MY POTS STORY: Real Talk About Chronic Illness
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- Опубліковано 30 жов 2020
- Happy Dysautonomia awareness month! And happy Halloween as well :)
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#chronicillness #pots #dysautonomia #brittinlane #vlog
I am glad other people with POTS share their stories because then I feel no longer alone. I was diagnosed with POTS a year and a half ago and it has caused me a lot of pain, embarrassment, sadness, and blocked many of my goals for my high school career. Thank you for sharing your story.
Yeah it's definitely discouraging I was diagnosed 2 years ago and feel awful having pots but when people share their stories I feel alot less alone and hopeful
@@snowschnee7121 I was also diagnosed about a year and a half ago your not alone
@@tanyanoszek7172 hope your doing ok 💗
I was just diagnosed with POTS. For the longest time I’ve had crazy amounts of anxiety, and so when I would talk about my symptoms to people they would just tell me it’s my hearts reaction to my anxiety. Now my dizziness and lightheadedness and heart palpitations make sense. I went through a heart monitor and they told me they saw nothing wrong, so I just thought for a while that what I was feeling was normal. But I was relived to know that I was not crazy. I’m still scared though because of everything I know I’ll have to work through. It’s good to know I’m not alone ❤️❤️
Hi! Look into limbic system retraining programmes. There are thousands of recovery testimonies on UA-cam, Facebook groups about neural retraining, also the UA-cam channels of Raelan Agle and The Chronic Comeback. Oh and the websites of ANS Rewire, Gupta program, DNRS, CFS School, Wellness Code Academy... There is hope! :)
How are u now 1 year later?
@@carmella88 hi!! So since then I was actually diagnosed with a chronic mycotoxin infection and chronic Lyme disease.. so all my symptoms are treatable and I’ve been treating them for a few months now. I still have ups and downs and days where I’m not doing good at all, but I am happy that I was able to find more answers! ❤️
I have POTS too and I have to remind myself the same thing
Hi! Look into limbic system retraining programmes. There are thousands of recovery testimonies on UA-cam, Facebook groups about neural retraining, also the UA-cam channels of Raelan Agle and The Chronic Comeback. Oh and the websites of ANS Rewire, Gupta program, DNRS, CFS School, Wellness Code Academy... There is hope! :)
This made me cry. I was just diagnosed. A part of me is really afraid of the unknown. I have had almost every one of those symptoms on the list, except for maybe 4 or 5 things. I am scared but also shocked at how a lot of things in my life now make complete sense. I was often treated for dehydration a lot in my teen year, and felt great for a few days after fluids but then I felt bad again shortly after.
how do you manage you POTS?
Hi! Look into limbic system retraining programmes. There are thousands of recovery testimonies on UA-cam, Facebook groups about neural retraining, also the UA-cam channels of Raelan Agle and The Chronic Comeback. Oh and the websites of ANS Rewire, Gupta program, DNRS, CFS School, Wellness Code Academy... There is hope! :)
@@Pauline_mrt you had pots and those Neuroplasticity helped you?
I've had almost all of the main symptoms, and seen my doctor regularly, but she's never even brought up the subject of POTS. I'm literally gonna start crying because I have these "quirks" that I deal with everyday and I never knew why and this just really feels like it's the answer I've been looking for for YEARS. I've had dizzy spells since I was about 10, and I'm almost 20! And I just keep getting more and more symptoms so maybe this is what it's been all along. Of course maybe not, but this just gives me hope.
To anyone with any type of dysautonomia, you do not have to live with it forever. Please look into the medical medium information. The true root cause of it and how to exactly heal fully. Thousands of people have healed this and many other things. There is hope, there is freedom.
I decided to look for other people's stories.... You are describing the same things I've experienced since I was 14. After getting mono, I was playing basketball, doing a summer program as a student at my local hospital, and a few other activities. I'm not the most social, but it's hard when you can't just do what you want. I'm currently going through what I think is a flare up, where I don't know if I can eat, do things normally, or even go to work. The IBS problems suck because I just want to eat normally. The nausea sometimes gets so bad that it's scary.
The big thing, I think, is figuring out the symptoms, work with the doctors, and listen to what your body is telling you.
Thank you for sharing your story. It makes me feel a little less crazy.
Hi! Look into limbic system retraining programmes. There are thousands of recovery testimonies on UA-cam, Facebook groups about neural retraining, also the UA-cam channels of Raelan Agle and The Chronic Comeback. Oh and the websites of ANS Rewire, Gupta program, DNRS, CFS School, Wellness Code Academy... There is hope! :)
I wish you alll the strength in this world. I really love your videos!
Your smile in infectious. Thank you. I wish you all the strength you need and a wealth of new and wonderful opportunities for the future.
You have grown from an talented girl to an inspiring woman. Glad I get to be in the digital ride to witness it. Thanks for sharing yourself
I had 4 months of complete bed rest and questioning everything to finally get some answers and have somewhere online where others understand! It’s hard to hear you have a chronic illness but it’s worse to hear it’s all in your head!
Thank you for sharing your POTS story & your beautiful voice😊 I have just recently been diagnosed with POTS, I’m only at the beginning of starting treatments, but have been suffering with symptoms for years with mis diagnosis.. just watching you speak about your journey thus far, has given me more hope in being able to cope & manage my symptoms.. wishing you the very best with your health & career😊🇨🇦
Thank you for this.
I was feeling very sorry for myself and alone. Seeing this helps
Hi Brittin. Thank you for the informative vid and sharing your story. You have a lot of inner strength, and a beautiful heart. All of the best of all to you. 🙏
Thank you for sharing your story! I do not share your diagnoses, but do have autoimmune diseases and other chronic conditions. It took a very long time time for me to talk about any of my health on social media. I kept it between my family and close friends for years. So I can absolutely relate to you in that regard. But please keep sharing! What gave me strength was knowing there were others who had similar experiences and there were SUPERSTARS who not only shared with me, but wanted to be my friend and support me. So keep being you. You are making a difference. ❤️
Thank you for this, you’re beautiful and this video brings me comfort.
i have been suffering from herpes for 6 years now, am so happy that i meet DR Rorpopor herbal on you-tube who cured me totally
I knew you had the traumatic head injury but I had no idea you'd been having to live with this too. Stay strong and keep making wonderful music.
Thank you so much for this video!
Thank you for sharing and thank you for sharing your single as well, it's lovely. I'm glad you're doing better recently, at least in your management and emotionally!
I've spotted a creep.
@@masoudhashemi5792 "single" as in song not relationship status...but thanks for the accusation.
Pernicious anemia, hypothyroidism, migraines, joint pain, and general grumpiness - I play everyday - everyday - no matter how bad my joints hurt, I strum my guitar at least once per day, and bang out songs on my keyboard everyday. Funny thing - even if I have a horrible headache, and my joints hurt so badly, once I start playing, it's better - somehow. Try this...stand on your head, with your feet in the air, and begin to spin. Once to feel you are floating in the air, you may feel that your troubles begin to fade away, then you ask yourself, "Where is my mind...where is my mind." Now, be brave, and conquer the World.
i have anemia too
Thanks for bringing awareness. I do believe I have pots and I'm finally going to a cardiologist for the tilt test. Fingers crossed. I have chronic illness and pain. I've been struggling like a lot and taking care of my pots could change my life for the better.
I am sorry for what you are going through Brittin. God bless you and God bless everyone. I challenge everyone to look for causes of POTS, there are causes of everything, regardless of what they tell us. Adrenal Fatigue can cause Pots, Adrenaline dominance can cause Pots, Mycotoxin illness which is (Mold exposure) can cause Pots as well as many other causes. Please look into it, do not just accept their diagnosis as a label, a curse, a death sentence. God bless you all and I love you all.
I was just diagnosed with POTS and NCS recently but I also have hypoglycemia, chronic migraines, and chronic fatigue syndrome. Anyways I’m obviously very new to POTS and this really helped. Thanks 🥰
Stay strong!
I have POTS too and I can relate to what you are saying💞
I’ve been listening to a lot of people’s stories and I’m quite sure this is something I’ve been dealing with for a long time. The first time I fainted, I was rushed to the hospital. I took a heart test and got the result back that my standing heart rate was not regular. I then took a similar test a few years later as I continued to struggle with fainting. Those doctors again figured out my standing heart rate was abnormal. Yet both these doctors refused to mention to me that I might have pots. I’m so angry that they knew that this was abnormal, but didn’t try to figure out the cause. Now I’m trying to get my diagnosis but my current doctor just claims that I’m depressed or my heart is working too hard from lack of exercise. These doctors literally let me suffer when they knew they could help me. But I’m not going to give up this battle.
You are awesome!
It certainly doesn't effect beauty, thank you for sharing 💌
I add this comment under many POTS videos' as I found few things that worked for me and reversed(not cured yet) the progress of my POTS , so I hope they can do it for you too..
I am a guy with POTS, a rare bird I know and it took a while to get diagnosed, but once I was the most help I was given was a handful of medication. Before my diagnose I was, as most of you, mistaken for having anxiety. A busy doctor prescribed me Xanax and let me go. That thing works, but it comes at a HUGE price so I took it twice and did not anymore. Since the other pills did help some, but not enough, I went on and did a internet research on substances like Xanax, benzos in general, and why the positive effect on POTS. It turns out the answer is simple - neurotransmitters. We lack some, our immune system is causing problems with some attacking specific receptors like ACH2 one. Knowing this then I went and did a research on what non addictive, no side effect substance can do similar thing as the benzos as they were not an option and for my surprise found one. Found a German study on special Lavender extract, did try it and it did miracles for me! In US it is sold as CalmAid lavender. I take one in the morning and sometimes one before bed. Recently I am not taking it on regular basis anymore as I don't need it much. No side effects, no withdrawal symptoms, only lavender burps. Usually taking it on empty stomach, Gave me my life back and allowed me to start exercising. On exercising - very important for POTS, and almost impossible for us! But there is a work around for that too - start swimming! When in water you don't get the orthostatic effects from gravity. Actually standing in upright in water will increase the blood volume your hearth can work with and will make exercising easy. Exercising will on its turn increase you blood volume and hearth strength, that will make standing easy. It does not happen overnight, but in few weeks you will feel the benefits.
I hope all of you find this helpful.
Nice video, best to you and your journey.
Thank you for sharing :)
I'm glad you posted this, it's really informative to folks (like myself) who want to learn more about dysautonomia and other chronic illnesses. and I'm glad to hear you are doing better with it than before :)
and also, that's awesome you were Iron WoMan at a Christmas party xD
@BrittanLane thank you so much for sharing your story & this video. Is it possible to post a link to the list of symptoms you showed on the screen. I have mutiple diagnoses some of which symptoms are on your list. Several autoimmune. This is my second time of bedbound giving me zero quality of life. I just want my life back. Thanks in advance if you can post the list you showed. Be well, be blessed.
After picking up, Glandular Fever aka Epstein Barr virus in 1982 I never recovered. Since then I’ve gradually been diagnosed with ME/CFS, Fibromyalgia Myalgia, Pots, Sjogrens Syndrome, Reynauds, etc. After fainting in the garden in 2018 breaking bones, cracking some ribs and spraining wrist and ankle I’m now using a wheelchair. I can’t walk stand, bend my knee and I have foot drop. I’m now diagnosed with nerve damage and Complex Regional Pain Syndrome. While trying to prune a Hydrangea in May this year I’ve now got a herniated disc bulge which I can honestly say is absolute agony. Everyday is a challenge but I can still laugh with my two daughters. 😊
Yes! That virus is exactly the root cause. Please look into the medical medium there is hope to heal and a way out.
I have it. Sound sensitivity and light sensitivity with tension headache and constant adrenalin rush with constant tension is the worst. Can’t relax at all.
I NEED A DISGNOSIS SO BAD IM SO TIRED OF FEELING LIKE IM GONNA FAINT AND MY HEART SCREAMING AT ME WHEN I STAND UP ISTG, I’ve been referred to a cardiologist so I think I’ll get a diagnosis soon but they are supposed to call us and we’ve been waiting over a month. My symptoms are;
- food allergies (lactose intolerant, milk, egg whites, soy, peanuts)
- near fainting/fainting
- shakiness/weakness
- dizziness
- lightheaded
- symptoms worsen after meals
- blood pooling
- heat intolerance
- bladder dysfunction (i pee way more than normal)
- tachycardia/palpitations
- general anxiety
- tiredness for no reason
I’m the classic age category as well and all I want is a diagnosis so I can start working on a plan to maybe make life quality better. I’m so tired of this.
A diagnosis won’t heal you, you don’t need one. Look into the medical medium regarding your symptoms.
I have dysautonomia and have POTS but so little apparently that my doctors said that I wasn't bad enough to be diagnosed. I was diagnosed by accident because I have had awful swelling episodes 2 big ones and just keep swelling and was just kinda not told answers about it so I am back searching wish me luck!
Happy Halloween. I love when you share more of your story. I see a beautiful story unfolding in God's perfect plan.
I have POTS as well. Please give us updates on your treatments
When you got treatment did it help the anxiety settle down?
❤
Thank you for sharing your story. You have such a wonderful, positive attitude! My son and I also have POTS and NMH, as a part of ME/CFS. I was surprised your doctor told you to quit your job. Did he offer you any treatments? POTS and Orthostatic Hypotension (sounds like you have both - OH is where the BP drops while upright) are VERY treatable, with LOTS of different options to try, and treating often brings dramatic improvements, allowing you to live an active life again. That's how it's been for my son and I and lots of other people I know (I run several support groups). Even with ME/CFS (an immune disorder that causes lots of other problems besides dysautonomia), treating POTS and NMH has greatly improved our symptoms, ability to be active, and our quality of life! Here's an article I wrote that you can share with your doctor (it includes scientific references at the bottom) - this covers some of the basic treatments, but there are many more to try, as well, including newer treatments like mestinon and ivabradine (not mentioned in the article, but if the basic treatments don't work for you, talk to your doctor). Hope this helps - thanks for sharing your story and helping to spread the word about dysautonomia! www.prohealth.com/me-cfs/library/orthostatic-intolerance-part-2-treating-oi-82949
this next school year (2021-2022) will be my first school year in person with pots does anyone have any suggestions and ideas to help me mines not super bad but still a lot i faint and get dizzy just from sitting up from laying and sometimes even from rolling over in bed anyways anything would help if you have suggestions. thanks xo 😊
just take things at your own pace, if you need accomodations like leaving lessons 5 minutes early to stand up slowly and make it to your next lesson in your own time then get them! just do what works for you no matter if its not socially normal eg if you have to lie down and put your feet up to get blood flow back to your brain then do it and dont care what other people think. i hope youre doing alright and you will have a great school year!
@@bethanymonday3726 thank you for this it will help a lot and i’m doing ok right now. i hope you are well 😁
Do you have blood pooling it's awful I can hardly walk anywhere
how would your health decline by leaving your job?
Hi, uhm I have started having these issues over the past couple months and I think I could be developing POTS? I don’t know what to do and everyone in my family thinks i’m a hypochondriac so i don’t want to talk to them about it. If you, or anyone, has tips, i would love them. I haven’t experienced any fainting, but i’ve been plenty close to it multiple times a day.
Definitely talk to a doctor 🌻 🤔 try to increase salt and fluid intake. If you feel a dizzy or close to fainting spell sit down and wait for it to pass. If heat affects you grab ice packs. Putting your feet up after standing or walking for a while. See if you can get a pocket sized monitor like a wrist or finger one and keep a diary of the SYS,DIA, Pulse, & how you feel or what happened whenever you have a symptom. Even look into seeing if any issues you may have can be linked to POTS. I found out my anemia, IBS & even parts of my SPD were actually from my POTS. 🌻 Stay strong 🫂
Hope I could help, in any way.
I’m researching this syndrome as I have many of the symptoms. My cardiologist does not do the tilt table test. How else can I seek a diagnosis?
I was diagnosed both by a cardiologist as well as a neuro-physiotherapist, I would start there!
My regular doctor and my neurologist said I have POTS but my cardiologist doesn't even believe in POTS 🥲
Did you have covid at all? A lot of people with 'long covid' have had and are having those symptoms and some have been diagnosed with pots (as a long term side effect of covid) 😕
I got covid in march and am experiencing all these symptoms for a year now. I'm getting a tilt test this week hopefully I will find some answers
👀 I was born with POTS so I'm doing whatever I can to avoid getting covid cuz it'll probably get worse.
I had a concussion last October. I had severe anxiety, I've had GI issues, TMJD from clenching, light sensitivity, etc. However a few weeks ago, I got tinnitus and it's been getting increasingly worse. Yesterday I went for a walk and thought I was gonna pass out, but don't know if from deconditioning, previous migraine, or severe tension in my head and neck. I noticed that several times my hr does go up more than 30 bpm when standing up. I went to the ER today and they did bloodwork, ct of head and neck, urine, and ekg. All normal. Is this why I'm feeling this way? My doctor said he wasn't worried about cardiac stuff and that it could be anxiety or bloating, etc. My physio thinks it's deconditioning. What's going on?
How are you feeling ? Also, I heard that electrolytes, salt pills, plenty of water and exercise helps. What do you think?
So you don't measure self worth by using daily accomplishments and progress in work.
What do you use? Just how you physically feel? I'm not judging, just curious.
I measure it based on what I’m able to contribute to the people around me (art, music, friendship, encouragement, etc.) as well as believing that my identity is found in my relationship with God. If I based it on those other things you mentioned, that would be incredibly difficult and unstable for me personally so I’ve found a lot of purpose in my life despite not being able to work :)
@@BrittinLaneMusic Well, I am sure you bring a lot of joy through music and occasional vlogging here :). You might not see the results except for some comments and some likes, but we appreciate your work.
Do u get chest pain
I do. Very bad.
I miss the old me.. If that makes any sense?
I miss the old me too. I should have treated her better. Ugh
@@kissepurr All the best to you
You may want to look into Dr. Joe Dispenza's meditations and teachings on youtube.
Do u have pots and Dr despnza helped your symptoms?
Why did you say PoTs & dysautonomia.
PoTs is a form of dysautonomia
It's a form of Dysautonomia but there are also other conditions and symptoms that fall under Dysautonomia that I live with outside of POTS.
Hi! Look into limbic system retraining programmes (neuroplasticity exercises). There are thousands of recovery testimonies on UA-cam, Facebook groups about neural retraining, also the UA-cam channels of Raelan Agle and The Chronic Comeback. Oh and the websites of ANS Rewire, Gupta program, DNRS, CFS School, Wellness Code Academy... There is hope! :)
Are you sure its not your meds thats giving your the symptoms?
Positive! The only meds I take are natural supplements/vitamins, but even before I was taking those (or anything) I was still very symptomatic unfortunately.
@@BrittinLaneMusic oh, i am sorry to hear that. Maybe then try adjusting your diet, and see if that helps your symptoms.
I have POTS. It's *_NOT_* a matter of diet or meds.
@@dabear2438 have you tried the carnivore diet?