Це відео не доступне.
Перепрошуємо.
15 + PHRASES to *AVOID* per parents of NICU babies!!!
Вставка
- Опубліковано 26 тра 2024
- For the PDF summary of THIS video, links to relevant articles (+ 50 free Multiple Choice Questions/ Answers and explanations!!), AND a bunch of other stuff, subscribe to our Neonatal Nuggets Newsletter here:
talatalksnicu....
Thank you SO much to the Physician Moms For Preemies group on Facebook who took the time and effort to answer questions, openly, kindly, and with the intention of educating us all.
Again - a caveat- this is a specific group of mothers (educational group, mothers of premature babies etc.), so please let us know what else you would add to this list!!!
---------------------------------------------------------------------
Please be sure to give us a like, comment about future topics, and subscribe to this channel to stay up to date on all things NICU! Also, click the notification bell after you subscribe to gain your weekly NICU knowledge as soon as it's loaded!
---------------------------------------------------------------------
Dr. Tala is a board-certified neonatologist and has worked in busy level III and IV units for the past 15 years. She has won multiple teaching awards throughout her time as a neonatologist.
----------------------------------------------------------------------
References:
www.med.unc.ed...
health.usf.edu...
www.marchofdim...
Morton, Christine H., Sigurdson, Krista and Profit, Jochen. "Chapter 6 Race and Gender in the NICU: Wimpy White Boys and Strong Black Girls". Pink and Blue: Gender, Culture, and the Health of Children, edited by Elena C. Conis, Sandra Eder and Aimee Medeiros, Ithaca, NY: Rutgers University Press, 2021, pp. 103-118. doi.org/10.360...
www.frontiersi...
----------------------------------------------------------------------------
*Disclaimer*: This video is intended for educational purposes only and while we strive to give the most accurate information, errors may occur. Subsequently, this video should not be a replacement for medical advice.
NICU Resident here, also had a 24+2, 650g girl in October. 5 month stay complicated by perf. NEC, BPD, ROP, lots of sepsis. The works other than severe IVH. My bub is now nearly 4 months corrected and exclusively breast fed, weaning low flow and a mild gross motor delay but she's a proper NICU miracle. She was put through the winger. I can attest to lots of these phrases. (both hearing them as a parent and saying them as a Dr!). It's very difficult to know how things will be received. I have a pretty dry (and quite dark) sense of humour and was raised in a laugh or cry kind of household. Being told my girl was a real trouble maker overnight or "not well behaved" was totally fine with me where as others might find that jarring. For my partner and I, by far the most important factor with communication in NICU came down to simply being calm, gentle and empathetic. It's hard when the unit is busy, there's expects, and healthcare workers are human too but the only times I really felt upset with the communication is when it felt rushed or I felt I was being a nuisance.
Hello- thank you so much for sharing all of this. I’m so relieved to know your little girl has come through the other side- that was so so much. What a little rockstar she is!!! Not that anyone would want this education but it does put you in a unique setting of truly knowing what families are going through.
I agree- I think most of the time we all do really well- it’s when we’re stressed or tired or busy that things go badly. (I try to remember that and say that to my kids all the time/ who we are is how we act on our bad days not the days when everything going swimmingly). Anyway/ thank you so much for sharing!!! Hope you were able to get back to clinical side of things- sounds like medicine really needs you xxx
Wow! This was eye opening. Some of those phrases seem so innocent, but I guess after hearing them over and over again it can be grating. The only one I have a problem with is “who are you?” We can maybe phrase it nicely, but at the end of the day just like I’m expected to introduce myself bc there are so many healthcare workers around, there are a lot of visitors in the unit, and maybe I haven’t taken care of your baby before. I just think that we should give each other some grace.
Agree with everything you wrote Carmen! Was eye opening for me- and I think a lot of what we say comes from a place of goodness. Maybe I should have started with the positive list first! But yes- at the end of the day safety comes above everything. I’d prefer all families through the unit was 1% ruder if every baby is safer and every baby is only visited by those the parents want to visit. Thank you!!!
It underscores our ability to practice empathy, to view the perspective of the parents despite having seen their experience many times over. For them it’s most likely their first time in the NICU.
This is so true- and something I probably didn’t emphasize enough in the video- that things which seem so routine to us are stunningly new. And yes! All about the empathy! Thank you for your thoughtful comment!
I hate hearing other staff use “I’m the black cloud” or “my luck” in front off families! Definitely something we all use in medics field but it makes me cringe at the wrong time!
Oh this is SO TRUE!!! Like the patient is ruining their day on purpose! I always think that black clouds don’t exist and that over an entire career we’re all dealing with the same- but in a certain period it may feel like our lot is worse. But! That may be because we’re not acknowledging the happy good positive times!!! The babies who do great and the nights we sleep on call! As I’ve gotten older I’ve tried to practice a lot more gratitude (how spacey! Ha) when things go right!!!
Thanks so much for your comment!
The " Whimpy White Boy Syndrome" Is thankfully not used in Australia. But some of those terms I am guilty of saying for sure !! thanks so much for this :)
That’s great that phrase isn’t used there! Must sound so weird that it is used here so much!!! I’m with you with these- all just little reminders every single word we say makes a difference!!! Thank you for being here xx
Excellent advice for everyone who takes care of babies.
I hope so! And glad you think so/ it was for me anyway!!
Amazing topic dr.tala .. well done 👏
Thank you so much/ love your encouraging comments so much!
I am seeing a mother rather than a neonatologist. ❤. Blessed mother and nicu graduates under your care.
Thank you- what a lovely thing to say. I think we all grapple with that in the NICU- our emotional investment as fathers and mothers and aunts and older brothers and grandsons etc. and being purely professional. A NICU could thaw a frozen heart in my opinion. It’s such a loving group of people in all
Does this mean I should refrain from using “it’s the nurse curse”?
Oooh true- very good point!!!! We do use that casually- but not directly with mamas I guess? Probably should be thrown away too! I wonder if any nurse NICU moms can weigh in on that?!
Yes, absolutely, I’m a transition nursery nurse that had severe preeclampsia, had to be induced at 35.4, 4 days NICU stay for baby. SOO many of my coworkers commented on how I had a “nurse curse” and it bothered me so much. I needed positive energy more than anything, not to be told that I am “cursed.”
Although I’m a NICU RT I had been cursed with this one as well with a 37&5 precip. The curse is real.
@joemygawd I’m sorry/ hope all is well now xx
I’m so sorry- all of it is stressful and then to feel like your vocation is any part of your child’s health!!! Not good!!!! Hope all is well now with your little one xxx
Wow this couldn’t be more accurate! Thank you for bringing light and validating us NICU parents! We, in fact, do not have Wimpy White Boys!
You are the sweetest. It breaks my heart to think of all the things mothers may have gone through. Especially you- forever in my heart xxxx
I hear the phrase “FLK” (funny looking kid) every once in awhile. While it is said away from parents I feel it’s insensitive and judgmental.
Completely agree- I mean imagine hearing that about your kid!!!!! We all do say it- and I think it’s our way is saying we’re concerned without naming a diagnosis (which we often don’t know). We should be using- mildly dysmorphic features or whatever- you’re right! Thank you!