I Have Albinism, Don't Call Me Albino

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  • Опубліковано 4 жов 2024

КОМЕНТАРІ • 66

  • @Thisisellipsis
    @Thisisellipsis 10 місяців тому +6

    Wow .... A lot to unpack there, but thank you for sharing

  • @helenetrstrup4817
    @helenetrstrup4817 10 місяців тому +2

    Mkay. I think that's enough internet for me today. This is sending my tired thought processes into unnecessary spins at 2am in the morning as it's all the same to me. But you do you, as long as you're happy.

  • @StephenWhitakerImages
    @StephenWhitakerImages 9 місяців тому

    Thank you for explaining this - very helpful!

  • @rinrin7287
    @rinrin7287 10 місяців тому +9

    I am from Russia. Don't call me Russian🗿

    • @digitaldritten
      @digitaldritten 10 місяців тому +2

      that is different. Russian is a culture. albinism is just a visual difference, like having green eyes, it doesn't affect the mind in any way.

    • @rinrin7287
      @rinrin7287 10 місяців тому +4

      @@digitaldritten it's really not a big deal to call a person with black hair a brunette and stuff like that..why would this affect you so much?

    • @amythegma
      @amythegma 10 місяців тому

      🤣🗿

    • @samivayajd
      @samivayajd  9 місяців тому

      @@rinrin7287 it's not your entitlement to understand why people take offense because you will never live that person's experience. You are just choosing to either respect or ignore a different idea than what you perceive from your own mind.

    • @rinrin7287
      @rinrin7287 9 місяців тому

      @@samivayajd yeah, you're right. I won't understand it when people think that it's offensive to be themselves. It's a real world and you'll get called an albino thousands of times in your life, you just have a choice to always argue and get offended or or proudly be who you are and do not care about what others say

  • @Avatarfan10000
    @Avatarfan10000 10 місяців тому +5

    I'm sorry, I just want to point out that person first is great for people with physical disability or conditions that don't affect the brain structure. People with Autism and who are deaf largely don't like person first language because of how much it affects their interactions with society as a whole. People with autism don't think in traditional ways and so can be isolated from their native culture. This can be due to Sensory sensitivities to not being able to understand the social cues that are given. For people who are deaf because of the nature of sign language being its own language, it means they have their own culture.
    There is a question that really matters when it comes to person first language that I find extremely helpful. If the condition vanished would this change the person in a fundamental way? For a majority of people with Autism, the answer is yes. Autism not only affects the way we view the world but also how to engage with it day to day. Albinism doesn't really do that. In an equal society where hypothetically the only thing people cared about was actions, someone with Albinism wouldn't be different from anybody else (I'm separating vision problems from Albinism). Albinism only effect if the body has melanin on not.
    That being said just listen to the person's request. As someone with autism, I hate when people use person first language in a casual setting but if someone else with autism prefers person first I would use it. It's not my place to judge as to why they use it.

    • @kinashy8863
      @kinashy8863 10 місяців тому +1

      I'm autistic and i personally don't care which one someone uses for me. I usually say "autistic" because that's what most people prefer but when i meet someone i use whatever words they prefer for them

    • @JJ-yc2sv
      @JJ-yc2sv 10 місяців тому

      If you "hate when people use person first language," why did you choose to use it to describe yourself?
      Did you misunderstand what "person first" means?
      It seems odd that you'd do the very thing you're claiming to hate.
      (In case you're confused... "I have autism" or "...someone with autism" are both person first, whereas "I'm autistic" is condition first.)

    • @Avatarfan10000
      @Avatarfan10000 10 місяців тому +1

      @@JJ-yc2sv You are right on that. It's hard to explain, but I get into a different frame of mind when explaining things. So it's like one thing to explain my diagnosis in a formal setting where I am listing my diagnosis vs in a casual setting, I do use I'm autistic. It's more of a formal vs. informal type of thing. It's also cause I forgot to add I hate it because it's treated as the only way to treat people as human. I grew up with so many people telling me that saying I'm autistic is saying I'm not human. My bad.

  • @rugdealer1729
    @rugdealer1729 10 місяців тому +1

    There's no difference between person first and person second language. If someone has autism they are autistic. If someone has albinism they are albino. The former and the latter both have the exact same meaning.

  • @datbreadcat3240
    @datbreadcat3240 10 місяців тому +6

    Sucks to see how the people in the comments are not getting the point at all. This is a totally fair request to make. People are much more than their conditions!

    • @PyroGothNerd
      @PyroGothNerd 10 місяців тому +1

      Sweetie, the "person first" language he's promoting is DESPISED by the disabled community. It's like saying "person with femaleness" or "person with blackness"
      He is being offensive to the rest of the disabled community. He can just say, "Hey, I don't like being called albino" without spreading the rhetoric the rest of the disabled community hates

    • @egghaverr
      @egghaverr 10 місяців тому +1

      common sense to think people are much more than their conditions, especially common sense to think someone with no melanin ain't *just* that. It doesn't make sense for it to matter if they're called people with albinism or albino people.

    • @samivayajd
      @samivayajd  9 місяців тому

      @@egghaverr what you mean is it doesn't make sense to YOU. You are being entitled in stating that "because YOU don't see anything wrong with it, it's okay." Choosing to hear from a perspective they don't experience is hard for most people. You don't need to understand why because the experience is something you will never comprehend.

    • @egghaverr
      @egghaverr 9 місяців тому

      @@samivayajd 🥱

    • @egghaverr
      @egghaverr 9 місяців тому

      @@samivayajd maybe try replying with something actually constructive instead of calling me entitled. You assuming I will never be able to comprehend an experience is very much an incorrect assumption.

  • @samivayajd
    @samivayajd  9 місяців тому +1

    I'm just pointing out that all the people telling ME to not be offended, are in fact the ones who are offended by this video. 😂

  • @leechan8272
    @leechan8272 10 місяців тому +1

    Thank you for sharing

  • @headerahelix
    @headerahelix 10 місяців тому +8

    I respect the way you wish to identify of course but it's a bit unnecessary and problematic to call out specific races for doing that. There are people with albinism who identify as albino in all racial categories as well, so it's personal preference.
    Take care.

    • @lemonierfroggie4904
      @lemonierfroggie4904 10 місяців тому +1

      well its obviously based off of his own experiences

    • @headerahelix
      @headerahelix 10 місяців тому

      @@lemonierfroggie4904 Even so, it's not necessary. It's condemning entire races for the actions of a few. And especially when "the A word" isn't considered a slur by most people on the planet (including many WITH albinism), it comes of as hateful towards the group he specifically called out.

    • @samivayajd
      @samivayajd  9 місяців тому

      @@headerahelix I would argue that communities can be CONDITIONED to use certain terms in their society without comprehending the social impacts of said terminology. That being said, language itself often changes with each generation on what is deemed "acceptable" or offensive reference. Take the N word for example, or the term queer. Unless you, yourself identify within the group, you have no grounds to advocate for the language used to regard that community.

    • @headerahelix
      @headerahelix 9 місяців тому

      @@samivayajd I agree. As a queer black person from Europe I would never use the N word, even amongst friends, because I don't feel I have ownership over it as I come from a different culture (i.e. not African American). I'm not going to police black people from other cultures on words they want to reclaim, though. I have seen so many with albinism use the word without correcting others without albinism that I still don't understand why it was necessary to call out specific races.
      So again, I respect the way you wish to identify, my only issue is you seem to have a bone to pick with black people and it's uncomfortable. I'm just trying to defend people who have likely, like most of the comments here (who are presumably mostly white if we consider demographics of the native English speaking world), never heard anyone say that the A word was offensive, let alone as offensive as the N word.
      I'll edit my previous comment to reflect that.

  • @todaychange5-7783
    @todaychange5-7783 10 місяців тому +4

    What you have definitely ain't a disability, it's a skin condition that you didn't choose & it's okay.

    • @bellawietrzak3543
      @bellawietrzak3543 10 місяців тому +2

      A lot of people with albinism have vision loss or are blind, so very well could be a disability for this person

    • @samivayajd
      @samivayajd  9 місяців тому

      Have you SEEN any of my other content? I was a featured creator at VidCon on a panel with disabled creators.

  • @yeoldegrayCat
    @yeoldegrayCat 10 місяців тому +3

    .....Albino.

  • @DudeMan-v6r
    @DudeMan-v6r 5 місяців тому

    Abinism and albino in fact have the same meaning.. like if i said "the woman gave birth to an albino child" or could reword it and say "the woman gave birth to a child with albinism" or even again " the woman gave birth to an albinic child" is all the same it just depends on how the word is used its not meant to be albinophobic or offensive..

    • @samivayajd
      @samivayajd  5 місяців тому

      Would you call someone with dwarfism a dwarf?

    • @samivayajd
      @samivayajd  5 місяців тому

      Or what about the term cripple?

  • @kinashy8863
    @kinashy8863 10 місяців тому +2

    Ok, I'll try

  • @nowirehangers2815
    @nowirehangers2815 10 місяців тому +2

    Albino

  • @brianbauer7560
    @brianbauer7560 10 місяців тому +1

    Mighty white of you

  • @ava_daza
    @ava_daza 10 місяців тому +2

    womp womp

  • @Salandrews
    @Salandrews 10 місяців тому +4

    What :") is not such a big deal...

    • @chiqers
      @chiqers 10 місяців тому +2

      someone in the future will call you something nasty and it'll hurt your feelings, then you'll think about what you said here

    • @Salandrews
      @Salandrews 10 місяців тому +2

      @@chiqers what I said is not such a big deal either hahaha

  • @yetherapperreacts
    @yetherapperreacts 10 місяців тому +1

    Lmao No.

  • @Balsley1105
    @Balsley1105 10 місяців тому +2

    Who is this albino dude??????

  • @slutty_raccoon69
    @slutty_raccoon69 10 місяців тому +9

    I have autism.
    I am autistic?
    Its a label either way and idgaf if someone says im autistic 😒

    • @digitaldritten
      @digitaldritten 10 місяців тому +4

      that is different. autism is something that describes how the mind works, and therefore how the person works. i am autistic. albinism is just a visual difference, like having green eyes, it doesn't affect the mind in any way.

    • @slutty_raccoon69
      @slutty_raccoon69 10 місяців тому +4

      @@digitaldritten autism is about the mind
      Albinism is about the body
      If someone's like "he's albino" or "he's autistic" to me or whatever I do not care
      It's like saying "don't say I'm disabled that's rude! I have a disability is the right way to say it"
      Like if u get threatened by that u need to get a life no offense but this is just sad 💀

    • @jaydeatts
      @jaydeatts 10 місяців тому

      ​@@digitaldritten I am brown haired

    • @egghaverr
      @egghaverr 10 місяців тому

      @@jaydeattscool

    • @Balsley1105
      @Balsley1105 9 місяців тому

      @@digitaldritten nothing is different here. OP is just a self absorbed freak that expects everyone to play by their own personal rules which isn’t going to happen. Get over yourself OP

  • @veggiechip
    @veggiechip 10 місяців тому +2

    Albino :)

  • @person80
    @person80 10 місяців тому +9

    Omg whatever