Thanks for the update My spouse has early onset of als so I’m going to try to make the most of everything available to us to give him the best care he needs 😊
My sister is trying to help me . But I'm having so much stress dealing with speech. She can't understand half of the things i say an i get so mad having to repeat myself. She'll sit there like she understands what i said an then she'll say i don't know what your talking about. Then she laughs . At me . I can't deal with this it is tearing Us apart . I have a speech app. On my phone but my hands don't work right . So i get mad at my phone for making me have to do stuff over an over again. I even write what I'm trying to say but i end up always dropping the pen or what ever . It infuriates me. Just to explain myself.
Oh wow.... this is huge and must be frustrating as hell for you. At least if you could use your hands to write it will help you communicate what about portable devices with graphics? They look like iPads
@@Mywatercrystaltvi have an ALS speech box on order but everything takes forever.. my glasses always slide down and these staff people at the care center take forever to help me
Thanks for the update My spouse has early onset of als so I’m going to try to make the most of everything available to us to give him the best care he needs 😊
I need help. I want medical care. I'm getting weaker. I can't move me. muscle is lost. feet begin to shrink.
My sister is trying to help me . But I'm having so much stress dealing with speech. She can't understand half of the things i say an i get so mad having to repeat myself. She'll sit there like she understands what i said an then she'll say i don't know what your talking about. Then she laughs . At me . I can't deal with this it is tearing Us apart . I have a speech app. On my phone but my hands don't work right . So i get mad at my phone for making me have to do stuff over an over again. I even write what I'm trying to say but i end up always dropping the pen or what ever . It infuriates me.
Just to explain myself.
Oh wow.... this is huge and must be frustrating as hell for you. At least if you could use your hands to write it will help you communicate what about portable devices with graphics? They look like iPads
@@Mywatercrystaltvi have an ALS speech box on order but everything takes forever.. my glasses always slide down and these staff people at the care center take forever to help me
മേടത്തിന് കാണാൻ പൊന്നാനി ഭാഗത്ത് എവിടെയാണുള്ളത്