Catching up & Catching breath | Cystic Fibrosis Vlog
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- Опубліковано 8 лют 2025
- It’s been two months! Something I was trying so hard not to let happen and even vlogging on my bad days but it all got a little too much especially when there seemed to be no end to it and everything felt so negative. I was to post the ups and downs but it just kept going down! I didn’t do my usual vlogging in hospital as I was so tired and stressed out with talking about how bad things felt and just needed to stop talking about it for a while. But just enough to let people know I was safe and okay.
Cystic fibrosis is unpredictable and with the gastrointestinal issues on top it’s become the most exhausting time for me and I can see how quickly things are changing and that’s scary for me, I feel like I would have a much better chance if I hadn’t contracted TB and if I didn’t develop Gastroparesis, it’s gutting in all honesty!
But I will continue to try post and hopefully do some day in the life while I’m a little more stable and not completely bed bound. Thank you for taking the time to watch I appreciate it a lot! Jet xx
Keep plodding on like the amazing young lady you are Jet 💚 you're awesome never forget that x
Oh my love - I am so glad you are home. So sorry you are still loosing weight and the IV antibiotics have not helped. Sending you lots of hugs, stay strong. We will appreciate any updates you can manage but don’t push yourselves, we will still be here supporting you. ❤ Jackie
Thank you Jackie. It’s exhausting not having many positives to find but I will always try to find them, I’ve managed to get out side the last couple of days to run errands and that’ll do for now and I’ll hopefully build up to more. It’s good to be home ❤️
Thanks so much for the update! Been wondering how you were doing and continuing to pray for you and your family. Hope things improve soon. Also, your hair looks amazing! 🩶💜🤩
Thank you Melissa! I just didn’t have it in me to physically make the videos and emotionally, sometimes only having something negative to say gets tiring, I thrive on good things happening so it just wasn’t a good time. But I aim to find some good in each day and hopefully I’ll start to put some more vlogs out there ❤️
Your hair looks totally fabulous x I love the colour ❤️ Looks like Haggis missed you too x😊 great to see you love you very much Jet ❤
Hey girlfriend! Good to see you 🥰
Thank you so much! ☺️
Keep on keeping on bestie, living the hair 😍, haggis!!!! He’s missed you bet he went nuts when you got home 😂 xx
By Hook or By Crook I'll be 1st in this Book😁🙋♀️Ciao from Italy Sweetheart PS LOVE that hair
I always find a way, I will accomplish and I will beat odds… by hook or by crook! Thank you ❤️
Hello my name is Alan keeney I have cystic forbrisis been born with it since I was 3 weeks old I. Am coming up to 44 years old I am doing well but I haven't been well buy losing a lot of weight I. Hope you get well soon take care x look after yourself
I wish I had your condition instead.
Gonna go against the grain of the comments and say I don't approve of the new hair as I'd gotten way to used to the two-tone. Unsubscribed!
Also Hi Haggis!