Thank you for putting all this effort into making this. I’ve been in a hospital room all day being poked and prodded and scanned every way known and being able to jump back and forth through this compendium was tremendously helpful today 👍
My favourite part of this is that not only was Simon having to keep from laughing through the last entry, but his reaction to the final sentence made it clear that the timer in his office had JUST crossed the one hour mark.
I suffer with CVS. I just want to show my appreciation to you for covering this illness. It’s so hard to get awareness out especially in the medical field where it’s most needed. Thank you Simon 💙
I don’t have CVS, but I have a condition that gives me very bad nausea and vomiting, mostly when I first wake up, and my sympathy goes out to anyone suffering from long bouts of extreme nausea, you can’t get anything done properly, even talking or having anything near your neck can get you violently heaving, I hate it 🥲
Did I watch all this is one sitting? Yes. Did it soothe my adhd by going into a controlled rabbit hole by how long this video is? Yes. Please make more of these Simon!!!!!!
I have Exploding Head Syndrome and it wakes me up usually a couple of nights a week, sometimes multiple times in a night. For me, the form it usually takes is someone banging on my door like they're trying to break in. Unsurprisingly, this usually results in anxiety and heart palpitations severe enough. It takes me quite a while to get back to sleep. I also have constant visual snow, and started self-describing it like that years before hearing it described that way by anyone else. It's always noticeable, but gets so bad when I have a migraine coming on that I start having trouble making out faces or gauging distance between myself and objects. I also previously dated someone with both synesthesia and a water allergy.
Thank God. I was suddenly terrified I was special having a bright light wake me up numerous times a week, like someone is holding a flashlight to my face after breaking in.
I have had this in the past. To me it sounded like the “orchestra smash” sound typically found on Pet Shop Boys records😂 but mega loud! I also get hynogogic hallucinations, especially times when anxiety is high. Very, very real hallucinations that at times I’ve got out of bed to “touch”. I feel totally awake when I do this and I’ve now trained myself to understand they’re not real and just go back to sleep.
idk, i've seen my bf & his boys run an absolute train on the kitchen & it gets so savage & feral, idk if i recognize them at that point. i think the deal is once a male gets the taste of carbs after midnight, their jaws unhinge, their eyes roll back, & their masculine alpha chemistry takes over...they become unaware of their surroundings while they feed, so it's the perfect time to get some pranks set up for later
I had pica when my haemoglobin levels got insanely low, I'd crave ice and chalk like crazy, playing mine craft would make me so hungry from the digging dirt sounds, it went away after I got an iron infusion
Thank you for covering dysautonomia. My daughter and I have this. If we did not both have this the one who still did would probably not recognize all the varied symptoms. Finally we have doctors who are recognizing this.
Just please remember as a very large and disperse group of people, there are some Mormon beliefs that are cultural and not doctrinal, and may be stronger in some locations than others. Also, there are branch-off groups who want to cling to things not practiced/believed by the official church and some people just lump them all together for the scandal value (for example, the polygamists). We are not a hive mind, even if some places and families can be echo chambers.
Cilantro makes me taste soap too! I made tacos for my friends one time. Birria tacos. Spicy slow cooked beef. You put it in a corn tortilla and add cheese and cilantro. I kept wondering how I got dish soap in the food. I then also wondered why no one else at the table was having the trouble. I made my next taco without cilantro, and BOOM. I realized I'm "lucky" to have that gene
I have the same. Having had someone properly describe the "real" taste, anything that calls for cilantro/coriander leaf I now substitute with parsley and lemon juice. Apparently it's not identical but close enough the purists don't mind and I no longer feel like I have a mouthful of soap :)
The first few times I ever tried Pho and added cilantro, I hated it because of the soap taste. Then a few years went by and I didn't notice it as much if the quantity was not so much. Is this the same or did I have the luck of going to a bad Pho restaurant..?
I can sort of get the taste, but it's not really there for me personally. Like if I just eat the plant by itself? I can sort of understand why people taste soap. I still enjoy it, though maybe I enjoy it cause it tastes like soap? 🤣
I have mild prosopagnosia (face blindness). I have to meet someone 3 or 4 times before their face sticks in my mind. It can be a bit embarrassing sometimes.
I have prosopagnosia too. Mine is more severe though. I have many times ran up to strangers thinking they were family members and have been approached by close friends and family and didn’t recognize them because they cut their hair or weren’t wearing the clothes I normally see them in. It’s awkward,
Throughout my teens, our mother would occasionally come running into the room asking _"What's all the banging?"_ to the confusion of everyone in the house. Took years until I came across Exploding Head syndrome one day and the mystery was finally solved (Always happened when she went to bed a bit early)
'I actually have something similar to the first fact, called "cold urticaria". This is where one is allergic to cold air/water/drink/etc and bust out in hives when in contact with the cold. Mostly just hives and itching, nothing extreme.
Same; I have the life threatening type of this, where taking a cool shower or holding a cold drink could induce anaphylactic shock. All treatments have failed, and I’m currently in an experimental study @ John’s Hopkins.
My mom has it too, but hers can cause her airway to close up if it's too cold (for example she can't have ice in her drinks and has to let ice cream get melty before eating it, even then it often makes her cough).
VSS blew my mind when I learned about it a few years ago. I thought it was normal, too. I was not surprised to find out that migraine is a comorbidity (I have chronic migraine.)
@@medwyn5060 I got it checked out but they said it was "probably just some damage to my optical nerve or something". That was a long time ago though, I should give it another go.
I developed mine after enduring intense migraines for a few months. It was so bad, I couldn't read a paper book. I had to read all text digitally, and I got into audio books to adapt. Most people are born with visual snow and grow up with it being normal. As long as it doesn't cause any problems, you're fine.
25 years of being an OR nurse, I only saw situs inversus once. However, I was also told that Meckel's Diverticulum was exceptionally rare and I've seen about 20 of them! Seen 5 bezoars also.
You covered Cyclic Vomiting! I have that. Around June of last year, I weighed 80lbs. As an aside, tooth loss is also a symptom. All that acid and extra tooth-brushing over decades strips the enamel. Oh, it also caused a hiatyl hernia.
I think I may have this because it describes my currently unknown medical condition exactly and I want to suggest it as a diagnosis to my doctor so I can be tested and was wondering what tests you had done to confirm this so I can also request them. I agree it's definitely hell on your teeth I currently have all but a few of my front bottom ones left now because of the routine nausea spells I go through. Your the first person I've found that suffers from the same condition and I would like to chat more about what helps etc.
@@ladylove8565ask your doctor to send you to a gastrointestinal doctor for an EGD test (esophagogastroduodenoscopy). I had one and found out I had a hiatal hernia. It can also be used to check for other conditions
I know someone who has this too. His doctor says it's likely due to cannabis use (though of course most people who use cannabis won't have permanent ill effects, cyclic vomiting is a rare side effect) but they have to rule everything out as he has other medical/mental health issues.
@@matthewcrome legal weed is actually one of the few things that helps calm mine down. Only certain ones though and my doctors actually recommended I try it.
@@ladylove8565 Cyclic Vomiting is one of those things that is diagnosed by its symptoms. There is no simple blood, or dna, test for it. I 100% suggest you bring it up to your doctor. For me, I've had it since childhood, but was not diagnosed until adulthood. I have several other health issues that can effect digestion, like celiac disease and gastroparesis. Even with a gastroenterologist on my team, I continued to get worse and worse. I use Zofran, a prescription anti nausea med, and marijuana to keep the nausea down and help spark an appetite. Last June, an ER doctor saved my life with one simple sentence, "I think you should try the low-fodmap diet".
I have something like Aphantasia.. I don't visualize things, I just "hear" my thoughts constantly, but I have like a 2nd train of thought or another voice in my head going at all times that basically describes things to me or breaks down problems while my main train of thought continues rushing forward.
It might seem too simplistic but I've found focusing on slowly breathing deeply in, then hold it, then slowly breath out, then hold it... Will quiet the voices, your mind should become so preoccupied with why did my breathing go into manual mode that all you will be able to focus on is breathing
You might have schizophrenia. Hearing a voice other than your own typically isn't good. Granted I only took a semester of psychology and don't know every mental disorder but I don't know of any other that causes multiple voices in your head.
It's like I think the thought quietly until it's ready to be really thought and then finally might be a thing I say. It's more layers than that but idk how else to explain it. My inner thoughts have inner thoughts. 😂
There's so many people in the world that the possibility of such conditions is inevitable. We just need the grace to deal with them as we would like to be treated: With patience and understanding.
I've experienced the exploding head syndrome thing. I was homeless last year around this time and living out of my car while working 60-70 hours 6-7 days a week trying to save up for an apartment. I would either be falling asleep or just fallen asleep and it would be like a gun shot went off in my head. Not much scares me and I live in a fair amount of chronic pain from work and car accidents, and it was such a strange form of pain, like a knife to the brain. That plus waking up in an absolute panic. When I started getting my sleep schedule back to normal it stopped happening, but I definitely could look back through my Facebook and find multiple posts I put up begging for answers or if anyone I knew had experienced anything like it.
Flashes I rarely have seen in random places. In my mom's yard, growing up. And just randomly seeing a light reflecting on metal with no idea what caused it.
I suffer from sleep issues, one of which is the exploding head syndrome, and it is extremely annoying. I also have issues with sleep paralysis, but I don't get the hallucination, instead my anxiety takes over and I play the "what if" game, like what if the house catches on fire and I can't get out because I can't move, or what if something happens to a pet and I can't go and help them because I can't move. It takes me a bit to calm myself and just try and focus on just moving a toe, and then eventually my foot, before then my leg so I can kick myself over and wake the rest of my body up, it takes a lot of effort to do this though. I also sometimes struggle with night terrors. And also most nights my body believes that we don't need more than around 3-4 maybe up to 5 hours of sleep. I typically (not always though) can fall asleep easily, my issue is I don't stay asleep. I am going for a sleep study test in a couple months though.
Had a tooth semy explode once after a bothed dentists visit. The infection inside got so bad while being stopped by the cap, that the puss pressure cracked the tooth open, looking for a way out. It was as pleasant as it sound's. That said the relief once it cracked was a god sent
I went to school with a girl who suffered from water allergy. Any time she wiped the blackboard with a damp sponge - her hands would breakout in a rash
Regarding the victims’ recounting of their experience of exploding teeth and their veracity or supposed exaggeration, the jawbone is known to be an efficient transmitter of sound.
You should have elaborated more on the Factboius fixation. Like: Patients suffer from having an attention span of under three minutes, need to be supplied with facts constantly, regardless of them being of any use, and display withdrawal symptoms if the stream of information is unavailable for longer than twelve hours.
This is an absolutely perfect thing to have come out on a Friday. I stopped the video for a while so I could get out for a latte, and owing to the format if I forgot something I heard before I left, wouldn't matter.
A friend of mine has severe face blindness. She once almost took home the wrong little boy from preschool, because the kid was wearing a red shirt and blue shorts. Now the school staff know to take her child and lead him straight to her car, so there will be no more mixups. My friend's husband is a great "seeing eye dog", and announces the names of people as they come into the room. He'll say something like "Hey Bob, good to see you. That green tie is pretty snazzy." From there, his wife can track who's in the room. If Bob comes over the next day in a purple tie, he'll have to be reintroduced.
I’ve had EHS a few times in my life and the first I remember was when I was 8 and it was in the middle of the night and led me to being terrified to go to sleep and to believe in ghosts 😂 It got so bad my parents said they’d been considering whether they needed to send me to see a psychiatrist! Thank fully my dad said to keep my inhaler under my pillow and that ghosts hated them and that got me past it. And as an adult I know what EHS is so I’m not as alarmed when it happens now
Was going to watch this in parts, but after recognizing that i might have Aphantasia and maybe i'm not just creatively challenged i benched the rest of it, great work as always.
I didn’t so much suffer from Paris Syndrome as I did from Galeries Lafayette Syndrome. I’ve heard before going how it’s the world’s oldest and most successful luxury department store, so I went in expecting a high-end experience. Instead I got treated like I was some hairball a stray cat coughed up that’s been regurgitated out of the sewers, the clerks were rude and the polar opposite of helpful, their tone was condescending to the highest degree, and I got more eye rolls than normal eye contact. I walked in expecting to have some fun looking at the stuff on display and potentially splurging on something nice, I walked out ready to jump in front of traffic. I went to a small cafe after coming out of Lafayette looking like I just got thrown out of my own funeral, and the barista was nice enough to talk to me about it. When I told her what happened, she told me that “the people at Lafayette are the spawn of Satan” and “everyone in Paris hates them and wish they’d disappear”. It certainly made my mood brighten up quite quickly.
I have Aquagenic Pruritus that was triggered by complications of Ehlers Danlos syndrome. A good shower used to be my favourite way to relax, now I have to psych myself up for it😅
@ashdragon4000 I started saying complication to sort of simplify it, whenever I said comorbidity or mentioned MCAS I just ended up having to explain a whole bunch of different terms.
Aquagenic pruritus is a severe prickling-like sensation/itch which is triggered by the presence of water at any temperature and of any type (such as rainwater, seawater, bath/tap water, and even sweat) on the skin....some never shower ...its ok
57:05 I experienced this a lot as a small child. I remember hiding under my blankets because I thought they were “good bacteria” and “bad bacteria” coming to get me.
Hey! I have prosopagnosia. In media (TV, movies, etc.) it's usually represented only in its most severe form. I appreciate you pointing out that many of us only struggle with less familiar faces. (I'll always recognize my mom's face, but if you're a coworker who I haven't seen in 10 years and was never close with, I might struggle.) It also depends on how distinctive the person's characteristics are. If your face is kind of "vanilla" or average, you'll be harder to recognize. But if you have an unusual characteristic like red hair or a height of 6'8", you'll be easier to recognize. This is because, instead of just recognizing an overall pattern of a face, we memorize a list of characteristics for each person we meet. If I meet a 5'10" white guy with short brown hair who doesn't have any distinctive characteristics (like a big hook nose or something), I will struggle to recognize him. In addition to your physical appearance, we use your voice, your cadence, your gait (way of walking) and your typical clothing style to recognize you. We also use context clues---usually location. I might recognize my regular barista at the local coffee shop, but if I see her out of context, I'll have no idea who she is. Once, a friend of mine got a haircut and I didn't know who she was. I introduced myself as if we'd never met. She was so offended, lol. I've also had people get really mad at me because we met once at a party a year ago and I didn't remember them. With about 2% of the population having this condition, I hope people will learn to be a little more forgiving and not take it personally. It literally has nothing to do with you! Also keep in mind that a lot of people who have this condition don't even know it. I was in my 30's by the time I figured it out. I just thought everyone had these same difficulties. 😂 Bonus fact: we also have a hard time recognizing places, so we get lost *constantly.* Interestingly, I'm extraordinarily good at recognizing trees/plants by their leaves, flowers, etc. So it seems that, while we struggle with recognizing certain patterns, we can still excel at others.
Started watching thinking let's see how many of these I knew, roughly half dozen of them if you're wondering. I was barely finished watching before I realised that I need to talk to my GP about a couple of these. Some times I feel much taller than I am and everything looks proportionally smaller and at other times the reverse. I got diagnosed with "painless" migraines decades ago and I have pretty much every symptom described for the snow vision accompanied by tinnitus. I appear to be exhibiting symptoms of the totally real and not made up at all final entry.
Yeah I have (had) AiWLS too. Didnt know what it was until I heard a podcast a couple of years ago. Started when I was young, stopped when i was around 45. I also had the snow/firefly thing, and tinnitus, but I never related it to the AiWLS until …. just now.
@@pettermandt9200 The possible AIWLS symptoms I've been getting have only manifested in the last decade after an accident where I landed hard on my left side that damaging nearly all the major joints on that side and left me with some memory issues. I suspect that may be an underlying cause of what I'm experiencing. My "painless" migraine diagnosis pre-exists both the onset of the AIWLS symptoms and the categorisation of Visual Snow syndrome. Personally I don't think the 2 are related, at least not in my case anyway.
Nothing on FND? Weird. It sucks, with little known or even understood. The one about the body making alcohol was thought to be the problem for me, and it wasn't BPPV or Labrynthitis. Nothing like having the world consistently spinning while you can smell and taste every ingredient in your food and surroundings. Can't drive, walk alone, or do the normal every day things unless you learn to manage it. But, this was a fantastic episode! Love it!
Conversion disorder is the outdated term for FND. When FND was thought of (and still in many doctors eyes) to be also like hysteria. A specialist at the FND clinic at my hospital described it to be an issue with neuron activity and issues with neurons being able to acess pathways (e.g. the pathway to walk). Hope this helped you a wee bit. Fellow person diagnosed with FND
Please like this for anyone who has severe refractory “allergic” conditions so they can see this (potential solution explained below), such as chronic inducible urticaria. If your allergy meds or immunosuppressants aren’t working, please please talk to your doctor about monoclonal antibodies (xolair, dupixent, ilaris, etc…). I struggled for years with life threatening cold urticaria & allergies, and no known medication worked (I tried EVERYTHING + experimental studies) until ilaris (IL-1 inhibitor). Please ask your doctor about these if you’re struggling with severe allergies or urticaria, refractory to standard meds (like antihistamines); only 2 injections into my treatment and it’s been life changing for me.
I suffer from exploding head syndrome. It happens to me at least twice a week. When I hear it it literally sounds like an explosion. This didn't start till about three years ago. Idk what triggered it but I'm guessing it was my motorcycle accident. A car pulled out in front of me on a one lane Rd with no shoulder. So there was nothing I could do but jump at the last second so I didn't just slam into the car. But when I jumped my legs didn't make it getting clipped by the car sending me flipping through the air. And yes my head would be the first thing to hit the ground. So I assume this is how it started
Oh my goodness, has it really been an hour? I did fast forward a few minutes on a couple of occasions when the condition was too gruesome but I can't believe I kept listening for most of that time. Must be the animated speaking style, that I appreciate! Thanks for a very interesting video.
I get a really loud bang which shocks me, but only when my neck is twisted in a way which would give me a severe headache if I tried to sleep like that. Or if my breathing is obstructed, if I remember right. It's rare.
I get loud bangs or crashes or someone calling my name, yet he said it should only happen once or twice a lifetime, mine happens about once a month or two
@@reapersritehand Oof! I think when mine started, it might have been about once a month or 6 weeks. Sometimes it was a loud doorbell instead of a bang. Taking a bit better care of myself has reduced the frequency to the point where I was surprised it happened once this year, but I'm not quite sure which of my many life changes have helped.
When I'm wearing earbuds and there is silence for a long period of time I will hear vague orchestra music. Like piano and violins down the street. It's weird.
I had exploding head syndrome in college. It literally sounded like someone slamming a cabinet shut really hard right next to my head. It would startle me awake, and then I would go back to bed. I was also sleepwalking at the time, which has always been stress-related, so my doctor figured it was related to stress, too. Once I graduated, both went away.
I have EHS. It can happen as you wake up too. I usually hear a door slam, a loud door knock, or a doorbell ring. Sometimes it's other less distinct loud sounds but usually those three things.
I often get a doorbell ring and door slam. It took me a long time to work out what it was because while I heard it, my cats didn't react when they normally did.
@winterzee yeah, I have to lay there for a minute and try to decide if someone is really trying to get my attention at the door or if it was all in my head 😂
I used to get the smell of gas with it. I had the gas company out in the middle of the night several times sure there was a leak but it was just my narcolepsy aiding and abetting the process because why not? Basically I had to ignore the smell every night until it stopped happening. Ehs still happens though. I can also hear myself swallow and blink and can "click" my ears. I didn't know this wasn't true for everyone until my 30s.
Secondary Dysautonomia here (second to EDS)! Literally fucks up everything in my day. No treatment, no cure. Want to exercise? Heart won't speed up. Want to rest? Heart won't slow down? Want to stand up? Heart can't pump blood to brain cus veins don't pump blood back to heart. Plus blood pressure won't change to actually get your blood all the way up there. Cold? Body won't warm up. Hot? Body won't cool down. Body won't tell me it's hungry or thirsty or full or tired. Body doesn't tell me it needs to pee or tells me I ALWAYS need to pee, 'valves' in bladder don't respond so can't pee anyway. Stomach doesn't produce stomach acid to digest food after eating. Body doesn't respond to extreme temperature - grab something hot from the oven and you just burn cus you can't tell it's hot fast enough. The list goes on. 😢
I've had exploding head syndrome for maybe 10 years by this time. I'm currently 34 years old. It happens few and far between, but is very distinct and forces my eye to slam open when it happens. Maybe once to three times a year it happens, but I've had noises in my head that are like a cymbal crashing, a gunshot, or someone yelling my name super loud. My name being yelled is the most common one. It freaked me out for years before I finally found out what it was.
I had a dream where my dog was explaining quantum mechanics over coffee and a cigarette. When I woke up I told him that if he was going to smoke he'd have to do it in the garage.
I’ve had it several times over the years. It’s usually either a blast of my Shiba’s scream, or my name being called as if someone is yelling at the top of their lungs mere inches from my ear. Tears me out of sleep feeling like I narrowly avoided getting hit by a train. My Shiba crossed the rainbow bridge, though, so now it kinda hits different when I hear that shrill scream out of nowhere. Not surprised I’ve got something weird going on, though. Had migraines since preschool and have sleepwalked and had sleep paralysis at different times in my life. Something up there clearly isn’t working quite right.
Hey fellow CVS sufferers, look! We made it into the video! I can confirm, the video was mostly correct - some unlucky sufferers have episodes that coalesce into one long episode lasting weeks or more. And some variants are thought to be caused by mitochondrial disfunction and others by menstrual cycles. We often get mistaken by nurses for drug-seekers, so they can sometimes be hesitant to give us IV fluids (even though fluids is the main thing we need when we go to hospital) because they think we’ll sneak out and use the IV cannula to inject hard drugs. Lots of us also use medical cannabis as an antiemetic to treat the extreme nausea we experience, and so many doctors and nurses get us mixed up with a totally different syndrome with similar symptoms called CHS which is caused by extremely heavy use of cannabis. They can blame those whose blood results show THC for causing their illness and often refuse treatment thinking it’s the patient’s own fault and that they deserve to suffer since they think it’s self-inflicted. I’m extremely lucky to have been a candidate for treatment - a migraine therapy put me in remission and I haven’t landed in hospital for severe dehydration in nearly 2 years now!
...what if all fish have fish odor syndrome? What if land animals just typically have lack-of-fish-odor syndrome?
11 днів тому
I've 100% definitely been diagnosed with Factboius Fixation. No known treatment, and my cats are constantly complaining that I'm late with their swpr. The struggle is real. 👓
My cousin was bit by a tick and was subsequently allergic to red meat. Fortunately in his case the symptoms quickly diminished and eventually vanished after only a couple months. It almost stopped him from joining the military but he was able to prove his recovery to the recruiter XD
I've been trying to figure out what I have for years and now suddenly I see exactly what happens to me detailed in number 40 cyclic vomiting syndrome. I'm going to have my doctor test for this and maybe I'll finally be able to get on medication that will help alleviate my symptoms. Thanks Simon
Great video! And, yes, I was paying attention all the way through, but at one point I got distracted and so was confused for a moment by the really-real psychological condition at the very end. Lol
True, at 13 got very sick. They ended up doing exploration surgery. My right side ovarian cyct. A bit young but not impossible. However my appendix was low, wrapped around the overy, strangling it. Besides the odd place, my appendix was in perfect health. Except, it was the size of a 7 ft tall basketball player. The only other time he had seen on like that. Also my big brother also had his appendix in the wrong place and had his removed at the same age
Hmm...I haven't read all of the comments, but I'm surprised that one of the top comments isn't, "Oh, my 8 year-old son is allergic to water, too. He doesn't break out in hives, though, but tantrums."
Eating too much wheat caused me to have chronic fatigue for 10 years. I slept for up to 16 hours a day. I don't know if it's wheat, or gluten, or the pesticides that they spray on the crop but it's a real condition. I am now wheat- and fatigue- free.
Oh yeah my uncle has aphantasia. He always talks about how people telling him to "imagine" things drives him crazy because you totally have to show him a picture. My granfather can't hear music in his head either lol. They're both PhDs in analytical sciences.
I suffer from Corrie osis. It used to affect me twice a week, Mondays and Wednesdays, for half an hour at a time but nowadays it seems to happen all the bloody time! My wife can’t seem to escape it and I’m afraid there’s not much hope for her😢
I worked with a guy with "fish odor syndrome" when I was young. While the guy was smart and hard working, he was really hard for me to work with because of that odor. In an ironic twist, my sense of smell has greatly diminished, and I cannot smell such smells now, and could probably work with him with no problem today.
I had Exploding Head Syndrome for a long time, around 40 years. For me it was around 6 times a year and sounded like a freight train horn. The experience never bothered me, but I didn't know it was an actual thing. I just thought it was something else wrong with me. It went away a few years ago as far as I can tell, after seeing Simon's first video on the topic and doing some research afterward. It seems that having it acknowledged and learning a bit about it really can make it go away. Now if only I could stop becoming paralyzed before I've fully fallen asleep. I wonder if that has a name too?
I've had exploding head syndrome my whole life. I often wake up to what sounds like a very loud door being slammed or someone firing a shotgun right next to me.
I have aphantasia and I actually dream the same way my imagination works. Everything is abstract, and if I try to "look" at something I just end up getting frustrated because it doesnt work.
OMG! I was falling asleep one time and heard an explosion in my head that startled me and made my ears ring. I didnt know it is a syndrome till i seen this video. thank you!
14:40 Semi-interesting story: When I took Biology 101 (20+ years ago), my instructor had a 3-volume series of books on Mendelian Genetics. One of the books had every known (to that point) genetic disease/mutation. I came across MSUD in this book and thought it was funny, due to the name. The instructor asked if I had internet at home (still a valid question in ‘03-04 range) and I could receive 10 bonus points if I researched the disease and turned in a paper. I did so, and upon realizing how serious the disease was, I kinda felt bad. Pretty neat to see it mentioned in a Fact Boi video, as anytime I’ve relayed that story, no one had heard of the disease. Great job to the author of the script! (I haven’t finished the video, so I’m not sure who it was. I would guess Danny or Katie.) Edit: Ah! It was Kevin all along 😂
whenever i go to a grocery store chain that is set up the same as all the others of that name, i feel like i can imagine leaving and being in another city. or my sense of NESW direction can flip while in the store.
I have aphantasia! It was always weird when people said to visualise stuff in the “minds eye” until i learned that aphantasia was a thing. (I cant visualise anything in minds eye, as per the description in this video) I also have some face blindness though its pretty mild and only happens for random people or acquaintances.
Interesting Fact about “Exploding Head Syndrome”: Morphine, specifically, and it’s derivatives (codeine etc) was studied for causing this in patients, while other opioids didnt. The most reported phenomenon patients had was the sense of somebody screaming their name inches from their ear, jolting them awake. So maybe this could point us in the right direction as to what it’s caused from, some neurotransmitter imbalance or something possibly A friend I lived with experienced this one night, too. And later when I experienced it while sleeping on morphine, let me just tell you… it’s lucidly terrifying. I can vividly recall waking up, still feeling the breathe blowing on your ear. The sensation is so real, it really rattles you to your core. Let alone the weird, dystopian sleep realm opoids give you (feeling of love and bliss while awake, gloomy nightmares of nothingness and nowhere-ness as you sleep), it’s terrifying for something to feel so real that isn’t
My older son was born very prematurely and ended up with severe cerebral palsy brought on by a massive brain bleed when he was 2 days old. Subsequent CT scans show he has no corpus callosum. While I have no idea whether he has a form of alien hand syndrome, he has almost no control over his left arm. If he wants to move it somehow, he has to grab it with his right hand and pull. (Not that his right side is normal. He has virtually no fine motor control.)
I have a few. 1) I'm allergic to onion oil (a rare form of sulfur allergy). 2) I'm allergic to anti-histamine. 3) I have an extremely rare form of Migraine headaches that less than 12 people in the world have, caused by a mutation in 2 genes.
20:33 guess I lucked out with my Celiac disease because if I eat it I feel hungover for a day or two. Head/ body aches, everything wants to exit my body with force…
Oh man, I had exploding head syndrome back when i was working overnight shifts and sleeping on the floor. It sounded like something very heavy falling on the roof!
Gawd EHS happens to me approximately twice a year or so. There has been years between and then all of a sudden it's a few days in a row. It's annoying AF.
0:45 - N°1 - Water allergy
2:20 - N°2 - Pemphigoid gestationis
3:35 - N°3 - Paris syndrome
4:55 - N°4 - Uner tan syndrome
6:05 - N°5 - Face blindness
7:30 - N°6 - Capgras delusion
9:00 - N°7 - Cotard delusion
10:10 - N°8 - Alien hand syndrome
12:05 - N°9 - Exploding head syndrome
13:25 - N°10 - Fish odor syndrome
14:40 - N°11 - Maple syrup urine disease
15:55 - N°12 - Jumping frenchmen of maine
16:55 - N°13 - Synesthesia
18:30 - N°14 - Aphantasia
19:40 - N°15 - Gluten psychosis
20:55 - N°16 - Alpha gal syndrome
21:50 - N°17 - Fregoli delusion
23:05 - N°18 - Reduplicative paramnesia
24:05 - N°19 - Syndrome of subjective doubles
25:15 - N°20 - Erotomania
26:25 - N°21 - Apotemnophilia
27:30 - N°22 - Autophagia
28:25 - N°23 - Clinical lycanthropy
29:35 - N°24 - Human werewolf syndrome
30:35 - N°25 - Koro
32:40 - N°26 - Dysautonomia
33:40 - N°27 - Persistent genital arousal disorder
35:00 - N°28 - Auto brewery syndrome
36:15 - N°29 - Pica
37:30 - N°30 - Congenital insensitivity to pain
38:55 - N°31 - Proteus syndrome
40:20 - N°32 - Stendhal syndrome
41:25 - N°33 - Jerusalem syndrome
42:25 - N°34 - Alice in wonderland syndrome
43:50 - N°35 - Stoneman syndrome
44:55 - N°36 - Geographic tongue
46:15 - N°37 - Clinical vampirism
47:10 - N°38 - Xeroderma pigmentosum
48:10 - N°39 - Sweating blood
48:55 - N°40 - Cyclic vomiting syndrome
50:20 - N°41 - Situs inversus
51:35 - N°42 - Situs ambiguus
52:20 - N°43 - Exploding teeth
53:50 - N°44 - Pathological lying
55:20 - N°45 - The cilantro gene
56:15 - N°46 - Visual snow syndrome
57:30 - N°47 - Ekbom syndrome
58:50 - N°48 - Conversion disorder
59:50 - N°49 - Selective mutism
1:01:20 - N°50 - Factboius fixation
How do doctors keep all these straight?
You are my kind of human!
Thank you!
😊
Edit: Please reply so I can find this comment again.
@24pickles24 I saw your reply to another post about
researching them right after I found this one.
Doing the lords work!
Thank you for putting all this effort into making this. I’ve been in a hospital room all day being poked and prodded and scanned every way known and being able to jump back and forth through this compendium was tremendously helpful today 👍
My favourite part of this is that not only was Simon having to keep from laughing through the last entry, but his reaction to the final sentence made it clear that the timer in his office had JUST crossed the one hour mark.
This comment made me skip to the end so I could see it before I inevitably fall asleep listening to Simon's soothing tone. 🤣
@@lucyst8 Glad it made you laugh!
And I tried biteing my nails at about middle of it, had not tried it in about 30 years, still does not work for me.
You didn't write a treatment? How am I supposed to fix this debilitating disease?
I suffer with CVS.
I just want to show my appreciation to you for covering this illness. It’s so hard to get awareness out especially in the medical field where it’s most needed.
Thank you Simon 💙
Same but I've got a good gi dr now that has me on a few meds after much testing and so far only one episode this year.
I don’t have CVS, but I have a condition that gives me very bad nausea and vomiting, mostly when I first wake up, and my sympathy goes out to anyone suffering from long bouts of extreme nausea, you can’t get anything done properly, even talking or having anything near your neck can get you violently heaving, I hate it 🥲
Did I watch all this is one sitting? Yes. Did it soothe my adhd by going into a controlled rabbit hole by how long this video is? Yes. Please make more of these Simon!!!!!!
"mY aDhD" 👶
Fascinating! ❤
I feel you girl
Gang gang 👊 😅
But I really do live down in a rabbit hole I fell into. It's called the world today.
I have Exploding Head Syndrome and it wakes me up usually a couple of nights a week, sometimes multiple times in a night. For me, the form it usually takes is someone banging on my door like they're trying to break in. Unsurprisingly, this usually results in anxiety and heart palpitations severe enough. It takes me quite a while to get back to sleep. I also have constant visual snow, and started self-describing it like that years before hearing it described that way by anyone else. It's always noticeable, but gets so bad when I have a migraine coming on that I start having trouble making out faces or gauging distance between myself and objects.
I also previously dated someone with both synesthesia and a water allergy.
Thank God. I was suddenly terrified I was special having a bright light wake me up numerous times a week, like someone is holding a flashlight to my face after breaking in.
I remember checking twitter and news websites because i was positive some serious ish had gone down.
I might have it too, I wake up sometimes because I heard someone shout my name or someone rang the doorbell(they didn't )
I have had this in the past. To me it sounded like the “orchestra smash” sound typically found on Pet Shop Boys records😂 but mega loud! I also get hynogogic hallucinations, especially times when anxiety is high. Very, very real hallucinations that at times I’ve got out of bed to “touch”. I feel totally awake when I do this and I’ve now trained myself to understand they’re not real and just go back to sleep.
For me it's the sound of a large balloon being popped
20:13 "under the influence of gluten" is a phrase i never thought i would hear
Lol I have celiac disease so I'm no longer under the influence of gluten
idk, i've seen my bf & his boys run an absolute train on the kitchen & it gets so savage & feral, idk if i recognize them at that point. i think the deal is once a male gets the taste of carbs after midnight, their jaws unhinge, their eyes roll back, & their masculine alpha chemistry takes over...they become unaware of their surroundings while they feed, so it's the perfect time to get some pranks set up for later
I’m going to use this one as I yell from the bathroom next time I’ve been “glutened.”
More longform Sideprojects of this nature please.
Enjoyed that. I'd love a Part 2 as there are so many more rare and strange conditions.
I have gluten psychosis and had to go to the hospital and while in psychiatric treatment, I got diagnosed with celiac.
I had pica when my haemoglobin levels got insanely low, I'd crave ice and chalk like crazy, playing mine craft would make me so hungry from the digging dirt sounds, it went away after I got an iron infusion
If you read book "The 23 Former Doctor Truths" you will exactly know what is this video talking about here. Modern industry is killing us quietly.
Thank you for covering dysautonomia. My daughter and I have this. If we did not both have this the one who still did would probably not recognize all the varied symptoms. Finally we have doctors who are recognizing this.
requesting a brain blaze on all the weird stuff mormons believe
Yes please!
Soon as I return from my home planet and don a fresh set of Star Trek underwear, I'll send Simon some factoids.
😜
Just please remember as a very large and disperse group of people, there are some Mormon beliefs that are cultural and not doctrinal, and may be stronger in some locations than others. Also, there are branch-off groups who want to cling to things not practiced/believed by the official church and some people just lump them all together for the scandal value (for example, the polygamists). We are not a hive mind, even if some places and families can be echo chambers.
Yes! What the hell is “Soaking”?
@megangabriell7583 and anthrposophists too please ❤
Cilantro makes me taste soap too!
I made tacos for my friends one time. Birria tacos. Spicy slow cooked beef. You put it in a corn tortilla and add cheese and cilantro. I kept wondering how I got dish soap in the food. I then also wondered why no one else at the table was having the trouble. I made my next taco without cilantro, and BOOM. I realized I'm "lucky" to have that gene
I have the same. Having had someone properly describe the "real" taste, anything that calls for cilantro/coriander leaf I now substitute with parsley and lemon juice. Apparently it's not identical but close enough the purists don't mind and I no longer feel like I have a mouthful of soap :)
The first few times I ever tried Pho and added cilantro, I hated it because of the soap taste. Then a few years went by and I didn't notice it as much if the quantity was not so much. Is this the same or did I have the luck of going to a bad Pho restaurant..?
I can sort of get the taste, but it's not really there for me personally. Like if I just eat the plant by itself? I can sort of understand why people taste soap. I still enjoy it, though maybe I enjoy it cause it tastes like soap? 🤣
I do not taste soap, but its absolutely disgusting for me, I'll gag
I have mild prosopagnosia (face blindness). I have to meet someone 3 or 4 times before their face sticks in my mind. It can be a bit embarrassing sometimes.
I also have this. It’s very frustrating. I’m glad mine is mild too.
I have prosopagnosia too. Mine is more severe though. I have many times ran up to strangers thinking they were family members and have been approached by close friends and family and didn’t recognize them because they cut their hair or weren’t wearing the clothes I normally see them in. It’s awkward,
Throughout my teens, our mother would occasionally come running into the room asking _"What's all the banging?"_ to the confusion of everyone in the house.
Took years until I came across Exploding Head syndrome one day and the mystery was finally solved (Always happened when she went to bed a bit early)
'I actually have something similar to the first fact, called "cold urticaria". This is where one is allergic to cold air/water/drink/etc and bust out in hives when in contact with the cold.
Mostly just hives and itching, nothing extreme.
Same; I have the life threatening type of this, where taking a cool shower or holding a cold drink could induce anaphylactic shock. All treatments have failed, and I’m currently in an experimental study @ John’s Hopkins.
SAME! I live in an area where the air causes me to break out in hives during the winter.
My mom has it too, but hers can cause her airway to close up if it's too cold (for example she can't have ice in her drinks and has to let ice cream get melty before eating it, even then it often makes her cough).
I... I actually didn't know I might suffer from visual snow syndrome until now. I just thought that's how things were. Thank you, Simon!
VSS blew my mind when I learned about it a few years ago. I thought it was normal, too. I was not surprised to find out that migraine is a comorbidity (I have chronic migraine.)
I have visual snow, but I also have a brain disorder that causes it. You should get checked by an ophthalmologist and make sure it's just that.
@@medwyn5060 I got it checked out but they said it was "probably just some damage to my optical nerve or something". That was a long time ago though, I should give it another go.
@@batty_cats I get migraines too. Maybe my VSS is connected to it too. Mine have gotten better with age though, hope yours do too!
I developed mine after enduring intense migraines for a few months. It was so bad, I couldn't read a paper book. I had to read all text digitally, and I got into audio books to adapt. Most people are born with visual snow and grow up with it being normal. As long as it doesn't cause any problems, you're fine.
Very interesting. I particularly enjoyed it being a longer edition than usual.
Paris Syndrome - sounds like what I'm experiencing right now due to PTSD.
Apparently you can be rendered speechless and slide off your chair in shock
25 years of being an OR nurse, I only saw situs inversus once. However, I was also told that Meckel's Diverticulum was exceptionally rare and I've seen about 20 of them! Seen 5 bezoars also.
My mom has situs inversus with dextrocardia
0:50 woah, hang on a minute! If that's what it looks like normally, what on earth is it like when he's excited?! Good god...
I mean... He does talk about bellends now and then...
I like the long Sideprojects lists like this ..... more please!
You covered Cyclic Vomiting! I have that. Around June of last year, I weighed 80lbs. As an aside, tooth loss is also a symptom. All that acid and extra tooth-brushing over decades strips the enamel. Oh, it also caused a hiatyl hernia.
I think I may have this because it describes my currently unknown medical condition exactly and I want to suggest it as a diagnosis to my doctor so I can be tested and was wondering what tests you had done to confirm this so I can also request them. I agree it's definitely hell on your teeth I currently have all but a few of my front bottom ones left now because of the routine nausea spells I go through. Your the first person I've found that suffers from the same condition and I would like to chat more about what helps etc.
@@ladylove8565ask your doctor to send you to a gastrointestinal doctor for an EGD test (esophagogastroduodenoscopy). I had one and found out I had a hiatal hernia. It can also be used to check for other conditions
I know someone who has this too. His doctor says it's likely due to cannabis use (though of course most people who use cannabis won't have permanent ill effects, cyclic vomiting is a rare side effect) but they have to rule everything out as he has other medical/mental health issues.
@@matthewcrome legal weed is actually one of the few things that helps calm mine down. Only certain ones though and my doctors actually recommended I try it.
@@ladylove8565 Cyclic Vomiting is one of those things that is diagnosed by its symptoms. There is no simple blood, or dna, test for it. I 100% suggest you bring it up to your doctor.
For me, I've had it since childhood, but was not diagnosed until adulthood. I have several other health issues that can effect digestion, like celiac disease and gastroparesis. Even with a gastroenterologist on my team, I continued to get worse and worse. I use Zofran, a prescription anti nausea med, and marijuana to keep the nausea down and help spark an appetite. Last June, an ER doctor saved my life with one simple sentence, "I think you should try the low-fodmap diet".
I'm glad #50 is finally getting some recognition, it's a lot more common than people think!
I have something like Aphantasia.. I don't visualize things, I just "hear" my thoughts constantly, but I have like a 2nd train of thought or another voice in my head going at all times that basically describes things to me or breaks down problems while my main train of thought continues rushing forward.
Yeeaahh, I think you're just psychotic because hearing 2 voices in your head is absolutely not normal at all. Get help.
I feel the same sometimes. I want the running dialog in my head to shut up for awhile and give me some peace and quiet.
It might seem too simplistic but I've found focusing on slowly breathing deeply in, then hold it, then slowly breath out, then hold it... Will quiet the voices, your mind should become so preoccupied with why did my breathing go into manual mode that all you will be able to focus on is breathing
You might have schizophrenia. Hearing a voice other than your own typically isn't good. Granted I only took a semester of psychology and don't know every mental disorder but I don't know of any other that causes multiple voices in your head.
It's like I think the thought quietly until it's ready to be really thought and then finally might be a thing I say. It's more layers than that but idk how else to explain it. My inner thoughts have inner thoughts. 😂
I suffered terrible factboi syndrome a few years ago. But it was self correcting. I just watched everything, and once caught up I felt much better 😊
Also watched the whole thing in a sitting. Your audience demands ENCORE!
There's so many people in the world that the possibility of such conditions is inevitable. We just need the grace to deal with them as we would like to be treated: With patience and understanding.
I've experienced the exploding head syndrome thing. I was homeless last year around this time and living out of my car while working 60-70 hours 6-7 days a week trying to save up for an apartment. I would either be falling asleep or just fallen asleep and it would be like a gun shot went off in my head. Not much scares me and I live in a fair amount of chronic pain from work and car accidents, and it was such a strange form of pain, like a knife to the brain. That plus waking up in an absolute panic. When I started getting my sleep schedule back to normal it stopped happening, but I definitely could look back through my Facebook and find multiple posts I put up begging for answers or if anyone I knew had experienced anything like it.
I haven't had pain, but I see the flashes a couple times a week and it makes me jump awake just to see if someone broke in and I didn't hear them.
Flashes I rarely have seen in random places. In my mom's yard, growing up. And just randomly seeing a light reflecting on metal with no idea what caused it.
Yes Kevin, I caught factboius at the end...
Me too
Yep. Definitely have it also.
Lol
OMG! I have Factboius Fixation. Maybe. It's so hard to self-diagnose when Simon has a smile on his face.
I suffer from sleep issues, one of which is the exploding head syndrome, and it is extremely annoying.
I also have issues with sleep paralysis, but I don't get the hallucination, instead my anxiety takes over and I play the "what if" game, like what if the house catches on fire and I can't get out because I can't move, or what if something happens to a pet and I can't go and help them because I can't move.
It takes me a bit to calm myself and just try and focus on just moving a toe, and then eventually my foot, before then my leg so I can kick myself over and wake the rest of my body up, it takes a lot of effort to do this though.
I also sometimes struggle with night terrors.
And also most nights my body believes that we don't need more than around 3-4 maybe up to 5 hours of sleep.
I typically (not always though) can fall asleep easily, my issue is I don't stay asleep.
I am going for a sleep study test in a couple months though.
I think I may have Factboius Fixation
😂😂😂
Me too! It affects many aspects of my life, such as sleep and socializing.
I have a terminal case of Factboius Fixation. The only relief I can get is when I'm listening to one of his 27 channels.
I am suffered by the same thing!
Hahaha I have it so bad my husband will ask me most nights what Factboi was up to today 😂😂
Had a tooth semy explode once after a bothed dentists visit. The infection inside got so bad while being stopped by the cap, that the puss pressure cracked the tooth open, looking for a way out. It was as pleasant as it sound's. That said the relief once it cracked was a god sent
It happens twice to me, too. After the " Explosion ", my recurrent abscesses on these theet, simply disappear.
I went to school with a girl who suffered from water allergy. Any time she wiped the blackboard with a damp sponge - her hands would breakout in a rash
Regarding the victims’ recounting of their experience of exploding teeth and their veracity or supposed exaggeration, the jawbone is known to be an efficient transmitter of sound.
You should have elaborated more on the Factboius fixation. Like: Patients suffer from having an attention span of under three minutes, need to be supplied with facts constantly, regardless of them being of any use, and display withdrawal symptoms if the stream of information is unavailable for longer than twelve hours.
This is an absolutely perfect thing to have come out on a Friday. I stopped the video for a while so I could get out for a latte, and owing to the format if I forgot something I heard before I left, wouldn't matter.
Loved every minute of this, especially the last one! I definitely have a pretty severe case of factboius fixation.
A friend of mine has severe face blindness. She once almost took home the wrong little boy from preschool, because the kid was wearing a red shirt and blue shorts. Now the school staff know to take her child and lead him straight to her car, so there will be no more mixups. My friend's husband is a great "seeing eye dog", and announces the names of people as they come into the room. He'll say something like "Hey Bob, good to see you. That green tie is pretty snazzy." From there, his wife can track who's in the room. If Bob comes over the next day in a purple tie, he'll have to be reintroduced.
I’ve had EHS a few times in my life and the first I remember was when I was 8 and it was in the middle of the night and led me to being terrified to go to sleep and to believe in ghosts 😂 It got so bad my parents said they’d been considering whether they needed to send me to see a psychiatrist! Thank fully my dad said to keep my inhaler under my pillow and that ghosts hated them and that got me past it. And as an adult I know what EHS is so I’m not as alarmed when it happens now
Was going to watch this in parts, but after recognizing that i might have Aphantasia and maybe i'm not just creatively challenged i benched the rest of it, great work as always.
I didn’t so much suffer from Paris Syndrome as I did from Galeries Lafayette Syndrome. I’ve heard before going how it’s the world’s oldest and most successful luxury department store, so I went in expecting a high-end experience. Instead I got treated like I was some hairball a stray cat coughed up that’s been regurgitated out of the sewers, the clerks were rude and the polar opposite of helpful, their tone was condescending to the highest degree, and I got more eye rolls than normal eye contact. I walked in expecting to have some fun looking at the stuff on display and potentially splurging on something nice, I walked out ready to jump in front of traffic.
I went to a small cafe after coming out of Lafayette looking like I just got thrown out of my own funeral, and the barista was nice enough to talk to me about it. When I told her what happened, she told me that “the people at Lafayette are the spawn of Satan” and “everyone in Paris hates them and wish they’d disappear”. It certainly made my mood brighten up quite quickly.
I have Aquagenic Pruritus that was triggered by complications of Ehlers Danlos syndrome. A good shower used to be my favourite way to relax, now I have to psych myself up for it😅
Complications of EDS or a comorbidity? Like a lot of us have MCAS. If complication can you elaborate a little?
@ashdragon4000 I started saying complication to sort of simplify it, whenever I said comorbidity or mentioned MCAS I just ended up having to explain a whole bunch of different terms.
Oh wow that sounds like major suck, getting POTSy from any shower long enough to soothe is bad enough. Zebra hugs
Always nice to see fellow zebras!
Aquagenic pruritus is a severe prickling-like sensation/itch which is triggered by the presence of water at any temperature and of any type (such as rainwater, seawater, bath/tap water, and even sweat) on the skin....some never shower ...its ok
57:05 I experienced this a lot as a small child. I remember hiding under my blankets because I thought they were “good bacteria” and “bad bacteria” coming to get me.
Hey! I have prosopagnosia. In media (TV, movies, etc.) it's usually represented only in its most severe form. I appreciate you pointing out that many of us only struggle with less familiar faces. (I'll always recognize my mom's face, but if you're a coworker who I haven't seen in 10 years and was never close with, I might struggle.)
It also depends on how distinctive the person's characteristics are. If your face is kind of "vanilla" or average, you'll be harder to recognize. But if you have an unusual characteristic like red hair or a height of 6'8", you'll be easier to recognize. This is because, instead of just recognizing an overall pattern of a face, we memorize a list of characteristics for each person we meet. If I meet a 5'10" white guy with short brown hair who doesn't have any distinctive characteristics (like a big hook nose or something), I will struggle to recognize him. In addition to your physical appearance, we use your voice, your cadence, your gait (way of walking) and your typical clothing style to recognize you. We also use context clues---usually location. I might recognize my regular barista at the local coffee shop, but if I see her out of context, I'll have no idea who she is.
Once, a friend of mine got a haircut and I didn't know who she was. I introduced myself as if we'd never met. She was so offended, lol. I've also had people get really mad at me because we met once at a party a year ago and I didn't remember them. With about 2% of the population having this condition, I hope people will learn to be a little more forgiving and not take it personally. It literally has nothing to do with you! Also keep in mind that a lot of people who have this condition don't even know it. I was in my 30's by the time I figured it out. I just thought everyone had these same difficulties. 😂
Bonus fact: we also have a hard time recognizing places, so we get lost *constantly.*
Interestingly, I'm extraordinarily good at recognizing trees/plants by their leaves, flowers, etc. So it seems that, while we struggle with recognizing certain patterns, we can still excel at others.
Started watching thinking let's see how many of these I knew, roughly half dozen of them if you're wondering. I was barely finished watching before I realised that I need to talk to my GP about a couple of these. Some times I feel much taller than I am and everything looks proportionally smaller and at other times the reverse. I got diagnosed with "painless" migraines decades ago and I have pretty much every symptom described for the snow vision accompanied by tinnitus.
I appear to be exhibiting symptoms of the totally real and not made up at all final entry.
Yeah I have (had) AiWLS too. Didnt know what it was until I heard a podcast a couple of years ago. Started when I was young, stopped when i was around 45. I also had the snow/firefly thing, and tinnitus, but I never related it to the AiWLS until …. just now.
@@pettermandt9200 The possible AIWLS symptoms I've been getting have only manifested in the last decade after an accident where I landed hard on my left side that damaging nearly all the major joints on that side and left me with some memory issues. I suspect that may be an underlying cause of what I'm experiencing.
My "painless" migraine diagnosis pre-exists both the onset of the AIWLS symptoms and the categorisation of Visual Snow syndrome.
Personally I don't think the 2 are related, at least not in my case anyway.
@@jackvos8047 AiWS is a bitch, I have had it alongside my migraines before.
My anxiety and depression are just goin nuts on this episode. So interesting but i feel so bad and terrified for people with these disorders
Nothing on FND? Weird. It sucks, with little known or even understood. The one about the body making alcohol was thought to be the problem for me, and it wasn't BPPV or Labrynthitis. Nothing like having the world consistently spinning while you can smell and taste every ingredient in your food and surroundings. Can't drive, walk alone, or do the normal every day things unless you learn to manage it.
But, this was a fantastic episode! Love it!
Conversion disorder is the outdated term for FND. When FND was thought of (and still in many doctors eyes) to be also like hysteria. A specialist at the FND clinic at my hospital described it to be an issue with neuron activity and issues with neurons being able to acess pathways (e.g. the pathway to walk). Hope this helped you a wee bit. Fellow person diagnosed with FND
LOL. That last one was great and I definitely have it! Thanks guys.
Wow, Simon!!! This was fascinating! I ❤❤❤ your work! Thank you! SUBSCRIBED!!!
Please like this for anyone who has severe refractory “allergic” conditions so they can see this (potential solution explained below), such as chronic inducible urticaria. If your allergy meds or immunosuppressants aren’t working, please please talk to your doctor about monoclonal antibodies (xolair, dupixent, ilaris, etc…). I struggled for years with life threatening cold urticaria & allergies, and no known medication worked (I tried EVERYTHING + experimental studies) until ilaris (IL-1 inhibitor). Please ask your doctor about these if you’re struggling with severe allergies or urticaria, refractory to standard meds (like antihistamines); only 2 injections into my treatment and it’s been life changing for me.
I suffer from exploding head syndrome. It happens to me at least twice a week. When I hear it it literally sounds like an explosion. This didn't start till about three years ago. Idk what triggered it but I'm guessing it was my motorcycle accident. A car pulled out in front of me on a one lane Rd with no shoulder. So there was nothing I could do but jump at the last second so I didn't just slam into the car. But when I jumped my legs didn't make it getting clipped by the car sending me flipping through the air. And yes my head would be the first thing to hit the ground. So I assume this is how it started
Oh my goodness, has it really been an hour? I did fast forward a few minutes on a couple of occasions when the condition was too gruesome but I can't believe I kept listening for most of that time. Must be the animated speaking style, that I appreciate! Thanks for a very interesting video.
I’ve heard ringing bells just before falling asleep, wasn’t too loud but watching the part about EHS brought back some memories
I get a really loud bang which shocks me, but only when my neck is twisted in a way which would give me a severe headache if I tried to sleep like that. Or if my breathing is obstructed, if I remember right. It's rare.
I get doors banging & one particular daughter shouting 'mom'. Drives me crazy 😅
I get loud bangs or crashes or someone calling my name, yet he said it should only happen once or twice a lifetime, mine happens about once a month or two
@@reapersritehand Oof! I think when mine started, it might have been about once a month or 6 weeks. Sometimes it was a loud doorbell instead of a bang. Taking a bit better care of myself has reduced the frequency to the point where I was surprised it happened once this year, but I'm not quite sure which of my many life changes have helped.
When I'm wearing earbuds and there is silence for a long period of time I will hear vague orchestra music. Like piano and violins down the street. It's weird.
I had exploding head syndrome in college. It literally sounded like someone slamming a cabinet shut really hard right next to my head. It would startle me awake, and then I would go back to bed. I was also sleepwalking at the time, which has always been stress-related, so my doctor figured it was related to stress, too. Once I graduated, both went away.
I have EHS. It can happen as you wake up too. I usually hear a door slam, a loud door knock, or a doorbell ring. Sometimes it's other less distinct loud sounds but usually those three things.
I do too, i thought it was a normal thing everyone had ... I always hear a loud bang, kinda like a firework... the more you know
I often get a doorbell ring and door slam. It took me a long time to work out what it was because while I heard it, my cats didn't react when they normally did.
@winterzee yeah, I have to lay there for a minute and try to decide if someone is really trying to get my attention at the door or if it was all in my head 😂
I used to get the smell of gas with it. I had the gas company out in the middle of the night several times sure there was a leak but it was just my narcolepsy aiding and abetting the process because why not? Basically I had to ignore the smell every night until it stopped happening. Ehs still happens though.
I can also hear myself swallow and blink and can "click" my ears. I didn't know this wasn't true for everyone until my 30s.
I also get someone calling my name, almost like screaming it to wake me up
Secondary Dysautonomia here (second to EDS)! Literally fucks up everything in my day. No treatment, no cure. Want to exercise? Heart won't speed up. Want to rest? Heart won't slow down? Want to stand up? Heart can't pump blood to brain cus veins don't pump blood back to heart. Plus blood pressure won't change to actually get your blood all the way up there. Cold? Body won't warm up. Hot? Body won't cool down. Body won't tell me it's hungry or thirsty or full or tired. Body doesn't tell me it needs to pee or tells me I ALWAYS need to pee, 'valves' in bladder don't respond so can't pee anyway. Stomach doesn't produce stomach acid to digest food after eating. Body doesn't respond to extreme temperature - grab something hot from the oven and you just burn cus you can't tell it's hot fast enough. The list goes on. 😢
I've had exploding head syndrome for maybe 10 years by this time. I'm currently 34 years old. It happens few and far between, but is very distinct and forces my eye to slam open when it happens. Maybe once to three times a year it happens, but I've had noises in my head that are like a cymbal crashing, a gunshot, or someone yelling my name super loud. My name being yelled is the most common one. It freaked me out for years before I finally found out what it was.
Same here. Hearing my name yelled is also the most common for me but I've also had the gunshot and loud door-knocking. It's rare but super annoying.
I had a dream where my dog was explaining quantum mechanics over coffee and a cigarette.
When I woke up I told him that if he was going to smoke he'd have to do it in the garage.
I’ve had it several times over the years. It’s usually either a blast of my Shiba’s scream, or my name being called as if someone is yelling at the top of their lungs mere inches from my ear. Tears me out of sleep feeling like I narrowly avoided getting hit by a train.
My Shiba crossed the rainbow bridge, though, so now it kinda hits different when I hear that shrill scream out of nowhere.
Not surprised I’ve got something weird going on, though. Had migraines since preschool and have sleepwalked and had sleep paralysis at different times in my life. Something up there clearly isn’t working quite right.
Hey fellow CVS sufferers, look! We made it into the video!
I can confirm, the video was mostly correct - some unlucky sufferers have episodes that coalesce into one long episode lasting weeks or more. And some variants are thought to be caused by mitochondrial disfunction and others by menstrual cycles.
We often get mistaken by nurses for drug-seekers, so they can sometimes be hesitant to give us IV fluids (even though fluids is the main thing we need when we go to hospital) because they think we’ll sneak out and use the IV cannula to inject hard drugs.
Lots of us also use medical cannabis as an antiemetic to treat the extreme nausea we experience, and so many doctors and nurses get us mixed up with a totally different syndrome with similar symptoms called CHS which is caused by extremely heavy use of cannabis. They can blame those whose blood results show THC for causing their illness and often refuse treatment thinking it’s the patient’s own fault and that they deserve to suffer since they think it’s self-inflicted.
I’m extremely lucky to have been a candidate for treatment - a migraine therapy put me in remission and I haven’t landed in hospital for severe dehydration in nearly 2 years now!
Oh ive been diagnosed with number 50 for years now and cant get enough of the remedys which is to consume as much as possible
...what if all fish have fish odor syndrome? What if land animals just typically have lack-of-fish-odor syndrome?
I've 100% definitely been diagnosed with Factboius Fixation. No known treatment, and my cats are constantly complaining that I'm late with their swpr. The struggle is real. 👓
My cousin was bit by a tick and was subsequently allergic to red meat. Fortunately in his case the symptoms quickly diminished and eventually vanished after only a couple months. It almost stopped him from joining the military but he was able to prove his recovery to the recruiter XD
I've been trying to figure out what I have for years and now suddenly I see exactly what happens to me detailed in number 40 cyclic vomiting syndrome. I'm going to have my doctor test for this and maybe I'll finally be able to get on medication that will help alleviate my symptoms. Thanks Simon
The fun part of any video like this is trying not to apply any of the symptoms to yourself
Great video! And, yes, I was paying attention all the way through, but at one point I got distracted and so was confused for a moment by the really-real psychological condition at the very end. Lol
True, at 13 got very sick. They ended up doing exploration surgery. My right side ovarian cyct. A bit young but not impossible. However my appendix was low, wrapped around the overy, strangling it. Besides the odd place, my appendix was in perfect health. Except, it was the size of a 7 ft tall basketball player. The only other time he had seen on like that. Also my big brother also had his appendix in the wrong place and had his removed at the same age
Hmm...I haven't read all of the comments, but I'm surprised that one of the top comments isn't, "Oh, my 8 year-old son is allergic to water, too. He doesn't break out in hives, though, but tantrums."
While the use of AI art as a whole sucks, Simon is doing a lot more than most people by very clearly labelling what is AI generated. Good on ya.
Eating too much wheat caused me to have chronic fatigue for 10 years. I slept for up to 16 hours a day. I don't know if it's wheat, or gluten, or the pesticides that they spray on the crop but it's a real condition. I am now wheat- and fatigue- free.
Oh yeah my uncle has aphantasia. He always talks about how people telling him to "imagine" things drives him crazy because you totally have to show him a picture. My granfather can't hear music in his head either lol. They're both PhDs in analytical sciences.
I experienced an instance of exploding head syndrome around one to two years ago - it was incredibly startling.
I've experienced EHS... it's absolutely terrifying
I suffer from Corrie osis. It used to affect me twice a week, Mondays and Wednesdays, for half an hour at a time but nowadays it seems to happen all the bloody time! My wife can’t seem to escape it and I’m afraid there’s not much hope for her😢
I'm ill today and had to tap out at autophagia, but I'm leaving you a like, lol.
I worked with a guy with "fish odor syndrome" when I was young. While the guy was smart and hard working, he was really hard for me to work with because of that odor. In an ironic twist, my sense of smell has greatly diminished, and I cannot smell such smells now, and could probably work with him with no problem today.
I really hope there's a cure for the last one, before there are even more channels
eating your snot is also autophagia
I had Exploding Head Syndrome for a long time, around 40 years. For me it was around 6 times a year and sounded like a freight train horn. The experience never bothered me, but I didn't know it was an actual thing. I just thought it was something else wrong with me. It went away a few years ago as far as I can tell, after seeing Simon's first video on the topic and doing some research afterward. It seems that having it acknowledged and learning a bit about it really can make it go away.
Now if only I could stop becoming paralyzed before I've fully fallen asleep. I wonder if that has a name too?
😂 the casisdead 'pats earnings' image was a unexpected but welcome touch
I've had exploding head syndrome my whole life. I often wake up to what sounds like a very loud door being slammed or someone firing a shotgun right next to me.
I have aphantasia and I actually dream the same way my imagination works. Everything is abstract, and if I try to "look" at something I just end up getting frustrated because it doesnt work.
OMG! I was falling asleep one time and heard an explosion in my head that startled me and made my ears ring. I didnt know it is a syndrome till i seen this video. thank you!
14:40 Semi-interesting story: When I took Biology 101 (20+ years ago), my instructor had a 3-volume series of books on Mendelian Genetics. One of the books had every known (to that point) genetic disease/mutation. I came across MSUD in this book and thought it was funny, due to the name. The instructor asked if I had internet at home (still a valid question in ‘03-04 range) and I could receive 10 bonus points if I researched the disease and turned in a paper. I did so, and upon realizing how serious the disease was, I kinda felt bad. Pretty neat to see it mentioned in a Fact Boi video, as anytime I’ve relayed that story, no one had heard of the disease. Great job to the author of the script! (I haven’t finished the video, so I’m not sure who it was. I would guess Danny or Katie.)
Edit: Ah! It was Kevin all along 😂
whenever i go to a grocery store chain that is set up the same as all the others of that name, i feel like i can imagine leaving and being in another city. or my sense of NESW direction can flip while in the store.
Never eat soggy waffles.
Who else might have that last one?
I have aphantasia! It was always weird when people said to visualise stuff in the “minds eye” until i learned that aphantasia was a thing. (I cant visualise anything in minds eye, as per the description in this video)
I also have some face blindness though its pretty mild and only happens for random people or acquaintances.
Kinda neat to see some of my issues on here!
Interesting Fact about “Exploding Head Syndrome”: Morphine, specifically, and it’s derivatives (codeine etc) was studied for causing this in patients, while other opioids didnt. The most reported phenomenon patients had was the sense of somebody screaming their name inches from their ear, jolting them awake.
So maybe this could point us in the right direction as to what it’s caused from, some neurotransmitter imbalance or something possibly
A friend I lived with experienced this one night, too. And later when I experienced it while sleeping on morphine, let me just tell you… it’s lucidly terrifying.
I can vividly recall waking up, still feeling the breathe blowing on your ear. The sensation is so real, it really rattles you to your core.
Let alone the weird, dystopian sleep realm opoids give you (feeling of love and bliss while awake, gloomy nightmares of nothingness and nowhere-ness as you sleep), it’s terrifying for something to feel so real that isn’t
Why are your "Sideprojects" longer than your "main projects"? Asking for a friend. Keep those memes coming.
My older son was born very prematurely and ended up with severe cerebral palsy brought on by a massive brain bleed when he was 2 days old. Subsequent CT scans show he has no corpus callosum. While I have no idea whether he has a form of alien hand syndrome, he has almost no control over his left arm. If he wants to move it somehow, he has to grab it with his right hand and pull. (Not that his right side is normal. He has virtually no fine motor control.)
I have a few.
1) I'm allergic to onion oil (a rare form of sulfur allergy).
2) I'm allergic to anti-histamine.
3) I have an extremely rare form of Migraine headaches that less than 12 people in the world have, caused by a mutation in 2 genes.
20:33 guess I lucked out with my Celiac disease because if I eat it I feel hungover for a day or two. Head/ body aches, everything wants to exit my body with force…
Oh man, I had exploding head syndrome back when i was working overnight shifts and sleeping on the floor. It sounded like something very heavy falling on the roof!
I have exploding head disorder, I find that it usually happens when I'm ridiculously tired and start falling asleep quicker than normal
I would love to see this redone with citation of research studies and case studies on reputable sources.
Gawd EHS happens to me approximately twice a year or so. There has been years between and then all of a sudden it's a few days in a row. It's annoying AF.
I met someone with a water allergy. She had to escape the rain once during a trip because some hit her and caused hives on her arms.