Optic Neuritis in Multiple Sclerosis
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- Опубліковано 12 січ 2016
- People living with multiple sclerosis share their experiences with optic neuritis, and neuro-opthamologist Tariq Bhatti, MD from Duke University Medicine discusses management and treatment options. Learn more at www.nationalMSsociety.org/vision
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I had 3 days of steroids and now have the vision of a hawk. It’s been about 20 years.
Dr. Bhatti diagnosed me at age 17! I'm 29 and doing okay 😃👍
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How long did it take for your vision to come back
@@chocomamat4243 It took about a month maybe 7 or 8 weeks for it to be completely better. 🧡
What was your treatment plan? Any specific type of medicines? Did they continue throughout this duration? I am asking because here it seems doctors can't easily diagnose it, so more information may be helpful. Thanks in advance and best wishes.
I was diagnosed with ms at 15 I’m 26 now, past few days been experiencing Optic neuritis! This video really has helped me out understanding what I’m going threw
Thank you for this video. Bless these individuals.
I love Judy's accent. It's so soothing.
Hi Everyone, im a buddy in ms. So glad to find all this and all you. I usually avoid info.(denial) But symptoms are worsening and so Im going to face this head on.💙
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Love Judy's accent!
It is very soothing!
She should become an audiobook narrator
Thanks for the info..i was also diagnosed with optic neuritis and still taking my oral medications..done with the iv steroids..hoping that i could recover and bring back my normal vision... sooner..
thank you for this educational and emotional. To all who is suffering from this disease, god helps you all to go thruogh all these difficulties and have beautiful healthy life .
thanks to all those strong brave women ..
yea right, why did this so called god give us ms though. stfu please
Thank you for putting this together. This is really useful as a medical student trying to understand how optic neuritis affects patient's lives.
Honestly did you really need a video like this to understand how this condition effects a PERSONS life?
@@Phoenix_Atlas if you've had any experience with chronic illness/disability and incompassionate doctors, you'll know that future doctors seeking out more educational resources about how patients experience symptoms and day-to-day disability is a huge improvement over the current state of medicine.
@@58209 I do have chronic pain and chronic illnesses
I too was touched and honored to hear these women’s stories, and I’ve always considered myself a compassionate doctor! So yes, i agree this is a spectacular video ! Just admitted a beautiful woman with this diagnosis- for Iv steroids. I hope she does well and only time will tell if she has ms. Her husband was so scared for her and they have been trying to have a baby
I have big shadows in peripheral vision couldnthis be the same
how to distinguish between diabetic retinopathy and MS related eye problems?
Optic neuritis was my presenting symptom.
It was mine too. 😕
NativeTexan how are you doing now?
I had it once in my left, six months later in my right. That was when I was diagnosed with RRMS. I can't drive now unfortunately.
How are you now?
My first flare up made me blind in my left eye. And is now affecting my right less than 6 months later even with treatment
How can I get in touch woth you doctor? I have double vision and optic neuritis. It came on basically overnight. I also have lots of other health issues. I have had blindness in my left eye once for a short amount of time.
What about feeling of pins and needles in 1 eye, and episodes of cross eyed especially when im reading? Anyone else experience that?
Less red in my right, everything looks crooked and smaller in my left when flipping between them, and double vision where my right is looking above the target. One of the scariest symptoms I've heard so far, firat reason I've had to get checked out
Is it normal to get pain when you move your eye if you look at screens all dayv
That was a informative article, here are a few more tips for a treatment for multiple sclerosis
Get plenty of rest
Exercising, yoga, tai chi, meditation, deep breathing, hypnosis,
Use green juice, wheatgrass, fruit and veg - organic are best flaxseed oil, evening primrose oil etc.
Some things to avoid if you have multiple sclerosis are alcohol, chocolate, dairy products, eggs, hydrogenated oils, margarine, milk, red meats, commercial salt, sugar, aspartame.
(I learned these and why they work on Denelle Multi Care website )
That is wrong, Milk and things containing vitamin b12 are good for this, not bad.
I had no idea about this I’ve had this going on for 10 years! Happens a couple times a week. I just figured it was a side effect of migraines.
Yeah so Multiple sclerosis most famous phenotype is called relapse-remitting MS
This is exactly what i am going through they keep messing up my diagnosis
Got moon face and acne from prednisone
I’m starting with my pc at her earliest apply available. I’m. Falling a lot and hurting my self. When the vision changes I run into things. It the pain In thr long bone of my left arm that is almost as bad as the lose of balance. My nickname is tippy. 🤨
It's sad but true I woke one day with what looked like camera flash in my left eye a week later was diagnosed with Optic Neuritis then MS I got some vision back after IV steroids but that was 13 yrs ago and I still have problems when it's real bright or dim I cannot see out of that eye. I would rather not walk then go blind. I'm still walking but am aware I could go blind.
Looking for ms support ♥️ I have uploaded just 1 ms video at this time but I’m having a really hard time coping with it ... hope u have the chance to check it out ... ua-cam.com/video/9VekoY7PiGE/v-deo.html Amy Ward
Was the camera flash similar to when you blink and you still see the light ? I’ve had this and it was a big one that lasted a few minutes is this the same ?
I started noticing something with one of my eyes recently. With the right one open, the colors seem normal(like how it always looked). With my left eye open, the colors seem really off. It's almost a dull, grayish color.
This all happened a few days ago, and I still have it. Looking up causes for that all seem to mostly point to ms. Who knows, though! Just have to wait it out, I guess.
If it does end up being that, I'll leave another comment here.
No one seems to talk about the pain. I just got diagnosed, due to dizziness and falling. I woke up this morning and my left eye was like stabbing pain. I was screaming. I had to go to the ER. I got a steroid shot and it helped. But I just keep feeling like there is something in my eye. I’m scared to get this again!
I went blind in my right eye over night that was 2 years ago never came back new my left eye is starting to go
Janet Morgan did they put you on intravenous steriods?
My vision went blurry, that's when I knew it was time to go to the doctor
Supreme X any updates?
Same
@@missluvmoney sorry for the super late reply. But I am about to be on my fourth medicine but I ain’t took any meds since COVID started.
I had it in both eyes at the same time for 4 weeks when I was 24
Then how were you cured?
First episode of optic neuritis I lost 80% of my vision and had pain when looking to the left or right before I went to the doctor. That was on day 3. Because of my job I thought I just had some minor irritation. On day 3 when I woke up and closed my good eye...that's when I realized I was almost blind in my right eye. The eye doctor sent me straight to the hospital and I had a few days of IV steroids and my vision returned to normal. I was so thrilled. Came home from hospital and after 2 weeks the same thing happened again. I took no medication and it did clear after a week or so. Now I'm just waiting to see if it happens again.
How are you doing now ?
@@ritwikkundu624 after that second episode I have not had another one. They did find that when I sleep my oxygen levels are dropping very low (88, 89) and when that happened my blood pressure was shooting up. I am doing a sleep study in a few weeks.
@stefkadank-derpjr1453 do you wake up with headaches, bad ones? The lower your oxygen goes when sleeping the worse the headache is when you wake up. I have asthma and j don't always wake up at night when I have an attack. I know it when I do wake up though. My head will hurt so bad I can't walk.
@@Phoenix_Atlas yes I will wake up with the worst headache ever and my headache can be so bad I throw up....
You need to start your ms treatment as soon as possible, go to a neurologist and take care of this don’t leave it untreated please.
I was also diagnosed with multiple sclerosis after optic neuritis. Now I'm okay though! Steroids quickened the process of recovery for my eye and now can see. And I'm also in therapy for my sclerosis 😂 so far going well
Did your eyes get red like hurt and inflammation??
@@joannajohnson2669 sounds like you have pink eye to me. I hope so. I hope you don't have MS. Merry Christmas
update ? how do you control the Optic neuritis long term , do you keep taking the Steroids ? and what way is it administered ? IV orally ?
Long term I feel fine and I can see well
Has anyone had swelling around the eye and face along with this?
Yes
I'm having pain in the back of my right eye with eye movement. Been going on for a few weeks. I've been using otc eye drops, but it doesn't stop the occurrence of the pain. I have not been dx with MS. I am also having hives and they have been getting progressively worse over the last year and a half. I need to speak to my doc about the eye prob and have her refer me to an optometrist or ophthalmologist. I just want relief from theses hives! Ugh!
Are you somehow also applying a sort of internal pressure in the affected eyes ?
@@KevinKeenoo It has gone away. I'm healing from all
@@MsGodsown1 That’s amazing. How long it took to heal ? Would you mean sharing the treatment you’ve gone through for the healing ?
@@KevinKeenoo the eye pain just stopped. I talked to my allergist doctor and she prescribed/rx'd Singulair and Pepcid for my hives and I have been taken those for 3 weeks and it seems to be doing the trick. I also stopped drinking White tea thinking I may be allergic to it. We'll see I stopped drinking it about 3 weeks ago. Time will tell.
Damn!!! I Wish I Knew All This Stuff Earlier. Unfortunately The Steroids Did Not Work For Me. Now My Neurologist is Starting Me off With Something Called Mavenclad Because He Says My MS has been 15 Years Undiagnosed.
can u describe your condition 15 years ago? i want to match with my symptoms/signs
When I had optic neuritis every thing looked like a 2 dimensional silhouette. I could only see the outline of peoples faces unable to see any detail like eyes, nose, mouth etc. Simply put everyone looked like "The Blank" from Dick Tracey (portrayed by Madonna in the 1990 Film).
Hi, did you fully recover your vision?
@@gabrielantunezjr5994 Yes, although my night vision may have gotten worse.
GG Bianco that’s good to hear. How long before you recovered your vision?
@@gabrielantunezjr5994Around 6 weeks total, but the recovery began in the last 2 weeks w high doses of methylprednisolone.
Why are Michelle's pupils so dilated? Is that a symptom of MS?
what if you don't have M S and this happened
Thank you for scaring me to death! I have had eye problems on and off for years and have never heard of this. I am REALLY scared now.
Gail Goodwin 20% of people suffering from m.s suffer with optical neuritis..!
Gail Goodwin not Everyone..!
Gail Goodwin
The first Acute onset of MS i read all the symptoms Including Optic Neurigtist .....i Remeber saying I hope I don't experience this....
But I did ....long story short....it's not as bad as you would imagine....its not immediate....once you know that it's happening....Go to ER..... I Waited far longer than I should have and I was told that I should have came in long before I did
I have O N in the left eye....my vision was 20/20.... now it is 200/20
I think chlorella could help.
I got this by tuberculosis treatment. I am 34 years old. I see everything blurred.
Hi sushil
Is it cured? I have same problem
I am currently in my first full on optic neuritis attack. The doc does a bunch of test. Hands in the air? My experience this past few weeks was steroid drops, then nothing. MS doc doesn’t seemed to care or believe as I had it hit both eyes but not simultaneously, one followed the other by a week 1/2 difference. Now blurry, double vision and flat out fear. What does it amount to…well? …..nothing and they’ve once again leave me wanting and distrustful; only now someone a bit fatter with cash, and I’m just more mistrustful and possibly mistrusted but definitely mistreated. Apologies for my negativity. This whole experience with the medical world has been awful. Took 27 years to get diagnosed with MS , then the two past years being put through the gauntlet of meds they then snatched away due to paperwork, then Tysabri rebound syndrome, which then left me worst than when I started. I hate it, dislike the doctors and regret surviving long enough to be put through this after having a fleeting hope that I could arrest this. Far from the outcome I was told was possible. Just what has happened to me. I guess as they say, your mileage may vary?
I’m so sorry to hear what you’re going through. How are you doing now?
Can you tell me more about your experience with tysabri? I will start the treatment in a week and I am kinda scared.
Im so sorry for your experience. I know what you mean about the medical field and their behavior at times!
@@Jess-kn8vl I made it through but I remember my dentist telling me, “lay back, relax….this won’t hurt ME a bit.” Funny guy but it’s teeth, not your brain and nervous system. It’s their attitude as they click away on computers writing everything down but not connecting in anyway what you just told them. Minimum requirements, their ass covered in a 15 min slot ….if you’re lucky. I found an old school optometrist who got me down the road with two flares in the eyes about 5 weeks apart. The rest….I’m ready to take my chances with fate. I just don’t trust them at all. I even went to MAYO and came away more confused. They all tell a different story of ME. My wife says I’m unique but come on, we’re all blood and guts on the inside and I thought at least they had standardized diagnosis a bit more.
Hope you are good and well looked after if you’re also dealing with the insidious.
Double vision blur vision formation only ayurveda is solution.
Hello, can you recommend any good ayurvedic medication for optic neuritis
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