ObGyn Reacts: Endometriosis Emergency on NBC's Transplant
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- Опубліковано 21 вер 2024
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Board-certified ObGyn Dr. Danielle Jones reacts "Transplant" episode 2 covering a patient with endometriosis who presents to the emergency room. Endometriosis is a painful chronic disease that often leaves patients feeling unheard and dismissed. This episode of Transplant, a new Canadian medical drama, features a patient struggling to get the medical staff in a busy emergency department to take her extreme pain seriously and not dismiss it as a symptom of her endometriosis.
Watch Dr. Mike's review of Transplant Season 1, Episode 1: • Doctor Reacts To Trans...
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Follow on Instagram (instagram.com/mamadoctorjones) and leave your Endometriosis questions in this pinned comment for a future video!
Are all people with endo infertile? Is there any way to get pregnant with endo?
What to do about endo if you’re under 18 so you can’t get surgery and all medication options have failed? (I know it’s possible to get surgeries under 18 but it seems to only be available at select specialty hospitals like Boston Children’s).
I am so happy that you adress Endo! It is not really a question but I just wanna say that I have Endo from my douglas, abdominal wall up to my diaphragm. My symptoms are really bad cramps, Endobelly, problems to breathe, shoulder pain, huge pressure on my chest, constipation and so on. Just please spread awareness and that it can go up to the diaphragm or even lungs. It took 16 years till I got diagnosed. So many doctors just say pain is normal.
And thank you again for spreading awareness!!! So grateful!!
Is Endometriosis a genetic condition? I love your videos!
What are the effects of using drugs like Lupron or Orilissa to treat endometriosis? Thank you for your educational content!
Hello, I’m actually the actress who played the patient in this episode. I just wanted to say that I really felt strongly for this role and what women have to go through. So many women aren’t taken seriously and it’s extremely sad and frustrating. Women are so strong and amazing fighters and people have no idea what we go through. I’m glad the episode touched people and started a conversation about this. Stay strong ladies ❤️❤️
❤❤❤
Thank you. I have Stage 4 endo. The depletion in this episode was frighteningly accurate. To the point I actually couldn't watch the whole thing, it was too triggering to the cPTSD I developed after years of gaslighting by doctors over my pain. Its a sign that you nailed it. Most endo awareness campaigns I see depict beautiful skinny women (not that you arn't beautiful) looking normal. They don't show the pain and the anguish. The trauma it causes. So thank you.
Wow, thank you so much for your kind comment :-)
I am so sorry you had to go through that. I hope you always get the help you need and never have to feel that kind of pain again. Wishing you all the best ❤️
Your performance was anxiety inducing good
Stage 4 endo here. Took 11 years, 7 gaslighting medical professionals and 2 ER visits (wherein they performed no testing other than a CBC) and a surgery for an ovarian cancer scare (turned out to be bilateral endometriomas) to get a diagnosis. You performance was rattlingly accurate. Thank you for conveying such an honest portrayal of the battle so many of us go through to even have our pain acknowledged. This hit so close to home.
Doctor mike : this patient consult interaction is highly unprofessional
Mama doc: GET HER THE HELP SHE NEEDS YOU SAVAGES *wipes tear*
Which one was that?
@@jaejohnson9922 I believe I was referring to his video reviewing a house episode. I honestly don’t remember tho
And hey thanks for the like mama doc !! Just saw this
Doctor Mike frustrates me, like most male doctors who know there is a discrepancy in treatment, but then perpetuates those discrepancies because he is a dude 🤷♀️.
@@lone6718 I don't like him, I sometimes wonder if he's a real doctor ya know? I think he just poses as one for UA-cam.
Had an ER doctor tell me “endometriosis isn’t that bad, your pain isn’t that bad”. It was a man, I asked him how many uteruses he had and walked out. I was livid.
This was me. I had a bunch of blockage in my tube....until it resulted in an Ectopic and where they found a tumor inside my tube. Now at 23 I suffer from infertility I will say the only one who listen to me that day was the OBGYN Dept. The Dr. ran down the stairs after she read the results from the ultrasound. I really feel like the ER would have sent me home if I didnt push for more testing. I could barely walk...I walked when I was in labor and had gallstones. This pain was like no other. It was more painful then contractions. Then after they did an ultrasound they found out I was internally bleeding....It was not a good time.
Brianna Snyder I’m so sorry you had to go through that. I have had horrific experiences with doctors as well. So I can sympathize.
same, Im 29 and was diagnosed surgically at 17, I get told all the time " oh I have bad period's too" and every time I face palm and just think, if it was that easy >.
considering the fact that women can generally tolerate pain better it's even more weird for a doctor to see a grown up woman curled up on the floor crying from pain and say 'it can't be that bad'
(from personal experience)
My little sister has endometriosis. About 3 years ago I picked her up from school as she was in a lot of pain.The male doctor who saw her in the emergency room wanted to send her home because “she’s probably just being dramatic endo isn’t that bad it’s just like a bad period, she’s most likely playing it up to get some time off school” I could have punched him...
Me : I have very severe periods cramps
Doctor : Get pregnant, you'll get 9 months of relief
Me in 50 years : *Has 43 kids*
9 months of relief!? Is that what they call morning sickness and labour pain.
Your doctor sounds like a moron.
I mean my periods and cramps are way easier now after kids but that’s not guaranteed.
Menopause usually hits by 50, so if you have severe period cramps upon exiting the womb there is something seriously wrong. :o)
Was told the same thing at 19. Turned out to be my appendix. Horrible doctor.
People, especially gynos, dismissing women's pain is such a big problem in the field of medicine....more studies need to be done on how to potentially better alleviate pain and people in general need to be more compassionate.
Yes! Really all chronic pain conditions but yes I agree
Yes the doctor always wants me to just take birth control and it’s so aggravating.
@@faithandpixiedust1252 especially if there are reasons NOT to use chemical birth control ( Lupus w/clotting disorder)
Dismissing chronic pain patients as a whole is an issue in the medical community. I was dismissed for 7 years because "it's just growing pains". Turns out, I have a genetic connective tissue disorder.
Dismissing chronic pain conditions and dismissing women's concerns are two overlapping concerns in medicine.
My husband's headaches were dismissed for over a decade because his mother was "paranoid", he had a brain tumour the size of an adult's fist when it was discovered, who knows what kind of complications could have been avoided if it was caught at 10 instead of 20. I've been advocating for my children and the number of times I feel dismissed, like I'm not being taken seriously, it's obscene.
I'm currently looking into new GPs because of the way my most recent one dismissed my concerns over my two miscarried pregnancies earlier this year. I picked that GP because she's an OB shared care practice (meaning I would have been able to do my regular checks with her and only go to the hospital for birth-related stuff or ultrasounds). But she dismissed early pregnancy bleeding and low HCG, turned out to be ectopic; then she dismissed the previous history of ectopic, an ultrasound that could not have matched dates (fetus measured more than two weeks behind), low fetal heartrate (70bpm, should have been over 100) and lessening symptoms, missed miscarriage confirmed by the ED a week later. I know she couldn't have stopped the losses, but she could have taken me seriously and been more empathetic.
to me, people with chronic pain have a higher pain tolerance, therefore everytime something happens it should be more serious as their body has already been coping with a significant issue for a long time.
Yeah, what some peoples pain on a scale is an 8, for others it's a 4. It helps me greatly to have someone there advocating for me who knows what things are considered painful for me, like my mom.
That's so true!
I have to check myself every time I am asked what my pain is on a scale from 1 to 10, because I underestimate my pain over the fact that it never fully goes away. My 1 is like a 3 or a 4, and I normal low pain day for me is either pain in my joints that keeps me from standing up for too long, unbearable migraines, digestive pains, or tightness in my chest. I swear to god, if I don't die of an easy to treat heart attack because I just think chest pains are normal, I will consider it a win.
I had this happen once, after waking up from endometriosis confirming/treating surgery. Nurse asked how bad my pain was, I, groggy af, said 4. She yelled for someone to get me pain relief, now.
I didn't have the results yet, so I didn't understand why she was making such a fuss, since I'd not been able to get a sick note for hitting an 8, three days earlier.
@Over The Page : Unfortunately, I only realized this fully only last month, when my new gynecologist said I probably have endometriosis. It finally clicked in my head that my near-fainting vagal responses where triggered by endometriosis pain. I had symptoms from age 14. I am 36 now. Yep, took a long time to be taken seriously. Have been dismissed by doctors all this time, only being given more paracetamol (Tylenol). And the fact that I got used to pain didn't help. I got used to pain mentally, but my body kept judging the pain too much to handle and made me almost faint on my periods. I only scale those pains 6, but my body says : "Nope, I'm out!"
It doesn't help that women who go through this are still treated like they're being big babies or that they're just being "hysterical".
And the absolute worst part is, people who haven't had first hand experiences with this think we be exaggerating when we say this- we are really not. My aunt was dying in excruciating pain, yet she was mocked and sent home. She got literally called hysterical and was told she should "take her meds before coming to the hospital next time" by a male gynecologist- who, had he taken one minute to do his job decently and the slightest look in her lower abdomen area would have realized she needed to see a surgeon YESTERDAY instead of deciding she's faking intense pain for attention the moment he set eyes on her. They took her to a competent doctor after so thankfully she pulled through, but how many women weren't as lucky? This is a legit problem in medicine that people would rather pretend we are making up the severity of than accept they have to be more educated and do better.
@@chiefpurrfect8389 exactly! I'm so glad she pulled through!
Yup! Because as women we are literal non entities. We are a uterus for procreation and that's it. So médicale care and control of our own body are not worthy issues for the medical establishment nor law makers.
Absolutely. The dismissal of females in agonizing pain is outrageous and unbelievable for a society that has come so far technologically.
These people remind me of old times "doctors" that are like I diagnose you with woman take this cough syrup with drugs In it 😑😑😑
“Glad we caught it when we did” grrr that male Dr didn’t do jack squat. As an Endometriosis patient, this video made me so mad.
Yeah the "we" part, too - he didn't do ANYTHING! And he didn't take any responsibility for doing anything wrong. :(. BOOO.
I'm not even like half way through and I'm soooo mad!
I flipped off the screen when he said that! 😂
I wanted to slap him.
Right. We? Who is WE?
Actual things I heard from terrible doctors about my endometriosis pain:
Get pregnant and your Endo will go away
Take some Advil
Every women has painful cycles
Your pain is all in your head
You’re looking for attention
One even suggested I was a pain pill addict!
I had been diagnosed with dysmenorrhea and dyspareunia (painful periods and painful sex, really just symptoms) and given ineffective treatments. And then I finally found a doctor who listened to me. I had excision surgery to remove the endometriosis 2 years ago and
have had significantly less pain since.
I feel this! I have many health issues but the example that I can relate to is my autoimmune disease. Everyone told me it was just allergies and in my head. They even told me I needed to just try harder! 5 years of doctors telling me I was full of shit and 35 doctors later my autoimmune disease was found and I finally felt relief. I finally felt that my pain was justified after years of no one listening or discarding symptoms because ‘’you have something else that could explain it.’’ When a patient with chronic illness, no matter what it issues, says ‘’ this is not normal’’ they should never be dismissed.
My favourite one i've been told is "well you're not trying to get pregnant so it's not really affecting you right now" AHHHHHHHHH
Yessss!! I have been told ALL of those things too!! I was treated like a hypochondriac and a drug seeker at some points (even though I told them that going into ‘pain management’ for something that was undiagnosed was my last priority bc I wanted to know what was wrong). I was treated as though I exaggerated all of my pain and symptoms, I had a doctor tell me without evidence that I must have just been born with a condition where my organs just don’t lay right in my body.
And when I was finally diagnosed with endometriosis via laparoscopy, he (my OB at the time) told me just to get pregnant.......
I was also told multiple times that my depression was the reason of my pain was my depression (when they saw my medical history) and told me to go back to antidepressants … or one asked me what my husband thought about me not wanting kids since it’s a simple solution for my pain--I have so many stories
@@anileda1116 I take antidepressants every day and I don't remember endometriosis as a symptom of withdrawal
I have endometriosis and for a long time I told my parents and doctors that the pain I felt wasn’t normal and my mom kept telling me that I was just a lazy person. One day I went to the ER in so much pain I couldn’t stand up straight and they told me that I was fine and they wouldn’t give me drugs just so I could get high. I remember the doctor tell me go get drugs on the street and leave his ER. I was in so much pain and felt so alone that I actually thought about doing it cause I just wanted the pain to stop. I went to another hospital instead and passed out before they saw me when I woke up I found out I just had something called endometriosis and I had a 49 oz tumor on my ovary which caused it to twist and they had to remove it the doctor there told me that I would be fine and she also held my hand and showed me my wrist band from the other hospital and she said I’m sorry you had to go threw that but it’s ok now you know what you have and it’s not in your head and your not lazy. When she said that I started to cry. I didn’t know how much I needed to hear that till she said it. Thanks to Dr. Cohen you were the first doctor and simply the first person to make me feel like someone was listening to me and knowing what I have makes it easier for me to get help now. It also helps me show the doctors that I’m not a drug addict I just needed them to listen and help. I will never for my doctors that day. The one who was a complete asshole and they one who changed my life for the better forever. Love you Dr. Cohen your the best. Fuck that other asshole.
I'm sorry that happened to you, but I'm so so glad that someone listened and you got the help you needed 💕
Petra Thorsty thank you I really appreciate it. I just hope that soon no woman has to go to such lengths to be heard. If a person comes to the hospital in pain hear them out before you judge them as a drug addict or that they are over reacting. Not everyone is lying. Some of us aren’t and we are not being dramatic. We are in pain and deserve to be heard and believed until you prove otherwise.
@@minelypellot5986 exactly! Our pain is valid and deserves to be acknowledged and taken care
This made me cry - I was sent home with exploding ovarian cysts after being given 2 paracetamol once. I am so glad you had another hospital to go to where you got the help you needed.
That's horrible! What an asshole! I'm glad that the second doctor was decent. What is wrong with people? How can anyone think it's okay to treat a patient who is in intense pain like this? Even if a doctor or nurse does think that the patient is faking or drug seeking, they still need to be sure that the patient is okay before they send them home. It's never okay to just dismiss someone like that doctor did to you.
Gyno (male): *dedicates career to women's reproductive health*
Also gyno: you're making this pain up, it doesn't exist! Why would I investigate this "fake" pain in an area where I hold the most expertise? You think *I* can deal with undiagnosed pelvic pain!? 🤦🏼♀️
Actually, Mama Doctor Jones has said that she supports male gynecologists! I think she talked about it in her OBGYN Google video
Having had 18 gynos to get to my diagnosis, I can confidently tell you this isn't just with male gynos. The two female gynos who did my surgery were assured me they'd keep looking *when* they didn't find anything, right up until the anesthesia hit. (They found extensive endo and PCOS shortly after.)
These two were the most compassionate women so far.
My mom is a nurse who used to work in hospitals - she loved NICU wards. Per stories I heard from her, a lot of male gynos aren't there for helping women - they get into it to deliver babies, and that's it. Take it with a grain of salt, but there's a lot of egos in medicine.
@@WantedVisual Yep! I've had some straight up *horrible* female gynos.
Please do a video on endometrios. Many of us are treated like this girl irl. So spread some light in this
Yes! Really need that. Have many questions about that.
Plus 1!
The fact that doctors ACTUALLY have told people to “just get pregnant” is so infuriating. It’s a gigantic and personal decision. Not to mention endo patients can experience fertility problems... so they can’t always “just” get pregnant.
Exactly! Also the fact that it isn't a solution to endometriosis, so it's ridiculous.
Or you're 16 (or younger), really not the ideal age to get pregnant
@Alecia Watson ugh that’s so frustrating I’m sorry that happened to you.
@Alecia Watson That's disgusting! They should be ashamed of themselves for giving such shitty advice! I'm so sorry they said that to you.
@Alecia Watson Oh my dear gosh.... That's so terrible of them to even suggest that.
When my sister went to the ER with severe pain that ended up being endometriosis, but the ER doctors told my parents she was crazy and wanted attention, and they wanted to admit her to the psych ward. All 3 of us ended up having later surgeries and being diagnosed with endometriosis.
That's terrible, sorry for your family.
I'm sorry you had to go through that. Doctors who can't find the cause for something tend to gaslight patients because of the 'lack of evidence'. Just because something isn't matching an easy diagnosis doesn't mean that there isn't something wrong.
Where are those doctors from? The 1800's?
@@Dekunutcase yes. Thank you!! All of my chronic pain was dismissed for 7 years because there was no easy answer
I had a similar experience, my problem was a teratoma. My problem was not in my head, it was in my ovary.
When I was diagnosed with Endometriosis, I bought the perfect tshirt. It says:
"If 7 million men in the USA suffered unbearable pain with sex and exercise
and were offered pregnancy, castration,
or hormones mimicking either as treatment
Endometriosis would be a national emergency
to which we would transfer the defense budget to find a cure."
I'm sorry but this isn't true. Plenty of health issues disproportionately effect men and aren't emergencies or having funding from the defense budget transferred to find treatment.
@@vaughnhaney7020 *whoosh*
You do realize it's kind of a joke, right...?
Though it adds an explanation of what *doctors* tell us to do, the treatments they offer that aren't actual treatments that help Endo. Pregnancy isn't a feasible longterm/lifelong treatment option. Can't just be pregnant your ENTIRE life, & not a great option if you're under 18 or Endo has made you barren. A hysterectomy nor menopause is a cure like many will tell their patients. And sooo many think Endo doesn't even exist & that women are just being big babies about their periods.
Although it doesn't mention that they'll also give us toxic chemo medication injections that is meant to be used for Prostate Cancer & should not be used in any patient for any longer than a total 12 months in one's entire life. But they do it anyway, often for longer than 12 months, without giving you that info. They say it's ok & it'll help you. But that's not a feasible lifelong treatment obviously.
It's a shirt from the Endo Association meant to bring attention to Endo in a funny manner, and it allows women to silently bitch about it.
You should see my Crohn's Disease shirts.
@@donnasilvio3974 Wait, total hysterectomy doesn't cure it?
Anyway yeah endo management sucks and endo symptoms are often dismissed. Not arguing there. I just don't like the attitude pretending men's health issues are THAT important. Men get screwed over by the system too and it's unfair to pretend men's issues are automatically handled with such importance
A sexist joke is still sexist even as a joke...
No it's not a cure. I tried for one multiple times, but I was much too young for it, or to get pregnant. I was really young. But I also learned it's not a cure. Otherwise women in my Endo support groups would've had it all taken out long ago. Insurance companies generally won't cover one as it's not even a good treatment let alone a cure. Some women can get some symptom relief, but then they hit menopause really hard. Hormone add back therapy will generally fuck up Endo symptoms bc hormones suck.
Endo can grow independently on other organs, and in rare cases on the brain or in someone's thigh (true story). It can fuse organs & sections of intestines together. I just had my 5th surgery in the past decade to remove parts of my intestines diseased by Endo and Crohn's Disease. They had to also remove my appendix the 4th time. Plus laser ablation & opening things back up & pulling things apart again.
It's caused fucked up masses in my breasts, not cysts or cancer, that show up, hurt or hell for 3mos-1yr, & then just disappear. They had interns down in Mammogram. They were being shy about asking to feel it. I told them they all had blanket permission to feel me up. I've had doctors put their hands in worse places, so I gave up being bashful long ago.
Goddess knows I wish a hysterectomy would cure me. It's already given me miscarriages and made me barren, and much worse. I don't need those parts anymore. I
As someone with endometriosis and loves the show transplant. This part had me RAGING. I have friends with endo who have been treated like that. The way endo patients are treated by most in the medical field is trash. Also schools are to blame. Not once during any of the years of sex ed in middle school and high school did they ever say hey if your period are debilitating see a doctor something might be wrong. I got lucky and diagnosed early and young but most aren't. There needs to be more funding and research. Also there needs to be more excision specialist and less ablation specialist who pretend they do excision and screw women over
Amen!
I agree, to build onto that they also need to talk more about the thyroid and to actually show us where it's located. I remember learning a little bit about my thyroid but they never mentioned where it was and I had always thought that it was in my thigh and not at the base of my throat. I feel like most "sore throats" are thyroid problems that go undiagnosed because people just don't know that they should see a doctor.
YES! Not only sex ed in schools, but we should also be teaching Med schools the proper way to treat endo patients. I feel like they aren't teaching the proper things with endo including even just the definition.
Tbh, if I were a sex ed or history teacher I'd probably be fired on the first day for not following the curriculum 😂 "So, this is complete BS. Here's the truth."
I agree that this needs to happen but I think we have a really long ways to go before this is even considered. In sex ed I learned don't have sex until marriage, wearing to much make up is trashy, sexual assault is correlated with slutty clothes, we were shown a basic picture of a womans body, we were told that we would get hair on our armpits and vagina, and we were told that once we start our period it should come monthly. They didn't even teach us where ovaries are located, or what ovaries were at all, much less where our thyroid is located. I went to public school in Salt Lake City.
As an endo patient, I have gotten so so so lucky when I have had flare ups. In the last year and a half, I have had 3 Er trips that they looked at everything and they told me that if I ever get to that point again, to go back in to the Er. The doctors could tell how much pain I was in. They always have said that even if they can’t do anything to treat the condition, they can help treat the pain so I can actually move without screaming.
A week and a half ago I went in for the 4th time, and I had an amazing doctor who could tell that this time was different. He sent me for a CT immediately instead of making me wait until morning for an ultrasound. I ended up having appendicitis. If he hadn’t of believed me and stood up for me, I likely would be dead now. When they did the surgery the next afternoon, it had partially ruptured.
I wish more doctors could do what this doctor did for me. He even has called me a couple of times to check up on me. He is a true Angel ☺️
Opposite experience here! I had a ruptured appendix that had the side effect of diagnosing me with endo. Really clarified some things for me. I'm glad your doctor took good care of you!
Hey! I don't know what you've tried as it comes to managaing pain. I used to have extreme pain from my endo. I switched my diet to vegan, gluten free, and low fodmap. I'm just trying to tell as many people as possible. ❤️
Hi! I have endometriosis and fibromyalgia. I use medical marijuana to help manage my pain from edibles to oil. Of course it depends on your state/country, but it definitely helps a lot.
@@crystalcox4815 As a vegan. I can tell you that it doesn't fix horrible pain. My family has a history of endo. I haven't been diagnosed. I have also started for the first time in 11 years having consistent low pain periods. This is in contrast to being stuck in bed for the first day of my cycle. I don't not pretend to say I have ever had endo. I imagine its ten times worse. I have had incidents were I had to crawl on the floor to get to the bathroom because I couldn't stand. Yet I imagine the pain you experience to be 10 times worse. At any rate. Crystal Cox. A lot of endometriosis has unknown origins. Hormonal issues could be a factor. The only time I started having no pain periods is after I got on birth control. Genetics is a strong thing. Just remember we aren't all made the same way.
That's an amazing doctor and we need more like him in the medical field!!!
As an Endometriosis sufferer, I’ve often wondered how one can have so much pain and not die of it. Endometriosis has ruined my life.
You're not alone had the same thought too many times to count, been in so much pain it felt like I was. 🤗💛
@@There87Akin It's the most miserable, indescribable pain I've ever known. I hope you are okay, Theresa. I really do. I am here if you need to talk.
@@larlaify Pixie, I am so sorry! My heart breaks for you because I know exactly how you feel. Those surgeries only give temporary relief, don't they? It's awful. How do you cope with your pain? If you could share that with me, I'd appreciate it.
Also, some women have pain every day like you and me; some only around their period. We are the really unlucky ones. Endo sucks for all of us, but chronic daily pain is hell. Hang in there and I'm here if you need to talk.
It really is a life ruining illness. I legitimately don't really even have a life (24 now but started showing symptoms at 14) and I don't even have a driver's permit yet because I can't get my shit together to even run errands when someone else is driving. My pain and nausea fluctuates a lot, some days it's perfectly manageable, other days I can't even concentrate because it gets so damn intense. Any day I CAN run errands (I'm talking 10-15 minutes away) is considered a good day. Hoping I can get on the right med combination so I can start doing things with my life again. At this point I'm not asking for "normal" I would just like to upgrade to "consistently functional".
Me too
When my daughter was 11, she had severe abdominal pain. It ended up being a torsion, but they had dismissed that thought because of her age. First ultrasound missed it and it was almost 24 hours before another ultrasound caught it and she went into emergency surgery. They were able to save her ovary. So much pain and a very traumatic experience for her.
That had to have been so scary for both of you, I have an 11 year old and couldn't imagine having to be the parent in these situations where I am usually the ignored patient.
Poor baby. Here in France a 6 year old had severe cancer and was told she was lying and attention seeking by doctor's for over a year! She now has a diagnosis of a rare and incurable cancer.
Glad they found it and amazed they saved the ovary. Good docs! Mine was too far gone and idc much about it as I dont want kids. But its especially hard to see younger women who dont know their life plans yet face this.
The same thing happened to me at 11 as well!! Except by the time they got to me the ovary had died and had started going gangrene and septic. If they hadn't found it when they did I might have died.
Prayers for her 🙏🏻 I was 11 when they found a mass the size of a large rectangular Kleenex box on my ovary and it had twisted after they went into surgery thinking maybe it was my appendix because they seen nothing on an ultrasound. They couldn’t save my ovary but I went in to get pregnant 5 times and have 3 births and 2 losses. I still remember that day like it was yesterday, it’s extremely traumatic
Dr: “Don’t worry, all these problems will go away when you get pregnant”
Me: *19yrs old, not thinking about getting pregnant at all, confused*
My mother said the same thing! Why is that supposed to be the treatment? I don’t want kids!
It's not a treatment. Pregnancy is a state of increased progesterone which can quiet endometriosis symptoms for a time. However many people who get pregnant and have endo report they still have pain, and it comes back with a vengeance once they're done breastfeeding. There is an unfortunate conflation with cessation of symptoms equaling treatment of the disease with endo. The only thing that effectively treats it that we know of is expert laparoscopic excision via the Redwine Methods (85% success rate). Everything else is kicking the can down the street.
My grandma says the same thing. My friend (who is 30 years older than me) says to didn't go away for her after she had her son.
I feel you, i got a huge ovarian cyst on my left side because of my endometriosis, my ob-gyn doctor, whose is the head of the maternity hospital which i go to, said to me the same thing: after my surgery, try to get pregnant for 2-3 times or, until my symptoms “stop” on their own. I’m 28 yo, I don’t have any relationships, and most of all, i don’t want kids. That make me really depressed
This happened to me I got diagnosed at 19 and was told to have kids and by the time I'm finished having kids ill be in the menopause 🤷♀️
This story reminds me so much of what happened to my mom. My mother had a rare form of endometriosis that was first diagnosed during the ultrasound for her pregnancy with me. Her uterus was abnormally thick and made me appear much larger than what my actual birth weight was upon inducing. Since she had difficulty with the pregnancy, she had her tubes tied.
Over the next ten years, her periods began getting longer and heavier until she had one that never stopped. She went to the ER several times over three months and was told the same thing; "see your OBGYN it's a chronic condition" but her old OBGYN had moved, and she could not get in as a new patient for several more months. After 14 weeks of heavy bleed, she began to hemorrhage and she collapsed and went into shock while we were shopping. Luckily we were right next to the hospital but we were told she might not make through the d and c because she lost too much blood.
She had two bags of RBC and several months of B12 shots, along with prometrium for three years until her hysterectomy (which is another horror story itself) but she survived. I almost lost my mother because the doctors at ER didn't take women's health seriously.
I started crying watching this. I had been told I likely had endometriosis for years. One day I woke up in severe pain and couldn't stop rocking. It felt better pushing my fist into my abdomen. I tried meds, tried to sleep, then went to Emerg. I was told to wait for 7 1/2 hours. At the 7 hour mark after increasing pain, I felt something go *pop* and I went numb. I was called in a half hour later by some dudebro doc who just asked if I needed to pee. Then he told me "Oh, you probably didn't see the stone. Go home." No imaging, nothing. This was not a stone. Then I had weird bleeding, which two (male) doctors told me was "A period. You've had one before, right?" A month later, I "gave birth" to a fleshy balloon of sorts. I went to another hospital where a cheery nurse told me it looked "Just like a miscarriage!". I went to my clinic, where one GP told me there was nothing and I'd have to live with the still ongoing pain. A year later I managed to see another doctor who sent me to a specialist, who did a laporoscopy. After all that, the likely ovarian torsion was missed, but I now have a definitive diagnosis for endometriosis. If the whatever it was didn't burst, I probably would have suffered with a rotting ovary until *someone* took me seriously or I died. Mama Doctor Jones, please keep educating.
🤬
Jesus Christ!!! I’d sue the hell out of everyone! But whats with the cheery nurse “Its just a miscarriage” like first, empathy???
fuck i'm so sorry, i wish it was taken more seriously, i also have it and before the diagnosis i just thought having a fever and not being able to walk on my period was normal... I feel for you and hope you're doing much better now
This reminds me of when my brothers gal bladder was getting ready to explode and he was coughing up blood from it being that bad and my mom took him to the closest ER which is an hour away because of that(she was a nurse and was pretty worried with what was going on) and the hospital took six hours to tell them he had really bad acid reflux.
As he was getting discharged mum noticed he'd started going jaundice.
Mum got him discharged and immediately drove another hour to the next closest hospital and he was immediately taken in, had an ultrasound and some sort of scan and then got right into surgery to have his gal bladder removed. His kidneys and liver had started trying to shut down because of how inflamed and infected his gal bladder had gotten.
Great job mom for being on top on things. Those doctors who dismissed him should be sued.
Sadly that's common with some hospitals. I knew a girl who wasn't being treated well for her medical care no matter which hospital in her area she went to.
I'm glad that your brother is okay now and that your mom had followed her instincts!
Did they even do an ultrasound?
@@msaijay1153 sometimes gallbladder issues don't show up on US, it can be something besides stones. Other type of scan was probably a hyda scan, it tests function of bile passing from liver to gallbladder to stomach
the same thing happened with my dad!! except it took moving countries for them to figure it out lol
I'm sitting here, watching this, while I hold my sleeping 7 week old son. And it's hitting home, because that could've been me.
I was "unofficially" diagnosed with endometriosis when I was 15 years old. My pediatrician had suspected it for two years, but delayed treatment to make sure it wouldn't correct itself as I got older. Since I was just a teen, she didn't want to do surgery on me to give me an official diagnosis, she just put me on birth control to try to regulate me. Even with that, I still was in so much pain that I would miss school every time I had my period. I was told it would get better after I had a baby. Again, I was 15.
When I was still in the process of starting on birth control, I had an ovarian cyst that ruptured. My mom took me to the er, and they originally thought it was my appendix due to it being on my right side. When they found my appendix was fine a that I had a ruptured cyst, all they did was give me pain medicine and sent me home. Never told me any risks or suggested doing surgery to make sure it wasn't worse than what they could see on ultrasound. Told my mom and me that it's normal for someone with endometriosis. Only gave me a note for school for one day. At school, my health teacher mocked me for missing school because of a cyst. According to her, they don't hurt.
I continued without an official diagnosis, and over the years starting developing more severe symptoms including chronic nausea, more severe pain during periods, and chronic abdominal pain that was getting increasingly severe between periods. I kept being told by countless doctors that they couldn't find anything wrong, so I was probably fine and it would work itself out.
By the time I was 26, I had to leave my job because the constant pain was too debilitating. I would black out from the pain during my period, and no over the counter pain meds could touch it even when I took 4 times the recommended dosage because I was desperate for relief.
Doctors put me on vicodin to use during my periods and oxycodone for between my periods.
Finally, one doctor listened to me and told me it was not okay to be in that much pain and she was going to make sure I got answers. She referred me to a phenomenal ob/gyn who agreed that I shouldn't be so sick and that he wouldn't let me go without answers and treatment. He immediately got the process started to get me a diagnostic laparoscopy.
He performed the laparoscopy, and found and removed endometriosis.
I had immediate relief.
Just over one month after my surgery, I found out that I was pregnant with my first child. My husband and I had not been using condoms for 6 months prior to surgery and I had been off the pill for 6 years, but we didn't get pregnant until after this surgery.
Those two doctors changed my life.
But I often think of how much pain and sickness I could've avoided if any one of those other doctors would've taken me seriously during the 11 years I struggled without an official diagnosis.
This case reminded me of this one time in highschool I was having awful period cramps and just wanted to go home and rest and cry, so I went and told the school inspector, and her answer was something along the lines of "I'm older and have had a ton of periods and they don't hurt that much so you're making it all up. Stop exaggerating and go back to your classroom". At 18 my mom finally took me to see an obgyn and I was diagnosed with polycystic ovary, and have always have painful and abundant periods. This other time I was around 13 and asked my female PE teacher if I could stay with my pants on because I always bled through my shorts, and she said that simply wasn't possible and I was just paranoid. Sure enough, I started running and she called me over and let me change back to my pants. My shorts were absolutely drenched in blood. People should learn to listen to AFAB people when they say something's wrong, because not every body works the same way, and the fact that EVEN WOMEN working with kids can be so ignorant about periods and female anatomy is truly a testament of how little we tend to actually listen, learn and empathise with others.
I never had a problem with my periods. Pain or heavy flow.
Even then, if someone was that dismissive of my daughter's self advocacy I would be out for their head.
I'm afab (FtM Pre Transition) and I have PCOS (polycystic ovarian syndrome) I get you! My doctor once told me that I was just lying to get attention and drugs, one time I bled so much I actually passed out. Wasn't just menstrual blood, there was actual blood there too. Yet the doctors didn't notice or care to treat me early on, when I woke up in the hospital I bled all over the cot and the floor, it was such a horrible mess. I got to see the doctor again though, promptly told her I'd be finding a new doctor who isn't ignorant.
I passed out before from the pain and got told more times then once get iver it, the male pe teacher was the only one that was ok take it easy and if anyone had to was the restroom or go change he wouldn't care. Some of the teachers where assholes I qlmost throw up on one because the wouldn't late me go to the restroom. Had a teacher tell me I wasn't on my period and I bleed though my pants and had to show her before she late me go.
4g (4000mg) Myo-inositol and 5mg methylfolate daily for three months. Give it a try. It worked wonders for me. Long distance hugs, ladybug!
I can't count the number of school afternoons I missed because of the pain you describe. Polycystic ovarian syndrome too and yes , sometimes the nurse would try to just let me suffer but I would insist and tell her I want to call my mom and go home ( I couldn't even walk)
My mom's gynecologist told her to get pregnant too... 😂and now I'm here. Its sad but funny.
Oh wow..
So medical treatment hasn't changed in years, that's ressuring lol
I'm curious if your mom's pain came back after you were born. And what they told her then?
Moms gynecologist told her the same thing, now they’re telling me the same thing lol :D
@@busbusvlog :( I'm sorry. Hopefully dr jone's advise helps!
@@shevahauser1780 It actually didn't come back! She's super grateful. Now I have it though, but the doctors don't think it's related. 😅
Same. I'm happy to be here, but I am now dealing with the same issues. I am child free by choice, and even my very progressive doctor suggested it.
Wow! Thank you so much everyone! Your comments were overwhelming, and are very much appreciated ☺️☺️ I tried very hard to do justice to the role and the sensitive subject it can be for some women. I’m glad we were able to get the word out and start conversations about this. My heart goes out to all you courageous women who deal with chronic pain both physically and emotionally because of this. I wish you all health and happiness, truly. And I wish you peace in your minds and your hearts. Be well 🙏🏻❤️❤️
AMEN, Doc. This is EXACTLY how it feels to be ignored, or worse, treated like a drug seeking addict when you have ANY condition that doesn't show up, or is extremely complex.
Even when something does show up they treat you like an addict because you need painkillers, a new tendency that is absolutely awful. And when something doesn’t show up in a lot of cases it means they haven’t looked well or hard enough and should keep searching. There are only very few people who go to hospitals for attention or to get pain meds to get high on, yet they use it as an excuse all the time and as a reason to mistreat people. Even in the case of an addiction or attention seeking something isn’t right, they should always be there and listen. It blows my mind to be honest.
Came here to say this. The minute you bring up pain they assume your looking for drugs and dismiss you. I know multiple people who almost died because they were dismissed.
Amen, added to my endometriosis diagnosis, I have a kidney disease that means I can not take anti inflammatory meds and I’m in recovery (thankfully 25 years I got sober at 15) so the risk of addiction is real, but the extreme pain is as well.
I know this isn't really even close to on the same level but i felt a version of this when i was taking spironolactone while on HRT, and i had worsening nausea at mornings, eventually getting so bad the nausea didn't go away at all during some days. So after crying one day about the constant nausea i went to a doctor. They basically thought like "could be this or that, not sure" and gave me a medicine that i guess closes the stomach entrance more. It didn't help at all, and while the nausea did sort of get better after a few weeks it never went away, until i stopped spironolactone. And of course this could be a sort of combination effect, but i had asked multiple times if the meds i'm taking could be causing them and the doctor each time said basically "thats very unlikely". At least she did proscribe me some meds to try and even i think gave me a bloodtest, but in the end nothing came out of it
I “love” how torodol (a muscle relaxer) is the go to pain med now for everything from nerve pain to broken bones.
I’m waiting for the medical field to figure out that not treating pain can be just as damaging as addiction.
The one thing this episode left out was the hospital accusing this patient of drug seeking.
This happened to me. I went to urgent care once because I had a 7cm chocolate cyst which was causing soooo much back pain and abdominal pain. I went to urgent care for relief and the nurse practitioner said "I'm not giving you pain killers". I said "I don't want pain killers, I need you to help me". So annoyed by these types of reactions.
Ive talked to so many doctors about my shark week cramps, I can barely get outta bed and its taxing and hurts but i know that if i don’t people are going to tell me I’m being a “big baby”. Ive been trying different types of birth-control for *years* but the pain is still intense and i just want something for those really bad days so it doesn’t effect work and living my life but my docs all say the same thing “I’m not putting you on stronger pain medication, you’ll just have to deal with it.”
@@allybratz Get weed if you can. I expect you're in USA, so can't suggest any over the counter stuff, but here in UK we have pills called Co-codamol and it's fucking great. I had bad cramps when I was having periods (yay birth control that takes them away), like I'd be crying or fainting from pain. Tried all kinds of things, meds, etc. I once even thought if I'd have a breeze with labour as I was used to cramps of hell. GP once prescribed me co-codamol and omg, works fast and well. Every period. And lighter doses are available over the counter here. Paracetamol, ibuprofen etc didn't do shit, like at all. That did wonders.
Exactly! You can have a stroke or heart attack from high blood pressure from the pain. I’ve been told during flare ups over and over that my “blood pressure is dangerously high”, yet they’d still offer no pain relief.
@@kristenmower8028 that’s horrible, I’m so sorry.
My wife has endometriosis, and as she was watching this, she told me she too was told the same about getting pregnant, the last flair up she had was after she had watched a few of your videos and it was the first time that she was taken seriously, they even checked for pregnancy (something they don't do often when she talks to them) all this video made her feel like she won't be dismissed by other obgyns. We love mama Dr Jones!
I was having an asthma flare up once and the PA was telling me I had anxiety. I’m like no, I’ve had asthma since I was two, I can’t breathe!
I’ve had to advocate for myself so many times. They always shrug women off. Even other women shrug women off.
I can’t believe how differently my husband gets treated.
Intro: Listen to your patient
Me: laugh-cries in undiagnosed chronic illnesses
My exact reaction, I didn't expect to cry watching this but it really hit a nerve.
Same. Wasn't expecting to cry at this, but here I am lol
Hang in there Emma and be sure you push to get results. I just had a total hysterectomy from such severe endometriosis that went basically unattended and swept under the rug for 10 years that crippled me. I had adhesions so bad nothing was salvageable. It took me 10 years finding the right Dr to finally listen. I'm so sorry this is happening to you, we need so many more advocates out there for women's health. Of course I only recently just found this channel but holy heck I wish I would have found it sooner!
😭feel this
@@friskitbiscuit2235 Thank you. I’m pretty sure I have Ehlers Danlos, and am kinda diagnosed with POTS. They can’t diagnose me since I’m technically malnourished. (Anorexia history). Also stomach issues and other crap. it sucks. They always tell me to drink water or eat more. Will that keep my joints in place?!
This episode got me in the feels. I'm an endo sufferer.
Before I was officially diagnosed, I once went to the ER. They never ran labs. The nurse took my symptoms, and the Dr came in 15 minutes later and said it was gas and to go home. I spent YEARS trying to get people to listen to me. By the time it was caught, the endo was so bad, it had blocked my fallopian tubes and I was told I can't get pregnant now.
Your video about period pain is part of the reason I went to the obgyn for the first time and got on meds. I always thought the pain was normal, even if it made it hard to concentrate or spend time with people. Thank you!
Same here! That video absolutely changed my life 🙌
@Mama Doctor Jones: I am an endo patient, and also a PA. It is SO refreshing to see you so well informed and well educated on the condition, as even in the gyno community endo is so misunderstood. I am especially refreshed to see how seriously you take the concept of extreme pain + ovarian cyst = torsion until proven otherwise. 4 years ago, I had a large ovarian cyst, which woke me up at 2 am in severe pain, and I was told "it's just a cyst" when I went to the ER. Even though I told him that my gyno had warned me several days prior that the cyst was large enough to increase the risk of torsion. Went back to my gyno 4 days later, he says I more than likely had a torsion. THANK YOU for being so well-read and educated!
man: endo is tricky. women can feel one thing one day and something completely different the next... the pathophysiology of uterine nerves.
woman he's talking to: -_-
Are there not fast acting short duration nerve blockers for acute pain?
Doctors never sit down with a patient, even if asked! What's up with that? I HAD A DAMNED STROKE AND NEEDED A COMPASSIONATE CONSULT WHICH WASN'T ON OFFER THAT WEEK. F THOSE GUYS.
@@fluxoff I'm a nursing student and we get told that because we're with the patient a lot we have to be compassionate and therapeutic but I believe EVERYONE should be compassionate and therapeutic
Don't you just love that even men who are supposed to be trained on women's bodies dismiss problems with our bodies?
@@apolloandwarrior_3229 Good line to use on them if they ever try that.
Endometriosis- severe here. So so so mad as one of my first Obgyns literally said “get pregnant” I hate going to hospitals and the dr as I’ve already lost an ovary because of a dr & endo.
Lol I heard that too for my PCOS and I'm a trans guy.
Fuck most doctors tbh. Good ones like MamaDoctorJones are super rare
Yep. It's ridiculous.
I've been told to get pregnant every time I go to a dr. I've tried to get a hysterectomy but they said I'm too young (26 yr) and should have a baby first even tho I don't want children.
Additionally, endometriosis can cause fertility difficulties. So its an even dumber thing to say
@@samsar3750 then it's easier to get a hystectomy than a tubal. At least where I live you have to have husband's permission, 3 kids and I honestly forgot the third required step is. It's just as rediculous
My obgyn literally had to scream at the er to do an ultrasound because they were refusing.
They found a torsion and I was rushed to surgery prep, there the Surgeon on call harshly told me "you don't look like someone that needs emergency surgery" it made me feel so safe in his hands.
As an endometriosis sufferer I want to punch that male ER doctor.
I've had 5 surgeries (two this year alone) I'm very fortunate to have an amazing specialist this year (I'm in New Zealand)
I told a doctor that my periods were becoming more and more irregular and that they were coming out weird ... and she literally looked at her lap and said, "I don't know why you're worried about this".
My body was acting abnormally and she just brushed it off, just like that. I was dumbstruck and she talked me into coming in for an unrelated yearly and told me not to worry about my menstrual cycle until I've been trying to get pregnant for a year.
I'm still livid.
Did you ever get anything figured out? I hoped you dropped that trash doctor
I hope you went elsewhere. That's terrible!
I don't think a lot of patients realize, but we can technically report those doctors that treat us like this to either the hospital/clinic administration or to the American medical board. We still have patient rights regardless if it's chronic or not and we should all know them if the doctors are not helping us.
@@Kaye09MNchick I didn't know that. Thank you for the information
I don't think most doctors know how to help you regulate your cycle or figure out what is wrong. I have the same problem and its because I have hypothyroidism. You should get a full thyroid panel and consider increasing food in your diet thats high in selenium and iodine.
This video hits hard because I have had endometriosis since I was 16. No one listened to me then and no one listens to me now. I stopped going to the er for severe pain because of how they treat me. I wish every doctor was like dr Jones and actually took me serious. Cause now I also know that I have fibromyalgia and Crohn’s disease as well. But those took almost ten years to diagnose because no one took me seriously.
Look at Endo specialists who perform MIGS excision!
I also have fibromialgia And Well.. IBS. Still, a really painful form of it. And I Just wanted to say... It hurts, it tiring... But, your pain is valid, u are not crazy. You are human but, u are strong. You can do this And to everyone else, we can do this.
Don’t give up! After years of getting nowhere with my terrible gut problems, I found an amazing gastroenterologist who listened to and believed me. I begged for a colonoscopy and she found 3 huge polyps that if left would’ve become cancerous. My sister then got screened and has the same condition so the Dr essentially saved both our lives. Weirdly the polyps have no symptoms so it was so lucky I had other symptoms to find them! Keep fighting even though I know it’s hard! ❤️
Kalen, I could have written this comment myself. Except, I did finally find a wonderful doctor who did believe me regarding my endo and treated me so well - I finally was fitted with an IUD a while back which was a godsend. I couldn't have a hysterectomy at the time because I have an autoimmune disorder along with fibromyalgia (and now I also have neuropathy) and my GYN was worried about healing time if he did a hysterectomy at that point - I was on RA meds and would have had to be off them for 6 weeks prior to surgery and I think at least 6 weeks after (forgive me if I have those dates wrong, it's been a while!) but being on those meds and having RA would make the recovery process harder. I hate that he retired last summer. I absolutely adore him.
My heart goes out to you. I was able to heal my fibromyalgia with bio magnetisms. It really works.
When my gyno diagnosed me with endo, she did it with a smile and told me, point blank, "you were right, you weren't making it up." It was the best thing anyone had ever said to me. For years I had doctors tell me that sometime periods are just painful and I had gotten to the point where I was honestly thinking that maybe everyone has that kind of pain and I was just being a baby about it. Sometimes all it takes is for someone to hear you.
Unfortunately, this is so accurate. I suffer from endometriosis. When I was a teenager every month, I had extreme pain, diarrhoea and I was throwing up. I had to skip school, stay at home in the toilet with a bucket crying till I passed out. Every time I was describing those symptoms to doctors, they said: "period has to be painful" or "after you got pregnant, it would get better"(I have symptoms since I was 13 years old). Now I take birth control, and I feel much better. My only concern is the government in my country wants to ban birth control. I don't know what I'm going to do then.
Where are you from? That sounds horrible
I have had symptoms since I was 7. Was told multiple times that it was normal. That I didn't understand my pain. Didn't get officially diagnosed until I was 12. Have been on birth control since then.
Sounds like me. I didn’t get taken seriously until I was 22.
@@baba-t4q1k Zgadza się, jestem z Polski. Polski to trudny język. Żeby posługiwać się nim na takim poziomie, musiałaś włożyć w naukę bardzo dużo pracy.
That's right, I'm from Poland. Polish is a very difficult language. To use it on the level you do, you had to work very hard.
Just based on what's going on in Poland and your comment about BC, I was going to guess that's where you're located. Scrolled through the comments and saw you already said as such. Wishing you and the women of Poland all the best, it's horrifying what's happening there.
I've been told to get pregnant too from a doctor with my endo symptoms. He was dropped.
My female obgyn told me too as well
Me too, by multiple doctors many times. The worst thing I heard (from a female obgyn) was that I should go see a psychologist instead of an obgyn to deal with my problem
@@mariean.6387 I am so sorry that happened to you, that sounds horrible
@@TheMimiandbb thank you ❤❤ I'm okay now
I was told that once I got pregnant one day a hormonal issue I was having related to my period might get better. I was 12. This was my pediatrician.
I've lived this so many times. This exact scenerio. Including the questions during a pelvic exam. I have PMDD, Asthma, Hashimotos Disease, Fibromyalgia, and Endometriosis(diagnosed via lap). I live in chronic pain. I hate going to the Emergency Room. Because if I go for pain they either don't try because it's likely "just endometriosis", or are completely mortified that I live in constant pain. I've had the ER miss a serious colon virus, and adhesions in my colon, due to them refusing investigate new pelvic pain. I was in the ER for chronic pain two weeks ago and they didn't see anything on CT or Ultrasound, I was on Morphine and torridal and still crying in pain. Literally exactly this happened to me two weeks ago.
YAS! There are days when I have to think "is this pain from endo or from fibro today? Did I take my meds this morning?" Cause in November when waiting for the prescription I needed to not be on back order, I had a flare up from both at the same time. I was bedbound for at least 36 hours and had to work from home via phone calls with my assistant and a notepad I keep close by. People just don't understand
Ooof. That's hitting hard. I've been called "too sensitive" and "too delicate" when I cried in pain when on period. Turns out I have endometriosis, and when they finally did the surgery, they found a cyst the size of an orange.
I too have been told to get pregnant to relieve the symptoms, which is a terrible advice, imho. Bringing a new human being into this world should not be a treatment, ffs!
I hate the GET PREGNANT advise....
Like children are toys and you are a toy 🏭😤. I called him a MORON and walked out and never saw him again. That is a horrible reason to bear a child.
So grateful that I have a gyno that took me seriously and never was dismissive about my pain 👏
Same here I don’t have endo but I lost an ovary to a 4in cyst and ovarian torsion and I’m so grateful that I was able to get the care and surgery I needed to stop the pain. I had immobilizing cramps til I went in.
me too. it took so long to get diagnosed because, after endless doctors appointments and ER trips, everyone thought i was just constipated. my gyno was ready to schedule my lap after two months.
I’m so happy for you 😊💜 it’s really nice to see positive experiences 👏🏽
6:48 he's teaching her how to gaslight her patient... come on man
It really common in the medical field particularly with men towards women with chronic condition it truly infuriating and sad because so many women suffer from this
It took almost 20 years to diagnose my endo. I was sent away from the ER more than 50 times. Nobody believed me. They thought I was a drug seeker. 😥 After all those years, they called for an OB consult and they FINALLY discovered it.
man you go in wanting your cold checked out and they call you a drug seeker nowadays, really over the top imo
Same for me 20 f* years !!!
Oh wow...as someone eith several severe chronic illnesses this episode hit.
That's exactly how we are treated. People ignore us, shut us down and tell us we are faking.
I have all symptoms of PCOS and haven't been to a gyn since my last one refused to even let me talk about my issues and repeatedly misgendered me and told me it's all in my head.
If you remember that person's name, please report them! It's not ok for them to be treating anyone like that! They are there to help you. Not the other way around. I think medical professionals often forget that they're there for patients and not the other way around. Hope you're doing better now!
I deal with so much misgendering, and it took six months of actual testing just to get a PCOS diagnosis. Now my 6 month of charity insurance is up and I didn't ever get to see the actual doctor to talk about a hysto. They kept stalling because it's 'transgender elective healthcare' or other such excuses. I'm non-functional 75% of the month from pain and symptoms, and it's still elective to just take it out? I'm also over 40 with two adult children and a guy, so c'mon people! Why so reluctant to take it out when I've said I want it out and it would bring me back some functioning. Yes, there are risks with hystos, but it's my body, I should be able to decide, right?
What is misgendering? Sorry for being ignorant and asking..
@@K98vd04 so misgendering is the practice of refusing to acknowledge someone's gender identity or use the correct pronouns when referring to that person.
For example, if a patient identifies as a trans male and their gynecologist keeps calling that patient a woman or referring to that patient as she/her even though that patient has made it clear that they're a man and want to be called he/him.
Edit to add: misgendering can also happen to non-binary patients to if they ask to be referred to as they/them and to not be called a female or male and someone does it anyway that is also misgendering.
@@Shadow-zf5uc thank you for explaining.
"Wow um...I hate him."
I laughed too hard lol
But...I hate him too. 😂
When I was 13 years old, my periods got really nasty: I bled for 14 days straight or even more. The cramps were so heavy the pain made me vomit and sometimes I just passed out. My lower back hurt and I had diarrhea. This cycle repeated every month. I just wanted to get rid of my period, but I had trouble finding a doctor to put me on the pill at this young age. I finally found one just before my 15th birthday. I got bc pills, which made the symptoms bearable as I took them without taking a break. Several months ago, the symptoms came back and my IUD couldn´t suppress them anymore, so I went to yet another gynaecologist. 3 weeks ago, I had my laparoscopy where they could confirm I have endometriosis. I´m 28 years old by now.
I can relate to your story so much. I’m getting to the point where my IUD is failing and considering the laparoscopy.
So lucky you found it early, I didnt get on BC until I had to have emergency surgery for torsion around age 24. And Ive been told because of my specific complecations IUDs are risky and It wouldnt be worth it. So I havent ever had that prob, but have had to change meds from time to time when they begin to not do their job. Its so sad how long we have to wait for diagnosis :/
You would be wise to just take the damn thing out. I dealt with endo for 28 years. It was torture. Life since the hysterectomy has been so much better.
@@jbach1738 I really want to, but I´m "too young" and don´t have kids, I couldn´t convince a doctor to remove it by now.
I am sorry to hear that. Doctors are so stubborn. They never listen.
This whole episode had tears streaming down my face. When she said “I need someone to fight for me” my heart broke.
I am actually really glad that the patient didn’t say “gee, thanks” to the doctor. It doesn’t magically fix everything when the doctor who didn’t seem to believe you in the first place says “you were right”. I’m glad that the patient was in some way empowered (maybe not the right word) to say that she knew she was right all along. Chronic health problems can be so unbelievably hard.
Agreed. Although I feel bad for her doctor as well, because the real villain here was the male doctor who pulled the shots.
i only got the diagnosis of Endometriosis about 3 years ago after a gynocologist finally believed me and suggested i get a laparoscopy. At that point I've probably suffered for 12 years, regularely passing out from the pain. They diagnosed me with stage 4 Endometriosis, with frozen pelvis and adenomyosis. They told me my bowels almost didn't work anymore due to the Endometriosis. I'm doing better now after 3 surgeries and 3 years of meds, but i have chronic issues with my bowel now cause the tissue lining is very thick and inflexible now due to the adenomyosis and i have chronic pain in my uterus. Please believe people, please get everything checked. If a doctors is writing you off as hysterical or lazy, get away from them asap.
what do you mean by your bowels didn’t work? what happened? if you feel comfortable to share :)
@@kailigomez I have endometriosis it gives me severe IBS type symptoms it's on my bladder and bowel which causes continence issues
@@victoriahollis3454 oohh thank u so much! i was concerned because the doctors believe i have endometriosis (the only way to actually know is surgery i believe) and i have a lot of gut and bowel issues and we don’t know where it’s from. thank u for letting me know because now i can share my concerns with my doctor :)
@@kailigomez my IBS would relate mainly to my cycle like Iiterally constipation for the week before my period and then the day it started it was horrific pain and diarrhea. I also suffered extreme pain urinating and blood in my urine at times other than my period. Endo can and does frequently grow on your bowels. It can cause structural damage but the earlier you get a diagnosis the better. Find a good gynecologist/obgyn that you can talk to. I don't know what country your in but there are fantastic endo support groups all over the world. You aren't alone. Edited for spelling
@@victoriahollis3454 thank u so much 😭 i’m so sorry for all that you go through it sounds horrible. but thank u for helping me i really appreciate it!
I was told to get pregnant to get rid of my cyst issue I had at the age of 14 let’s just say I never saw that obgyn again
This happens all too often. Many doctors are too quick to dismiss women. It took me 25 years and a twisted ovary before I got treatment.
As someone with endo i've also been told to just get pregnant. I'm 23 with no job (still in college) and my husband and I live with my mom to save up money.... what part of that screams "i'm ready for a baby!"?
Not to mention "Nine months of relief" (which isn't necessarily true anyway), is a pretty lousy reason to encourage people to bring about a full on HUMAN BEING into existence whether they're ready to have kids or not. It's almost like they treat pregnancy as if it's as simple as picking up a prescription, basically "Oh yes, doing this THING will help....never mind the commitment and expenses that come afterwards". Just want to shake these doctors and scream "Babies are not a treatment plan OR a cure!!".
@@Panda72021 Not to mention that pregnancy does not necessarily cure endometriosis! In my case it got even worse after my daughter was born!
@@deared13 It 100% does not cure endometriosis at all. And yes, there are so many patients out there who were worse off after giving birth, and now have a child to care for on top of worsening symptoms. It should be illegal to tell endo patients to "Just get pregnant". Not only is it MEDICALLY not a cure, it's also downright unethical to encourage or sway a patient to have children.
After watching several of your videos I finally decided to look for an OBGYN who would listen to me about the pain I had been in. After seeing 3 different OBGYN’s I was finally diagnosed with endometriosis this summer after having surgery. I am so happy I listened to you saying if your pain is obstructing your everyday life and you should not be missing work to school and found a doctor who finally listened to me. Thank you for giving me the courage to find a doctor who would finally listen to me about my pain and believe me and validate my pain.
As someone who suffers from endometriosis, this made me tear up. That pain can be indescribable and there is nothing worse than a doctor or people dismissing it. I've been there, and it's a horrible place to be. Thank you for bringing awareness to these issues!
"take your time getting dressed"
ok, I'll sit here till you help me
Yes! I experienced that after a unrelated surgery. Had complications that caused my incision to reopen 2 weeks after. Same treatment in the er.
I was actually hoping it was going to go like that. That she would SERIOUSLY take her time (like a sock every 10 minutes) and the resident would have enough time to have had a change of heart and fight for her then.
Yeah, I was told the same, and they got the security staff to haul me away.
@Jenni Kaeder I don't understand your comment. She DID ask for help. She begged for help and they sent her home anyway. What did you want her to do?
"Wow, I hate him" me, too 💗
I think this is the first time I've ever seen endo be accurately represented in media and by a doctor. My obgyn disregarded my endo for 7 years even though it has been passed down on both sides of my family. At the time of my surgery, my old obgyn found 5 nodules that were causing extreme pain and infertility. I hope endo gets more media and dr attention in the future.
I went to an ER prior to my endo diagnosis. I had really severe pain, vomiting, and diarrhea from the pain. I couldn't walk. A male attending doctor accused me of drug seeking, even though they did bloodwork that showed I was not on drugs, and I denied pain meds he offered to me. I just begged him to figure out what was wrong with me because I was afraid I was going to die. I couldn't imagine pain so severe coming from something that wasn't life threatening. He refused to run any other tests and was generally an enormous asshole that shouldn't be practicing medicine. A female nurse waited until he left the room, held my hand, apologized for him, and suggested it might be endo and to schedule an appointment with my OBGYN ASAP to find out. She was right. It hasn't solved my problem. But at least now when a flair up hits I know what it is and I've found coping techniques that can help a little. I will never forget that nurses face and I'm so incredibly grateful to her for believing me and taking my pain seriously. She had a huge impact on my life.
The being accused (or having it implied) that you're drug seeking when you literally tell them you don't want pain killers is so incredibly infuriating.
Had it happen for something not-gynecology related.
I was having sharp pains all down my leg (turns out it's from stenosis in my spine causing sciatic pain) and has previously had anti-inflammatories which had helped, so I asked about getting more of those-- the ER doctor instead offered me codine, and I refused and said I would prefer something I know helps which is the anti-inflammatories.
He got all sketchy about it and talked like I was drug seeking, but afaik it's IMPOSSIBLE to get high off freaking anti-inflammatories! (Serious, chemically what even is the mechanism supposed to be?)
Besides that, I was in actual pain trying to get help!
The strange paranoia and lack of understanding from medical professionals is just astounding. He wasn't cruel to me like the Dr you had, he even discussed alternatives like physio with me after that, but his strange reaction was disconcerting.
Thank you for talking about endometriosis! I have endo and have had two surgeries to deal with it. We need more light on it so we can get more funding! I would lot to talk!
Edit: I'd like to add before I had surgery I had 2 ultrasounds and a CT scan but they were all "clear". I have severe endo on the front and back of my uterus, one of my ovaries, my bladder, my Pouch of Douglas, my colon (bowels), and several of my ligaments. None of that was picked up until my surgeries and a lot of it wasn't picked up until my second one with an endometriosis specialist.
I've dealt with worsening chronic pain nearly my entire life, I can't express how much this resonated with me. I remember the first time I was called a drug seeker, at least to my face. I was 13 years old, in a nuerologist's office begging him to figure out why my migraines are so debilitating & are happening so often. I was told I was making it up, my labs are normal so I'm a liar. I thought my dad was going to kill him. I cried the entire way home. Just tired of being treated like I'm making it up, tired of the pain, and I had been dealing with severe depression as it was. I remember getting home and thinking that if I just died, it'd be better. That it was the only way to stop my pain because no one (apart from my parents & my family practice doc, who I still i use the biggest thank you in the world for trying as hard as he did) else was going to believe me & they didn't care to do anything to try to figure me out. I think that was maybe my darkest year for a long time. It took so long; all while my pain in my body & my head steadily got worse. Trying so many medications I lost track, only a handful worked but never for long. Eventually I had to do injections for the pain in my body as well as my migraines. All of this, then I met my new neurologist at 20. Diagnosed with true chronic migraines, then sent to a rheumatologist who found out I have a couple connective tissue disorders, an autoimmune disorder, rheumatoid arthritis, and potentially lupus. I'm 29 now. I love my doctors but even now, sometimes, they need me to convince them of something being wrong when something new pops up or something changes. When you're falling apart, you are hyperaware of every little change in your body & it's feedback to you. To my fellow spoonies, please stay strong. Even if they don't see it, the battles we're all fighting are valid. Don't settle for negligent doctors, even though it's uniquely exhausting, keep looking for the right fit for you medical team. They're out there and you deserve to be heard and believed.
I've had 3 lap surgeries done to "examine" endometriosis. Once, the surgeon discovered that my appendix was adhered to my lower intestine, causing the pain I was feeling. I'm very happy they caught that because it could have been very bad in another week or two.
From someone whose had Endometriosis for 15 years, I absolutely relate to this. I can't tell you how many times I'm dismissed with severe pain. I've been to the ER with an erupted cyst. I've full-on broken down in the ER and doctors office and told to take Tylenol and go home. There needs to be more someone can do.
I HATE when someone says to me "Oh so you just have bad periods" when they find out I have endometriosis... um excuse me, it caused horrible cysts that completely decimated one of my ovaries and I had to have surgery to remove a large amount of tissue... no, it's not just bad periods. I felt this episode when I watched it, right down in my soul.
7:10
I love how the actress was reacting and playing so realistically.
As a woman who is still trying to get to the root of chronic pain, this really hit home for me. Thank you for advocating for those of us with invisible illness.
As a stage 4 endometriosis patient this made me so mad!! The number of times I’ve been through what this woman went through is ridiculous. Who still tells Endo patients to get pregnant?!
Amen Sista
When I started having extremely heavy periods I told me GP. She said they only treat it if it's clinically significant, like blood work showing I was anemic. When my blood work came back it showed that I was anemic. I was advised to take iron. I was ignored and I had the labs to back me up! I spent most of a decade anemic because just taking iron wasn't enough. I got a new Dr last year and had a hysterectomy this year and it was the best thing I could have done.
Thank you! This is similar to my diagnosis story. I woke up in the middle of the night to horrible stabbing pain in the lower right quadrant. Went to the ER. My ultrasound showed cysts on both ovaries. My MRI showed fluid in my pelvic area by my appendix. They weren’t sure if it was the cysts or appendicitis so the general surgeon did an appendectomy, which they called the gynecologist in on. I had a ruptured endometrioma and fluid was leaking into my pelvic area. They called it a “chocolate river”. In addition to the bilateral cysts, I had endo in my pelvis and on my bowels. They removed my appendix, removed the fluid, and now I am awaiting more extensive excision surgery. Thanks for highlighting this condition!
WOW! Thank you so much for all the kind words. I’m overwhelmed. I’ve read all your comments about your experiences and it really hurt and frustrated me knowing about all the struggles you’ve had to face. I am so sorry to hear all this and truly hope you can finally find some peace, both body and mind ❤️ I really wanted to make sure I put my best foot forward with this role because it is such a serious matter. I really hope this will open people’s eyes more and make them realize that you can never know someone’s pain or struggle unless you’ve lived it. Every woman has a voice that needs to be heard. Much love to all you courageous women ❤️❤️
I sobbed throughout this vid. II've gone through exactly what this patient is depicting in this scene. It is beyond frustratibg, but also really scary. You know, really know deep inside, that something isnt right and no one helps. Youre on your own.
I was lucky enough to find an OBGYN that agreed to a hysterectomy when I was 32, after trying so many different other medicine related approaches without any relief. Now, I am free of pain and myself again.
I asked multiple times for a hysterectomy, as I never wanted kids and could not stand the pain and side effects of my gyno issues (diagnosed at 38 as endo) I kept getting told "we will consider it after you have had at least one child to see it that helps your symptoms" Even at the age of 38 as I was preparing for an emergency laparoscopy a OBGYN told me I was "being silly" when I told him if he found any reason to justify a hysterectomy, I want that option and in no way do anything to "save" my uterus if that was the case. He put his hand on my shoulder, shusshed me, and told me I was to young to make that decision for myself, so he would make that decision for me and he would do everything he could to save my ability to have kids... I had to wait another 30 mins while they called a different surgeon down as I blew up at him and revoked his right to operate on me. I'm still angry about it!
@@NaysWays what the actual F. I hate how they are somehow, in their heads, intitled to OUR bodies. Like they call the shot for us. I'm so sorry you had to go through that!!
@@Progressivelyyou you too!
@@NaysWays Oof that sh*t makes me angry!! They said that to me too.. you're too young to decide. They just brush it off as being silly or too young or whatever. Awesome that you managed to hold your ground in that stressful moment and refused to let him do the surgery! That stuff is not okay!
@@flowersandlemons I was boiling mad I tell ya! In hindsight I do enjoy the memory of the shock on his face and him scrambling away as fast as he could. He had other patients in my room when I was back in the wards, and he would scurry past my bed to visit them.
This reminds me of when a doctor told me I’m “lucky” to have endo since I get to take birth control continuously in order to not have periods. Like sure I don’t have periods, but I’m still in pain literally every single day of my life, have to be on medication with harmful side effects just to function, and had to pay thousands for surgery. But yeah, so lucky 🙄
God i swear these ass hats should be barred. From practice!!
how is that considered lucky to have to take synthetic hormones that are harmfull to you on a long period of time? Jeez! doctors sometimes are frustrating!
INFURIATING. Not all of us WANT to be on meds douchebro doc! That doctor's response makes me want to set everything ON FIRE.
I haven’t had the surgery as all my doctors have refused (probably due to my age) but they all have said I most likely have endo (my mom has it too but when they finally were willing to do surgery for her, it had encapsulated her colon and she still lives in excess pain to this day, tho I believe menopause did help ease it some)
There was only one birth control pill that worked for me (Levora) but after being on it for several years, and it did hide my symptoms fairly well, I almost ended up seeing a neurologist. A close friend who is a mom-figure to me suggested it could be the hormones of my pill, and so I tried stopping it and within a week the supposed neurological issues began easing up significantly!
Not only do not all people want to be in medications but some of us can’t because our bodies don’t react well to medications (my body is difficult even with my mental health meds which means I’m technically under medicated by choice so I don’t exist as what is essentially a zombie, as that is no life at all)
Also you can take period stopping birth control for any reason as long as you're not contradictated for that form of birth control. There is no difference in side effects. A specific person will have the same experience on the same kind of birth control regardless of it they take placebo or lower dose pills instead sometimes. I have PMDD and heavy gender dsyphoria about periods, and take oral birth control every day. But any non-stupid doctor should give me a rolling BC prescription if I said "I need a contraceptive and stopping my periods would be a nice bonus".
Thank you for this video.🙏💞
I myself have endometriosis, which wasnt officially diagnosed untill I had a ectopic pregnancy, which ended up exploding 1 of my ovaries... soon leading to a partial hysterectomy (they left 1 ovary for "natural hormones").
With my endo I felt pain yes, but it was so common to me i never really complained... yet it was satge 4 when found and actually cause cervical cancer cells to form, the endo had spread to my kidneys, liver and colon (which during the hysterectomy, part of the colon had to be removed as well.)
This video made me feel heard. When it was a battle with my doctors to help, to the point I had to go out of state to find someone to actually listen and help. Which even they changed their mind while I was under the knife.
The world needs more Mama Doctor Jones'.
Much love to you.
My endo was finally diagnosed when I went in for a hysterectomy that I had to beg for. I started asking for a hysterectomy when I was 30 and finally found a doctor to do at 43. By then it was wrapped around everything and explained so much. I also have EDS and with that chronic pain. I'm so sick of hearing there nothing we can do for you.
Periods with EDS are horror, especially if you have something else thrown in with that and they keep brushing you off instead of taking it seriously. I hope the surgery made a big difference in your life.
@@Sue-pn7mq It did help. The recovery was long and hard, but worth it! Thanks
I have endometriosis and had an ovary remove about 10 years ago. I am now happily 21 weeks pregnant! 💙
The thing about endometriosis is before you're diagnosed, no one believes you're in pain. After you're diagnosed all pain you experience is attributed to it. You are never believed. My endometriosis pain has always localised in my right lower abdomen and I'm terrified of getting appendicitis and not being believed, considering the amount of times I was in urgent care and all they checked was that.
Have you ever tried herbal medications it worked for me with no side effects whatsoever with the help of DR MABOSA HERBAL on UA-cam he is indeed a life saver
This sums up my entire life's experience with doctors. With me AND with my children. One of my daughters found out she had POS, after moving from home. After telling the doctor something was wrong. for years. And being sent to a nutritionist. Because even though she was my only overweight kid, out of 5. The doctor was convinced it was her diet. I fed them all the same. Or the time my doctor kept telling me nothing was wrong with my kid, and we ended up in the ER for a urinary tract infection that almost killed her. Her urethra was too small, and needed stretched. She got so sick, I had to carry her into the ER. She couldn't walk. She had been to the doctor, more than once that week. I switched doctors a few times. Same story, each time. I then decided to turn to herbs, massage and holistic ways of healing. Because I got tired of being shrugged off. I love watching you, for all the unexpected births. But in general, western medicine is pretty severely flawed. And unfortunately, the doctors who actually listen to their patients, are few and far between. We shouldn't have to be on our death beds for answers.
Suddenly I'm even more pissed off my school didn't warn me about uti's
And then the whole internet hates on the herbs and essential oils and anti-vaxx phenomenon because scientifically they don't work, but what are you supposed to do when you can't get a doctor to LISTEN to you?
@@tealkerberus748 Biased science. They work for me! And many people. A whole lot of us out there. The haters are what gets through when a biased media, infiltrated by a biased science, likes to sensor things that don't fit their agendas. It's time for a more doctors to learn a more holistic approach to medicine.
The pain thing is dumb: when I had several severe gastric ulcers I just felt like I was hungry... until they all pierced at the same time and I was loosing blood and was hospitalized with perfusions and needed several surgery to recover. I NEVER felt any pain. The pain is not a factor of if it is serious/severe or not.
No but it is definitely a sign that something needs to be investigated. You don't just dismiss changes in people's pain levels. When things change, this is a sign that something else is going on.
I have endometriosis and I was lucky enough to live near a world class doctor who specializes in teen endometriosis when it got really bad. He listened to me and we aggressively treated it. My mom was not so lucky, and she was told it was all in her head or a bowl disorder before it was diagnosed, and even then they did not even remove any lesions and just told her to go home. I feel so blessed to have received such amazing care, and seeing this episode makes me want to advocate for the awareness around chronic pain from endo. For those of you who are still suffering, keep fighting. ❤️
I remember as a middle schooler hearing my mom scream and cry in pain from her bathroom. Turns out her endometriosis was so bad she had the biggest cysts her surgeon had ever seen, and lost so much blood they weren’t sure they could save her. Thankful they did! But now I get paranoid anytime I have pelvic pain
I’m so glad you’re talking about endometriosis. Every doctor I’ve ever seen has looked at me like I’m crazy. This disease is the worst
As someone with chronic pain that no one but my primary seems to want to figure out, this is really really relatable and a big thing that people without chronic pain (and especially doctors) need to listen to more. Great video!
I have endometriosis and the "just get pregnant" comment happens a lot.
That's terrible 😩 That should never happen
@@kamcorder3585 It's especially great to hear when you've been trying to get pregnant for a few years. And especially an obgyn should know that many of us struggle with it.
Rheumatologists say it too because some chronic auto-immune conditions go into remission if you get pregnant. I wonder how people 100 years from now will talk about this time period "when doctors told women to have babies as a cure all..."
OMG that sounds quite stupid, I think that I would shout at them in pure ANGER
My friend was told at 15 to get pregnant when they diagnosed her. It’s completely absurd that a baby is seen as less of a risk when weighed to just treating the Endo.
Yes! Please do an Endo video. It is so incredibly rare to watch something so relatable on it. It took years to find a doctor to believe my pain. My doctor is awesome, but it would be wonderful to hear more from another doctor’s perspective as well. Thank you for reacting to this video. It was very touching. ❤️
As someone with endometriosis, I really appreciate this episode. I have 100% felt this way and it took from the time I was in high school to when I was 25 for a doctor to listen and help. I now have a confirmation that i do indeed have endometriosis. I know that there isn’t much that can be done about the symptoms but just knowing that something is off makes life so much easier.
When I wound up in the ER for the first time for debilitating pelvic pain, the doctor told me it was mittleschmerz and sent me home... for the subsequent years I was treated like a drug addict until I found an OB who listened to me. She told me “I think you have endometriosis.” She opened me up and sure enough, there it was. She excised everything and thankfully I’ve been pain free since!
I'm a gynae nurse in Australia - so often patients are dismissed, especially those with chronic conditions!
It is so much more satisfying seeing how compassionate she is than watching Dr. Mike
All the endo girls in the comments have me tearing up 🥺 your pain is very real and your feelings are valid. We hear you and we believe you 💜❤️💚🧡💛
As an Endo patient, I feel every word Casey was saying. Endo is painful and hard to navigate when no one believes your pain is real
I finally found a doctor who would do a laparoscopy last November and I felt this. Endo sucks so much. It was really starting to tie up my bowels and would have kept getting worse if it hadn't been caught. The world needs more sympathetic docs like you.
I hear you there, I’m currently waiting for a laparoscopy after I asked for one as my doctor just said it sounds like endometriosis so I’ll just put you on the pill, didn’t even want to look into it and it was a woman doctor too 😡 and I keep phoning my doctors as the pain is constant and intense I also feel bloated all the time to chase them up as I still haven’t been given a date for the scan and have been to A&E recently in absolute agony to which they said it sounds like endometriosis all they said was the only way to treat it is to go on the pill 🤦🏼♀️ I have know idea what stage it’s at and feel like I’m not being taken seriously about the pain I’m in every day it’s really affecting my life. Something really does need to change in the medical profession.
I’m 29 I had a hysterectomy last year due to endometriosis, Adenomyosis and PCOS...
I used to get all the time your pain is due to endometriosis, it almost cost me my life when my appendix went!!
Got told 100s of times to try and have a baby!!!! 🤦🏼♀️
To add I’m still childless but I have also recently been diagnosed with IIH
They think it was caused by overuse of hormone therapy!
I just had another lap early March and decided to get my appendix taken out so I wouldn't have that fear and also endo can sometimes get in all the crevices and create more problems. So, I just got it out and now I don't have that worry.
I had a completely unnecessary appendectomy because (even with printed MRI results in my hand proving that I had cysts/suspected endo), that seemed more plausible to the female ER doctor than that a cyst had ruptured!
@@charlottehenderson7884 that’s completely shocking! Doctors just don’t listen do they!
If you don't mind me asking, did a hysterectomy help with your endo symptoms? I'm being told by my gyno it doesn't but I've heard from my cousin that it's helped her.
@@chaoticcyanide absolutely! Best thing I ever done! Been endo pain free since! It was was the quickest surgery I had healed from too! I had 9 laps to treat it, I have been left with one ovary as I can’t use hrt but everything else has been taken. I was exsisting on morphine and gabapentin, I’m still on gabapentin but that’s because of my brain condition now.. but life after a hysterectomy is amazing!!!! X
Had an ovarian torsion. Most pain I've experienced including kidney stones and broken bones. Was actually in college station for a lacrosse tournament. couldn't stand up, but continued to play until my coaches took me out bc I threw up. my school nurse had dismissed it as ovulation pain, so I had convinced myself to play through the weekend. definitely learned my lesson in actually addressing the pain I was feeling.
I was surgically diagnosed and have been treated like this so many times... Its horrible and still have issues trusting medical professionals with my treatment and comfort