ISOLATION, PAIN AND PUMPKINS

IN THIS VIDEO:
OCTOBER 6 - 15, 2023
WAS REALLY FEELING THE ISOLATION AND INCREASED FIBROMYALGIA PAIN. TOOK DANIEL FOR A FUN DAY AT STEWS FOR PUMPKINS WHEN JOHN WAS TRAVELING FOR WORK.
THINGS ARE GOING OK, ITS JUST CHALLENGING SOME DAYS, MORE SO THAN OTHERS.
MUCH LOVE. SENDING YOU HEAPS OF ENCOURAGEMENT AND BEST WISHES.
Welcome to my channel...
Adapting. Thriving. Changing. Growing. Facing the unknown every waking day. This is my story, and I hope that you find encouragement, community, friendship here. A journey of life with a child who was born with severe disabilities, and how we are making our way through the ups and downs.
Daniel was born with a rare condition called Polymicrogyria. It was caused by the virus, CMV (cytomegalovirus). Daniel has extensive medical problems and disabilities, but we have created a loving support structure for him, and the 5 of us, and our pets, find lots of joy and love. A very unique family dynamic for sure!
The Adapted Life Podcast, by Julie Hasselberger. listen !
theadaptedlife.buzzsprout.com
Music licensed by Epidemic sound and Premium Beat
filmed with Canon G7X Mark II
#caregiver #specialneedsmom #medicalcare #inspire #juliehasselberger
#cerebralpalsy#disabledchild

[@EmilysLifeOnWheels]

I still can’t get over how tiny holly is . She’s so sweet 🥹

[@amandabecker4441]

Hi Julie ❤

[@EmilysLifeOnWheels]

Hi Julie !! ❤❤

[@Crazeemonkeeclan]

I hear you and I feel the same way. I don’t even want to go to therapy, they can’t relate. My nurse only comes 3 days a week and I have to push myself to do all the chores when I really just want to hide.

[@carriebowlen3785]

I am so sorry! How was your CHRISTmas? Sorry everyone was in my house for the holiday! ❣❣❣❣
HAPPY NEW YEAR 2024
I am so glad we are friends
How is your fibro and your sciatic pain?
I am so understand the fibro pain and everything you are talking about
i am so glad i found yall in my life
i love you all so much

[@abbyrundle5574]

You You and I both know

[@EmilysLifeOnWheels]

They sent my cpap in the mail after my sleep study . I have some sort of magnet or clip with my pump and it’s been ok knock on wood. But yeah they just sent mine in the mail too it’s been a lot of trial and error 😅 4:52

[@SaraElmore]

Whats on the foot of Daniels bed