April 2022 Cure SMA and Novartis Gene Therapies Clinical Trial Update Webinar

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  • Опубліковано 27 сер 2024

КОМЕНТАРІ • 3

  • @user-ng8cq8rc5l
    @user-ng8cq8rc5l Рік тому

    I am from Algeria. I have a daughter who suffers from spinal muscular atrophy. She is 7 months old. She is now suffering silently and is dying slowly... In countries where I am not even aware of the disease... knowing that I have a child who died in 2019 with the same disease.... Can you help me and sponsor With the treatment of my daughter, I lost all means, and I could no longer bear to see her get tired and die, as is the case with her brother.

  • @ibraheemkhalilullah3248
    @ibraheemkhalilullah3248 2 роки тому

    My son is 35 months SMA type1.
    I want to know about risdiplam or other cure for my kid plz kindly share some details