I went through something very similar to this. It's horrible. I'm sorry you're having to go through this, too. I finally got a diagnosis, and it wasn't what I was expecting. It turns out I have a connective tissue disorder called Ehlers Danlos Syndrome (Hypermobility type). It effects my entire body, including my digestive system. My chronic diarrhea may also be related to something called Mast Cell Activation Disorder which can occur with connective tissue disorders. The low FODMAP diet changed my life, and now daily antihistamines are helping even more. Don't let doctors give up on you and group you into the IBS category just because they don't know why you're sick. It took me years to finally get my true diagnosis and proper treatment. Never give up! Thank you for sharing your story.
Thanks for sharing! I have suffered from chron's for almost 4 years and it has presented many challenges in my life, I have found edible Canibus extremely helpful during flare-ups together with eating simple foods and avoiding all animal products. On the positive side chrones has taught me to listen to my body and to avoid stress whenever possible. Much love brother. Keep on doing what your doing
Hi daywalker! I also have UC (with the ambiguities in the diagnosis like you tell about) and I suffer from the same symptoms and worries you share (and also I have joint inflammation with it...) And I find it very strengthening, empowering and comforting to hear your words, to hear about ppl all over the world suffering from the same condition, and speaking up about it. Thank you for that!! I can really relate with the need to raise awareness to this, and I, like you, talk about it - I write a blog about my illness. It's in Hebrew - sorry for that - but if you would like to have a look: yyycolitis.wordpress. com Stay strong and keep sharing! It's helping me a lot! And I'm sure not only me but many ppl.
Thank you so much for sharing, your openness is inspiring, and healing. We need more of this!
thank you for the kind words! :)
I went through something very similar to this. It's horrible. I'm sorry you're having to go through this, too. I finally got a diagnosis, and it wasn't what I was expecting. It turns out I have a connective tissue disorder called Ehlers Danlos Syndrome (Hypermobility type). It effects my entire body, including my digestive system. My chronic diarrhea may also be related to something called Mast Cell Activation Disorder which can occur with connective tissue disorders. The low FODMAP diet changed my life, and now daily antihistamines are helping even more. Don't let doctors give up on you and group you into the IBS category just because they don't know why you're sick. It took me years to finally get my true diagnosis and proper treatment. Never give up! Thank you for sharing your story.
Thanks for sharing! I have suffered from chron's for almost 4 years and it has presented many challenges in my life, I have found edible Canibus extremely helpful during flare-ups together with eating simple foods and avoiding all animal products.
On the positive side chrones has taught me to listen to my body and to avoid stress whenever possible.
Much love brother. Keep on doing what your doing
Hi daywalker! I also have UC (with the ambiguities in the diagnosis like you tell about) and I suffer from the same symptoms and worries you share (and also I have joint inflammation with it...) And I find it very strengthening, empowering and comforting to hear your words, to hear about ppl all over the world suffering from the same condition, and speaking up about it. Thank you for that!! I can really relate with the need to raise awareness to this, and I, like you, talk about it - I write a blog about my illness. It's in Hebrew - sorry for that - but if you would like to have a look:
yyycolitis.wordpress. com
Stay strong and keep sharing! It's helping me a lot! And I'm sure not only me but many ppl.