I taught myself how to maintain my own port. No one would teach me, so I remembered how I watched the nurses access my port and I used UA-cam videos from two favorite people I watch and I am way more sterile than most. I’ve never had an infection and everyone was worried about liability and if I got an infection. It’s a pain to depend on someone else. Now, that my primary has seen I’ve taken good care of my port without infection, he’s ok. My new one doesn’t have the dots to help find the center, I have to find the dimple in the middle. My first one got kinked in my chest and a clot so I had it replaced the last day of July. I’m so much more comfortable taking care of my own port because it’s in my own body, not the nurses or doctors. They may have consequences if their actions cause something, but were the ones that would have the main consequences of either dealing with an infection or a new port. Which yes, it can happen with us doing it ourselves as well but we’re way more careful than a nurse we have to blindly trust. I get my supplies delivered. I know what works and doesn’t and am able to tailor my supplies to what my body likes. I’m sensitive to tagaderm so I use ones for sensitive skin and skin prep when I need a wound dressing. I see this video is from a year ago but I’m barely seeing it so I hope you’ve got your confidence and doing well with your port and health. A port is so much easier than getting poked with an IV needle in the arm or hands. I use my port for my MS infusions twice a year, bloodwork, contrast and if I ever need the hospital. But I will be watching like a hawk too. Like, I don’t use my port like you do, but I want to keep it as long as I can before I need a replacement for a third. I love my port though. Her name is Joy #2. My cousin has CF and just got her port replaced with a new one. But I love mine. And love the freedom to maintain my own port.
Yessss!! I’ve been accessing my own port for over a year now because I’ve hated having to rely on nurses. Nothing against them at all. Love my nurses but if I needed to be accessed or deaccessed at specific times I don’t have to wait for a nurse. And at least if I were to get sepsis it would be my own doing and I wouldn’t have a feeling like “well if I did it myself maybe it wouldn’t have happened” type of guilt. The flexibility in infusing when needed is also a huge plus. Taking my port under my own care was the best thing I ever could’ve done! I’m so glad you took that next step and gained this power and freedom!
I’ve been accessing my own port for 10ish months. It’s reduced my anxiety so much to know exactly what’s happening with it and that i will follow sterile protocol. It’s also so nice to do it on my own schedule.
"sometimes you can do everything right and it just happens" this, yes, THIS!!! I remember being hospitalised for a few weeks and I'd sleep for 20+ hours per day. Because of the stigma around central lines, sepsis and the patient's fault, I was worried that if I got sepsis the blame would be on me bc I was sleeping so much, which is messed up to think. Let's be real, it can be the patient's fault but it shouldn't be the first thought of a nurse/doc and the patients should not be shamed if it's their fault. the stigma needs to end!
The "patient shaming" is extremely frustrating. I had a doctor yell at me for taking a dangerous amount of a medication. HE was the one who prescribed it for well over a year. He's no longer my doctor.
You are the best! Editing skills are awesome by the way. My wife was just diagnosed with this and you are my beginners guide to gastroparesis. Thank you.
It's so good to see another video from you!! I was so excited when I got the notification. Hearing your intro song gives me all the happy nostalgia like when you listen to a theme song from a show you liked as a kid :P like Lizzy McGuire :P (P,s, this is Purpose in this Journey, I just recently changed my name :) )
I love the freedom that comes from being able to access my own port. Mine is in my left arm, my bicep area. I don’t let anyone access it now besides me and my mum. This is my third one now so I know just how scary it is to think about the possibility of infection & sepsis. But you just have to be super careful. Especially if you’re an inpatient and the nurses are using your line! Because not all of them will follow the sterile protocol. I follow you on instagram, but it’s good to see you post a video on here again! ☺️
Speaking as a nurse, if you have a medical professional refusing to follow sterile procedure, report them to the charge nurse. As a patient you have the right to refuse treatment, even if you just refuse to work with a particular provider (and have someone else take over your care). Case in point- I had a surgery scheduled, the anesthesiologist was changing the plan I made with my surgeon so I refused to have him work with me that day. The nurse got the head of the anesthesiology department and after a bit of a mess I learned that the original doctor didn't want to do an epidural as planned because he'd never done one before. Head of dept lectured him, then proceeded to show him how it was done (while actually doing it himself). I got excellent treatment because I spoke up, a newbie doctor gained a valuable lesson, and I hopefully helped other people he has treated since that day by advocating for myself. Don't be afraid to speak up!
Great to see you filming again, glad you are feeling better 😊👍 can't imagine how scary it is to rely on someone else to keep you from getting septic (again), I totally understand the need for control and the weight that is lifted when you get that freedom to do things yourself
You are a wonderful person. I wish you a happy life. My name is Ali from the Arab country of Iraq. Great video and you are amazing too. I hope you recover. You are a good girl
I am so excited to have seen a video from you! Glad that you are back and doing okay. I just recently got discharged from the hospital after two months of being there. I originally had covid, then a severe uti, and sepsis. I had my second port replaced last Friday after having it for seven years. I am like you where I am extremely careful and sterile and ended up septic. It's extremely scary. 😨 Praying that you stay well and I do too. Looking forward to using my new port. I do iv fluids as well. Take care.
I kept wondering if I should comment or not! Lol. Anyway! I know when I had my port placed my surgeon asked me if I wanted it in my arm or hidden etc….. now my response was “No way! I want it for emergency access first and foremost!” He was very understanding. However, the reason for asking is that some people don’t WANT the port to be obvious or they have had surgeries (such as breast cancer) when the tissue becomes more sensitive as well. So to anyone reading this, always speak up for why you want your port and what you’ll be using it for and if you do or don’t have any concerns over it being seen. Note, I have observed that when there is less tissue to put the needle through, it hurts less or in my case doesn’t hurt at all to access. Also! While the triangle IS the most common form of the port, mine is actually not really a triangle and more an oval (see cellsite for pictures). This has sort of stumped a few nurses in the past. But there are lots of videos online of how to access your port (by doctors) and the process is really the same! To Mickey, well done! I literally wasn’t allowed to access mine but I had watched my nurses like a hawk from day one because no way did I want sepsis and sometimes 🙄. But now one good thing from covid has meant I am now able to do so along with some other things. So yay to us!! Independence is a wonderful thing. 😊
I had a port placed 2 months ago so I could do my infusions at home on my own. since then, I've been trying desperately to navigate the healthcare system in my province. I've been left to do the research to find out exactly what supplies I need, where to source them, and how to get them covered. I can't get a home health company to come teach me how to use my port. The supplies themselves aren't covered at all under any program, so I have to get a monthly breakdown of costs and apply for special coverage through disability. I only just found a health supply store that is willing to special order for me, and now I need to get the SKU'S of every single item needed. It's been hellish. I'm wondering, what length of extension tubing do you use for your infusions? I want to be able to put the bag and pump in a backpack, but I'm not sure what exact tubing and length I need for it
On the sepsis part just be VERY vigilant when you're in hospital getting fluids,medications etc when you can be! Be sure they are sterile,use sterile gloves,clean all the line,wear a mask (which they do now anyway) etc and you should be ok
I had a doctor not wear a mask and then heard him coughing later during my infusion. Makes me cringe and he used my skin prep as the wipe to sterilize the area. He will not be accessing my port again for sure. I had everything laid out and he told me he’s never had a patient get a port get infected from him accessing. The infusion itself was fine but I will be accessing my own port for the next infusion, not him. I cringe everything I think of how he accessed my port like 😬😬😬😳😳😳. There’s a mask in the kit and the sterile wand to sterilize the area. So needless to say, because he didn’t use the skin prep properly, my skin was red once the dressing was off. 😣🙄🤦🏻♀️😑. Ugh. So yeah, he will not be doing anything with my port but hooking up the infusion and doing the premeds and infusions. Once every 6 months. I know my port better than anyone. Even better than doctors and nurses and there’s few that appreciate that.
Exactly what I needed to find! I have always had hickmans and as I'm due a replacement due to a break I'm seriously considering a port so that I can go in water etc. I have tpn 6 days a week so trying to properly research it. This was really helpful! Any thoughts?
Hi Mickey, Nice to see you back again on UTube. Hope you are going okay. How is your sister, Rose. Hope she has recovered from her illness. Cheers, Colin
I had a similar incident on my kangaroo pump and feeding bag the plastic hose separated from the bag leading to my feeding tube 😐 what a mess Kate farms formula all over my acute care room's floor near my bed a huge pool of the formula. I still don't know how it happened it could have been a factory faux-pas
Hey sasha. I am in love with ur content wanted to ask how long have u been making content for? Have u ever thought about monetizing your audience, if i may ask i might have a preposition that may be very interesting to you money wise
@@claudiaberger9560 not a problem hun! I may be wrong as I haven't went onto insta for a while but last I heard she went back into the hospital again for a short time I believe but not for long and she's doing a ton better since
Offended that my moral support didn't make it into the video 😤😤😤😤😤😤😤
YOU WERE IN MY AIRPODS!!!
@@LifewithStripes سلامتك ادعوا الله الشفاء لكل المرضى
@@LifewithStripes 00:23
@@LifewithStripes i 5:33
@@LifewithStripes z
I taught myself how to maintain my own port. No one would teach me, so I remembered how I watched the nurses access my port and I used UA-cam videos from two favorite people I watch and I am way more sterile than most. I’ve never had an infection and everyone was worried about liability and if I got an infection. It’s a pain to depend on someone else. Now, that my primary has seen I’ve taken good care of my port without infection, he’s ok. My new one doesn’t have the dots to help find the center, I have to find the dimple in the middle. My first one got kinked in my chest and a clot so I had it replaced the last day of July. I’m so much more comfortable taking care of my own port because it’s in my own body, not the nurses or doctors. They may have consequences if their actions cause something, but were the ones that would have the main consequences of either dealing with an infection or a new port. Which yes, it can happen with us doing it ourselves as well but we’re way more careful than a nurse we have to blindly trust. I get my supplies delivered. I know what works and doesn’t and am able to tailor my supplies to what my body likes. I’m sensitive to tagaderm so I use ones for sensitive skin and skin prep when I need a wound dressing.
I see this video is from a year ago but I’m barely seeing it so I hope you’ve got your confidence and doing well with your port and health. A port is so much easier than getting poked with an IV needle in the arm or hands. I use my port for my MS infusions twice a year, bloodwork, contrast and if I ever need the hospital. But I will be watching like a hawk too. Like, I don’t use my port like you do, but I want to keep it as long as I can before I need a replacement for a third. I love my port though. Her name is Joy #2. My cousin has CF and just got her port replaced with a new one. But I love mine. And love the freedom to maintain my own port.
“oh…saucy” rose is amazing hahaha best part of the video
Yessss!! I’ve been accessing my own port for over a year now because I’ve hated having to rely on nurses. Nothing against them at all. Love my nurses but if I needed to be accessed or deaccessed at specific times I don’t have to wait for a nurse. And at least if I were to get sepsis it would be my own doing and I wouldn’t have a feeling like “well if I did it myself maybe it wouldn’t have happened” type of guilt. The flexibility in infusing when needed is also a huge plus. Taking my port under my own care was the best thing I ever could’ve done! I’m so glad you took that next step and gained this power and freedom!
I’ve been accessing my own port for 10ish months. It’s reduced my anxiety so much to know exactly what’s happening with it and that i will follow sterile protocol. It’s also so nice to do it on my own schedule.
0021
"sometimes you can do everything right and it just happens" this, yes, THIS!!!
I remember being hospitalised for a few weeks and I'd sleep for 20+ hours per day. Because of the stigma around central lines, sepsis and the patient's fault, I was worried that if I got sepsis the blame would be on me bc I was sleeping so much, which is messed up to think. Let's be real, it can be the patient's fault but it shouldn't be the first thought of a nurse/doc and the patients should not be shamed if it's their fault. the stigma needs to end!
The "patient shaming" is extremely frustrating. I had a doctor yell at me for taking a dangerous amount of a medication. HE was the one who prescribed it for well over a year. He's no longer my doctor.
I agree
Hope everything is ok. We miss you videos.
You are the best! Editing skills are awesome by the way. My wife was just diagnosed with this and you are my beginners guide to gastroparesis. Thank you.
It's so good to see another video from you!! I was so excited when I got the notification. Hearing your intro song gives me all the happy nostalgia like when you listen to a theme song from a show you liked as a kid :P like Lizzy McGuire :P (P,s, this is Purpose in this Journey, I just recently changed my name :) )
Woow
youtube.com/@LifewithStripes
I've missed you, baby girl! Love you and very proud of you for taking this step towards more independence! Xxxx
I love the freedom that comes from being able to access my own port. Mine is in my left arm, my bicep area. I don’t let anyone access it now besides me and my mum. This is my third one now so I know just how scary it is to think about the possibility of infection & sepsis. But you just have to be super careful. Especially if you’re an inpatient and the nurses are using your line! Because not all of them will follow the sterile protocol.
I follow you on instagram, but it’s good to see you post a video on here again! ☺️
Speaking as a nurse, if you have a medical professional refusing to follow sterile procedure, report them to the charge nurse. As a patient you have the right to refuse treatment, even if you just refuse to work with a particular provider (and have someone else take over your care). Case in point- I had a surgery scheduled, the anesthesiologist was changing the plan I made with my surgeon so I refused to have him work with me that day. The nurse got the head of the anesthesiology department and after a bit of a mess I learned that the original doctor didn't want to do an epidural as planned because he'd never done one before. Head of dept lectured him, then proceeded to show him how it was done (while actually doing it himself). I got excellent treatment because I spoke up, a newbie doctor gained a valuable lesson, and I hopefully helped other people he has treated since that day by advocating for myself. Don't be afraid to speak up!
Great to see you filming again, glad you are feeling better 😊👍 can't imagine how scary it is to rely on someone else to keep you from getting septic (again), I totally understand the need for control and the weight that is lifted when you get that freedom to do things yourself
Welcome back, Mickey! I’ve missed you! xxxxxxxxx
You are a wonderful person. I wish you a happy life. My name is Ali from the Arab country of Iraq. Great video and you are amazing too. I hope you recover. You are a good girl
Congratulations on such a massive step!
Thank you for uploading, it’s great to see you!! Missed you
Man we miss mickey on UA-cam. Your channel was awesome. Hope you get back to it some day ,
I am so excited to have seen a video from you! Glad that you are back and doing okay. I just recently got discharged from the hospital after two months of being there. I originally had covid, then a severe uti, and sepsis. I had my second port replaced last Friday after having it for seven years. I am like you where I am extremely careful and sterile and ended up septic. It's extremely scary. 😨 Praying that you stay well and I do too. Looking forward to using my new port. I do iv fluids as well. Take care.
Wonder how is she is doing now
I also want to know
Right
- graduation nursing school December 2023
- last post was early July when she posted she was in the hospital
( instagram)
Lovely to hear from you. I hope all went well with your second bag of fluid.
Thankfully it went fine 😂
I admire you so much, your so strong to be able to go through with all this, you're truly an inspiration to everyone!
So happy for you!
I kept wondering if I should comment or not! Lol.
Anyway! I know when I had my port placed my surgeon asked me if I wanted it in my arm or hidden etc….. now my response was “No way! I want it for emergency access first and foremost!” He was very understanding. However, the reason for asking is that some people don’t WANT the port to be obvious or they have had surgeries (such as breast cancer) when the tissue becomes more sensitive as well. So to anyone reading this, always speak up for why you want your port and what you’ll be using it for and if you do or don’t have any concerns over it being seen. Note, I have observed that when there is less tissue to put the needle through, it hurts less or in my case doesn’t hurt at all to access.
Also! While the triangle IS the most common form of the port, mine is actually not really a triangle and more an oval (see cellsite for pictures). This has sort of stumped a few nurses in the past. But there are lots of videos online of how to access your port (by doctors) and the process is really the same!
To Mickey, well done! I literally wasn’t allowed to access mine but I had watched my nurses like a hawk from day one because no way did I want sepsis and sometimes 🙄. But now one good thing from covid has meant I am now able to do so along with some other things. So yay to us!! Independence is a wonderful thing. 😊
Good to see you back. I was missing this types of videos! ❤️
I had a port placed 2 months ago so I could do my infusions at home on my own. since then, I've been trying desperately to navigate the healthcare system in my province. I've been left to do the research to find out exactly what supplies I need, where to source them, and how to get them covered. I can't get a home health company to come teach me how to use my port. The supplies themselves aren't covered at all under any program, so I have to get a monthly breakdown of costs and apply for special coverage through disability. I only just found a health supply store that is willing to special order for me, and now I need to get the SKU'S of every single item needed. It's been hellish.
I'm wondering, what length of extension tubing do you use for your infusions? I want to be able to put the bag and pump in a backpack, but I'm not sure what exact tubing and length I need for it
I have been missing you! You are such an inspiration!
On the sepsis part just be VERY vigilant when you're in hospital getting fluids,medications etc when you can be! Be sure they are sterile,use sterile gloves,clean all the line,wear a mask (which they do now anyway) etc and you should be ok
I had a doctor not wear a mask and then heard him coughing later during my infusion. Makes me cringe and he used my skin prep as the wipe to sterilize the area. He will not be accessing my port again for sure. I had everything laid out and he told me he’s never had a patient get a port get infected from him accessing. The infusion itself was fine but I will be accessing my own port for the next infusion, not him. I cringe everything I think of how he accessed my port like 😬😬😬😳😳😳. There’s a mask in the kit and the sterile wand to sterilize the area. So needless to say, because he didn’t use the skin prep properly, my skin was red once the dressing was off. 😣🙄🤦🏻♀️😑. Ugh. So yeah, he will not be doing anything with my port but hooking up the infusion and doing the premeds and infusions. Once every 6 months. I know my port better than anyone. Even better than doctors and nurses and there’s few that appreciate that.
@@jessicajarsak7812 ooooh noooo I'm so sorry to hear that! I'm glad you were ok though for the most part
So good to see you again.❤️
Great to see you again.
Always love your videos!! ❤️
Great videos mickey!
Everything okay? You were so keen on posting your next video? Just worried!
Ya same ❤😮
Hope you're doing okay!
Is she ok?
u got this girl!
Exactly what I needed to find! I have always had hickmans and as I'm due a replacement due to a break I'm seriously considering a port so that I can go in water etc. I have tpn 6 days a week so trying to properly research it. This was really helpful! Any thoughts?
How are you doing?are you ok
Hi Mickey, Nice to see you back again on UTube. Hope you are going okay. How is your sister, Rose. Hope she has recovered from her illness. Cheers, Colin
Love your content! ❤ I hope your ok!
I had a similar incident on my kangaroo pump and feeding bag the plastic hose separated from the bag leading to my feeding tube 😐 what a mess Kate farms formula all over my acute care room's floor near my bed a huge pool of the formula. I still don't know how it happened it could have been a factory faux-pas
I miss your videos
My IV line that was fresh out of the packaging had a leak where the yellow part just last week. Weird.
6:40 That made me blink. ;-)
Hello, great seeing ♥️🇨🇦🌏🇺🇦 you again
haven't seen you posting for a while, how are you doing?
I was wondering the same thing how is she?
I wish you all of the luck
I’m trying to find a video to watch while I access my own port 😂 sadly it has to be over 15 minutes or it ends and I get bored lmao
How is your sister
would love to see more glovse
Dows anyone knows something about her?
Don't want to bring up old memories I just wondered how your sister if she did because update
Hey sasha. I am in love with ur content wanted to ask how long have u been making content for? Have u ever thought about monetizing your audience, if i may ask i might have a preposition that may be very interesting to you money wise
How is Rose doing?
From what I have seen on ig she's doing better. Still not perfect health i guess you could say but alot better!
@@peachxtaehyung Thank you so much! 😊
@@claudiaberger9560 not a problem hun! I may be wrong as I haven't went onto insta for a while but last I heard she went back into the hospital again for a short time I believe but not for long and she's doing a ton better since
❤️❤️❤️👍
😃🌈🎵❤ que alegría!!! ✨
💐💐💐💐💐
Hey mickey how are you
hot gloves
Que guapa ☺️
Did you dye your hair dark?
I thought it was lighter at one point
I believe she used to bleach her hair and the brown is her natural color.
I used to dye my hair lighter blonde, but Annie is correct. This brown is my natural color!
wu@?
Are you going to be like that all through your life?