I have been on LDN for three years. My dose for chronic pain, ME, & CIPN is 9mg every am, 3mg each night. Life changing medication. Thank you Dr. Adrienne Junek
LDN saved my life. I was able to keep my pain tolerable (barely) for the last 10 years with extreme diet d lifestyle changes. I do not respond well to opioids or Duloxetine. COVID dialed my symptoms to 10 for the past year. I heard about LDN and started, fully expecting it to take months to start working. Within days I was feeling a little better. Within 2 weeks I was back to pre-covid levels.
To hear a medical professional understand that we can’t start making major lifestyle and diet changes when we’re in able to even grocery shop! We have to get to feeling a little bit better in order to make those important changes! I’m starting LDN and I’m so hopeful!
I don’t have fibromyalgia, but I’ve had breast cancer, chronic depression, inflammation and chronic migraines/neck pain for 30 years and LDN is a lifesaver! It’s the only prescription drug I take and can tolerate with no side effects.
I have suffered from chronic fatigue issue symptoms for many years, chronic gastritis, irritable bowel, post exertional malaise, chemical sensitivities, pelvic pain.. I signed up for a website which prescribed me LDN and I'm currently on day 4 of my treatment so far it feels like a runner's high throughout the day and I understand what they mean by the endorphin release. It's actually something I haven't felt in a long time because whenever I try to exercise my body no longer releases endorphins and rather gives me post exertional malaise so it's interesting on whether or not these endorphins will send a signal of rest and digest and clear up my other issues. I am concerned about my chemical sensitivities and whether or not I will be able to tolerate this drug long-term. I have to say this drug seems like it could probably be used as an off-label antidepressant especially in cases where neuroinflammation is suspected
One of the things I noticed is that it gives me an endorphin rush which I had not felt in years after exercise because of my chronic fatigue post-exertional malaise. I haven't really felt it helped my symptoms yet but the dose of 1.5 mg that they put me on was too much and gave me headaches however I was able to do .5 mg and get a little endorphin rush so far no relief of symptoms but who knows. It definitely has an antidepressant effect
@@Vpopov81 i have ehlers danlos syndrome and your symptoms have some overlap. Im glad youve had some help, hopefully youll find the sweet spot. Im on narcotics and not sure if it would be worth a benefit to wran and trial..im guessing not at this point.
You need to always start LDN at a very low dose first. 0.5 mg sometimes even less. And increase slowly over time. Otherwise you can encounter strong adjustment side effects. Starting at 5mg is way too much.
Anyone controlling pain with opioids and finding control of pain ineffective after years use experience routine switching to naltrexone? How is that done?
Either taper off and no opiates for at least ten days or start with ULDN co dosing 0.001mg once a day then a week later twice a day. Different options from there to test if stay on opiates with slightly more ULDN, some people go hard n fast switch over while others use ULDN to help reduce opiate side effects and reduce opiate tolerance. I produced a free document to circulate info to improve ULDN awareness. Some will continue ULDN co dosing. Some work with their doctor (at an appropriate time) to slowly taper opiates and titrate NTX up... there are cautions and need to be informed and carefully follow protocols to not have conflicts. Basically starting ultra low single figure micrograms then continue letting that help. That is something more doctors are learning about through articles and professional education. Also more informed patients are raising ULDN options advocating for a much better. Naloxone options and ULDN (Naltrexone) are very different.
@@Truerealism747 i only took it for a short time. I am on prozac now and my burning mouth has really improved. I am dealing with depression and anxiety.
My doctor wouldn’t either. Finally I just told him to write me the 50 mg and I would do it myself. So that’s what he does. And I just compound it myself.
I have been on LDN for three years. My dose for chronic pain, ME, & CIPN is 9mg every am, 3mg each night.
Life changing medication.
Thank you Dr. Adrienne Junek
LDN saved my life.
I was able to keep my pain tolerable (barely) for the last 10 years with extreme diet d lifestyle changes. I do not respond well to opioids or Duloxetine.
COVID dialed my symptoms to 10 for the past year. I heard about LDN and started, fully expecting it to take months to start working. Within days I was feeling a little better. Within 2 weeks I was back to pre-covid levels.
Was it stress then what made you worse over covid great to hear
Thank you for sharing your experience! I’m so happy for you.
To hear a medical professional understand that we can’t start making major lifestyle and diet changes when we’re in able to even grocery shop! We have to get to feeling a little bit better in order to make those important changes! I’m starting LDN and I’m so hopeful!
How is ldn working for you? I just started it 3 days ago.
How's it going on
How everyone doing on their LDN?
No real changes, at 2 mg, some energy
I don’t have fibromyalgia, but I’ve had breast cancer, chronic depression, inflammation and chronic migraines/neck pain for 30 years and LDN is a lifesaver! It’s the only prescription drug I take and can tolerate with no side effects.
How much r u on? I am at 2 mg?
@@sandyrausch1999 I take 1.5-4.5 mg nightly.
Fantastic video. Thank you.
I have suffered from chronic fatigue issue symptoms for many years, chronic gastritis, irritable bowel, post exertional malaise, chemical sensitivities, pelvic pain.. I signed up for a website which prescribed me LDN and I'm currently on day 4 of my treatment so far it feels like a runner's high throughout the day and I understand what they mean by the endorphin release. It's actually something I haven't felt in a long time because whenever I try to exercise my body no longer releases endorphins and rather gives me post exertional malaise so it's interesting on whether or not these endorphins will send a signal of rest and digest and clear up my other issues. I am concerned about my chemical sensitivities and whether or not I will be able to tolerate this drug long-term. I have to say this drug seems like it could probably be used as an off-label antidepressant especially in cases where neuroinflammation is suspected
How are you doing on LDN now? 🙏
One of the things I noticed is that it gives me an endorphin rush which I had not felt in years after exercise because of my chronic fatigue post-exertional malaise. I haven't really felt it helped my symptoms yet but the dose of 1.5 mg that they put me on was too much and gave me headaches however I was able to do .5 mg and get a little endorphin rush so far no relief of symptoms but who knows. It definitely has an antidepressant effect
@@Vpopov81 i have ehlers danlos syndrome and your symptoms have some overlap. Im glad youve had some help, hopefully youll find the sweet spot. Im on narcotics and not sure if it would be worth a benefit to wran and trial..im guessing not at this point.
How is it going now?
on what dose are you now?
Would LND, be good for Scalp Dysesthesia, (burning, stibging itching l)
According to LDN research UA-cam channel there is basically nothing low dose naltrexone doesn't treat. Like it can work for everything
Every time I try ,5mg of LDN I am in horrible pain,itching scalp, blurry vison. I have tried it multiple times.
You need to always start LDN at a very low dose first. 0.5 mg sometimes even less. And increase slowly over time. Otherwise you can encounter strong adjustment side effects. Starting at 5mg is way too much.
Yes!!!!
How about LDN for rheumatoid arthritis?
Anyone controlling pain with opioids and finding control of pain ineffective after years use experience routine switching to naltrexone? How is that done?
What do you mean- how is it done?
@@BriBorgersen how do you wean off high levels of opioids after decades of using them..competing receptors and withdrawal.
@@dana102083 I would suspect you slowly decrease opioid dose as you increase LDN dose
Either taper off and no opiates for at least ten days or start with ULDN co dosing 0.001mg once a day then a week later twice a day. Different options from there to test if stay on opiates with slightly more ULDN, some people go hard n fast switch over while others use ULDN to help reduce opiate side effects and reduce opiate tolerance. I produced a free document to circulate info to improve ULDN awareness. Some will continue ULDN co dosing. Some work with their doctor (at an appropriate time) to slowly taper opiates and titrate NTX up... there are cautions and need to be informed and carefully follow protocols to not have conflicts.
Basically starting ultra low single figure micrograms then continue letting that help. That is something more doctors are learning about through articles and professional education. Also more informed patients are raising ULDN options advocating for a much better.
Naloxone options and ULDN (Naltrexone) are very different.
It was .5
It does help but causes anxiety for the first 1-2 hrs of taking LDN
Do you take it at night?
Cymbalta made me so much worse it was horrible. CBD & THC help some.
Fybromyalgia related to autism hypomobility so it must clear the channels in the body to detoxify most have ocd before
Interesting, would like more info on this.
What about trigger points dies it rid those
Does it also work for burning mouth syndrom?
Have you tryed it
How are you now
@@Truerealism747 i only took it for a short time. I am on prozac now and my burning mouth has really improved. I am dealing with depression and anxiety.
@@minaverheijden5616 got myofacial pain.years glad your pain now ok any other pain symptoms
My doctor won't prescribe LDN 🥺
Get a new doctor
My doctor would not either. I researched and found a doctor online and did video visits. Should be starting this soon.
My doctor wouldn’t either. Finally I just told him to write me the 50 mg and I would do it myself. So that’s what he does. And I just compound it myself.
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opoids a useless drug