Day In The Life As Someone Living With Down Syndrome | My Extra Chromosome
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- Опубліковано 27 вер 2024
- Down Syndrome is a condition in which a person has an extra chromosome. Chromosomes are small “packages” of genes in the body that determine how a baby's body forms and functions as it grows. A baby is typically born with 46 chromosomes but babies with Down Syndrome have an extra copy of one of these chromosomes, chromosome 21. In this absolute documentary, we see the stories of 3 people living with Down Syndrome as they overcome hurdles, strive for independence, and take part in extraordinary events.
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Can’t tell you how much I have enjoyed this video. Because of the age differences in Mauve, Laura, and Joe, it’s so interesting to watch their development. Lovely “stars” and parents and Joe’s instructor. All so patient and kind. I was smiling all through the video. Thank you for sharing 🦋🦋🦋
Aww, I worked with these people while I was going to nursing school and they were ALL gems! They have a strong spirit, an unflagging determination to achieve what they want in life and they are SO very loving💖 I enjoyed every minute I was privileged to be with them, THANK you for this documentary❤
Yes.. so loving ! Just a joy to be with and lots of the best hugs.
It is a terrible thing the hospital did in the way they told Maeve's mum. I'm a SEN teacher. With proper support of family and school all children can learn and have a wonderful life. How dare the registrar speak to the mum in a way that terrifies new parents and steals joy! I hope the registrar got educated so this doesn't keep happening.
My cousin has Downs, - he’s more athletic than me, he was born before they did the genetic testing in Canada, and the drs told my aunt and uncle to have another child as soon as possible to help him with his development. But I am proud of him and all he’s achieved thus far.
P.S. I'm SO happy that these parents didn't think " oh it's just Down Syndrome" and addressed any problems that arose❤❤
This was so inspirational, all three of them Maeve, Laura and Joe have great support and parents. I just love this!!❤❤
What I love is the understanding now that people with Down’s syndrome can do a lot more than what people used to believe that they could. I’m watching these three individuals and their families, I saw that they are believed in, and supported. That’s awesome.
Absolutely lovely and heart-warming. From the brother of a boy with Down Syndrome :)
What an awesome program!! The young girls are just the sweetest, and Joe, well he’s the MAN!! God bless them all🙋🏽♀️💕
Joe is a very interesting man, his insight and confidence is inspiring 👏
Looks like the Down syndrome effects vary by individuals. Some higher functioning than the others. Some so much more effected negatively and nearly unable to learn and function near normally.
Most are delightful individuals. Very nice 👍 😊
Es gibt leichte aber auch schwerere Formen von Downsyndrom. Ich kenne 2 Kinder die Downsyndrom haben. Einen Jungen welcher wohl die leichtere Version hat. Er ist sportlich und ein sehr schlaues Kerlchen. Sehr positiv und immer am Lachen. 😊 Dann noch eine mittlerweile junge Erwachsene. Bei ihr leider die schwere Version. Sie wird nie alleine leben bzw eigenständig Entscheidungen treffen können. Sie kann sich kaum verbal ausdrücken und lebt sehr zurückgezogen in ihrer ganz eigenen Welt. 😢 Wie es mit ihr weitergeht wenn ihre Eltern nicht mehr da sein werden, ist die große Frage. Ich hoffe, es findet sich eine gute Lösung.
What a wonderful documentary🤗💕💗
Best inspirational and thought provoking video ever. ❤
What makes me angry that downs is “ glorified “ mainly because most of the time they are so capable of most things. Going to school with some assistance and manage their life very well!! And that is nothing more awesome than that!! ❤️
But is not all rainbows and unicorns!!, many have serious health issues! Many can’t live alone, never independent . This is people With is a syndrome, they are not accessories! ! Not sweet kitties or adorable purse dogs. They are not happy all the time!!! (happy clappy ) But there getting are next to nothing about people telling about the struggles and hardships!! They are instantly told they are heartless and criticized !! Why?. As I said there is not just sunshine stories! Even if anyone trying to deny that.
I agree, however I feel like this documentary is very honest about the health issues that come with downs syndrome. One of the girls has sleep apnea for instance. I suggest you take a look at a UA-cam channel called raising Autumn. It’s run by a mom of a non-verbal girl with downs syndrome and autism. The mom, Audrey, says this constantly. Her daughter is not always happy. People with special needs can be happy, sad, angry and everything in between!
Life without Downs is no different. There are struggles, illness, behavior changes in all people and having children is never all rose and lollipops no matter what.
Ich verstehe was sie meinen. Es wird mittlerweile zu positiv dargestellt. Aber wie sie schreiben, es gibt oftmals große Probleme. Das darf man nicht außer Acht lassen. Gerade gesundheitliche Probleme oder bei manchen eine lebenslange Unabhängigkeit. Für die betreffenden Familien und die betroffenen Downsyndromleute sicher nicht immer leicht. Dennoch ist diese Doku sehr interessant. Grade zu sehen, dass man ihnen durchaus vieles zutrauen kann und soll.
Down syndrome is a blessing. Most loving people kids u will ever meet
What’s up with down’s and Ireland? I’m fascinated what the research finds
Some cultures believe that having a downs baby is considered a blessing from God. They are very precious and great character and loving.
It seems to me mostly older parents have the Down syndrome babies. In general. Waiting too long to have a baby, or it’s their last baby, trying for a girl or a boy baby. I am guessing of course from my own observations, I don’t know if it’s a fact. Perhaps the older eggs produce such children. Don’t know if it’s the same from the males since their spermatozoa are newly produced. I think it may be so as well, since physically they are also older, their cells are.
These downy babies are so loving individuals, in general, so if they are properly educated, they can be and will be productive citizens. Hopefully they do not fall under the evil people who takes advantage of them. I’d worry about that a lot if I was a parent of a Down syndrome child. The world is a frightening place, after all.
Yes, if the mum’s older, the risk of an extra chromosome increases, not only Downs syndrome but also trisomy 13 or trisomy 18.
Good programme apart from being bombarded with too many ads.
Blame UA-cam. I can't even listen to music anymore without it being interrupted by ads.
I have ALWAYS believed down syndrome people are awesome. I think we could take a few lessons on truth and kindness from them. ❤❤
You have to except the child that God gives you and it is nice to see that theire parents except theire chikdren.❤
Wonderful kids!
I am glad for Joe, the elder in the Cheevers Town.😊👍🍀
These Brits they speak without moving their teeth, at all! All you see are the lips moving, so a lot of mumbling!
"I can do it myself" -that's the Irish in Mauve. 😎
It's wonderful to see how much these parents love Maeve, but at the same time you can also see that they sometimes have to stop themselves from telling their true feelings. They love her, but they're very careful with admitting how difficult their lives are because of her.
Extra chromosome, extra special 💙💚💜
Doesn't northern Ireland have a down sydrome screening test when your pregnant🤔
They should .
Even if… should you automatically abort a baby just because they have downs?
@@huesophie299 yes.
@@catherinerothe4374 Please just don't get pregnant. Children are not perfect...none are ! So...if you have some idealized view...get over it.
@@brega6286Es ist Ihre ganz persönliche Meinung. Ihr zu raten nicht schwanger zu werden ist ein mieser Angriff. Ich glaube uns allen ist oftmals nicht bewusst, wie anstrengend ein Leben mit einem erkrankten Kind sein kann. Nicht jeder ist stark genug, um das zu schaffen. Und was passiert wenn die Eltern nicht mehr am Leben sind? Wer kümmert sich danach weiter? Ich sehe sehr wohl eine Problematik. Es gibt sehr unabhängige Downsyndrommenschen aber auch einige welche permanente Betreuung benötigen. Wenn eine Gesellschaft es schon nicht schafft ihre Alten gut zu behandeln, wie soll sie dann mit Behinderung umgehen?
I’m sorry, Yvonne is the lovely lady s name. 🦋
❤️❤️❤️
They should have stopped with the three girls. Probably tried for a boy baby. Surprise!
I would hate to have 1 of those
One of those what ?
That comment is so rude 😡
@Catherine Rothe
I'm sure they would hate to have one of you, too.
@@1963mathetes 😆😆
Beautiful and inspiring video. I am so happy that these wonderful people have such an amazing support system around them and are loved. They are proving that although they may have a disability, they are capable of so much more than people give them credit for.
Absolutely adorable, she is. I volunteered to work w the kids w Down syndrome when I was in high school. I did it 3 years. It was one of the most rewarding experience I’ve ever had. I’ll never forget some special moments I had w those kids.
Abort mission.