Newly Diagnosed: Bile Duct Cancer
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- Опубліковано 29 вер 2024
- In collaboration with the doctors of UCSF Medical Center, The Bili Project Foundation video series provides information for those who are newly diagnosed and need further information on how to navigate clinical trials.
The Bili Project is a Hepatobiliary Cancer Awareness and Research Program. It's mission is to reduce the incidence and improve the outcomes of Hepatobiliary cancers by promoting research to identify biomarkers and therapeutic targets.
My husband is on hospice and most likely days away from death. This cancer is awful. We have a 12 year old son too.
I am so very sorry. My father was just diagnosed June 1st and it isn't looking good. He presented with jaundice and pain in his upper right torso end of May. He is hesitant to start chemo. I am still in shock. Praying for your family.
What causes this cancer ?is it just sudden or his diet lifestyle was not good ?can you share
@@sitanathmajumder3453 My research points to fish and shellfish and red meat but also stress and alcohol consumption. Fish and shellfish contain liver flukes. The irritation and scarring from a liver fluke infection leads to bile duct cancer. DO NOT eat fish or meat! Low stress lifestyle, two liters of water per day, very limited alcohol use. Everyone should be consuming a plant based diet.
Am I the only one who was pissed off by the music?
Music was OK, but too loud.
It's very distracting considering the topic.
Me too
It is horrible. I don't like it either. No music would have been better.
Horrible music😢
Why the background music? I’m very deaf, therefore I find this video with talking and music very difficult.
The video was great, but the background music make me fell so sad.
My dad passed way March 3rd😢😢😢😢😢
My dad passed away 6 weeks after diagnosis, he did not have any symptoms at all until he developed jaundice
I am so sorry for your loss. My father just passed away last week from this type of cancer at the age of 64. 7 weeks after diagnosis and he was jaundice as well. I hope and pray for healing for your family.
Did he have gallstones or gallbladder surgery or what was the cause of it is it just sudden or the lifestyle impact@@Nb7733
My father inlaw died from this last night 3/29/21. Very aggressive and decimated his body. He was a skeleton. Why can't we cure these cancer yet?!! Why are we spending billions on space travel? This is a cellular phenomenon we can't cure.
Look into joe tippen cancer treatment
Your question is fully valid. Seems they are satisfied with the expensive treatment.
My dads gonna die of with within a week probably. 3 weeks ago he had blood work that showed high liver enzymes and then CT scan showed the tumor. Crazy how fast he went downhill after that
I totally 100% agree with you. Why are we spending billions of dollars on space travel and not in cancer??
😞😞😞😢😢😢😢
My cousin died after 3 years of fight with bike duct cancer...
Symptoms in first year: itch, noisy stomach, slight jaundice...
2nd year symptoms ( stage 4): itch, fatigue, weight loss, dark urine, white stool, weakness
3rd year: all above plus excessive weakness and pain, infection, fever, breathing difficulty..
When you say noisy stomach, what exactly do you mean? Please elaborate. I'm suspecting that my husband may have bile duct cancer.
Did the itching come and go?
My little sister is in final stage of this horrible cancer, not fair I survived stage 4 lymphoma and she is not going too, I cry every day for her and pray it ends for her soon. Anyone going through this I’m so sorry and prayers for you
Very sorry!
I am very story. I was diagnosed Mar 1, had chemo and lots of infections (plus a hematoma the size of a brick of butter) and half way through chemo (again major delays between rounds 1 and 2 and 3) it started growing. By Oct 30 it was growing and Nov 2 I was told I am out of the transplant protocol. The location is in the "Y" and it is growing into the liver towards my back.
Chemo didn't bother me much and I've managed to put on weight in spite of chemo. Since Oct I haven't had anything done. I was placed in care of the oncology team and it's now palliative care. It's concerning because the EUS and Spyglass didn't yield confirmation of malignancy and yet they hope to treat it with chemo.
I honestly don't know what to expect, beyond metastasis to another organ. But if that doesn't happen and my stents keep holding up.. I hate unknowns. I want to know what to expect so I can plan to tell my kids. Tell them too soon and you make them worry and they will see you for months or years (in some cases).
The unknowns are the issue. I'm having anxiety and all the oncology folks say is "it's different for everyone" and I'm at the best in Canada for cancer.
I hope your sister's suffering is minimal and I am very sorry for your pain and suffering.
Thank you for sharing and I am sorry I am complaining here. I don't want to upset my family on my last (most likely following statistics) visit to see them. I dread telling the kids. I have so much I want for them, improvements that I somehow didn't teach them before I managed to get sick. That's what bothers me the most ahead of the unknowns, not being able to go in peace because I know my kids and wife will have struggles and it's my fault for not catching these and fixing these problems sooner!
Again sorry for making this about me, it shouldn't be. I need to get ahold of my counsellor from the cancer agency. I want to be strong and help my family (wife, kids, parents, siblings, cousins etc..) through this. I am not afraid for me, though I like knowing what lays ahead. I am afraid for them all. I am afraid of them feeling sad and them struggling. That isn't fair for them! I should take on that burden myself.
I really hope you find peace and your sister finds peace.
@@robertchanrussell2010 You sound so strong, thank you
@@robertchanrussell2010 your story broke me. My mom was just diagnosed with this yesterday and I am so scared and shocked. You sound like a wonderful person worrying about your family over yourself. As a child of someone going through this I want you to know that they will never ever forget you and you will be with them forever and ever and if they are sad and stressed it will pass and it is only evidence of how much you mean to them and how much love you brought into their worlds. My mom keeps telling us she is sorry for putting us thru this and how guilty she feels. Please please know that is not something we think About or feel. It is not your fault. You would be there for us if the tables were turned. I hope you have found some remission and I send you and your family my love and support.
@@tonis.4002 Thank you. It turns out between August and October, my tumour grew but has been stable since October. Very strange according to my oncologist.
I am still trying to get my family in a great place. I want them to thrive not survive.
I'm feeling well, cycling even sometimes, lots of walking too. My attitude is to make fun out of things, to laugh at my problems rather than feel down about them.
I appreciate your words. My mom said something similar to me when I told her I didn't want her to see me fade away. She was NOT happy. She said "and if it was your child? You'd want to be there wouldn't you?" and that look of "you butthead" was loud and clear.
I'm still pushing to keep healthy. No treatments since October. Just tests to see if they could still transplant. I am just really lucky! VERY lucky. Or I am getting my time required to get my family strong and thriving.
Mothers can be smart, she said "You are not dying until you get your family where you want them? Plan on living to 150 do you?" And she's right. They will survive but again, I want to keep trying and keep working with them. I see improvements which is great.
They are fine without me but I'd prefer they are happy and doing great. I want my family (all of them) to be laughing when they remember me. I want smiles!
Hang in there for your mom. Each person's struggle is different. Lean on one another. I had to do that sometimes with my wife. It actually helps her too, helps her feel important, just like when she leans on me.
Amazing how this disease teaches me to appreciate little things like birds and to learn to lean on people sometimes.
I was diagnosed at the age of 34, no symptoms at all. Just slightly high liver values. Scan revealed there is something that does not belong to the liver. Biopsy then showed it was a malignant metasis on the liver - intrahepatic CCC.
That’s been 22 months from now and next week I will receive 5th line therapy with FOLFIRI after Cisplatin/Gemcitabin, Durvalumab, Pemigatinib and FOLFOX.
Sadly the cancer spread to my lungs, a rip and the spleen.
This cancer is very aggressive…
My prayers to all of you who fight along with me!-
My dad is suffering from this type of cancer too. He is just 58 years old.. Earlier there was a symptoms like jaundice.. Ct scan report showed tumor in the hepatic duct.. Doctor told us extraction of bilirubin(jaundice) is necessary before the further treatment.. Now we are doing the same as they told us.. The bilirubin level has decreased from 27 to 6 .. It must decrease to normal range before any treatment.. Hope the God may help us..
It was so shocking to have my wife diagnosed of colon cancer and some researches said it is caused by smoking and she has never smoked all her life, this gave us so much concerns and the most saddest part of it was that there is no known cure for it. There was really no notable symptoms at the beginning not until she began to cough which got worse everyday and soon enough she was finding it more difficult to talk or breath properly. We tried several treatment for a better condition but all proved abortive, all the doctor's said cancer couldn't be cured until we heard about a particular traditional doctor called Dr Uduro who cures Cancer with natural herbal remedies completely. We contacted doctor with his email druduroagbodidiherbalhome@gmail.com and we were given instructions to get the medicine which we got after a few days through the courier delivery company. She was told to take the remedy for one month but just within a few weeks of using it she experienced a total balance in her health, all the symptoms like coughing, breathing and sleeping problems and other emotional troubles was all gone. We went for a checkup after an appointment the sixth week and our doctor was surprised and said the tumor is no longer there. I don't know how to explain this but I believe it's a miracle, nature is life I'm glad it helped my wife win the war against Cancer. I implore anyone with any type of cancer should contact him via his email above or whatsapp him on +2347049441765 and also be free like me.
My dad just got the diagnosis today. He seems to have multiple cancers. Half of his right kidney just got removed last monday.
Now they said he has stage 4 klatskin and tumor board is tomorrow...
As soon as he get‘s home I will also start treating him with alpha lipolic acid and low dose naltrexone, which I picked up by a friend. Also aspirin might help him fight this battle.
He felt and still feels absolutely fine, I noticed s jaindice 3 weeks ago snd told him to get his blood tested.
We are all devastated. He is 62.
How did the Bilirubin come down ? Did they drain it ?
@@universe_24 my dad has two stents in his bile duct, that’s how his bilirubin levels are normal again... for now
@@christophm7203 yeah !!we also followed the same procedure for my dad and as of now his bilirubin levels are normal but the stents are still there for drainage.. He is getting chemotherapy treatment.. The tumor has shrunk far more than before he received treatment..his health conditions is normal... Hope everything will be fine and get better!!!
I was diagnosed with stage 4 bile duct cancer Feb 20th 2018. Thank you for posting this -it is helpful for my friends and relatives to understand what I am going though. It was indeed me going jaundice that led me to the ER where I was diagnosed. I started Chemo march 2nd and currently have 6 chemo sessions- I am fortunate to be in the 15% who is operable. My tumor is in the base of the liver and it has spread to my liver. My course is chemo followed by a whipple procedure
Gesyka Ryan hi! I hope you are doing well. Even my father has recently been diagnosed with stage 4 common bile duct cancer. He has started with chemotherapy. Have you been operated?
I pray that you get cured from this. Please keep your faith up and don’t lose hope in God, your doctors and yourself.
@@shreyasood1937 same issue face my mom stage4 any idea... How to face
Keval Rana my father has chemo course before covid. He is better now. He faces digestion issues. My mother gives him a lot of naturopathy these days. I am praying everyday. I will pray for your mom too. Take care and be strong.
@@shreyasood1937, please, did he have bile duct cancer? What naturopathy have he been taking? Thank you! I really wish he get cured!
I need help, my doctor isnt testing for anything like this. My bile duct is dilated and i had my gallbladder removed in 2012 i am worried its cancer but in my town even if we request testing they wont do it. Idk where else to go or what else to do
Any news?
АЛ КАПОНЕ no 😞
Can you ask for help through your channel? I am sorry that I can't help you here. Greetings.
My bile duct was dialated so Dr sent me for MRI and results were possible malignant stircture. Try and ask your Dr for an MRI
@@gypsywoman4785 are you getting surgery? Or biopsy?
My dad is gonna die from it probably within a week from now. He had a mild stroke in early July 2022 and basically totally recovered. Then in September had a worse one that affected some parts of his memory and slowed his walking down. About a week after the 2nd stroke blood work showed super high liver enzymes and a CT scan showed a liver tumor (not an alcoholic or anything like that)
They took him off blood thinners so they could do the biopsy and then he had a much larger stroke that put him in the ICU with his right side paralyzed. I was worried it would happen when he went off the blood thinners. They did end up doing the biopsy though at least
Now it's 4 days after the 3rd stroke and he's going into Hospice. He so thin and had been feeling much more tired in the few weeks between the 2nd and 3rd stroke. So we pretty much knew he didn't have much time left
All I can say is at least it went fast and he never experienced much pain. And he would not have wanted to be paralyzed and have his brain scrambled the way it is right now and live years and years like that. So the fact that this cancer is killing him so quickly is a blessing in some ways.
He's 72 and will never have to deal with dementia and I know that was always his biggest worry about aging so I'm glad about that
Edit: he did have random hiccups for the past year or so and had lost weight. But he had gone on the keto diet and had lost weight from that also. So the weight loss all kind of blended together. until he got really thin in the past 4 months or so
Long story short: the cancer caused 3 strokes in less than 4 months. And the cancer is going to kill him 3 weeks after the blood work and CT scan showed the tumor
Hi. I was recently diagnosed with a dilated bile duct. I’ve had a history of things that could have possibly contributed to it. I’ve for the most part of my life taken pretty good care of myself. I have been going to get CT and MRI but there’s no stones. I have a healthy liver, gallbladder, etc. I am going to go in for a cholesystectomy (where they send a camera through the bile ducts under general anesthesia.) Is there a chance I just have a dilated bile duct? What’s dilated? My doctor said it’s around 10mm or something like that. I’m terrified it might be cancer. If it is, hopefully it’s in the early stages. I’m 44. I think I’m going to go for a second opinion. Since this is something that can be easily missed or misread. Thanks!!
Hi, have you received some answer about your dilated bile duct after the procedure?
I also have an enlarged bile duct..there wanting to remove my bile duct iv already had my gall bladder taken out...they say I have no cancer at this time but if I don't remove my bile duct it can be cancerous
@@nidakrukauskiene3217 Yes. The procedure was easy. I went to sleep, woke up. 30 minutes. They took a biopsy of my lymph tissue in that area. Results were in as negative for cancer😃. 😌😮💨 Thank GOODNESS!!!
My lymph nodes were swollen after the biopsy, which is expected. Especially the nodes the back of my head, behind my ears, and my throat area. Lumps all over my scalp. Painful and sensitive to touch. All those side effects lasted about 2-3 weeks, slowly subsided. Look into getting yourself a high quality all natural anti inflammatory shampoo to use for a week to a month after your endoscopy (ERCP) procedure. Or ask your provider. My provider who did the procedure is impossible to get ahold of over the phone. It would have been nice knowing all this going in. Hopefully you’ll read this before your procedure, if you’re having ERCP or know anyone having endoscopy with biopsy.
@@nidakrukauskiene3217 thanks for asking by the way. 😁
@@kellypettyjohn1174 Hi Kelly. Have you thought about getting a second opinion? There might be some severe side effects that come with removal. Although, avoiding cancer would be optimal. Did you have a biopsy done?
We lack Hero's in this field. That's the Truth.
How to survive that sick.. my mother need sergery but say the doctor if
sergery here body is no survive the sergery.. what can i do to survive my mother to surgery?? Need special doctor or what?? Plsss answer my mother want to go home after saying the doctor.. my mother feel she never survive the cancer becus't the doctor say that
RIP stefan karl
Sigh if only there was a miracle to bring him back to life 😢😢😭😭😭😭
The music is too loud.
My dad passed away a week ago from bile duct cancer. He became jaundice after a scan revealed the tumor. 7 weeks after diagnosis he passed away. It was really hard and painful for him. My mom, brother and myself were by his side the whole time. Cancer sucks and I wish he didn’t have to go out like this. He had just turned 64 before he passed.
I’m so sorry to hear that. Hope you’re doing well
I was suffering from this, i'm so glad i got better, thanks to DR. SARKI UMAR.
Let me be the first here to congratulate you on your triumph..
Please who is this doctor that helped you, does he base on all ailments?.
@@greenquake11931 He's an herbalist from Nigeria, he cures all kinds of cancer, diseases, even chakra cleansing.
as someone that has benefited immensely from herbal cures, i can say confidently that african herbalists are worth their salt.
@@raymondbarnes5264 Okay as a patient myself how do i reach him?.
My papa just got diagnosed will he die
My husband had this cancer, from diagnosis to death was exactly 9 months.
So sorry!
Can you please tell me all of his symptoms from the start? I'm suspecting my husband has bile duct cancer.
My mom was diagnosed with this type of cancer. She lived six months after diagnosis. Her presenting symptoms were jaundice and weight loss.
@@abundance3148 I’m sorry for your loss. My husband didn’t have many symptoms. He had, what the he called, “ flutterings”, in his upper abdomen. He was never very sick, until the last 3 weeks of his life. His bilirubin rates were normal until that last month. It’s a horrible cancer, it sneaks in quietly andy then destroys you. He died at 61.
@@deborahruthbarlow1695 Apologies I missed your questions and then they stopped. He wasn’t jaundiced until his last few weeks. He had very few symptoms. He described it as a “fluttering” in his upper abdomen. He said it wasn’t really pain, more just feeling a uncomfortable for a few minutes, very short, 4-5 minutes. He wasn’t jaundiced until the last few weeks. He didn’t have a lot of pain, even at the end. He just felt really uncomfortable,again in the last month. I really hope see this,I feel badly for not getting in touch earlier. Please don’t hesitate to contact me.
i just loose myb sister in guatemala i went for vacation after 37 years without seing her and the doctor doest help her she jus t live for tree weeks and she die
\
Silvia Barahona May Jehovah be with your family. Jesus and Jehovah will wake her up. You will see your sister again.
My love to you from Los Angeles.💖
Revelation 21:1-5
JW.org
I have just recently been diagnosed with Cholangiocarcinoma or Bile duct cancer. This can be resected depending on the location and type.
In my case this is not an option as I have cirrhosis as well.
I am in a constant state of exhaustion and just recently had to stop working.
Been evaluated by two large respected transplant centers and praying one of them will accept me.
There is a protocol that is and has shown success with a 5 yr. Survival rate of 90%.
That is what I’m striving for.
How are you holding up?