6 Symptoms That Make It Hard Being Autistic: No Music Edition

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  • Опубліковано 28 сер 2024

КОМЕНТАРІ • 76

  • @CanCricket12345
    @CanCricket12345 3 місяці тому +8

    Holy moly… I have not been diagnosed with autism, but in recent years, after reading up on it and seeing my life described perfectly, I suspect I am autistic. This video? You could be talking about me! I’ve had stomach issues, poor sleep, and increasing random body pains my entire life. The stomach issues! My word, the stomach issues. And sleeping? It’s been a disaster for me for decades, despite reading all,the books and following all the advice. Thank you for being you and telling the world this information. I don’t know if you realize how important it is for people like me to realize that I’m not faulty and I’m not alone. ❤

  • @Dresspatternmaking
    @Dresspatternmaking Місяць тому +3

    The ‘No Music’ made me click. I just came from another video on autism where the repetitive background music just did my head in and I was heading for a meltdown. Relaxed sigh… I’m no longer feeling like I’m going to burst into tears.

  • @danielrose7515
    @danielrose7515 3 місяці тому +4

    First person to really describe the symptoms: I was diagnosed with ADHD as a child but I always had stomach trouble and I've always had trouble sleeping.

  • @PlanetZhooZhoo
    @PlanetZhooZhoo 9 місяців тому +5

    No music! Kudos!
    I'd personally love a completely plain version with no sound effects, but I appreciate it's impossible to cater for the breadth of neurodivergence, so you keep doing you!

  • @computerlove87
    @computerlove87 9 місяців тому +8

    "You would shit a sailboat" took me out, I had to pause the video and laugh for like three straight minutes 😂🤣🤣

  • @resourcedragon
    @resourcedragon 3 місяці тому +4

    I've not been diagnosed but I'm definitely getting suspicious that I may be on the spectrum.
    One of the things that I've found makes me surprisingly tired is if I have to go to several different places in a day, perhaps to attend a variety of appointments and go to a shop I don't usually need to go to. I've never understood it, as I've spent the day doing hard physical labour and not felt that tired, I've spend the day doing long distance driving and not felt that tired. I think being on time/fitting things in to a schedule are big stressors for me.
    My sleep problems aren't as extensive as yours but I can easily imagine how difficult it would be to fall asleep with restless leg syndrome. I get the very occasional jerk and it completely interrupts falling asleep, like an alarm clock would. So if you are getting a sequence of them most nights then that would be difficult. (For those who've never experienced it, those leg jerks are not a voluntary movement. They are very sudden, very fast and feel as if they are using quite a bit of muscle twitch strength.)
    Again, I don't get the nearly-empty bladder making a nuisance of itself _often,_ but if I do have a night when I don't sleep well, my bladder may join in the party and want emptied for no good reason. I find the best thing to do is just empty it because I'm not going to get back to sleep if I don't. I have got quite close to perfecting the art of hardly waking up to go to the lavatory, so that, as a general rule, I can get back to sleep easily after going to the loo in the middle of the night. Unfortunately, the hardly waking up doesn't work so well when I'm waking up for reasons other than an actual, full bladder.

  • @carriev9608
    @carriev9608 4 місяці тому +3

    Sometimes if I've done too much, most of my body will twitch when I try to sleep. The only thing that works is to go to bed in my recliner, where I'm partially sitting up. This helps with heart palps, too, which is also something I struggle a lot with. Totally works and I often fall asleep within a few minutes. If I try to lay down and force myself to relax, I'll be awake for like 3 hours until I finally get up and go to my chair.

  • @darbydelane4588
    @darbydelane4588 9 місяців тому +5

    “Sew that butthole shut!” Bwahahaha😂. LOVE. But seriously, yes. The gastro issues are FOR REAL.

    • @ChrisandDebby
      @ChrisandDebby  9 місяців тому

      I could write a book about my butthole struggles

  • @jeffreyhurley3243
    @jeffreyhurley3243 9 місяців тому +6

    Peopling exhausts me. Even when I WANT to people.
    I normally try to give myself extra time in a schedule where if I need to re-route transit, have random rest stops on a long drive, or just knowing a train goes over tracks at a certain time, if there's a change in plans SO late where the buffer is already eaten up... I'm done. Like, I just want to go home done. There is no fun to be had for the rest of the day.

    • @darbydelane4588
      @darbydelane4588 9 місяців тому +2

      “Peopling” is an awesome word for our community. Thank you!

  • @imperfectly_megan
    @imperfectly_megan 9 місяців тому +4

    Taking a small dose of CBD (at night especially) and using heating pads is helping me a lot with muscle tension.

    • @ChrisandDebby
      @ChrisandDebby  9 місяців тому +2

      Debby got me the best heating pad. It’s got several heating options and can automatically turn off if I want. Yes, it helps a lot with muscle tension. Sometimes I’ll sit in a hot bath and cover my neck and eyes with a hot towel.

  • @montycora
    @montycora 9 місяців тому +4

    No background music!!!! YAYAYAYA, thanks! Man, the gas... yes, that sucks a lot... And the night owl thing.... Even if I have to wake up early in the morning, I cannot go to sleep before 1 am... I always end up going to bed at 2 and waking up at 7. No good going to be early, I'll only fall asleep at 2...

    • @ChrisandDebby
      @ChrisandDebby  9 місяців тому +3

      Haha… glad you like the no music edition! I’m really trying to make my videos as accommodating as possible. Sometimes my autistic viewers are a bit demanding, but I completely understand why. It’s not easy being autistic.
      I think I’ve narrowed most of the gas issues down to gluten. Although I love gluten, I gotta stop eating it. The sleep thing is sooo challenging! Im with you 100%. Im going to make videos in the near future encouraging people with autism to become self employed and work from home. Once I did that, my life greatly improved. If I didn’t sleep well, I could nap or rest. No need to have to go to work and suffer.

    • @montycora
      @montycora 9 місяців тому

      @@ChrisandDebby - Gluten and sugar are super harmful to us. The constant up and down of blood glucose cause havoc in the brain. The keto diet changed my life so much that I am taking dietetics in college and have been studying gastronomy focused on low carb bread and pastries. I am building my gastronomic life around a very low carb amount to improve my brain performance. But as I love bread and cakes and sweets too much, I had to find a way to work around this, and I am super succeeding. I am a web designer and developer and once I started working from home, my life also improved SOOOOO MUCH!!! I can go to sleep at 3am and wake up at 10 and it's all good. It is really bizarre, but my brain only starts really working after the sun is down...

    • @ChrisandDebby
      @ChrisandDebby  6 місяців тому +1

      @@montycora yes, I also found it was so much better once I started to pay more attention to the environment I work best in (which is often at home). I didn’t notice your details about food before - I should pay more attention to the sugar part. I love sugar way too much and then I often crash too so maybe being more conscious of this throughout the day would help, especially with the stomach issues and the regulation for the brain

    • @ChrisandDebby
      @ChrisandDebby  6 місяців тому

      @@montycora needing to change up with gluten also has been hard for me, but I’m realizing I just need to make these changes. I wish I had learned more growing up about food and nutrition and how it can be so different for each person too. I would be interested to hear more about what you’re trying as you learn more too!

  • @dawnlivingston6236
    @dawnlivingston6236 4 місяці тому +6

    I'm 62 years old with self-diagnosed. I have every one of these issues. I have been on the carnivore diet for a couple years now. This helps greatly with a lot of these issues.

  • @mannysynth1664
    @mannysynth1664 9 місяців тому +4

    Male with ASD here. Thank you for the videos and the tips!
    I can recommend researching about and trying out the carnivore diet! I've been doing it for about 140 days and I feel fantastic.
    This diet has lowered my whole body's inflammation rate. And most other physical symptoms or difficulties have disappeared.

    • @ChrisandDebby
      @ChrisandDebby  9 місяців тому +2

      I’ve been hearing quite a bit about this recently and I’m very excited to try. My whole life I was taught that eating a lot of meat is bad for you. I’m going to try this even though my sister is vegan and I love her.

  • @NL4915
    @NL4915 9 місяців тому +3

    I had so many twitchy leg issues at night until I started taking high quality magnesium, specifically before bed. Worth trying especially if you’re deficient like I was.

    • @stephiechefy
      @stephiechefy 8 місяців тому

      Thanks for this hot tip, I’m going to try it!

    • @funkydiabetic2442
      @funkydiabetic2442 Місяць тому

      Folic acid is also worth a shot. Thanks for sharing!!

  • @marybethhooker9925
    @marybethhooker9925 9 місяців тому +2

    I love the close up of your chest so we get a better visual for the acid reflex!!

  • @angeladyson7367
    @angeladyson7367 3 місяці тому +1

    It's like a nervous twitch! It happens to my eye sockets sometimes. I have gastritis and most of the stomach/digestive issues you mentioned. I've always had a bit of a delicate stomach. I'm sensitive to dairy. The gastritis for me, was caused by NSAIDS though. I recommend The Gastritis Healing book by L. G. Capellan.
    The muscle tightness you mentioned is down to a T for me. It's a major problem and has caused neurological issues. My back muscles are often like tough leather and I have to have massage regularly with the Thumper Max Pro... My husband does it for me. Definitely recommend the Thumper massagers. You can get different ones for self use or therapeutic use. They're professional standard so not cheap but when my Chiropractor used the Max Pro on me, I was sold. 😁😂

  • @MommaDuck7
    @MommaDuck7 3 місяці тому +1

    LOVE knowing I'm not alone in all this.

  • @zappasmoustache23
    @zappasmoustache23 Місяць тому

    Night owl here. I have always struggled to make myself go to bed and when I do get to bed I have poor sleep, tossing and turning, intrusive thoughts, getting only 3-4 hours at a time, bad dreams all the annoying no sleep traits. Last week I received a weighted blanket as a birthday gift and my goodness what a game changer. And though it still takes me a little while to switch off I have been sleeping soundly right through til morning and it feels like it. No grogginess or wanting to go back to bed. It’s amazing I can’t recommend it enough. Great for those meltdown moments too.

    • @ChrisandDebby
      @ChrisandDebby  Місяць тому

      I have a weighted blanket too and like it a lot but I get too hot when I sleep. Maybe I should try to find another one...if I can work out the temperature issues. Thanks for sharing this, and glad to hear your sleep is improving!

  • @deborahkarim1139
    @deborahkarim1139 Місяць тому

    I relate to everything you said and l have all those symptoms too thanks for sharing. So helpful ❤

  • @higherground337
    @higherground337 8 місяців тому +3

    I have GERD too, and it sucks. But if I could get rid of just one autism symptom, it would be the anxiety I get from last-minute changes. My day was totally thrown off today when I was forced to have a social interaction at work that I wasn't expecting. I didn't have a meltdown over it, but was bad enough that I cancelled my afternoon plans and am now hiding under my blanket at home. 😮‍💨

    • @ChrisandDebby
      @ChrisandDebby  8 місяців тому +2

      Oh I’m with you! Last-minute changes send me into cardiac arrest. I don’t do well with last-minute changes. Sometimes you gotta cancel your afternoon plans and hide under the blanket. I’ve been there… yesterday.

    • @BergerR
      @BergerR 2 місяці тому

      I concur. And if I push myself through I need days to weeks more to process everything.

  • @mattmeeks8913
    @mattmeeks8913 9 місяців тому +3

    Fortunately I don't have stomach issues. I do have sleep issues, but not falling asleep-it's staying asleep. This is the first time I've heard of anyone having the same issues with getting up to pee multiple times during the night. Then I often can't fall back asleep no matter how tired I am.

  • @sammyjo8035
    @sammyjo8035 9 місяців тому +3

    The chronic rhinitis is a formidable opponent just by itself 😫 Throw in chronic bloating and insulin resistance AND joint hypermobility in the mix with the dysautonomia, etc... thats whats sapping most of my energy, time, focus, and overall spoons aside from the inevitable social BS.

  • @ElizabethPearch
    @ElizabethPearch 4 дні тому

    Thank goodness no music! ❤

  • @tingeling4443
    @tingeling4443 9 місяців тому +1

    Hi there,Thank you so much for your videos.
    I am a Mom to an undiagnosed son. Really interesting listen to you.
    A very good tip to your restless legs,Magnesium🙏 You will be surprised. Magnesium Threonate or Magnesium Malate. Not oxide and not Mag Citrite because of diare.And zink,too.
    And,it is SO much better not having the background music🌷🌷🌷

    • @ChrisandDebby
      @ChrisandDebby  9 місяців тому

      Thanks for the suggestions! I’ll look into it. Keep learning to help support your son. He has so much to look forward to. How about you? Do you suspect you may be autistic?

  • @hobblekitty
    @hobblekitty 9 місяців тому +1

    I love the nee doh cool cats! I have three of the regular sized ones, and one jumbo one! I love the way they feel in my hands.
    I really appreciate you talking about the digestive distress that is frequently comorbid with ASD. I had sharp, stabbing pains in my stomach my whole life that doctors couldn't diagnose. They kept wanting to give me that purple pill. Once I was diagnosed with ASD, I realized there was probably a connection. Regular probiotics and a low carb/ketogenic diet has helped immensely in this regard.
    I am a new subscriber today! Cheers!

    • @ChrisandDebby
      @ChrisandDebby  7 місяців тому

      I’m about to get some more Nee-Doh and I can’t wait! And also glad to hear you’ve had some progress with your stomach issues. I think not many doctors think about (or maybe were trained on this?) the connections between everything in your body and your brain. So I have a video I’m sharing soon about my diagnosis journey and it made me reflect on how many physical issues I’ve had that now I really can link to autism! Back pain and muscle tension, stomach, skin problems, and much much more. So thanks for sharing your experience too! I hope it all helps more people better understand autism and all that it can encompass

  • @JerrTheHooman
    @JerrTheHooman 6 місяців тому +2

    Omg. Driving. I CAN drive but it triggers fight of flight EVERY day. I literally want to throw up after driving. Phone calls also make me want to throw up. Doctors appts, the sun, bright lights in general, fire alarms, tornado sirens, pastry scented candles and lotions, AIM branded toothpaste, heat, oranges, grapefruit, tangerines. The list goes on. I'm on the fence about getting a formal diagnosis but you're videos make me feel like I'm in denial 😂

    • @resourcedragon
      @resourcedragon 3 місяці тому +1

      I'm with you on telephone calls and doctors appointments.
      Telephone calls are almost always interruptions and appointments (any sort, to be honest) have the stress of having to get there on time.
      Public transport tends to stress me out more than driving. And I _love_ GPS, that really has taken some of the stress out of going to new places for me.

  • @karens8633
    @karens8633 3 місяці тому +1

    Pay attention to the Acid Reflux, it could be Gull Bladder issues. I had to have an emergency surgery, mine is gone now. It felt like I was having a Heart Attack.

  • @Chucanelli
    @Chucanelli 7 місяців тому

    I’m really enjoying your channel! The way you talk makes my brain happy. Lots of chuckles, love the dry humor.
    Just wanted to offer this about the leg stuff: The only thing that helps me is a very hot bath. It’s a hassle, but if I can fall asleep within half an hour after the bath, I’m golden. That’s a big if, but it works sometimes. 😊

    • @ChrisandDebby
      @ChrisandDebby  7 місяців тому

      Glad you like the channel!! And yes, the hot bath also helps me too. Sometimes I feel too hot after the bath though, and it makes me feel a little bit cranky. But not too cranky.

  • @Ken-S
    @Ken-S 9 місяців тому +1

    5:52 This might not be an ASD issue. Taking some vitamin B may help.
    9:34 This might due to our sensing issue. I found taking creatine helps. Also sometimes having small dose of pain killer if not working.

  • @turtleanton6539
    @turtleanton6539 9 місяців тому +1

    Indeed

  • @andi56837ykvk
    @andi56837ykvk 3 місяці тому +1

    Omw the stomach issues! I’ve had spastic colon, I’ve got IBS, and I’ve had acid reflux on/off for the past year. I got a doctor who actually decided to investigate the cause of the acid reflux, bloating and stomach cramps, and it turns out I tested positive for helicobacter pylori. Turns out 2/3 of the worlds population may have this bacteria and it’s actually beneficial, but once it’s turns into an infection, it can have an ugly prognosis if not treated. The ironic thing is that the treatment is pretty simple. I’m currently in the middle of the treatment so I’ll see if it helps.
    Tho that said, I do find that when I’m uncomfortable or stressed out, my stomach will clench up and I’ll likely press my teeth onto each other -intensely.
    I’ve heard that the stomach issues happen to us cuz of the gut-brain axis - we get stressed and so our stomach gets stressed out, and visa versa.

  • @LilithsOwn303
    @LilithsOwn303 Місяць тому

    The leg jerking.... get up walk around for a few moments and return - 9 out of 10 times it will be over. Or... drink half a glas of water, it will be over. But getting up is a great help.

  • @lrwiersum
    @lrwiersum 2 місяці тому

    I remember drinking barium at 3 years old and watching it go down on a fluoroscope. Yet I wasn’t diagnosed until I was 65.

  • @sarahsovereign4522
    @sarahsovereign4522 9 місяців тому +2

    "GERD, GERD, GERD is the word..."

  • @katereed4764
    @katereed4764 9 місяців тому +3

    re: the night time bladder thing. Here’s my take on this: What if instead of , we are in fact so wakeful that our kidneys/bladder figure they’re supposed to keep on working instead of being in their own sleep mode. So we are awake and have to pee. Even if it’s some piddling amount. (sorry)

    • @rengsn4655
      @rengsn4655 9 місяців тому +1

      this has been my experience. i'll usually wake up from being too warm or some anxiety-ridden dream and then be like oh well i guess my body wants to pee

  • @catherinebirch2399
    @catherinebirch2399 3 місяці тому

    His comment about coughing reminded me of an incident during the pandemic when I was in my local shopping centre and drinking from a bottle of orange juice. Some of it went down the wrong way which made me cough like crazy. People stared at me in horror and Egan moving away quickly. Talk about paranoia!

  • @kumouri
    @kumouri Місяць тому

    The freaking leg thing. It's crazy.

  • @stephiechefy
    @stephiechefy 8 місяців тому +1

    What is the resale value on the sailboat? Does this manner of “coming into being” affect the poop deck of the sailboat? Idk. Might be worth it.

    • @ChrisandDebby
      @ChrisandDebby  8 місяців тому

      I’m pretty sure (74.78%) that the poop deck was named 6 thousand years ago after a person walked into the bedroom of an autistic, saw the bed setup and then shit a 32 foot sailboat. I’m almost entirely positive (88.647%) this is how sailboats were invented.
      We don’t resell these special types of boats. Far too rare and personal to their owners.

    • @stephiechefy
      @stephiechefy 8 місяців тому

      @@ChrisandDebby the amount of fiber one must have in their diet to produce a 32 footer is commendable. I can see why it would be priceless.

  • @Stormbrise
    @Stormbrise 9 місяців тому +1

    So, I get your American, like me, however this having to walk home or a path in a certain way is OCD. If interrupted, you return home or to the place where your anxiety can be better controlled and your stomach from the anxiety attack. I was diagnosed with OCD on top of it all, which is not what I was expecting. I was diagnosed in an EU country though. Apparently counting my steps, not wanting to step on a crack at times, among other things, led to it being added.
    Also, with acid reflux lay on your left side until it dissipates, the value to the stomach is above the liquid there and acid has a harder time flowing outwards. On the right side, the valve is lower than the stomach acids and makes it easier for it flow up your esophagus, apparently the back also.
    Oh you have restless leg syndrome, it runs in my family too. My leg muscles just twitch and I will wake up with a cramp because my foot decided to twist while I was sleeping. I manage the cramps with magnesium and zinc, but not the twitching muscles. My mother and brother get up and just walk around their houses while I guess mentally tiring themselves out so they crash again in bed. They have it worse than I do, I just read a book until I forget enough to just crash back into sleep.

    • @ChrisandDebby
      @ChrisandDebby  9 місяців тому

      I just found out about the laying on your left side a few weeks ago and you are spot on. It does help a lot!
      I also wake up with cramps in my calves and feet, but I never considered it might be connected to my legs twitching (like rabbit legs). When I wake up, I’d love to grab a book but I don’t want to turn on a light and wake up my wife.

    • @imperfectly_megan
      @imperfectly_megan 9 місяців тому

      ​@@ChrisandDebbyI read books with my library app on my phone (and use a blue light filter).

  • @elainewieczorek3831
    @elainewieczorek3831 13 днів тому

    Ugh the pee thing is so annoying. I’m going at least 5 times before I’m satisfied that I’ll be ok. And yeah it’s basically nothing, I know it, but I just can’t convince myself

  • @ThinkPositiveDude
    @ThinkPositiveDude 6 місяців тому +1

    yup, stomach issues, may or may not have psoriasis, scalp seborrheic dermatitis since I was a teenager, sleep issues, and the great combo of anxiety, depression, OCD, and possibly ADD... I feel like life will get a lot worse if I give up coffee though lol
    btw your stomach issues sound like Celiacs, am I right?

    • @ChrisandDebby
      @ChrisandDebby  6 місяців тому

      Yeah!! No gluten for me. I stopped drinking coffee, but man was it hard. I got down right irritable for 3 months. My wife called me a porcupine because she said I was awfully cute, but a little bit prickly.

    • @naomijefferis4709
      @naomijefferis4709 4 місяці тому

      Enjoying your content 😃 The FODMAP elimination diet is the gold standard for IBS (helps in something like 80%) - worth a look if you haven't already...

  • @monroe.tarot13
    @monroe.tarot13 9 місяців тому

    Accurate... All of it.... 😣

  • @tylerwill5250
    @tylerwill5250 15 днів тому

    Well…it’s your bladder’s fault. It’s the one that’s autistic 😆. Enjoying the music free vids!

  • @kuibeiguahua
    @kuibeiguahua 9 місяців тому

    Ok now make a version with jumpscares

    • @ChrisandDebby
      @ChrisandDebby  9 місяців тому

      Oh man. My muscles tense and my butthole clenches when I think of this.

  • @johannmthereasonwhythepeop5564
    @johannmthereasonwhythepeop5564 9 місяців тому

    Yeah dude technically you are not autistic just have normal problems like other people

    • @ChrisandDebby
      @ChrisandDebby  9 місяців тому +6

      That’s what I used to think before I was diagnosed by two separate doctors. I’ve also learned that these kinds of comments are harmful to autistics. Hopefully my videos can help you learn more about the autism spectrum and how much it varies across people

    • @higherground337
      @higherground337 8 місяців тому +1

      If you think the symptoms of autism are just "normal problems" then maybe you should get assessed mate.