The Story Behind Cognitive Impairment and Lupus Brain Fog Webinar

Dr. Zahi Touma, MD, PhD, is an Associate Professor of Medicine, Clinician-Scientist with the University of Toronto and Scientist with the Krembil Research Institute and Schroeder Arthritis Institute. He is Staff Rheumatologist with the University Health Network/Mount Sinai Hospital, and adjunct scientist with the Institute for Work and Health.
His research is focused on patients with systemic lupus erythematosus (SLE) and measurement science with a particular interest in the assessment of disease activity, patient reported outcomes and cognitive function. One of his most significant contributions has been the development of the SLE disease activity indices - the SLEDAI Responder Index-50 (S2K RI-50) and SLEDAI-2K Glucocorticoids Index (SGI).
Dr. Touma is going to have his post-doctoral fellow Dr. Michelle Barraclough co-present with him.
This was held on Tuesday, September 21, 2021.

[@janetjung3270]

Thank you so much for providing this information. It is reassuring to learn about current research and to understand, to the extent we’re able at this point, what is happening to our bodies that cause certain symptoms/behaviour to occur.

[@Kolana42]

So happy to find your channel. This year (2023) being so hot and UV extreme - I've really struggled with holding down flares and in particular the cognition impairment which drives me crazy. Its so frustrating.. Blessings to all.

[@lupus_ontario]

Thank you! You can also visit Lupusontario.org for more information on upcoming webinars, events and support groups!

[@M.Shepardbee]

Air pressure coincides with my cognitive functioning.
Bad days and good days are easily predictable .
Low pressure- worse (99.8)
Rising pressure - relief
High pressure- good quick thinking. (101.2 - 102.1)
So if you have some clients coming from higher pressure areas to you guys at lower pressure and they are like me... You will see repeatedly poor results.
If you have that same patient travel there and wait. Then. Put them in an MRI machine. The slight I crease in the MRI machine as it's colder and there is more pressure in general could show improvment.
Now I'm trying to figure out what's going on with my brain, I am pissing for a lupus assesment but as it stands I do have cognitive issues.

[@M.Shepardbee]

Or the other way around. It's like 102.3 and I can barely keep myself going right now. Lol.. I though 102.1 was the ideal. But apparently my neck is stiff and my head is heavy. Doesn't seem ideal.

[@tracysmith245]

mine is bad when the weather changes though im more me in the evenings I just work evenings i am shattered most the days maybe have a good day and go out then i am feeling bad again im just cutanious sun lights

[@tracysmith245]

im the same hate the weather i was in bed the other day so glad august in near the end back to wrapping up warm not fair everyone enjoying the holidays not me

[@tracysmith245]

thank you good work

[@Bichonfrise369]

I have lupus and I no Dr. 😭😭😭

[@deviniaMacasadia]

Thank you so much,i need this information a lot,i hope you helping like me suffering in lupus like financial assistance to buy my medicine,,thank you ❤❤❤

[@cassthompson6168]

It's very hard to deal with lupus, we go through a lot of different symptoms we don't know what to do, some of the medication don't work, and then when you take the medication the nasty side-effects that comes with it,, who want to feel this way... then we become so l depressed.. we need better help. My head feel like a burning tingling sensation , can anyone relate plz..

[@lupus_ontario]

It can be quite a difficult journey, both physically and mentally. Joining a lupus support group may help, it may help to talk to others who are going through lupus. You can visit lupusontario.org/support to register for any of the free online support groups.

[@veganwinter2090]

I just stay on a healthy vegan diet and avoid as much man-made pharmaceuticals as I can . I want the healthiest diet possible . I got through covid with no vaccination as none were available . I enjoy chai. And 😎 .I notice a lot less arthritis... ❤

[@Hismrs-ub1xe]

​@@lupus_ontariohow long do brain fog last if it's ur first time feeling like that

[@lupus_ontario]

@@Hismrs-ub1xe Only a doctor can provide medical advice, and each person's experience with brain fog is quite unique. It may help to join one of our support groups and discuss this with others with lupus. You can register for the free online support group at lupusontario.org/support/

[@ashrafahmed8269]

S l e is too dangerous

[@lp9194]

Dangerous OMG how? I'm 61 1/2 no living family, newly dx 3 days ago. Haven't been able to work for 2 years I'm covered in Bloody sores numb and feel CRAZY. IN BEHAVIOR therapy already bc i feel like I'm going Nuts. Everybody stays far away from me. I hurt so bad I can only lift my arms for a few mins, can barely use my hands anymore, drop everything I cant sleep for numbness and I feel my mind slipping away I can't remember things from 2 mins ago. IM USELESS I literally am convinced I'll go mad before I get help from SSI Im About to be EVICTED THUS MO bc NO ONE BELIEVES ME. ANY SUGGESTIONS? I CANNOT BE HOMELESS with these wounds. Lately I feel lonely terrified disrespected and discarded. I have been a Nurse for 40 years NOT IN THIS FEILD THO and I'm getting worse not better. I hate to say it, but I have to. If after all ive done over 40 years, ive won 6 awards for going beyond the miles to help save peoples health, livelihood , their lives. Now here I am 6:50 Savings for retirement ALL GONE. IVE 30$ TO MY NAME. I'm truely afraid I won't be able to stay living anymore if I'm in the street. My whole life of caring so deeply for the lives of the ill.... was for nothing. Thanks for listening ( took me 34 mins to type this note) I'm on my knees begging Jesus to make SSI GIVE me MY MONEY JUSTA little esrly save me my dog and my home. Im DESPERATE I need Help please