely unable to eat or swallow any medication, yet well enough for a late night with friends. Unfortunately there's a growing number of chronic illness "influencers" who malinger on social media for attention, money, etc. Including people who somehow manipulate their way into getting unnecessary central lines and feeding tubes. They often cite GI conditions because those are difficult to diagnose and can involve providers from multiple specialties. The more doctors someone sees the more likely they are to find one who just gives them whatever they're asking for, because that's easier than sitting down and poring over a supposedly complicated casefile. I'm not saying she's faking her illnesses but I think you should be very skeptical of this kind of content.
@@Rae-cheeseshe's also mentioned long covid, dysautonomia, and fibromyalgia. I have dysautonomia - it can be very inconsistent, and it does cause serious gut issues and I receive frequent IV infusions with vitamins through a PICC because the dysautonomia and vein scarring makes it impossible to do through a normal IV (and a line is required for home health) though I'm not on TPN. Disabled people can have fun and find joy too, even if we're sick.
I had a period of time where I couldn't eat anything at all without throwing up and they denied me TPN even after I lost 30 pounds because of the risk of infection. Nobody does this for fun. Lines are uncomfortable and a pain in the ass to maintain. But you get used to it, because you have to adapt. Shorts and stuff like this help educate people and spread awareness and I think that's a good thing, plus it makes something arduous a little more fun. Studies show generally chronically ill people pretend to be well, not pretend to be sick. Unfortunately we're not taken seriously by a lot of people. @@Rae-cheese
@@fsldjfklasdj I'm also disabled and suffer from more than one of the conditions she has mentioned. Again, I'm not saying she's faking anything or that she can't have fun, just that we all need to be very cautious about these chronic illness "influencers" and how we consume their content, no pun intended. Young people try to emulate every other type of influencer they see on social media, and malingering is already a huge issue in the disability and chronic illness communities. Covid exposed a lot of vulnerabilities in the system, one of which is that it's way too easy to get a doctor to prescribe unnecessary treatments.
@@fsldjfklasdj I have a condition that causes flare ups of uncontrollable vomiting, and almost always results in a hospital stay and a central line. I wouldn't wish that misery on anyone. But unfortunately yes, people do malinger, for many reasons. It's only gotten worse post-covid, as more and more people turn to social media to both escape reality and make a living. Yes she is listing legitimate medical conditions, no I don't think her central line or feeding tube are fake. But there's more than one way to get one put in, and people hurt themselves for money, sympathy, attention... all kinds of reasons, all the time.
If she doesn't have anything wrong with her uterus then she can have kids. The stomach and the intestines are not the uterus. This is about her intestinal tract which goes from mouth to anus. The vagina, bladder kidneys are all separate. She can even pee. I hope this helps.
She's "pregaming" by prepping her nightly meds before she goes out so she can just connect to her port when she gets home and not have to worry about dosing properly and handling needles while she's drunk
Not my dumb ass thinking it said “my pregnant routine” 😂 ✋🏻
SAME AHAH
@@_.rav.__14 THANK GOD IM NOT ALONE!! LMAO 🤣
I DO TOO MY BRAIN THEN WENT IN THIS ORDER 1. GO CHRONICALLY ILL MAMA 2. Can- the baby handle all those meds?
I was about to get mad till i saw your comment and rewatch the video 💀💀
😂
it makes me happy to see her friends help her and not be scared of her condition(s) it’s so refreshing!!!
I like that you involve friends and family.
Girl in the black bikini top looked fascinated maybe a career in the medical field is in her future
How old are you
fr!! she was definitely locked into what was happening 👀
How old are you
@@kaidbenes3979 bro that’s creepy stop asking.
I don’t have a lot to say but I’m glad that you’re feeling good and that you’re doing better I love that you are so proud and happy to have me and your mom and I have been together since you got here
💕💝 You're awesome for protecting your port i had one for dialysis for 8 months.
STILL YOU'RE AWESOME
you’re so pretty and strong❤
Love that your friends are helping you ❤❤❤❤
me spending the entire video thinking she was making lip gloss:😭
this is so nice to see
I have a lot of conditions to and I love to see this being shared!! I hope you have an amazing time with your friends! Keep living your baddie life💕
It's like mixing a potion when we were younger 😂
When your friends what in on the action.😂😂
This is funny. You are an inspiration .😊❤
Hey, just throwing this out there even thou I know you know your body and you push these meds every day. I know it’s critical that you have an anti nausea medication because of your condition(s) however please note Zofran either ODT, PO, or IV causes chronic constipation in most people even when taken acutely and not everyday. 👍🏻
You are so pretty 😍
I have a feeding tube to
you look healthy and strong 🥹
Good friends❤
I always say be cautious im nauseous
have you had the feeding tubes your whole life
First time seeing your videos. May I ask why you have to do all that?
I think it’s because she has a paralysed stomach and can only eat very little so she needs to get in all the vitamins and stuff 😊
She had gastroperisis and a few other chronic illnesses. This is to get her nutrition needed for the day and her fluids. Gastroperisis means the stomach doesn’t move well (can take over 4 hours to move food to small intestine) so this helps her keep her weight and hydrated. The Zofran helps with nausea.
Check out her other videos
Now this is how you party
I'm curious if you can smell the zofran? I was on it in the hospital, and as soon as the nurse walked in, I knew that they had it. surprisingly, smelling it made me nauseous lolol
Do you/ can you go swimming?
How much does this all cost a month?
Depends how severe your disorder is, anywhere from $300-$1000+
This might be a dumb question but can you drink alcohol?
If she takes all her nutrients and meds via a central line as she has stated before, she should not be drinking alcohol. But in the videos I've seen she's pretty vague about what exactly is going on (she mentions gastroparesis but many people have this and do not need a central line or feeding tube.) Of course everyone is different but it's suspicious that she's sick enough to be completely unable to eat or swallow any medication, yet well enough for a late night with friends. Unfortunately there's a growing number of chronic illness "influencers" who malinger on social media for attention, money, etc. Including people who somehow manipulate their way into getting unnecessary central lines and feeding tubes. They often cite GI conditions because those are difficult to diagnose and can involve providers from multiple specialties. The more doctors someone sees the more likely they are to find one who just gives them whatever they're asking for, because that's easier than sitting down and poring over a supposedly complicated casefile.
I'm not saying she's faking her illnesses but I think you should be very skeptical of this kind of content.
@@Rae-cheeseshe's also mentioned long covid, dysautonomia, and fibromyalgia. I have dysautonomia - it can be very inconsistent, and it does cause serious gut issues and I receive frequent IV infusions with vitamins through a PICC because the dysautonomia and vein scarring makes it impossible to do through a normal IV (and a line is required for home health) though I'm not on TPN. Disabled people can have fun and find joy too, even if we're sick.
I had a period of time where I couldn't eat anything at all without throwing up and they denied me TPN even after I lost 30 pounds because of the risk of infection. Nobody does this for fun. Lines are uncomfortable and a pain in the ass to maintain. But you get used to it, because you have to adapt. Shorts and stuff like this help educate people and spread awareness and I think that's a good thing, plus it makes something arduous a little more fun. Studies show generally chronically ill people pretend to be well, not pretend to be sick. Unfortunately we're not taken seriously by a lot of people. @@Rae-cheese
@@fsldjfklasdj I'm also disabled and suffer from more than one of the conditions she has mentioned. Again, I'm not saying she's faking anything or that she can't have fun, just that we all need to be very cautious about these chronic illness "influencers" and how we consume their content, no pun intended. Young people try to emulate every other type of influencer they see on social media, and malingering is already a huge issue in the disability and chronic illness communities. Covid exposed a lot of vulnerabilities in the system, one of which is that it's way too easy to get a doctor to prescribe unnecessary treatments.
@@fsldjfklasdj I have a condition that causes flare ups of uncontrollable vomiting, and almost always results in a hospital stay and a central line. I wouldn't wish that misery on anyone. But unfortunately yes, people do malinger, for many reasons. It's only gotten worse post-covid, as more and more people turn to social media to both escape reality and make a living. Yes she is listing legitimate medical conditions, no I don't think her central line or feeding tube are fake. But there's more than one way to get one put in, and people hurt themselves for money, sympathy, attention... all kinds of reasons, all the time.
I have a question can you go swimming
Why would she not be able too? Only her stomach and intestines are paralyzed
@@grimsyn8174 Well I think they were asking due to the IV stuff in her body.
Are y'all young yes or no
Not to be mean but I don't think this is mean what happened ?
She has a disorder which limits her health
Can you go swimming?
I was wondering would u be able to have kids? And so can u explain it please if u dont mind
If she doesn't have anything wrong with her uterus then she can have kids. The stomach and the intestines are not the uterus. This is about her intestinal tract which goes from mouth to anus. The vagina, bladder kidneys are all separate. She can even pee. I hope this helps.
Idek why you would do this but Okay man anything for attention right? 😂
Huh
None of you are older than 16
Except they all are over 16
What difference does that make, anyway? Illness doesn't care what age you are!
Streets
What happen to ur foot
What
They know we only looking at their bodies. Its why they did this. 🤣
No and that is a disgusting thing to say
Don't be creepy
This is why i smoke weed, your a loser if your shoving shit in your veins to get drunker
She has a chronic illness. Everything is attached to her body. Her stomach and intestines are paralyzed
She's "pregaming" by prepping her nightly meds before she goes out so she can just connect to her port when she gets home and not have to worry about dosing properly and handling needles while she's drunk
She's doing that because she literally has to do it to live bro
You're* (you got the second "your" correct though 👍)
See what weed does make you fücking stupid as sh!t