The Mt Sinai Recovery Plan for Long Covid | With Dr David Putrino
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- Опубліковано 8 чер 2024
- One of the world’s leading clinics for the treatment of Long Covid is the Mt Sinai Hospital in New York.
In this film Dr Asad Khan and I talk to Dr David Putrino - director of rehabilitation innovation at Mt Sinai - about the groundbreaking work they’re doing to treat long haulers.
Long Covid is a complex puzzle but one part of it - dysautonomia - is responsible for many of the myriad symptoms patients face. The Mt Sinai team have put together a comprehensive plan for recovery and rehabilitation - all whilst working within long haulers' energy limits.
REFERENCES:
Stasis Breathing:
stasisperformance.com
CHAPTERS:
0:00 Introduction
0:51 Background on Dr Putrino
4:21 Dehabilitating Symptoms
5:55 Prevalence of Dysautonomia
8:45 Evolution of Treatment
13:00 Levine/Borg definitions & outcomes
18:50 Managing PEM
22:50 Pre-screening Before Treatment
25:10 Practical advice
28:35 Stasis Breathing
31:10 Rehabilitation in Detail
33:50 Cause of Brain Fog?
36:20 Medical Journals & Publishing
40:37 Ideal Research Project
42:11 Conclusion - Наука та технологія
Stasis program has saved me, I’m just starting some PT and glad to hear I’m doing the program in the correct order. I’m not in New York and have had no luck with my doctors here in Chicago. Once again thank you for everything you’ve done to help us all get better!
Thank you Mindy!
Im in Chicago to and haven't found help 😭😭😭😭😭😭
@@trinar8129 The covid clinic in chicago didn't help me at all!
@@neverseenblue11 drink the miracle mineral solution and all the pain in hours the cost 7.59 uk pounds ,it will clear the dead viral debris out of your systemin hours the immune system calms down and the energy levels rise,it saved my brother s life in 4 hours big pharma will do all they can to stop you using the miracle mineral solution,it ends all post viral conditions in hours
@@Beekind799 Still trolling I see
Loved the candid comments, toward the end, about research publication reality - and also loved the idea of developing a consortium of successful, diverse providers!
Such great questions…1000x thank you for these interviews.
I just love how you are able to interview and extract info for us that is so useful….Thank you Gez! You have been “brilliant” as they say in England and Iam so grateful that you are able to bring us all different resources that are helpful. And love the conversation about introducing and bringing in other methods ie: Chinese medicine, etc…Well done!
Thank you Kathleen!
What did you find useful?
I've been dealing with my own long covid for the last 4 months. Basically feels like my body is buzzing all the time, particularly in my ribs/flank/neck. If I exert myself too much, it gets worse to the point it feels like I am tremoring, with some tremors being observable. Prior to covid, worked out 6 days a week. I did jiujitsu, weight lifting, rock climbing, swimming, running, cycling, etc. Now if I go on a two mile walk, 24-48 hours later I will crash for 3-4 days.
Hoping it gets better, going to try this stuff.
The ArtemiC Combo has helped us get past COVID and Longcovid rapidly.
@@CBEACHI've heard of ArtemiC , but what is the combo ?
@@timmyschannel5 it is when you use both of them.
ua-cam.com/video/CxibS0mPRO4/v-deo.html
by buzzing do you mean pins and needles feeling, or even neuropathic pain???
Gez, you are looking well! So happy to see you advancing on the road to recovery, as we all hope for you
Thank you!
This is good to hear. Thank you for your work. There is hope.
This was a great interview/discussion. Thank you.
All the symptoms are very similar to the illness ME/CFS.
Dishwasher/rest/sweep triathletes represent!
@Abc Def take this twice a day with food for ten days then reduce to once a day for ten days then just mon to fri once a day take with food 2 x 600mg caps n acetyl cysteine morn/eve - 1000mg caps cod liver oil and fish oil morn - 1 kelp tablet morn/eve - 100mg magnesium citrate morn/eve - 200 mcg selenium morn/eve - 2 x 750mg caps beef liver extract morn/eve - 1500mg combined caplet quercetin/bromelain morn/eve you can get all of it off ebay i cant recomend brands because people will say i dont help people for fre,make sure the quality is non gmo no rubbish in it and the seller has a high feedback if you know any covid long haulers if they have one drink of the miracle mineral solution all the pain ends in hours the cost of the miracle 7.69 uk pounds
Thank you again for great content. Affirming and more importantly, helped my family understand the condition better.
Great to hear it Jenny!
Oh my gosh is that what is happening to me. Im 4 months out from covid, and I did have horrible fatigue. I had weak legs, shaky and could not do much of anything but lay around. I was never out if breath, but I did have a racing heart for the whole time of covid. Which now its alot better and only happens here and there with little intensity. But then I saw this vlog and watched a few of them. So I figure hey ok im long covid. Well I've been doing great this last month, and I realize I'm still recovering, so I've been taking it easy. Well now after hearing this man talk about PEM!!!! That what I have this week. I like a fool thought I felt good and strong, so I did my full workout Monday and felt a little nauseous after I did it. But the next day I was so weak and felt like I had covid all over again, which for me was fatigue and racing heart. My heart has raced 2 times this week, and I've had on and off fatigue. Wednesday felt better went to town did a bunch of shopping lugged around all my bags and flats of water, ate dinner went to bed. Woke up next day Thursday sick as a dog again. I thought oh my God, do I have covid again? So I went to the ER last night and was tested, had a electro cardiograhm test, blood work! All was good, no covid tested negative. The doctor came in and said I have long covid and to do my best to rest and listen to my self as far as energy. He said I was doing well with all the vitamins and natural food I was eating, but he said I was doing too much activity physically, and he said I was crashing, or called it a flare. So lest to say I've been sick and down all week like I have covid again. I cant eat, my stomach is bloated I am weak and feel like crap! I need to find some type of recovery facility like this in California close to Sacramento. Does any of you know about any hospitals treating long covid patients? I think someone said on her UC Davis. But is it treatments like medicines or is it Physical Therapy for the autonomic nerve issue which he is calling, I cant remember the name. Anyhow I need help!
So sorry to hear of your struggle. Wishing you the best.
@@RUNDMC1 thank you! May i ask, did you have a racing heart or heart palpitations? If so how did you deal with it?
🌞🙏🌞🙏Thank you very much for these videos. For me, one month 3x per week of very light physical therapy got me ready for beginners pilates with a trainer who's very much aware of my symptoms. I tested it for 2 weeks to ensure I was ready for that. I don't feel that I can add cardio of any level yet because my resting heart rate is still high (90-122bpm). I did ask my physiotherapist for water exercise but now i'm going to ask for the tests mentioned here.
Thank you!!! Your channel has done more from my healing than my eight month of many many doctors, at times more than nine at a time. My cognitive function isn't as sharp after pilates and may be in bed the day or next day but I feel stronger and overall less pain and fatigue.
Keep up the great work!
Thank you Olga! Best of luck with your continued recovery :)
Great video - has given me tonnes of ideas! Thanks so much to Dr Putrino for being open minded and innovative. Agree with his dream research project idea. Also it was really helpful hearing how long it takes for the nervous system to regulate again. There may be many more months of this patient effort, but at least I now have hope that slow and steady should get me there.
Thank you, and best of luck with your recovery!
You'll get there. It took me a year and a half, and I'm still not 100%, but slowly slowly things start to return to balance. You just have to accept that you are where you are, and it can't be overcome or hurried or beaten. Your autonomic nervous system will recalibrate, and you will recover stamina eventually. But gradually.
Freaking excellent information,...thank you. Long covid 8 months now and first time I argue and disagree with some advice I get. You have given me a lot of new information that speaks to me. Thanks again
I would press the like button once more, but apparently I can't! Thank you Gez and thank you Dr. Putrino!
Thank you Bita!
Excellent interview, once again! Thank you!
Thanks Michelle!
drink the miracle mineral solution and end all the pain in hours the cost of the miracle 7.59 uk pounds
Thank you so much for saying "science is a club!" and I totally agree with your 5 year time line.
Well pharma cos and govts granted full legal identity/immunity from any/all harms by vac until 2024. So let’s see what happens after then. ❤️✨
This is uplifting information. Thank you for your work and sharing this video.
Thank you Matt!
Amazing work! The understanding of "how you feel the next day" was an eye-opener. No wonder it is so easy to overdo exertion. We are accustomed to monitoring our body response and sensations to tell us when we are at the edge, but long covid requires seeing how we are doing the next day. Sore muscles give way to being kicked down a long hillside. Until a patient understands that he or she is not going to like the process.
For me its not the next day or even the 2nd day, but 72 hours latter I have a crash, so its easy to forget during those 3 days after too much exertion, to not exert further, making the Post Exertional Malaise crash PEM, far worse. I have learnt to rest those 3 days, and it does help reduce the severity of PEM.
@@brobinson8614thank you 🙏 I'm on day 2/3 so glad it's normal, my symptoms are way worse than they ever were before. I didn't realise going for a walk (it was a long walk to be fair) could be so fking damaging.
Thank you so much Ged, much appreciated as always! I'd love to know more about the techniques that have helped you. I'm trying to do Gupta at the moment but haven't tried TCM...
I speak about what’s made the biggest differences for me in the recent (ish) film i made about psychology and long covid.
Excellent Information. Thank you.
Yes, your wife describes it very Well.
bless you for this video.
You need to treat inflammation. I had terrible fatigue, brain fog, memory cognitive issues after covid. I'm Still recuperating. New doctor treated me with I meg solumedrol IV steroid. Within hours of treatment the pressure I felt on top of my head lifted. Several days later I could think clearer my short term memory lapses improving. My fatigue also is much better. I nap once or twice a week once a day. Not every day twice or three times. Why do doctors ignore treating brain inflammation. It is documented on MRI scans. They know it's there but don't treat it. I thank God I finally found a doctor who treated it. Look for doctors who will give corticosteroids to treat long term covid inflammation. This is what causes long covid!
Thanks Gez, Another fascinating interview. Don't know about you but this heat has lay waste to me? I'm just managing to bumble about around the house practicing my own Levine style exercise regime, so basically emptying the dishwasher and vacuuming between rest periods. Keep up the great work , cheers Mike
Hi Mike - yes this heat is brutal and I think most long haulers are finding it super hard, especially the more dysautonomic ones!
Heat has been bad. Winter cold was draining, too. A few degrees either side of 20C, really.
@@RUNDMC1 its really awful; the temperature fluctuations are worse since the heatwave for me.
Great video. Thank you so much for all of these! I am trying to get an appointment with my cardiologist to get the final clearance to get into this exact program. (I live in NYC, and have had 2 appointments at the Mount Sinai post Covid clinic.) it just seems like everything with the healthcare world goes in slow motion. Do you have a Patreon that we can contribute to? I’ve gotten so much help from your videos I feel like I should give back.
Don’t worry about the Patreon - I’m not in this for the money! (Yet, anyway 🤣) Glad the films are helping in some small way :)
Thank you so much for doing these interviews. I’ve got a call today with Nuffield to start the 12 week programme so keen to absorb as much info ahead of this as i can
Excellent news Barbara!
Hi Barbara can I ask is that an NHS programme or a private one? Many thanks 🙏🏻
@@gaelmclaughlin767 i think nhs or at least its no cost private but i wasnt referred via nhs.. i applied independantly but you have to agree to have your gp informed if you are accepted
@@barbaradonalson9196 oh wow OK thanks I will check it out. Is it on their website? Thank you for the info x
@@gaelmclaughlin767 www.nuffieldhealth.com/about-us/our-impact/healthy-life/covid-19-rehabilitation-programme - explains its free as charitable arm of nuffield. Also you need to be within range of one of their facilities as week 6-12 is f2f there ! Good luck x
I'm starting the stasis breathing now, too. 8 months post COVID. Still lots of trouble walking and chest pain with many other less debilitating symptoms.
The ArtemiC Combo has helped us get past COVID and Longcovid rapidly.
Gez, thank you for another excellent interview. Stasis has really helped me, I recommend it to everyone. I Hope you will do a separate video on traditional Chinese medicine. A doctor who studied Chinese medicine has prescribed homeopathic remedies for me which have been helpful. I’d like to learn more. I also watched the live Q&A on supplements. Maybe you’ve posted one and I missed it, but it would be helpful to have a comprehensive list as it was very hard to catch some of the names. And by the way, I see a future career path for you as a journalist specializing in health. Please keep up the wonderful work you do.
Thank you Lynn, and you’re not the only one to say that!
Will try it
do you mean herbal remedies? chinese medicine is not homeopathic.
@@emilianosintarias7337 sorry not to be clear. He studied and uses acupuncture and herbal medicine as well as homeopathy
Oh my goodness, he has said so many things I can relate to. I think my flair this time came from having Covid again just after Christmas 2021. Maybe started 2nd week in Feb. It just gotten so bad again, especially with the brain fog. And the bizarre reaction after eating sometimes, after only.2 or 3 bites! I've even mentioned this to doctors and no one has batted an eye with it. The stress of it all has gotten so bad I think myPrimary doctor and rheumatologist thinks I'm nuts. My sister even thought I was having a breakdown about 2 weeks ago and quite honestly that's what I felt like. And I'm literally in the process of filling out short term disability papers for my job, and I'm terrified that this may never straighten up!
I contracted covid in early April 2020, and at that time I encountered Dr Putrino on the long covid facebook site. Eating gave me galloping tachycardia for a year and a half, and it still does occasionally. But it settles eventually. I would get a heart rate of 200 sitting on the sofa, and it took me a year to be able to walk for half an hour without being very tachycardic. Breathwork helps, and I recommend the Pulmonary Wellness Foundation with Dr Noah Greenspan, long covid lectures. There are good breathwork episodes for long covid. It's nearly two years since I got sick, and I still get symptoms, but nothing like a year ago. What I can say is there's no way you're going to 'get over' this in a hurry. It takes as long as it takes, and it's different for every individual.
The ArtemiC Combo has helped us get past COVID and Longcovid rapidly.
He’s the one who diagnosed me with dysautonomia after vaccine 😊 great doctor ✨
He really is!
How were you treated? Have you experienced full recovery?
I find these videos to be informative and enlightening. Thank you for the work you are doing.
Thank you Summer!
absolute legends
Thanks!
Super work GEZ. Love from INDIA.
Thank you!
Excellent Gez - great references which i will check out. My paternal grandmother was a “curandera” healing with herbs and faith and alternative practices - wish she were alive! Trying desperately to remember her treatments for 43:04 breathing challenges
Thankyou! Always learn a lot from these videos. Didn't know heat could trigger high heart rate in dysautonomia. Makes sense why my heart rate has been high this week in this UK heatwave😬
Lots of people suffering this week!
In my neck of the woods autonomic conditioning can be helped greatly with cold showers or baths (easing into it). A person would need to get dr clearance. Cold temps seem to force neuronal connectivity .
I love these videos! Even the practical advice isn't that practical for those people who live alone, or have to work. There are things that HAVE to be done regardless of whether it's within the energy envelop or not. It's just perpetual cycles of crashing and crashing even harder. Seems never ending.
I was excited to find an energy expenditure app. I have to work there’s no way around it. After about a week of tracking I was always at a deficit.
I can underline that. But despite of getting back to work early and struggling as a single mom with raising two kids i improved over time. I am always at the limits and also have crashes but they become less frequent and less severe. The only thing i can afford to do is to take supplements, try to rest an hour during the day if needed (usually lunch break) and support with TCM and OTC drugs if needed. The vaccine helped me by the way to get rid of kind a ongoing inflammation. But i still struggle with PEM after exercise so i stopped that completely. Wish all good recovery and thanks again for the great work that has been done here! It’s very helpful to me!
Smoupnhoize, I'mpraying for you too!!
@@tanjamannhart4665 how are you doing now? Mom of 3 struggling everyday :(
@@sabrinafuentes901 i am better but it’s not a linear improvement! I am still struggling but good days are getting more frequent. Sufficient sleep seems to be one important element but sth i not very often get. With kids it’s an extra challenge. But i am now at a stage where i can do everything except exercise. I started walking and increased distance in a setting that did not trigger pem. But still a long way to go for me! What about you?? What did help you?
I find it hard to figure out what is overdoing it when it comes to exercise. I went for a walk yesterday and today I feel like I was hit with a Mac truck. They don't seem to have rehabilitation clinics like this in my area.
Thanks everybody, great info as always 😁👍
Thanks Richard!
Dysortanumia - This is a frightening prospect given the life expectancy of someone with this condition. I do worry about the long term effects of long covid and the ongoing relapses. Thank you once again for all the research that you put into these videos Gez and the experts that you bring to the table 👏👏👏 I've said it before and I'll say it again - THANK YOU ! My relapse was after approx 7 months . And like alot of long covid suffers I was really fit and healthy beforehand - loved my exercise routine and have a very physical job too. I'm exhausted just having a conversation or even concentrating- hanging the washing out feels like I've had a session at the gym using extra weighted dumbbells. This relapse is far worse than my first bout of long covid too - Thank you for keeping me sane 👱♀️🐾
Keep your worries to yourself. They are not helping anyone. 🙏🏻
Keep managing your activity levels Dee and don’t do too much!
@@swyllie30 knowledge is power - ignorance is not bliss .
@@RUNDMC1 Will do 👍its like one of your guest speakers once said - even pottering about is a no no . It's hard to get my head around but I'm a quick learner and inherently a positive person - Thankfully 👱♀️🐾
@@deethompson3592 Sorry to hear of your relapse Dee - did anything bring it on do you Think?
I really don’t know what happened to me when I went to the Mount Sinai hospital to get help because I developed long COVID symptoms and I spent almost 2 years going there and I just spoke to the doctor never had any therapy or see and specialist maybe I was very unlucky. I stopped going there because I felt I was wasting my time I was getting sicker and I am more sicker now without any help from no one yet. I feel like dying little by little every day my blood pressure the high is higher than normal and my low is normal now I am having attacks of hypoglycemia my stress is to the roof also I am suffering from chronic anxiety, insomnia, fatigue and worse dehydration and really scared and afraid I am going to die because nobody believes me what I am feeling complaining for 3 years in muted ears or any one I have gone to see. I can’t believe it that I am more up today about what’s going on with the new researchers and I go to see a doctor or ER and when I said that I have long COVID symptoms is like another thing no even trying to understand why I went there I don’t feel the know anything so that’s why I feel alone struggling to be alive
There needs to be a new Term such as Compassionate Movement Protocol
I’ve been struggling exactly with that subject, it’s been 19 month after, it is for wonderful people like you that life get balance, finally what’s going on for me is being said loud, thank you.
My question is, is there any clinic with Dr like you who are in Boston. All this months I asked my Dr. For help and they have no words, oven when blood markers are high, Gi problem, brain fog, sport resistance leg pain and many more then what was said.
Please is there any in Boston? Or can I come to NY, I need help it is hell of 19 months now, thank you
Anybody got the the documents from STASIS protocol downloaded? Their website seems to be down. Thanks!
We need you back in Australia please 😭🙏🏼
Thanks guys - you are legends! 😊
Thank you Cyra!
Usual excellent quality guys, no stone left unturned
Is that an Australian accent I hear?? Yay. Please recommend doctors here in NSW , Australia 🙏🏼🙏🏼
It’s so hard to find any doctors that even recognise long covid here
I think it is Daniella!
Good information, I'm blown away that no matter how high the level of physical conditioning was before covid, that if highly conditioned individuals and very poorly conditioned are equally reduced to the same state of functioning and fatigue after similar amounts of exertion then i would assume that would point to something along the lines of MCAS, dysautonomia? ( and a pile of everything else out of whack ). I've got my Zwift setup on hold for 4 months, but walking 3-5kms every other day plus recumbant stationary bike works well ( 20mins at max 110bpm). I may just start using zwift again but dial the effort level to 40% or 50%. Also, i was doing fairly well before i got the first vax (moderna) ... huge setback, but feel a difference in the dysautonomia and mental clarity. ... I was shocked to hear about the peleton person 5 months in... i wonder if their recovery from a massive flare up will be much quicker than the original? Possibly it could even be worse? You know, in Toronto there are so few doctors that are dialed in, or seem to care to be dialed in. Many doctors it seems are burned out and overwhelmed just trying to get through the regular stack of patients (lots of zoom appointments), and not interested in auxillary info. I'm also interested in knowing if I'm even close to the standard physio protocol, Levine is it? Hey and tell us what kind of exercise you are up to these days? walk / jogging or just straight slow jogging yet?
My guess is that she got the vaccine and that is what caused her to flare
@@karenm7433 I've heard of many people who never had long covid but got it from intense exercise, many many months after a very brief covid infection, mild, and quick recovery.
Like a MAD TV skit, Lowered Expectations, this is your new life, please avoid doing the same level of exertion you did previously.
I’m still avoiding specific exercise but can walk 20 mins ok if it’s not too vigorous
Any thing that was wrong with me before the moderna vaccine has amplified 1000% since vaccine, I had a awful flu 1 month before moderns vac, CV test came back neg, but had all symptoms except fever. Feel like scrap since.
My Dr could care less. I need info.
Could someone look into long covid symptoms being drastically improved after going under general anesthesia. This has happened to me and I'm wondering if others have experienced this.
Interestingly my recent reasonably successful n=1 experiment started about 5 days ago, as I was forced to do much more exertion than than my safe baseline normal amount, as was shifting rooms. Even though I had a person helping me, I still had to move about beyond what normally triggers ‘Post Exertional Malaise’ PEM for me. So I knew I was in for one hell of a crash.
Other times I did anything near similar to that amount of exertion I was bedridden for up to three months with what feels like endless influenza.
However this time I remembered there was a left over supply of dexamethasone (4mg) that my mother didn’t use. So immediately after the exertion I took one tablet a day, for 5 days. The key was not to do much during this period. i.e. not do extra during a steroid high like many people think they can. as a worse crash is inevitable
I normally have quite late onset of PEM, usually between 48 and 72 hours after exertion but the PEM didn’t hit me!
I noticed my baseline level of exertional ability has still dropped, but I’m not godawful sick, and no flu like symptoms,. My brain fog has increased slightly and a slight hangover like sensation came, but this is definitely much better than what normally happens.
So the exertion still has affected me but not to the degree it would have if I hadn’t prophylactically taken dexamethasone.
I’ve tried dexamethasone a couple times in the past but I’ve taken it after PEM itself has begun which I feel is too late, as has no for me benefit then.
I’ve often wondered whether or not we could take some sort of a immune suppressor or modulator immediately after (or during) exertion if it would have an affect on preventing PEM.
I have also used Low Dose Naltrexone and NSAIDS immediately after too much exertion and that has had some slight but still noticeable effect in reducing PEM severity.
I am aware that some people with Long covid and MS/CFS cannot tolerate glucocorticoid steroids like dexamethasone, so wont help them, but maybe some other immune suppressant might?.
Although we have to be aware that these drugs can cause problems when taken long term. My suggestion is more for emergency PEM prevention. i.e. a short course once in a while.
This sound very much like the work of Staci Stevens Workwell for CFS/ME . She also has something called VO2 max. There is a video of her on YT speaking at a conference.
The only issue with Levine is once you start you cant stop otherwise the symptoms come back. A good treatment, but ill be pretty stuffed when I'm in my 80's and no longer able to get on my Peloton bike!
“You can’t sit with us.” About the Doctor’s Club. SMH… I feel like this phrase is so accurate right now. Thank you for your passion and persistence. And thank you, Gez, per usual🙏🏼😏
Thanks Ellen!
Im a "continued Covid symptoms" gal. Do you know anyone in St Louis or nearby that understands and treats this issue!!
I wish there was a way to get their plans and exertion scale.....
Have you tried are ArtemiC Rescue and Support Combo treatment for Longcovid
Hi Gez . Have you done a video on the traditional Chinese medicine/ practices at all please as I’d like to try them ?
I haven’t done a video on them but I’d definitely recommend it!
Am a long hauler, 18 months of a rollercoaster. Been through tons of different issues, Medical tests all clear. except high WBC and
C Reactive protein. I suspect SIBO as I had oral thrush. Never had this in my life
Latest is numbness of tongue and lips. Started a low histamine diet, and taking THE STACK supplements. Its been a week and already seeing a difference . I am abit hesitate to take the NIACIN due to the lips numbness... pls advise did anyone have this as well and how did you manage it?? Refuse to go to another doctor... will try to heal my body in a natural way
What is this stack?
@@ange.luvs. it's mentioned in one of the other videos, the still for the video has a piece of paper with a list on with some supplements / vits / minerals on. From memory the stack / list includes - Vit C, Vit D, (and K?) Niacin, Zinc and Selenium. I think there's about 6.
Thank you for your interviews with experts in Long Covid across the world. I believe God works healing people in many ways. All these information has brought to me more hope to recover from Long Covid. I live in Los Angeles California. Is there a way to connect me with Dr David Putrino or any Autonomic physical therapy in my area? Thank you again.
ua-cam.com/video/CxibS0mPRO4/v-deo.html
As a long term sufferer of ME/CFS, I was most disappointed to have a reaction to covid vaccine and now have severe ME or Long Covid. Many symptoms appear to be MCAS and physical exertion makes MCAS symptoms worse for several days, so I'm afraid to try to exercise. Any ideas for those with MCAS Symptoms who have a flare on exertion?
Basically the biggest one is rest - but you will know that already! If you haven’t already, have a watch of this:
ua-cam.com/video/sICD0Kn6pR4/v-deo.html
Please look into Medical Medium books by Anthony William. It’s helped my long COVID symptoms post vaccine tremendously.
@@karla_264 can you please say what specifically helped you, I have a couple of his books
@@karla_264 any tips to help us out?
Cutting out “no” foods, doing the morning heavy metal detox routine daily, taking the prescribed supplements at the back of the Cleanse to Heal book.
I wish I had access to his methods. I'm severe long covid and don't know where to start...
I need someone to help me with POtS specially my postural tachycardia - my heart beat is my main symptom. Who Dr Khan saw that helped him with his heart beat please? Many thanks
We don't need rehab and reconditioning.We were young and mildly ill.Unless their therapy helps the underlying pathology someway it can only increase functionality somewhat.
@@Beekind799 stop spamming that nonsense.You are a snake oil salesman not helping anyone.
Why dont they do that xenon mri scan at mt Sinai?
I had covid just over a month ago, I’ve pretty much recovered fully apart from some fatigue and my legs still ache all the time. Has anyone got any advice?? Thanks
Watch my films on pacing - and avoid alcohol at all costs!
I got sicken Jan 2021 now it's April 2022 still having those leg aches you mentioned off and on, if you find something that helps please let me know.
@@deandraavery what kind of leg pain do you have, where does it hurts and how? I am almost recovered except right leg pain, burning on the top, near groin area, muscle at the back of the thigh...keep having feeling as if it's swollen and one painful vein above the knee. .It' s all so tireing...
The Stasis Performance link doesn’t work.
I TRIED TO GET ON THIS PROGRAM.
I was faced with a staggering lack of ability to provide clear information with regards to the most basic things , mostly admin and prices .
I was given false hope on several occasions (note even about the treatment itself but just about elemental details i needed to know before buying)
In cases misleading, false info or arbitrary figures out of thin air too.
Would be kept waiting weeks for the most elemental details , like 'how much will the recovery sessions cost me'? , to no avail
A total mess before we even began, huge lack of organisation, . Incredible lack of integrated information, lack of support, and unbelievable 'attitude' from several people I spoke to.
A rabbit hole. and that is Before the treatment.
Months digging what could be sinply explained on a brief call or leaflet.
I kept feeling it was not Mount Sinai but the health service in a less fortunate developing country.
As far as I know, I've never had covid, have had many negative tests, possibly false negative? but what I have has been called post viral syndrome, with exactly the same symptoms as PASC and ME/CFS, yet unable to get into any support groups because I don't have a lab (+) PSR test. I am seriously ill and my life has radically changed, which is why I so appreciate Dr Putrino saying "believe everybody." Thank you Dr Putrino!
The ArtemiC Combo has helped us get past COVID and Longcovid rapidly.
I went to the Mt. Sinai Clinic in NY in Nov. of 2020. By that point in time I had gone to see every doctor and ran every test you can think of. Besides the statis breathing suggestion and playing brain games for brain fog I didn't get any other suggestions. It may be a good resource for doctor referrals and getting testing done, but you haven't already gone down that path. idk if anything else has changed in 6 months with their guidance.
Hi! This is wonderful and here I thought I had a regular form of dysautonomia! My symptoms appeared after the 1st covid vaccine (J&J- I was told it was better for chronic Lyme disease patients- ugh!) Long haul dysautonomia appears to be much trickier and complex than the standard case of it . I have SUCH a horrible time with heat intolerance, I can be stuck in bed, indoors with the AC blasting for days or weeks in the summer in New Jersey, USA. Does anyone have any tips for this? It's very depressing to have no social interaction for long periods of time and I feel helpless in this situation without any answers from my cardiologist who diagnosed me with dysautonomia.
Also thinking of relocating for the summer to Maine because the summers are more temperate
So sorry to hear of how severe you have it Jaime :( Relocating to somewhere better for your health when you need to is a good idea if it’s practical / affordable
What are the treatments for people with hypoxia with exertion??
I had mild COVID 9 months ago. Negative PE study, essentially normal echo and PFTs. Still drop to low 80s with exertion...
I'm trying alactic exercise in single muscle groups I.e hold for 18 sec with 13 sec rest for 6 reps. E.g tense quads or glutes. I dont get PEM doing that twice a week (lying prone). But anything quick or aerobic takes me straight out. If my heart rate doesn't warn me I'm overdoing it then my diaphragm seizes up and I get feedback from that. Hopefully I can build up from here. I'm really heartened by this interview. Thank you 👍🙂
Pleasure Tara!
I would urge these providers to publish something soon because health care providers are stumbling in the dark and they don’t want to acknowledge these videos or anything that is not published in literature!! Meanwhile patients are suffering!
How does a person in Maryland get into this program? Is this outpatient ?
You seem much healthier and well rested in this video! Have seen a lot of progress in your recovery?
Honestly it’s still slow progress
@@RUNDMC1 I'm so scared this will never go away and I'll never get my health back. Your videos have mad me feel less alone so thank you!
@@bennym1326 how are you Benny?
I would love an appt with you. I’ve had long Covid dysautonomia symptoms for 20 months. I Have gotten no where at the Cleveland clinic recovery program. I am frustrated. A dance and fitness studio owner who is very debilitated. Do you do virtual? Please message me.
I was dx with dysautonomia 20 years ago and since then doctors refuse to believe it was real. So now I’ve had post covid symptoms for a year. This is all very interesting but how do people find doctors who will help?
You just have to keep trying new ones until you get one that is informed, sadly
We are BORG, we are invincible... Well, maybe.
Great interview Gez, thanks again 👍
Haha, thanks Jon!
This disease made us to aknowledge a lot about our health and how to cure some others cronic illness. I think it might help us to have a longer, healthier life, since we will succed to figure out how to cure it. Thank you, for being a true seeker, for all of us!
Yes!
I feel like I have this but my symptoms are mainly shortness of breath, lots of shallow breathing, palpitations, unconformable feeling in my chest. I dont really feel like exercising will help me.
Have you tried doing a simple stand test for POTS?
@@RUNDMC1 yes my heart rate goes up slightly from 90 to 105, but i dont think that is significant enough. My symptoms were very mild at first mainly cough. But last week i used an albuterol inhaler at the recommendation of my doctor and had a severe allergic reaction to it. Ever since that day i have felt like im dying, doctor doesnt know what it could be since my vitals seem fine. The last 3 days i seem to have completely lost my appetite, my stomach feels full even though i havent eaten anything. I feel so depressed and i cant even stop working or I will lose my job.
IF anyone else is reading this I believe I found what was wrong with me. All the medications I took gave me GERD. Which was coming up to my throat and causing cough and burning/pain in my chest. Because of my chest tightness from covid I kept thinking it was lung related. Coffee, alcohol and many other high histamines food are acidic and will worsen GERD. Thankfully I started taking Pepcid and almost immediately my symptoms started improving. I have since raised my bed head and taking antacid medication together with a GERD diet. I still have a bit of shortness of breath but it is much better than before and it might be because the acid coming up my throat irritated my alrdy covid damaged lungs.
@@omarct glad to hear that you figured it out and are much better than before.
@@alicequayle4625 lol it wasnt so simple. 6 months in ans im still having issues. But yes im mich better than b4. Ty
This is now a year old. How is this approach to long covid now a year later.
Still bang on
💞
100 days of therapy making people well enough to be discharged?! How do I get onto this thing?!?!
A bit disappointed with what Dr. Putrino had to say. It's not any different from the generic advice from any other doctor. Many months ago he was doing research on cytokines that causes dysfunction of the vagus nerve. I wonder what is happening with that?
The "generic advice" I, and many others, got from other doctors was that we were out of shape and/or we needed to exercise more. This was far from that advice.
@@smoupnhoize everyone that drinks the miracle mineral solution is better in hours the cost to end all the suffering 7.59 uk pounds my brother was close to death in hours after drinking the mms he was walking up and down the stairs taking deep breaths ,
@@Beekind799 what protocol did your brother use to take?
@@Anamaria-ew8lh he’s full of sh*t 😁ignore him 🧐
@@richardmock3198 hey richard would you like to discuss the 5 box immune system with me and we will see who is full of shit,big pharma employee creep
What about looking at Native American traditional medicines?
Would happily give some of them a go!
Not that it is important for the long haul problems the question remains. But is long haul a result of "gain of function" in the lab or would the normal untouched covid also result in so many long haul patients?????
all post viral conditions are caused by a weak immune system that cant expel dead viral debris from the system,low atp levels coming from low glutathione levels is responsable for that ,everyone that drinks the miracle mineral solution is over covid and any other post viral condition,it does this by clearing the dead viral debris out of the system the symptoms all disappera the immune system calms down and the energy levels rise,and you will say itsa miracle,all the symptoms are caused by dead viral debris moving the immune sysem responds with cytokine storms,all that stops in hours the cost of the miracle 7.59 uk pounds free p and p for anyone that is vaccine injured if they drink the miracle mineral solution it sees the toxic spiked protein as toxic and remove it from the system ,end of vaccine injury
who is Amy?
I have had a flare up after having each vaccine unfortunately.
Hedgehog hi i also got flare up after my second vaccination it been nearly two weeks does this flare up go down please let me know your experience i am also suffering please advise 🙏🙏
You’re not alone
@@RUNDMC1Hi Gez any idea if someone get flare up with the vaccine dose this flare up go down . before the second dose i was feeling bit better .
@@manindermanku8667 i have had symptoms again since my vaccine for 6 weeks
@@RUNDMC1 i dont think i want to have third vaccine in the Autumn. I know someone who has not had Covid but got Long Covid symptoms after the first vaccine now she has refused the 2nd vaccine.
Dorothy says ,Ross HAUSER, MD has a clinic in Florida and Chicago,he has the answers,before your bankrupt or dead‼️‼️‼️‼️‼️‼️‼️‼️‼️‼️
A lot of these symptoms sound like menopause. Apart from the breathing
Yes - hopefully once we’ve worked out what’s going on that might shine some light on menopause management too.
@@RUNDMC1 oh god wouldn’t that be amazing!
he i saying it is rare for covid to get into brain?
Yes!
Can you get long covid from the vaccine. ??
It can trigger long covid like symptoms in some people who’ve already had an infection (and possibly may not have realised)
I have CFS / fibromyalgia as the result of my Pfizer booster since December 2021. Am watching all the long covid recovery videos because there is not yet a “long booster” channel. Never tested positive for Covid, but it was my 4th vaccine.
Sorry I am not so optimistic with twenty years of #MEcfs, progressive. In not so many words, you are pushing GRADED EXERCISE for #LongCovid even though CDC 2018 un-recommended it? So tell me: of 100 patients you treated how many you brought to PEM and how many REALLY RECOVERED?
HOPE is easy to sell. But medical doctors should not be the sellers.
Dr Putrino here is quite clear that the regime works only within the energy envelope of the patient. The goal is to NOT ever induce PEM.
Oh joy another bunch of experts telling us it’s all in our heads, CBT and breathing exercises for all, we’re cured! So frustrating
Shankat. Far from what they're saying. There's nuance and detail here . You need to be open and grateful to receive it. Then it'll make sense.
a) breathwork calms the sympathetic nervous system, activates the parasympathetic - this is a biological process with a beneficial physical outcome
b) we’ve just recorded a film specifically on the psychologicalisation of chronic illness with a top class panel - it’ll be going up in the next week.
Have you tried it? Or are you being negative about it? Very important to change your mindset while healing
I’ve participated in most all the protocols Gez has covered and will continue to pursue the courses, thanks to those who aren’t the content creator for their input but I’m good thx
@@ShanKatOD we are very much in the biomedical school of thought when it comes to disease. But LC has turned conventional thinking on its head and we firmly believe that the treatment for it has to be holistic.
IT IS CALLED I V E R M E C T I N
Stimulants are not for everyone.
If the information presented by the guest wasn’t so imperative to my long-haul Covid recovery, I would’ve stopped listening long ago. He needs to go back & replay this video counting the times he says “um, um, um”. OMGee! SO annoying! 😖
Ridiculous. Faculty medication. Exotic cure.