Thank you for this video! I agree that not working is very important for us CFS ppl. I’m so happy my husband supports me in that also! Would love more cfs and health related update and videos! Xoxo
Hi hope this helps some of you,i have had cronic fatique for over 10 years,so far not eating yeast and suger aswell ass not eating ovet 80grams of carbs a day+eating no fruit+eating alllot of mear/fish has made me about 80% better.
For me I just sleep more hours then I’m awake and that helps versus trying to fight my brain by only getting eight hours of sleep. It’s depressing but IMO better than being awake longer but just battling to keep your eyes open
@@SimpleMomming I have noise and light sensitivity. This is lifelong and down to Asperger's Syndrome. Certainly autists can suffer from chronic exhaustion. We get stressed out by day-to-day interrelationships because of our neurology and the way that affects our processing-decoding of input. Everything comes in amplified and we need recourse to a quiet environment away from it all.
Thank you for sharing. I often feel isolated and misunderstood because of chronic illness fatigue. My little girl and I have chronic fatigue. It’s hard to know what is the most upstream root cause. I believe POTS is also a symptom. My little girl also had POTS symptoms. We found hidden mold in our home during a renovation. My little girl was diagnosed with CIRS (chronic inflammatory response syndrome). We are both doing better with strange symptoms like POTS and chest pain/palpitations. The most lasting things seems to be chronic fatigue. I know my little girl is low in zinc. We will try these. Perhaps also look up mitochondrial healing. Congrats on your pregnancy!
After having vitamin deficiencies for a lifetime, we'll have to be patient.. as it may take years of supplementation. I think you are on the right track and it's so great that you are getting on this path as a young person. best wishes!!
Thank u very much for this hope. I suffer from ME too since a year and a half. Im experiencing severe symptoms and I’m struggling every day. I keep pushing my self to continue my studies and to graduate but I’m really scared to deteriorate my case and to not be able to work and especially to LIVE !! I’m almost housebound and it’s really hard to keep hope 😓🥲 there are some days when I want to give up but I wake up next day and keep going…
Omg I can totally relate to you, also continuing my studies and work, it’s so hard, honestly, but we got this Do you want to exchange contact and talk?
Great video. You will find that working from home the way you're doing it is probably going to help in a big way. I was in my late 30s and had a mystery illness. They thought it could be various things but turned out to be Sero Negative arthritis. At first the doctor told me it was just a virus. But I didn't take no for an answer and got tests saw a couple of consultants. That was about 5 years ago now but I still get bouts of fatigue so I will try the stuff you recommend. Congrats on the baby and thanks again for sharing your experiences
Hello, I'm myself on the rabbit hole of finding cure for my #LongCovid condition. It's been 1.5 yrs now. This video was very helpful in giving me hope that someday I'll be somewhat normal & can manage usual activities 🙏
I'm so sorry. If you are looking for someone who will take your symptoms seriously you can look for a functional medicine doctor. Unfortunately the research is still being gathered, but a functional medicine doctor will have more informed hypotheses than a normal doctor. I've heard that people with long covid have felt better aftet getting the vaccine, also.
@@sheslying7117 20 plus years and never found help from any Dr it’s good to have hope but I’ve given up on thinking someone out there can fix me. Tried everything I know spent every last penny I had on so called cures. These days all my hope is in Jesus Christ He hasn’t cured me yet but he gives me strength to get through each day. God bless you and anyone who is going through this
@@sheslying7117 did a four day and it didn’t help unfortunately. Next step for me is sourcing hallucinogens and trying to microdose ontop of my supplement regimen.
Omg I feel the same way 😭🙏🏻 I been suffering for 25 yrs. My family think that it's all in my head and need to get over it. I wish it was that easy. I stay mostly in my bed. I wish the Dr would listen andy daughter don't have time to bring me to different drs.
@@Mabaker-b8d haha death would be a blessing. I beg to either be cured of this again (had severe illness with numerous symptoms for 10 months after mono and then it went away for 5 years until 2.5 months ago) or for it to kill me. Living like this for years upon years won’t work for me. Eventually I’ll decide to end my life. Pretty damn simple.
Did you ever look into getting your cervical spine looked at and adjusted? It has really helped me after decades of dealing with CFS. I did NUCCA but also there is Blair and Atlas Orthogonal doctors. It's not super expensive maybe worth a shot.... best of luck!
It’s best to start low with Thiamine (B1) & gradually build up. You may also find a different type of Thiamine works better. B12 deficiency also can cover many of these symptoms. My first symptom when my B12 is low, is pins & needles. There are two types of B12 deficiency. Some cannot absorb it at all. Some can absorb it into the bloodstream (which makes it look as if they have plenty of B12, but it cannot get into the tissues, either because transcobalamin isn’t working properly, or it cannot be converted into its ‘active’ forms for use at cellular level. If Homocysteine & MMA are high, that is a strong indication B12 is low at cellular level. I tend to use ‘active’ sublingual B12 drops & they seem to work very well. I’ve had low energy since my early teens & im now in my 60’s. I felt better during my pregnancies than at any other time. A while ago I did a month of juicing & did find it beneficial. I’m convinced an extended juice fast may do my body a lot of good, but my low energy & motivation keeps thwarting that. You’re a lovely soul. Well done for your persistence.
Your stress hormone Cortisol goes higher during pregnancy, and low Cortisol due to HPA axis imbalance can cause fatigue. Try doing a cortisol level test through saliva and see if you find it. It can signal HPA axis imbalance caused by Hypothalamus issues. This non medically recognized issue is called Adrinal Fatigue.
Thank you so much for this type of content. I am a covid long hauler and have been dealing with fatigue (and many other symptoms) for about 7 months. You are so right when you say fatigue is just the tip of the iceberg. Your kind words at the end of the video made me want to keep living and gave me hope! Greetings from Costa Rica and congrats on your pregnancy
@@mateuszmazurek7991 Not sure if you got the answer, but start very very small like 5 mg & see how your body reacts. I recently started with outright 200 mg & it gave me horrible heart arrhythmias, so be careful. Also it'll suck up way too much of electrolytes like potassium, magnesium, etc. So make sure your body has enough of those, probably by getting a full blood electrolytes test. It's been known that CFS involves chronically low B1 in tissues like heart & brain. Blood test for B1 will still look normal though. Look up Dr Derrick Lonsdale.
@@kunaldodeja3794 thanks! I was supplementing 150-300mg daily, now I am running out of pill so I save and don't have a prespription yet Didn't notice nothing negative... At the start quite the opposite, I felt better (or so I think) I try to get magnesium supples daily also, watch a little my potassium, probably not enough
I suffer to from chronic fatigue mine started in my 20s and sadly turned into chronic pain fibromyalgia,I still deal with both Christy , I've always had anxiety since childhood and struggling with depression for as long as I can remember I've done alot of research on all this but have really found nothing but what you said it comes from an underlying condition or conditions mine started out with anxiety I couldn't eat either very hard I stayed so tired just as everything you explained I've talked to so many people over the years the drs don't really treat what we have bc they don't know what it comes from and get tired and blame it on everything under the sun especially anxiety they blamed alot of my symptoms on my and depression but I knew there was something else Christy, I love Dr Berg by the way he is truly the best I would love to see more videos on this topic I think it would be life changing for alot of people , I thank you for being so transparent and caring and making this video it could absolutely be life changing for someone like I me , I thought literally for a while I going crazy bc my symptoms had no real diagnosis but back then bc I'm 47 it was really hard to understand , now that alot has been studied more or atleast acknowledged were able to get more information from others and very few Drs bc they always chalk it up to blame it on something else I know you totally get what I'm saying ending this you give me courage to go and look further on how to deal with mine bc I'm dealing with both fibromyalgia and chronic fatigue I mean there's mornings that I can't even move I hurt so bad it's unbelievable just touching my skin hurts there are days better than others that's what I don't get and other people don't understand it makes me feel like that I look so lazy but it's not that at all, anyway thank you so much and God bless you and your family 💜💜💜
I’m so sorry to hear you’ve been going through this 😞 Are you taking a strong dose of Vitamin D3 regularly? I’ve heard that Fibromyalgia can happen from a Vitamin D deficiency. I very easily become deficient in it and have to take around 50,000 IU when that happens (honestly I should just take it all the time). When I get low I notice my muscles and skin start to hurt but it gets better when I take vitamin D. You may already know this or maybe have already been tested for it but figured I’d ask just in case 💛
@@SimpleMomming yes I'm deficient in vitamin D3 and B12 the Dr come back with my results a few years back and asked (quote) are you okay do you not feel bad ! I kinda got scared but she quickly said I have hardly any vitamin b12 in my system she gave me a shot in office that day but honestly I didn't feel as bad as I normally did that day maybe I got use to it Christy 😔but yes ma'am I've got tested I thank God for you really I needed to get this help from you I've prayed just to have anyone someone to talk to about this it's embarrassing at times which you understand about outings and family function Christmas it's overwhelming to me but I've got hope since I found Dr Berg and very few people one is you that completely understands me .. I think I need to do more homework and change my diet since I've been super depressed lately I've been eating only cereal I really mean it and I've gained a whole lot of weight well contribution to a lady hitting me head on in a car accident it's been rough when younger I couldn't gain a pound now that I've gotten age it's caught up which in a million years I never never thought I'd have to worry about but menapause is one issue w my weight gain but people are like you look great but it's to much for my body frame to hold up sounds silly but idk I can tell my health in general has went down hill I haven't been out of the house but a handful of times since lock down I need to exercise really really bad if I don't my cholesterol and everything is going to stay high and I'm never going to get better thanks for listening to me I really appreciate just being able to vent I'm here if you ever need to talk 💜
Wendy Try taking a b complex (always with food and never with hot water) ... also take extra B1 HCL and Allithiamine like up to 1 gram. Sounds like you used up all your thiamine and B6 because of stress.
@@caroline61804 awww God bless you sweet heart my diet is horrible I live on cereal chex cereal every single day it's been going on for so long just so depressing too how do I get these vitamins and how do I take them thank you so much you may have saved my life I looking for any hope I am so stressed out I don't know how you'd know that but from my message please help me I tried taking the b complex but it makes me so sick to my stomach not sure why I've tried so many ways is there any other recommendations and how often
Wendy can you eat other cereals just as cheap perhaps cheaper so long as they have vitamins listed on the box. Vitamin B1 HCL is very inexpensive and EFFECTIVE. 100 mg right before each meal (5 mins) and 100 mg at night before bed. start eating kefir or yogurt or anything with culture except kombucha. take a multivitamin one tablet twice daily. even centrium works. Initially you might feel sickly because if you get too much b1 or folate and not enough b2 etc .. before starting on multivitamins you might want to take b1 and b2. SKIP NIACIN!!! and b6 first for a few days ... then find a multivitamin with FLUSH FREE NIACIN. kids gummy bears vitamins are ok but does not contain b1 so ... take b1 b2 b6 extra along with kids gummies and you’ll need to take those in higher than kid doses
I am currently exploring a hypothesis that may be a major contributing factor to CFS/ME/POTS (I have had it for 15 years now), and I believe zinc and thiamin supplementation are essential to healing. Basically, the short summary is that I think the neuroinflammation researcher Jerrod Younger observed in CFS/ME patients is caused by a poisoning of the brain by retinoic acid, which makes the blood brain barrier weaker and possibly more vulnerable to accumulating heavy metals, excess copper, and/or oxalate. This hypothesis was proposed by Grant Genereux as an explanation for autoimmune disease. You can find all of his ideas freely available as blog posts and PDF ebooks on his website. I have been experimenting with these ideas for over a year and a half now, but have probably 4 years to go... It’s a long haul. I encourage you to check out Grant’s work in case it might be applicable to you. I am keeping a log on Grant’s site, and have an update coming soon. I believe zinc is super key to this process (as it is necessary for creating retinol binding protein), and being zinc defficient really stalled my progress! Here is my log: ggenereux.blog/discussion/topic/puddleducks-progress-cfs-symptoms/ Another poster named Rachel has CFS/ME and baaad POTS, and her log is just so fascinating! This is a very slow process as out brains are terribly sensitive. But I have enough confidence that we are on the right track with this to keep going! 🙂
Thank you so much for sharing this and your research! I will definitely dig into your ideas deeper. How fascinating! I’m looking forward to researching all this! 💛
Whenever I hear of someone having CFS and POTS, I think of mold as a possible culprit... just a thought, if you haven't, you might look into testing for mold toxicity.
Wow.. the way I described this was a feeling of being poisoned. I felt so weak...my brain hurt when I tried to think. I thought I had cancer....I did the MRI's. The way I always described it to the doctors was it feels like a slow poisoning. I will check this out.
Thank you for sharing!! I have read that Moringa is a really good supplement for fatigue. I am drinking the tea and have already noticed a difference!!
I love all you doing and showing, it is very helpfully for the new moms. My only edvise would be, do not leave the sound machine with the tape on at with her alone , without you being present for safety . She might take the tape up, and get it in her mouth. She can be surprise you one day, doing something ,you would not possibly think she can do in her age yet. I am talking from experience. ❤️
I want to say that I struggled with ME for 10 years. I got it after an mononucleosis infection and got encephalitis. After a couple years I got some energy back so I've tried a lot of things to get better but nothing helped. Recently I started on carnivore and 3 months in I can't remember feeling this good. I finally got a sparkle in the end of the tunnel. I highly recommend trying it. Focus on lamb/sheep, deer/elk, and beef. Eat all the fatty parts and eat liver and drink bone broth.
@@H4me7215 most medical/weight loss clinics do them, I found mine on Groupon. Look for B12 injections and then made appointment. When I redeem Groupon they recommend upgrade to B12 methylcobolmamin since it’s better absorbed. I also got gluthaione injection.
I suffered CFS for about 15 years, tried pretty much everything under the sun to alleivate it and found the only thing that helped was a low fat paleo type diet... which isn't always much fun. Then I had a biking accident which left me with a fairly bad case of post concussion syndrome. Again I searched for help without much success until I tried correcting my upper cervical spine with a NUCCA doctor. Not only did my concussion symptoms decrease substantially over the next few months I was very pleased to find I wasn't dead tired in the afternoons per usual! If you have a misalignment in your neck particularly the C1 atlas bone it apparently can cause a host of unpleasant symptoms like migraines, fibromyalgia, Meniere's and CFS as well. Just thought I would toss this out there as it seems most people have no idea this type of practice exists and I wish someone had given me the tip.
@@Claire-ux2qu Great I hope it helps you too sometimes you can notice big changes right away but usually takes time to heal. My chiropractor has a good channel Kevin Leach Progressive Chiropractic check it out.
I'm currently having a severe phase of fatigue, that doesn't seem to be improving, was diagnosed with fibromyalgia and chronic fatigue in my mid 20's I'm now 48 years old. When I was younger 3 days bed rest seemed to help, but not anymore. I am currently on thiamine monophosphate 300mg, I did start on Thiamine (hlc) but this gave me headaches, so I researched this form of thiamine, to discover the Hydrochloride form is actually a pharmaceutical form. I am chemical sensitive so it made sense when I found studies that stated thiamine hydrochloride contains aluminum that builds up in the brain and kidneys, so came off those. Although thiamine monophosphate is found to not be absorbed to well, this is usually due to bad gut bacteria so I take them with probiotic drinks. I have also just started taking cordyceps supplements and magnesium malate. Before taking the thiamine b1i was only able to stay awake for up to 5 hours per day, I'm still very bed ridden and very weak but I'm awake all day now, which is a bonus, only started the other supplements today so can't state anything on those just yet.
I've been dealing with it for around 3 years. It ruined great jobs. Kept me from seeing my kids as often as I want. I want to die most of the time. I came across a video of a guy saying if you take vitamin d 5000 iu for 4 weeks it will change your life. So that's my next trial. Wish me luck.
Take as high of a dose as you can. From what I know 5000 is actually a low dose. Also K2 is supposed to be taken together with D3. Otherwise D3 is not going to get deposited properly. Also it would be good to eat some oil with it - maybe coconut oil - since d3 is oil soluble.
This is so true. You know your body better than anyone, including drs. I’ve had this condition for two decades. It can be extremely hard. I had Epstein Barr that triggered mine. Hoping anyone with this condition reading this doesn’t give up, do your own research. Hoping more funding goes into this condition soon.
Hey you all I have had it four decades...if it wasn't for a unique balance of supplements and the most powerful( natural birthright...) Kundalini and Chakra energy I would have given up literally..because I still am not sure SOME days...but I consider it a challenge for my soul... Good vibes and courage....
It’s more than just fatigue though. I have more than 20 symptoms that fluctuate in intensity everyday. Some days ones won’t be present and I’ll only have a few. The next I’ll have all 20 and be so ill I can barely get out of bed, but I go into work and act normal. Thank the heavens they allow me to only being on machinery now and not doing the severe physical labor. This is hell. Keep on moving forward though. Suppose that’s all we can do.
Thankyou for your videos I bedbound for so many days. I had this for years I have been dignoised with fibomalyagia. But I sure I have cronic fatigue too
I recently was diagnosed with Chronic fatigue, was looking into what could be causing my symptoms also , one condition that has a symptom of chronic fatigue is disbiosis
Same, it took me a long time to improve my muscle form till I could tolerate light excercise. I would start with really light, laying down excercise. Then work to standing. Make sure to use resistance training as more muscles you have, the more water content can be held in them which helps with blood volume. Once you get where you can stand, I wouldn't do running or high stress excercise. I would recommend walks. Starting for 5 minutes till you can increase time to half hour to 1/2 hours.
im suffering w this, ive had it four years, i simple make sure on a daily basis not to do to much and crash. i use kratom daily and it has helped more than anything ive tried and ive tried EVERYTHING
Im so depressed about it. After so many years of severe suffering im just close to having a nervous break down 😔. I dont know how long i can take this torture anymore.
I can only confirm that yogic meditation( kundalini, CHAKRAS...)helped so much for me...because you get to channel your energy...even if you have VERY little...good luck & intuition.
I haven't had it for years but I am in the same situation and i am sorry. I really hope Ron Davis can figure it out soon. We need something to give us relief from this at the very least
Try taking some d ribose powder. It's quite cheap, 3 x 5g scoops per day for about 2 weeks. I felt better within 20 mins after taking it. Its usually a few days before it really helps. It helps with brain fog. Just check if there's any side effects or meds that you are on that you shouldn't combine. Check the reviews too to get a brand that works
Babe! I also tried Benfotiamine ( the fat soluble one) and felt really really sick. I tried it twice so I’m sure it’s not for me. Then I tried Thiamine Hcl and OMG what a difference. All my fatigue and neurological symptoms were gone and I felt like I has as much energy as when I was 18yo. I will keep using it for a while and update you on the long term effects.
If I may suggest( it works well for me at least...)a general supplement and probiotics and extra co- enzyme Q10...also for me multiglandulars with extra thyme & adrenal supplements...yup we all respond differently...just like we are all individuals..I think k meditation ...Chakra meditation is best for general energy ..good luck ask??? It is about forty years I cope with this condition ..on a budget..so it is a challenge to say the least.. Good luck
@@warlocksuperman8632 Thank you, sweetheart! I already take a multi and CoQ10 too. How does CoQ10 make you feel or what do you take it for? I’m glad to hear all these supplements help you! I will try meditation, I need to improve my habits. Thank you!
@@warlocksuperman8632 What works for fibromyalgya. I took one dose of clonazepam and OMG it harmed my body so much. Now i have pain in joints, muscles, etc. I don’t know how to make it go away!
@@claudiacastillo5898 maybe I have a weird form of multiple chemical sensitivity but any substance( even vitamin binders etc) that is not naturally sourced( and even some natural..lol) causes me some kind of reaction that stresses my body... Similar to an allergic reaction...
Hello, I wondered if you have tried mega dosing a synthetic form of Thiamine(200mg+) ? I found you from your last video mentioning B1 but I don't think you specified details in that. I found that there are studies showing symptom improvements in fibromyalgia and have seen some cfs anecdotes from megadosing. I'm also a long term sufferer on about 11 years now, pregnant with my second child at the moment.
Congraulations for your impending arrival and on putting together such a cogent vlog,I'm pretty sure I'd be unable to do so myself and having just discovered your channel I'm looking forward to watching the rest of it when I have the energy to do so. Thanks for putting this video together,personally I've been suffering from M E for the last 20 or so years- currently having very similar symptoms to Parkinsons and M S . I did have my first attack back in the late 80's/ early 90's and did recover for a good few years. I hope this gives some hope for anyone suffering from it. Sadly there is not much research going on to find a cure- this is being made much worse by lumping M E and C F S together - M E in the form first acknowlegded by the W H O in 1969 can be; with difficulty,diagnosed with blood tests. C F S is a set of symptoms - addmitedly the same symptoms but with a potentially different form of cause; lumping them both togther makes it much more diffcult to find a cure or even any effective treatment. Please dont see my last comment as a criticism of this very helpful video; that's certainly not what it's meant as. Living in the U K getting help or effective treatment is also very difficult, personally I've tried an awful lot of methods to find a cure, or even just a little relief. Sorry for the quality of this reply; but I am fairly exhausted at the moment. Please feel free to message me if you wish to discuss anything in my experiences that may help, it might take me a while but I will get back to you. Many thanks again for your work I'm sure its helping to raise awareness of these dreadful diseases. Pete
I actually felt the best when I was pregnant, then a few months after delivering it would be so much worse. I found out later it is because your immune system down regulates when you’re pregnant in order to protect the baby. Once the baby is born your music immune system up regulates again and it will go back to its hyper reactive state(autoimmune). Hope you’re doing well and enjoying your baby.
That makes so much sense. Ugh if only we could find a way to feel like that all the time! And thanks for the well wishes! Baby and I are doing great so far 💛
@@ambercraven1857 you’d think that could possibly give researchers some insight and ability to hypothesize a root cause for this syndrome and come up with effective treatments. It’s astonishingly sad how little knowledge doctors have of basically any and all illnesses. I’ve lost faith in the medical industry after seeing my sister struggle for ten plus years now and myself for roughly 14 months combined now (10 months after mono with a 5 year remission which Covid sadly brought back along with dysautonomia it seems).
Yes, I had the same, my aerd, alopecia areata and cfs all got better when pregnant. My ibs got worse though lol. Also, when I have to take steroids for my aerd, my cfs also goes away, so I think it's related to our immune system. But sadly I can't just stay on steroids x
Has your "thyroid" levels been tested? Note: "stress" too does effect thyroid levels. Ex. Stress nade mine temporarily hyperthyroid. Note: If diagnosed with thyroid issues try to avoid taking a "radioactive iodine isoptope" prior to having thyroid x-rayed! The isotope killed my thyroid as the technician later told me changing me from having hyperthyroidism to hypothyroidism & which now requires daily medication. Note: Sometimes "change of diet" can change thyroid function levels. Ex. The "Paleo diet" is known to be very good for thyroid issues. It gave me more "energy" too besides lost a few lbs. What we EAT can be ultra important, as you know. Ex. finding out what foods contain zinc. Note: It is so good you discovered your deficiency, because I heard there is a link of covid-19 to a zinc deficiency, too. As a group of women I once met told me "They often have done the research, found the diagnosis they believe they had & then had it "confirmed by their doctor" telling him all they "researched/discovered". Once, they brought ALL the info. the their doctor AGREED! So, yes, we always need to do our own research. Note: Some doctors have good "critical thinking skills" able to analysze all the data & make a conclusion, whereas other doctors may be good only at "treating a diagnosis once it has been realized"! Congratulations on your pregnancy! Wow! What timing, eh, to be in your new home, too! Bet your move made your ability to stay home now much "stress free" too re: any financial concerns! When a couple marries it is always wise NEVER to rely on the woman's salary.......but live a lifestyle not incorporating it, only saving it. Then, when/if she becomes pregnant she is FREE to decide if she wishes to stay home raising their children. Sometimes, a woman really can't know.............until the little bundle arrives which is hard to separate from, etc. etc. Continue to be blessed!
I have had my thyroid tested, thanks for the suggestion though ☺️ And thanks for your well wishes on the pregnancy! I feel very blessed to be able to stay home at this point!
@@SimpleMomming hey cris My name is Guilherme im brazillian How is your age?? You feel cronic tired all day even after 10 12 hours sleep? You do researches im seraching the info we have restore the mitocondrial have you heard?? What top 3 suplements vitaminas you did worked for you what is the ONE at 10 20$$ max you cant ve without to recomend? Can you do new video suplements vitamins things you using? The hours how much day what have worked etc Here sooo hard brazil finamcial crises to buy suplement is hard for me if you know my history thing you will cry... I have 2 cronic disseases i have 24 HOURS PAIN A DAY... imagine living that?? Even to write is hard due my hands artriths... And im only 28 years imagine?? Dont have father all financial prpblems need soo much help can we talk better dont have more trust exits good people to you imagine what all i get in my life all no suport always years without job 24 hours pain no job humilhated too tge worses people you can imagine exists yess they exists!! Can we talk on instagram?? Thanks 😭
👋 I tried b6 it makes my mood stable before the period. I tried vitamin D3 8kIUs for months and then I take 14k IU, and know I notice I need 40,000IU I just start . I have fibromyalgia with insulin resistance. For headaches and migraine 😫I used B2 400mg two three times. I LOVE DR.BERG TOO🙆♀️
POTS is common in CFS. It's part of CFS symptoms, just like sensory overwhelm or sensory processing disorder can be considered separate, such as common in autism. But is also common symptoms in CFS. So it's part of CFS symptoms. I wouldn't therefore consider POTS symptoms separate to CFS
The B complex vitamins must be taken with food because they cause hypoglycemia. It is normal for vitamin B1 to cause you discomfort and vomiting if you take it on an empty stomach.
I know this journey very well and my heart goes out to you. If you haven't already done so you might be interested in learning about brain rewiring for limbic system impairment which is what most chronic illness stems from. I've witnessed such incredible stories of recovery just from rewiring the neural pathways of the brain. This was a huge missing piece to my journey of healing. It takes time and patience but it works if you stick to it. I've been training for 8 months and it's been really helpful. Check out DNRS (dynamic neural retraining system).
You could also try microdosing psilocybin mushrooms along with Lions Mane and then doing the meditation and the thing you typed out. Neuroregenisis has been shown to occur with low dose psychedelic (below intoxicant threshold) use specifically psilocybin.
Mm. Getting accused of laziness is the default answer from some of these planks! Actually, you're just so damn tired out that lazy is just the complete opposite of what you're being. What you feel like is burnt out enough to flake out. You keep going because you've no other choice except to give up the ghost completely. I have Asperger's Syndrome, C-PTSD and CFS. If anyone says that I'm lazy after being a sole carer for decades, I've just one thing to tell them. Alphabet: 5th letter and 21st. I'm trying various things to see if I can recover, as and when I can afford. The heat wave has been no help either.
Dr Judy Mikovits believes CF is the result of infection by a mouse leukaemia-like XMRV retro virus - which were infecting vaccines (and may still be) for years. This has been covered up by the US government. I believe I have had CFS for years as well (as well as the mthfr mutation). Its so frustrating not being to cope with as much as other people in life.
Congratulations on your baby! I also have struggles for many years and literally all my symptoms ceased during pregnancy. 3 months later I was at ground zero. I’ve been through so many trial snd error and I feel the same: I refuse to live like this snd am always trying to fix/figure it out. How are you doing now one year postpartum?
B vitamins for anxiety. Dr Berg says many people are low in zinc. And heard many people with CFS are low in magnesium. Magnesium also helps muscle pain
Have you had your Parathyroid hormone checked? You could have hyperparathroid. You have four rice sized glands around your thyroid. Sometimes one of the glands will become tumorous and cause Hyperparathyroidism. Or you could have a vitamin D3 deficiency. Have your doctor check your parathyroid hormone. If you have an abnormal reading you will be referred to an endocrinologist.
19:18 do you know what video dr berg recommended the zinc? did he specify liquid? specify that brand? Im already taking "zinc sulfate" through dr bergs vitamin d3 product... doesnt seem to be doing much for me yet (over a month.)
Did you get a mineral test done. Sounds like you should. Body-bio offers minerals kits that works pretty good and it's not that expensive. Maybe you should look at Dr Darren Schmidt videos on getting a test done from a company called vibrant wellness. The test is called mycotoxins which test for a lot pathogens in your blood and stool.
Persons with CFS have been shown to have low levels of serotonin. Estrogens affect those levels. Pregnancy affects estrogen levels. See the connection?
Your fingers look as if you have Ehlers -Danles Syndrome look up the video on the signs of ED Syndrome on You Tube it comes with CFS and Pots Syndrome, my daughter has all three. Got it in 2010 and I found all on Google and all the medical experts too we live in the UK I met Dr Grubb at a conference in Manchester UK
ive had cfs for 3 years now for treatment, ive tried taking 25+ different vitamins and supplements every day (still do), tried diets like keto and gluten-free, antidepressants, coffee, adderall currently, i take an antidepressant along with coffee and adderall for stimulants the adderall helps but my dose is very low i have yet to get on a higher dose consistently (i have taken multiple a day on really tiresome days) and it does make me feel more awake and helps with both mental + physical fatigue the only time i had an actual vitamin deficiency was like a couple months ago that for a little while, i was low on vitamin D so i took a 5,000 IU capsule once a week that was prescribed and it has not affected me one bit even though all of my vitamin and electrolyte levels are healthy my only hope is putting more artificial stuff into my body since my cells just cannot metabolize or synthesize proteins like they used to in order to create + gain ATP for energy my big bet for my personal treatment rather than recovery is finding a good stimulant drug and maybe in the future try stem cell therapy i dont know if a complete recovery is possible because when the body takes a 180° and does not start functioning how it used to out of nowhere and so severely, this syndrome is stuck with us for life in my opinion thats why we can only try to find treatments that help make life easier best of luck to everyone
Your cfs sounds a lot like mine. I had low hormones in addition to absolutely no vitamin D. Have you had a dr check your levels? If not, be sure they check estrogen and testosterone. I had almost none of either at 30... Oh. And I also have narcolepsy. I also suggest a sleep study if you haven't had one...but those can be expensive...
Science does not study us and doctors can't treat us. I have been battling with some sort of illness that makes me 1. insomnia 2. fatigue all time 3. easily fatigue especially doing mental work 4. fuzzynees in eyes and foggy vision 5. foggy brain 6. And a lot more I am sharing because I also have to get rid of this illness which has been with me since 2017
I don't believe this condition will ever be important enough for any extensive research. Unfortunately people who suffer will have to be their own advocate and look for a doctor who knows and cares enough to help people suffering. I've been dealing with this pretty much my entire life and my mother suffered from it as well. Doctors who don't know how to treat this automatically assume it's depression and thus starts the endless trials and tribulations of antidepressants that don't work and failed for my mom as well. I'm going to be 60 next year. If I could spend the next 10-20 yrs of my life getting some type of relief from this condition I would be forever grateful. Right now I'm trying several different supplements and spending it of money doing it. I will try out the supplements that you are suggesting so hopefully they work. Lol, so sad people suffering from this truly are their own advocate. God forbid you mention any of the information you've researched to a doctor. The majority of them give you the 😏 or 😑 look. Lol
I think it's highly likely that you felt better because during pregnancy the placenta releases DAO. DAO (diamine oxidase) breaks down histamine. Histamine overload is hugely linked to CFS... You also need b6 and zinc to produce DAO. You can suppliment with DAO to bring relief x
Thank you for your comment! This is very interesting about histamine because when I did some testing awhile back my histamine levels were off the chart high! I wonder if the zinc was helping that then. To be honest, I’ve struggled to know what to do about high histamine. I’ll have to look into DAO! Thanks for the info! How did you come to learn about DAO?
@@SimpleMomming I really hope that can be of help to you! I found out about DAO because I realised that my CFS symptoms are set of/worsened after consuming high histamine foods. I began eating fully carnivore diet to help CFS and chronic gut issues. I have a lot of food intolerances... carnivore this has improved my gut symptoms and helped with CFS but not fully. If you keep a food/symptom diary it can be really helpful to pin point what is causing problems. I really bet though that the histamine is causing you issues. When I realised this it was a game changer.. as previously I could barely move my body... Now at least I have some kind of a life that often involves being able to leave the house. DAO is produced within the gut to neutralise histamine after we eat. If we have a damaged gut, or some kind of microbiome imbalance (or nutritional deficiency) then our ability to produce it is impaired. This means that dietary histamine is released into the bloodstream.. Its an allergic response so that's why it makes us so tired (a bit like the way seasonal allergies effect people but more extreme). It could also be that our body's are also producing excess histamine due to an unknown cause (infection, parasites, metal toxicity, injury etc) and that is over burdening us. Just be careful with the supplement that it doesn't have any other nasty additives! I am researching like mad as I just want my life back. I came across your video on Thiamine so I wondered how you had gotten on with that. I have heard that initially you can get a bad reaction that lasts for a couple of weeks after taking it. How long did you try it for? I heard about it from Elliot Overton on his EONutrition channel. Its very informative. All the best x
I've heard that it's very typical to feel an improvement to CFS and MCAS during pregnancy because of the large amounts of DAO released by the placenta..
I will have to research the DAO supplementation. I had thought about it before but my only concern would be if supplementing with it, would it sort of “turn off” my body’s natural ability to produce it…? I guess my body is not doing a great job at producing it to begin with though. It is very tempting to try supplementing
Oh and to answer your Thiamine question, I definitely did not take it long enough. Maybe a week or two which I know wasn’t long enough. But when the zinc and b6 combo worked so well I just didn’t feel the need to try it again. But maybe I should. Might help with the POTS/circulation issues…
Thank you for your video. Thank you for sharing to try to help others. So happy you found your solution. CONGRADULATIONS on your little one. Grow your family. Beautiful. it might have been the prenatal vitamins? High dose vit b1 HCL might make your POTS go away.
I would LOVE it if I could figure out how to make my POTS go away, thanks for the tip and thanks for watching and commenting! I so appreciate your well wishes for our baby too 💛☺️
@@stephsalgado444 A while back I was watching videos on B1 and they talked about some kind of a storm when you take high dose b1. This any of you experience this and what was the dose you took.
Get an oats test (organic acids) it will test most things. Also, b6 boosts progesterone so make sure you don’t have oestrogen dominance as that can be awful for fatigue
That just doesn't seem to have any backup behind it. I've been speaking to like a hundred people with ME/CFS in the years since mine began, and I mean clinically diagnosed folks, not self diagnosed or anyone who mixed up the symptom of long term fatigue and things that's equal to "CFS" I hear 3 main things 1. Viruses in the herpes family 2. Massive exertion through working long hours when I'll or doing an athletic event when worn out 3. Drastic diets to lose weight making the person sick and then develop CFS. As well as this I've seen surveys of several hundred people on CFS discussion forums about their guess as to their event that brought on the illness and it's roughly the same as what I listed, particularly the first two
Someone help me pls this is only my third day I’m about literally about to give up I can’t take it I feel so tired Idk what to do anymore and when I wake up I feel lost 😢I’m only 19 man why life gotta do this my parents don’t believe that I’m tired af 😭
I don’t have exactly chronic fatigue but it’s pretty similar can someone give me a name for my issue? (I have months where I can’t make mental effort at all, thinking gives me headaches, writing give me headaches, sleeping doesn’t help , a day I couldn’t even talk, Noises and lights upset me, it’s hard as fuck to sleep but somehow i don’t really feel it gets worse when I do physical activity)
I had all those symptoms with mold toxicity... I'd check out mold as a possible root cause, or Lyme or parasites can create this kind of thing too. Check out functional medicine doctors online like Dr. Jill Crista, Neil Nathan. Sorry you're dealing with it.
Getting Started by Peter Kolb While the Buteyko method introduced into the west has been getting excellent results, it does not entirely accord with Professor Buteyko’s recommended practice. During two weeks he spent in New Zealand in December 2000, he demonstrated the Buteyko technique as it should be practiced. Aim Firstly, it needs to be understood that breathing too much is a bad habit that leaves you with a debilitating shortage of carbon dioxide and bicarbonate. It usually results from long term, undischarged stress. Any stress makes you breathe more. If this is sustained over a long time period it becomes a habit. The physiology behind this habituation process is well understood. Buteyko therapy aims at reversing this, by habituating to less breathing. You do this by developing and sustaining a feeling of a slight shortage of air over a long time period. This gradually restores your carbon dioxide and bicarbonate levels back to normal. Maximum Pause While it is possible to stifle an asthma attack with a long and uncomfortable breath hold know as a maximum pause (MP), this procedure does not reverse your asthma and does not retrain the respiratory center to pace your breathing correctly. Professor Buteyko is emphatic that the maximum pause has no therapeutic value in restoring healthy breathing, which is the aim of his therapy. It is also dangerous for people with various disorders such as hypertension, heart disease, epilepsy, kidney disease and diabetes. It can also destabilize your breathing, making it worse. Unfortunately the maximum pause has been introduced into a westernized version of the Buteyko technique, much to the annoyance of the Professor. An understanding of the physiology behind the Bueyko method leaves no doubt that the maximum pause cannot improve your breathing. DIY/Self-help Professor Buteyko is firmly opposed to the DIY/self-help approach. The Buteyko technique relies 100% on patient compliance for effectiveness. Learning it from a script is like learning Yoga or martial arts from a book. Most people will experience changes in their bodies as their CO2 levels rise. These changes vary from one individual to another. Buteyko practitioners help you deal with these changes, keep you motivated and ensure that you do the breathing exercises correctly. Support for your Buteyko practitioner enables him to continue his work of bringing the technique to other sufferers. Nevertheless, very few people around the world have access to a Buteyko practitioner. So here are some basics to help get you started. Medication Do not make any changes to medication. Steroids must be taken as prescribed. Because of carbon dioxide shortage asthmatics often don’t make enough Cortisol (natural steroid) and must have supplements. Steroids are not just anti-inflammatories but they are needed by the body and without the right amount it can be almost impossible to get breathing back to normal. Your doctor will be able to review your need for steroids when you stop having asthma symptoms. Bronchodilators must be taken only when needed. As you progress, discuss with your doctor the possibility of weaning yourself off long acting bronchodilators and replacing them with short acting ones. That will give you more control over using them when needed. You should find that within days you will be able to overcome asthma attacks with reduced breathing and won’t need the bronchodilators. Nevertheless, you must always carry them with you for emergencies. Nose breathing Always breathe through your nose. If your nose is blocked perform the following exercise: After breathing normally (do not make any exaggerated breathing manoeuvre), hold your breath for as long as is comfortable, and then gradually resume very gentle breathing. It may help to pinch your nose, nod your head a few times or do some other form of exercise. In stubborn cases or when the blockage is due to a cold, you may have to try a few more times. To avoid breathing through your mouth in your sleep, you might like to experiment with a little light medical paper tape to keep your mouth closed. Mouth taping at night is not recommended by Professor Buteyko, but most people find it extremely valuable. If you do, protect your lips with suitable cream, use a low tack tape (some are quite aggressive), and make sure you fold a tab or handle at each end for rapid and easy removal. Do not go to sleep with tape on your mouth if this causes any form of anxiety. Comfort Make sure you’re comfortable before starting the exercises. Remove unnecessary clothing since the improved blood carbon dioxide will dilate blood vessels in the skin, thereby warming you up. Posture To get your posture right stand with your back to a wall, heels, shoulders head and bottom touching the wall. Now drop your shoulders. Keep this upper body posture when sitting. Relaxation While maintaining your posture, relax all the muscles in your chest, neck, shoulders, arms, tummy and particularly the diaphragm. It’s a good idea to tense them up a bit first before relaxing them so that you can properly identify them and make sure they are all relaxed. Normal Breathing Take off your shirt and stand in front of a full length mirror. Watch your chest and tummy for breathing movement. Make sure that your chest does not move at all, and only the upper part of the tummy moves, between navel and breast bone. The second thing to check for is that the tummy moves out with each in breath and not the other way around. Many people get this wrong. Your out-breath must be free, relaxed and unforced. Reduced breathing (RB) Your aim is to develop a feeling of slight hunger for air, sustain this over a period and do this frequently. In fact, this should become a habit so that you do it all the time until you have achieved your health goal. Try to feel your breathing and become aware of your breathing pattern. Now try to maintain this pattern while taking in just a little less air on each breath so that you develop a slight hunger for air. Initially try to sustain this for two minutes, then five and then ten. If you follow all the steps correctly, then you should feel really calm, good and even a little sleepy. If you already practice relaxation techniques, yoga etc, you can combine them with reduced breathing. Measuring your breathing Hyperventilators breathe more than normal in order to achieve lower than normal blood carbon dioxide levels. It follows that if you have to breathe more than normal, then you will also not be able to hold your breath as long as you should. Professor Buteyko has cunningly used this principle to measure your blood carbon dioxide by testing how long you can hold your breath. You start the pause somewhere in your normal breathing cycle. This is how you start the pause: Look up with your eyes and at the same time pinch your nose and start a stop watch. Just before it starts to get uncomfortable, stop the stop watch and resume normal breathing. You should be able to resume normal breathing without any effort and without taking deeper or more frequent breaths. Some precautions: - Do not take a deeper breath before the pause. - Do not make any attempt to empty the lungs before the pause. - Do not worry about which phase of the respiratory cycle you happen to be in before starting the pause. A pause is just an interruption of normal breathing. The time in seconds is called a Control Pause (CP). Asthmatics typically have a CP of 5 - 15 seconds. (But not everyone with such a low CP has asthma.) Your aim is to achieve a CP greater than 40 seconds, although for perfect health Professor Buteyko recommends a CP of at least 60 seconds. Doing a Set When at rest, correctly seated, comfortable and relaxed and after breathing normally for at least five minutes you are ready to do a set. A set consists of Pulse - CP - Reduced breathing - 3min normal breathing - Pulse - CP First measure your pulse and then do a CP. Record the results on a table. Then do reduced breathing for ten minutes. Breathe normally for three minutes, then take your pulse again and take another CP. If you’ve done your reduced breathing correctly your pulse should go down and your CP should go up. Sometimes the pulse remains the same. If it goes up you’re not doing it correctly. After three days you should be able to do around 8 to 10 sets a day. You can then start integrating reduced breathing into your daily life. Ideally you should aim at doing reduced breathing all day. That takes care of the exercises. Here are a few helpful hints to help your recovery. - Don’t eat unless you are hungry. Only eat until you have had enough. Eating increases breathing; eating excessively increases breathing excessively. - Don’t dress too warmly. Be careful not to overdress children. If you are worried about them being cold, check their ears, nose, hands and feet. If these are warm, they’re OK. - Make sure you get plenty of vigorous exercise. But don’t exercise to the point where you have to open your mouth to breathe. If any of these recommendations make you dizzy, sick, anxious or give you palpitations, stop immediately. If possible see a Buteyko practitioner.
Christy Lyn..i made a comment on your video you made a year ago.i can guarantee you will feel better if you implement these drs recommendations..on vitd3 dr Michael Holich....iodine dr.david Brownstein...B1 @EO nutrition....magnesium dr carolyn dean...
Walking zombie is me.
Trying to act normal infront of other workers is extremely stressful. I go home and simply go to bed. Its awful. 😢😭
Maybe try B12 patches, can get them on Amazon
Me too 😢😢😢😭
You're a delight. I've had this problem for 60 years and you have helped.
Thank you for this video! I agree that not working is very important for us CFS ppl. I’m so happy my husband supports me in that also! Would love more cfs and health related update and videos! Xoxo
Your words of hope and encouragement were just what I needed right now...thank you for this.
Hi hope this helps some of you,i have had cronic fatique for over 10 years,so far not eating yeast and suger aswell ass not eating ovet 80grams of carbs a day+eating no fruit+eating alllot of mear/fish has made me about 80% better.
Thank you so much!! I have CFS and pots and have felt alone for so long and it is wonderful to find some belonging, thank you so much for this
You are not alone, we are here and we do get it 🤗💐
Thanks for the advice! I tried taking Vitamin B6 and zinc today and I can feel a difference. :)
Being obsessed with finding a seat takes away from enjoying what everyone is enjoying.
For me I just sleep more hours then I’m awake and that helps versus trying to fight my brain by only getting eight hours of sleep. It’s depressing but IMO better than being awake longer but just battling to keep your eyes open
@@PD-ss6qb same
This is so helpful. Thank you! Praying I can find answers and get out of bed!
Great luck in your quest for CFS recovery! You deserve the best!
Thanks Kelly!! :)
@@SimpleMomming I have noise and light sensitivity. This is lifelong and down to Asperger's Syndrome. Certainly autists can suffer from chronic exhaustion. We get stressed out by day-to-day interrelationships because of our neurology and the way that affects our processing-decoding of input. Everything comes in amplified and we need recourse to a quiet environment away from it all.
@@SimpleMomming Hm. Just entered both Asperger's - autism - pyroluria in the search engine and there's numerous results connecting them.
Thank you for sharing. I often feel isolated and misunderstood because of chronic illness fatigue. My little girl and I have chronic fatigue. It’s hard to know what is the most upstream root cause. I believe POTS is also a symptom. My little girl also had POTS symptoms. We found hidden mold in our home during a renovation. My little girl was diagnosed with CIRS (chronic inflammatory response syndrome). We are both doing better with strange symptoms like POTS and chest pain/palpitations. The most lasting things seems to be chronic fatigue. I know my little girl is low in zinc. We will try these. Perhaps also look up mitochondrial healing. Congrats on your pregnancy!
It sounds like you both have mold illness! Were you able to get the mold properly removed and remediated?
After having vitamin deficiencies for a lifetime, we'll have to be patient.. as it may take years of supplementation. I think you are on the right track and it's so great that you are getting on this path as a young person. best wishes!!
Thank you for the Vit b6 and zinc information and hope everything turns out well for you Christy.
I think what fixed you might have been your pregnancy. Autoimmune disorders tend to disappear during pregnancy
Really?! I would get pregnant asap 😂 so tired of it
Thank you for this, this made me feel less alone. I can handle the fatigue but the malaise is overwhelming.
Thank u very much for this hope. I suffer from ME too since a year and a half. Im experiencing severe symptoms and I’m struggling every day. I keep pushing my self to continue my studies and to graduate but I’m really scared to deteriorate my case and to not be able to work and especially to LIVE !! I’m almost housebound and it’s really hard to keep hope 😓🥲 there are some days when I want to give up but I wake up next day and keep going…
Omg I can totally relate to you, also continuing my studies and work, it’s so hard, honestly, but we got this
Do you want to exchange contact and talk?
Great video. You will find that working from home the way you're doing it is probably going to help in a big way. I was in my late 30s and had a mystery illness. They thought it could be various things but turned out to be Sero Negative arthritis. At first the doctor told me it was just a virus. But I didn't take no for an answer and got tests saw a couple of consultants. That was about 5 years ago now but I still get bouts of fatigue so I will try the stuff you recommend. Congrats on the baby and thanks again for sharing your experiences
Hello, I'm myself on the rabbit hole of finding cure for my #LongCovid condition. It's been 1.5 yrs now. This video was very helpful in giving me hope that someday I'll be somewhat normal & can manage usual activities 🙏
Vit C , Vit D3 and zinc .
I'm having similar issues. I'm thinking about trying a three day fast
I'm so sorry. If you are looking for someone who will take your symptoms seriously you can look for a functional medicine doctor. Unfortunately the research is still being gathered, but a functional medicine doctor will have more informed hypotheses than a normal doctor. I've heard that people with long covid have felt better aftet getting the vaccine, also.
@@sheslying7117 20 plus years and never found help from any Dr it’s good to have hope but I’ve given up on thinking someone out there can fix me. Tried everything I know spent every last penny I had on so called cures. These days all my hope is in Jesus Christ He hasn’t cured me yet but he gives me strength to get through each day. God bless you and anyone who is going through this
@@sheslying7117 did a four day and it didn’t help unfortunately. Next step for me is sourcing hallucinogens and trying to microdose ontop of my supplement regimen.
😭😭😭😭14 years!!! Severe!!! God bless you!!!!
Hang on in there 🤗
@@FRANCESCA01234 Thank you so much!!
Interesting info. Thank you and prayers for your continued recovery.
Omg I feel the same way 😭🙏🏻 I been suffering for 25 yrs. My family think that it's all in my head and need to get over it. I wish it was that easy. I stay mostly in my bed. I wish the Dr would listen andy daughter don't have time to bring me to different drs.
What’s worse then feeling so ill you think your going to die is that noone believes you. God bless you
@@Mabaker-b8d haha death would be a blessing. I beg to either be cured of this again (had severe illness with numerous symptoms for 10 months after mono and then it went away for 5 years until 2.5 months ago) or for it to kill me. Living like this for years upon years won’t work for me. Eventually I’ll decide to end my life. Pretty damn simple.
Did you ever look into getting your cervical spine looked at and adjusted? It has really helped me after decades of dealing with CFS. I did NUCCA but also there is Blair and Atlas Orthogonal doctors. It's not super expensive maybe worth a shot.... best of luck!
There's nothing more dismissive than telling someone that their condition is in their head.
It’s best to start low with Thiamine (B1) & gradually build up. You may also find a different type of Thiamine works better.
B12 deficiency also can cover many of these symptoms. My first symptom when my B12 is low, is pins & needles. There are two types of B12 deficiency. Some cannot absorb it at all. Some can absorb it into the bloodstream (which makes it look as if they have plenty of B12, but it cannot get into the tissues, either because transcobalamin isn’t working properly, or it cannot be converted into its ‘active’ forms for use at cellular level.
If Homocysteine & MMA are high, that is a strong indication B12 is low at cellular level.
I tend to use ‘active’ sublingual B12 drops & they seem to work very well.
I’ve had low energy since my early teens & im now in my 60’s. I felt better during my pregnancies than at any other time. A while ago I did a month of juicing & did find it beneficial. I’m convinced an extended juice fast may do my body a lot of good, but my low energy & motivation keeps thwarting that.
You’re a lovely soul. Well done for your persistence.
Your stress hormone Cortisol goes higher during pregnancy, and low Cortisol due to HPA axis imbalance can cause fatigue. Try doing a cortisol level test through saliva and see if you find it. It can signal HPA axis imbalance caused by Hypothalamus issues. This non medically recognized issue is called Adrinal Fatigue.
Thank you so much for this type of content. I am a covid long hauler and have been dealing with fatigue (and many other symptoms) for about 7 months. You are so right when you say fatigue is just the tip of the iceberg. Your kind words at the end of the video made me want to keep living and gave me hope! Greetings from Costa Rica and congrats on your pregnancy
I am so glad you got hope from this video. Keep searching for answers! Don’t ever give up on your health 💛
@@SimpleMomming Could you please tell us how much Benfotiamine had you take? I need this to count my own dosage ;)
Ivermectin
@@mateuszmazurek7991 Not sure if you got the answer, but start very very small like 5 mg & see how your body reacts. I recently started with outright 200 mg & it gave me horrible heart arrhythmias, so be careful. Also it'll suck up way too much of electrolytes like potassium, magnesium, etc. So make sure your body has enough of those, probably by getting a full blood electrolytes test. It's been known that CFS involves chronically low B1 in tissues like heart & brain. Blood test for B1 will still look normal though. Look up Dr Derrick Lonsdale.
@@kunaldodeja3794 thanks!
I was supplementing 150-300mg daily, now I am running out of pill so I save and don't have a prespription yet
Didn't notice nothing negative...
At the start quite the opposite, I felt better (or so I think)
I try to get magnesium supples daily also, watch a little my potassium, probably not enough
I suffer to from chronic fatigue mine started in my 20s and sadly turned into chronic pain fibromyalgia,I still deal with both Christy , I've always had anxiety since childhood and struggling with depression for as long as I can remember I've done alot of research on all this but have really found nothing but what you said it comes from an underlying condition or conditions mine started out with anxiety I couldn't eat either very hard I stayed so tired just as everything you explained
I've talked to so many people over the years the drs don't really treat what we have bc they don't know what it comes from and get tired and blame it on everything under the sun especially anxiety they blamed alot of my symptoms on my and depression but I knew there was something else Christy, I love Dr Berg by the way he is truly the best I would love to see more videos on this topic I think it would be life changing for alot of people , I thank you for being so transparent and caring and making this video it could absolutely be life changing for someone like I me , I thought literally for a while I going crazy bc my symptoms had no real diagnosis but back then bc I'm 47 it was really hard to understand , now that alot has been studied more or atleast acknowledged were able to get more information from others and very few Drs bc they always chalk it up to blame it on something else I know you totally get what I'm saying ending this you give me courage to go and look further on how to deal with mine bc I'm dealing with both fibromyalgia and chronic fatigue I mean there's mornings that I can't even move I hurt so bad it's unbelievable just touching my skin hurts there are days better than others that's what I don't get and other people don't understand it makes me feel like that I look so lazy but it's not that at all, anyway thank you so much and God bless you and your family 💜💜💜
I’m so sorry to hear you’ve been going through this 😞 Are you taking a strong dose of Vitamin D3 regularly? I’ve heard that Fibromyalgia can happen from a Vitamin D deficiency. I very easily become deficient in it and have to take around 50,000 IU when that happens (honestly I should just take it all the time). When I get low I notice my muscles and skin start to hurt but it gets better when I take vitamin D. You may already know this or maybe have already been tested for it but figured I’d ask just in case 💛
@@SimpleMomming yes I'm deficient in vitamin D3 and B12 the Dr come back with my results a few years back and asked (quote) are you okay do you not feel bad ! I kinda got scared but she quickly said I have hardly any vitamin b12 in my system she gave me a shot in office that day but honestly I didn't feel as bad as I normally did that day maybe I got use to it Christy 😔but yes ma'am I've got tested I thank God for you really I needed to get this help from you I've prayed just to have anyone someone to talk to about this it's embarrassing at times which you understand about outings and family function Christmas it's overwhelming to me but I've got hope since I found Dr Berg and very few people one is you that completely understands me .. I think I need to do more homework and change my diet since I've been super depressed lately I've been eating only cereal I really mean it and I've gained a whole lot of weight well contribution to a lady hitting me head on in a car accident it's been rough when younger I couldn't gain a pound now that I've gotten age it's caught up which in a million years I never never thought I'd have to worry about but menapause is one issue w my weight gain but people are like you look great but it's to much for my body frame to hold up sounds silly but idk I can tell my health in general has went down hill I haven't been out of the house but a handful of times since lock down I need to exercise really really bad if I don't my cholesterol and everything is going to stay high and I'm never going to get better thanks for listening to me I really appreciate just being able to vent I'm here if you ever need to talk 💜
Wendy Try taking a b complex (always with food and never with hot water) ... also take extra B1 HCL and Allithiamine like up to 1 gram. Sounds like you used up all your thiamine and B6 because of stress.
@@caroline61804 awww God bless you sweet heart my diet is horrible I live on cereal chex cereal every single day it's been going on for so long just so depressing too how do I get these vitamins and how do I take them thank you so much you may have saved my life I looking for any hope I am so stressed out I don't know how you'd know that but from my message please help me I tried taking the b complex but it makes me so sick to my stomach not sure why I've tried so many ways is there any other recommendations and how often
Wendy can you eat other cereals just as cheap perhaps cheaper so long as they have vitamins listed on the box. Vitamin B1 HCL is very inexpensive and EFFECTIVE. 100 mg right before each meal (5 mins) and 100 mg at night before bed. start eating kefir or yogurt or anything with culture except kombucha. take a multivitamin one tablet twice daily. even centrium works. Initially you might feel sickly because if you get too much b1 or folate and not enough b2 etc .. before starting on multivitamins you might want to take b1 and b2. SKIP NIACIN!!! and b6 first for a few days ... then find a multivitamin with FLUSH FREE NIACIN. kids gummy bears vitamins are ok but does not contain b1 so ... take b1 b2 b6 extra along with kids gummies and you’ll need to take those in higher than kid doses
I am currently exploring a hypothesis that may be a major contributing factor to CFS/ME/POTS (I have had it for 15 years now), and I believe zinc and thiamin supplementation are essential to healing.
Basically, the short summary is that I think the neuroinflammation researcher Jerrod Younger observed in CFS/ME patients is caused by a poisoning of the brain by retinoic acid, which makes the blood brain barrier weaker and possibly more vulnerable to accumulating heavy metals, excess copper, and/or oxalate.
This hypothesis was proposed by Grant Genereux as an explanation for autoimmune disease. You can find all of his ideas freely available as blog posts and PDF ebooks on his website.
I have been experimenting with these ideas for over a year and a half now, but have probably 4 years to go... It’s a long haul. I encourage you to check out Grant’s work in case it might be applicable to you.
I am keeping a log on Grant’s site, and have an update coming soon. I believe zinc is super key to this process (as it is necessary for creating retinol binding protein), and being zinc defficient really stalled my progress!
Here is my log: ggenereux.blog/discussion/topic/puddleducks-progress-cfs-symptoms/
Another poster named Rachel has CFS/ME and baaad POTS, and her log is just so fascinating! This is a very slow process as out brains are terribly sensitive. But I have enough confidence that we are on the right track with this to keep going! 🙂
Thank you so much for sharing this and your research! I will definitely dig into your ideas deeper. How fascinating! I’m looking forward to researching all this! 💛
@@SimpleMomming me too I'm trying to get all the information I can I gotta beat this 💜
Whenever I hear of someone having CFS and POTS, I think of mold as a possible culprit... just a thought, if you haven't, you might look into testing for mold toxicity.
i have iatrogenic disease including fatigue from taking accutane which is retinol poisioning thanks for the ideas
Wow.. the way I described this was a feeling of being poisoned. I felt so weak...my brain hurt when I tried to think. I thought I had cancer....I did the MRI's. The way I always described it to the doctors was it feels like a slow poisoning. I will check this out.
Thank you for sharing!! I have read that Moringa is a really good supplement for fatigue. I am drinking the tea and have already noticed a difference!!
Good luck dear. Never give up😇
I love all you doing and showing, it is very helpfully for the new moms. My only edvise would be, do not leave the sound machine with the tape on at with her alone , without you being present for safety . She might take the tape up, and get it in her mouth. She can be surprise you one day, doing something ,you would not possibly think she can do in her age yet. I am talking from experience. ❤️
I want to say that I struggled with ME for 10 years. I got it after an mononucleosis infection and got encephalitis. After a couple years I got some energy back so I've tried a lot of things to get better but nothing helped. Recently I started on carnivore and 3 months in I can't remember feeling this good. I finally got a sparkle in the end of the tunnel. I highly recommend trying it. Focus on lamb/sheep, deer/elk, and beef. Eat all the fatty parts and eat liver and drink bone broth.
Vegetarian for 38 year's .
Best thing I found is B12 injections after trying patches since people with CFS often have SIBO and B12 is not absorbed in stomach.
Which clinic did you get your shot I want one too.
@@H4me7215 most medical/weight loss clinics do them, I found mine on Groupon. Look for B12 injections and then made appointment. When I redeem Groupon they recommend upgrade to B12 methylcobolmamin since it’s better absorbed. I also got gluthaione injection.
I suffered CFS for about 15 years, tried pretty much everything under the sun to alleivate it and found the only thing that helped was a low fat paleo type diet... which isn't always much fun. Then I had a biking accident which left me with a fairly bad case of post concussion syndrome. Again I searched for help without much success until I tried correcting my upper cervical spine with a NUCCA doctor. Not only did my concussion symptoms decrease substantially over the next few months I was very pleased to find I wasn't dead tired in the afternoons per usual! If you have a misalignment in your neck particularly the C1 atlas bone it apparently can cause a host of unpleasant symptoms like migraines, fibromyalgia, Meniere's and CFS as well. Just thought I would toss this out there as it seems most people have no idea this type of practice exists and I wish someone had given me the tip.
I see a NUCCA chiro in a week. I really hope it helps me. I’ve been sick for a year now
@@Claire-ux2qu Great I hope it helps you too sometimes you can notice big changes right away but usually takes time to heal. My chiropractor has a good channel Kevin Leach Progressive Chiropractic check it out.
I'm currently having a severe phase of fatigue, that doesn't seem to be improving, was diagnosed with fibromyalgia and chronic fatigue in my mid 20's I'm now 48 years old. When I was younger 3 days bed rest seemed to help, but not anymore. I am currently on thiamine monophosphate 300mg, I did start on Thiamine (hlc) but this gave me headaches, so I researched this form of thiamine, to discover the Hydrochloride form is actually a pharmaceutical form. I am chemical sensitive so it made sense when I found studies that stated thiamine hydrochloride contains aluminum that builds up in the brain and kidneys, so came off those. Although thiamine monophosphate is found to not be absorbed to well, this is usually due to bad gut bacteria so I take them with probiotic drinks. I have also just started taking cordyceps supplements and magnesium malate. Before taking the thiamine b1i was only able to stay awake for up to 5 hours per day, I'm still very bed ridden and very weak but I'm awake all day now, which is a bonus, only started the other supplements today so can't state anything on those just yet.
I've been dealing with it for around 3 years. It ruined great jobs. Kept me from seeing my kids as often as I want. I want to die most of the time. I came across a video of a guy saying if you take vitamin d 5000 iu for 4 weeks it will change your life. So that's my next trial. Wish me luck.
Take as high of a dose as you can. From what I know 5000 is actually a low dose.
Also K2 is supposed to be taken together with D3. Otherwise D3 is not going to get deposited properly.
Also it would be good to eat some oil with it - maybe coconut oil - since d3 is oil soluble.
Any progress?
This is so true. You know your body better than anyone, including drs. I’ve had this condition for two decades. It can be extremely hard. I had Epstein Barr that triggered mine. Hoping anyone with this condition reading this doesn’t give up, do your own research. Hoping more funding goes into this condition soon.
After hearing that you've had it for two decades giving up seems like a good idea.
@@TheFracturedfuture What a horrible thing to say.
@@randomname4726 I'm not telling them to give up, what I mean to say is that I feel like giving up.
Hey you all I have had it four decades...if it wasn't for a unique
balance of supplements and the
most powerful( natural birthright...)
Kundalini and Chakra energy I would
have given up literally..because I still
am not sure SOME days...but I consider it a challenge for my soul...
Good vibes and courage....
Dr. Kasey Holland has great info on post-viral chronic fatigue -- supporting mitochondria, lessening inflammation etc. (she's on instagram)
It’s more than just fatigue though. I have more than 20 symptoms that fluctuate in intensity everyday. Some days ones won’t be present and I’ll only have a few. The next I’ll have all 20 and be so ill I can barely get out of bed, but I go into work and act normal. Thank the heavens they allow me to only being on machinery now and not doing the severe physical labor.
This is hell. Keep on moving forward though. Suppose that’s all we can do.
Could you please tell us how much Benfotiamine had you take? I need this to count my own dosage ;)
Thankyou for your videos I bedbound for so many days. I had this for years I have been dignoised with fibomalyagia. But I sure I have cronic fatigue too
Hi Thank you for sharing your story. God bless you.
I recently was diagnosed with Chronic fatigue, was looking into what could be causing my symptoms also , one condition that has a symptom of chronic fatigue is disbiosis
I just want to give you a big hug ❤️
I hate being tired for
No reason I feel like I am the walking dead no matter how much sleep and being a mum of 2 makes
Me feel like I fail!
Only getting worse as I get older 😣 been like
This for 12years
God bless ya! I couldn't imagine trying to being a mother with cfs. I barely can
take care of myself.
I'm a failure too. Wish you all the best. My kids and me got it five years ago all of a sudden, and no doctors would take it seriously.
I’ve just begun trying bendotiamine and zinc chelate but I’m very optimistic and hopeful!
Did you ever have post exertional malaise with flu like symptoms from CFS? Any idea what causes it/how to help it?
Thats what I just got
Same, it took me a long time to improve my muscle form till I could tolerate light excercise. I would start with really light, laying down excercise. Then work to standing. Make sure to use resistance training as more muscles you have, the more water content can be held in them which helps with blood volume. Once you get where you can stand, I wouldn't do running or high stress excercise. I would recommend walks. Starting for 5 minutes till you can increase time to half hour to 1/2 hours.
im suffering w this, ive had it four years, i simple make sure on a daily basis not to do to much and crash.
i use kratom daily and it has helped more than anything ive tried and ive tried EVERYTHING
Im so depressed about it. After so many years of severe suffering im just close to having a nervous break down 😔. I dont know how long i can take this torture anymore.
I can only confirm that yogic meditation( kundalini, CHAKRAS...)helped so much for me...because you
get to channel your energy...even if you have
VERY little...good luck &
intuition.
Darling try fermented food Kefir, Nato,kimchi,it saved my Life at least for me ut worked ,2 Weeks afther my Energy Level is great
I haven't had it for years but I am in the same situation and i am sorry. I really hope Ron Davis can figure it out soon. We need something to give us relief from this at the very least
I'm right there with you.....
Try taking some d ribose powder. It's quite cheap, 3 x 5g scoops per day for about 2 weeks. I felt better within 20 mins after taking it. Its usually a few days before it really helps. It helps with brain fog. Just check if there's any side effects or meds that you are on that you shouldn't combine. Check the reviews too to get a brand that works
Thank you for sharing, very valuable information
Yay! I’m very glad to hear that!!
Babe! I also tried Benfotiamine ( the fat soluble one) and felt really really sick. I tried it twice so I’m sure it’s not for me. Then I tried Thiamine Hcl and OMG what a difference. All my fatigue and neurological symptoms were gone and I felt like I has as much energy as when I was 18yo.
I will keep using it for a while and update you on the long term effects.
If I may suggest( it works well for me at least...)a general supplement
and probiotics and extra co- enzyme
Q10...also for me multiglandulars
with extra thyme & adrenal supplements...yup we all respond differently...just like we are all individuals..I think k meditation
...Chakra meditation is best for
general energy ..good luck
ask??? It is about forty years I cope
with this condition ..on a budget..so
it is a challenge to say the least..
Good luck
@@warlocksuperman8632 Thank you, sweetheart! I already take a multi and CoQ10 too. How does CoQ10 make you feel or what do you take it for?
I’m glad to hear all these supplements help you! I will try meditation, I need to improve my habits. Thank you!
@@claudiacastillo5898 I have CFS/ Enviro... Sensitivity/ Fybromialgia...
@@warlocksuperman8632 What works for fibromyalgya. I took one dose of clonazepam and OMG it harmed my body so much. Now i have pain in joints, muscles, etc. I don’t know how to make it go away!
@@claudiacastillo5898 maybe I have a
weird form of multiple chemical sensitivity but any substance( even vitamin binders etc) that is not naturally sourced( and even some natural..lol) causes me some kind of reaction that stresses my body...
Similar to an allergic reaction...
Hello, I wondered if you have tried mega dosing a synthetic form of Thiamine(200mg+) ? I found you from your last video mentioning B1 but I don't think you specified details in that. I found that there are studies showing symptom improvements in fibromyalgia and have seen some cfs anecdotes from megadosing. I'm also a long term sufferer on about 11 years now, pregnant with my second child at the moment.
2000mg
Hi there have you tried Thiamine?
I had to terminate my pregnancy because of it. How did you manage with the first pregnancy and baby please?
Congraulations for your impending arrival and on putting together such a cogent vlog,I'm pretty sure I'd be unable to do so myself and having just discovered your channel I'm looking forward to watching the rest of it when I have the energy to do so.
Thanks for putting this video together,personally I've been suffering from M E for the last 20 or so years- currently having very similar symptoms to Parkinsons and M S .
I did have my first attack back in the late 80's/ early 90's and did recover for a good few years.
I hope this gives some hope for anyone suffering from it.
Sadly there is not much research going on to find a cure- this is being made much worse by lumping M E and C F S together - M E in the form first acknowlegded by the W H O in 1969 can be; with difficulty,diagnosed with blood tests.
C F S is a set of symptoms - addmitedly the same symptoms but with a potentially different form of cause; lumping them both togther makes it much more diffcult to find a cure or even any effective treatment.
Please dont see my last comment as a criticism of this very helpful video; that's certainly not what it's meant as.
Living in the U K getting help or effective treatment is also very difficult, personally I've tried an awful lot of methods to find a cure, or even just a little relief.
Sorry for the quality of this reply; but I am fairly exhausted at the moment.
Please feel free to message me if you wish to discuss anything in my experiences that may help, it might take me a while but I will get back to you.
Many thanks again for your work I'm sure its helping to raise awareness of these dreadful diseases.
Pete
I actually felt the best when I was pregnant, then a few months after delivering it would be so much worse. I found out later it is because your immune system down regulates when you’re pregnant in order to protect the baby. Once the baby is born your music immune system up regulates again and it will go back to its hyper reactive state(autoimmune). Hope you’re doing well and enjoying your baby.
That makes so much sense. Ugh if only we could find a way to feel like that all the time! And thanks for the well wishes! Baby and I are doing great so far 💛
@@SimpleMomming so you still feel more energy post pregnancy?
I agree i did feel an improvement as well when pregnant
@@ambercraven1857 you’d think that could possibly give researchers some insight and ability to hypothesize a root cause for this syndrome and come up with effective treatments. It’s astonishingly sad how little knowledge doctors have of basically any and all illnesses. I’ve lost faith in the medical industry after seeing my sister struggle for ten plus years now and myself for roughly 14 months combined now (10 months after mono with a 5 year remission which Covid sadly brought back along with dysautonomia it seems).
Yes, I had the same, my aerd, alopecia areata and cfs all got better when pregnant. My ibs got worse though lol. Also, when I have to take steroids for my aerd, my cfs also goes away, so I think it's related to our immune system. But sadly I can't just stay on steroids x
Has your "thyroid" levels been tested? Note: "stress" too does effect thyroid levels. Ex. Stress nade mine temporarily hyperthyroid. Note: If diagnosed with thyroid issues try to avoid taking a "radioactive iodine isoptope" prior to having thyroid x-rayed! The isotope killed my thyroid as the technician later told me changing me from having hyperthyroidism to hypothyroidism & which now requires daily medication. Note: Sometimes "change of diet" can change thyroid function levels. Ex. The "Paleo diet" is known to be very good for thyroid issues. It gave me more "energy" too besides lost a few lbs. What we EAT can be ultra important, as you know. Ex. finding out what foods contain zinc. Note: It is so good you discovered your deficiency, because I heard there is a link of covid-19 to a zinc deficiency, too. As a group of women I once met told me "They often have done the research, found the diagnosis they believe they had & then had it "confirmed by their doctor" telling him all they "researched/discovered". Once, they brought ALL the info. the their doctor AGREED! So, yes, we always need to do our own research. Note: Some doctors have good "critical thinking skills" able to analysze all the data & make a conclusion, whereas other doctors may be good only at "treating a diagnosis once it has been realized"! Congratulations on your pregnancy! Wow! What timing, eh, to be in your new home, too! Bet your move made your ability to stay home now much "stress free" too re: any financial concerns! When a couple marries it is always wise NEVER to rely on the woman's salary.......but live a lifestyle not incorporating it, only saving it. Then, when/if she becomes pregnant she is FREE to decide if she wishes to stay home raising their children. Sometimes, a woman really can't know.............until the little bundle arrives which is hard to separate from, etc. etc. Continue to be blessed!
I have had my thyroid tested, thanks for the suggestion though ☺️ And thanks for your well wishes on the pregnancy! I feel very blessed to be able to stay home at this point!
@@SimpleMomming hey cris
My name is Guilherme im brazillian
How is your age??
You feel cronic tired all day even after 10 12 hours sleep?
You do researches im seraching the info we have restore the mitocondrial have you heard??
What top 3 suplements vitaminas you did worked for you what is the ONE at 10 20$$ max you cant ve without to recomend? Can you do new video suplements vitamins things you using? The hours how much day what have worked etc
Here sooo hard brazil finamcial crises to buy suplement is hard for me if you know my history thing you will cry...
I have 2 cronic disseases i have 24 HOURS PAIN A DAY... imagine living that?? Even to write is hard due my hands artriths...
And im only 28 years imagine?? Dont have father all financial prpblems need soo much help can we talk better dont have more trust exits good people to you imagine what all i get in my life all no suport always years without job 24 hours pain no job humilhated too tge worses people you can imagine exists yess they exists!! Can we talk on instagram?? Thanks
😭
👋
I tried b6 it makes my mood stable before the period. I tried vitamin D3 8kIUs for months and then I take 14k IU, and know I notice I need 40,000IU I just start . I have fibromyalgia with insulin resistance. For headaches and migraine 😫I used B2 400mg two three times.
I LOVE DR.BERG TOO🙆♀️
I almost tried so many food supplements. Zinc is very important.
POTS is common in CFS. It's part of CFS symptoms, just like sensory overwhelm or sensory processing disorder can be considered separate, such as common in autism. But is also common symptoms in CFS. So it's part of CFS symptoms. I wouldn't therefore consider POTS symptoms separate to CFS
The B complex vitamins must be taken with food because they cause hypoglycemia. It is normal for vitamin B1 to cause you discomfort and vomiting if you take it on an empty stomach.
I know this journey very well and my heart goes out to you. If you haven't already done so you might be interested in learning about brain rewiring for limbic system impairment which is what most chronic illness stems from. I've witnessed such incredible stories of recovery just from rewiring the neural pathways of the brain. This was a huge missing piece to my journey of healing. It takes time and patience but it works if you stick to it. I've been training for 8 months and it's been really helpful. Check out DNRS (dynamic neural retraining system).
I’m in UK how much is this in English pounds? Thanks
You could also try microdosing psilocybin mushrooms along with Lions Mane and then doing the meditation and the thing you typed out. Neuroregenisis has been shown to occur with low dose psychedelic (below intoxicant threshold) use specifically psilocybin.
I hope you get better 💐
Thanks for the great info! Have you ever checked for Leaky Gut markers in stool/blood? My current CF is due to that 😞
Mm. Getting accused of laziness is the default answer from some of these planks! Actually, you're just so damn tired out that lazy is just the complete opposite of what you're being. What you feel like is burnt out enough to flake out. You keep going because you've no other choice except to give up the ghost completely. I have Asperger's Syndrome, C-PTSD and CFS. If anyone says that I'm lazy after being a sole carer for decades, I've just one thing to tell them. Alphabet: 5th letter and 21st. I'm trying various things to see if I can recover, as and when I can afford. The heat wave has been no help either.
Hello thanks for your video. I noticed that when I sniff black pepper I get better and most of the symptoms disappeared. Can you make this test?
Thanks. Hope all continues well for you. ;-)
Huperzine-A, berberine, glutathione, D-Ribose, methylene blue, Mucuna prurienes, he shou wu, yuan zhi, cats claw, black currants, Pau d'arco, black seed oil, ? And others?
Dr Judy Mikovits believes CF is the result of infection by a mouse leukaemia-like XMRV retro virus - which were infecting vaccines (and may still be) for years. This has been covered up by the US government.
I believe I have had CFS for years as well (as well as the mthfr mutation). Its so frustrating not being to cope with as much as other people in life.
Thank you for sharing video I had cronic fatigue for 20 years and fibromyalgia. I give your advice a try.
Congratulations on your baby! I also have struggles for many years and literally all my symptoms ceased during pregnancy. 3 months later I was at ground zero. I’ve been through so many trial snd error and I feel the same: I refuse to live like this snd am always trying to fix/figure it out. How are you doing now one year postpartum?
B vitamins for anxiety. Dr Berg says many people are low in zinc. And heard many people with CFS are low in magnesium. Magnesium also helps muscle pain
Heart health dr.Sinatra..L-carnitine d- ribose magnesium boron manganese.
I just jumped through this video trying to find out about the B1 deficiency. Did you continue with B1?
There are different types of B1. Thiamine , Sulbutiamine, Benfotiamine.
No she says in the video she stopped taking it
Have you had your Parathyroid hormone checked? You could have hyperparathroid. You have four rice sized glands around your thyroid. Sometimes one of the glands will become tumorous and cause Hyperparathyroidism. Or you could have a vitamin D3 deficiency. Have your doctor check your parathyroid hormone. If you have an abnormal reading you will be referred to an endocrinologist.
19:18 do you know what video dr berg recommended the zinc? did he specify liquid? specify that brand?
Im already taking "zinc sulfate" through dr bergs vitamin d3 product... doesnt seem to be doing much for me yet (over a month.)
Have you ever tried Mythylfolate (for the methylation cycle), as folate is also important in pregnancy?
Did you get a mineral test done. Sounds like you should. Body-bio offers minerals kits that works pretty good and it's not that expensive. Maybe you should look at Dr Darren Schmidt videos on getting a test done from a company called vibrant wellness. The test is called mycotoxins which test for a lot pathogens in your blood and stool.
Does this doctor actually help?
Persons with CFS have been shown to have low levels of serotonin. Estrogens affect those levels. Pregnancy affects estrogen levels. See the connection?
Your fingers look as if you have Ehlers -Danles Syndrome look up the video on the signs of ED Syndrome on You Tube it comes with CFS and Pots Syndrome, my daughter has all three. Got it in 2010 and I found all on Google and all the medical experts too we live in the UK I met Dr Grubb at a conference in Manchester UK
Are you saying that Benfotiamine did not work... Keep up always 👍🏻
ive had cfs for 3 years now
for treatment, ive tried taking 25+ different vitamins and supplements every day (still do), tried diets like keto and gluten-free, antidepressants, coffee, adderall
currently, i take an antidepressant along with coffee and adderall for stimulants
the adderall helps but my dose is very low i have yet to get on a higher dose consistently (i have taken multiple a day on really tiresome days) and it does make me feel more awake and helps with both mental + physical fatigue
the only time i had an actual vitamin deficiency was like a couple months ago that for a little while, i was low on vitamin D so i took a 5,000 IU capsule once a week that was prescribed and it has not affected me one bit even though all of my vitamin and electrolyte levels are healthy
my only hope is putting more artificial stuff into my body since my cells just cannot metabolize or synthesize proteins like they used to in order to create + gain ATP for energy
my big bet for my personal treatment rather than recovery is finding a good stimulant drug and maybe in the future try stem cell therapy
i dont know if a complete recovery is possible because when the body takes a 180° and does not start functioning how it used to out of nowhere and so severely, this syndrome is stuck with us for life in my opinion thats why we can only try to find treatments that help make life easier
best of luck to everyone
Your cfs sounds a lot like mine. I had low hormones in addition to absolutely no vitamin D. Have you had a dr check your levels? If not, be sure they check estrogen and testosterone. I had almost none of either at 30... Oh. And I also have narcolepsy. I also suggest a sleep study if you haven't had one...but those can be expensive...
@@stillstacy199 Did you have thinning hair as well by chance?
Did you develope pots later in life or have u always had it?
I’m not 100% sure when I developed it but I do remember having symptoms as far back as my teenage years. I don’t remember anything before then
Make sure you get your ferritin checked. Most accurate way to check iron levels
See Dr. Jerry Tennant in texas wrote a book as well
Science does not study us and doctors can't treat us. I have been battling with some sort of illness that makes me
1. insomnia
2. fatigue all time
3. easily fatigue especially doing mental work
4. fuzzynees in eyes and foggy vision
5. foggy brain
6. And a lot more
I am sharing because I also have to get rid of this illness which has been with me since 2017
I don't believe this condition will ever be important enough for any extensive research. Unfortunately people who suffer will have to be their own advocate and look for a doctor who knows and cares enough to help people suffering. I've been dealing with this pretty much my entire life and my mother suffered from it as well. Doctors who don't know how to treat this automatically assume it's depression and thus starts the endless trials and tribulations of antidepressants that don't work and failed for my mom as well. I'm going to be 60 next year. If I could spend the next 10-20 yrs of my life getting some type of relief from this condition I would be forever grateful. Right now I'm trying several different supplements and spending it of money doing it. I will try out the supplements that you are suggesting so hopefully they work. Lol, so sad people suffering from this truly are their own advocate. God forbid you mention any of the information you've researched to a doctor. The majority of them give you the 😏 or 😑 look. Lol
Have you tried food wise; a Low Carb or a Keto diet? Treatment wise Oxygen Therapy & also Infrared Sauna?
You had any luck with any of these methods Jonathan?
She's Lying Well I would say some perhaps low carb but its an on-going process
Do you mean the hocatt? Very pricey at $175!
@@christinavelazquez8931 H.B.O.T in the UK is mainly used for M.S sufferers, but some Centres will also treat M.E sufferers.
Have you tried ketogenic diet along with supplements?
U r gentle and beautiful.
I think it's highly likely that you felt better because during pregnancy the placenta releases DAO. DAO (diamine oxidase) breaks down histamine. Histamine overload is hugely linked to CFS... You also need b6 and zinc to produce DAO. You can suppliment with DAO to bring relief x
Thank you for your comment! This is very interesting about histamine because when I did some testing awhile back my histamine levels were off the chart high! I wonder if the zinc was helping that then. To be honest, I’ve struggled to know what to do about high histamine. I’ll have to look into DAO! Thanks for the info! How did you come to learn about DAO?
@@SimpleMomming I really hope that can be of help to you! I found out about DAO because I realised that my CFS symptoms are set of/worsened after consuming high histamine foods. I began eating fully carnivore diet to help CFS and chronic gut issues. I have a lot of food intolerances... carnivore this has improved my gut symptoms and helped with CFS but not fully.
If you keep a food/symptom diary it can be really helpful to pin point what is causing problems. I really bet though that the histamine is causing you issues. When I realised this it was a game changer.. as previously I could barely move my body... Now at least I have some kind of a life that often involves being able to leave the house.
DAO is produced within the gut to neutralise histamine after we eat. If we have a damaged gut, or some kind of microbiome imbalance (or nutritional deficiency) then our ability to produce it is impaired. This means that dietary histamine is released into the bloodstream.. Its an allergic response so that's why it makes us so tired (a bit like the way seasonal allergies effect people but more extreme). It could also be that our body's are also producing excess histamine due to an unknown cause (infection, parasites, metal toxicity, injury etc) and that is over burdening us. Just be careful with the supplement that it doesn't have any other nasty additives!
I am researching like mad as I just want my life back. I came across your video on Thiamine so I wondered how you had gotten on with that. I have heard that initially you can get a bad reaction that lasts for a couple of weeks after taking it. How long did you try it for? I heard about it from Elliot Overton on his EONutrition channel. Its very informative.
All the best x
I've heard that it's very typical to feel an improvement to CFS and MCAS during pregnancy because of the large amounts of DAO released by the placenta..
I will have to research the DAO supplementation. I had thought about it before but my only concern would be if supplementing with it, would it sort of “turn off” my body’s natural ability to produce it…? I guess my body is not doing a great job at producing it to begin with though. It is very tempting to try supplementing
Oh and to answer your Thiamine question, I definitely did not take it long enough. Maybe a week or two which I know wasn’t long enough. But when the zinc and b6 combo worked so well I just didn’t feel the need to try it again. But maybe I should. Might help with the POTS/circulation issues…
It truly comes down to diet more than anything. Low histamine foods and supplements is what helps.
Thank you for your video. Thank you for sharing to try to help others. So happy you found your solution. CONGRADULATIONS on your little one. Grow your family. Beautiful. it might have been the prenatal vitamins? High dose vit b1 HCL might make your POTS go away.
I would LOVE it if I could figure out how to make my POTS go away, thanks for the tip and thanks for watching and commenting! I so appreciate your well wishes for our baby too 💛☺️
@@SimpleMomming did you ever try high dose of b1. It has been a miracle for my family.
@@SimpleMomming Have you ever tried DNRS program by Annie Hopper?
@@stephsalgado444 A while back I was watching videos on B1 and they talked about some kind of a storm when you take high dose b1. This any of you experience this and what was the dose you took.
@@icecreamladydriver1606 nothing but energy like I never experienced before. For my husband it cured his long-haul covid.
Haha, the important theme and than: my makeup-list :D haha
Get an oats test (organic acids) it will test most things. Also, b6 boosts progesterone so make sure you don’t have oestrogen dominance as that can be awful for fatigue
Good information
A lot of times these diseases are caused by vaccines or medications.
That just doesn't seem to have any backup behind it.
I've been speaking to like a hundred people with ME/CFS in the years since mine began, and I mean clinically diagnosed folks, not self diagnosed or anyone who mixed up the symptom of long term fatigue and things that's equal to "CFS" I hear 3 main things 1. Viruses in the herpes family 2. Massive exertion through working long hours when I'll or doing an athletic event when worn out 3. Drastic diets to lose weight making the person sick and then develop CFS.
As well as this I've seen surveys of several hundred people on CFS discussion forums about their guess as to their event that brought on the illness and it's roughly the same as what I listed, particularly the first two
My Fatigue started after I took my second Covid vaccine it’s been four months now and it is very very bad
I still find it strange how everyone seems to be getting dignoise with it. Also find it funny people with long covied have same smptons
Someone help me pls this is only my third day I’m about literally about to give up I can’t take it I feel so tired Idk what to do anymore and when I wake up I feel lost 😢I’m only 19 man why life gotta do this my parents don’t believe that I’m tired af 😭
I can’t work with it crushing fatigue to server
Thank you.
Hi, how did you do the taste test. Do you put a drop on your tongue or put some water and taste from there?
You add some drops to water. There are instructions on the bottle of liquid zinc :)
I don’t have exactly chronic fatigue but it’s pretty similar can someone give me a name for my issue? (I have months where I can’t make mental effort at all, thinking gives me headaches, writing give me headaches, sleeping doesn’t help , a day I couldn’t even talk, Noises and lights upset me, it’s hard as fuck to sleep but somehow i don’t really feel it gets worse when I do physical activity)
I had all those symptoms with mold toxicity... I'd check out mold as a possible root cause, or Lyme or parasites can create this kind of thing too. Check out functional medicine doctors online like Dr. Jill Crista, Neil Nathan. Sorry you're dealing with it.
So what are purples exactly how we use nutrients
Think of cfs as an overactive hypothalamus/Hpa axis, notice your mind chatter and how stress can make it worse is the best advice I can give to you
Getting Started
by Peter Kolb
While the Buteyko method introduced into the west has been getting excellent results, it does not entirely accord with Professor Buteyko’s recommended practice. During two weeks he spent in New Zealand in December 2000, he demonstrated the Buteyko technique as it should be practiced.
Aim
Firstly, it needs to be understood that breathing too much is a bad habit that leaves you with a debilitating shortage of carbon dioxide and bicarbonate. It usually results from long term, undischarged stress. Any stress makes you breathe more. If this is sustained over a long time period it becomes a habit. The physiology behind this habituation process is well understood. Buteyko therapy aims at reversing this, by habituating to less breathing. You do this by developing and sustaining a feeling of a slight shortage of air over a long time period. This gradually restores your carbon dioxide and bicarbonate levels back to normal.
Maximum Pause
While it is possible to stifle an asthma attack with a long and uncomfortable breath hold know as a maximum pause (MP), this procedure does not reverse your asthma and does not retrain the respiratory center to pace your breathing correctly. Professor Buteyko is emphatic that the maximum pause has no therapeutic value in restoring healthy breathing, which is the aim of his therapy. It is also dangerous for people with various disorders such as hypertension, heart disease, epilepsy, kidney disease and diabetes. It can also destabilize your breathing, making it worse. Unfortunately the maximum pause has been introduced into a westernized version of the Buteyko technique, much to the annoyance of the Professor.
An understanding of the physiology behind the Bueyko method leaves no doubt that the maximum pause cannot improve your breathing.
DIY/Self-help
Professor Buteyko is firmly opposed to the DIY/self-help approach. The Buteyko technique relies 100% on patient compliance for effectiveness. Learning it from a script is like learning Yoga or martial arts from a book. Most people will experience changes in their bodies as their CO2 levels rise. These changes vary from one individual to another. Buteyko practitioners help you deal with these changes, keep you motivated and ensure that you do the breathing exercises correctly. Support for your Buteyko practitioner enables him to continue his work of bringing the technique to other sufferers.
Nevertheless, very few people around the world have access to a Buteyko practitioner. So here are some basics to help get you started.
Medication
Do not make any changes to medication. Steroids must be taken as prescribed. Because of carbon dioxide shortage asthmatics often don’t make enough Cortisol (natural steroid) and must have supplements. Steroids are not just anti-inflammatories but they are needed by the body and without the right amount it can be almost impossible to get breathing back to normal. Your doctor will be able to review your need for steroids when you stop having asthma symptoms.
Bronchodilators must be taken only when needed. As you progress, discuss with your doctor the possibility of weaning yourself off long acting bronchodilators and replacing them with short acting ones. That will give you more control over using them when needed. You should find that within days you will be able to overcome asthma attacks with reduced breathing and won’t need the bronchodilators. Nevertheless, you must always carry them with you for emergencies.
Nose breathing
Always breathe through your nose. If your nose is blocked perform the following exercise: After breathing normally (do not make any exaggerated breathing manoeuvre), hold your breath for as long as is comfortable, and then gradually resume very gentle breathing. It may help to pinch your nose, nod your head a few times or do some other form of exercise. In stubborn cases or when the blockage is due to a cold, you may have to try a few more times.
To avoid breathing through your mouth in your sleep, you might like to experiment with a little light medical paper tape to keep your mouth closed. Mouth taping at night is not recommended by Professor Buteyko, but most people find it extremely valuable. If you do, protect your lips with suitable cream, use a low tack tape (some are quite aggressive), and make sure you fold a tab or handle at each end for rapid and easy removal. Do not go to sleep with tape on your mouth if this causes any form of anxiety.
Comfort
Make sure you’re comfortable before starting the exercises. Remove unnecessary clothing since the improved blood carbon dioxide will dilate blood vessels in the skin, thereby warming you up.
Posture
To get your posture right stand with your back to a wall, heels, shoulders head and bottom touching the wall. Now drop your shoulders. Keep this upper body posture when sitting.
Relaxation
While maintaining your posture, relax all the muscles in your chest, neck, shoulders, arms, tummy and particularly the diaphragm. It’s a good idea to tense them up a bit first before relaxing them so that you can properly identify them and make sure they are all relaxed.
Normal Breathing
Take off your shirt and stand in front of a full length mirror. Watch your chest and tummy for breathing movement. Make sure that your chest does not move at all, and only the upper part of the tummy moves, between navel and breast bone. The second thing to check for is that the tummy moves out with each in breath and not the other way around. Many people get this wrong. Your out-breath must be free, relaxed and unforced.
Reduced breathing (RB)
Your aim is to develop a feeling of slight hunger for air, sustain this over a period and do this frequently. In fact, this should become a habit so that you do it all the time until you have achieved your health goal.
Try to feel your breathing and become aware of your breathing pattern. Now try to maintain this pattern while taking in just a little less air on each breath so that you develop a slight hunger for air. Initially try to sustain this for two minutes, then five and then ten.
If you follow all the steps correctly, then you should feel really calm, good and even a little sleepy. If you already practice relaxation techniques, yoga etc, you can combine them with reduced breathing.
Measuring your breathing
Hyperventilators breathe more than normal in order to achieve lower than normal blood carbon dioxide levels. It follows that if you have to breathe more than normal, then you will also not be able to hold your breath as long as you should. Professor Buteyko has cunningly used this principle to measure your blood carbon dioxide by testing how long you can hold your breath.
You start the pause somewhere in your normal breathing cycle. This is how you start the pause: Look up with your eyes and at the same time pinch your nose and start a stop watch. Just before it starts to get uncomfortable, stop the stop watch and resume normal breathing. You should be able to resume normal breathing without any effort and without taking deeper or more frequent breaths.
Some precautions:
- Do not take a deeper breath before the pause.
- Do not make any attempt to empty the lungs before the pause.
- Do not worry about which phase of the respiratory cycle you happen to be in before starting the pause. A pause is just an interruption of normal breathing.
The time in seconds is called a Control Pause (CP). Asthmatics typically have a CP of 5 - 15 seconds. (But not everyone with such a low CP has asthma.) Your aim is to achieve a CP greater than 40 seconds, although for perfect health Professor Buteyko recommends a CP of at least 60 seconds.
Doing a Set
When at rest, correctly seated, comfortable and relaxed and after breathing normally for at least five minutes you are ready to do a set. A set consists of
Pulse - CP - Reduced breathing - 3min normal breathing - Pulse - CP
First measure your pulse and then do a CP. Record the results on a table. Then do reduced breathing for ten minutes. Breathe normally for three minutes, then take your pulse again and take another CP. If you’ve done your reduced breathing correctly your pulse should go down and your CP should go up. Sometimes the pulse remains the same. If it goes up you’re not doing it correctly.
After three days you should be able to do around 8 to 10 sets a day. You can then start integrating reduced breathing into your daily life. Ideally you should aim at doing reduced breathing all day.
That takes care of the exercises. Here are a few helpful hints to help your recovery.
- Don’t eat unless you are hungry. Only eat until you have had enough. Eating increases breathing; eating excessively increases breathing excessively.
- Don’t dress too warmly. Be careful not to overdress children. If you are worried about them being cold, check their ears, nose, hands and feet. If these are warm, they’re OK.
- Make sure you get plenty of vigorous exercise. But don’t exercise to the point where you have to open your mouth to breathe.
If any of these recommendations make you dizzy, sick, anxious or give you palpitations, stop immediately. If possible see a Buteyko practitioner.
Dang it is the only one Pill can get the green light 💡 on the green green patch in the sun and then you look at it in a little green sun.
Christy Lyn..i made a comment on your video you made a year ago.i can guarantee you will feel better if you implement these drs recommendations..on vitd3 dr Michael Holich....iodine dr.david Brownstein...B1 @EO nutrition....magnesium dr carolyn dean...
Pyrrole disorder is what I have !