The worst is when you can't fit in with your friends because you can't wear the same sandals and shoe as them😔 and when people think you're just lazy and don't want to open your drink yourself
Same here! My car broke down once and a lady stopped to help but then saw me walk and called the cops because she thought I was drunk!! They showed up and immediately knew she was wrong but it was nuts.
OMG this is my day......I have all those problems and more. but two months ago I started walking, first day 500 steps and now 2 months later we are walking around 2300 steps...and I also use a cane and some braces for my balance....I enjoy life to much to stop trying...keep it up and good luck
I CTM and I 've noticed that everyone who does not walk like other people who also have it , everyone is different . Thanks for the video at least we're not alone. Greetings México, DF
Lmao! Thanks. Been thru so many alcohol/drug screenings over the years for my gait. I just laugh every time. I've been pulled out of my car by police, given breathalyzers, taken down to booking and had blood drawn. Embarrassing to say the least. Don't forget to mention when the lights go out at night. Boom...crash...thud! (i'm ok..really) lol
I'm 71 now and cmt is now kicking my ass. my oldest daughter has it and my 13 year old granddaughter also. I almost cried seeing this young lady walking, like me, what a positive video this is, wish they would find a cure
I actually got pulled over! by a cop who asked me to walk because of my trembling hands. i told him I had a disability and lucky i had the disability tag. but he really wasn't buying it until he saw it. I was so tired. that is why he stopped me, going too slow. You can get a card from the CMTA to show these nice OFFICERS. He actually asked me if I could spell my name backwards in English! WTH
Tina Norvell I have a roommate but she's rarely here... Tonight I decided to cook something and I ALMOST gave up because the milk was almost impossible to open. So I totally know how you feel. My floors are becoming sticky but I don't have a mop (ugh)... Ugh.
Way later. I tried living alone after my boyfriend and I broke up, but ended up having to rent the mother-in-law quarters from my parents rather than look into getting assistance after I scared myself half to death by getting locked inside for a day and a half. My hands were achy/spasmy and I couldn’t grasp the lock or handle a key. I wasn’t in danger, I could have called a friend or something for help if I REALLY needed to get out. It made me aware of my vulnerabilities though.
The worst is when you can't fit in with your friends because you can't wear the same sandals and shoe as them😔 and when people think you're just lazy and don't want to open your drink yourself
Omg! I'm always afraid if I ever get pulled over, I wouldn't be able to do the walk test...
Mandigrace 😂😂😂 me too!!!!
Same here! My car broke down once and a lady stopped to help but then saw me walk and called the cops because she thought I was drunk!! They showed up and immediately knew she was wrong but it was nuts.
lol, I had that same fear too!
Same
I am afraid of that too!
Love your sense of humor! Keep it up.
OMG this is my day......I have all those problems and more. but two months ago I started walking, first day 500 steps and now 2 months later we are walking around 2300 steps...and I also use a cane
and some braces for my balance....I enjoy life to much to stop trying...keep it up and good luck
lol Throws the umbrella down and walks back inside !! Awesome !
If I was 15 years younger, and single, you'd be in trouble lol
Thanks for sharing :)
Yes I know it's nice to know you're not alone
I hate shirts with buttons too!
I only use polo shirts.
you know you're not alone when you see this video
I I have cmt :D Im from mexico df
people often think i'm drunk
So funny. I just started to have issues. They really do not know what I have yet. I feel exactly the way you describe
I CTM and I 've noticed that everyone who does not walk like other people who also have it , everyone is different . Thanks for the video at least we're not alone. Greetings México, DF
Jeeze this rings so true. Gotta laugh to keep from crying! I’d totally be your friend and Netflix binge with you on hurty days.
Lmao! Thanks. Been thru so many alcohol/drug screenings over the years for my gait. I just laugh every time. I've been pulled out of my car by police, given breathalyzers, taken down to booking and had blood drawn. Embarrassing to say the least. Don't forget to mention when the lights go out at night. Boom...crash...thud! (i'm ok..really) lol
Love this video, great job!
I can relate so much to this video
I'm 71 now and cmt is now kicking my ass. my oldest daughter has it and my 13 year old granddaughter also. I almost cried seeing this young lady walking, like me, what a positive video this is, wish they would find a cure
FANTASTIC JOB You Inspire Us
I wear those exact shoes with my AFO's :)
made me smile :)
ha ha- I was just going to add- that people think I am drunk and then that part came.. you are not along.
Great video. My brother has CMT.
(By the way, you look like Katie Holmes- beautiful!)
This sums it up! :)
Great work ..^_^
I actually got pulled over! by a cop who asked me to walk because of my trembling hands. i told him I had a disability and lucky i had the disability tag. but he really wasn't buying it until he saw it. I was so tired. that is why he stopped me, going too slow. You can get a card from the CMTA to show these nice OFFICERS. He actually asked me if I could spell my name backwards in English! WTH
is driving easy with cmt?
still one of my favorite videos cx everyone thinks I'm drunk xp
Me too!!! HA ha ha! I fall over all the time!
Gabriel Santillan same here!!!
Gracias
Are you a toe walker too? I have CMT as well and I relate to everything.
I'm not but know many people with CMT who toe walked!
Button hook is essential
Sooo true
I really want to try heels one time ....
DestinyHnn just be careful because your ankle can snap happens to me with normal shoes
They're not worth it. Neither are button-up shirts!
I tried some could only wear them sitting down though and most weren’t wide enough 😂
Esto me hace llorar., I have that disease
I have the same "thing!" No fun at all!
Make more
people think you are drunk when walking? how sad. i can tell not. does every one with cmt walk the same . kind of? just curious, do not mean rude.
i hate my beautiful bike! ;D
does anyone with CMT live alone
I do. But my quality of life SUCKS! I wish that it would go away. It's robbed me of being able to be a man.
Tina Norvell I have a roommate but she's rarely here... Tonight I decided to cook something and I ALMOST gave up because the milk was almost impossible to open. So I totally know how you feel.
My floors are becoming sticky but I don't have a mop (ugh)... Ugh.
I can barely hold stuff anymore.
I'm way late, but I have CMT and live alone
Way later. I tried living alone after my boyfriend and I broke up, but ended up having to rent the mother-in-law quarters from my parents rather than look into getting assistance after I scared myself half to death by getting locked inside for a day and a half. My hands were achy/spasmy and I couldn’t grasp the lock or handle a key. I wasn’t in danger, I could have called a friend or something for help if I REALLY needed to get out. It made me aware of my vulnerabilities though.