Chronic illness is hard. You are doing great! I’m a mom with a chronic illness too and it isn’t easy. You are doing the best you can and Ellie knows you love her. She is such a happy baby. And Taylor loves you! Having a supportive spouse is so important. You got this girl!
I felt so much guilt that I couldn’t do many things with my children when they were young. Now as adults they tell me I’m a great mom and they knew I did the best I could. Stay positive, be grateful for the things you can do, take care of yourself too.
😔😔😔😫the pain in constantly having to explain yourself?? It's so very difficult. It hurts. You _want_ to see these people, too! And they get upset with you out of frustration, but atleast they still get to frolic! We remain in this bed. Now i see why her and i share a uniform!
@@CassTeaElle and with their following, they can validate others like is seen in this comment section, and monetize their struggle. Making a bad situation more bearable, using that money to get the help she needs. Im sure we only catch a glimpse of what they are going through and the conversations they have.
@@drumswithstix yeah, it's still weird and unhealthy to film and broadcast these moments. I'm standing by that statement. Money isn't everything. Also, I was responding to a comment that was acting like most men wouldn't do this. And I simply am saying that just because other men aren't filming their good deeds and broadcasting them on the internet doesn't mean they aren't doing them.
Me, too! I am in my 70s now and, not gonna lie, it has been tough sometimes. But we do what we must so that we get the rewards of living and loving. Keep going till you find a doctor or healer who can help you. ❤
I have chronic fatigue syndrome and chronic pain and have dealt with it nearly 15 years. It's so true that people don't understand unless they deal with it themselves.
@@xepturate why not you are a brave fighter of a horrible illness 😕 I'm so sorry you have to live with such a horrible disease . I need a double lung transplant currently, I have a terminal illness called scleroderma. Sending hugs your way 🤗
I was sick for years. UT southwest Dallas Texas finally helped. Natural ways too. You are doing a good job. Your a good mom, wife. You shine. Hang in there.
Were you chronically sick like she is? Like tests appear normal but you feel like shit all the time?Would you mind sharing what department of UTSW was helpful? I have been in that boat for 20 years now and have yet to find a place that helps.
@@rving642 chronically sick. Could never get any answers. I went to Mayo clinic, etc. UT southwest in Dallas was the one found a treatment for me that basically restarted my system through IVs. It would give me the energy to be able to function again. Neurology Dept is who finally found my issues. Try to go natural as much as you can. Changa tea was a huge energy help for me. I had breast cancer and got rid of it natural as well. It's hard when you don't have answers. If they tell you... fibromyalgia.... Mucinex has been found to keep flare ups at Bay. It's not easy to find out what works for you believe me I know. Don't give up though. You are doing best you can. Hugs to all who struggles.
I have come back to watch this so many times. This small video makes me feel less alone. I have watched it everyday since it was posted. Chronic illness truly can be so hard, while feeling no one understands and this truly makes me feel better. You are using your platform amazingly. I adore your family. You are the most amazing, beautiful, warrior of a mom and wife. Never blame yourself sweetheart. Thank you for sharing this. Love and thoughts sent your way always❤
I have chronic illness and chronic fatigue and chronic pain. No one, no one understands unless they are dealing with it themselves. My own son said he was sick of the “woe is me” crap. He just does not get it. I just wish that everyone is full of compassion. Your husband seems to be very understanding and compassionate. You got a good one there. Just understand that you are not the one who can control how you feel on any given day. Just take one day at a time hon.
My son is 15 and I've been I'll his who life started getting sick after he was born and he has made remarks out of him being hurt and having to deal with a sick mom , so I never take it to heart even though it makes me break to pieces inside but don't want him to see that bc it's just how he knows how to express his feelings at his age and being a boy but then he's always telling me mom I'm sorry you go through this and I love you and is always just loving and caring but there's times he gets upset with me being sick and it comes out in hurt and anger ..
You cant truly understand something unless you've gone through it yourself, from an outside perspective it might just seem like something that happens so often you should be over it or at least used to it by now
@@shmuberthadouken you can’t get used to it. Something different hurts every day. And you certainly don’t get over it, it will not let you! It is not normal to hurt constantly. You learn to accept that this is your life and take each day as it comes.
Chronic illness is so awful. The guilt that we feel is immense. Your understanding is amazing! It means a lot to have an understanding and caring partner who doesn’t pile onto the piles of guilt we have.
Seriously. It’s wild we feel guilty for something that effects us too but that’s how others made us feel. I’m glad he’s so good to her and doesn’t add to her stress levels.
The explaining will never go away - u will always feel that way. The right doctor will change ur life, validate and understand everything that u are going thru. I feel your pain, as a chronic illness warrior my self. You have an amazing support system, that hubby LOVES u so much! Don't give up!!!!!!!
😢 I feel your pain. Chronic illness especially with rheumatoid arthritis is especially challenging because people don't "see" any thing wrong with you as it's internal inflammation 24/7. I've had people actually say to me " I don't see anything wrong with you." And that in itself is PAIN MENTAL ANGUISH 😢😢
Yes exactly but that's small minded people to think that just because they don't see it doesn't mean it's not there because I've been going there same thing for 20 years. I hate those people who judge me and wish they could walk my most day in my shoes. I wear dresses every single day and put face powder on and eye brows and because I look ok and try to act ok is saddest thing ever and for people to judge us and be rude to us. We wish it was something so easy to change but we can't heal ourselves and drs just throw medicine at us instead of healing us is depressing it self.
The invisible illnesses are so hard. People don’t see what we go through so they just expect us to do everything. We literally can’t. I tried one day, right after school ended we went looking for a bike as a special gift and I napped for 3 hrs when we got home and couldn’t make dinner. I was so tired. 😢
After having breast cancer, the chemotherapy and radiation caused a complex autoimmune syndrome called CHEMOTHERAPY SYSTEMIC DAMAGE SYNDROME. IT is the umbrella label for osteoporosis, rheumatoid arthritis, chronic fatigue, fibromyalgia, osteoarthritis, and psoriasis arthritis, diabetes and many more. The only person that can somewhat understand is someone who has this, or myhusband! He has seen and understood from day 1. I may not be rich, but I hit the lottery with him!
I totally understand this! When I was 12 my funger swelled up, the dr. Asked me if I bumped it on anything and I said no, then he asked my mom and she said no she didn't bump it in anything. I said, if I bumped it on something, I would remember. Then right before I turned 13 my toe swelled up. My mom took me to another dr., he looked at me and said I believe she either has lupus or rheumatoid arthritis. He did bloodwork and sure enough, it came back positive for rheumatoid arthritis. When I got pregnant with my oldest I stopped having systems and after I had my son, I didn't have any symptoms either. I went and got tested and my test came back negative. I now have osteoarthritis in most of my joints because of having RA. I still get tired really easily, when the weather changes I feel like I have the flu because all my joints hurt and there are many times when the only thing that helps is literally laying down and most times taking a nap.
I’m at 5 autoimmune disorders.😂 I can’t even cry anymore. Not worth my lymphatic energy. Do you guys think her stuff is Lupus? That’s what it seems like. W the fevers and all. I hope she figures things out. The diagnostic part is probably the most frustrating. I didn’t get duly diagnosed till 3rd rheumatologist during a 15 year period. Now, it’s taking a little less than back in the day. I pray she doesn’t have to wait too long. Cause we don’t get better till we lose the denial and start taking the meds.
@@lucycarola that's what I was thinking. I always run a low grade with high possibility for it to climb. Feeling sore all the time, constantly tired and slow moving. Anything environmental feels like it's trying to kill me. It sucks that you have to be out of remission to test positive. And the meds are as bad as the disease. I am hanging in as long as I can before getting in the. Being once you do you can't stop.
@@jeaniedeveau164 i hear horrible things about Plaquenil but it works perfectly for me. But, w CFS/ME & RA, & pretty bad bp I have been put on Arava & Carvedilol. And that’s it! I’m barely functional now. Doc says it will take me a good month or two to feel better, but it’s lucky I’m now on sick leave. Unpaid or not. Cause my job has no mercy on my attendance in spite of knowing ALL my health issues. They refuse to accommodate me and it gets a bit harder. MCTD was my last diagnosis I thought. But, my RA factor is extremely high. My kids are 13 & 17, so, I’ve made it this far. But, gotta try to prioritize health over a job (an awesome job that I love) that refuses to treat me like a human.
@@melissafrenette1071 this would also make sense if things like ramen make her feel better after eating them cause the sodium content in these foods is insane. she really should look into it
@@user-lh8ph3yo5f which is why I said to please discuss it with her Dr. I never said she actually had it. That said, when there are people with hard to diagnosis illnesses sometimes others can help with ideas. I personally have Addisons. Her symptoms are extremely similar. Many Drs don’t test for it. It took me a couple of years. So why would I not mention it?
I am chronically ill with endometriosis and fibromyalgia. My son has only known me ill. He is now 22 and my carer, if you ask him, I am the best mum, but I always feel guilty too. I really know how you feel xxx
As someone with chronic illness, our illnesses are incurable so we won’t get better. I know you mean well tho❤i suggest in the future saying “I hope you get relief soon” when people have chronic illness because it’s really hard for a lot of us to constantly hear “get better” “are you better yet?” Ya know?❤
i was also sick like u took forever to find out i had fibromyalgis, i could not care for my daughter at all by the time she was two..i had to have alot of help, its been a long road to recovery, it took alot of education on the syndrome, and a ton of self love, ive been sick most of my life, but at 58 ive never felt better,,prayer helped the best, keep positive,
As someone with a chronic illness i feel you. I was diagnosed with Fibromyalgia and the way you feel is the way I always feel. If you have tested negative for lupus please look into Fibromyalgia. It can become manageable
I have fibro too and I am feeling pretty awful at the moment. Flu like symptoms and body aches. The body aches feel like bruises, when you touch them they really hurt. And I get pain around my neck. I went to a Rheumatologist 17 years ago and she ran a lot of blood work and other test to rule out everything & determine it was fibromyalgia. After that diagnosis I did research of my own and pretty much everything that was mentioned about FM was right on with my symptoms. Hope you feel better soon! ❤
I too have a chronic illness. It's called Fibromyalgia. I have been dealing with it for nearly 12 years. Accepting that you will have good and bad days. Embrace the good days and those bad days embrace them as well. You are a warrior and the heck with what others say. We are here for you.
What a real and raw video! My husband is so sweet like yours too. Hang in there mama. We got this! Your daughter will grow up to be resilient and compassionate. 💕
Hello fellow Lupie! 💜 I've been diagnosed for 25 yrs now. Along with Fibro and kidney disease FSGS. My son has Lupus as well. 😔 Every day is a struggle but we are stronger for it! 💪
I have Lupus too , along with ibs,Crohn's , colitis , proctitis and osteoporosis and I'm due to have a colostomy cause of fistulas caused by bowel diseases . Nobody understands how these chronic illnesses floor you some days cause they just see a healthy looking person in front of them
Lupus is very often a side affect of late stage Lyme disease and is treatable❤️ look for a functional medical practitioner who specializes in a root cause approach and you can find healing. I’m speaking from experience.
@@sarahmoore1312I have Crohn’s, lupus, RA, stage 4 kidney disease, an ostomy, fibromyalgia, etc and have had sepsis 3 times. I understand! Reach out anytime!! ❤❤❤
"Your deserve better" really hit me. But it's not our difficulties or shortcomings that define who we are. It is who we are DESPITE hindrances and flaws and what we do to handle or overcome them. Stay strong!
You are so much more than that. A sickness does not define you and I know how much you love your husband and kids and how well you take care of them. It’ll get better ❤❤❤
Same. Also have a heart condition. Now that I have an enormous scar on my chest people definitely treat me differently than they did before my surgery. I’m “allowed” to nap and take my time now where I was referred to as lazy and a drama Queen before. Smdh
@@torakfett3351 bless you 💗 rest all you need to, heart condition or not. Unless you have an "invisible illness" you'll never understand. My husband has been with me throughout the entire ordeal from test after test until diagnosis and throughout the last 18 years or so and he still doesn't quite understand the level of pain and fatigue etc I have to try and cope with. I wouldn't wish for my worst enemy to go through even half of what we deal with
People underestimate the emotional toll chronic illness takes. Having to explain and justify your existence is exhausting. I hope you get answers soon ❤
I understand, I've been there for 34 years with chronic illness, and it does suck!! Give yourself some grace, sweetie! You have a loving and compassionate husband! You are a beautiful and loving wife and mother! Take one day at a time, and give it all to God! He's up all night!! ❤
I had mono and I swear it caused so much problems and still dealing with 21 years later. I am trying loose weight to make the symptoms better. One thing it’s caused irregular periods.
That is how fibromyalgia started with me. I've got arthritis and have "arthritis flu" sometimes, many times a week. I've had those since i was 24. I sympathize with everyone fighting a chronic illness, and autoimmune disease.
I have rheumatoid arthritis, inflammatory arthritis, fibromyalgia, chronic pain, broken back and many more that aren’t relevant to this video… what is arthritis flu I’ve not heard of that before? For those with fibromyalgia and have a pain doctor I highly recommend asking about lidocaine infusions. They are once a month and really help with the symptoms of fibromyalgia. Also highly recommend a pain management clinic.
@@janelleconnery5535 what are the lidocaine injections just injections into the sore spots in the back ? Because I've had those before and didn't help me much of a difference for me to notice. I do get heat and injections until my spine but it kills the nerve pain enough until it starts growing back little by little until it starts hurting again. But it only helps that area.
I am a mom too with a chronic illness, I feel the struggle of always explaining and doctors writing you off for 1 reason or another. You are a great mom and it can be hard to not beat yourself up, finding a therapist to talk to can help you through this struggle also, they cant answer but getting stuff off your chest or having a simple convo will and does help.
Oh sweetheart, I completely understand. It's been over 10 years trying to figure out why I'm sick, and sleeping all the time. You are strong. You got this. I would be up to talking to you; if you were up for talking. I am so proud of you.
@@joanncampos8675 I’m 53 and I’ve had hypothyroid since I was 16. I’ve been takin levo thyroxine or Levoxyl also known as Synthroid lol thank God with that I’ve done pretty well. I get my blood taken every six months and sometimes they have to increase a little bit of medicine or depending on what the levels are. I went years without having to change the dosage but lately it’s been changing a little bit. I’m sorry that you guys are suffering from it. I also have lupus. But I’ve done fairly well with that. And it sucks but I know it could be worse, as far as the disease, the way it can go sometimes
Thyroid issues and fibromyelgia as well as some other diseases that go with them. Its hard as a mom with chronic issues. But your kids will still love you as long as you show up and just continue to love them
I love this thread because even those who get regular lab work, tests, etc have no clue that you have to SPECIFICALLY ask for your thyroid level to be checked..Even then; getting answers is a struggle. Chronic pain since 14, Cervical Degenerative disc disease, Spinal Stenosis, Scoliosis..ANY fatigue/pain cycle which turns to guilt/anxiety (or vice versa) is battle. Being Understood is Everything. Giving ourselves the grace & empathy despite all else is Soo important. It's so easy to feel the weight of the world& tasks piling up..Even if you have 1 person on your "team" of support can make such a huge difference🫂✨ Sending lots of love& hugs to All suffering with ANY invisible/misunderstood illnesses or health issues.
I was just diagnosed with fibermyalgia, widespread body aches everywhere with fatigue and depression. It's crazy, but it's an everyday battle. Some days are real bad, others are not so bad. You got this!!!
I had Fibromyalgia for about 20 years. It took my doctor 10 years to diagnose it. Or, at least after 10 years he gave what I was going through a name which was Fibromyalgia. About 3 years ago I was healed of Fibromyalgia!!! I waited about 20 months or so to tell anyone because I wanted to be sure it was truly gone! If you you’re a believer, there’s hope for your healing too! 🙏🏼
Chronic illness is hard. Prayers. I feel you... My family doesn't deserve a sick wife and mom. Sometimes you don't find the answers. You just learn to keep trying and to keep getting rest and to not make plans or promises. Prayers, I'm so sorry you are going through this.
Kay, there are so many women (including me) who understand how you’re feeling & are going through very similar experiences. YES, it really sucks when you’re hurting & feeling awful, but remember that NO explanations are necessary. You’re loved and appreciated exactly as you are! ❤
Chronic sickness is literally the worst but you stop that right now, you are an amazing mom and an amazing wife, everyone here can see that from watching 30 seconds of any of your videos and I’m sure there are literally thousands of people that will agree with me. You got this girl. I know it’s hard and it sucks so much but don’t ever put yourself down like that ❤❤❤
Kay days like that are hard, don’t let them keep your spirits down. It took me 3 years to get the wrong diagnosis, then 10 years trying to figure out what I was doing wrong that I kept still getting sick and doctor after doctor kept telling me that it had to be accidental exposures. Then I met the right doctor, one year of testing, and got the right answer. Got on the right medications and just celebrated 18 months of 0 anaphylaxis and it’s only been 2 1/2 years since I got the right diagnosis. Listen to your body and be your biggest advocate. The journey may be long and horrible, but you will get the right answers. If you aren’t already, find a group in your area or online for chronic warriors. We help eachother out, keep eachother motivated and can truely understand what you are going through.
I can definitely understand and honey I’m so sorry cuz it sucks! I have chronic fatigue syndrome, chronic pain, fibromyalgia, restless leg syndrome and finally was diagnosed 2 years with psoriatic arthritis. This an autoimmune disease… yes, I understand! Please get yourself a great rheumatologist! They need to do blood tests. They’ll find whatever it is. Take care ❤
I deal with most of these also along with new found heart issues I’m trying to get figured out and I’m currently dealing with being short of breath, after a shower, I didn’t use to be that way weeks ago, chest pain that cardio thinks is musculoskeletal because heat takes the tippy edge off for a few mins and the meds for angina aren’t really doing a whole lot at the moment🤦🏽♀️🤔I understand and am here to vent if ya need to🥰🙏🏽🙏🏽
I have chronic illness and chronic pain from my illnesses and was diagnosed at 32 so I completely understand her feelings. I am 44 now and learned over the years it’s ok to not be ok and just do what we can do that we are good enough and not a burden because of our illness. So tell that beautiful inside and out wife and mama bear she is extra amazing illness and all. Our illnesses do not defined us. Tell her I said get it girl.! we got this! ❤
Hugs. I've lived with three chronic 'challenges' for decades. I have two sons who are now in their 30's. We get through. Listen to your sweet and supportive husband.
I suffer from several chronic conditions. It's hard to deal with on every level. God gave you a miracle baby and a great husband. Find help for your mental health as well. You don't have to explain yourself to anyone. Praying for you ❤
Just seeing this, I finally know that someone understands me. I started sobbing about 5 seconds in. Thank-you for sharing. Prayers for you and bless your husband for being such a good man. An angel. I lost my angel husband to Covid 4 years ago. So I have no one who cares for me like that, but I value this because I remember that love and I feel it again and I feel understood. Good luck and thank-you.
Girl, you are the best mom ever! So many people don’t put half the energy into their family that you do with nothing in their way. You’re pushing through every obstacle as best you can and you’re killing it!! Give yourself some of the grace you give your husband and daughters every day! ❤
It’s super amazing to hear Taylor being so patient and understanding with Kay who is so frustrated with being sick. I can 100% relate with Kay, I have lupus(SLE) and fibromyalgia, Raynaud’s disease and primary immune deficiency. It takes a strong woman to get up each day and battle her way through being chronically ill and it also takes a strong and loyal man to stand by her side & to hold her up when she can’t. Taylor, I’m so happy Kay has you!! You are one amazing man, don’t ever change! Your loving heart and kindness is what we need more of in this world. ❤
I didn't know you had a chronic illness. I stumble upon your pregnancy photoshoot and I fell in love now this video. You are a Warrior Kay and you have a loving and compassionate husband by your side. As someone who has a chronic illness I felt every word in your whole statement. Stay strong ❤ rooting and praying for you Kay. Your biggest fan right now ❤
I deal with the same thing. Im a mother of 3 and I work full time and I suffer with anxiety adhd a ton of autoimmune diseases, severe depression, always fighting bc my partner is a vet and has several issues , currently he won’t stop fighting with me the last 4 hours. You’re lucky you have a great guy to help you. Theres people like me who are basically alone. ❤ sending you lots of love and energy. I’m trying to rush this before he sees what I’m writing. And I have had these insane headaches and muscle aches the last month now. God help me. 😢
Check your thyroid! Even if blood tests show normal numbers. Find a functional doctor, especially a Chinese doctor. 90% of Conventional doctors only go by book, and they are useless in times like this.
I'm so sorry. It's just so hard. My family got so angry at me when I said I wasn't looking for a cure anymore. All the changes in medication and hope and collapsed former hope.... It was becoming a symptom in itself. I couldn't keep doing that. Especially since the American medical research was only doing research on women lying about pain to their doctors. Years and years and millions and millions of dollars as woman after woman was treated like a liar and worse because they did every permutation of their research to prove that women lied to doctors about pain. Every single one of them done by honest researchers showed women didn't lie to their doctors about pain. So they put a guy in charge of the research and he made a slide deck presentation that told doctors that there were no tests that could detect this pain (BS I demanded several that showed clearly I was in pain.) And that narcotic pain medication didn't work. Yet, nobody saw that and asked why, if we didn't have pain, would he specifically say that this drug doesn't work on our pain. Isn't it clear that he thinks the pain is real but wants to be sure narcotic medicine isn't prescribed for it? Then he dumped all the research funds for fibromyalgia into cancer research. That's worthy of research. Why didn't anyone say he was both a terrible doctor and researcher, and logic clearly wasn't his strength? But hate works like that. He clearly hated women and wanted us to suffer. His stupid slides are the most damning medical misogyny of this century. I look forward to the day when that idea is mainstream rather than the idea that women should suffer. Those tests were a sleep test that showed I was in so much pain that my body couldn't rest. A blood pressure reading way high enough he was scared for me and 30 days later, after I demanded narcotic pain medicine and if it was still high I would take that medicine, my blood pressure was almost too low. And the third test that showed I was in pain was a viral replication test that showed my body was fighting herpes zoster, the virus that causes chicken pox and Shingles and the viral load was 6 times more than what a positive test for either of those illnesses would have. I also had 4 times the viral load for a positive test for Epstein Barr, and there were also two other viruses actively replicating. The symptoms for at least the first two include a lot of pain. Three tests showed I was suffering from massive pain. I have since learned that I had been self hypnotizing to manage it. The times I have felt it without hypnosis or drugs is simply horror. Just horror every second. I don't recommend it. I would never put it on another person willingly. It's depressing how many people would and how many have done that and still hold licenses to practice medicine. Forcing someone to be tortured 24/7/365 should cause you to be excused from the profession. But we'd have none left.... I guess that doesn't need to be a bad thing.
I have a few illnesses and feel like a burden to my family. I've been on permanent disability for 14 years. Trust me your family sounds so compassionate and understanding. You don't need to explain your diagnosis to anyone. My 9 year old granddaughter heard me saying I was a burden to the family. That baby girl came up to me saying that I will never be a burden and that she's always gonna be here to help. Trust you husband and you are an amazing wife and mom. You've got this. Log your flare ups and remember to put what your symptoms are that way you have everything written down and can provide that to your doctor. Take care
Omg I am going through these EXACT feeling. I have a chronic illness and many health issues & feeling like this weighs HEAVY on you. I can bet your husband & baby don’t ever see you as a burden but I know the feeling all too well of still feeling like one no matter what they say. It’s really hard. I’m so sorry you are going through this. It helps to see I’m not alone. I hope it helps you to know you’re not alone either. ❤️ stay strong mama. You’re amazing! Your smile helps me.
Even though Some days are more hard you are a amazing wife and a adorabel mom ❤ One of my good friends grew up with a chronical ill dad (migrains that were on daily base) and she still loves all the things they do get to do together and she loves him to the moon and back. You Will be just fine ❤
I grew up with a sick mom and it was hard for her. But that sick mom is who taught me how to cook, how to do makeup, who encouraged my desire to always have my nose in a book and who supported me as I taught myself creative skills. She's who supported me as I graduated at the top of my class in HS, went on to double major in college, and then went on to get my master of public health at one of the best programs in the country. Oh yeah, and I was sick too, so she taught me how to take care of myself and be resilient, to not let myself drown in all the ableism I would experience for the rest of my life. Your daughter is so lucky to have you as your mom. She is going to have a wonderful life and so will you. She picked a good one ❤
I have RA, chronic fatigue, depression and fibromyalgia!! Raised 3 great sons!! I’m 60 and have had symptoms half my life. Thanks Mom!!💜 I grew up with her being sick off and on!! She raised 3 kids!! She was still a wonderful Mom!!💜 I would not have traded her for anyone else!! ❤️ Praying for you!!🙏
@srivera4339 Well, with my crohn's I am doing well. I would suggest keeping an eye on your gall bladder and liver. I got diagnosed with PSC liver disease in 2022.
Same 😢 mine just started last year. Doctors still haven’t figured out what’s wrong but I’m pretty sure they’re going to diagnose me with UC. It definitely sucks 😢
I have myalgic encephalomyelitis (M.E) along with a few other illnesses, but mainly my M.E gives me lots of sickness, flue like symptoms and fatigue. Definitely worth looking it up as there isn't one test that will give the diagnosis. It took me from being 10 to when I got a diagnosis at 14. Hope you get some answers soon. Xx
If you are from the UK, I love you guys so much. Back when American medical research was behind paywalls and only tried to prove women are liars, the UK has medical research attacking reality and available for free to everybody. I found coping suggestions and some of the things I read pointed to tests that would identify various problems. Eventually, I landed on Ehlers-Danlos as the genetic component of my illness. I was able to identify a metabolic disorder as the source of the exhaustion 15 years ago. It wasn't until last summer they FINALLY moved away from countless versions of medicalized IAIYH (It's All In Your Head) syndrome and identified the difficulty is in the mitochondria.😂 I can't tell you how good it felt to know that every single doctor who belittled me or told me that I "wasn't allowed" to read medical research??? All had the answer sitting in their offices and they didn't know it. The idiot who stopped my explanation of a study that I read and he looked down his nose at me and gave me the cold stare of white-masculine disapproval as he told me, "I always know that I am the smartest person in the room because I graduated top of my class at Harvard. I hate that I didn't ask how he handled alumni weekend. Do you think he stood outside so he wouldn't have to demand SAT scores from all the other smartest at the top of Their class, recipients?😅 Did he even know they have a new one every year? He wasn't even the smartest person in THAT room if he couldn't comprehend his many roomsfull that he couldn't enter to keep his statement true. Whatever his true room status, it is abundantly clear that the US can't compete with countries that provide healthcare to everyone, even the sick ones. They can't even comprehend the problem because it is in the entire structure and it's called profit. A fish doesn't feel wet and a capitalist lives in profit. Profit might make business innovative and nimble (though that's not looking likely to be the resulting science-driven conclusion) but it is a death knell in a literal sense as it is in a metaphorical sense for healthcare systems. So many people die young in America that our life expectancy was falling rapidly before Covid. We are the only Westernized country where that was the case. Covid might allow folks to fudge the numbers for a while, but if we can maintain our data collection in the next presidency and the next after that, we won'tbe able to unsee it. That's only if Republicans can be trounced. It could go either way at this point. A 2nd Trump presidency and implementing Project 2025 is simply the death of data. Trump showed his preference when he refused to allow us to test for Covid for a couple months because if you don't test for Covid, you don't have Covid cases. Trump was too stupid to realize he wasn't supposed to tell us that. If he'd kept his mouth shut, Covid cases could have been hidden for who knows how long. Look at all those children who go to deadly schools and they open for classes. We made it illegal to study gun effects in this country. Therefore, where do you see dead students? Most shootings never reach beyond the district's borders. So, thanks to the UK. You post the truth and it meant everything to me at least mentally. Your studies didn't blame the victims of these disorders. And you let me see that, yes, they were depraved. And yes, there were solutions for some aspects. I was even more shocked that I was allowed to join an ED support group (though I stopped after a year because I don't want to ruin a good thing) and I felt valued and seen despite the best efforts of the system I have to swim in. I hope your people see how valuable the NHS is simply because it values the lives of everyone. I know Trans folks aren't getting much beyond life, but I am hopeful that the basic bricks of the NHS will assert itself and the people will say that they value every life. But again, my deepest appreciation to the generosity shown me when I was certain it was dead and I was wrong.😂❤ can't go thinking I'm wrong, right?😂😂
I understand her pain. When you feel that bad, and you want so badly to do everything and be there for your family, it is really hard. Big hugs. I have a chronic illness. She is a warrior, remember that!!
As someone who deals with chronic illness and a single mom of two, I hear this! You r amazing and you will get through this. Remember your perception of memories and your child's perception of memories if so different. 💜
My daughter is about your age and also has a small son. Dealing with chronic illness for over 15 years now she has struggled so much just explaining to doctors and trying to manage pain with her daily life. It took a long time till she was finally even diagnosed with what she had. Blessings to you and all the Best! Hang in there! ❤
I've felt like this for so long . My boys love me thru it, they know I do my best. We are who our children need an they are who we need. You are a great momma. Rest when u need to love.
Awe, sweetheart. I hope they can figure it out ASAP. I completely feel for you. I've gone through 3 chronic illnesses and no answers for years and years. One I am finally medicated for, which is good, but the other 2 are hopeless. I truly hope you feel better. Don't ever give up. You have a lot of people who love you. Never forget that. ❤❤❤
As a type 1 Diabetic I felt this in my soul! ❤ I'm so glad you understand and don't make her feel worse. 💔 People sometimes don't understand why I'm so tired and unmotivated.
I have rheumatoid arthritis, so I understand you on so many levels. It's rough. My rheumatologist tried so hard to talk me out of having another baby, but we wanted another. It's rough being a mom when you are in chronic pain and suffering, but it doesn't mean you're not giving your family everything they need from you. You got this, and just remember to try to take it day by day and listen to your body. Rest if you need it, and don't overdo it when you're feeling well. Prayers for strength through this.
I deal with chronic illness and I know exactly how she's feeling. It really sucks. I spent 3/4 weeks of this month in the hospital. It took us 10 years to figure out which system in my body it was in and another 5 to figure out the problem. Now, we are working on hitting and equilibrium. Keep fighting. Keep advocating. Hold on to the little things. I wish you all the luck.
Kay, I understand completely. I too suffer from chronic illnesses and chronic pain. Woman, you are a warrior! I know it's easier said than done but keep your head up! They will figure it out eventually. You seem like the best Mom and wife. Youre such a sweetie too. Sending good vibes and healing vibes too
I am not a mother, but I do have several chronic illnesses. I have had that same breakdown to my husband multiple times over the years. I am so thankful you have a great support system. I hope that doctors take you seriously and end up putting together the pieces. Best to you and your family. ❤
I know how hard chronic illness can be while raising littles. You are doing your best and always there for your family. Lean on your amazing support system when needed. You got this and I will send healing prayers for you and your lovely family. 🖤 Hang in there baby!*picture that old 90’s poster with the kitten hanging from a branch on a tree😊
I too have chronic illness, with an autistic child. I feel your pain and it doesn't make you any less of a mother or a bad mother. It makes you a stronger one because even when you're not at your best you are still busting butt to take care of what needs to be done.
@@gcarnes5941ugh. I’m so sorry that is a lot.!! I have osteoarthritis pain beyond that which they finally determined to be fibromyalgia which basically means everything hurts. You know how it is. My husband had an eye issue and they thought he had MS. It turned out. He did not, but that is really a huge huge deal. ..😢
Oh, darling, it’s out of your control. You are doing your best and that’s all you can do. It’s scary and depressing and you are amazing. I’m sorry you have this stressor. Be easy on yourself. You have great support.
I feel this. I was always upset about why I felt so tired, and got sick all the time. Finally I got diagnosed with MS, and as much as it was upsetting to find out I have an incurable, progressive condition…I was also relieved to finally understand why my body and mind were the way they were.
Chronic illness is hard. You are doing great! I’m a mom with a chronic illness too and it isn’t easy. You are doing the best you can and Ellie knows you love her. She is such a happy baby. And Taylor loves you! Having a supportive spouse is so important. You got this girl!
❤❤❤
Agree😌
Prayers
I felt so much guilt that I couldn’t do many things with my children when they were young. Now as adults they tell me I’m a great mom and they knew I did the best I could. Stay positive, be grateful for the things you can do, take care of yourself too.
Amen. I felt this !! Chronic illness hurts !!
As someone who has a chronic illness I completely understand Kay’s pain. It’s so hard dealing with the mental aspects of this
Praying for your health 🙏
I hope you get more good than bad days!
Chronic illness is way worse than the normals understand. Taylor is doing such a good job.
😔😔😔😫the pain in constantly having to explain yourself?? It's so very difficult. It hurts. You _want_ to see these people, too! And they get upset with you out of frustration, but atleast they still get to frolic! We remain in this bed.
Now i see why her and i share a uniform!
❤❤❤
This is a wonderful husband. A man who can give reassurance is a gem of a keeper. Most men can't or won't do this.
Actually, most decent men would absolutely react this way, only they would do it without holding up a camera to film the whole thing...
@@CassTeaEllethank you. That’s what I was gonna say.
@@CassTeaElle and with their following, they can validate others like is seen in this comment section, and monetize their struggle. Making a bad situation more bearable, using that money to get the help she needs. Im sure we only catch a glimpse of what they are going through and the conversations they have.
@@drumswithstix yeah, it's still weird and unhealthy to film and broadcast these moments. I'm standing by that statement. Money isn't everything.
Also, I was responding to a comment that was acting like most men wouldn't do this. And I simply am saying that just because other men aren't filming their good deeds and broadcasting them on the internet doesn't mean they aren't doing them.
Amen to that!
I love that your husband is supportive without being patronizing.
I have fibromyalgia. You are a warrior, plain and simple!
Hi fibro warrior 💝 we got this
I also have fibromyalgia @@ClaraJC99
Me, too! I am in my 70s now and, not gonna lie, it has been tough sometimes. But we do what we must so that we get the rewards of living and loving. Keep going till you find a doctor or healer who can help you. ❤
I also have fibromyalgia. We are warriors!!!❤❤❤
Is that what Kay has? I'm not sure if I missed something. And I'm so sorry. I know that pain all too well. God Bless
I have chronic fatigue syndrome and chronic pain and have dealt with it nearly 15 years. It's so true that people don't understand unless they deal with it themselves.
Exactly, I'm a Chronic illness chronic pain warrior
@@sah-nae I have cancer and I’d never refer to MYSELF as a warrior
@@xepturate why not you are a brave fighter of a horrible illness 😕 I'm so sorry you have to live with such a horrible disease . I need a double lung transplant currently, I have a terminal illness called scleroderma. Sending hugs your way 🤗
@@sah-nae hopefully everything goes well I have lymphoma, idk I just get really scared sometimes but hopefully I can get through it
I don't have cancer 😞 but I can imagine the fear and stress cancer causes you . Did you know there's good news ? @@xepturate
I was sick for years. UT southwest Dallas Texas finally helped. Natural ways too. You are doing a good job. Your a good mom, wife. You shine. Hang in there.
Were you chronically sick like she is? Like tests appear normal but you feel like shit all the time?Would you mind sharing what department of UTSW was helpful? I have been in that boat for 20 years now and have yet to find a place that helps.
@@rving642 chronically sick. Could never get any answers. I went to Mayo clinic, etc. UT southwest in Dallas was the one found a treatment for me that basically restarted my system through IVs. It would give me the energy to be able to function again. Neurology Dept is who finally found my issues. Try to go natural as much as you can. Changa tea was a huge energy help for me. I had breast cancer and got rid of it natural as well. It's hard when you don't have answers. If they tell you... fibromyalgia.... Mucinex has been found to keep flare ups at Bay. It's not easy to find out what works for you believe me I know. Don't give up though. You are doing best you can. Hugs to all who struggles.
I have several chronic illnesses and the kids learn to cope. It sucks but you won't ruin Ellie's childhood
She knows this through her other, older daughter but I bet this is still really reassuring for her & others to read, you’re doing great 😊
Her eyes when she saw the ramen! Incredibly beautiful to see how you make your wife happy again and again
I hope you get better soon.
Bless her she can't help being sick. Amazing woman,Amazing mum.
Amazing hubs
Lucky she has an understanding husband.
Prayers 🙏🏻 🙏🏻 🙏🏻
As someone with multiple chronic illnesses, I completely understand her pain. I hope healing from this mental torture comes her way
I have come back to watch this so many times. This small video makes me feel less alone. I have watched it everyday since it was posted. Chronic illness truly can be so hard, while feeling no one understands and this truly makes me feel better. You are using your platform amazingly. I adore your family. You are the most amazing, beautiful, warrior of a mom and wife. Never blame yourself sweetheart. Thank you for sharing this. Love and thoughts sent your way always❤
I have chronic illness and chronic fatigue and chronic pain. No one, no one understands unless they are dealing with it themselves. My own son said he was sick of the “woe is me” crap. He just does not get it. I just wish that everyone is full of compassion. Your husband seems to be very understanding and compassionate. You got a good one there. Just understand that you are not the one who can control how you feel on any given day. Just take one day at a time hon.
My son is 15 and I've been I'll his who life started getting sick after he was born and he has made remarks out of him being hurt and having to deal with a sick mom , so I never take it to heart even though it makes me break to pieces inside but don't want him to see that bc it's just how he knows how to express his feelings at his age and being a boy but then he's always telling me mom I'm sorry you go through this and I love you and is always just loving and caring but there's times he gets upset with me being sick and it comes out in hurt and anger ..
You cant truly understand something unless you've gone through it yourself, from an outside perspective it might just seem like something that happens so often you should be over it or at least used to it by now
@@heatherking8689 the son who said that is 45
@@shmuberthadouken you can’t get used to it. Something different hurts every day. And you certainly don’t get over it, it will not let you! It is not normal to hurt constantly. You learn to accept that this is your life and take each day as it comes.
@@pattiesmith6193 no i completely understand i was just saying how it looks from an outsiders perspective
Chronic illness is so awful. The guilt that we feel is immense. Your understanding is amazing! It means a lot to have an understanding and caring partner who doesn’t pile onto the piles of guilt we have.
Seriously. It’s wild we feel guilty for something that effects us too but that’s how others made us feel.
I’m glad he’s so good to her and doesn’t add to her stress levels.
The explaining will never go away - u will always feel that way. The right doctor will change ur life, validate and understand everything that u are going thru. I feel your pain, as a chronic illness warrior my self. You have an amazing support system, that hubby LOVES u so much! Don't give up!!!!!!!
As a chronic pain/illness mama I FEEL THIS SO HARD. You're doing amazing. We got this
😢 I feel your pain. Chronic illness especially with rheumatoid arthritis is especially challenging because people don't "see" any thing wrong with you as it's internal inflammation 24/7. I've had people actually say to me " I don't see anything wrong with you." And that in itself is PAIN MENTAL ANGUISH 😢😢
Yes exactly but that's small minded people to think that just because they don't see it doesn't mean it's not there because I've been going there same thing for 20 years. I hate those people who judge me and wish they could walk my most day in my shoes. I wear dresses every single day and put face powder on and eye brows and because I look ok and try to act ok is saddest thing ever and for people to judge us and be rude to us. We wish it was something so easy to change but we can't heal ourselves and drs just throw medicine at us instead of healing us is depressing it self.
I understand completely 🥺
The invisible illnesses are so hard. People don’t see what we go through so they just expect us to do everything.
We literally can’t. I tried one day, right after school ended we went looking for a bike as a special gift and I napped for 3 hrs when we got home and couldn’t make dinner.
I was so tired. 😢
After having breast cancer, the chemotherapy and radiation caused a complex autoimmune syndrome called CHEMOTHERAPY SYSTEMIC DAMAGE SYNDROME. IT is the umbrella label for osteoporosis, rheumatoid arthritis, chronic fatigue, fibromyalgia,
osteoarthritis, and psoriasis arthritis, diabetes and many more. The only person that can somewhat understand is someone who has this, or myhusband! He has seen and understood from day 1. I may not be rich, but I hit the lottery with him!
I totally understand this! When I was 12 my funger swelled up, the dr. Asked me if I bumped it on anything and I said no, then he asked my mom and she said no she didn't bump it in anything. I said, if I bumped it on something, I would remember. Then right before I turned 13 my toe swelled up. My mom took me to another dr., he looked at me and said I believe she either has lupus or rheumatoid arthritis. He did bloodwork and sure enough, it came back positive for rheumatoid arthritis. When I got pregnant with my oldest I stopped having systems and after I had my son, I didn't have any symptoms either. I went and got tested and my test came back negative. I now have osteoarthritis in most of my joints because of having RA. I still get tired really easily, when the weather changes I feel like I have the flu because all my joints hurt and there are many times when the only thing that helps is literally laying down and most times taking a nap.
Chronic illness sucks! Hope she gets the answers she needs.
May I ask what it is to avoid searching about for it
@@oscarcat1231You should always search on your own to get the best possible chance of tapping into your own knowledge and avoid brain rot 🫶
You are the best mom in the world. You are so strong. Keep going❤️❤️
I’m right there with ya, girl! Chronic illness sucks!
❤❤❤
I have Lupus and Fibromyalgia, i totally understand were you're coming from. Stay strong sweetheart.
If she had Covid shot and then the detox from that
Same. Some days, weeks, months are hard ..
I’m at 5 autoimmune disorders.😂 I can’t even cry anymore. Not worth my lymphatic energy. Do you guys think her stuff is Lupus? That’s what it seems like. W the fevers and all. I hope she figures things out. The diagnostic part is probably the most frustrating. I didn’t get duly diagnosed till 3rd rheumatologist during a 15 year period. Now, it’s taking a little less than back in the day. I pray she doesn’t have to wait too long. Cause we don’t get better till we lose the denial and start taking the meds.
@@lucycarola that's what I was thinking. I always run a low grade with high possibility for it to climb. Feeling sore all the time, constantly tired and slow moving. Anything environmental feels like it's trying to kill me.
It sucks that you have to be out of remission to test positive. And the meds are as bad as the disease. I am hanging in as long as I can before getting in the. Being once you do you can't stop.
@@jeaniedeveau164 i hear horrible things about Plaquenil but it works perfectly for me. But, w CFS/ME & RA, & pretty bad bp I have been put on Arava & Carvedilol. And that’s it! I’m barely functional now. Doc says it will take me a good month or two to feel better, but it’s lucky I’m now on sick leave. Unpaid or not. Cause my job has no mercy on my attendance in spite of knowing ALL my health issues. They refuse to accommodate me and it gets a bit harder. MCTD was my last diagnosis I thought. But, my RA factor is extremely high. My kids are 13 & 17, so, I’ve made it this far. But, gotta try to prioritize health over a job (an awesome job that I love) that refuses to treat me like a human.
If they have not already checked her for Addisons Disease then PLEASE ask them too. The symptoms you have shared match up. Fevers and all.
My niece has Addison disease, she needs to eat more salt!!
@@melissafrenette1071 this would also make sense if things like ramen make her feel better after eating them cause the sodium content in these foods is insane. she really should look into it
@@melissafrenette1071Good thing she's getting a ramen then, nice coincidence!
The symptoms match a huge amount of conditions. We’re not doctors😐
@@user-lh8ph3yo5f which is why I said to please discuss it with her Dr. I never said she actually had it. That said, when there are people with hard to diagnosis illnesses sometimes others can help with ideas. I personally have Addisons. Her symptoms are extremely similar. Many Drs don’t test for it. It took me a couple of years. So why would I not mention it?
What a wonderful husband!! He speaks the truth!
You are a GREAT MOM and don’t you ever doubt it!
I am chronically ill with endometriosis and fibromyalgia. My son has only known me ill. He is now 22 and my carer, if you ask him, I am the best mum, but I always feel guilty too. I really know how you feel xxx
I have both too. I’m so sorry.
I hope you get better. I'll pray for you, young lady. You are a wonderful mom. Never doubt that.
As someone with chronic illness, our illnesses are incurable so we won’t get better. I know you mean well tho❤i suggest in the future saying “I hope you get relief soon” when people have chronic illness because it’s really hard for a lot of us to constantly hear “get better” “are you better yet?” Ya know?❤
Chronic illnesses suck hard! I’m so sorry you are going through this. Hang in there and lean on that man there he sounds very supportive.
i was also sick like u took forever to find out i had fibromyalgis, i could not care for my daughter at all by the time she was two..i had to have alot of help, its been a long road to recovery, it took alot of education on the syndrome, and a ton of self love, ive been sick most of my life, but at 58 ive never felt better,,prayer helped the best, keep positive,
I’m so sorry for you Kay I hope you feel better soon 💐❤️🩹
Chronic illness is chronic
Doesn’t get better
Needs empathy
@@ninifire4282 still we can hope
As someone with a chronic illness i feel you. I was diagnosed with Fibromyalgia and the way you feel is the way I always feel. If you have tested negative for lupus please look into Fibromyalgia. It can become manageable
I have fibro too and I am feeling pretty awful at the moment. Flu like symptoms and body aches. The body aches feel like bruises, when you touch them they really hurt. And I get pain around my neck.
I went to a Rheumatologist 17 years ago and she ran a lot of blood work and other test to rule out everything & determine it was fibromyalgia. After that diagnosis I did research of my own and pretty much everything that was mentioned about FM was right on with my symptoms.
Hope you feel better soon! ❤
I was going to say the same thing. I also have fibro and experience the exact same thing.
Sounds like fibro! Its hard but you can manage it with tramadol and gabapentin
@@loriweaver9050I get that sometimes. It's rare, but it's like parts of my skin feel like a sunburn.
Sounds like fibromyalgia
The fact that she still try’s her hardest even when she is sick. She such a kind caring person and worries about everyone🩷
I too have a chronic illness. It's called Fibromyalgia. I have been dealing with it for nearly 12 years. Accepting that you will have good and bad days. Embrace the good days and those bad days embrace them as well. You are a warrior and the heck with what others say. We are here for you.
What a real and raw video! My husband is so sweet like yours too. Hang in there mama. We got this! Your daughter will grow up to be resilient and compassionate. 💕
What a lovely, understanding husband! In every one of these videos, he has been nothing but supportive and upbeat.
Oh I have fibromyalgia
Now what do I do? Thanks for help❤
Anyone on here had success please?
Kay is the best mom ever and I'm so glad Tay is such a good husband to her because having support is huge when you have a chronic illness ❤
Wishing you and those fellow sufferers healing and JOY!
🙏🕊️
It's so hard being chronically ill. You are an amazing person, Kay. Honest and true.
I have Lupus and I know exactly what she's feeling. Hang in there sweetheart 🙏💞
Exactly.
Hello fellow Lupie! 💜 I've been diagnosed for 25 yrs now. Along with Fibro and kidney disease FSGS. My son has Lupus as well. 😔 Every day is a struggle but we are stronger for it! 💪
I have Lupus too , along with ibs,Crohn's , colitis , proctitis and osteoporosis and I'm due to have a colostomy cause of fistulas caused by bowel diseases . Nobody understands how these chronic illnesses floor you some days cause they just see a healthy looking person in front of them
Lupus is very often a side affect of late stage Lyme disease and is treatable❤️ look for a functional medical practitioner who specializes in a root cause approach and you can find healing. I’m speaking from experience.
@@sarahmoore1312I have Crohn’s, lupus, RA, stage 4 kidney disease, an ostomy, fibromyalgia, etc and have had sepsis 3 times. I understand! Reach out anytime!! ❤❤❤
Poor girl. Protect her at all costs. This is so cute. I feel so bad for her
"Your deserve better" really hit me. But it's not our difficulties or shortcomings that define who we are. It is who we are DESPITE hindrances and flaws and what we do to handle or overcome them.
Stay strong!
You are so much more than that. A sickness does not define you and I know how much you love your husband and kids and how well you take care of them. It’ll get better ❤❤❤
Lovely and true❤
@@NovasUA-camName tyyyyy, just stating facts tho
I have fibromyalgia and arthritis. You are a warrior Kay and a wonderful wife and mother.❤❤❤
I also have fibromyalgia & it is rough. I also have 5 children, so I try to push myself for them.
I have it too. It's awful
Same. Also have a heart condition. Now that I have an enormous scar on my chest people definitely treat me differently than they did before my surgery.
I’m “allowed” to nap and take my time now where I was referred to as lazy and a drama Queen before. Smdh
@@torakfett3351 bless you 💗 rest all you need to, heart condition or not. Unless you have an "invisible illness" you'll never understand. My husband has been with me throughout the entire ordeal from test after test until diagnosis and throughout the last 18 years or so and he still doesn't quite understand the level of pain and fatigue etc I have to try and cope with. I wouldn't wish for my worst enemy to go through even half of what we deal with
I also have fibro and was diagnosed with ME/CFS first
Sending hugs
People underestimate the emotional toll chronic illness takes. Having to explain and justify your existence is exhausting. I hope you get answers soon ❤
I understand, I've been there for 34 years with chronic illness, and it does suck!! Give yourself some grace, sweetie! You have a loving and compassionate husband! You are a beautiful and loving wife and mother! Take one day at a time, and give it all to God! He's up all night!! ❤
Sounds like Epstien Bar. Always tired, feverish, chills, and body aches. HOPE YOU FEEL BETTER 😊
I had mono and I swear it caused so much problems and still dealing with 21 years later. I am trying loose weight to make the symptoms better. One thing it’s caused irregular periods.
That is how fibromyalgia started with me.
I've got arthritis and have "arthritis flu" sometimes, many times a week.
I've had those since i was 24.
I sympathize with everyone fighting a chronic illness, and autoimmune disease.
MS does too.
I have rheumatoid arthritis, inflammatory arthritis, fibromyalgia, chronic pain, broken back and many more that aren’t relevant to this video… what is arthritis flu I’ve not heard of that before? For those with fibromyalgia and have a pain doctor I highly recommend asking about lidocaine infusions. They are once a month and really help with the symptoms of fibromyalgia. Also highly recommend a pain management clinic.
@@janelleconnery5535 what are the lidocaine injections just injections into the sore spots in the back ? Because I've had those before and didn't help me much of a difference for me to notice. I do get heat and injections until my spine but it kills the nerve pain enough until it starts growing back little by little until it starts hurting again. But it only helps that area.
@@janelleconnery5535Lidocaine is really hard on the body.
I never heard that term before arthritis flu but I know exactly what you mean because I have it too.
I am a mom too with a chronic illness, I feel the struggle of always explaining and doctors writing you off for 1 reason or another. You are a great mom and it can be hard to not beat yourself up, finding a therapist to talk to can help you through this struggle also, they cant answer but getting stuff off your chest or having a simple convo will and does help.
Oh sweetheart, I completely understand. It's been over 10 years trying to figure out why I'm sick, and sleeping all the time. You are strong. You got this. I would be up to talking to you; if you were up for talking. I am so proud of you.
I'm with you, girl. I've had cronic illnesses most of my 63 years. It sucks. Thyroid and other issues. It sucks
Yep me to and my daughter have thyroid issues, my daughter has been on levothroxine sense she was 12 and she is 21 now
@@joanncampos8675
I’m 53 and I’ve had hypothyroid since I was 16. I’ve been takin levo thyroxine or Levoxyl also known as Synthroid lol thank God with that I’ve done pretty well. I get my blood taken every six months and sometimes they have to increase a little bit of medicine or depending on what the levels are. I went years without having to change the dosage but lately it’s been changing a little bit. I’m sorry that you guys are suffering from it. I also have lupus. But I’ve done fairly well with that. And it sucks but I know it could be worse, as far as the disease, the way it can go sometimes
Hoshimotos 🙋🏻♀️ it sucks when it’s up and down
Thyroid issues and fibromyelgia as well as some other diseases that go with them. Its hard as a mom with chronic issues. But your kids will still love you as long as you show up and just continue to love them
I love this thread because even those who get regular lab work, tests, etc have no clue that you have to SPECIFICALLY ask for your thyroid level to be checked..Even then; getting answers is a struggle. Chronic pain since 14, Cervical Degenerative disc disease, Spinal Stenosis, Scoliosis..ANY fatigue/pain cycle which turns to guilt/anxiety (or vice versa) is battle.
Being Understood is Everything. Giving ourselves the grace & empathy despite all else is Soo important. It's so easy to feel the weight of the world& tasks piling up..Even if you have 1 person on your "team" of support can make such a huge difference🫂✨ Sending lots of love& hugs to All suffering with ANY invisible/misunderstood illnesses or health issues.
I was just diagnosed with fibermyalgia, widespread body aches everywhere with fatigue and depression. It's crazy, but it's an everyday battle. Some days are real bad, others are not so bad. You got this!!!
I had Fibromyalgia for about 20 years. It took my doctor 10 years to diagnose it. Or, at least after 10 years he gave what I was going through a name which was Fibromyalgia. About 3 years ago I was healed of Fibromyalgia!!! I waited about 20 months or so to tell anyone because I wanted to be sure it was truly gone! If you you’re a believer, there’s hope for your healing too! 🙏🏼
How did it heal? @@deniseschirr2431
Chronic illness is hard. Prayers. I feel you... My family doesn't deserve a sick wife and mom. Sometimes you don't find the answers. You just learn to keep trying and to keep getting rest and to not make plans or promises. Prayers, I'm so sorry you are going through this.
You are so blessed to have a loving husband. Chronic illness is 1000x worse when you don't have anyone to support you.
Kay, there are so many women (including me) who understand how you’re feeling & are going through very similar experiences. YES, it really sucks when you’re hurting & feeling awful, but remember that NO explanations are necessary. You’re loved and appreciated exactly as you are! ❤
Chronic pain and illness is horrible!!! My heart breaks for you! 💗
Yes and when you get pain meds the pharmacy treats you lile a drug addict
Chronic sickness is literally the worst but you stop that right now, you are an amazing mom and an amazing wife, everyone here can see that from watching 30 seconds of any of your videos and I’m sure there are literally thousands of people that will agree with me. You got this girl. I know it’s hard and it sucks so much but don’t ever put yourself down like that ❤❤❤
Kay days like that are hard, don’t let them keep your spirits down. It took me 3 years to get the wrong diagnosis, then 10 years trying to figure out what I was doing wrong that I kept still getting sick and doctor after doctor kept telling me that it had to be accidental exposures. Then I met the right doctor, one year of testing, and got the right answer. Got on the right medications and just celebrated 18 months of 0 anaphylaxis and it’s only been 2 1/2 years since I got the right diagnosis. Listen to your body and be your biggest advocate. The journey may be long and horrible, but you will get the right answers. If you aren’t already, find a group in your area or online for chronic warriors. We help eachother out, keep eachother motivated and can truely understand what you are going through.
Your not alone . I have been 7yrs sick trying to figure out . Don't give up .
I can definitely understand and honey I’m so sorry cuz it sucks! I have chronic fatigue syndrome, chronic pain, fibromyalgia, restless leg syndrome and finally was diagnosed 2 years with psoriatic arthritis. This an autoimmune disease… yes, I understand! Please get yourself a great rheumatologist! They need to do blood tests. They’ll find whatever it is. Take care ❤
Right there with you. 😢
I deal with most of these also along with new found heart issues I’m trying to get figured out and I’m currently dealing with being short of breath, after a shower, I didn’t use to be that way weeks ago, chest pain that cardio thinks is musculoskeletal because heat takes the tippy edge off for a few mins and the meds for angina aren’t really doing a whole lot at the moment🤦🏽♀️🤔I understand and am here to vent if ya need to🥰🙏🏽🙏🏽
I have chronic illness and chronic pain from my illnesses and was diagnosed at 32 so I completely understand her feelings. I am 44 now and learned over the years it’s ok to not be ok and just do what we can do that we are good enough and not a burden because of our illness. So tell that beautiful inside and out wife and mama bear she is extra amazing illness and all. Our illnesses do not defined us. Tell her I said get it girl.! we got this! ❤
Hugs. I've lived with three chronic 'challenges' for decades. I have two sons who are now in their 30's. We get through. Listen to your sweet and supportive husband.
I can totally relate to chronic pain. My prayers go out to you Kay. 🙏❤️🙏
I have a chronic illness & totally understand!! Keep pushing to find answers & don't let anyone tell u that it's in your head!! Keep your head up!!!
I suffer from several chronic conditions. It's hard to deal with on every level. God gave you a miracle baby and a great husband. Find help for your mental health as well. You don't have to explain yourself to anyone. Praying for you ❤
Just seeing this, I finally know that someone understands me. I started sobbing about 5 seconds in. Thank-you for sharing. Prayers for you and bless your husband for being such a good man. An angel. I lost my angel husband to Covid 4 years ago. So I have no one who cares for me like that, but I value this because I remember that love and I feel it again and I feel understood. Good luck and thank-you.
Taylor just keep loving her and supporting her like you are. You’re a great husband and father!
Girl, you are the best mom ever! So many people don’t put half the energy into their family that you do with nothing in their way. You’re pushing through every obstacle as best you can and you’re killing it!! Give yourself some of the grace you give your husband and daughters every day! ❤
It’s super amazing to hear Taylor being so patient and understanding with Kay who is so frustrated with being sick. I can 100% relate with Kay, I have lupus(SLE) and fibromyalgia, Raynaud’s disease and primary immune deficiency. It takes a strong woman to get up each day and battle her way through being chronically ill and it also takes a strong and loyal man to stand by her side & to hold her up when she can’t. Taylor, I’m so happy Kay has you!! You are one amazing man, don’t ever change! Your loving heart and kindness is what we need more of in this world. ❤
I didn't know you had a chronic illness. I stumble upon your pregnancy photoshoot and I fell in love now this video. You are a Warrior Kay and you have a loving and compassionate husband by your side. As someone who has a chronic illness I felt every word in your whole statement. Stay strong ❤ rooting and praying for you Kay. Your biggest fan right now ❤
I deal with the same thing. Im a mother of 3 and I work full time and I suffer with anxiety adhd a ton of autoimmune diseases, severe depression, always fighting bc my partner is a vet and has several issues , currently he won’t stop fighting with me the last 4 hours. You’re lucky you have a great guy to help you. Theres people like me who are basically alone.
❤ sending you lots of love and energy.
I’m trying to rush this before he sees what I’m writing.
And I have had these insane headaches and muscle aches the last month now.
God help me. 😢
God help you and bless you my dear 🌹🤗❤️
Why stay with this man if its so bad? U wud be better off on ur own and not having the stress ontop of ur illness, u need to put urself first
Check your thyroid! Even if blood tests show normal numbers. Find a functional doctor, especially a Chinese doctor. 90% of Conventional doctors only go by book, and they are useless in times like this.
I am so sorry you have to deal with those chronic issues and have no support from your partner. Prayers to you for answers to your needs.
Feel ya. 10 yrs of pain getting worse n no answers. It gets to ya😢
I'm so sorry. It's just so hard.
My family got so angry at me when I said I wasn't looking for a cure anymore. All the changes in medication and hope and collapsed former hope....
It was becoming a symptom in itself. I couldn't keep doing that. Especially since the American medical research was only doing research on women lying about pain to their doctors. Years and years and millions and millions of dollars as woman after woman was treated like a liar and worse because they did every permutation of their research to prove that women lied to doctors about pain. Every single one of them done by honest researchers showed women didn't lie to their doctors about pain.
So they put a guy in charge of the research and he made a slide deck presentation that told doctors that there were no tests that could detect this pain (BS I demanded several that showed clearly I was in pain.) And that narcotic pain medication didn't work.
Yet, nobody saw that and asked why, if we didn't have pain, would he specifically say that this drug doesn't work on our pain.
Isn't it clear that he thinks the pain is real but wants to be sure narcotic medicine isn't prescribed for it? Then he dumped all the research funds for fibromyalgia into cancer research. That's worthy of research.
Why didn't anyone say he was both a terrible doctor and researcher, and logic clearly wasn't his strength?
But hate works like that. He clearly hated women and wanted us to suffer. His stupid slides are the most damning medical misogyny of this century.
I look forward to the day when that idea is mainstream rather than the idea that women should suffer.
Those tests were a sleep test that showed I was in so much pain that my body couldn't rest. A blood pressure reading way high enough he was scared for me and 30 days later, after I demanded narcotic pain medicine and if it was still high I would take that medicine, my blood pressure was almost too low.
And the third test that showed I was in pain was a viral replication test that showed my body was fighting herpes zoster, the virus that causes chicken pox and Shingles and the viral load was 6 times more than what a positive test for either of those illnesses would have. I also had 4 times the viral load for a positive test for Epstein Barr, and there were also two other viruses actively replicating. The symptoms for at least the first two include a lot of pain.
Three tests showed I was suffering from massive pain. I have since learned that I had been self hypnotizing to manage it. The times I have felt it without hypnosis or drugs is simply horror. Just horror every second. I don't recommend it. I would never put it on another person willingly.
It's depressing how many people would and how many have done that and still hold licenses to practice medicine. Forcing someone to be tortured 24/7/365 should cause you to be excused from the profession. But we'd have none left....
I guess that doesn't need to be a bad thing.
I have a few illnesses and feel like a burden to my family. I've been on permanent disability for 14 years. Trust me your family sounds so compassionate and understanding. You don't need to explain your diagnosis to anyone. My 9 year old granddaughter heard me saying I was a burden to the family. That baby girl came up to me saying that I will never be a burden and that she's always gonna be here to help. Trust you husband and you are an amazing wife and mom. You've got this. Log your flare ups and remember to put what your symptoms are that way you have everything written down and can provide that to your doctor. Take care
Omg I am going through these EXACT feeling. I have a chronic illness and many health issues & feeling like this weighs HEAVY on you. I can bet your husband & baby don’t ever see you as a burden but I know the feeling all too well of still feeling like one no matter what they say. It’s really hard. I’m so sorry you are going through this. It helps to see I’m not alone. I hope it helps you to know you’re not alone either. ❤️ stay strong mama. You’re amazing! Your smile helps me.
I have multiple chronic illnesses and disabilities, so I totally understand her pain ❤❤❤
Even though Some days are more hard you are a amazing wife and a adorabel mom ❤
One of my good friends grew up with a chronical ill dad (migrains that were on daily base) and she still loves all the things they do get to do together and she loves him to the moon and back. You Will be just fine ❤
Your daughter will admire your strength one day and appreciate everything you did for her. No worries, you’re good.
Yes
I grew up with a sick mom and it was hard for her. But that sick mom is who taught me how to cook, how to do makeup, who encouraged my desire to always have my nose in a book and who supported me as I taught myself creative skills. She's who supported me as I graduated at the top of my class in HS, went on to double major in college, and then went on to get my master of public health at one of the best programs in the country.
Oh yeah, and I was sick too, so she taught me how to take care of myself and be resilient, to not let myself drown in all the ableism I would experience for the rest of my life.
Your daughter is so lucky to have you as your mom. She is going to have a wonderful life and so will you. She picked a good one ❤
I have RA, chronic fatigue, depression and fibromyalgia!! Raised 3 great sons!!
I’m 60 and have had symptoms half my life.
Thanks Mom!!💜
I grew up with her being sick off and on!! She raised 3 kids!!
She was still a wonderful Mom!!💜
I would not have traded her for anyone else!! ❤️
Praying for you!!🙏
I understand how you feel. I have been dealing with IBD since I was nine. Being sick sucks.
I have UC and it sucks
@@srivera4339 I am so sorry. I hope you are doing better.
@@Loveroffood41 Thank you I am doing better ❤ I hope you're doing good as well
@srivera4339 Well, with my crohn's I am doing well. I would suggest keeping an eye on your gall bladder and liver. I got diagnosed with PSC liver disease in 2022.
Same 😢 mine just started last year. Doctors still haven’t figured out what’s wrong but I’m pretty sure they’re going to diagnose me with UC. It definitely sucks 😢
I have myalgic encephalomyelitis (M.E) along with a few other illnesses, but mainly my M.E gives me lots of sickness, flue like symptoms and fatigue. Definitely worth looking it up as there isn't one test that will give the diagnosis. It took me from being 10 to when I got a diagnosis at 14. Hope you get some answers soon. Xx
If you are from the UK, I love you guys so much. Back when American medical research was behind paywalls and only tried to prove women are liars, the UK has medical research attacking reality and available for free to everybody.
I found coping suggestions and some of the things I read pointed to tests that would identify various problems.
Eventually, I landed on Ehlers-Danlos as the genetic component of my illness. I was able to identify a metabolic disorder as the source of the exhaustion 15 years ago. It wasn't until last summer they FINALLY moved away from countless versions of medicalized IAIYH (It's All In Your Head) syndrome and identified the difficulty is in the mitochondria.😂
I can't tell you how good it felt to know that every single doctor who belittled me or told me that I "wasn't allowed" to read medical research??? All had the answer sitting in their offices and they didn't know it.
The idiot who stopped my explanation of a study that I read and he looked down his nose at me and gave me the cold stare of white-masculine disapproval as he told me, "I always know that I am the smartest person in the room because I graduated top of my class at Harvard.
I hate that I didn't ask how he handled alumni weekend. Do you think he stood outside so he wouldn't have to demand SAT scores from all the other smartest at the top of Their class, recipients?😅 Did he even know they have a new one every year?
He wasn't even the smartest person in THAT room if he couldn't comprehend his many roomsfull that he couldn't enter to keep his statement true.
Whatever his true room status, it is abundantly clear that the US can't compete with countries that provide healthcare to everyone, even the sick ones.
They can't even comprehend the problem because it is in the entire structure and it's called profit. A fish doesn't feel wet and a capitalist lives in profit.
Profit might make business innovative and nimble (though that's not looking likely to be the resulting science-driven conclusion) but it is a death knell in a literal sense as it is in a metaphorical sense for healthcare systems. So many people die young in America that our life expectancy was falling rapidly before Covid. We are the only Westernized country where that was the case.
Covid might allow folks to fudge the numbers for a while, but if we can maintain our data collection in the next presidency and the next after that, we won'tbe able to unsee it.
That's only if Republicans can be trounced. It could go either way at this point. A 2nd Trump presidency and implementing Project 2025 is simply the death of data. Trump showed his preference when he refused to allow us to test for Covid for a couple months because if you don't test for Covid, you don't have Covid cases.
Trump was too stupid to realize he wasn't supposed to tell us that. If he'd kept his mouth shut, Covid cases could have been hidden for who knows how long. Look at all those children who go to deadly schools and they open for classes. We made it illegal to study gun effects in this country. Therefore, where do you see dead students? Most shootings never reach beyond the district's borders.
So, thanks to the UK. You post the truth and it meant everything to me at least mentally. Your studies didn't blame the victims of these disorders. And you let me see that, yes, they were depraved. And yes, there were solutions for some aspects.
I was even more shocked that I was allowed to join an ED support group (though I stopped after a year because I don't want to ruin a good thing) and I felt valued and seen despite the best efforts of the system I have to swim in.
I hope your people see how valuable the NHS is simply because it values the lives of everyone.
I know Trans folks aren't getting much beyond life, but I am hopeful that the basic bricks of the NHS will assert itself and the people will say that they value every life.
But again, my deepest appreciation to the generosity shown me when I was certain it was dead and I was wrong.😂❤ can't go thinking I'm wrong, right?😂😂
I understand her pain. When you feel that bad, and you want so badly to do everything and be there for your family, it is really hard. Big hugs. I have a chronic illness. She is a warrior, remember that!!
I felt this ! Praying for you !
As someone who deals with chronic illness and a single mom of two, I hear this! You r amazing and you will get through this. Remember your perception of memories and your child's perception of memories if so different. 💜
I hope you feel better Kay!!!!! I think you're The best Parent Ever!!!! Don't forget we all love You so Much!
My daughter is about your age and also has a small son. Dealing with chronic illness for over 15 years now she has struggled so much just explaining to doctors and trying to manage pain with her daily life. It took a long time till she was finally even diagnosed with what she had.
Blessings to you and all the Best! Hang in there! ❤
I've felt like this for so long . My boys love me thru it, they know I do my best. We are who our children need an they are who we need. You are a great momma. Rest when u need to love.
Awe, sweetheart. I hope they can figure it out ASAP. I completely feel for you. I've gone through 3 chronic illnesses and no answers for years and years. One I am finally medicated for, which is good, but the other 2 are hopeless. I truly hope you feel better. Don't ever give up. You have a lot of people who love you. Never forget that. ❤❤❤
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Aww I hope you get better Kay we love you so much you don’t deserve to feel this way god bless you I’m going to pray for you ❤❤❤❤❤❤😢😮❤❤❤
As a type 1 Diabetic I felt this in my soul! ❤ I'm so glad you understand and don't make her feel worse. 💔 People sometimes don't understand why I'm so tired and unmotivated.
I have rheumatoid arthritis, so I understand you on so many levels. It's rough. My rheumatologist tried so hard to talk me out of having another baby, but we wanted another. It's rough being a mom when you are in chronic pain and suffering, but it doesn't mean you're not giving your family everything they need from you. You got this, and just remember to try to take it day by day and listen to your body. Rest if you need it, and don't overdo it when you're feeling well. Prayers for strength through this.
Bless you. You are a true trooper and a wonderful mother. K ow that you have us all in your corner 🤗.
I understand sweetheart some of us know exactly what you are going through and you are an amazing mommy and wife I hope they get to the bottom of it
I deal with chronic illness and I know exactly how she's feeling. It really sucks. I spent 3/4 weeks of this month in the hospital. It took us 10 years to figure out which system in my body it was in and another 5 to figure out the problem. Now, we are working on hitting and equilibrium. Keep fighting. Keep advocating. Hold on to the little things. I wish you all the luck.
You're so strong. Even when you don't see it yourself.
I hope she feels better soon!😢❤
Kay, I understand completely. I too suffer from chronic illnesses and chronic pain. Woman, you are a warrior! I know it's easier said than done but keep your head up! They will figure it out eventually. You seem like the best Mom and wife. Youre such a sweetie too. Sending good vibes and healing vibes too
I am not a mother, but I do have several chronic illnesses.
I have had that same breakdown to my husband multiple times over the years.
I am so thankful you have a great support system. I hope that doctors take you seriously and end up putting together the pieces. Best to you and your family. ❤
I know how hard chronic illness can be while raising littles. You are doing your best and always there for your family. Lean on your amazing support system when needed. You got this and I will send healing prayers for you and your lovely family. 🖤 Hang in there baby!*picture that old 90’s poster with the kitten hanging from a branch on a tree😊
I too have chronic illness, with an autistic child. I feel your pain and it doesn't make you any less of a mother or a bad mother. It makes you a stronger one because even when you're not at your best you are still busting butt to take care of what needs to be done.
So sorry. I can relate, ms, RA and fibromyalgia here. Adult autistic and epileptic son. We carry on. ❤️Sending prayers of healing vibes
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@@gcarnes5941ugh. I’m so sorry that is a lot.!! I have osteoarthritis pain beyond that which they finally determined to be fibromyalgia which basically means everything hurts. You know how it is.
My husband had an eye issue and they thought he had MS. It turned out. He did not, but that is really a huge huge deal. ..😢
I go through the same thing. Reading my Bible always helps lift my spirits and gives me physical strength to get through the day
Oh, darling, it’s out of your control. You are doing your best and that’s all you can do. It’s scary and depressing and you are amazing. I’m sorry you have this stressor. Be easy on yourself. You have great support.
I feel this. I was always upset about why I felt so tired, and got sick all the time. Finally I got diagnosed with MS, and as much as it was upsetting to find out I have an incurable, progressive condition…I was also relieved to finally understand why my body and mind were the way they were.