Choosing a Wheelchair for POTS, Ehlers-Danlos and Non-Epileptic Seizures

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  • Опубліковано 3 гру 2024

КОМЕНТАРІ • 8

  • @monicalee2462
    @monicalee2462 2 роки тому +3

    Thank you for explaning the diffrence between the chairs and what they are able to do

  • @sugarhugger8516
    @sugarhugger8516 10 місяців тому +2

    I have eds and I'm a quadriplegic and ms.
    I can definitely recommend the quantum edge 3 stretto with eye level.
    It has a much smaller wheel base.
    I also have the spirit autofold.
    Both are really good chairs

  • @SnowySpiritRuby
    @SnowySpiritRuby 2 місяці тому +1

    Power assist is such an individual thing - for me, I needed the lightest possible option because I live alone, go out alone, and I have to break down my chair every time I put it in the car, so, after exploring all the options out there, I determined that a SmartDrive was the right fit for me (and you can in fact go backwards with a SmartDrive on your chair, it just won't push you backwards), but I know other people where their needs and options are different, and so they went with the power assist wheels. It just depends on the person.
    What type of chair and power assist did you end up going with? I've got an Aero Z and SmartDrive (my next chair, which I can get next September, will probably be a ZRA, because I need the weight reduction that titanium will give me).

  • @joshdaw8578
    @joshdaw8578 2 роки тому +4

    So I have EDS and POTS as well and am trying to find somewhere to get fitted for a wheelchair in my area, this video was super helpful in giving me an idea of what I want to get. But I noticed you wear ring splints, and I do as well, has that interfered with using a wheelchair for you or damaged the splints at all? I use oval 8's right now but am waiting on getting some metal ones with insurance and I would hate to spend money on them and they get messed up. Thanks!

  • @MomoPastel
    @MomoPastel 7 місяців тому

    I enjoy your videos

  • @theyggdrasilarchives
    @theyggdrasilarchives 2 роки тому +3

    do you have any tips for those looking into getting a wheelchair for EDS and POTS?

    • @disabilitywithsoleil
      @disabilitywithsoleil  2 роки тому +5

      Talk to your doctor about it and make sure you are seeing a specialist who works specifically with EDS and POTS patients. You'll usually have to have tried multiple treatments and have specific documented diagnosis. You can purchase a simple wheelchair yourself in Amazon for $100, if someone will be pushing you. You also will want to call your medical insurance and ask them how they determine coverage for durable medical equipment like wheelchairs and how much you will have to pay for it. I hope this helps!

  • @rudrarudra19
    @rudrarudra19 Рік тому

    I love you❤❤