I have it 2, It wasn't found until I was 22. But my neurologist said my medical records showed I was showing signs as a baby but nobody thought to test for it.
Hiya, I’m 17 and I also like your son have CMT I’d highly recommend the gym as muscle loss obviously takes place over time and it has helped me and my dad who also suffers from it immensely:) mentally and physically helps
I really had no problems growing up with CMT, in wich i found out what might have caused this symptom. Some kind of pathogen disease and or environmental illness caused it. Proper testing can figure it out. What was found was 2 tick diseases, 2 candidas, mold mycotoxins and a virus, and these all turned nuerological and an immune suppressing issue and also worsened my charco-Marie-tooth symptom. Looking forward to getting stem cells which will repair the myelin sheath and nerve problems. No need for people to suffer when there are causes which can be found and cures which also can be made and are curative therapies available.
I have it was showing signs as a baby, but wasn't diagnosed until I was 22 and my neurologist is amazing and same for my orthopaedic surgeon I love them they got me on all the right meds ♥️. I my look like a mini pharmacy lol but I'm glad now I know what I have and we can treat it carefully... I'm now experiencing hand tremors anyone got any advice of online support groups
![Charcot Marie Tooth Disease - Symptoms & NEW Treatments! [2024]](http://i.ytimg.com/vi/HOebXZIZT4Y/mqdefault.jpg)
![Charcot Marie Tooth Disease - Symptoms & NEW Treatments! [2024]](/img/tr.png)
![Charcot Marie Tooth Disease [Best Foot Treatment!]](http://i.ytimg.com/vi/sPLQdXaOV7c/mqdefault.jpg)
Very nice and well written informations but the background music really loud and disturbing, 😥
Thank you for the information. The background music does make the speech somewhat difficult to hear, by the way.
The words are up on the screen
@@alexandermilentis2130 That is not true. Very few are. The muzak is irritating and distracting from the content.
plz add some molecular genetic information too
I have cmt it's not fun but I don't let it keep me down
Keep going I’m so proud of you
same!! life with cmt is not easy
I have it 2, It wasn't found until I was 22. But my neurologist said my medical records showed I was showing signs as a baby but nobody thought to test for it.
I do quite the opposite, it’s too hard to keep going
Same here keep going guys I'll pray for yall
Do you have a reference for the reduced life expectancy research? As the NHS website and many other information sources suggest normal life expectancy
i have cmt my dad told me that people that have cmt are smarter than other people.
Thank you
Music is so loud the message is often unclear.
I hear it
@@averyt6521 Was that it's only purpose?
My son is suffering this disorder. What can i do for him
Check out the HNF-cure or CMTA.org sites.
Hiya, I’m 17 and I also like your son have CMT I’d highly recommend the gym as muscle loss obviously takes place over time and it has helped me and my dad who also suffers from it immensely:) mentally and physically helps
Physical therapy is definitely the best tactic. Regardless of what else you do, make sure pt is part of it
I really had no problems growing up with CMT, in wich i found out what might have caused this symptom. Some kind of pathogen disease and or environmental illness caused it. Proper testing can figure it out. What was found was 2 tick diseases, 2 candidas, mold mycotoxins and a virus, and these all turned nuerological and an immune suppressing issue and also worsened my charco-Marie-tooth symptom. Looking forward to getting stem cells which will repair the myelin sheath and nerve problems. No need for people to suffer when there are causes which can be found and cures which also can be made and are curative therapies available.
I liked the information, but the music is terrible and the sound is awful. The effect is a distraction from the content of the video.
My dad has this when I was born my feet looks like that but I have no symptoms of it is that possible I'm a dancer and always on my feet
Thumbs up if you're hear after finding out that Alan Jackson has this disease.
Well I already knew many things about CMT well my kind
I have it was showing signs as a baby, but wasn't diagnosed until I was 22 and my neurologist is amazing and same for my orthopaedic surgeon I love them they got me on all the right meds ♥️. I my look like a mini pharmacy lol but I'm glad now I know what I have and we can treat it carefully... I'm now experiencing hand tremors anyone got any advice of online support groups
What the hell is up with the background music ? We are here for information not for revelry😂
I really wanted to watch this but the music is too loud to concentrate.
I have CMT
Background music It's horrible. I would have liked to listen to this video but I can't. Too much noise.
Thanks, but the music!!!
I have this and I don’t like it
Same
Same, neuropathic pain has amped up immensely last few weeks. It's a really tough thing to deal with
First off, the music is louder than the speaker. Second, it's such an annoying tone I don't want to continue watching. Turn down the music
can you please remove the music. it is super load and distracting
I have cmt and it has made my life hell
merhaba, cmt belirtileri kendini gösterdikten sonra naptınız şuan nasıl ilerliyor?
Which type CMT u have ?