Gaucher Type 2: The Diagnosis and the (Current) Absence of a Treatment
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- Опубліковано 21 лип 2020
- "The doctor was very gentle and also clear that there was no treatment at this time."
Parents of a little girl diagnosed with Gaucher Type 2 talk about how their doctor confirmed she had the most aggressive type and gently, patiently, and honestly prepped them for what their path would be in the absence of a cure on the horizon. The parents appreciated his honesty.
If your child has Gaucher Type 2 or another pediatric life threatening illness, hearing from these parents may help you find your way and see that you are not alone. Visit www.courageousparentsnetwork.org for more videos.