What you see online is just a glimpse & always has been, my illnesses are more severe now than 2019, but I’ve always had severe dysautonomia & been in the Severe M.E category, being mostly bedbound.
Hi I was just scrolling on my fyp and I saw this and I realized we have the same name Georgina and I was surprised because there is not lots of Georgina’s out there❤❤❤❤❤
Do you know why ME usually get worse? In my case at the start of the symptoms I was housebound for some weeks (it was in 2018), from november 2023 it has been a total disaster, I am able to stay out of bed only 5/6 hours and I always feel like having an endless flu😢 From 2018 to 2022 I had long times symptoms-free. I'm "healthy", I mean I haven't others health problems. I fear this will torture me for the rest of my life (I am 32 now). It's like a daily mourning for the life I'm loosing and nothing is working, not even a bit! I'm really scared and sad, I don't know what to do!😢 I'm so broken that I think I don't want to keep going like this anymore...what is the point if it's only going to be worse ans worse?😢 I'm so scared...
I know that there is no true pattern- many people get worse, but probably many more, get better. Some, by treating co-morbities & root causes, others with no real explanation. Sending hugs & hope your way 🫶🏽
What you see online is just a glimpse & always has been, my illnesses are more severe now than 2019, but I’ve always had severe dysautonomia & been in the Severe M.E category, being mostly bedbound.
Feeling this so much. Same. Sending hugs.
This is so very true. It's also one of the reasons I haven't been on social media as much lately.
So sorry to hear that, are you struggling with something too?
That would be hard to be like that as a child. It sucks enough as ab adult.
With EDS, a lot of us did have a lot of symptoms in childhood too sadly
Hi I was just scrolling on my fyp and I saw this and I realized we have the same name Georgina and I was surprised because there is not lots of Georgina’s out there❤❤❤❤❤
Nice to meet you, Georgina! I know what you mean, it’s always nice to see another Georgina as it doesn’t happen that often!
❤❤❤
Do you know why ME usually get worse? In my case at the start of the symptoms I was housebound for some weeks (it was in 2018), from november 2023 it has been a total disaster, I am able to stay out of bed only 5/6 hours and I always feel like having an endless flu😢
From 2018 to 2022 I had long times symptoms-free.
I'm "healthy", I mean I haven't others health problems.
I fear this will torture me for the rest of my life (I am 32 now).
It's like a daily mourning for the life I'm loosing and nothing is working, not even a bit!
I'm really scared and sad, I don't know what to do!😢
I'm so broken that I think I don't want to keep going like this anymore...what is the point if it's only going to be worse ans worse?😢
I'm so scared...
I know that there is no true pattern- many people get worse, but probably many more, get better. Some, by treating co-morbities & root causes, others with no real explanation. Sending hugs & hope your way 🫶🏽
Thank you very much and best wished!❤
Same..
🫶🏽