As a newly diagnosed Parkinson’s patient your podcast has given me hope and courage to fight or advocate for my needs. It’s been almost 2 months since I was diagnosed. I’m excited to enroll in a local Tock Solid Boxing group and tomorrow we call University of Utah Neurological Clinic to schedule an appointment with a MDS. Thank you!! You have helped us get through the scary moments of dyskinesia and depression. ❤
Congratulations on your 100th episode! It's fun going back and seeing what your team has done. Keep up the good work. As a caregiver I get valuable insights in understanding PD.
WAHOOOOOOOO !!!! I truly enjoy watching/learning through these episodes. I am Steves sis and our parents fave child......remembering when he first told our mom and us I immediately starting research and learning. So impressed with the workout classes and how they help physically and mentally. Our family has tried to pass the videos to those that might gain benefit from them. Thanx lots to you all...Steve too...oh the stories I could share!!! CONGRATS ON 100 AND MANY MORE.......Vicky
Congratulations all! Love your podcast! You are all real & down to earth and present that way. 👍👏. I’ll look for you in Arizona! I agree with Brian. You make it more about the condition (I struggle with using disease) of Parkinson’s yet I feel you are friends. I’m 14 years in on the PD journey. Keep up the great work! 🥰
Your show has been a tremendous help to me over the past couple of years. Early on it helped validate what I was going through. Thank you so much! Look forward to the next 100!! Congratulations to you all!!!
Congratulations! My favorite episode is still the gentleman about the job advice as I’m facing that issue right this moment. It’s proving to be extraordinarily helpful. Looking for a job right now!
I discovered your channel recently and I love to watch you guys. Lot of good information and is good to see people with PD talking about their routine. I don’t know nobody who has PD. I was diagnosed with PD 10 years ago and for almost 8 years I hidden my symptoms. I’m Brazilian and I have been living here ( Massachusetts/ Martha’s Vineyard) for 17 years. I don’t speak English very well but I understand everything when I’m watching the podcast. My symptoms stared getting worse and I m preparing do have DBS surgery. The DbS was scheduled for July/ 2023 but I cancelled because I was worried about. I have learned so much with you guys 🙏🏻❤
We have a kit if you want to order one (it's free through the donations we receive via our non-profit). check out: 5kforjk.app.neoncrm.com/forms/createaccount It is just a way for our PD community to share with other PD patients things we wish we knew. Sign up and we'll ship one out. I hope it helps you feel less alone and more informed!
Every person living with PD experiences different symptoms at different times. But check out all our videos @thesecretlifeofparkinsons. There are also other places like The Michael J. Fox Foundation, Parkinson's Foundation, Davis Finney Foundation, and the Brian Grant Foundation.
I just now discovered your channel. I have PD and was doing my usual research. Congratulations on your 100th episode and thanks for what you do. If possible I'd like to share some new experiences I've had and it's a bit lengthy so just tried to message Jessica and Brian but is there a best practice to communicate with you?
My sister has just been diagnosed. They think she has had it for two years. She is 79. She has a mild case, they told her but she has symptoms that she is very concerned about. She does have tremors in her hands, face, and sometimes in her legs and feet. Her voice seems to go on occasion. Her writing is declining. Her gait is improving with rigorous exercise; walking, a stationary bike, Parkinson's brain exercises, and speech therapy online. She has some questions about the drugs they want her to take (she doesn't want to). Can a person take meds for a few days to see if it works to clear some symptoms, and then stop the meds? She wants to see if it has an effect at all to take the drugs and if so, which drugs are most recommended? Also, which of you are on Sinemet? How often per day and for how many years have you taken it? Is it working? Also, Have any of you experienced a kind of brain fog? My sister says it is constantly in her brain and she wants it to go away, feels like cobwebs. It creates confusion and imbalance.
Yes, I am on Sinemet. That is the gold standard medication that most people take. I've been taking it for 3 years and yes it is extremely helpful to me! They usually start people off by taking 1/2 pill 3 times a day until you can work your way up to a full pill 3 times a day (if you go all in right away chances of nausea as a side effect would occur). But you won't notice an immediate change. At least I didn't. Mine was probably 4-6 weeks. But it was one of those things that I kind of stopped thinking about my symptoms only to realize I stopped thinking as much about them because I wasn't experiencing them due to the meds kicking in. I used to have brain fog as well, but reducing stress, exercising and medication seemed to help alleviate that. The doctor would probably want her to be on it for at least 6 months I would guess before making a decision to come off of it. But as it was in my case, once I started it, I didn't want to come off because of the benefit I was experiencing. Hope this helps.
Hello thank you for your informative service.I am looking for help to find a lawyer to help with filing for SSDI, I was wondering if you have any recommendations through your none profit or through people you may know. Thanks for your help
Hi JK loved your podcasts. You seem like a really sweet lady. What do you think of stem cells. Also ketogenic and intermittant fasting. This is supposed to keep symptoms at bay?
I'm not sure about that, but I know Larry Gifford interviewed Dr. Mischley on the topic of diet for Parkinson's: globalnews.ca/news/5225442/the-best-diet-for-people-with-parkinsons/#:~:text=Based%20on%20her%20research%2C%20Mischley,closely%20resembles%20the%20Mediterranean%20diet.
As a newly diagnosed Parkinson’s patient your podcast has given me hope and courage to fight or advocate for my needs. It’s been almost 2 months since I was diagnosed. I’m excited to enroll in a local Tock Solid Boxing group and tomorrow we call University of Utah Neurological Clinic to schedule an appointment with a MDS. Thank you!! You have helped us get through the scary moments of dyskinesia and depression. ❤
I liked the episode with Jessica's son.😊 your podcasts have helped me understand more about PD. Thank you so much.
Congratulations on your 100th episode! It's fun going back and seeing what your team has done. Keep up the good work. As a caregiver I get valuable insights in understanding PD.
🎉 love your program from South Africa
Congratulations, I wish I had found you earlier than I did. Great job and God bless you all🎉
WAHOOOOOOOO !!!! I truly enjoy watching/learning through these episodes. I am Steves sis and our parents fave child......remembering when he first told our mom and us I immediately starting research and learning. So impressed with the workout classes and how they help physically and mentally. Our family has tried to pass the videos to those that might gain benefit from them. Thanx lots to you all...Steve too...oh the stories I could share!!! CONGRATS ON 100 AND MANY MORE.......Vicky
Congratulations guys !!! Even when my diagnosis is MSA-C I am your biggest fan … hugs from Spain
Congratulations all! Love your podcast! You are all real & down to earth and present that way. 👍👏. I’ll look for you in Arizona! I agree with Brian. You make it more about the condition (I struggle with using disease) of Parkinson’s yet I feel you are friends. I’m 14 years in on the PD journey. Keep up the great work! 🥰
Your show has been a tremendous help to me over the past couple of years. Early on it helped validate what I was going through. Thank you so much! Look forward to the next 100!! Congratulations to you all!!!
Loved Steve holding his grandchild ❤ heartwarming ❤️
I love every video with Melissa ... and encourage everybody to do all the excercise you can ... and a little bit more ...
Congratulations! My favorite episode is still the gentleman about the job advice as I’m facing that issue right this moment. It’s proving to be extraordinarily helpful. Looking for a job right now!
Congrats, I love your podcast….i’m in Manitoba Canada near Winnipeg
Congratulations
Congratulations on your 100th episode! You are doing a fantastic job showing all of us with PD what we can expect and do for it
Thank you so much!
congratulations on reaching 100 podcasts,I am a caregiver to my husband who is now81 and is still active.I find these podcasts very educational.
Thank you!
Ive watched every episode. We call it the Jessica and Brian show. Congrats on 100
Thank you!
Congratulations on your 100th! 🎉
Thanks!
I discovered your channel recently and I love to watch you guys. Lot of good information and is good to see people with PD talking about their routine. I don’t know nobody who has PD. I was diagnosed with PD 10 years ago and for almost 8 years I hidden my symptoms.
I’m Brazilian and I have been living here ( Massachusetts/ Martha’s Vineyard) for 17 years. I don’t speak English very well but I understand everything when I’m watching the podcast. My symptoms stared getting worse and I m preparing do have DBS surgery. The DbS was scheduled for July/ 2023 but I cancelled because I was worried about.
I have learned so much with you guys 🙏🏻❤
I can only imagine how scary DBS would be. I'm glad you found our channel. Good luck to you!
Yayah! 🎉😊 Thank you for all your hard work! 🙏
Thank you!
Congratulations. You guys are great. Entertaining and informative.
Thanks!
Congratulations🎉
Thank you!!! Invaluable videos x diagnosed 2weeks ago and I’ve had no info from anyone else yet other than you.
Stay strong sweetie. You got this ❤
We have a kit if you want to order one (it's free through the donations we receive via our non-profit). check out: 5kforjk.app.neoncrm.com/forms/createaccount
It is just a way for our PD community to share with other PD patients things we wish we knew. Sign up and we'll ship one out. I hope it helps you feel less alone and more informed!
@@thesecretlifeofparkinsons thanks I’ve ordered one many thanks xx
Congrats for 100!!!! You all are awesome!
Thanks for watching!
Happy 100th episode xx
Congratulations!
Congrats!
When I found your first episode, I haven’t missed any ! You guys are awesome and I have learned so much!
Awesome! Thank you!
Have you done any episode about the Parkinson gloves develop in the Stanford university?
Also wondering if you’ve done an episode on sleep fragmentation and other sleep issues?
I am still learning about PD as I have a more recent diagnosis. These Talk, really?Help me to understand what's happening and what might happen.
Every person living with PD experiences different symptoms at different times. But check out all our videos @thesecretlifeofparkinsons. There are also other places like The Michael J. Fox Foundation, Parkinson's Foundation, Davis Finney Foundation, and the Brian Grant Foundation.
I just now discovered your channel. I have PD and was doing my usual research. Congratulations on your 100th episode and thanks for what you do. If possible I'd like to share some new experiences I've had and it's a bit lengthy so just
tried to message Jessica and Brian but is there a best practice to communicate with you?
Oh just noticed email address you posted at end so will send something there!
Thanks. Yes email is best. We don't share our personal phone numbers for privacy reasons :). We will check out the email you sent!
Where are you located
Hello my name is Danny Cockrell I’ve had PD 8 years I had DBS in Aug 2019. I would like to talk to you of you guys. Thanks
You can reach us via email at info@thesecretlifeofpd.org
My sister has just been diagnosed. They think she has had it for two years. She is 79. She has a mild case, they told her but she has symptoms that she is very concerned about. She does have tremors in her hands, face, and sometimes in her legs and feet. Her voice seems to go on occasion. Her writing is declining. Her gait is improving with rigorous exercise; walking, a stationary bike, Parkinson's brain exercises, and speech therapy online. She has some questions about the drugs they want her to take (she doesn't want to). Can a person take meds for a few days to see if it works to clear some symptoms, and then stop the meds? She wants to see if it has an effect at all to take the drugs and if so, which drugs are most recommended? Also, which of you are on Sinemet? How often per day and for how many years have you taken it? Is it working? Also, Have any of you experienced a kind of brain fog? My sister says it is constantly in her brain and she wants it to go away, feels like cobwebs. It creates confusion and imbalance.
Yes, I am on Sinemet. That is the gold standard medication that most people take. I've been taking it for 3 years and yes it is extremely helpful to me! They usually start people off by taking 1/2 pill 3 times a day until you can work your way up to a full pill 3 times a day (if you go all in right away chances of nausea as a side effect would occur). But you won't notice an immediate change. At least I didn't. Mine was probably 4-6 weeks. But it was one of those things that I kind of stopped thinking about my symptoms only to realize I stopped thinking as much about them because I wasn't experiencing them due to the meds kicking in. I used to have brain fog as well, but reducing stress, exercising and medication seemed to help alleviate that. The doctor would probably want her to be on it for at least 6 months I would guess before making a decision to come off of it. But as it was in my case, once I started it, I didn't want to come off because of the benefit I was experiencing. Hope this helps.
Are Steve and Melissa related? I see a resemblance between them
Hello thank you for your informative service.I am looking for help to find a lawyer to help with filing for SSDI, I was wondering if you have any recommendations through your none profit or through people you may know. Thanks for your help
I don't but that is something we should look in to.
Hi JK loved your podcasts. You seem like a really sweet lady. What do you think of stem cells. Also ketogenic and intermittant fasting. This is supposed to keep symptoms at bay?
I'm not sure about that, but I know Larry Gifford interviewed Dr. Mischley on the topic of diet for Parkinson's: globalnews.ca/news/5225442/the-best-diet-for-people-with-parkinsons/#:~:text=Based%20on%20her%20research%2C%20Mischley,closely%20resembles%20the%20Mediterranean%20diet.
Congratulations !