Getting a Tracheostomy Tube? 15 Things I Wish I Would Have Been Told. Life with a Vent
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- Опубліковано 3 лис 2023
- When I got a tracheostomy tube in May 2017, I knew very little about tracheostomy tubes. Almost everything I have learned has been from trial and error. Here are fifteen things I wish I would have been told after getting my tracheostomy tube. #lifewithavent #trach
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The obturator tip is very important. Most people will throw away the obturator along with the trach tube. You always need to carry one with you.
Excellent insight. Thank you for sharing.
Excellent and a must video, very helpful! I wish I knew all these before my father's tracheostomy
Thank you for your kind words. I am sorry this video was not available sooner and you did not know this before your father's tracheostomy. Hopefully this video will help people in the future.
Also, you inspire me to keep going! You are amazing!
Thank you for your kind words. I really appreciate them.
As usual you speak the truth vent girl. When I woke up in the hospital with one of these damn things in my neck pretty much no one told me how to live with it and take care of it. I largely had to research online and read articles and watch videos such as yours. You’d think doctors would be far more informative about this stuff. 😒
Thank you for sharing some of your story with me. I am sorry you were given such little information. Unfortunately, this seems to happen frequently (i.e, lack of information). This is one of my motivations for making videos. A few organizations have reached out to me and are using my videos to train medical professionals and patients. My hope is one day, all patients will receive the resources and information needed to care for and live with a trach.
This has been our experience, twice... for years, the medical providers (doctors, hospital staff and some RT procedural more's) didn't know any of the things I mentioned to our Life With a Vent Lady.
I am a student RT. I love your videos because you teach me so much about how my patients feel even when they can't tell me. Thank you!
Thank you. I am so happy my videos are helpful.
Wow. God bless you, you beautiful miracle. I am very new to your channel and your videos. I had a trach tube in from life support and a month long coma from a car crash. I have made a miraculous recovery, no trach tube, but now I find that I am HIGHLY allergic to all plastics and metals (I have titanium rod in my leg and had 5 screws in my ankle/knee). ALL plastics shed hundreds of microplastics 24/7 as well as ALL metals shed hundreds of micrometals 24/7. Before I had my ankle screws removed, every single time I was around any amount of metals and breathed in micrometals (metal glasses frames for 1 minute for example), My ankle would SWELL up to the size or Jupiter and I would then have to spend 30 mins- an hour (depending on how many micro metals I inhaled) throughly cleaning out my nose, mouth, tongue, lips, and throat (scraped it all with a toothbrush) and I would hock up a million Lougies and MAGICALLY after all was said and done, EVERY single time, my ankle swelling would MYSTERIOUSLY dissappear. Microplastics don't affect me physically as bad (nothing super obvious) I can just feel little plastic rocks essentially inserting themselves and attaching themselves deep in my nose, throat, and lungs. Have you ever heard of this happening? Do you have anything similar? I am new to your channel but thank you so much for what you do queen and can't wait to learn more of your story and why you have a trach. You are insanely strong queen. Do not ever forget that. Stay blessed 🙏
Thank you for sharing some of your story with me. It sounds as though your body may be having hypersensitivity reactions. Microplastics and micrometals can cause the epithelial barrier to break down, which in turns causes allergic reactions. Your exposure to plastic and metal has probably made your highly allergic to plastics and metals. It seems as though your body is at a threshold, and any more exposure to plastic or metal breeches this threshold.
My best advice is to go through a detox program and try to stabilize your immune system. You may be able to find something online, but my best advice is to find a local holistic medical provider who can help you with this process. It may include diet changes, vitamins, supplements, herbs, acupuncture, blood work and possibility other modalities to help figure out why your body is behaving the way it is.
Thank you for all your kind words. You ahve come a long ways on your journey. I hope you get this all sorted out soon.
@LifewithaVent Hmmmm yes. I have found that when plastics are covered up by a paper towel or blanket (it stops the shedding and inhalation of microplastics) that is how i can exist around microplastics without them bothering me. Metals must be covered up by a piece of paper or solid wooden/solid wooden object to stop micrometal shed because believe it or not the micrometals are super small and can easily go through the extremely tiny holes of a paper towel or blanket. And yes, do you have specific videos on your channel of why you have your trach?
Hello. Yes, here is a link to a video about my journey to getting a tracheostomy tube: ua-cam.com/video/ZFFA928Rqsw/v-deo.html
Hello My Dear and Precious Friend I really like how you go over everything step by step and tell people who just got a Tracheostomy Tube what they need to know and how to live with their Tracheostomy Tube. You are Very Helpful and Insightful and you answered my question about the mucus how to remove it from your Tracheostomy Tube with a Obturator. How many times a day do you have to use a Obturator to remove the mucus from your Tracheostomy Tube? Thank You So Much for your Videos I Learn alot from you.
Hello. Thank you for your question and thank you for watching the video. Since 2017, I have only ever removed the trach tube and used the obturator to clear out the mucus about 3 times. I usually use other means such as running saline through a nebulizer to dislodge the mucus. I hope you are having a great day.
WOW, I wish I had known: saline use to prevent excess mucus; bring your own supplies to hospital when you go; get sputum cultured! I believe there's a huge gap in Respiratory care and maintenance across the medical field.
I am so glad the video was helpful.