#93: Coping with Parkinson's Arm Pain and Masked Face

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  • Опубліковано 22 гру 2024

КОМЕНТАРІ • 34

  • @j6453
    @j6453 3 місяці тому +1

    I love seeing you both look so joyful. Thank you for what you do :)

  • @richardgonick931
    @richardgonick931 14 днів тому +1

    Great video

  • @malcolmhiltz94
    @malcolmhiltz94 10 місяців тому +7

    B: for masked face, my wife taped a big picture of me smiling (the way I USED to smile) on our bathroom mirror so I can try to practice smiling every night. Amazing what PD does to us! I need to keep practicing my facial expressions

  • @eddiestambaugh2646
    @eddiestambaugh2646 10 місяців тому +3

    Great segment. Thanks & hats off for diving into the symptoms. I was diagnosed in Nov 2020. I'm always second guessing. Is the pain real, or just Parkinson's being an ass.
    Keep up the awesome work

  • @kfulcraft
    @kfulcraft 10 місяців тому +2

    Love love you guys… I so appreciate your open conversation it’s extremely helpful. 😊 Thanks

  • @tomrio9914
    @tomrio9914 10 місяців тому +3

    Thanks for cracking me up.

  • @Zerobar78.
    @Zerobar78. 10 місяців тому +2

    Brian getting this episode started properly lol!! Jessica, definitely get massages when you can, even better if you go to a place like Massage Envy which has stretching available, they’ve done wonders for my shoulders!!

  • @richardgonick931
    @richardgonick931 14 днів тому

    I belong to Parkinson’s place a group in Sarasota Florida. Fabulous programs from exercise of various types, lectures etc

  • @jendaley9178
    @jendaley9178 10 місяців тому +2

    Great show, guys!

  • @KarenRosenbaum-i8l
    @KarenRosenbaum-i8l 10 місяців тому

    I love you both ❤. Jessica, I get it !! Hold onto your voice. Laughter is the best medicine. And I blank on names too !! YOPD club

  • @trendy-nf8jd
    @trendy-nf8jd 10 місяців тому

    Enjoyed this podcast had a good laugh ,

  • @masudahmed6029
    @masudahmed6029 8 місяців тому +1

    Its really cute your both like close brother and sister ❤

  • @pault6940
    @pault6940 10 місяців тому +1

    Did you hear the new Abbvie pump was approved in Europe in January? Looks very promising and hopefully will be approved in the US soon. Do you know anyone that has tried it?

  • @lalittl
    @lalittl 10 місяців тому +1

    We Love Brian ❤

  • @moiogando
    @moiogando 10 місяців тому +1

    Brian ... you should blink at will ... use some eye drops but don't forget to blink ... love you guys !!!

  • @jenniferpatterson7058
    @jenniferpatterson7058 10 місяців тому +1

    My consultant is querying PD and when I mention I don’t blink much nothing is noted there?? Am I wrong to tell her this? My face looks worried or mad a lot too my hubby said once my face looked dead 😮that was awful actually but he didn’t mean it nasty I think he was shocked at the time. It was just a split second glance he must have gotten

    • @ziontours5893
      @ziontours5893 10 місяців тому +1

      When I have masked face, it generally lasts the whole day, not just a split second. I call it my zombie look. 0:05

    • @jenniferpatterson7058
      @jenniferpatterson7058 10 місяців тому +1

      @@ziontours5893 yeah I know what you mean. 😢 I only meant the split second on his side not mine. I’m confused about how to speak to my neurologist about this

    • @ziontours5893
      @ziontours5893 10 місяців тому +1

      @jenniferpatterson7058 They say that the one common feature to everyone who suffers from PD is Bradykinesia, i.e., slowness of walk and arm movement, generally noticeable in a change in your writing. I hope you find out that you don't have PD. It turned my life into a nightmare.

    • @jenniferpatterson7058
      @jenniferpatterson7058 7 місяців тому +1

      @@ziontours5893 I received my diagnosis three weeks ago and don’t know how I feel about that. I begin meds in June after I return from a trip to Australia from uk to visit my new granddaughter

    • @jenniferpatterson7058
      @jenniferpatterson7058 7 місяців тому +1

      @@ziontours5893I got the diagnosis a month ago but not starting meds until June as I’m off to Australia for a few weeks to see our new granddaughter. I’ve no idea how I’ll manage the 28 hour journey 😢 and the meds terrify me… but I’m hopeful that it will help

  • @auroramatera7555
    @auroramatera7555 8 місяців тому

    Hello Jessica, My MDS put me on Entacapone 4XDAY which I didn’t tolerate. Now I’m on Rasagiline 1XDay
    Any thoughts on this? I’m fearful on new meds bcb my MDS didn’t explain me before prescribe me Entacapone.
    Any comments from anyone.
    Please share

    • @thesecretlifeofparkinsons
      @thesecretlifeofparkinsons  8 місяців тому

      I don't have any personal experience with those medications.

    • @auroramatera7555
      @auroramatera7555 8 місяців тому

      Ok thanks Jessica
      Which meds are you taking now. Please share with me. I truly appreciate your podcast, continue the good work ❤

  • @TheOriginalKilamanjaro
    @TheOriginalKilamanjaro 8 місяців тому

    My face looks sad or mad alot. I dont realize it. When i do finally actually smile my kids get excited, momma smiled...

  • @snailo9650
    @snailo9650 10 місяців тому

    I love this show - thank you both x

  • @malcolmhiltz94
    @malcolmhiltz94 10 місяців тому

    J: you may want to try a compression sleeve on your arm/elbow.

  • @Ray-vl2kt
    @Ray-vl2kt 10 місяців тому

    What are the chances I will get mask face in the future with this disease?

    • @thesecretlifeofparkinsons
      @thesecretlifeofparkinsons  10 місяців тому

      I think with every symptom, we can't predict what we will get or when it will come.

  • @Isleskye
    @Isleskye 10 місяців тому +1

    Fun and Delightful! How great to have a PD exercise facility. You must live close to a movement disorder in a big city?? Am I right?

    • @Isleskye
      @Isleskye 10 місяців тому

      Whoops and sorry. That comment is out of place! (Sorta like me!) I was writing a comment on your Valentines Day post but it was a short so by time I hit send the video switched. Brian is precious...