Metabolic disorder/Two children with rare disease in one family. Two different deaths.

Two children with rare disease in one family; Two different deaths.
• Metabolic disorder/Two...
Parents in one family with two young children who die from a rare disease describe the two children’s separate deaths and how they differed: one died quickly with no pain medication, one slowly with a lot of medication required.
You think you know what you're going to do. You make plans but like birth, things don't always go according to the plan. You have to be flexible. If your child has a metabolic disorder or another pediatric life threatening illness, these parents share their perspective which may help you find your way. Visit www.courageousparentsnetwork.org for more videos.