I was diagnosed earlier this year. I can't shake the feeling that my rather stressful job that requires a lot of concentration is no longer suitable for me but I really can't see any financial alternate to it so I guess I will just have to carry on somehow. I have that thing where I am in lectures/meetings and things get said (apparently) that I have no recollection of later even though I was awake and present the whole time. Not sure what I can do about that, very troubling and frustrating.
I totally understand your plight. Recording the session to have it to review later has been very helpful for me, but it also makes for a super long day if I have to do everything twice to be sure I didn't miss anything. Moving out of California allowed us to drastically reduce our cost of living that gave me a LOT more options. Can you reduce your cost of living to enable a less involved career? Thanks for the comment! - Cliff
@@NeuroNerdyX I am absent from work so often due to the MS that I do not think I would want to apply for a job anywhere else, I can't imagine many places putting up with such an unreliable employee.
@@rosieposie9564 I agree. It would be very frustrating as an employer, however, maybe you can find a dysfunctional company where you are the reliable one like what happened to me in the video. Haha.. It's sad when the employee with MS is more reliable than the rest of the staff. :) Have a great weekend and Thank you for the comment.
Hi Cliff. I just loved this video because it showed me that I’m really not alone in having had such hard lessons when it comes to MS and working. I too, about 7 years ago, was having terrible trouble with my memory and just my cognitive abilities all up. I worked in law and I was always the one who worked all hours of the day and night to get the job done because I loved what I did. Unfortunately, because of the memory and cognition problems, it was causing me to fall down on the job in some areas, and the stress was just causing even more MS problems, it was just a viscous circle. I ended up having to medically retire at the age of 56. I had been doing furniture restoration on the weekends as a side hobby, and, after a couple of months break I took that full~time. I did that for another few years until the arthritis in my right shoulder got so bad I had to stop doing that as well. So now I need to work out what other small business I can do that doesn’t involve either cognitive or physical work, just to keep my mind active during day. Having MS just makes working so much harder, so I get how you felt when it got all too much for you. At least you tried, and you did what you had signed up for, it’s just that no~one else in the company got that memo. No wonder the company was on a downhill slide with that kind of attitude by the people being paid to do the job. Still, you did your bit, you got paid well, it didn’t work through no fault of your own, end of story. Thanks so much for being so honest about the situation. It really helped me knowing that I wasn’t alone in having problems with employment. I know that you will eventually find something that makes you light up again. As the saying goes “God helps those that help themselves”. Have a great weekend and I look forward to seeing the next thrilling instalment. Take care, lots of love, Shelley xx
Hi Shelley, Thank you so much for sharing your story. It's incredibly brave of you to be so open about your experiences with MS and work. I love that we can have a real dialogue about this topic. Your story really resonates with me. As you know, I relate to the cognitive challenges and the toll it takes on both your work and your overall well-being. It's heartbreaking to hear about your forced retirement, but it's also inspiring to see how you've adapted and found ways to keep yourself engaged. I love working with my hands, but like you said, it doesn't get easier as we age. Got to keep moving though! :) I'm glad that my video provided some comfort and understanding. I keep reminding myself that we're not defined by our limitations. We can still find joy and purpose, even when things don't go as planned. I wish you all the best in your search for a new venture. I'm confident that you'll find something that brings you both satisfaction and financial stability. Thank you again for your kind words. It means a lot. Have a great weekend in Oz. Take care, Cliff
I very much appreciate you being so open and honest about having to let go of your career and how you found a way to still make a difference
Thank you! I'm going to keep at it. We will cross this finish line together.
Super important topic. Thanks for this video!
Wow, Dr Boster around these parts. Fantastic!
Thank you for stopping by. I haven't met a person yet that has MS whose career hasn't been impacted. It's tough!!
He's the GOAT for MS!
I was diagnosed earlier this year. I can't shake the feeling that my rather stressful job that requires a lot of concentration is no longer suitable for me but I really can't see any financial alternate to it so I guess I will just have to carry on somehow. I have that thing where I am in lectures/meetings and things get said (apparently) that I have no recollection of later even though I was awake and present the whole time. Not sure what I can do about that, very troubling and frustrating.
I totally understand your plight. Recording the session to have it to review later has been very helpful for me, but it also makes for a super long day if I have to do everything twice to be sure I didn't miss anything. Moving out of California allowed us to drastically reduce our cost of living that gave me a LOT more options. Can you reduce your cost of living to enable a less involved career? Thanks for the comment! - Cliff
@@NeuroNerdyX I am absent from work so often due to the MS that I do not think I would want to apply for a job anywhere else, I can't imagine many places putting up with such an unreliable employee.
@@rosieposie9564 I agree. It would be very frustrating as an employer, however, maybe you can find a dysfunctional company where you are the reliable one like what happened to me in the video. Haha.. It's sad when the employee with MS is more reliable than the rest of the staff. :) Have a great weekend and Thank you for the comment.
Hi Cliff. I just loved this video because it showed me that I’m really not alone in having had such hard lessons when it comes to MS and working. I too, about 7 years ago, was having terrible trouble with my memory and just my cognitive abilities all up. I worked in law and I was always the one who worked all hours of the day and night to get the job done because I loved what I did. Unfortunately, because of the memory and cognition problems, it was causing me to fall down on the job in some areas, and the stress was just causing even more MS problems, it was just a viscous circle. I ended up having to medically retire at the age of 56. I had been doing furniture restoration on the weekends as a side hobby, and, after a couple of months break I took that full~time. I did that for another few years until the arthritis in my right shoulder got so bad I had to stop doing that as well. So now I need to work out what other small business I can do that doesn’t involve either cognitive or physical work, just to keep my mind active during day.
Having MS just makes working so much harder, so I get how you felt when it got all too much for you. At least you tried, and you did what you had signed up for, it’s just that no~one else in the company got that memo. No wonder the company was on a downhill slide with that kind of attitude by the people being paid to do the job. Still, you did your bit, you got paid well, it didn’t work through no fault of your own, end of story.
Thanks so much for being so honest about the situation. It really helped me knowing that I wasn’t alone in having problems with employment. I know that you will eventually find something that makes you light up again. As the saying goes “God helps those that help themselves”.
Have a great weekend and I look forward to seeing the next thrilling instalment. Take care, lots of love, Shelley xx
Hi Shelley,
Thank you so much for sharing your story. It's incredibly brave of you to be so open about your experiences with MS and work. I love that we can have a real dialogue about this topic.
Your story really resonates with me. As you know, I relate to the cognitive challenges and the toll it takes on both your work and your overall well-being. It's heartbreaking to hear about your forced retirement, but it's also inspiring to see how you've adapted and found ways to keep yourself engaged. I love working with my hands, but like you said, it doesn't get easier as we age. Got to keep moving though! :)
I'm glad that my video provided some comfort and understanding. I keep reminding myself that we're not defined by our limitations. We can still find joy and purpose, even when things don't go as planned.
I wish you all the best in your search for a new venture. I'm confident that you'll find something that brings you both satisfaction and financial stability.
Thank you again for your kind words. It means a lot. Have a great weekend in Oz.
Take care,
Cliff