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Lilly Downs
Pakistan
Приєднався 4 тра 2024
A sick girl with a trauma developed humor
mostly all normal items that I have also found useful for symptoms too #favorites #chronicillness
mostly all normal items that I have also found useful for symptoms too #favorites #chronicillness
Переглядів: 192
Відео
mostly all normal items that I have also found useful for symptoms too #favorites #chronicillness
Переглядів 6502 години тому
mostly all normal items that I have also found useful for symptoms too #favorites #chronicillness
this is the info they all ask for and it’s grueling to go over lol #chronicillness #medical
Переглядів 2,6 тис.4 години тому
this is the info they all ask for and it’s grueling to go over lol #chronicillness #medical
I have the best nurses literally ever and I am so lucky #nursing #nursingschool #chronicillness
Переглядів 3,8 тис.14 днів тому
I have the best nurses literally ever and I am so lucky #nursing #nursingschool #chronicillness
roller coaster of a day , #rheumatology #chronicillness #Lifestyle #ivig #ptsd
Переглядів 8 тис.14 днів тому
roller coaster of a day , #rheumatology #chronicillness #Lifestyle #ivig #ptsd
One wondwrs if this condition is not due to all the fake food people eat now. How about some.gentle fruits and vegetables?
I’d assumed you were getting all that therapy because you’re blonde. Live long and prosper.
I highly respect that you’re taking care of yourself physically and mentally, my wife does also. Keep up working hard girl proud of you
NOTE TO SELF… I NEED TO STOP COMPLAINING ABOUT ANYTHING I HAVE TO DO BEFORE BED.
No you don't? Life is hard and anyone is allowed to complain.
MRIs are never fun ive had so many in the last 4 years thanks to my own chronic illnesses. From one illness fighter to another you are doing amazing with everything you have to do.
I feel for you. I have to do peritoneal dialysis every night and it can be tiring these routines.
I think I seen you in Orlando Florida
I know what that feels like ): it’s cold as hell
Girl u are something else it makes me cringe just look at all them needles
I have needed to get one for a while, but the mental acceptance of “my life has come to this” isn’t as easy as I thought.
I LOVE Glenwood!!
Dammmmm 😢
How can your stomach be paralyzed i don't understand. Can someone explain
It's far easier to do an online search than ask here
This may be a dumb question.But I'm new here.Is it ever going to get any better?
You only have one, enjoy it to the fullest and disregard negative energy around you.
God Bless you
why the fuck do yo uneed all this?
WHAT FELLOW SPARTAN?!?!!?
Unfortunately this is me to I'm so sorry u got to have all the :( it sucks I got the dam hickman line so so fun or relaxing for me tho u are way more organised than me 😂 keep safe and hope ur well xx
What are you sick with?
The way I’d let myself die- props to you! Holy shit
OMG WOW!…how inspiring!!….I suffer so bad from depression and guilt over my sisters passing, so much so that I ended up not being able to shower, brush my teeth, change my clothes…it was so bad that I lost my teeth from not brushing…..since 2009….Ive finally come out of it thank god but I still have my bad days…seeing u just gave me inspiration and a reality check ….next time I have a bad day I will think of u and how strong u are….i know it’s no comparison health wise but u are amazing ….thank u for sharing ….
i would’ve sobbed at the meds flying 😭
I don't take any meds now but I have had periods in my life where I was on meds and used pill counters and so even though I was never on more than one routine pill at a time I still felt the frustration of the flying pill counter. My heart sank to the pits of my stomach for you, especially seeing how many you have... 😢😓 I dont take meds anymore and try to use alternative medicine or not-medicinal treatments and therapies since my body does not like to be on meds. Side effects always outweigh benefits
A big one im atill thankful for is how the nurses treated me when i had my endometriosis surgery, my nurse immediately picked up on my fear and that i was sassy and we kept picking on each other back and forth but when it was game time she promised to keep me safe, i have PTSD and it was a part vaginal surgery, they all done a timeout when i was awake to make sure I and them understood that there will be no positioning me until im asleep and i will have my underwear back on by the time i wakeup. And when i started to panic the surgical assistant ran over held my hand while the nurse by my head kept talking softly to me.Ive had some horrifying experiences with nurses some i have trauma from but the surgical nurses ive had always have been amazing. When i had my chest surgery the nurse by my head was rubbing my forehead telling me im gonns be okay and she'll keep me safe, and she was the one rhat told the doctor that shes not going to put a catheter in. It was a almost 10hr surgery. I had a talk with her and told her id even wear a diaper and she told me "just make sure you pee before, if theres any issues ill blame myself im not gonna have you having a ptsd attack just because it makes our job eeasier"i also wokeup with a ton of blood in my hair and the nurses all gathered around me and washed my hair to the best of their ability. While i hate my surgeon those nurses were absolutely amazing. The one even made a joke when i was in rhe operating room waiting to be put under, they gave me ketamine to almost a K hole amount and i said "goddamn was that the ketamine? My chest is heavy" and the woman laughed and said "yes but not for long" (i was there having a breast reduction done lmao
You’re the strongest person I’ve ever seen in my life
ISTG when the pills do that I feel so attacked
This is why it's important to expose your babies to germs and not hide them away like the bubble boy
The "eating like a child" is SO true. I don't have your condition, we still dont know whats going on but the amount of times i get judgemental looks or comments because im 25 and eat likea child is ridiculous. When i was a teen for about a year all i could eat were jarred baby foods anytime i put solids on my stomach it was incredibly painful. just earlier i had some nuggets and within 5min of eating im getting bad intestinal cramps and still dealing with them. While it can be fun to eat like a kid sometimes i hate not being able to stomach healthy nutrient densed meals.
medical debt for the rest of your life
How did you go to the toilet at night
God bless u for u strength honey ❤
OH my gosh! You just described my routine to a T! TPN, infuvite vitamin mix ins, IV zofran, IV phenergan, IV Diphenhydramine and Famotidine….inly difference is oral meds are liquids…how long have you had to be on TPN?
Because I’m not a doctor what is she sick with can anyone tell me
And I sometimes I'm so tired I can't even wash my make up off, you're amazing
You're doing this by choice try not taking any medication and just deprive your body from sleep until it needs it and then it will reset your body eventually will have no choice but to go to sleep
If you don't mind saying, what medications are you on?
Why do you use IV Benadryl?
Amazing mom❤❤
I wish every pain doctor and pharmacist the profound pain I experience. The best thing a surgeon said to me is that something another doctor said was “stupid.” So validating. The trauma is real. We just have to keep going.
I came across your videos, and I wish you the best of health. I've seen quite a few of them now, and I can't imagine having to run through your daily routines. I know it's likely harder and more upsetting than what you portray in your videos, but you're wickedly strong for maintaining a positive attitude. Absolute legend. Hang in there, there are quite a few of us that are rooting for you.
Familiar. Anyone ask you “Do you do all of that by yourself?” I usually had to answer “yes” more than once before I was believed. And those were medical professionals asking.
I mean you blew into something going into your small intestine. Anyone who has a problem with that doesn't know how digestion works XD
Wow so grateful I don’t need meds, much love & patience to you!
Lord Jesus Christ, I believe you are the true Son of God and that you died on the cross to rescue me from my sins, death and to restore me to heaven to be with the Heavenly Father and the Holy Spirit. I choose now to turn from my sins, my selfish ways, and every part of my life that does not please you. I choose to serve you and I choose to give my entire life to you. I believe in you. I believe you are the way, the truth, and the light. I accept you into my heart, into my soul, and into my mind. I choose to serve you and to receive your love and forgiveness. I ask you to take your rightful place in my life as my Lord and Savior. please lord of lords and king of kings come reign your peace, love, and happiness into my heart and into my soul. fill my heart and my soul with your love and your life, and help me to become a better person who is truly loving and trusting -a person like you. Please cleanse my mind, body, and soul from the demonic entities that have been tormenting me my whole life. may the blood from your sacrifice wash my sins away and restore my mind, body and soul in your name Jesus Christ. allow me to Live, Love, Learn and grow through you. please bless my soul in your holy name, the heavenly father, and the holy spirits name and help replenish the strength of my mind, body, and soul in your honor. Thank you, God of the Holy Land and the Holy Spirit. In Jesus’ name I pray. Amen" Lord Jesus Christ, I believe you are the true Son of God and that you died on the cross to rescue me from my sins, death and to restore me to heaven to be with the Heavenly Father and the Holy Spirit. I choose now to turn from my sins, my selfish ways, and every part of my life that does not please you. I choose to serve you and I choose to give my entire life to you. I believe in you. I believe you are the way, the truth, and the light. I accept you into my heart, into my soul, and into my mind. I choose to serve you and to receive your love and forgiveness. I ask you to take your rightful place in my life as my Lord and Savior. please lord of lords and king of kings come reign your peace, love, and happiness into my heart and into my soul. fill my heart and my soul with your love and your life, and help me to become a better person who is truly loving and trusting -a person like you. Please cleanse my mind, body, and soul from the demonic entities that have been tormenting me my whole life. may the blood from your sacrifice wash my sins away and restore my mind, body and soul in your name Jesus Christ. allow me to Live, Love, Learn and grow through you. please bless my soul in your holy name, the heavenly father, and the holy spirits name and help replenish the strength of my mind, body, and soul in your honor. Thank you, God of the Holy Land and the Holy Spirit. In Jesus’ name I pray. Amen"
Life is more trouble than it’s worth for most people.😢
What's makes you have to do this every night? You look healthy.
if you dont mind me asking, what ailments do you have?
They didn’t have you stand in front of that little magnetometer thingy that checks if you have any ferrous metals and lights up at the level in your body the metal is at? Because generally that’s superrr dangerous… fortunately gold is nonferrous..good thing
They didn't have me do that either at the couple hospitals I've had it done at
I love your channel. With SBS and adhesions all around my belly, food often gets stucked even if liquid and then I can't do anything but to wait, endure the pain, huddle in the fetus position until finally it goes further and comes out as exhausting diarrhea. Those days are just aweful, but I get through. I have so much empathy for you! ❤