Good to hear you made it through such a horrible time. I'm a nurse and I've seen the worst of the worst when it comes to this bacteria. Most I've had as patients didn't make it and if they did they had to lose limbs and areas of what used to be flesh. This bacteria so scary and deadly. It's aggressive and it's hard for doctors to stay ahead of it and hard to diagnose. The late diagnosis is often the difference in life and limb. Pray you stay healthy and never suffer anything like this again.
Thank you so much for this video. I just got out of the hospital because I almost died from necrotizing fasciitis. I spent two months in the hospital and have been home now three weeks. When I went to the ER I was about an hour away from dying. I had three surgeries in a row and was on life support for two days. I had a debridement surgery but told my surgeon drug me up to where I can't feel it because I don't want to be put under again. My right half of my groin was amputated. And I can so relate with you when you say that you still have emotional and mental issues from it. Mine however was caused by diabetes. Anyway, I just wanted to thank you for this... I'll probably make one as soon as I get home, right now my mom is taking care if me packing the dressing on my wound every day until it's healed.
I had macrobial faciatus last year, followed by Sepsis. I'm very glad you are doing ok. Luckily, the only thing I remember for the first week is the pain on the day of admittance and a couple of pre operation moves from my hospital room (infection risk meant I was in isolation) to surgery and my husband, friends and family. I knew they were there however, it was like a dream. Thanks for sharing this, it's so rare to find survivor's you can talk to and understand.
I had this. Nearly lost my leg. Can barely walk. Can't run. Jump etc. Used to Skate so that's not happening anymore. Just glad I've still got my leg. Stay strong.
I had it in Nov 2014, flatlined on arrival at yale and kept doing that so they put me in a coma for a month, about twent trips to ER to debride, once they were going to take my leg they saw it was going into groin are so they could not amputate. Death watch for two weeks my surgeon was great. Finally came home almost April. Prone position for five months. Better now. V curious how your nerve pain is now? I'm getting burning sensations down my scars and my legs get fatigued if I'm on them too long. Mark
Thank you for posting. In 2014, I had 10 surgeries to remove it all. God is good. It was in my abdomen and 5 parts or whole parts of my organs were removed.
Me too, Chris. Had it last year. I have complications because I also had sepsis an septic shock, was in a medically induced coma and had to be on a vent tube for about 10 days. I have PTSD because of the hallucinations and all the trauma I went through as well.
Hello Andre yep still alive and thriving. I've have a few bouts of cellulitis throughout the years but luckily have not had any recurrences of the necrotizing fasciitis. As far as HIV goes I take one pill a day and due to the advancements in how far we have come with treatment someone living with HIV can live as long as anyone who is negative and never be diagnosed with AIDS.
Also sorry to comment again but like he said about the ocean many people who get this get it from dirt or shit but a lot of people who get this do get it from under cooked seafood like clams or from getting cut in the ocean you can get it from a shark bite even you can get it generally from being cut by a fish or being cut while in the ocean
Also I don't mean to spam comments but please don't misinform people about this disease you make it sound scary and it is it's very serious but it's not near a 70 percent death rate and you're probably the only person in the last decade to get this disease in America it is extremely rare in the western world
Not sure where you are getting your statistics @BiteMe but studies have found mortality rate to range anywhere from 20 - 70%, it obviously varies on several factors (which specific study are you referring to?). The fact is that this remains a very serious condition and it's pertinent that people who have necrotizing fasciitis to seek medical care immediately. Also, you mentioned that I am probably the only person who has gotten this disease within the last decade in the Western world, this simply isn't true. I am part of a Necrotizing Fasciitis support group on social media where hundreds who have survived in the Western world over the last couple of years come together to support one another. Of course, this is a rare condition when compared to others but it isn't anything out of the ordinary. This video was in no way intended to scare people but to simply share my perspective as a survivor of the condition.
Last statistic I read was 30% mortality rate, 100% if left untreated. I had NF last year, have met multiple people, with more and more people joining the support group I belong to, with new cases almost weekly from all over the world. There have been many, many cases of NF reported within the last decade, hell, I can count at least 10 that were in the news in 2018 alone. Vibrio Vulnificus is a huge cause of NF, you can Google that and research what it is and how you get it. Mine was from a rare form of Staph, but most of the time, NF is caused by Strep A.
I have commentated above. I live in Wales and thankfully I had wonderful care and continue from the NHS. Basically, I got the flu and pneumonia. The flu jab that year did not include a certain type and I was unlucky to get a bad dose. The pneumonia bacteria mixed with a straph infection. Then I got it. It's nothing to do with being clean or dirty. The septic shock on top of that, made the odds worse.
Good to hear you made it through such a horrible time. I'm a nurse and I've seen the worst of the worst when it comes to this bacteria. Most I've had as patients didn't make it and if they did they had to lose limbs and areas of what used to be flesh. This bacteria so scary and deadly. It's aggressive and it's hard for doctors to stay ahead of it and hard to diagnose. The late diagnosis is often the difference in life and limb. Pray you stay healthy and never suffer anything like this again.
they should treat it with hyperbaric oxygen everywhere but they don't
Thank you so much for this video. I just got out of the hospital because I almost died from necrotizing fasciitis. I spent two months in the hospital and have been home now three weeks. When I went to the ER I was about an hour away from dying. I had three surgeries in a row and was on life support for two days. I had a debridement surgery but told my surgeon drug me up to where I can't feel it because I don't want to be put under again. My right half of my groin was amputated. And I can so relate with you when you say that you still have emotional and mental issues from it. Mine however was caused by diabetes. Anyway, I just wanted to thank you for this... I'll probably make one as soon as I get home, right now my mom is taking care if me packing the dressing on my wound every day until it's healed.
I also had necrotizing fasciitis I was in the hospital for two months on life support 2 weeks 6 operations on a row I knows about 4 hours from dying
I had macrobial faciatus last year, followed by Sepsis. I'm very glad you are doing ok. Luckily, the only thing I remember for the first week is the pain on the day of admittance and a couple of pre operation moves from my hospital room (infection risk meant I was in isolation) to surgery and my husband, friends and family. I knew they were there however, it was like a dream. Thanks for sharing this, it's so rare to find survivor's you can talk to and understand.
I had this. Nearly lost my leg. Can barely walk. Can't run. Jump etc. Used to Skate so that's not happening anymore. Just glad I've still got my leg. Stay strong.
I had it in Nov 2014, flatlined on arrival at yale and kept doing that so they put me in a coma for a month, about twent trips to ER to debride, once they were going to take my leg they saw it was going into groin are so they could not amputate. Death watch for two weeks my surgeon was great. Finally came home almost April. Prone position for five months. Better now. V curious how your nerve pain is now? I'm getting burning sensations down my scars and my legs get fatigued if I'm on them too long. Mark
someone needs to start a support group for you all
Thank you for posting. In 2014, I had 10 surgeries to remove it all. God is good. It was in my abdomen and 5 parts or whole parts of my organs were removed.
how did you get it?
Sorry for your trouble man. My brother got lucky they caught it early in his ballsack. One surgery and out in 2 weeks.
I'm a Survivor Two
you should share your story
I almost died of the same necrating fasitis
I’m a survivor
Chris Ritchie good for you.... my brother in law is in hospital with this.
Thanks for sharing Chris! What doesn't kill us only makes us stronger
Me too, Chris. Had it last year. I have complications because I also had sepsis an septic shock, was in a medically induced coma and had to be on a vent tube for about 10 days. I have PTSD because of the hallucinations and all the trauma I went through as well.
David, how is your brother?
how did you get it?
Hi. Can we hear more from you.
I wonder if he is still alive
Hello Andre yep still alive and thriving. I've have a few bouts of cellulitis throughout the years but luckily have not had any recurrences of the necrotizing fasciitis. As far as HIV goes I take one pill a day and due to the advancements in how far we have come with treatment someone living with HIV can live as long as anyone who is negative and never be diagnosed with AIDS.
Also sorry to comment again but like he said about the ocean many people who get this get it from dirt or shit but a lot of people who get this do get it from under cooked seafood like clams or from getting cut in the ocean you can get it from a shark bite even you can get it generally from being cut by a fish or being cut while in the ocean
Also I don't mean to spam comments but please don't misinform people about this disease you make it sound scary and it is it's very serious but it's not near a 70 percent death rate and you're probably the only person in the last decade to get this disease in America it is extremely rare in the western world
Not sure where you are getting your statistics @BiteMe but studies have found mortality rate to range anywhere from 20 - 70%, it obviously varies on several factors (which specific study are you referring to?). The fact is that this remains a very serious condition and it's pertinent that people who have necrotizing fasciitis to seek medical care immediately. Also, you mentioned that I am probably the only person who has gotten this disease within the last decade in the Western world, this simply isn't true. I am part of a Necrotizing Fasciitis support group on social media where hundreds who have survived in the Western world over the last couple of years come together to support one another. Of course, this is a rare condition when compared to others but it isn't anything out of the ordinary. This video was in no way intended to scare people but to simply share my perspective as a survivor of the condition.
Bite Me...I just got out of the hospital with it. This disease is still going in the western world.
Last statistic I read was 30% mortality rate, 100% if left untreated. I had NF last year, have met multiple people, with more and more people joining the support group I belong to, with new cases almost weekly from all over the world.
There have been many, many cases of NF reported within the last decade, hell, I can count at least 10 that were in the news in 2018 alone. Vibrio Vulnificus is a huge cause of NF, you can Google that and research what it is and how you get it. Mine was from a rare form of Staph, but most of the time, NF is caused by Strep A.
I have commentated above. I live in Wales and thankfully I had wonderful care and continue from the NHS. Basically, I got the flu and pneumonia. The flu jab that year did not include a certain type and I was unlucky to get a bad dose. The pneumonia bacteria mixed with a straph infection. Then I got it. It's nothing to do with being clean or dirty. The septic shock on top of that, made the odds worse.
+ Bite me. Your stats are very very wrong.