Charles - What are the biggest challenges you face living with FCS?

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Charles shares his challenges of living with FCS, including following a restrictive diet, the feeling of being a burden to caregivers, the financial burden of having such a rare disease, and the uncertainty and fear of not knowing when another attack of pancreatitis might happen. Despite these challenges, Charles says that receiving support from caregivers and others with FCS has been very encouraging. He describes how his quality of life has improved because of his primary health plan and research study participation.