Just found out this afternoon that I have been approved for the DBS procedure at Emory University in Atlanta. It was both exciting and scary at the same time regarding benefits and risks but am looking to talk to the doctor that officially diagnosed me about 5 - 6 years ago. Want to make sure I make the right choice to resolve my essential tremors...something I have lived with since I was 35 now 60. This interview gives some great insight on the procedure and what I will probably go thru.
Great information. Thank you Steve for sharing your experience. Real life experience sharing is very helpful :). When I first met my MDS, we went through the motions of testing balance, walking, the finger taps and what not, and we talked about things. She said to me "You would be a great candidate for DBS in 4 to five years. Well here it is 5 years..I'm Bradykensia and Rigid movement dominate with a very little tremor. I went through my physical type of evaluation for DBS which they had me come in on no meds, and filmed me doing certain exercises, then I took my normal dose of meds, waited for them to kick in and did it all over again. I was told I would be a candidate for the STN-DBS. I did learn there are two types. The other is for tremor only, rarely done since STN really covers it all, but available if it is the right path for that type of patient. My evaluation for the memory and cognition is coming up next. Like Steve was saying, sooner the better. It just makes sense. Thank you again all!
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
Hi, thanks for your question. I didn't have brain fog to begin with, but Brian did...and it did make a difference for him. I didn't see any difference regarding fatigue.
Every person with PD is different and from what I've seen every experience with DBS is different. But its not just DBS, exercise needs to be involved too. But I would like to think that yes, you would be able to play golf again, but I don't think anyone can be sure. Good luck on your journey!
I was wondering if you ever thought of doing a segment from your gym where you work out with other Parkinson’s people? It might be helpful to see what other people are doing and are capable of and who knows, it might motivate somebody. As always, I appreciate your efforts!
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
what a pleasant, soft spoken articulate gentleman, loved listening to him. Great ep Jess and Brian.
Thank you for the interview. This did help me feel less scared of DBS. My surgery is scheduled for April 1st , 2025, at Mass General Hospital.
Just found out this afternoon that I have been approved for the DBS procedure at Emory University in Atlanta. It was both exciting and scary at the same time regarding benefits and risks but am looking to talk to the doctor that officially diagnosed me about 5 - 6 years ago. Want to make sure I make the right choice to resolve my essential tremors...something I have lived with since I was 35 now 60. This interview gives some great insight on the procedure and what I will probably go thru.
Great interview. This did help me feel less scared of DBS.
Glad to hear it Michele. It is definitely worth looking into!
Great information. Thank you Steve for sharing your experience. Real life experience sharing is very helpful :). When I first met my MDS, we went through the motions of testing balance, walking, the finger taps and what not, and we talked about things. She said to me "You would be a great candidate for DBS in 4 to five years. Well here it is 5 years..I'm Bradykensia and Rigid movement dominate with a very little tremor. I went through my physical type of evaluation for DBS which they had me come in on no meds, and filmed me doing certain exercises, then I took my normal dose of meds, waited for them to kick in and did it all over again. I was told I would be a candidate for the STN-DBS. I did learn there are two types. The other is for tremor only, rarely done since STN really covers it all, but available if it is the right path for that type of patient. My evaluation for the memory and cognition is coming up next. Like Steve was saying, sooner the better. It just makes sense. Thank you again all!
Chris, I’m excited for you and wish you the best of luck!
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
If you want to send me an email at jessica@thesecretlifeofpd.org I can pass your question on to Steve!
Thank you for sharing your experience with DBS.
Thank you for sharing this video, i have coming dbs surgery , and I am feeling nervous every time, I think about it.
Steve is a great guy, took it all in his stride. 😎
Great podcast on DBS.
Glad you enjoyed it
Great
Nice presentation, really beneficial. Does DBS help with brain fog and fatigue?
Hi, thanks for your question. I didn't have brain fog to begin with, but Brian did...and it did make a difference for him. I didn't see any difference regarding fatigue.
Do you think if I have DBS I could play golf again?
Every person with PD is different and from what I've seen every experience with DBS is different. But its not just DBS, exercise needs to be involved too. But I would like to think that yes, you would be able to play golf again, but I don't think anyone can be sure. Good luck on your journey!
I was wondering if you ever thought of doing a segment from your gym where you work out with other Parkinson’s people? It might be helpful to see what other people are doing and are capable of and who knows, it might motivate somebody. As always, I appreciate your efforts!
That's a great idea! We'll see what we can do!
Great podcast on DBS
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
sorry for the late reply Rowena. I went to the Cleveland Clinic for my DBS. Dr. Nagle was my surgeon.
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
Yes, my surgeon is Dr. Nagel at the Cleveland Clinic.